Living well with Dementia and Memory Loss in Dorset

A directory of services, support and sources of information for patients and carers Living well with Dementia and Memory Loss in Dorset

2 Living well with Dementia and Memory Loss in Dorset

Living well with Dementia and Memory Loss in Dorset

elcome to the third edition of the Wdirectory of services and support for people with dementia and memory loss, their carers and families. When someone receives a diagnosis of dementia it can be frightening for them and their loved ones. Having the right information about dementia through all its stages, knowing where to find support, how to apply for any relevant benefits and the legal aspects of the disease can be invaluable. With this in mind we have gathered together as much information as possible on these and other topics such as keeping well and keeping active, which we hope you will find helpful. The booklet has been compiled by the NHS Dorset Clinical Commissioning Group and Dorset HealthCare, in partnership with Bournemouth Borough Council, the Borough of Poole, Dorset County Council (Learning and Development), Age UK, Alzheimer’s Society (Dorset) and local community groups. The content of this guide was correct at the time of publication but contact details for some of the voluntary groups may change from time to time. The NHS Dorset Commissioning Group and Dorset HealthCare are unable to take responsibility for the actions of these providers and their inclusion does not imply any approval or inspection of their work on our part.

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Contents

Section 1: Section 7: Understanding Dementia...... pages 5-7 Support for Carers...... pages 25-30 • What is dementia? • Your rights as a carer • Are you worried about your memory? • Carer’s Assessment • Some useful practical tips • How to get an assessment • Useful contacts • Carer’s Allowance • Short Break Service Section 2: • Home from Home Financial and Legal Help...... pages 8-9 • Carers groups • Planning ahead • Carers training • Useful contacts • Carers in crisis Section 3: • Useful contacts Adult Social Care...... pages 10-11 Section 8: • Providing care and support This is Me...... page 31 • Are you eligible? Section 9: Section 4: Residential care...... pages 32-34 Staying Healthy...... pages 12-16 • Different types of care • Exercise • Choosing a care home • Eating well and drinking well • Inspection reports • Smoking • Finding suitable homes in my area • Sleeping well • Useful contacts • Hearing problems • Unusual behaviours Section 10: • Depression and anxiety The Later Stages of Dementia • Useful contacts and End of Life...... pages 35-36 Section 5: • Advance decisions Other Local Services • Advance care planning Offering Practical Help...... pages 17-21 • Useful contacts • Accommodation services Section 11: • Aids and equipment Further Reading...... page 37 • Independent living • Books • Community transport • Leaflets and booklets • Blue Badge Scheme • National key scheme for toilets Section 12: Section 6: Additional Information and Keeping Active...... pages 22-24 Contact Details...... pages 38-43 • Interest groups • Lunch clubs • Physical activities • Social clubs and activities • Singing for the Brain and Memory Cafés

4 Living well with Dementia and Memory Loss in Dorset

Section 1 Understanding Dementia

What is dementia? Are you worried about your Dementia is not a single illness but a group of memory? symptoms caused by damage to the brain. If you are worried because you, or someone Becoming forgetful does not necessarily mean you care for, is becoming confused and that someone has dementia. forgetful, you should visit your GP. Memory loss can be a normal part of ageing It is important to have a proper assessment and it can also be a sign of depression or because there are other conditions which stress. Not drinking enough water throughout may respond to medical treatment. Spotting the day also can lead to confusion and the signs of dementia early means the right memory loss. treatment and support can be given.

Who is likely to develop dementia? What forms of dementia are there? It is more common in older people, but in some Dementia is caused by a number of different cases dementia can also affect people under 65. types of diseases to the brain, including: However, it is not an inevitable part of ageing; l Alzheimer’s disease the vast majority of people stay mentally l Fronto-temporal dementia healthy. In 2015 it is estimated that there will be 850,000 people with dementia in the UK. l Vascular dementia

What are the early signs of dementia? l Lewy body disease. The most common types of dementia are The following signs could be the early Alzheimer’s disease and vascular dementia. symptoms of dementia: They have similar symptoms but develop in l Struggling to remember recent events, but different ways. easily recalling things that happened in the past Alzheimer’s Society has a the following factsheets: l Struggling to follow conversations or television programmes, losing interest in l What is dementia? things that you used to enjoy l What is Alzheimer’s disease? l Forgetting the names of friends or everyday l What is vascular dementia? objects l What is dementia with Lewy bodies? l Repeating things or losing the thread of l What is frontotemporal dementia? what’s being said l Younger people with dementia. l Having problems thinking or reasoning Tel: 0300 303 5933 or l Feeling anxious, depressed or angry about Email: [email protected] to order memory loss or log on to the website to download or print. l Feeling confused even when in a familiar There are also audio versions online: environment. www.alzheimers.org.uk/factsheets

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Can dementia be treated? Some useful practical tips Dementia is a progressive illness and although These are some tips that people with there is no cure, treatments can slow the dementia may find helpful: progression of the disease. l Keep a notebook or diary for things People often live with dementia for many years such as appointments, people’s and it is not usually a direct cause of death. names, telephone numbers, to-do lists, thoughts and ideas, etc How might having dementia affect me or the person I care for? l Keep important items like money, glasses and keys in the same place People with dementia will sometimes forget to do things or repeat tasks and may also have trouble l Follow a daily routine; this can remembering names, dates or everyday words. stimulate the memory and help Over time dementia can reduce people’s feelings of calm and balance abilities to carry out everyday tasks such as l Put labels on doors and cupboards washing, going to the toilet, getting dressed and cooking or cleaning. l Place important numbers such as family, friends, doctor and care staff by the Not everyone with dementia will have all phone where they can be seen easily of these difficulties and every person will experience them in their own way. Many l Put a note on the back of the door as people with dementia live happy and fulfilling a reminder to take keys lives for years. l Label family photographs both on display and in albums What support and services are available? l Pin a weekly timetable to the wall It is not easy to come to terms with either l Mark a calendar with the date, or get having dementia or living/caring for someone an electronic calendar that changes who has dementia, but there is help and automatically support available from a variety of sources. l Write reminders – to lock the door at In Dorset, this is provided by a range of night, turn the gas off and put the agencies, including the NHS, Dorset County rubbish out on a certain day Council, Bournemouth Borough Council, l Focus on what you can do rather than Borough of Poole and community and what you can’t voluntary organisations. l Carry a card which tells people that Normally, the initial point of contact to access you have dementia. This can be useful these services is your GP. if you get into a difficult situation and You might also find it useful to join a support need someone to help you. Include the group for people with dementia. telephone number of someone you You can meet people who are going through trust who can be called if necessary similar experiences, get advice on coping with l Get to know as much as you can dementia, share stories and make new friends. about dementia. This pack gives some basic information and includes details of organisations where you can get further information.

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Memory Support and Advisory Service Run by Alzheimer’s Society. Supports people with memory loss and dementia, and their carers by providing information, advice, guidance and signposting. Tel: 0300 123 1916 Email: [email protected] Useful contacts

Age UK (formed by the amalgamation of Age Concern England and Help the Aged) Tel: 0800 169 6565 (advice line) Email: [email protected] Web: www.ageuk.org.uk Please see page 38 for more information.

Alzheimer’s Society Offers support and advice, services and activities including Singing for the Brain and Memory Cafés Main Dorset Office Tel: 01202 716393 Email: [email protected] South and East Somerset Tel: 01935 473597 Email: yeovil.sherborne@alzheimers.org.uk National Dementia Helpline Tel: 0300 222 11 22 Web: www.alzheimers.org.uk

Help and Care Local charity providing a range of services including information and advice, carers’ services and one-to-one support. Tel: 0300 111 3303 Email: [email protected] Web: www.helpandcare.org.uk

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Section 2 Financial and Legal Help

Planning ahead Useful contacts It is important that people with dementia and Advocacy memory loss organise their financial and legal Advocacy is speaking up for, or acting on affairs while they are still able to do so. This behalf of, yourself or another person. It can ensures that their affairs will be set up in a way enable people to take more responsibility and that they have chosen. control for the decisions that affect their lives. A Lasting Power of Attorney (LPA) allows you If someone lacks decision-making capacity to appoint another person (an attorney) to take and has no one to speak for them, they decisions about your health and personal welfare have a legal right to support from a qualified and/or your property and financial affairs. independent advocate (IMCA). Lasting Power of Attorney (LPA) has replaced An IMCA can help protect a person’s rights the Enduring Power of Attorney (EPA) which when decisions are made about their long- only covered decisions about property and term care and major medical treatment. financial affairs. Advocacy helps people with dementia to: If an EPA was made before 1 October 2007 it l Make clear their own views and wishes is still valid, but it does not apply to health and l Express and present their views effectively personal welfare issues. and faithfully Lasting Power of Attorney l Obtain independent and accurate information Property and Affairs l Negotiate and resolve conflict. This enables an attorney to make decisions on Dorset Advocacy your behalf about your property and affairs at a time when you are no longer able, or lack the Provides an advocacy service to older people. mental capacity, to make those decisions yourself. Will also provide further information about IMCA. This could include paying bills, collecting your income and selling your house. It can only be Tel: 01305 251033 used once it has been registered at the Office 0845 389 1762 (IMCA Hotline) of the Public Guardian. Email: [email protected] Personal Welfare Web: www.dorsetadvocacy.co.uk This enables an attorney to make decisions on Memory Support and Advisory your behalf about your personal welfare i.e. Service where you live. Run by Alzheimer’s Society. Supports people It can include the power for the attorney to with memory loss and dementia, and their give or refuse consent to medical treatment if carers by providing information, advice, this power has been expressly given in the LPA. guidance and signposting. A personal welfare LPA can only be used Tel: 0300 1231916 once it has been registered at the Office of the Public Guardian and you have become Email: [email protected] mentally incapable of making decisions about The following Alzheimer Society factsheets your own welfare. may be useful:

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l Financial and Legal Affairs Law Society l Mental Capacity Act 2005 The body representing solicitors in England and Wales. It provides details of law firms and l Benefits solicitors and useful information about legal l Enduring Power of Attorney and Lasting specialties and fees, as well as tips about what Power of Attorney to ask and what to expect from a solicitor. l Driving and Dementia Tel: 020 7320 5650 (general enquiries) l Council Tax. Email: Online email form Web: www.lawsociety.org.uk Call 01628 529240 to order or log on to the website to download or print. Memory Support and Advisory See page 38 for more general information. Service Community Legal Advice Run by Alzheimer’s Society. Supports people with dementia and memory loss, and their A free and confidential service paid for by carers by providing information, advice, Legal Aid and set up to help people tackle their guidance and signposting. legal problems Tel: 0300 123 1916 Tel: 0345 345 4 345 Email: [email protected] Minicom: 0845 609 6677 Web: www.direct.gov.uk/legaladvice Mind Legal Advice Service Tel: 0300 466 6463 Driving Email: [email protected] People with dementia may be able to continue Web: www.bristolmind.org.uk driving for some time but they must, by law, inform the DVLA if they wish to continue. Failure Please see page 40 for more details. to do so could lead to a fine of up to £1000. Office of the Public Guardian Notification of the diagnosis should be sent with the person’s full contact details to the Provides legal information and general advice Drivers Medical Group. on mental health-related law such as mental capacity and community care. Car insurance companies should be informed, as their policy may become invalid. Email: customerservices@public guardian. gsi.gov.uk When they become unsafe on the road, a person with dementia must stop driving. Web: www.gov.uk Driving assessments are available via an assessment centre if necessary. Welfare Benefits Further information from: Make sure the person with dementia and their carer receive the benefits to which they are Drivers Medical Group, Driver and Vehicle entitled. These include possible reductions in Licensing Agency (DLVA) council tax payments. Tel: 0300 790 6806 Web: www.gov.uk/benefits Email: Online enquiries form Web: www.gov.uk/dvla-medical-enquiries

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Section 3 Adult Social Care

Providing care and support Community and Day Centres People with or without dementia and their Day centres provide support to enable people carers sometimes need care and support. to live as independent and fulfilling a life as possible and also to give carers a break. Dorset In Dorset this is provided by a range of has a number of day centres in towns and agencies including the NHS, Adult Social Care villages throughout the county. and community and voluntary organisations. Community Alarm Services Adult Social Care can provide help and advice on the following services and also act as a Telecare is a telephone-based service which can referral to other organisations. help a person of any age feel safer and more supported in their own home, 24 hours a day, Home Care Service 365 days a year. This is a personal and practical service for Telecare sensors working alongside a people to help them stay independent and community alarm system can provide remain in their own homes. automatic and direct communication with a monitoring centre. It operates 365 days a year from 7am until 10.30pm and provides regular help according Alternatively the person can call for help by to individual needs, ranging from one visit a pressing the button on a personal alarm/ week to several short visits each day. pendant worn around the neck or wrist.

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Are you eligible? North Dorset Social Care Team Tel: 01258 472652 To find out if you are eligible for these services Email: [email protected] contact the following: Purbeck Social Care Team Dorset Tel: 01929 553456 If you do not already receive a service from Email: [email protected] Adult Social Care contact the Adult Access Sherborne Social Care Team Team as follows: Tel: 01935 814104 Tel: 01305 221016 Email: [email protected] Email: [email protected] Web: www.dorsetforyou.com Weymouth and Portland Social Care Team If you currently receive a service from Adult Tel: 01305 760139 Social Care at Dorset County Council, please Email: [email protected] contact your allocated worker according to where you live: Bournemouth Bournemouth Care Direct Bridport Social Care Team Tel: 01202 454979 Tel: 01308 422234 Out of hours: 01202 657279 Email: [email protected] Email: [email protected] Christchurch Social Care Team Web: www.bournemouth.gov.uk Tel: 01202 474106 Email: Poole [email protected] Poole Adult Social Care Dorchester Social Care Team Tel: 01202 633902 Tel: 01305 251414 Mobile: 07779 880212 (texts only) Email: [email protected] Email: [email protected] Ferndown Social Care Team Web: www.poole.gov.uk Tel: 01202 877445 Out of hours service for all areas: Email: [email protected] Tel: 01202 657279

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Section 4 Staying Healthy

When someone has dementia, it is important that they remain as fit and healthy as possible – both physically and mentally.

Exercise Bournemouth Care Direct Everyone needs some form of regular exercise which can: Tel: 01202 454979 l Encourage mobility and independence Email: [email protected] l Improve circulation and help prevent Web: www.bournemouth.gov.uk stiffness and muscle wasting Poole l Aid relaxation, promote a sense of calm, Adult Social Care and help ensure a good night’s sleep Tel: 01202 633902 l Reduce anxiety, stress and depression. Email: [email protected] Remaining mobile Web: www.boroughofpoole.com If someone becomes unsteady on their feet, Eating and drinking well an occupational therapist should be able to provide information on aids and equipment, Eating too little or missing out on essential such as grab rails, to help them move around. nutrients will reduce resistance to illness and can make someone with dementia feel more They can also give advice on how you can help confused. the person experiencing balance problems while not injuring yourself. If someone refuses to eat a balanced diet, the GP may suggest alternatives, or may prescribe Contact your local occupational therapy team vitamins or supplements. as follows: It is also important to drink enough fluids. Dorset Dehydration is a health risk and can increase Adult Access Team confusion in someone with dementia. Tel: 01305 221016 Further information and advice is available on Email: [email protected] the following website: www.dorsetforyou. Web: www.dorsetforyou.com com/nutritional-care-strategy

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Meals delivery (Meals on Wheels) example, by replacing matches with disposable lighters. A number of suppliers will deliver hot, chilled or frozen meals directly to your door. Contact Dorset SmokeStop for support and advice about giving up smoking and details of You can find out more about meals on wheels sessions held in your local area: or lunch club opportunities according to where you live, as follows: Tel: 0800 00 76653 Email: [email protected] Dorset Web: www.dorsetsmokestop.co.uk POPP (Dorset Partnership for Older People Programme) If you are worried about fire risks generally, Adult and Community Services Dorset Fire and Rescue Service (DFRS) Tel: 07919 545199 provide free Home Safety Checks. Email: [email protected] They will visit homes and fit or replace smoke Web: www.dorsetforyou.com/348827 alarms if appropriate, giving advice on the (a guide to meals on wheels can be use of candles, unattended cooking, electric downloaded) blankets, overloading sockets, chimneys, low energy light bulbs and much more. Bournemouth Tel: 01305 252600 Bournemouth Care Direct Email: [email protected] Tel: 01202 454979 Web: www.dorsetfire.gov.uk Email: [email protected] Web: www.bournemouth.gov.uk Sleeping well Poole Dementia can cause difficulties in getting to Poole Adult Social Care sleep. People can become confused about Tel: 01202 633902 night and day, and may get up in the middle of Email: [email protected] the night, thinking that it is morning. Things that can help: Web: www.poole.gov.uk l Limiting daytime naps and offering a range Drinking alcohol of stimulating activities Enjoying a drink in company can be a pleasant l Reducing fluid intake in the evening and way to relax. However, people with dementia avoiding stimulating drinks such as tea can become more confused. and coffee Alcohol also doesn’t mix well with certain l Taking some form of exercise during the day. medicines. If in doubt, get further advice from your GP. Hearing problems In people with dementia, poor hearing can Smoking add to feelings of confusion and isolation. If Smoking can cause a fire risk, as some people someone seems to have a hearing problem, with dementia have been known to simply ask the GP for a referral for a hearing test. The forget to extinguish a cigarette properly. If they test and hearing aids, if required, are free on do smoke try to make it as safe as possible, for the NHS.

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Good eyesight Problems with sight can increase confusion in people with dementia and can make it harder for them to recognise people or objects. Optometrists have special techniques for assessing sight, even for people in the later stages of dementia. If someone with dementia has sight problems, you may need to tactfully remind them to wear their glasses and check that their lenses are clean. Unusual behaviour People with dementia may develop symptoms including restlessness, delusions, hallucinations, apathy and sleep disturbances. Their behaviour can be confusing or difficult to deal with and this could leave you feeling stressed or helpless. Alzheimer’s Society have produced a number of leaflets which may help. Factsheets are also available about drugs that can be used to treat these symptoms if non- l Depression drug treatments have not worked (see below). l Dental care and dementia Depression and anxiety l Moving and Walking About Depression and dementia share many of the l Eating and Drinking same symptoms. This can make it difficult to l Pressure Sores identify depression in people with dementia. l Hallucinations in people with dementia The following Alzheimer Society factsheets l Staying Healthy may be useful: l Unusual Behaviour. l Drug treatments for Alzheimer’s disease Tel: 0300 303 5933 or l Dementia – drugs used to relieve depression Email: [email protected] to order or and behavioural symptoms log on to the website to download or print. l Adaptations, improvements and repairs to There are also audio versions online: the home www.alzheimers.org.uk/factsheets l Equipment to help with disability Please see page 38 for more information.

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Useful contacts Blandford Blandford Community Hospital Steps 2 Wellbeing Tel: 01258 394045 This service provides assessment and treatment Bournemouth for common mental health problems such as depression, anxiety, obsessive compulsive Kings Park Hospital disorder, phobias and post traumatic stress Tel: 01202 705609 disorder across Dorset. Bridport Treatments include individual and group therapy, Bridport Community Hospital self-help materials and signposting to other Tel: 01308 426291 services. Christchurch The services are provided in GP surgeries and Tel: other venues. People can either be referred by 01202 858158 a professional or self-refer, according to where Dorchester you live: Atrium Health Centre West Dorset: 01305 367051 Tel: 01305 250861 North Dorset: 01258 474520 Ferndown & West Moors 15 Oakley Lane, Canford Magna Bournemouth and Christchurch: 01202 399506 Tel: 01202 639560 Poole, Purbeck and East Dorset: 0300 1231120 Poole Weymouth and Portland: 01305 761501 Alderney Hospital Web: www.steps2wellbeing.co.uk Tel: 01202 305115 Community Mental Health Teams for Shaftesbury Older People Melbury Unit, Westminster Hospital The Community Mental Health Teams for older Tel: 01747 851625 people (CMHT-OP) help people who have a Sherborne mental health problem and live in their home Yeatman Hospital or a care home. Tel: 01935 815598 The team includes occupational therapists, Weymouth & Portland mental health nurses and support workers. Weymouth Community Hospital The service is for people aged 65 or over but Tel: 01305 762505 the team does see people of any age suffering Wimborne & Purbeck from memory loss or dementia. 15 Oakley Lane, Canford Magna You can contact the team yourself according Tel: 01202 639560 to where you live (see following page) or be Web: www.dorsethealthcare.nhs.uk referred by a GP, social worker or district nurse. www.dorsetmentalhealthforum.org.uk

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Useful local organisations that offer East Dorset support for people with memory loss Hanham Centre for Independent Living and their carers. Hanham Road, Wimborne BH21 1AS Open Mon-Thurs: 9am-4pm, Fri: 9-3pm. Memory Support and Advisory Service Tel: 01202 843 560 Run by Alzheimer’s Society. Supports people Email: [email protected] with memory loss and dementia, and their Web: www.dorsetforyou.com carers by providing information, advice, guidance and signposting. Red Cross Medical Loan Equipment Service Tel: 0300 1231916 Provides short-term loan of equipment for Email: [email protected] those in need, which includes wheelchairs, high-back chairs, etc. Telephone for a full list of Alzheimer’s Society equipment available: Offers support and advice, also offers services Bridport and Dorchester and activities including Singing for the Brain Tel: 01305 215951 and Memory Cafes. Christchurch National Helpline Tel: 01202 484074 Tel: 0300 222 11 22 Ferndown Email: [email protected] Tel: 01202 892772 Web: www.alzheimers.org.uk Poole Main Dorset Office Tel: 01202 699453 Tel: 01202 716393 Swanage Email: [email protected] Tel: 01929 423517 Web: www.redcross.org.uk South and East Somerset Occupational Therapy Tel: 01935 473597 Occupational therapy teams can assess the Email: [email protected] needs of the person for whom you care Please see page 38 for more information. and arrange or suitable help to be provided. Independent Living Contact the teams as follows: There are two centres for independent living Dorset in Dorset, providing information and advice on Adult Access Team Tel: 01305 221016 a wide range of products to aid independent Email: [email protected] living. Nothing is for sale, but all products can Web: www.dorsetforyou.com be tested and demonstrated, and staff will help you choose the right equipment for you. Bournemouth Bournemouth Care Direct West Dorset Tel: 01202 454979 Greenwood Centre for Independent Living Email: [email protected] Maiden Castle Road, Dorchester Web: www.bournemouth.gov.uk Open Mon-Thurs: 9am-4pm, Fri: 9am-1pm. Poole Adult Social Care Tel: 01305 257164 Tel: 01202 633902 Email: greenwoodcentre@ dorsetcc.gov.uk Email: [email protected] Web: www.dorsetforyou.com Web: www.boroughofpoole.com

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Section 5 Other Local Services Offering Practical Help

As well as health and social care information and support, practical help can make all the difference to the person with dementia and their carers. For example, you can get help with the following: l Household tasks such as shopping, odd jobs around the house and gardening etc l Equipment and aids to make life easier and which can help to remain independent l Community transport to help you get to appointments or social and leisure activities l Opportunities to look at alternative housing to suit your needs. Accommodation services The Dorset Home Service Dorset County Council area only The Dorset Home Service provides free advice and practical support to help older and disabled homeowners and tenants to stay safe, secure, warm and independent in their homes. The service provides: l Home adaptations l Handyperson service (carries out small jobs around the home) l Housing Options Service. The service is provided from these local offices: West Dorset Tel: 01305 252405 Christchurch, East Dorset, North Dorset and Purbeck Tel: 01202 862766 Email: [email protected] Bournemouth Bournemouth Care Direct Tel: 01202 454979 Email: [email protected] Web: www.bournemouth.gov.uk

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Poole Home Improvement Agencies (HIAs) Housing and Community Services Home Improvement Agencies provide free Tel: 01202 633805 advice and practical support to help older and Email: [email protected] disabled homeowners and tenants to stay safe, Web: www.poole.gov.uk secure, warm and independent in their homes. If you need help with repairs, maintenance or Rethink adaptations to your home, HIAs could help. Rethink Reconnect Floating Support Service Their advice is free but there may be a fee provides housing-related floating support payable if work is carried out. to individuals with dementia to help them Contact your local service as follows: develop or maintain their independence and quality of life in the community. North and East Dorset and Purbeck Mears Home Improvement Ltd The service is available free of charge to anybody with dementia living in Bournemouth and Poole. Tel: 01202 862765 Email: [email protected] Referrals to the service can be made on behalf of an individual by either a professional Web: www.dorsetforyou.com involved in their care, eg. GP, Social Services or West Dorset a carer or relative. Care and Repair Tel: 0121 522 7007/ 0300 5000 927 Tel: 01305 252405 Email: [email protected] Email: [email protected] Web: www.rethink.org Web: www.dorsetforyou.com

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Weymouth and Portland Handy Van Service Mears Home Improvement Ltd The Handy Van service enables older people to Tel: 01305 785340 get minor repairs, security measures and smaller Email: [email protected] adaptations carried out in their homes. Depending Web: www.dorsetforyou.com on the person’s individual circumstances there may be a charge for materials or labour or both. Bournemouth Poole Bournemouth Care Direct Housing and Community Services Tel: 01202 454 979 Tel: 01202 883503 Email: [email protected] Email: handyvan.org.uk Web: www.bournemouth.gov.uk Web: www.poole.gov.uk or Poole www.ebht.org.uk There are a number of different types of Bournemouth sheltered housing schemes both to buy and Bournemouth Care Direct rent. Most of the schemes available to rent Tel: 01202 454979 in Poole are provided by Borough of Poole or Email: [email protected] local housing associations. Web: www.bournemouth.gov.uk Allocation of these properties is usually through the council’s housing register. Contact Red Cross Medical Loan Equipment Housing and Community Services for further Service information. Provides short-term loan of equipment for Housing and Community Services those in need, which includes wheelchairs, Tel: 01202 633805 high-back chairs, etc. Telephone for a full list of equipment available: Email: [email protected] Web: www.poole.gov.uk Bridport and Dorchester Tel: 01305 215951 Aids and equipment Christchurch Tel: 01202 484074 Help and Care Handiworks Ferndown Handiworks is a low-cost home repairs service Tel: 01202 892772 for people over 60 and their carers living in Poole Bournemouth and Poole. Tel: 01202 699453 For an annual fee of around £30 and a low hourly rate, membership of the scheme Swanage provides residents with reliable help with minor Tel: 01929 423517 DIY jobs around the home and takes the worry Web: www.redcross.org.uk out of finding reliable contractors. Tel: 0300 111 3303 Email: [email protected] Web: www.helpandcare.org.uk

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Independent living Poole Community Transport Service There are two centres for independent living in Dorset, providing information and advice on a Tel: 01202 262000 wide range of products to aid independent living. Email: [email protected] Nothing is for sale, but all products can be Web: www.poole.gov.uk tested and demonstrated, and staff will help you choose the right equipment for your needs. Blue Badge Scheme West Dorset The Disabled Parking (Blue Badge) scheme is a Greenwood Centre for Independent Living national arrangement of parking concessions Maiden Castle Road, Dorchester for people with severe walking difficulties, who Open Mon-Thurs: 9am-4pm, Fri: 9am-1pm travel either as drivers or passengers. Tel: 01305 257164 www.gov.uk/blue-badge-scheme- Email: [email protected] information-council Web: www.dorsetforyou.com Dorset East Dorset Dorset County Council Hanham Centre for Independent Living Hanham Road, Wimborne, BH21 1AS Tel: 01305 224321 Open Mon-Thurs: 9am-4pm, Fri: 9am-3pm Email: [email protected] Tel: 01202 843560 Web: www.dorsetforyou.com/369262 Email: [email protected] Bournemouth Web: www.dorsetforyou.com Tel: 01202 458744 Community transport Email: [email protected] Community Transport is complementary Web: www.gov.uk to public transport and aims to work with Poole commercial operators, feeding into main routes as well as providing door-to-door Blue Badge Team, Adult Social Care services for mobility impaired passengers. Tel: 01202 633 605 Dorset Email: [email protected] Dorset County Council produces a directory of Web: www.poole.gov.uk voluntary car schemes, dial-a-ride and other Apply online: www.gov.uk/apply-blue-badge community transport initiatives. East Dorset National key scheme for toilets Tel: 01305 225708 This scheme offers disabled people access to Rest of Dorset about 9,000 locked public toilets across the UK. Tel: 01305 221700 or 01305 224535 You can buy a key for around £4.50 (including Bournemouth postage and packaging) from Disability Rights UK. Care Direct Tel: 01202 454979 Visit the online shop at disabilityrightsuk.org Email: [email protected] or call 020 7250 3222 or from the local Tourist Web: www.bournemouth.gov.uk Information Centres which are located at:

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Poole: 01202 633633 Dorset POPP Wayfinders Bournemouth: (01202) 451451 (Dorset County Council area only) Christchurch: 01202 495000 Provide free, impartial and confidential information and advice to people aged over 50 Weymouth: 01305 838000 on a range of issues including: The Dorset Loo Guide gives a comprehensive l Benefits list of disabled toilet facilities throughout the county and is also available from the Tourist l Social activities and learning opportunities Information Centre. l Community transport l Care agencies Useful contacts l Reliable traders Age UK l Keeping healthy Tel: 0800 169 6565 (Advice Line) l Legal issues Email: [email protected] l Housing options Web: www.ageuk.org.uk l Health care Please see page 38 for more information. l Safety and security. Alzheimer’s Society Dorset POPP Wayfinders service is run by Help and Care. Offer support and advice, also offers services and activities including Singing for the Brain Tel: 01305 224841 Email: [email protected] and Memory Cafés. Web: www.dorsetforyou.com/popp The Alzheimer’s Society helpcard is for people Help and Care also provides a range of other with dementia to use and carry with them, to services including information and advice and maintain their independence. one-to-one support. To obtain a Helpcard Pack containing copies of Tel: 0300 111 3303 (Helpline) the helpcard, a plastic wallet and information, Email: [email protected] contact local branches: Web: www.helpandcare.org.uk Main Dorset Office Tel: 01202 716393 Memory Support and Advisory Service Email: [email protected] Run by Alzheimer’s Society. Supports people with memory loss and dementia, and their Web: www.alzheimers.org.uk carers by providing information, advice, South and East Somerset guidance and signposting. Tel: 01305 259740 Tel: 0300 123 1916 Email: [email protected] Email: [email protected] Source Web: www.alzheimers.org.uk Online advice and information directory for adults, Please see page 38 for more information. particularly those with care and support needs Web: www.sourcedirectory.org.uk

21 Living well with Dementia and Memory Loss in Dorset

Section 6 Keeping Active

People with memory loss problems and Fiftyplus Area Forum dementia can continue to enjoy many Tel: 01305 269444 activities, both individually and with others. Remaining physically and mentally active University of 3rd Age (U3A) can help them focus on the positive and fun Self-help, self-managed lifelong learning aspects of life. co-operatives for older people, providing There are numerous activities to get involved opportunities for their members to share learning in, for example: experiences in a wide range of interest groups. l Interest groups Web: www.u3a.org.uk l Lunch groups Artsreach l Physical activities A variety of performances and visual art that take place in venues across Dorset. l Social groups and activities Tel: 01305 269512 l Memory Cafes and Singing for the Brain. Web: www.artsreach.co.uk Please contact the group or activity direct for further information and to check whether the Dorset Libraries group/activity is still taking place. This list is not Libraries are free to join and use and give you exhaustive and there may be other groups you access to wide collection of books, film and are aware of. music. Items can be renewed and reserved online. Interest groups Lunch clubs Phoenix Legacy For information on groups in your area, Aims to help people over the age of 50 to contact: enjoy a more active lifestyle Dorset Tel: 01305 261540 Dorset POPP produces a guide to lunch clubs Women’s Institute and other eating opportunities. Various groups across Dorset, Bournemouth & Tel: 07919 545199 Poole Email: [email protected] Tel: 020 7371 9300 Web: www.dorsetforyou.com/348827 Web: www.thewi.org.uk (a guide to meals on wheels can be downloaded) Bournemouth Bournemouth Borough Council Tel: 01202 454979 Email: [email protected] Web: www.bournemouth.gov.uk Borough of Poole Tel: 01202 633902 Email: [email protected] Web: www.poole.gov.uk

22 Living well with Dementia and Memory Loss in Dorset

Physical activities There are numerous leisure centres across the county of Dorset, Bournemouth & Poole offering a wide variety of leisure and sports activities, please contact them directly to find out more. Ashdown Leisure Centre, Canford Heath, Poole Tel: 01202 604224 Beaminster Sports Hall and Swimming Pool (Beaminster School) Tel: 07792 791038 Email: [email protected] Blandford Leisure Centre Tel: 01258 455566 Bournemouth Littledown Centre Tel: 01202 417600 Poole Leisure Centre Bridport Leisure Centre Tel: 01202 677217 Tel: 01308 427464 Wareham Purbeck Sports Centre Broadstone The Junction Tel: 01929 500000 Tel: 01202 777766 Wimborne Queen Elizabeth Leisure Centre Budmouth Community Sports Centre, Tel: 01202 888208 Weymouth Riversmeet Leisure Centre Hardings Lane Tel: 01305 830508 Tel: 01747 834013 Christchurch Two Riversmeet Leisure Centre Winton Stokewood Leisure Centre Tel: 01202 477987 Tel: 01202 437840 Ferndown Leisure Centre Lifestyle Verwood Tel: 01202 877468 Tel: 01202 828740 Gillingham Weymouth College Community Sports Centre Tel: 01747 834013 Tel: 01305 208713 Kinson Pelhams Park Leisure Centre, Weymouth Swimming Pool & Fitness Centre Tel: 01202 437801 Tel: 01305 774373 New Forest Health &Leisure Tel: 0845 659 0845 Healthy walks Parkstone Rossmore Leisure Centre Regular short guided health walks every week throughout Dorset, Bournemouth and Poole to Tel: 01202 738787 help keep you fit and healthy. All weeks are free. Portland Osprey Leisure Centre Web: www.dorsetforyou.com Tel: 01305 824378 www.walkingforhealth.org.uk

23 Living well with Dementia and Memory Loss in Dorset

Social clubs and activities Singing for the Brain and Village halls and community centres offer Memory Cafés people the opportunity to meet for social, If you are affected by dementia or care for educational and recreational activities. For someone with dementia and would like to more information about what activities are taking place contact the Dorset Halls Network. meet others in a similar situation, you will be welcomed at the Alzheimer’s Society groups Dorset Halls Network and activities. www.dorsethalls.net Memory Cafés Bournemouth Beaufort Community Centre, The café is a place for people with dementia Tel: 01202 924786 and their carers to meet others in a friendly, informal environment over a cup of tea and Kinson Community Centre cake, with optional activities and talks. Staff Tel: 01202 572826 are available to provide information and Christchurch support. Call Alzheimer’s Society on 01202 Mudeford Wood, 716 393 for details of groups in: Tel: 01425 272084 Ferndown, Highcliffe, Swanage, Wareham, Ferndown Wimborne, Poole and Bournemouth. The Barrington Centre, Call 01935 473597 for details of the South Tel: 01202 894858 and East Somerset group. Lytchett Minster & Upton Singing for the Brain Lytchett Minster & Upton Community Centre Singing for the Brain is a fun, stimulating Tel: 01202 621570 and social activity for people in the early to Poole moderate stages of dementia and their carers. Broadstone Community & Arts Centre Call Alzheimer’s Society on 01202 716393 for Tel: 01202 605504 details of the groups in Blandford, Gillingham, Weymouth Christchurch and Westbourne. The Park Community Centre Call 01935 473597 for details of the South Tel: 01305 839579 and East Somerset group Wimborne Allendale Community Centre, Melodies for Memories Tel: 01202 887247 Informal and fun music groups across Dorset for anyone who enjoys music and is affected Leigh Park Community Centre, by memory loss. Tel: 01202 848820 Tel: 07747 533252 Community Learning & Resource Tel: 01202 847600 Younger People’s Group Verwood Social dinner for people with dementia under The Verwood Hub Community Association the age of 65 and their carers. Tel: 01202 828740 Tel: 01202 716393

24 Living well with Dementia and Memory Loss in Dorset

Section 7 Support for Carers

A carer is someone of any age who provides Carer’s assessment unpaid support to family or friends who could not manage without this help. Carers can request an assessment by contacting: This may be physical, emotional or social care. Bournemouth It may involve a lot of daily input or more Tel: 01202 454979 occasional help. Poole Tel: 01202 633902 Caring for a friend, partner or relative can be a rewarding and fulfilling experience, but it is also Dorset a big undertaking and can leave you feeling tired Tel: 01202 221016 and stressed, but there is support available. An assessment will be undertaken by a member of the Community Care Team or Your rights as a carer a specialised caseworker and may lead to a support plan for the carer. As a carer you have the right to: A carer’s assessment is a way of getting a clear l A carer’s assessment picture of the circumstances of a carer and the l Have your views taken into consideration person they care for. by social services when they are deciding It looks at the difficulties and pressure both are how best to provide for the person you under and it acknowledges the help already care for. received and looks at what help may be needed. You may also have the right to: It is not an assessment of how good you are at caring, but is about the support that may be l Request flexible working from your available to help you in your role as a carer. employer Support to carers is available from several sources. l Receive financial support through Carer’s Allowance If you live in Dorset you may want to contact Help & Care on 0300 111 33033. l Assistance from social services If you live in Bournemouth or Poole, contact l Respite care to give you a break. Carers Centre on 01202 458208.

25 Living well with Dementia and Memory Loss in Dorset

How to get an assessment Weymouth and Portland Social Care Team Tel: 01305 760139 Contact the office nearest to where the cared Email: [email protected] for person lives from the list below to request information or an assessment for the carer or If you live in Bournemouth cared for person. Bournemouth Care Direct Dorset Tel: 01202 454979 Email: [email protected] Adult Access Team Web: www.bournemouth.gov.uk If you have no current contact with Adult Social Care at Dorset County Council If you live in Poole Tel: 01305 221016 Adult Social Care Email: [email protected] Tel: 01202 633 902 Web: www.dorsetforyou.com Email: [email protected] Web: www.poole.gov.uk Or, if you currently receive a service from Adult Social Care at Dorset County Council, please contact your allocated worker at: Bridport Social Care Team Tel: 01308 422234 Email: [email protected] Christchurch Social Care Team Tel: 01202 474106 Email: [email protected] Dorchester Social Care Team Tel: 01305 251414 Email: [email protected] Ferndown Social Care Team Tel: 01202 877445 Email: [email protected] North Dorset Social Care Team Tel: 01258 472652 Email: [email protected] Purbeck Social Care Team Tel: 01929 553456 Email: [email protected] Sherborne Social Care Team Tel: 01935 814104 Email: [email protected]

26 Living well with Dementia and Memory Loss in Dorset

Carer’s Allowance Carers’ groups The Carer’s Allowance is a benefit to help When you are caring for someone, life can people who look after someone who is sometimes feel like a constant battle and carers disabled. You don’t have to be related to, or can feel exhausted, worried, upset and isolated. live with, the person you care for. There are a number of carers groups available To find out who is eligible contact theCarer’s that can help, meeting regularly, some weekly, Allowance Unit: fortnightly or monthly. Tel: 0845 608 4321 Many offer a varied programme of events, 0845 604 5312 (Textphone) which may include speakers, leisure and health Email: activities and outings. [email protected] They may be run by national or local Web: organisations or local people who have the www.gov.uk/carers-allowance/eligibility direct experience of being a carer. If you would like to join a group but feel you Short Break Service can’t because of caring responsibility, talk to The Short Break Service is available to carers in your carers’ caseworker who will be able to Dorset who look after a friend or relative with an look at supporting you to do so. illness or disability and who cannot be left alone. These are some of the local carers’ groups (with Help and Care manage the service and will space for possible telephone number changes): organise a carer from a registered agency to stay with the person while you take a break. Alderholt Carers Support Group Tel: 0300 111 3303 (Helpline) Tel: 01425 652870 Email: [email protected] Web: www.helpandcare.org.uk Blandford Carers Group Home from Home Tel: 01258 459215/ 07772 850003 Day Respite Service, East Borough Housing Trust Bournemouth Carer Group Jo Morhew The Home from Home Service provides a quality Tel: 01202 584440 day respite service for older people with general, memory and/or dementia support needs. Bridport and District Carers Support Group It provides a chance for carers to have a break with the knowledge that the person they care Tel: 01308 427494 for is in a safe, comfortable environment, enjoying a day out. Bridport Disabled Carers & Friends Group The older person is cared for in the host’s Tel: or home with each host providing an entertaining 01308 423620, 421213 427819 and varied programme of activities as well as refreshments and a home-cooked two course Bridport Rethink Carers and Support Group lunch. For more information: Tel: 01308 862880 Tel: 01202 883503 Email: [email protected]

27 Living well with Dementia and Memory Loss in Dorset

Carers and Cared for Coffee morning Portland Carers Support Group Tel: 01258 473152 Tel: 01305 826479

Carers Direct Pramacare Carers Support Groups Tel: 0300 123 1053 Ferndown, Southbourne, Christchurch, Wimborne, Upton and Lychett Email: [email protected] Tel: 01202 207310 / 07867 354588 Web: www.nhs.uk/Carersdirect Email: [email protected]

Carers Link coffee and guest speakers Relative Support Meetings Tel: 01747 475266 Blandford Community Mental Health Team – Older People Tel: 01258 394045 Carers Support Group Southbourne Tel: 01202 419506 Carers Support in Dorset Tel: 07866 252046 Carers UK National Tel: 0808 808 7777 Email: [email protected] Sherborne Centre for Wellbeing (including Dorchester Tel: 01305 848374 Zest Café, Thursday, Friday and Saturday) Tel: 01935 389192

Corfe Mullen Carers Group Alzheimer’s Society Memory Support and Tel: 01202 604345 Advisory Service and Social Peer Support Group Tel: 0300 1231916 Cruse Bereavement Support

National Tel: 0844 477 9400 South Dorset Alzheimer’s Carers Group Dorset Tel: 01308 423823 Tel: 01305 832726 Bournemouth and Poole Tel: 01202 302000 Swanage Carers Group CrISP Carers Support Service Tel: 01929 421251 across Bournemouth and Poole Tel: 01202 458204 St John Ambulance Carers Group Wallisdown Road, Bournemouth or Oakley Friends, Canford Magna Amethyst Road, Christchurch Tel: 01202 880114 / 650554 / 021705 Tel: 01305 751160

28 Living well with Dementia and Memory Loss in Dorset

Verwood & District Carers Support Group More information is available from: Tel: 01258 840127 / 01202 813334 / Dorset County Council Social Care 01202 825353 Carers’ Support Administrator Tel: 01305 221016 West Moors Carers Group Web: www.dorsetforyou.com Tel: 01202 865800 Poole Adult Social Care Tel: 01202 633802 Carers’ training Email: [email protected] If you are a carer, you may find it useful to Web: www.poole.gov.uk attend a carers’ training course. CrISP Carer Support Service across St John Ambulance provides a free carers’ Bournemouth and Poole support programme, which gives carers Contact the Carers’ Team: an opportunity to meet other carers, share Tel: 01202 458204 experiences and also learn about: Email: [email protected] l First aid l Coping with dementia and memory loss Useful contacts l Managing continence Age UK l Falls prevention Tel: 0800 169 6565 (advice line) l Safer moving and handling. Email: [email protected] These courses are designed to offer advice Web: www.ageuk.org.uk and support in an informative and relaxed See page 38 for further information environment. Contact your local Council for more information Alzheimer’s Society Oakley Friends (a carers’ group) run a National Dementia Helpline ten-week course for carers twice a year in partnership with Dorset HealthCare. Tel: 0300 222 11 22 There is an opportunity for carers to meet The following factsheets may be useful: others and share experiences. l Respite Care Tel: 01202 880114/ 650554/ 021705 Email: [email protected] l Dealing with guilt Web: www.oakleyfriends.co.uk l Looking after yourself. Carers in crisis Tel: 0300 303 5933 or Email: [email protected] to order If, due to an emergency or accident, you were or log on to the website to download or print. unable to provide the usual care to the person There are also audio versions online: you are caring for, Carers in Crisis can help. www.alzheimers.org.uk/factsheets

29 Living well with Dementia and Memory Loss in Dorset

NHS Carers Direct Citizens Advice Bureau (CAB) Provides help and support if you want to National network of free advice centres talk to someone about your caring role and offering confidential and independent advice, the options available to you. It offers free face-to-face or by telephone. confidential information and advice for carers Tel: 0844 245 1291 (Dorset AdviceLine) by email or phone. Web: www.citizensadvice.org.uk Tel: 0300 123 1053 (self-help website offering practical Email: [email protected] information) Web: www.nhs.uk/Carersdirect See page 38 for further information and local www.carersdirecenquiry.nhs.uk numbers. (online enquires) Carers Trust Carers UK The Carers Trust is a merger of Crossroads Provides information and support for carers Care and the Princess Royal Trust for Carers. including information about benefits, carer’s Works to improve the support services and assessments and carers employment rights. recognition of carers. Provides information, If English is not your first language Careline support services and practical help. will provide an interpreter. Advisers can also Tel: 0844 800 4361 be contacted through typetalk. Email: [email protected] Tel: 0808 808 7777 Web: www.carers.org Email: [email protected] Web: www.carersuk.org Help and Care Provides advice and support to carers on a wide range of issues, Tel: 0300 111 3303 (Helpline) Email: [email protected]

30 Living well with Dementia and Memory Loss in Dorset

Section 8 ‘This is Me’

‘This is Me’ is a leaflet produced by Alzheimer’s Society to help hospital staff better understand the needs of people with dementia. The leaflet provides staff with information about a person with dementia to help enhance the care and support they receive whilst in an unfamiliar environment. It is not a medical document. ‘This is Me’ provides a ‘snapshot’ of the person with dementia and helps hospital staff to learn about a person’s likes, dislikes, habits, interests and background. The form can be completed by the person with dementia or their carer with help from the person they care for where possible. All community hospitals in Dorset are being encouraged to use the document, and in addition services such as the Memory Support and Advisory Service have similar documents. See page 7 for more details about Alzheirmer’s Society and the Memory Support and Advisory Service.

31 Living well with Dementia and Memory Loss in Dorset

Section 9 Residential Care

This section provides information and what to consider before moving to a care or nursing home. Taking the decision to move into residential care will always be a difficult one, for the person with dementia and their family, but having the right information can make any decision a lot easier.

Different types of residential The type of home required will depend on the general health and needs of the individual care concerned and your care co-ordinator can assist you in finding a suitable home. Residential Care Homes These homes provide support to ensure that basic Choosing a care home personal needs such as meals, bathing, going to the toilet and medication are taken care of. Arrangements for choosing a care home can In some homes more able residents have be made either through the local authority or greater independence and take care of many independently. of their own needs. It is a good idea to visit a number of homes before making a final choice. It would be Nursing Care Homes worth considering the following: Nursing care homes are registered to provide nursing care, which means they have a qualified l The location of the care home. Would the nurse on duty 24 hours a day, although the nurse person you’re caring for prefer to be near may not be a mental health nurse. family and friends? In addition, some homes specialise in certain l Are there shops, leisure or educational types of conditions, for example dementia. facilities in the area?

32 Living well with Dementia and Memory Loss in Dorset

l Will the care home meet specific religious, l Is the home staff with well-trained people, ethnic or cultural needs? for example nurses trained in dementia care? l Will a correct diet be provided? l Do all staff respect people’s dignity l Will the person’s language be spoken? by ensuring that they are dressed Will there be opportunities to participate in appropriately? religious activities? l Is the care home you’re looking at focused Inspection reports on the individual needs of residents and concerned to provide for those needs, or Before making a final decision, you may want do they insist that residents adapt to a to look at a recent inspection report for the particular routine? home, as care homes for adults are regulated by the Care Quality Commission (CQC). l What contacts with the community does the care home have? The inspection report will detail how well the care home is doing and if there is anything of l What arrangements are there for visitors? concern. l Can residents come and go as they please, All care homes vary in their quality and it can as far it is safe to do so? be hard to know what qualities to look for l Are staff able to help residents to go out? when choosing a home. l Are outings arranged? Care Quality Commission (CQC) l Are residents, carers and their families Tel: 0300 061 6161 involved in decision making, i.e. through Email: [email protected] regular meetings with staff? Web: www.cqc.org.uk l What involvement would you have in the care home? How would you communicate Finding suitable homes with staff? Are there any support groups or in my area regular meetings? A list of care homes and reports are available l If safety and security are issues for from the Care Quality Commission. the person you’re looking after, what arrangements or supervision can the care In addition a carers’ caseworker or care home provide? co-ordinator may be able to provide the information or a copy of the Health and Social l Have a majority of staff worked there for a Care Directory for Dorset. long time, do they know residents well and are friendly, supportive and respectful? Contact them as follows: l Is the home a clean, bright and hygienic Dorset environment that’s been adapted For information contact Dorset Direct appropriately for residents? Tel: 01305 221016 l Are single bedrooms available and can Email: [email protected] residents personalise their room? Web: www.dorsetforyou.com

33 Living well with Dementia and Memory Loss in Dorset

Or, if you currently receive a service from Adult Social Care at Dorset County Council, please contact your allocated worker at: Bridport Social Care Team Tel: 01308 422234 Email: [email protected] Christchurch Social Care Team Tel: 01202 474106 Email: [email protected] Dorchester Social Care Team Tel: 01305 251414 Email: [email protected] Ferndown Social Care Team Useful contacts Tel: 01202 877445 Age UK Email: [email protected] Tel: 0800 169 6565 (advice line) North Dorset Social Care Team Email: [email protected] Tel: 01258 472652 Web: www.ageuk.org.uk Email: [email protected] Please see page 38 for more information. Purbeck Social Care Team Tel: 01929 553456 Alzheimer’s Society Email: [email protected] Has a number of factsheets (with their reference numbers) which may be useful when Sherborne Social Care Team looking at a care home: Tel: 01935 814104 Email: [email protected] l What standards of care can people expect from a care home? Weymouth and Portland Social Care Team l Assessment for NHS-funded nursing care Tel: 01305 760139 Email: [email protected] l Paying care home fees Bournemouth Bournemouth Care Direct l When does the local authority pay for care? Tel: 01202 454979 l Selecting a care home Email: [email protected] l Putting care right – Your guide to choosing Web: www.bournemouth.gov.uk a care home (booklet). Poole Tel: 0300 303 5933 or Adult Social Care email: [email protected] Tel: 01202 633902 to order or log on to the website to download Email: [email protected] or print. There are also audio versions online: Web: www.poole.gov.uk www.alzheimers.org.uk/factsheets Out of hours service: 01202 657279 Please see page 38 for more information.

34 Living well with Dementia and Memory Loss in Dorset

Section 10 The Later Stages of Dementia and End of Life

During the later stages of dementia people l The later stages of dementia may become increasingly frail, relying on l Mental Capacity Act 2005 others for all of their care. l Advance Decision – with a form to create Knowing what to expect can help everyone an advance decision prepare, and enable the person with dementia to write an informed advanced decision so they can l Communicating have some say over how they will be cared for. l Dealing with aggressive behaviour Each person with dementia will experience the l Eating and Drinking illness in their own individual way. l Hallucinations and delusions Some of the symptoms listed below may come l Coping with memory loss. in the early stages of dementia. Tel: 0300 303 5933 or However, it is likely some of these symptoms Email: [email protected] may occur in the later stages of dementia: to order or log on to the website to download l Memory loss or print. There are also audio versions online: www.alzheimers.org.uk/factsheets l Communication Please see page 38 for further details. l Loss of mobility l Eating and weight loss l Incontinence l Behaviour that seems puzzling. Information factsheets on these different stages are available from Alzheimer’s Society. Please see page 38 for more information. Advance decisions As part of the Mental Capacity Act 2005, people are strongly encouraged to write an advance decision (previously known as a living will or advanced directive), setting out the types of treatments they would not want doctors to provide at the end of their life. This gives people in the early stages of dementia the opportunity to make choices about any palliative care that they may need as the illness progresses. The following Alzheimer’s Society factsheets may be useful:

35 Living well with Dementia and Memory Loss in Dorset

Advance care planning There is a wealth of information for people approaching the end of their lives and their Advance care planning can help you and your carers via the website carers to understand what is important to you. www.dorsetforyou.com/end-of-life-care Planning provides and opportunity for you to: Useful contacts l Discuss your wishes with those who are close to you Cruse l Record your wishes in writing so that they Provides support following a bereavement. can be carried out at the appropriate time. Cruse has a telephone helpline and useful It can also help you to: information on their website. Trained volunteers provide face-to-face support and l Be clear about the decisions you make practical advice locally. l Decide with whom you share the National Tel: 0844 477 9400 information Dorset Cruse l Ensure that your wishes are taken into account by recording your preference for Bereavement support care in a booklet. Tel: 01308 423823 The plan will focus on different aspects of care Bournemouth and Poole Cruse required in those final days. Tel: 01202 302000 These include comfort measures, medication Email: [email protected] and discontinuation of inappropriate treatment Web: www.crusebereavementcare.org.uk as well as psychological and spiritual care. Age UK You can find the help you need to do this Tel: 0800 169 6565 (advice line) according to where you live: Email: [email protected] South, West and North Dorset Web: www.ageuk.org.uk Age UK – Dorchester Please see page 38 for further information. Tel: 01305 269444 Email: [email protected] Memory Support and Advisory Service Remember that your feelings and priorities Run by Alzheimer’s Society. Supports people may change over time. You can change what with memory loss and dementia, and their you have written whenever you wish. carers by providing information, advice, guidance and signposting. It would be advisable to review your plan every Tel: 0300 1231916 so often to make sure that it still reflects what Email: [email protected] you want. Please see page 38 for further information. End of life care is support for people who are approaching death. It helps them to live as well as possible until they die, and to die with dignity. It also includes support for their family or carers.

36 Living well with Dementia and Memory Loss in Dorset

Section 11 Further Reading

Living with dementia can be a lonely, frustrating and confusing time for both the person with dementia and the person who cares for them. Reading may help you understand the issues that surround dementia and may give you some practical tips and suggestions for problem solving. Reading about dementia and other people’s experiences may also help reduce the feelings of isolation and loneliness.

Books l And still the music plays: stories of people with dementia Graham Stokes The following is a selection of books which may (2010) be available through libraries, carers groups or l Keeping Mum: caring for someone with available to buy both online or in book shops: dementia Marianne Talbot (2011). l Dementia re-considered: the person comes first Tom Kittwood (1997) Leaflets and booklets l Is the cooker turned off? Caring for an A number of leaflet and small booklets have older person with failing memory been produced by various mental health Josephine Woolf & Michael Woolf (2003) organisations and may be of use: l Just Love Me: my life turned upside – l Still Going Strong – A guide to living with down by Alzheimer’s Jeanne L. Lee (2003) Dementia Mental Health Foundation (2012) l Past Caring Audrey Jenkinson (2004) l The Milk’s in the Fridge – Booklet about l The Simplicity of Dementia: A guide for dementia for children and young people family and carers Huub Buijssen (2005) Mental Health Foundation (2012) l Dancing with dementia: my story of l If Only I’d Known That – One Carer’s living positively with dementia Christine Experience Susan Hartnell-Beavis (2010) Bryden (2005) Free copies of this booklet are available from St John’s Ambulance l Now where did I put my glasses? Caring Tel: 01305 751 160 / 01452 858225 for your parents – a practical and emotional lifeline Jackie Highe (2007) Email: [email protected] l Alzheimer’s from the inside out: my attempt to leave a record of what is going on between my ears Richard Taylor (2007) l Knickers in the Fridge: Alzheimer’s is no laughing matter…or is it? Jane Grierson (2008) l The Selfish Pig’s Guide to Caring: how to cope with the emotional and practical aspects of caring for someone. Hugh Marriott (2009)

37 Living well with Dementia and Memory Loss in Dorset

Section 12 Additional Information and Contact Details

Age UK Local services include Memory Cafes and Age Concern and Help the Aged are now Age Singing for the Brain Groups. UK. The organisation offers information and Local numbers advice for the elderly about benefits, care, age Dorset wide number discrimination and computer courses. Tel: 0300 123 1916 Tel: 0800 169 6565 (Advice Line) Email: [email protected] Email: [email protected] Citizens Advice Bureau Web: www.ageuk.org.uk The Citizens Advice service helps people resolve Local numbers: their legal, money and other problems by Bournemouth Tel: 01202 530530 providing free, independent and confidential Blandford Forum Tel: 01258 458250 advice and by influencing policymakers. Local Dorchester Tel: 01305 269444 contact details: Ferndown & District Tel: 01202 875942 North Dorset Gillingham & Shaftesbury Tel: 01747 853966 Tel: 0844 245 1291 (Dorset Advice Line) Lytchett Minster & Upton Tel: 01202 622744 Email: [email protected] Web: www.citizensadvice.org.uk/ North Dorset Tel: 01258 475582 northdorsetcab.htm Poole Tel: 01202 666195 Bournemouth Wimborne Tel: 01202 849945 Tel: 08444 111 444 Telephone Assessment and Age UK runs Melodies for Memories groups Advice (phone first) Tel: 07747 533252 Email: Online at www.bournemouthcab. co.uk/advice_questions/ Alzheimer’s Society Web: www.bournemouthcab.co.uk Alzheimer’s Society works to improve the Bridport and surrounding villages quality of life of people affected by dementia in England, Wales and Northern Ireland. Tel: 01308 456594 Helpline Tel: 0300 222 11 22 Email: Online at: www.bridportcab.org/ contact-us/email/ Email: [email protected] [email protected] (general Web: www.bridportcab.org.uk information) Christchurch Factsheets Tel: 0844 245 1291 (Dorset Advice Line) Alzheimer’s Society has a number of factsheets Web: www.eastdorsetcab.org.uk which cover a wide range of dementia-related Cranborne Surgery topics. The factsheets are available online (via Tel: 01725 517272 the internet) and can be saved as a PDF, printed (for patients of the practice only) as seen on screen or emailed to a friend. Dorchester/ Ferndown The most popular factsheets are also available Tel: 0844 2451291 on tape and CD and some can also be printed in larger text if required. Web: www.westdorsetcab.org.uk To order printed copies of the factsheets (six New Forest, Ringwood factsheets can be obtained free of charge, Tel: 08444 111 306 further factsheets are available at a small Email: [email protected] charge contact 0300 303 5933. Web: www.citizensadvice.org.uk/newforest

38 Living well with Dementia and Memory Loss in Dorset

North Dorset Tel: 01202 392954 Tel: 01747 822117 Email: Online form Web: www.citizensadvice.org.uk/ Web: www.dorsetrec.org.uk northdorsetcab.htm Poole Dorset Wellbeing and Recovery Tel: 01202 680838 (Advice Line) Partnership Email: [email protected] This is a partnership between Dorset Web: www.poolecab.co.uk HealthCare and Dorset Mental Health Forum which aims of to change the culture of mental Purbeck health services and people’s attitudes to Tel: 0844 245 1291 mental health in Dorset through promoting the Email: [email protected] principles of wellbeing and the philosophy of Web: www.citizensadvice.org.uk recovery. The partnership co-delivers the Dorset Sherborne and surrounding villages Recovery Education Centre which delivers Tel: 0844 245 1291 education courses to people who access mental health services, their supporters and Web: www.westdorsetcab.org.uk carers and staff who work within services. Weymouth & Portland Tel: 01202 584478 Tel: 0844 245 1291 Email: [email protected] Web: www.citizensadvice.org.uk Web: www.dorsethealthcare.nhs.uk/ Contact the relevant bureau for an services/recovery/ appointment and advice. www.dorsetmentalhealthforum.org. Dorset Mental Health Forum uk/recovery.html A local peer led charity that aims to improve the lives of everyone affected by mental illness Faithworks Wessex including dementia by promoting wellbeing Faithworks Wessex provide emotional & and recovery. practical support through befriending carers. Tel: 01305 257172 Tel: 01202 304004 Fax: 01305 261049 Email: [email protected] Email: Web: www.faithworkswessex.org.uk [email protected] Web: www.dorsetmentalhealthforum.org.uk Healthwatch Twitter: @DorsetMHForum Healthwatch gives citizens and communities a stronger voice to influence and challenge how Dorset Race Equality Council health and social care services are provided locally Works to eliminate racial discrimination and and nationally. Contact Healthwatch Dorset: promote shared values of peace, responsibility and racial harmony. Tel: 0300 111 0102 Email: via the website It also works to reduce racial conflict, increase confidence and self worth amongst the diverse Web: www.healthwatchdorset.co.uk communities of Dorset. In person: at any Citizen’s Advice Bureau The council gives support to the victims of (see this and previous page for contact details) racial discrimination and take measures to Write to: Healthwatch Dorset, Freepost ensure perpetrators are dealt with accordingly. BH1902.896, Christchurch Road, BH7 6BR

39 Living well with Dementia and Memory Loss in Dorset

Help and Care Your GP or local Minor Injuries Unit can offer emergency appointments. Help and Care is a registered charity working with older people, carers and communities. Both may offer extended opening hours so Provides information and advice. may be able to see you early morning or in the evening. Tel: 0300 111 3303 01202 416047 Text phone Please call your GP or check opening times by calling NHS 111 before going to a minor Email: [email protected] injuries unit, which are at community hospitals Web: www.helpandcare.org.uk as follows: Mind l Blandford l Bridport Mental health charity whose aim is to ensure that anyone with a mental health problem has l Portland somewhere to turn for advice and support. l Swanage There are two confidential mental health l Wimborne (Victoria Hospital) information services: l Shaftesbury (Westminster Memorial Mind Infoline Hospital) Tel: 0300 123 3393 l Weymouth Email: [email protected] l Sherborne (Yeatman Community Hospital). Mind Legal Advice Service You can also go to the NHS walk-in centre at Melcombe Avenue, Weymouth DT4 7TB, Tel: 0300 466 6463 8am-8pm daily. Email: [email protected] Tel: 01305 980000 NHS Choices Dial 999 Information from the National Health Service In a life-threatening emergency, eg a suspected on conditions, treatments, local services and heart attack or stroke or go to your nearest healthy living. emergency department. Web: www.nhs.uk Samaritans Get the right NHS treatment Samaritans say ‘Talk to us any time you like, Talk to your pharmacist if you have: minor cuts, in your own way, and off the record – about grazes, colds, a runny nose, tummy upset, whatever’s getting to you. You don’t have to headache, cough or sore throat. Keep a well- be suicidal.’ Contact details are: stocked medicine cabinet at home. Tel: 08457 90 90 90 NHS 111 Saneline If you need medical help fast but it’s not a Runs a national, out-of-hours mental health 999 emergency; you don’t know who to call helpline offering specialist emotional support or you don’t have a GP to call; or if you need and information to anyone affected by mental health information or reassurance about what illness, including family, friends and carers. to do next. Tel: 0845 767 8000 Tel: 111 Web: www.sane.org.uk

40 Living well with Dementia and Memory Loss in Dorset

Telephone numbers Gillingham and Shaftesbury Tel: 01747 853966 Age UK Email: Advice line Tel: 0800 169 6565 [email protected] Age UK local centres: Web: www.ageuk.org.uk Blandford Forum Lytchett Matravers Tel: 01258 458250 Tel: 01202 622 744 Email: [email protected] Web: www.ageuk.org.uk Web: www.acblandfordforum.org.uk North Dorset Bournemouth Tel: 01258 475582 Tel: 01202 523300 Email: [email protected] Email: www.ageuk.org.uk/bournemouth Web: www.acnorthdorset.org.uk Web: www.ageuk.org.uk/bournemouth Poole Dorchester (Canford Heath, Oakdale, Upton, Broadstone, Tel: 01305 269444 Canford Cliffs, Parkstone, Lilliput, Hamworthy) Email: [email protected] Tel: 01202 666195 Web: www.ageuk.org.uk/dorchester Email: [email protected] Ferndown & District Web: www.ageuk.org.uk (West Moors, St Leonards, St Ives, SH22) Wimborne Tel: 01202 875942 Tel: 01202 849945 Web: www.ageuk.org.uk Email: [email protected] Web: www.ageuk.org.uk The Rotary Club Weymouth The Pilgrim Trust (formerly Age Concern) Tel: 01305 761 828 Web: www.pilgrimhouse.org.uk

Alzheimer’s Society Central Office Reception Tel:0207 4233500 Advice line Tel: 0300 2221122 Main Dorset Office Tel:01202 716393 Email: [email protected] Call the Dorset office to check for a Memory Café in your area, Forget Me Not Coffee Morning or Singing for the Brain group in your area. South and East Somerset Tel: 01935 473597 Email: [email protected]

41 Living well with Dementia and Memory Loss in Dorset

Benefit Enquiry Line Community Legal Advice (Department of Work & Pensions) Tel: 0345 345 4 345 Tel: 0800 88 2200 Minicom: 0845 609 6677 Textphone: 0800 24 33 55 Web: www.direct.gov.uk/legaladvice Blue Badge Scheme Community Mental Health Teams for Dorset Tel: 01305 224321 Older People Bournemouth Tel: 01202 458744 Blandford Tel: 01258 394045 Poole Tel: 01202 633605 Bournemouth Tel: 01202 705609 Bridport Tel: 01308 426291 Bournemouth Care Direct Dorchester Tel: 01305 250861 Tel: 01202 454979 Ferndown & West Moors Tel: 01202 639560 British Red Cross Poole Tel: 01202 305115 Bridport Tel: 01305 215951 Shaftesbury Tel: 01747 851625 Christchurch Tel: 01202 484074 Sherborne Tel: 01935 815598 Dorchester Tel: 01305 215951 Weymouth & Portland Tel: 01305 762505 Ferndown Tel: 01202 892772 Wimborne & Purbeck Tel: 01202 639560 Poole Tel: 01202 699453 Community Transport Swanage Tel: 01929 423517 East Dorset Tel: 01305 225708 Care and Repair Rest of Dorset Tel: 01305 221700 Tel: 01305 252405 or 01305 224535 Web: www.dorsetforyou.com Bournemouth Tel: 01202 454979 Poole Tel: 01202 262000 Care Quality Commission (CQC) Tel: 0300 061 6161 Cruse Bereavement Support National Tel: 0844 4779400 Carers Direct Dorset Cruse Tel: 01308 423823 Tel: 0300 123 1053 Bournemouth and NHS Carers in Crisis Poole Cruse Tel: 01202 302000 Carers’ Support Administrator Tel: 01305 221016 Web: www.dorsetforyou.com Carers Trust Tel: 0844 800 4361 Carers UK Tel: 0808 808 7777 Citizens Advice Bureau (CAB) Bournemouth Tel: 08444 111 444 Ferndown Tel: 0844 245 1291 Christchurch Tel: 0844 245 1291 New Forest Tel: 08444 111 306

42 Living well with Dementia and Memory Loss in Dorset

Dorset Advocacy or you don’t have a GP to call; or if you need Tel: 01305 251033 health information or reassurance about what to do next. Dorset Fire and Rescue Service Tel: 111 Tel: 01305 252600 Oakley Friends Dorset HealthCare Tel: 01202 880114 / 650554 / 021705 Tel: 01202 277 000 Email: [email protected] Dorset Race Equality Council Web: www.oakleyfriends.co.uk Tel: 01202 392954 Office of the Public Guardian Drivers Medical Group (DVLA) Tel: 0300 456 0300 Tel: 0300 790 6806 Poole Adult Social Care Hanham Centre for Independent Living Tel: 01202 633902 Tel: 01202 843560 Poole Housing & Community Services Healthwatch Tel: 01202 633804 Tel: 0300 111 0102 POPP Help and Care Central Wayfinders Numbers Tel: 0300 111 3303 Email: [email protected] Tel: 01305 224841 Law Society Tel: 020 7320 5650 Food and lunch projects Tel: 07919 545199 Marie Curie Palliative Care Institute Liverpool (MCPCIL) Poole and Bournemouth Tel: 0151 794 8806 Steps 2 wellbeing Tel: 0300 123 1120 Mears Home Improvement Ltd Web: www.steps2wellbeing.co.uk Tel: 01202 862765 Radar Key Scheme Memory Support and Advisory Poole Tel: 01202 633633 Service Bournemouth Tel: 01202 451451 Run by Alzheimer’s Society. Supports people Christchurch Tel: 01202 495000 with memory loss and dementia, and their Weymouth Tel: 01305 838000 carers by providing information, advice, guidance and signposting. Samaritans Tel: 0300 1231916 Tel: 01305 771777 Email: [email protected] Saneline MIND Tel: 0845 767 8000 Tel: 0300 1233393 Web: www.sane.org.uk Legal Advice Service Smokestop Services Tel: 0300 4666463 Tel: 0300 3038038 NHS 111 Web: www.i-quit.org.uk If you need medical help fast but it’s not a St John Ambulance (Dorset) 999 emergency; you don’t know who to call Tel: 01305 751160

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Third Edition, published March 2015 © NHS Dorset Clinical Commissioning Group Designed by NHS Creative – CS39675