ISSUE 4 – 2017

PROMISE CAMPAIGN THE JAN AND DAN DUNCAN MEET TEXAS CHILDREN´S UPDATES NEUROLOGICAL RESEARCH INSTITUTE CANINE EMPLOYEE - 6 - - 20 - - 28 - “I won’t stop working to find and treat the root causes of neurological disorders. It’s a promise I’ve made to my patients and their families.” – Dr. Christian Schaaf

Dr. Schaaf ’s work at the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital has already resulted in several breakthrough discoveries related to autism and other neurological disorders. Your gift helps ensure that Dr. Schaaf can continue his important research — and keep his promise.

A promise kept makes another possible. texaschildrens.org/promise 832-824-6806 Donate to the Promise Campaign today. ISSUE 4 – 2017 IN THIS ISSUE ... 3

TABLE OF CONTENTS

2017 Calendar of Events 2017 BOARD OF TRUSTEES What’s New, What’s Next 4 OFFICERS EMERITUS TRUSTEES 5 A Loving Tribute ANN LENTS JOSEPHINE E. ABERCROMBIE Becky and Kevin Hostler CHAIR KIRBY ATTWELL BEN A. BROLLIER Promises in Action MICHAEL LINN DONALD P. DEWALCH Promise Campaign Updates 6 PRESIDENT DARRELL C. MORROW KEVIN C. KING TOWNES G. PRESSLER VICE PRESIDENT

FREDA WILKERSON BASS ADVISORY BOARD VICE PRESIDENT EDUARDO AGUIRRE, JR. CINDY B. TAYLOR LEWIS E. BRAZELTON III VICE PRESIDENT O. HOLCOMBE CROSSWELL 21 Years of C. PARK SHAPER ROBERT L. GERRY III 12 TREASURER BARRY H. MARGOLIS “What’s Up, Doc?” BEN B. McANDREW III SUSAN BELL BOYKIN Houston Family EDWARD S. McCULLOUGH 13 SECRETARY WILLIAM K. McGEE, JR. Driven to Do Good DACE REINHOLDS The Jerold B. Katz Foundation 14 The Bad Pants Open ASSISTANT SECRETARY A Transformational Gift 16 BOARD OF TRUSTEES Bristol-Myers Squibb Foundation WILLIE J. ALEXANDER ROBERT E. MEADOWS MERRELL A. ATHON DAVID L. MENDEZ 18 New Miracles Create THOMAS G. BACON SUZANNE NIMOCKS a Healthier Future FREDA WILKERSON BASS ANTHONY G. PETRELLO Children’s Miracle Network Program SUSAN BELL BOYKIN DAN PICKERING MARTHA CARNES GARY L. ROSENTHAL JOSEPH A. CLEARY, JR. TONY SANCHEZ ANTHONY F. DeLUCA C. PARK SHAPER JAN DUNCAN L.E. SIMMONS JENNY ELKINS JOES V. STAFF NANCY R. GORDON Y. PING SUN VICTOR E. HARRIS CINDY B. TAYLOR Ushering in a 20 RONALD C. HULME TYM TOMBAR New Era of Discovery JODIE LEE JILES BRAD TUCKER The Jan and Dan Duncan KEVIN C. KING MARK A. WALLACE Neurological Research Institute ANN LENTS PETER S. WAREING 24 Toss for Texas Children’s MICHAEL LINN MAX P. WATSON Heart Center WILLIAM N. MATHIS SCOTT N. WULFE PROMISE CAMPAIGN COMMITTEE LEADERSHIP

“I won’t stop working to find and treat the root PROMISE CAMPAIGN PROMISE CAMPAIGN 26 The Forum CHAIRS CO-CHAIRS causes of neurological disorders. It’s a promise Luncheon Houston CAROL AND MICHAEL LINN O. HOLCOMBE CROSSWELL Surgery Services at LESLIE AND MICHAEL FERTITTA I’ve made to my patients and their families.” Texas Children’s Hospital PROMISE CAMPAIGN CAROL AND PHIL GARNER Providing Healing and HONORARY CHAIRS NANCY GORDON 28 CARI AND JOHN GRIGGS JANICE AND BOB McNAIR – Dr. Christian Schaaf Comfort through 30 Fraser´s Friends JUDY AND GLENN SMITH Man’s Best Friend Celebrating Surgical Achievements CONTRIBUTORS Judy and Bobby Shackouls at Texas Children’s Hospital AMBER L. TABORA, SENIOR VICE PRESIDENT, DEVELOPMENT, MARKETING AND PUBLIC RELATIONS STACEY COOK, EDITOR-IN-CHIEF MICHAEL COTHRAN, MANAGING EDITOR ANN SAYE, MANAGING EDITOR Dr. Schaaf ’s work at the Jan and Dan Duncan Neurological KELLY CLIBURN, ELIZABETH DeLUCA, KRISTINA GRAY, MICHELLE HERNANDEZ, ROSANNE MOORE, JESSICA Research Institute at Texas Children’s Hospital has already resulted POOL, KIMBERLY VETTER, CONTENT CONTRIBUTORS in several breakthrough discoveries related to autism and other Celebration of 32 ADCETERA, DESIGN AND CONTENT CONTRIBUTOR Champions JENNY ANTILL CLIFTON, ALLEN KRAMER, neurological disorders. Your gift helps ensure that Dr. Schaaf can 34 More Miracles PAUL KUNTZ, WILL LEBLANC, JOHN LEWIS, CHINH PHAN, SMILEY POOL, KAREN SACHAR, are on the Way CONTRIBUTING PHOTOGRAPHERS continue his important research — and keep his promise. Keller Gray’s Story Ambassadors for 36 Texas Children’s Hospital Start making a difference today. texaschildrens.org/promise 39 A Gift for Caroline Give over the phone Give via mail A promise kept makes another possible. Elizabeth and Anthony DeLuca 832-824-6806 Texas Children’s Hospital Office of Development 832-824-6806 1919 South Braeswood Boulevard Donate to the Promise Campaign today. Give online Suite 5214 texaschildrens.org/give Houston, Texas 77030 aspire.texaschildrens.org

4 CALENDAR2017 OF EVENTS October 6 CELEBRATION Join us as we celebrate champions in the community and champions in the fight OF CHAMPIONS against pediatric cancer.

BAD October 12 PANTS You don’t need to bring your best golf game — just your worst pants. All proceeds OPEN benefit Texas Children’s Newborn Center.

October 26 TOSS FOR It’s a fun-raising fundraiser that’s like nothing else. Come out for great food and good TEXAS CHILDREN’S times as we raise support and awareness for Texas Children’s Heart Center. HEART CENTER

FALL FORUM November 13 FPO Featuring Dr. David G. Poplack, director LUNCHEON of Texas Children’s Cancer Center and Hematology Services

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PROFILES IN PHILANTHROPY

“... We had seen firsthand “... Every person we’ve met how important it is for at Texas Children’s — from families to be together the doctors and nurses to when they have to be in the administrative staff — the hospital, and to have are all remarkable.” that hospital close by ...” – Kevin Hostler

A LOVING TRIBUTE BECKY AND KEVIN HOSTLER

When Becky and Kevin Hostler attended The Forum Luncheon The Woodlands in April 2015, it was not their first exposure to Texas Children’s Hospital. They had been familiar with the hospital’s reputation since the late 1980s as a place where health care miracles happened.

Neither was this their first and their son Jonathan’s children, In 2007, Becky and Kevin’s we both knew we wanted to Forum Luncheon. They had Isabella, Aiden and Norah. daughter, Kathy, was expecting give more.” attended once before at the The program that afternoon her first child in Anchorage, Becky and Kevin decided they invitation of their good friends, featured the stories of three brave Alaska. Tragically, she lost the wanted to make gifts in honor of Shirley and Ralph Alexander, children from The Woodlands who baby at 28 weeks, a little girl each of their grandchildren. But residents of The Woodlands and had all survived life-threatening she and her husband, Tony, had as they were discussing, Kevin Texas Children’s supporters. illnesses thanks to the experts at decided to name Hazel. The suddenly stopped and looked There, they heard about Texas Children’s. Unfortunately, family’s grief was profound. When at his wife, and asked, “What Promise: The Campaign for they had also faced a literal race Kathy and Tony learned they about Hazel?” Texas Children’s Hospital and against time to receive the care they were pregnant with twin sons To honor their five living preparations for an enormous desperately needed at the Texas the following year, they were grandchildren, and in memory expansion that would enable the Medical Center campus. Through overjoyed. But they were also of Hazel, the Hostlers donated hospital to provide its unmatched a virtual tour, the audience caught anxious after the trauma of losing $150,000 to Texas Children’s services to even more children a glimpse of Texas Children’s Hazel. For three months, Kathy Hospital The Woodlands to name and families. It left an indelible solution to this challenge and its received wonderful care around six examination rooms in the new impression on the Hostlers. promise to those communities: the clock, and though the twins Outpatient Building. “No one is more vulnerable than Texas Children’s Hospital The were born six weeks early, they “When we first heard about a child,” Kevin Hostler said. “We were Woodlands, a state-of-the-art required only a brief stay in the Texas Children’s Hospital The initially drawn to Texas Children’s community pediatric hospital, neonatal intensive care unit. Woodlands, we related to the need,” because of how they are uniquely will provide specialty outpatient, As Becky and Kevin sat listening Kevin said. “We had seen firsthand equipped to care for the most inpatient and emergency care for at The Forum Luncheon all those how important it is for families to be vulnerable children and families tens of thousands of families closer years later, they were reminded of together when they have to be in the in difficult circumstances.” to home. their own journey in the stories that hospital and to have that hospital That day at their second Forum At the program’s conclusion, had been shared. close by. Every person we’ve met at Luncheon, the Hostlers had come the lights came up and the people “It was serendipitous,” Texas Children’s — from the doctors prepared to make a commitment began to disperse. But Becky and Becky Hostler said. “We were and nurses to the administrative of their own to the Promise Kevin Hostler remained — sitting overwhelmed by how those staff — are all remarkable. Now Campaign — a gift in honor of their quietly, stirred by echoes of the past families’ experiences resonated they’re here in the community in five grandchildren: their daughter and the memory of their family’s with us. We had already decided to The Woodlands. And that takes a Kathy’s children, Jackson and Liam, personal struggle. make a gift, but after the program, tremendous burden off families.”

“Our promise is to support our community in any way we can. And we see Learn more about how you Texas Children’s as being an important contributor to the well-being of can make a tribute gift at the community.” texaschildrens.org/tribute – Becky and Kevin Hostler, Promise Campaign donors aspire.texaschildrens.org

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PROMISES IN ACTION

Thanks to the extraordinary support of generous donors in the community, Texas Children’s Hospital is keeping its promises to children and women in need of the finest health care available. These are just a few of the milestones we have met on two of the chief priorities of Promise: The Campaign for Texas Children’s Hospital.

CELEBRATION MARKS OUTPATIENT BUILDING OPENING Texas Children’s Hospital The Woodlands

On October 4, 2016, we marked the opening of the Outpatient Building of Texas Children’s Hospital The Woodlands with a private welcome celebration that included breakfast, comments from organization leaders, and tours of the six-floor, 209,973-square-foot facility.

The new building houses almost 20 areas of specialized school baseball pitcher to avoid injury. The motion and human care including cardiology, sports medicine, neurology and performance lab has what it takes to achieve these goals hematology/oncology. “Everything about Texas Children’s including the technology and expertise to assess vestibular Hospital The Woodlands is about improving the health and dysfunction, examine human motion, and assess pulmonary wellness of children and families in this community,” said and cardiac function. Dr. Charles Hankins, chief medical officer. The new hospital is already making a big impact. A state-of-the art sports medicine gym is on the first floor, check- “We hear weekly about the positive effect we’re already in and check-out stations resembling a child’s clubhouse are at the having on patients,” said Dr. Jeffrey Shilt, chief surgical officer entrance of each clinic, and spacious exam rooms and provider work at Texas Children’s Hospital The Woodlands. “The convenience stations line many of the building’s halls. In addition, Texas Children’s for many of our sickest patients to receive the best care close Hospital The Woodlands will be home to a state-of-the-art motion and to home is creating a tremendous boost to their quality of life. human performance lab and special gait lab, which will serve the But the most overwhelming thing for me has been the support entire Texas Children’s system. from the community. People are proud to have this hospital Human performance improvement spans the spectrum from here. The community’s input has been integral in creating this correcting a congenital heart defect, to improving a disabled hospital, and the philanthropic support we’ve received has been child’s gait, to correcting the throwing motion of an elite high instrumental in delivering that vision.” ISSUE 4 – 2017

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THE WOODLANDS CONSTRUCTION CREW DONATES TO THE CAUSE

When John Brock with Tellepsen Builders signed up A. B. to work on Texas Children’s Hospital West Campus, he never imagined his relationship with the hospital would be anything more than business. But a turn of events in his teenage daughter’s life changed that very quickly, making Brock’s experience with Texas Children’s extremely personal. At the age of 14, his daughter was diagnosed with scoliosis by her Texas Children’s Pediatrics primary care physician. When her condition worsened, her doctor recommended surgery. Today, she is 22 years

C. D. old and is doing very well, thanks to the care she received at Texas Children’s. Brock, who is the senior supervisor for the hospital’s facilities, shared his personal story with many of his crew members who in turn shared similar stories of their own. Because of the shared connection, he asked his crew if they would be open to making a donation to Texas Children’s. The crew answered with a resounding yes and started pitching in. Months later at the opening ceremony of the outpatient facility, Brock, with his entire crew in the background, presented almost $10,000 to Texas Children’s President and CEO Mark A. Wallace. “I am so humbled and grateful for this donation, made by a tremendous group of people dedicated to the health of children and women,” Wallace said. “It speaks volumes E. about the impact Texas Children’s makes on our patients, their families and beyond.” A. (From left) Michelle Riley-Brown, Mark A. Wallace, Dr. Jeffrey Shilt B. Carol Linn See more from the event at C. Mark A. Wallace and Dr. Jeffrey Shilt D. A member of the hospital staff demonstrates on a tricycle aspire.texaschildrens.org/ E. The Spasticity Clinic in the Outpatient Building PromiseUpdates aspire.texaschildrens.org

8 INPATIENT FACILITY GRAND OPENING GALA AND RIBBON CUTTING

The inpatient facility at Texas Children’s Hospital The Glenn, Judy and Glenn Smith, Pam and Gary Whitlock, Carol Woodlands opened on April 11, 2017. On its very first day, and Phil Garner, and newlyweds, Kristy and George Lindahl. there were 23 surgeries, 42 visits to the emergency center The gala concluded with late-night snacks and dancing. and two babies admitted to the neonatal intensive care unit. Flipping the tent overnight, the evening celebration venue Those busy days continued, leading up to the official was transformed for the official ribbon cutting ceremony celebration of the hospital’s grand opening on the evening the next day. Early Saturday morning, nearly 400 guests of Friday, April 28, when nearly 600 guests gathered for a gathered to celebrate the new community hospital with gala event that was filled with emeralds and sapphires and remarks by Riley-Brown, Hankins and Shilt. They all painted diamonds — oh my! a picture of what an impact Texas Children’s Hospital The Chaired by Johnna and Ryan Edone and Tracey and Sean Woodlands had made in just the three short weeks since it O’Neal, the gala grossed almost $900,000 — including opened. An inspirational video featuring the new hospital’s $373,000 raised at the event through an auction, raffle milestones followed. To conclude the official opening, and donations. confetti flew as the new hospital’s leaders officially cut the The evening was filled with glitter-dusted surprises commemorative ribbon. around every corner of the spectacular tent erected for the Next up was a gathering of more than 1,500 members of occasion. Following a three-course dinner provided by Texas Children’s Hospital The Woodlands staff, volunteers A Fare Extraordinaire, guests enthusiastically bid on and community members, who lined up for the inaugural once-in-a life-time auction items, the most popular being Family Fun Run. Following pre-race stretching with Dr. a Bahamas-bound super yacht! After the bidding frenzy Kristen Ernest, sports medicine physician, as well as the ended, donors were treated to a performance by Grammy- national anthem from the College Park High School Herald nominated artist, Jewel, who delighted the crowd with Trumpets, the runners were off with a sound of the horn. songs and stories of her life. Along the one-mile course, runners were greeted by hoopla In attendance were Board members Michael C. Linn stations from the Oak Ridge High School Sparkle Cheer and his wife Carol, as well as Joe Cleary, along with Team, the College Park High School Drum Line and Let them Texas Children’s leadership including Michelle Riley- Drum. Upon crossing the finish line and receiving their Brown, executive vice president and president, medals, runners enjoyed the post-race Family Fun Zone, Texas Children’s Hospital The Woodlands; Dr. Charles presented by H-E-B, which included bounce houses, face Hankins, chief medical officer; Dr. Jeffrey Shilt, chief surgical painting, arts and crafts, and much more. officer; and Texas Children’s Hospital in-chiefs Dr. Mark W. See more from the event at Kline, Dr. Dean Andropolous, Dr. James Versalovic, and aspire.texaschildrens.org/ Dr. George S. Bisset. Also celebrating on Friday evening were, Kathy and George Bishop, Candice and Gerald PromiseUpdates ISSUE 4 – 2017

9 PEDIATRIC TOWER TOPPING OUT Texas Medical Center Campus

On February 9, 2017, Texas Children’s and W.S. Bellows Construction celebrated the topping out of Texas Children’s new Pediatric Tower, recently named the Legacy Tower, in the Texas Medical Center at a ceremony led by Texas Children’s President and CEO Mark A. Wallace, Texas Children’s Board of Trustees Chair Ann Lents, and W.S. Bellows Construction President Laura Bellows. Under a large tent across the street from the tower’s 400-foot- tall structure, nearly 700 guests cheered as a seven-foot-tall loblolly pine tree was hoisted to the top of the hospital’s new building, commemorating the successful completion of the building’s external structure. During the topping out ceremony, Wallace recognized the phenomenal leadership of Texas Children’s Board of Trustees; project partners, FKP Architects and W.S. Bellows Construction; Texas Children’s executive leadership team; the Legacy Tower leadership team; Chase Fondren, whose daughter Ella had a successful liver transplant at Texas Children’s, and the generous donors who have contributed to the Promise Campaign.

Slated to be completed in 2018, the Legacy Tower will house additional acute care cardiology beds and critical care beds dedicated specifically for surgery patients and for neurology patients, along with state- of-the-art operating rooms, including one with an intra-operative MRI.

Texas Children’s Heart Center will be completely relocated to the new patients,” Dr. Checchia said. “Children who would not have survived Pediatric Tower and will include a dedicated pediatric heart failure seven or eight years ago now have these ventricular assist devices intensive care unit — the first of its kind anywhere. and are in the heart failure unit receiving cutting-edge care and The unit, which opened in 2015, is the result of innovative thinking getting better.” from Dr. Paul Checchia, medical director of the Cardiovascular Intensive Dr. Checchia and Dr. Lara Shekerdemian, chief of Critical Care Care Unit and services at Texas Children’s, and his devoted team. Medicine at Texas Children’s, oversee the unit. Drs. Antonio “We were looking for inventive ways to expand the number of Cabrera and Jack Price serve as associate medical directors. beds available for cardiac patients,” Dr. Checchia said. “We realized Already, the unit has earned a national reputation, with experts that we had six to ten patients at any given time who were in some coming from other institutions across the country to see the unit stage of critical heart failure, whether from infection or congenital in action. abnormality, or who were pre-transplant. And we also had patients Texas Children’s current expansion, supported by the who needed more specialized care post-transplant. So we realized Promise Campaign, is a reinvestment in the programs needed that this cohort needed a unit purposefully designed for their unique by the hospital’s most critically ill patients. needs that would deliver specific specialized physician care, nursing, “At the end of the day, it’s not about the building,” Ann Lents said. physical therapy and nutrition care, along with the right kind of “It’s all about the patients and being sure that today, in five years equipment resources.” and in 20 years, we can help the children who need the care and The results have been remarkable, with improvements in every treatment that only Texas Children’s Hospital can give them.” marker of quality of care, including patient and staff satisfaction. Dr. Checchia also cited the recent proliferation of pediatric ventricular Hear more from the Fondren Family at assist devices for children as a reason for the unit’s success. aspire.texaschildrens.org/ “Over the past five years, there’s been a true sea change in the PromiseUpdates miniaturization of technology and what we can do for pediatric PROMISE CAMPAIGN DONORS

Angela B. and Louis E. Magne Spirit of Children & Spirit Maria I. Torrallardona Mata and Risa and Sterling McDonald Halloween Javier De Pedro Espinola F B McGuyer Family The Stearns Family Foundation Delta Delta Delta Alumnae Chapter Robert and Janice McNair Teammates for Kids Foundation Melisa and Albert Dion II (as of June 26, 2017) Foundation Tellepsen Family Disney Worldwide Services Barbara D. Mitchell, Ph.D. Texas Oilman’s Bass Charities Estate of Merle Donigan $25,000,000 + Mothers Against Cancer Thrasher Research Fund Duncan Genesis Foundation Bristol-Myers Squibb Foundation Ralph O’Connor The V Foundation for Cancer Rachel and Adam Dunn Susan and Mark Papa Research The Ellwood Foundation $10,000,000 – $24,999,999 Marta and Stephen Pate Family The Vale-Asche Foundation Dr. and Mrs. George D. Ferry Marvy Finger Family Foundation Chevron Foundation Elizabeth and Peter Wareing FKP Architects, Inc. The Howard Hughes Corporation/ Estate of Mary Beth Pawelek The Fondren Foundation The Woodlands Development Dawn and Richard Rawson $100,000 – $499,999 Freedom From Fistula Foundation Company Isla and T.R. Reckling Anonymous (10) Friends for Hope Charif Souki The Sarofim Foundation Acute Respiratory Illness Gallery Furniture The Lester and Sue Smith Association The George Foundation $5,000,000 – $9,999,999 Foundation Barbara and Roy Adams The Gerber Foundation Sterling-Turner Foundation Aicardi Syndrome Foundation Direct Energy Candi and Gerald Glenn T.L.L. Temple Foundation J.R. Albert Charitable Trust Jan E. Duncan Golfers Against Cancer UNICEF – Southwest Regional Shirley and Ralph Alexander The Elkins Foundation Nancy and James Gordon Office Elizabeth and Hugh Allen ExxonMobil Estate of Tobi Gordon Asha and Farid Virani The Cade R. Alpard Foundation for The Hildebrand Family Grant-A-Starr Foundation Walmart & Sam’s Club Pediatric Liver Disease Huffington Foundation Greater Houston Builders Pam and Gary Whitlock American Association of Drilling Mark A. Lensky Association Woodforest Bank Engineers Estate of Kenneth W. McBryde The Greentree Fund Drs. Huda and William Zoghbi The Andras Foundation The John M. O’Quinn Foundation Tanya and Andrew Greenwood Barbara and Robert Zorich Association of Program Directors George and Mary Josephine in Radiology $1,000,000 – $4,999,999 Hamman Foundation $500,000 – $999,999 Mr. and Mrs. Merrell A. Athon Anonymous (4) Charlotte and Howard Harpster Anonymous (4) Charlotte and Jamil Azzam The Lents-Heaney Family Ace Hardware Alex’s Lemonade Stand Foundation Joan and Stanford Alexander The Hearst Foundation, Inc. Foundation Carol Baker Ouida Hembree Family Carl C. Anderson, Sr., and Marie Jo Balfour Beatty Construction Judy Gates Hicks and Albert and Margaret Alkek Anderson Charitable Carrie Barnes Trust Jerry Carter Hicks Foundation Foundation Freda W. Bass L. Leighton Hill, M.D. Anadarko Petroleum Corporation Ann and John Bookout Janet Bates The Holthouse Foundation The Auxiliary to Texas Children’s Julio Cardenal Eula Mae and John Baugh for Kids Hospital Ann and Clarence Cazalot Foundation Becky and Kevin Hostler Beyond Batten Disease CFP Foundation Baxter Trust Houston Children’s Charity Foundation ConocoPhillips BB&T Corporation Houston Junior Woman’s Club Jennifer Jo Bird Mark and Judith Cook Foundation BBVA Compass Bank Houston’s Credit Unions Dr. Milton and Laurie Boniuk Costco Wholesale BioGaia AB Sheila and Ron Hulme The Brown Foundation, Inc. Curing Kids’ Cancer Bosarge Family Foundation Intermountain Healthcare The Gordon & Mary Cain Pediatric Elizabeth and Anthony DeLuca Stacey and Stephen Bourque JKJ Charitable Foundation Neurology Research Foundation John S. Dunn Foundation The Boyd Morse Foundation Jones Lang LaSalle in partnership Lauren and Lara Camillo Family Mary and Doug Erwin Suzanne Braden with Mr. and Mrs. David M. Bale Trusts Clare A. Glassell Jennifer and Jimmy Branch and Mr. and Mrs. Daniel G. Ting-Tsung and Wei-Fong Chao Dee and Michael Hairston Broesche Family Foundation Bellow Foundation Melissa and Brad Juneau Cristina and James Buass Raleigh and Marjorie Bintliff Cathy and Joe Cleary The Junior League of Houston, Inc. Jeanie and Tommy Carter Johnson Corner Store John Knox, Jr. CenterPoint Energy Yvonne and Walter Johnson The Cullen Trust for Health Care KROGER Central Valley Community Doris and James Jones Gretchen Eckert England Lewis Jewelers Foundation George Joseph Sidney and Don Faust Gillson Longenbaugh Foundation Chance for Hope Foundation Kappa Alpha Theta Alumnae Michelle and Dave Feavel Love’s Travel Stops & Country Estate of Sandra Sue Chapman Monica and Kevin King Mary Rodes Gibson Hemostasis- Stores Chevron Phillips Chemical KLS Martin, L.P. Thrombosis Foundation Jeffrey Modell Foundation Company LP Damon and Karen Krehbiel GR8 Hope Foundation The Pin Oak Charity Horse Show Chico’s FAS L3 Foundation Maureen and James Hackett The Rancher’s Ride Inc. City of McAllen Sarah and Eric Lane The Hamill Foundation The Rise School The Cockrell Family Fund Susan and Mike Larson H-E-B A.R. “Tony” and Maria J. Sanchez Adonia and Kevin Cokinos The Laurel’s Army Foundation The Histio Cure Foundation Family Foundation Nancy and Brady Cook JC LeFlore Jeri and Travis Horelica Scurlock Foundation Caneila Cook Let The Fashions Begin, Inc. Hyundai Hope on Wheels Judy and Bobby Shackouls Vannie E. Cook, Jr., Cancer Jack H. and William M. Light JLH Foundation, Inc. Virginia & L.E. Simmons Family Foundation Charitable Trust The Jerold B. Katz Foundation Foundation Maria and Santiago Cortina Carolyn and David Light III Robert J. Kleberg, Jr., and Helen C. The Simons Foundation The Crain Foundation Jennifer and Jeb Ligums Kleberg Foundation Rosemary and Dan J. Harrison III – Emily and Holcombe Crosswell George I. Lindahl III Kohl’s Department Stores, Inc. Mary Alice Smith Foundation Dairy Queen Linn Energy Carol and Michael Linn Vivian L. Smith Foundation Alan Dale M-A-C AIDS Fund/MAC MD Anderson Foundation Snowdrop Foundation, Inc. David Elementary, P.T.O. Cosmetics PROMISE CAMPAIGN DONORS

MacDonald-Peterson Foundation Mary Martha and Joel Staff Credit Suisse First Boston Susan and Mike Padon Cora Sue and Harry Mach The Stargel Family Corporation C.N. and Maria Papadopoulos The Mailman Foundation, Inc. Lois and George Stark Juanita Crossley Charitable Foundation Estate of Patricia F. Mansinger Stripes Convenience Stores Curing Children’s Cancer Fund Jennifer Pate, M.D. Rosalyn and Barry Margolis Calvin H. Sugg, Jr. Clayton Dabney Foundation Louie M. Payne Marriott International, Inc. Sutton Foundation Hiba and Sam Darwish Lorri and Brian Petrauskas Bailey and Pete McCarthy Courtney and Doug Swanson Dec My Room Rebecca and David McClanahan Swing For A Cure Deloitte & Touche LLP Phi Mu Houston Alumnae Chapter John and Maryanne McCormack Judy and Charles Tate Deutsche Bank Securities, Inc. Daniel Pickering Foundation The TeamConnor Childhood Sally and Don DeWalch Plains Marketing, L.P. McCoy Workplace Solutions Cancer Foundation Direct Energy Services Porsche of North Houston Flo and Bill McGee Rawley Foundation Lisa and Richard Duncan PricewaterhouseCoopers LLP Mr. and Mrs. Robert E. Meadows Marianne and George Thomas Morven Edwards, M.D. Ed Rachal Foundation Medtronic, Inc. Raul Tijerina Jr. Foundation Andrea and Larry Elliott Wyatt Ray Memorial Fund Men of Distinction of Greater Toyota North America, Inc. Epic Systems Corporation Alicia and Shawn Raymond Houston, Inc. Transwestern EZCORP Foundation Jan and Arnie Miller University of Maryland Baltimore Rebecca and Lonnie Fedrick J Newton Rayzor Foundation Laura and Lew Moorman Foundation, Inc. Sheri Feldman RE/MAX Associates Northeast Morgan Stanley Foundation Valley Baptist Legacy Foundation Barbara and Michael Feigin RE/MAX Fine Properties Musket Corp Vidara Therapeutics Research, Ltd. Liz and Clint Freeland RE/MAX Hometown Mustang Cat Karen and Brock Wagner Fundacion Teleton The Ronnie & Cathy Matthews National Multiple Sclerosis Society The Jacob and Louise Gabbay Walter P Moore & Associates, Inc. Team RE/MAX Legends Mary Naylor Foundation, Inc. Kay and Max Watson RE/MAX Northwest, Realtors Noble Corporation Kalen and Mike Webb GBM International Inc. RE/MAX of Texas Northwestern Mutual David Weekley Homes Giving Rocks Foundations Elizabeth and Bobby Reeves Sydnor and Olga Oden Wells Fargo Go Gold Fund Foundation Tracy and Richard Wilken Sally and Frank Goldberg Robbins Institute for Health Policy Sean O’Donnell Sue and David Williams Goldman, Sachs & Co. and Leadership Suh-Yun L. Ou Ryan Batman Williams Aileen Gordon The Royal Bank of Scotland Panda Express Foundation Lauren Catuzzi Grandcolas Judy and Henry Sauer The Periwinkle Foundation Foundation Kristen and Matt Wilsey Joan and John Scales Susan Peterson Dr. David Sr. and Nell T. Greer Shannon and Brian Wing Schiel B-R-C-P-B-B-L Foundation, Cynthia and Anthony Petrello The Winston Foundation, Inc. Trust Inc. Petroleum Wholesale L.P. Wipe Out Kids’ Cancer Dottie and John Harris SignMeUp.com Cindy and Don Poarch Wolff Family Foundation HCC Service Company, Inc. Prolacta Bioscience Lori and Scott Wulfe HIS Grace Foundation Amy and Kyle Simson Randalls Foundation Dr. Edward and Brenda Yosowitz HLH McAllen Venture Dr. Paul Sirbaugh Leigh Anne and John Raymond Hope Help Heal Foundation, Inc. Smith & Associates International RBC Capital Markets $50,000 – $99,999 Houston Endowment Inc. Bob and Vivian Smith Foundation RBC Wealth Management Houston Family Foundation R. E. Smith Foundation RE/MAX Real Estate Associates Anonymous (3) Houston G-Man Classic Judy and Glenn Smith RE/MAX Space Center The Abercrombie Foundation Houston Pi Beta Phi Foundation RE/MAX The Woodlands & Spring Agar Corporation, Inc. Humphrey Company, Ltd. Lois and George Stark Ready or Not Foundation All American Classics, Inc. IBM Business Solutions Lindsay and Trent Stout Michael and Vicki Richmond Mrs. Nancy C. Allen Insperity Strake Foundation George A. Robinson IV Foundation Kristen and Michael Arnett Dr. Rani Nanda and Daniel W. Gretchen Swanson Family Steven Arnold Roxanne and Kolja Rockov Jackson Foundation, Inc. Ascende Charitable Trust Ronald McDonald House Charities Jacob White Construction John and Nona Swonke of Greater Houston/Galveston Laura and Tom Bacon Company Tracy and Don Tandy Sybil Roos Bank of Nova Scotia Knapp Chevrolet Rachael and Mark Terry Suzanne and Mike Rose Bates Family Foundation Linda S. Knox Mr. and Mrs. Gary Rosenthal Baylor College of Medicine Leaping Butterfly Ministry and Texas Food Bank Network Rotary Club of Houston Bear Necessities Pediatric Cancer Circles of Hope Foundation Texas Medical Center Foundation, Inc. Foundation, Inc. Jean and Richard Lewellen Texla KCC, Inc. David and Polly Roth W.S. Bellows Construction Susan MacDonald Carl C. & Lily C. Thrift Charitable Leslie and Shannon Sasser Family Corporation MainStreet America Trust Tina Bentsen Fund Make Some Noise 4 Kids Vanessa’s Big Heart Foundation Schlumberger Technology Melony and B.J. Bergeron Joyce and Fred McCauley The Vaughn Foundation Corporation Eva and Beau Bisso John P. McGovern Foundation Melissa and Doug Schnitzer Blue Cross and Blue Shield of William McKenney Wiesner Automotive Group Roberta and Lee Schwartz Texas McKesson Foundation Wildhorses Resources Kristy and John Sexton Meg Goodman and Michael McLane Foodservice William and Marie Wise Family Dr. William T. Shearer and Bonini Corinne and Michael McVay Foundation Lynn Des Prez Braly Family Limited Partnership Mercedes-Benz of The Woodlands Mrs. Melvyn L. Wolff Shell Oil Company Foundation Bristow Group Janie Miller The Woodell Family Foundation Stephen Y. Shing Henry T. Brooks Estate of Alexander James Moll The Woodforest Charitable Silver Eagle Distributors, L.P. Shirley and Monte Cauble National Oilwell Varco Foundation Lawrence B. Smith Family Trust Child’s Play Charity Anita and Rolf Nelson Susie and Tommy Smith Christian Brothers Automotive Jan and Joe Netherland Worldwide Oilfield Machine Inc. Aimee and Wynne Snoots Cook Children’s Medical Center Noble Energy Brenda and Randy Wright The Harry and Estelle Soicher Credit Agricole Corporate and North Houston Pole Line, LP Young Texans Against Cancer Foundation Investment Bank Oil States International Inc. The Zeitgeist Foundation, Inc. aspire.texaschildrens.org

12 “WHAT’S UP, DOC?” Turns Twenty-One November 2016 Texas Children’s Pavilion for Women A. 21B.

65+ 200+ C. D. Texas Children’s EXPERTS GUESTS

See more event photos at aspire.texaschildrens.org/ WhatsUpDoc2016

21 YEARS OF PHILANTHROPY Past Event Chairs

A. Dr. Charles D. Fraser, Jr. (front, third from left) and table guests B. (From left) Dr. Gary Dildy, Dr. Wayne Franklin, Dr. Oluyinka Olutoye C. Dr. Susan Blaney with “What’s Up, Doc?” guests D. Jason and Rachael Volz 2015 Jennifer and David Ducote 2014 Karla and Jorge Goudet 2013 Haley and Barrett Webster

ore than 200 guests were held in rapt attention as they listened to Texas Children’s 2012 Amy and Peter Shaper Hospital’s best and brightest at the 21st annual “What’s Up, Doc?” event, chaired 2011 Jennifer and Tadd Tellepsen M by Rachael and Jason Volz and catered by Rachael’s catering company, A Fare 2010 Stephanie and Brad Tucker Extraordinaire. 2009 Laura and Will Robertson Promise Campaign chair Carol Linn welcomed guests and kicked off the evening, with some 2008 Cari and John Griggs & Laura and Andrew McCullough of the world’s finest physicians, surgeons, scientists and health care specialists hosting tables 2007 Estela and David Cockrell & and speaking on a broad range of topics. Orthopedic surgeon Dr. John Dormans and adolescent Stephanie and Ernie Cockrell and sports medicine physician Dr. Al Hergenroeder talked with their guests about sports 2006 Ginny and L.E. Simmons injuries, while Plastic Surgery Chief Dr. Larry Hollier educated his guests about plastic surgery 2005 Kara and Aaron Howes that is not cosmetic, but life-saving. 2004 Kirby and Scott McCool Other special discussions focused on the bright future that lay just ahead for Texas Children’s. 2003 Joy and Scott Plantowsky Texas Children’s Hospital The Woodlands Chief Medical Officer Dr. Charles Hankins and Chief 2002 Mollie and Dan Castaneda Surgical Officer Dr. Jeffrey Shilts spoke about the newly opened hospital and how it is already 2001 Susan and Mike Plank changing the medical landscape for the communities north of Houston. Senior Vice President 2000 Charla and George Wilson Mallory Caldwell and Texas Children’s Surgeon-in-Chief Dr. Charles D. Fraser, Jr., focused on 1999 Amy and Neil Leibman the current expansion of the hospital’s world-renowned surgical enterprise. 1998 Stephanie Milligan The evening was made all the more poignant because of the venue, which overlooked the 1997 Kelly Kayem construction of the new 19-floor Legacy Tower. This expansion will provide an additional 1996 Linda Evans and Nancy Gordon 600,000 square feet of space for critical, surgical and cardiac care services and will enable Texas Children’s to provide the highest level of care for even more children in need. ISSUE 4 – 2017

13 21 PROFILES IN PHILANTHROPY

HOUSTON FAMILY DRIVEN TO DO GOOD THE JEROLD B. KATZ FOUNDATION

Houston businessman and philanthropist Pediatric Mobile Clinic. In 2006, the Ronald with a smaller physical “tire print.” The Jerold B. Katz had humble beginnings, McDonald Care Mobile joined the fleet. mini-mobile clinic enables Texas Children’s growing up in the America of the 1930s and Since the program’s inception, nearly caregivers and volunteers to reach families 1940s. Born and raised in St. Louis, Missouri, 90,000 patients — many of whom in neighborhoods all over the region with he was a child of the Great Depression, and are uninsured — have been treated, narrow streets and limited parking where the his family struggled to make ends meet. receiving services that include physicals, larger mobile clinics can’t travel. Katz’s youth was one of hardship and toil, so medical examinations, vaccinations and The Mobile Clinic Program is made he took on multiple jobs as a youth and into immunizations, routine laboratory tests, possible only through the extraordinary his early adulthood to scrape together funds and hearing and vision screenings. The generosity of Texas Children’s supporters. for his family. clinics also provide valuable education Without this philanthropy, families in these It drove Mr. Katz and his family underserved areas would be forced to seek foundation, the Jerold B. Katz Foundation, care elsewhere or even do without. to fund CARESQUAD — a bright yellow, fully “This clinic helps to serve “The addition of the CARESQUAD to equipped mobile medical clinic, which is the Mobile Clinic Program is already those who are most in need. the newest addition to the Texas Children’s making a huge difference in the lives of Mobile Clinic Program. This is very much at the heart so many children and their families,” said “My father still vividly recalls his of what the Foundation has Dr. Sanghamitra Misra, medical director impoverished youth, when health care was a always tried to do.” of the program. “We are so grateful to the luxury that his family could not afford,” said Jerold B. Katz Foundation for making the – Evan Katz his son, Evan H. Katz. “His family needed help clinic possible.” — and it simply did not exist. This gift speaks For the Katzes, this gift is near and dear to that simple notion: lending a hand to our to the family. The family is proud to do their neighbors in need.” in areas such as injury prevention and part in helping care for the community’s To meet the growing need for basic health nutrition, and assist families in applying underserved children. care in low-income communities across for public health insurance. “This clinic helps to serve those who are the greater Houston area, Texas Children’s The new CARESQUAD Mobile Medical most in need,” said Evan H. Katz. “This is very Hospital launched the Mobile Clinic Program Clinic provides the same Texas Children’s much at the heart of what the Foundation in 2000 with the fully-equipped SuperKids care as the two larger mobile clinics but has always tried to do.”

“Our promise is to work hard and to do good, be fair, learn from our mistakes, and always remember that lives can be changed by simple acts of kindness and generosity.”

– The Jerold B. Katz Foundation aspire.texaschildrens.org

14

THE BAD PANTS OPEN

BENEFITING TEXAS CHILDREN’S NEWBORN CENTER October 2016 The Clubs of Kingwood

n October 20, the 19th Annual Bad Pants Open golf tournament, presented by RBC Wealth Management and Capital Markets, raised funds that will support life-saving programs and Oservices for the tiniest patients at Texas Children’s Newborn Center who are in need of premier medical treatment. Each year since 1997, the turnout at the annual golf outing continues to soar.

A. B.

BAD PANTS OPEN COMMITTEE 2016

Chairman Rob Cooksey

Underwriter Chairman Gary L. Whitlock

Founders “As a grateful parent and a representative of the presenting Mike Armstrong sponsor, it’s very exciting to see how much the tournament Moose Rosenfeld has grown over the years,” said Les Fox, Bad Pants Open Michael Wiesenthal committee member and managing director of RBC Wealth Management. “We filled three golf courses with nearly 400 golfers Tournament Committee wearing some really bad pants to raise funds that will directly Brian Brantley support the care of premature babies and their families. I can’t wait to Mike Casey th Donald F. Cohen, DDS celebrate our 20 year in 2017!” Norma Dunn The Bad Pants Open Golf Tournament included a check presentation to See more event photos at Les Fox Texas Children’s Newborn Center. The proceeds will advance innovation aspire.texaschildrens.org/ Robert L. Frank and excellence in the research, treatment and care for the more than 2,500 badpantsopen2016 Clint Freeland critically ill and premature infants who are treated at one of the nation’s Jay Graham largest and most experienced neonatal intensive care units (NICU) each Jim Guinn year. Proceeds from the tournament will also benefit the new NICU at A. Don Boever Charles T. Hankins, MD Texas Children’s Hospital The Woodlands. B. Dr. Charles Hankins Mike Knapp Crystal Cruz, recipient of the 2016 Bad Pants NICU Nurse of the Year award, (third from left) and guests Trey McCord said this generous donation will go a long way to improve patient outcomes. C. Bad Pants Open guests Holly Mickler “Giving is an act of charity, and every year The Bad Pants Open Golf D. Winners of The Bad Pants Open Jeff Mickler “Baddest Pants” contest Andy Shackouls Tournament helps Texas Children’s continue to make miracles happen,” Cruz E. (From left) Judy Swanson, Scott Shackouls said. “I am extremely grateful for this event and all that is donated to help us Dr. Gautham Suresh, Heather Bill Spillman save these precious, tiny lives we are entrusted to care for.” SAVE Cherry, Rob Cooksey, THE for the 20th Annual Bad Pants Open on Thursday, October 12, 2017. Dr. Charles Hankins DATE F. (From left) Les Fox, Crystal Cruz ISSUE 4 – 2017

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THE BAD PANTS OPEN D. E. F.

$375,000 RAISED to support programs and services at Texas Children’s Newborn Center

Grateful Patient Family Becca & Mike Schiff

ecca Schiff is no stranger to caring Her neonatologist, also one of her best friends, for tiny babies. As a nurse in was right there to tell her, “Yes.” BTexas Children’s NICU for the past Jonah and Elliott each weighed only 1 nine years, she has helped to care for the pound, 6 ounces. During their six-month smallest, sickest and most vulnerable journey in the NICU, the twins faced many patients. But Becca would see the NICU in an challenges including brain bleeds, liver entirely new light when her twins, Elliott and failure, bowel perforations and pulmonary Jonah, were born at only 24 weeks and had to hemorrhages. Jonah had an extensive six- fight for their lives in the very hospital where hour liver surgery to save his life. Against their mother provides care every day. the odds — and thanks to the specialized The night the boys were delivered was care they received in the NICU — Jonah and one of the most difficult nights of Becca’s Elliott continued to grow stronger. life. Through her experience in caring for Today, the twins are thriving. They premature infants, she knew the chance of recently celebrated their 2nd birthday and survival for a 24-week baby was about 50 are walking, talking and playing with their percent. Having two big sister, Charlotte. babies meant she really After this harrowing only had a 25 percent Texas Children’s experience, many of chance of bringing both Becca’s friends assumed of them home. She also NICU she would never return knew that it was very to work as a NICU nurse. likely they would suffer In fact, the opposite many complications 2,500+ was true. from being born INFANTS “From the very “I felt like I could so early. beginning, I knew I would Despite knowing cared for each year be back,” Becca said. “I be one of the most all that could go felt like I could be one of qualified and wrong, Becca was also the most qualified and absolutely certain that MOST empathic people to care empathic people to she was in the best EXPERIENCED for these families after my care for these families possible place to face LEVEL 4 NICU experience — and I had a this challenge. The duty to do just that. I want in Houston, providing the after my experience — team of experts at Texas to be here to ensure that all highest level of care and I had a duty to do Children’s Pavilion for babies in the care of Texas just that.” Women, who had cared Children’s NICU have the for her throughout her chance to do as well as my pregnancy, took incredible care of her that twins did. That is the only way I could begin – Becca Schiff night. When she awoke after the delivery, the to repay Texas Children’s for saving Elliott’s first question she asked was: “Are they alive?” and Jonah’s lives.” aspire.texaschildrens.org

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A TRANSFORMATIONAL GIFT BRISTOL-MYERS SQUIBB FOUNDATION

Texas Children’s Hospital began partnering with Bristol-Myers Squibb in several developing countries in the early 2000s. These pioneers aimed to change the lives of children affected by the ravages of HIV/AIDS.

Great successes followed, and this public-private partnership became a model for other groups to bring desperately needed health care to underserved populations around the world. Recently, Texas Children’s, Baylor College of Medicine, Bristol-Myers Squibb and the government of Botswana once again came together to conquer another devastating childhood disease — cancer.

In Africa, more than 100,000 children will be diagnosed with cancer this year, and 60 to 80 percent will die because they have little access to diagnostic and treatment services. This is a stark contrast to high-income countries, where 80 percent of pediatric cancer patients will survive.

BRINGING HOPE TO ALL CHILDHOOD ILLNESSES

In the early 2000s, as HIV/AIDS ravaged the lives of children across Africa, a small Texas Children’s Hospital program stepped in to help. Known as the Baylor International Pediatric AIDS Initiative (BIPAI) at Texas Children’s Hospital, the program built the first stand-alone pediatric HIV clinic on the continent through a public-private partnership with the government of Botswana and Bristol-Myers Squibb. A few short years later, this program operates more than a dozen clinics serving nearly 300,000 patients with a variety of health conditions. While HIV/AIDS remains a significant focus, Texas Children’s is also providing maternity care and treatment for other childhood illnesses including tuberculosis, malaria, malnutrition — and now, cancer. ISSUE 4 – 2017

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PROFILES IN PHILANTHROPY

HEARTBREAKING REALITY TO CHANGE

In February 2017, in Gaborone, Botswana, Texas Children’s and program and will offer new hope to families impacted by pediatric Baylor College of Medicine broke ground on the first of a network of blood disorders and cancer.” pediatric cancer facilities in southern and east Africa. The initiative, The Global HOPE initiative will train about 4,800 health care known as Global HOPE (Hematology-Oncology Pediatric Excellence), professionals from Botswana, Uganda, Malawi and other African will also treat serious non-cancerous blood disorders such as sickle cell countries, including doctors and nurses specializing in pediatric disease, severe anemia and hemophilia. hematology-oncology and social workers. They, in turn, will train other The Bristol-Myers Squibb Foundation made a gift of $50 million over health care professionals. An estimated 5,000 children will receive care five years, which turned the $100 million project from an idea into in the first five years, most of whom would not have been able to access reality. BIPAI will raise an additional $50 million for the program. care before. “If there is a silver lining to come out of the AIDS pandemic, “With only five pediatric oncologists currently working in it’s that we learned a tremendous amount about Botswana, Malawi and Uganda combined, there are delivering care to sick children in Africa,” said simply not enough expert doctors to treat all Texas Children’s Physician-in-Chief and BIPAI the children who have blood disorders and founder Dr. Mark W. Kline. “Now, we can cancer,” said Dr. David G. Poplack, director of apply that knowledge to cancer and Texas Children’s Cancer and Hematology other life-threatening conditions that Centers. “Our goal is and must continue have been ignored.” to be that no child — anywhere in the Texas Children’s has provided world — should die from cancer. But limited cancer care in Africa for about at a minimum, all children should 10 years as an offshoot of the HIV/ have the same fighting chance. AIDS project because certain cancers Global HOPE will help build capacity are common in HIV-positive children. in the region to diagnose and care The Bristol-Myers Squibb funds for children with blood disorders will be used to train health care and cancer, offering the potential providers and to provide support for for transformational change in clinical infrastructure and operations. survivorship for these children.” “This commitment will help support “Bristol-Myers Squibb has partnered the training network and the construction, with Texas Children’s for nearly two equipping and operation of two regional decades, and we are proud of what we have pediatric hematology-oncology clinical sites accomplished together,” said Jon Damonti, in Botswana and Uganda, along with an additional president of the Bristol-Myers Squibb Foundation national program in Malawi,” said Dr. Giovanni Caforio, and vice president of Corporate Philanthropy at Bristol- chairman of the board of the Bristol-Myers Squibb Foundation and chief Myers Squibb Company. “Working together through Global HOPE, executive officer of Bristol-Myers Squibb Company. “This initiative we continue our commitment to increase access to health care in builds on 18 years of success of the Foundation’s SECURE THE FUTURE underserved communities across the world.” aspire.texaschildrens.org

18 NEW MIRACLES CREATE A HEALTHIER FUTURE

2016 TEXAS CHILDREN’S RADIOTHON RAISES MORE THAN HALF A MILLION DOLLARS

hen Desiree Bradley delivered their families and many Texas Children’s Center by providing funding for continued her daughter, she wasn’t sure physicians and caregivers. research to eliminate childhood cancer and Whow long the little girl would Texas Children’s employees gave for scholarships for college-bound pediatric survive because of an extremely rare genetic $4,000 to the cause. Executive leadership cancer patients and survivors. disorder called Jarcho-Levin Syndrome, “This event makes a huge difference, and it which affects the spine, ribs and respiratory tells our story,” said Jennifer Smart, manager system. Nine years later, however, Deonc in the Office of Development and program Bradley is a sassy, joyful girl who can director for the hospital’s Children’s Miracle periodically be seen bouncing down the Network Program. “We couldn’t do it without halls of Texas Children’s Hospital, where all these people who give of their time and she sees 13 different specialists who help talent. We are very grateful for everything they manage her condition. do for our patients and families.” “If Deonc were cared for anywhere else but Funds raised through the radiothon benefit Texas Children’s Hospital, I truly believe she Texas Children’s Cancer Center, the Legacy would not be here,” Desiree said. “So anything Tower and Texas Children’s Hospital I can do to help Texas Children’s be the best The Woodlands. place it can be, I’m willing to come out here “If Deonc were cared Christi Brooks with the New 93Q and and do.” for anywhere else but Country Legends 97.1 has participated in the The Bradley family was one of several Texas Children’s Hospital, I truly radiothon since its inception and said that patient families that participated in the 2016 believe she would not be here.” she has met so many families over the years Texas Children’s Radiothon. Hosted by Cox who have been touched by the “miracles” that – Desiree Bradley Media Group Houston, the two-day event was happen every day at Texas Children’s Hospital. held December 1 and 2 on the third floor of “Thank God we have a facility like Texas Children’s Pavilion for Women near matched those donations and added their Texas Children’s Hospital here in our back the Bistro Café. own, bringing the total amount given by yard,” Christi said. “This really is truly an Throughout the 48-hour period, people Texas Children’s employees to $9,000. The amazing place of miracles.” opened their hearts and their wallets and Snowdrop Foundation — which was started by Desiree agreed and said Texas Children’s donated $655,039 to the radiothon while Kevin Kline with The Q Morning Zoo on The is a home away from home for her and Deonc. listening to radio personalities from Houston’s New 93Q — made a donation of $150,000. The “Until you step through these doors, you Eagle (106.9 & 107.5), Country Legends (97.1) foundation is dedicated to assisting patients don’t understand just how special this place and The New 93Q (92.9) interview patients, and families at Texas Children’s Cancer really is.” ISSUE 4 – 2017

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CHILDREN’S MIRACLE NETWORK HOSPITALS 2016 TOP PARTNERS

Walmart & Sam’s Club vendor partners and Ace team dish by a panel of judges. The their annual Miracle Balloon Walmart and Sam’s Club have members. Ace Corporation public is invited to participate Campaign and Musket Corp’s supported Children’s Miracle and Retailers host a number of in judging the People’s Choice, fourth annual Drive for a Child Network Hospitals (CMNH) for regional fundraising events each where $10 gets guests a plate of event at Top Golf. 30 years. In 2016, Houston-area year including golf tournaments, BBQ from each team. Walmart stores and Sam’s Clubs an icon campaign, blue CMNH • Alspaugh’s Ace Hardware, Corner Store raised more than $700,000 Bucket Promotion, Change with locations in The Woodlands Corner Store has been a during their six-week Miracle Canister’s Change Round-Up and Kingwood, was the No. 1 CMNH partner for 20 years Balloon fundraising campaign World’s Finest Chocolate Candy multi-store retailer in the and now has over 180 locations in September. Program, CMNH Ornament country, raising over $124,116. throughout Houston and the Sales and BBQ events to raise • Central Ace Hardware surrounding area. Corner Ace Hardware funds locally. was the No. 2 store retailer in Store’s dedicated staff and Ace Hardware became a CMNH In 2016, Ace’s events in Houston the country, raising $58,585. customers helped raise partner in 1991. Participating raised over $445,000 for over $267,000 in 2016 for Ace Retailers — like the Greater Texas Children’s Hospital, and Love’s Travel Stops & Texas Children’s. Houston Area Ace Retailers the Houston market had several Musket Corporation Group, made up of 33 Ace stores ranked first and second in Love’s Travel Stops has been Kroger Co. Hardware retailers — raise fundraising in the country. a CMNH partner for over 15 Kroger Co. has helped raise money each year through their • Cypress Ace Hardware was the years. They were ranked No. 7 funds for member hospitals for Ace Cares for Kids program. No. 1 fundraising single store in on Forbes Magazine’s annual over 30 years. Kroger believes Their success stems from the the country, raising $66,239. listing of America’s largest in supporting charitable creative fundraising efforts of Cypress Ace hosts an annual privately held companies. causes that are important to its the Ace Hardware Foundation grilling contest — Grill Your Ace Along with their subsidiary customers and associates, who and generous contributions of Off — where 20 teams compete company, Musket Corp., Love’s raised over $220,000 for Ace retailers, Ace Customers, for the distinction of best grilled raised over $342,800 through Texas Children’s Hospital in 2016.

MEGA 101 HOSTS CHART-TOPPING RADIOTHON

CBS Radio’s Spanish Pop station, Mega 101 – KLOL, hosted its 6th annual Spanish-speaking Radiothon benefiting Texas Children’s Hospital on December 8 and 9. Radio DJs have raised more than $2.4 million from loyal listeners since they started this event, including over $405,000 raised during their 2016 broadcast. aspire.texaschildrens.org

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JAN AND DAN DUNCAN NEUROLOGICAL RESEARCH INSTITUTE USHERING IN A NEW ERA OF DISCOVERY

“Great science requires a lot of courage. Finding new paths means going into the unknown.”

– Dr. Huda Zoghbi, Director, Jan and Dan Duncan Neurological Research Institute

For the first several months of her life, Kayla Schwartz was a perfectly healthy baby girl. But when she was about nine months old, her parents, Roberta and Lee, began noticing the first unsettling signs of potential developmental delay. She couldn’t keep her food down. She didn’t seem to want to crawl. Some advised them just to wait, because surely she would grow out of it. Kayla’s initial diagnosis was inconclusive, but she began therapy at Texas Children’s to gain a foothold against the symptoms she was exhibiting. It was during this time that the Schwartz family finally received a definitive diagnosis: Rett syndrome. “At the time, most of the available information revolved around extreme cases — girls in wheelchairs, with breathing problems and gastric tubes, many of whom didn’t make it through adolescence,” Lee said. “When you first face that, it seems overwhelming.” Then came a phone call that gave them a new perspective. On the line was Dr. Huda Zoghbi, who spoke to them about the future — a future not of desperation, but of hope — because of the research that was happening in the field. Over the next several years, Texas Children’s became a partner to Kayla and her family, and by age three, she was walking. Today, she enjoys school, has many friends, wants to be a fashion model and is living a meaningful life. Through every milestone, Dr. Zoghbi has been there for the Schwartz family, reassuring them and giving them hope about the possibility that one day the neural pathways in Kayla’s brain can be restored.

Kayla, pictured here with her parents, Roberta and Lee, is also featured on the cover of this issue of Aspire. Hear more of Kayla’s story at aspire.texaschildrens.org/NRI.

ACCOMPLISHMENTS Identified mutation in the gene ATXN1, AND AWARD HIGHLIGHTS responsible for spinocerebellar ataxia Type 1,

1993 a deadly neurodegenerative disorder ISSUE 4 – 2017

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CHARTING A PATH THROUGH THE UNKNOWN

eurological disorders. They have names like Alzheimer’s, Parkinson’s, autism, epilepsy, Rett syndrome and Batten disease. N The symptoms and severity of the diseases vary, ranging from merely disruptive to utterly debilitating. Some of them rob the patient not only of their motor function and physical abilities, but also of their personality and identity. To date, there have been more than 600 distinct neurological disorders identified, with more being discovered every year. Determining the root causes for specific disorders remains a monumental challenge. Less than a generation ago, there was little hope at all for treating most of them, with many academic institutions conducting siloed research with limited or no collaboration whatsoever between scientists and clinicians. But much can change in a short time. Today more researchers are studying these diseases than ever before — looking for answers to previously unasked questions, searching for the tools to unlock the secrets of these diseases, develop new therapies and eventually find cures. And standing at the forefront of this movement is the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital.

BRINGING THE THE GLOBAL VERY BEST TOGETHER PREVALENCE OF NEUROLOGICAL DISEASE “The Jan and Dan Duncan Neurological Research Institute doesn’t belong just to Texas Children’s Hospital. It belongs to the world.” 600+ NEUROLOGICAL AND – Mark A. Wallace, President and CEO, NEUROPSYCHIATRIC DISORDERS Texas Children’s Hospital

1B+ PEOPLE he Jan and Dan Duncan Neurological Research Institute WORLDWIDE (NRI) was made possible by a succession of generous and Ttransformative gifts to Texas Children’s, the first from Cynthia 1 PERSON IN and Tony Petrello, and then from Jan and Dan Duncan, and most recently from Charif Souki. EVERY 6 When the NRI opened in 2010, the 13-story building came equipped with cutting-edge laboratories, open-concept workspaces, meeting rooms, vivarium space and nine shared core facilities that 300M provided investigators with access to tools and technologies too CHILDREN costly for individual labs to afford. Since that day, the NRI faculty has studied diverse problems, addressing neurodevelopmental, neurological and neuropsychiatric 50M questions using cross-species and interdisciplinary approaches. At AMERICANS the center of it all are the patients, who inform both research and clinical study.

Identified the gene MECP2 Was the youngest person ever elected to Received the Texas Women’s that causes Rett syndrome the National Academy of Sciences Hall of Fame Award 1999 2004 2008 aspire.texaschildrens.org

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JAN AND DAN DUNCAN NEUROLOGICAL RESEARCH INSTITUTE

In the six years since the doors opened, the outcomes have r. Huda Zoghbi was born been nothing short of extraordinary. and raised in Beirut, The remarkable work of the 25 accomplished faculty and 250 DLebanon, in 1955. In 1975, trainees and lab personnel who have been brought together she began her medical training there has surpassed the most ambitious expectations, earning at American University of Beirut. the NRI international esteem in the scientific community. Ask During her first year in school, civil any researcher, scientist or clinician at the NRI what sets it apart war erupted. It soon became too from other research institutes around the world, and they are dangerous for her to make even likely to give some variation of the same answer: The NRI was the short trip to campus, so she specially and carefully designed to foster conversation and and fellow students lived on the collaboration among the faculty and trainees who work there — campus instead. all thanks to the vision and leadership of Dr. Zoghbi. After her brother was injured, her family insisted they There are geneticists, biomathematicians, biochemists, leave Lebanon to live with relatives in the United States. structural biologists, molecular biologists, neuropathologists, She performed exceptionally well at Meharry Medical theoreticians and many more, all working together alongside College, graduating in 1979. But perhaps because of her clinicians, sharing data and spurring on dynamic interactions unorthodox background — having come from overseas and new discoveries. after only one year in medical school and starting off-cycle “I can honestly say that this is the best environment I’ve at Meharry — Dr. Zoghbi was passed over by several Ivy ever been a part of,” said Dr. Roy Sillitoe, director of the League medical schools. Neuropathology Core Laboratory at the NRI. “The interactions Dr. Ralph Feigin, then physician-in-chief at Texas Children’s here are organic. Immediately next door to my office is a Hospital, saw something truly special in her and recruited her. neurosurgeon. Next door to him is a human geneticist. Next It was during this time that she was drawn to the study of door to him is a molecular biologist. In that one hallway, neurological disorders. But she found herself heartbroken by we have people coming from very different areas trying the children she was seeing in the clinic. to understand neurological disease, specifically pediatric So she began considering another option: research. She neurological disease, and our collective interests and went to Texas Children’s own Dr. Arthur Beaudet, a giant in the specialties all come to fruition in the lab. There’s no single world of genetics, and asked if she could work in his lab. This place I’ve ever seen where you can accomplish so much.” set her on the path to becoming a brilliant physician-scientist. “There’s not a single day that goes by where a new gene is not As a researcher, she was able to use her unique clinical identified or a new mechanism is now being understood,” said perspective to enrich her work and the lives of patients. Dr. Christian Schaaf, a medical geneticist at the NRI. “Being In 1993, Dr. Zoghbi co-discovered the gene for here speeds up the whole process of discovery.” spinocerebellar ataxia, a devastating disease that affects Additionally, the NRI leads a collaborative, multi-institutional balance and speech … and then the Math 1 gene causing effort within the Texas Medical Center with institutions such as deafness … and then the gene responsible for Rett MD Anderson Cancer Center, UT Health and Rice University. syndrome, the second-leading cause of intellectual disability “It’s a unique setting in an academic world where we get to in females. These would prove to be watershed discoveries pair up with such diversity, and especially including a clinical that would reveal many of the mechanisms for other facet to the research institution,” said Dr. Benjamin Arenkiel in neurological diseases. the Department of Molecular and Human Genetics at the NRI. Today, Dr. Zoghbi is not only director of the Jan and Dan “You get this idea that anything is possible.” Duncan Neurological Research Institute, she is one of the world’s leading neurogeneticists.

On April 10, more than 600 guests attended The Forum Luncheon at the Marriott Marquis in downtown Houston to meet internationally renowned neurogeneticist Dr. Huda Zoghbi and learn about the remarkable breakthroughs being made at the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital. ABC13 Anchor Melanie Lawson moderated the presentation.

Awarded the Received the March Awarded the Vanderbilt Prize in Biomedical Science, Gruber Neuroscience Prize of Dimes Prize in the Javits Neuroscience Investigator Award, and the Developmental Biology Mortimer D. Sackler, M.D. Prize for Distinguished 2011 2014 2015 Achievement in Developmental Psychobiology ISSUE 4 – 2017

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A team of researchers headed by Dr. Ignatia Van Den Veyver, NRI investigator at the NRI and director of Prenatal and Reproductive Genetics at Texas Children’s Discoveries and Pavilion for Women, has discovered that mutations in an Breakthroughs early embryonic development gene may provide some clue to Since the NRI opened in 2011 … unexplained female infertility and recurrent pregnancy loss.

A 2016 study published from A study carried out by a team the laboratory of Dr. Huda of researchers led by Dr. Zoghbi outlines a key regulator Christian Schaaf has linked of two important proteins, the ABL1 gene, well known for alpha-synuclein and tau, that its association with cancer, to have been implicated in various a genetic disorder that causes neurodegenerative diseases, heart defects and skeletal including Parkinson’s and conditions. Alzheimer’s.

A large study led by Dr. Joshua A study from the lab of Dr. Shulman has revealed five Benjamin Arenkiel recently strong candidate genes brought to light the fascinating for Parkinson’s disease. possibility that activating or Researchers performed genetic inhibiting the neurons in the testing and analysis on 1,148 cholinergic basal forebrain unrelated Parkinson’s cases feeding circuit could help before narrowing their search regulate food addiction and based on functional relevance. food aversion behaviors.

THE JAN AND DAN DUNCAN NEUROLOGICAL RESEARCH INSTITUTE A PROMISE CAMPAIGN PRIORITY

Our promise is to advance research of neurological and neuropsychiatric disorders and ultimately alleviate the impact of these devastating disorders “Philanthropy is absolutely crucial. It on human lives. allows researchers to think outside the box and do things a little more boldly. The NRI’s overwhelming success in just support that will secure the future of the NRI We can tackle bigger questions. And six years has positioned Texas Children’s and help recruit and retain leading experts, in Houston, I have seen the community Hospital to take the next step of translating expand existing lab space, and add state-of- really embrace research, and I am discoveries made in the laboratory into the-art equipment. always impressed by that.” patient therapies. Through the Promise To learn how you can support the NRI and Campaign, philanthropy will help us move other Promise Campaign priorities, please – Dr. Benjamin Arenkiel in this direction by providing endowment visit texaschildrens.org/promise.

Recognized with The Shaw Prize in Life Science and Medicine, the Awarded the Breakthrough Prize inaugural Mechthild Esser Nemmers Prize in Medical Science at in Life Sciences and the Canada Northwestern University, and the Jessie Stevenson Kovalenko Medal Gairdner International Award 2016 2017 aspire.texaschildrens.org

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TEXAS CHILDREN’S Toss forHEART CENTER October 2016 Houston Polo Club

A. B. ore than 500 guests donned their boots and Texas-chic apparel at the Houston Polo Club for the 4th annual Toss for Texas Children’s Heart Center event, which raised more Mthan $180,000. Texas Children’s Hospital is ranked No. 1 in cardiology and heart surgery by U.S. News & World Report. The bean bag tournament featured light bites and cocktails by A Fare Extraordinaire and a special C. performance by country music singer, Gary P. Nunn. The event was chaired by Staci and John Donovan and Brooke and Scott Hutson, both of whom have children who receive expert care at Texas Children’s Hospital and at the Heart Center. The “Toss” trophy was presented at a special awards ceremony to conclude the evening’s festivities.

D. E. TEXAS CHILDREN’S HEART CENTER

Ranked in the#1 nation by U.S. News & See more event photos at World Report aspire.texaschildrens.org/ TossforTCH2016 F. A. Hien and Theresa Le B. (From left) Krista White, Jenny Petru, Miriam Petru C. (From left) John Donovan, Staci Donovan, Brooke Hutson, Scott Hutson John Nickens, Dr. Carrie Altman, Dr. Paul Checcia D. (From left) Emma Tramuto, Keegan Thompson E. (From left) Ross Canion, Sarah Canion, April McMayon, Jerad McMayon F. Gary P. Nunn Save the for the 5th Annual Toss for Texas Children’s Heart Center on Thursday, October 26, 2017. Date ISSUE 4 – 2017

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EVENT CHAIRS The Staci and John Donovan Brooke and Scott Hutson Donovan “We felt so blessed to have a 2016 HOST COMMITTEE Kelly and Brian Adams Family world-renowned heart center in Emily and Davis Adams Christina and Matthew Almy our city and to have access to the Carolyn and David Anderson* Julie and Seth Barrett best pediatric cardiovascular Taylor and Clint Bawcom surgeon in the world, Lisa and Kolby Beich Rebecca and Thom Brandt Dr. Charles Fraser.” Kim and Hugh Byrd Allison and Mark Callender – Staci & John Donovan Sarah Jane and Ross Canion Debbie and Kent Chenevert Kelly and Jay Cliburn Kourtney and Andy Cyrus Claire and David de Roode Mary Rebecca and Cody Dick hen Staci and John Donovan attended surgery so John William could grow bigger Jean-Marc Donics the 2013 Toss for Texas Children’s Heart and stronger. Diane and John Donovan Center event, Staci was pregnant with When John William was just 18 months old, Leslie and Michael Fertitta* Tom and Carrie Field John William, the couple’s third child. After he Dr. Fraser performed open heart surgery, W Lindsay and Will Fox was born, a routine six-week appointment which was a huge success. After the operation, Lesli and James Gietz revealed that he had a heart murmur. Physicians at Staci and John were amazed by the incredible, Ashley and Scott Goforth Texas Children’s Heart Center diagnosed him with an compassionate care John William received while Cari and John Griggs* Ashley and Michael Hanna atrioventricular canal defect — there were two holes in the cardiovascular intensive care unit. Rob and Lori Hendricks between the heart’s chambers and a problem with his Today, he is an active, healthy and thriving Lizzie and Charlie Hermes mitral valve, which regulates blood flow to the heart. little boy, and Staci and John are so grateful for Keri and Michael Herrin Melissa and Jason Holton Texas Children’s Hospital Surgeon-in-Chief Dr. Texas Children’s Heart Center’s amazing team of Lisa and Brad Johnson Charles D. Fraser, Jr., and Dr. Carolyn Altman, a doctors and nurses who helped give their son a Angela and Jody Johnston fetal cardiologist, recommended waiting a year for second chance at life. Allison and Zach Jordan Kristie and Kyle Kafka Libby and Matt Kafka Amy and Jeff Kappes Elizabeth and Dash Kohlhausen The Allison and Geoff Leach Cheyanne and Brandt Leibe Hutson “We are so grateful not Blair and Bryan Loocke Katie Lowe Family only to have had our daughter's Courtney and Will Lundquist Emily and Louis Macey life in the hands of world- Liz and Robert Mann Devin and Ryan McCord renowned fetal intervention Ann and Frank McGuyer specialists, but also for their Alison and Charlie Meyer Lauren and Scott Mills sincere care and personal touch Lauren and Brad Morgan Kellie and Dwayne Morley as they treated us like family.” Susan and Charlie Neuhaus Maggie and John Nicholson – Brooke & Scott Hutson Rachel and John Nolan Heidi and Tobin O’Donnell Chelsea and Matt Pacey Lauren and Will Page Jett and Will Petit Sarah and Richard Punches efore she was ever born, Caroline Hutson A team of intervention specialists gave Caroline Leigh Anne and John Raymond experienced the miraculous care that the an in utero blood transfusion to fight the anemia, Amy and Mike Reeves* experts at Texas Children’s Hospital provide but they still feared that her heart had become so Jennifer and Steve Roberts Kelley and Jeffrey Scofield every day. While Caroline was in utero, her mother, stressed that she wouldn’t survive the night. But ß Jill and Ben Stamets Brooke Hutson, contracted parvovirus B19 — a Caroline fought. A week later, another ultrasound Andrea and Paul Stewart virus that causes fifth disease in children. While revealed that the virus had also caused bleeding John and Meredith Stilwell the virus is harmless to adults, it can be fatal to in her brain. Physicians leapt into action to combat Keegan and Phil Thompson Courtney and Bill Toomey unborn children. both the anemia and the bleeding. Caroline Emma and James Tramuto Brooke’s symptoms took her and her husband, needed close monitoring for the next two months. Laura and Chris Volke Scott, to Texas Children’s Pavilion for Women, where Astonishingly, her anemia, brain bleed and heart Reed and Billy Wareing an ultrasound confirmed that the virus had caused condition all healed. Brooke carried Caroline to full Laura and Jamie Weaver Haley and Barrett Webster Caroline to become anemic. Brooke was immediately term, and her doctors agree that she was truly a Helen and Philip Wright transferred to Texas Children’s Fetal Center to begin miracle baby. *Denotes past chair treatment that would save Caroline’s life. aspire.texaschildrens.org

26 THE FORUM LUNCHEON HOUSTON HIGHLIGHTING ADVANCEMENTS IN PEDIATRIC SURGERY

A.

Community members attending The Forum Luncheon Houston last September got to meet some of the top surgical leaders at Texas Children’s Hospital, learn about the incredible ways they are making history in pediatric surgery, and hear about their vision for the future of the hospital’s surgical enterprise.

ollowing lunch and remarks from President and CEO “When I came down here and learned about what is going on at Mark A. Wallace about the steady and rapid growth of Texas Children’s and the future trajectory of the organization, FTexas Children’s — including the Department of Surgery I knew I had to be here,” said Dr. Weiner, who recently joined — Senior Vice President Mallory Caldwell moderated a panel Texas Children’s from New York University where he led a world- discussion with Surgeon-in-Chief Dr. Charles D. Fraser, Jr., Chief renowned neurosurgery program. “The leadership, the can-do of Otolaryngology Dr. Ellis Arjmand, Chief of Plastic Surgery attitude and the drive to grow as a world-class institution providing Dr. Larry Hollier and Chief of Neurosurgery Dr. Howard Weiner. high-quality, attentive care to all children is very exciting.”

Caldwell focused on questions that highlighted why Texas Children’s When Texas Children’s Hospital opened its doors in 1954, it did so Department of Surgery is bigger, better, faster and stronger than any with the one and only pediatric surgeon in the city of Houston. Today, in the nation, and how the core mission of the department is to have Texas Children’s Hospital has more than 90 surgeons and is one of the depth and breadth of expertise to deliver a surgical solution for the first two hospitals in the U.S. to be verified as a Level I Children’s every child in need of one. Surgery Center by the American College of Surgeons.

Topics discussed included the importance of outcomes measurement Texas Children’s surgeons have performed more than 350 heart and how that work is approached at Texas Children’s; the fact that transplants, making the heart transplant program one of the most Texas Children’s expertise is in treating common illnesses as well experienced and active programs in the nation. They launched as complex, rare conditions; the strength and unique value in the an MRI-guided laser ablation surgery — the first of its kind in the department’s many multidisciplinary teams; and the hospital’s world — for epilepsy treatment and also recently performed a ability to recruit the best and brightest as we continue to grow and 26-hour procedure to separate conjoined twins in one of the most strengthen our team. difficult such cases to date. ISSUE 4 – 2017

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B. C.

D. E.

A. (From left) Mark A. Wallace, Mallory Caldwell, Dr. Charles D. Fraser, Jr., “Every time we have expanded, it has been successful because we’ve done Dr. Ellis Arjmand, Dr. Larry Hollier, Dr. Howard Weiner B. Forum Luncheon it for the right reasons,” Dr. Fraser said. “We are filling a specific need.” guests wait for the program to begin. C. (From left) Mark A. Wallace, Josephine Abercrombie, George Robinson IV D. (From left) Stella The need for quality pediatric surgical care continues to grow and is a Swallick, Carol Ann Demaret, Karen Vetter E. Forum Luncheon guests factor that convinced hospital leadership to construct a new Legacy Tower, pause for a photo. F. (From left) Lindsay Holstead, Mary Jones, Josephine Abercrombie G. Mary Martha and Joel Staff H. (From left) Dr. Charles D. which will allow Texas Children’s to treat even more children who need Fraser, Jr., Dr. Ellis Arjmand, Dr. Larry Hollier, Dr. Howard Weiner complex cardiac, critical and surgical care.

F. G.

“When I came down here and learned about what is going on at Texas Children’s and the future trajectory of the organization, I knew I had to be here.” – Dr. Howard Weiner, Chief of Neurosurgery

When the new building is complete, it will house much-needed pediatric and cardiovascular intensive care beds, as well as new operating rooms with the latest technology. It will also house the new and expanded Heart H. Center, including the outpatient clinic, cardiovascular operating rooms and catheterization labs.

Ultimately, Wallace said, the expansion will allow Texas Children’s Hospital to continue to provide the best possible family-centered care and best outcomes for the nation’s sickest children who come to us for help. See more event photos at aspire.texaschildrens.org/ ForumLuncheonHouston2016 aspire.texaschildrens.org

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PROFILES IN PHILANTHROPY

PROVIDING HEALING AND COMFORT THROUGH MAN’S BEST FRIEND JUDY AND BOBBY SHACKOULS

Starting this past October, 1,500 service dogs, making the unconditional love and working with pediatric patients Texas Children’s Hospital both individual and hospital comfort these animals can alongside her handler, Sarah patients and families may have placements. Together, the provide throughout the Herbek, a Child Life specialist noticed a new employee walking two organizations gathered healing process.” and animal-assisted therapy the halls wearing a bright green benchmarking information “Elsa provides goal-oriented coordinator at Texas Children’s. vest emblazoned with the and worked on program therapeutic interventions to Then, just like any new Texas Children’s logo. But she development. And this past patients, families and staff,” said employee, Elsa spent the first isn’t your typical employee. December, the Development Mary Tietjens, assistant director few weeks at Texas Children’s She’s furry, has four legs and team and Child Life leadership of Clinical Support Services at getting acclimated to her new is only two years old. presented the facility dog Texas Children’s. “She offers surroundings with Sarah before She’s Elsa, Texas Children’s program to the Shackouls family, support to patients and families seeing patients in the West new therapy dog and part of the who graciously decided to who may be having trouble Tower at the Texas Medical Facility Dog Program developed support the program. coping with hospital stays, a Center Campus. by Texas Children’s Child Life “It is our hope that the new diagnosis or other traumatic The positive response team. The program uses animal- support and love these therapy experiences. She also provides to Elsa’s arrival has been assisted therapy to enhance animals provide will help distraction and motivation to overwhelming. the emotional well-being of countless children in making patients undergoing certain “We are so excited to finally pediatric patients by reducing their treatment and recovery medical procedures.” bring this program to fruition their anxiety, perception of pain journeys brighter,” Judy and During her training at Texas Children’s Hospital,” and fear of hospitalization. Bobby Shackouls said. “We with Canine Assistants, Tietjens said. “This was a In the year prior to the look forward to watching this Elsa demonstrated strong collaborative team effort and program’s launch, the Child program grow into something competencies geared toward would not have been possible Life team collaborated with even bigger because every working in a pediatric hospital without the support of the Canine Assistants, a non-profit child, no matter their age, environment. She spent Shackouls family and the hard organization in Atlanta, GA, gender, background or health additional time training at work of everyone involved.” that has matched more than condition, deserves to feel Children’s Hospital of Atlanta

“We believe in the hospital’s mission of healing children. This program not only provides children with a sense of companionship but has proven to be a significant resource in treating patients who may be physically, socially, emotionally or cognitively challenged. Elsa provides a sense of fulfillment to the children in a way that only the love, affection and attention a therapy dog can provide.” – Bobby and Judy Shackouls, Promise Campaign donors ISSUE 4 – 2017

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FPO

Texas Children’s new four-legged tail-wagging that Elsa was excited employee is making a big difference in to help! the lives of our patients. Katie Schommer, “The patient stood to pet Elsa and then “It is our hope that the who also works with Elsa, shared the initiated a game of fetch. The physical story of a recent patient encounter. support and love these therapists were so proud to see the boy “Elsa and I were walking by therapy animals provide standing on both legs because that’s what the physical therapy gym on the will help countless they had been trying to get him to do for rehabilitation unit and overheard a children in making their 15 minutes! Elsa continued to check in to patient becoming frustrated with doing provide encouragement and motivation for treatment and recovery his therapy,” Schommer said. “When we this boy to continue with his rehabilitation walked by, his whole attitude switched, journeys brighter.” therapy. She also enjoys a good game of and he called out excitedly, ‘Elsa is – Judy and Bobby Shackouls fetch whenever she can get it in! Each here!’ His physical therapist asked time Elsa came, this patient’s face lit up if Elsa could join in for the therapy with excitement as she joined his therapy session. It was clear from her insistent sessions and made them much more fun.” aspire.texaschildrens.org

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FRASER’S FRIENDS CELEBRATING SURGICAL ACHIEVEMENTS AT TEXAS CHILDREN’S HOSPITAL

October 2016

Guests gathered at the beautiful home of Bailey and Pete McCarthy for a special evening with Fraser’s Friends, a passionate philanthropic group dedicated to advancing patient care, education and research for the nine divisions of Texas Children’s Hospital’s surgical enterprise: Congenital Heart, Dental, Neurosurgery, Ophthalmology, Orthopedic, Otolaryngology, Pediatric General Surgery, Plastic Surgery and Urology.

n a program featuring astonishing Bailey grew up just down the street from on the child’s tailbone. After a re-scan, it accounts of the work being done at the Frasers and spent countless hours of was determined that their daughter had I Texas Children’s Hospital, Surgeon- her childhood in their home with Laura, the sacrococcygeal terratoma (SCT), a tumor in-Chief Dr. Charles D. Fraser, Jr., for whom Frasers’ oldest daughter. Bailey recalled how that develops during infancy in only one of Fraser’s Friends is named, confidently even as a child, she knew that what Dr. Fraser 35,000 births. Rapid growth of the tumor can delivered his vision for the hospital’s future. did at the hospital was very important. siphon blood from the fetus, putting strain “Texas Children’s Hospital is poised to be the Years later, while living in Chicago, Bailey on the heart or causing an overabundance of best,” he said. “Other children’s hospitals have and her husband, Pete, discovered they were amniotic fluid, all of which can threaten the had their time. It’s Texas Children’s time to be development and life of the child. Time was the leader.” A. against them, and Bailey and Pete were told Citing incredible surgical achievements in that their baby needed life-saving surgery as 2016 (a staggering 30,810 surgeries and 87 soon as possible. transplants, including 27 heart transplants), With nowhere else to turn, Bailey made Dr. Fraser explained that more and more, a desperate call to her childhood friend, Texas Children’s is being recognized as having Laura, who told her to call her father, one of the preeminent surgical departments Dr. Fraser. The next day, Bailey and in the country. Pete were on their way to Houston — He shared the stories of Ella Fondren and and Texas Children’s Hospital. Lauren Dunwoody, two little girls who, if not for For weeks, Bailey and the baby were the expertise and ingenuity of the physicians carefully monitored by nursing and surgical and surgeons at Texas Children’s, might not teams. The condition required a level of have survived complex, life-threatening expertise found in few hospitals in the country, medical situations. He then turned the expecting their first child. They arrived to their and Texas Children’s had recently performed program back over to Bailey McCarthy, 20-week ultrasound giddy with anticipation a successful SCT surgery. Bailey and Pete who not only hosted the event, but also to learn if their baby was a boy or a girl. But returned to Chicago to consider their options. experienced as a parent the life-saving care the excitement quickly turned to concern But by week 28, the tumor had doubled in size, that Texas Children’s provides. when the technician found dark formations and fear of anemia in their unborn baby had ISSUE 4 – 2017

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B. C. D.

E. F.

“That’s the gift Texas Children’s is able to give families. We have to stop and remember how lucky we are.”

– Bailey McCarthy

A. Dr. Charles D. Fraser, Jr. G. H. B. Michael C. and Carol Linn C. (From left) Monica and Grant Dunwoody, Faye Dunwoody D. (From left) Kelli Fondren, Chase Fondren, Keni Fondren E. (From left) Pete McCarthy, Bailey McCarthy, Mike Bonini, Meg Goodman F. Leslie and Michael Fertitta G. Cathy and Joe Cleary H. (From left) Luke McConn, Christiana McConn, Vivien Caven, Scott Caven

See more event photos at aspire.texaschildrens.org/FrasersFriends

grown. They decided to return to Houston to and Pete feared for their child’s life — and Center campus, and the all-important deliver their daughter. once again Texas Children’s was there to necessity to raise funds expressly for the Grace McCarthy was born at 39 weeks via provide expert care and ensure that Harry recruitment and retention of the world’s C-section. Now the matter turned to the safe would return to good health. finest doctors, surgeons and scientists. removal of her tumor. Three days after the birth, “That’s the gift Texas Children’s is able to give “Mike and I made a promise: to devote world-renowned surgeon Dr. Oluyinka Olutoye families,” Bailey McCarthy said. “We have to ourselves to raising the funds necessary to successfully performed the operation. After two stop and remember how lucky we are.” make it possible for Texas Children’s Hospital weeks in the neonatal intensive care unit (NICU), To close the event, Carol and Michael to always have the capacity to accept Grace was released, and the McCarthys went Linn, chairs for Promise: The Campaign for critically ill children who need our help,” home for the first time as a family. Texas Children’s Hospital, spoke to guests Carol Linn said. Their journey with Texas Children’s didn’t about the hospital’s continuing need for Texas Children’s promise has always end there. Two years later, Bailey and Pete philanthropic support. They specifically been to provide care for all children who welcomed their second child, Harry, after cited two crucial Promise Campaign need it. With the support of individuals and a normal pregnancy. But after just three objectives: the construction of a world- philanthropic groups like Fraser’s Friends, months, Harry exhibited symptoms of class pediatric tower that will expand Texas Children’s will continue to carry out neuroendocrine cell hyperplasia of infancy Texas Children’s critical, surgical and that mission and to offer the finest pediatric (NEHI), a rare lung disease. Once again Bailey cardiac care services at the Texas Medical health care available. aspire.texaschildrens.org

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CELEBRATION OF CHAMPIONS BENEFITING TEXAS CHILDREN’S CANCER CENTER

October 2016 River Oaks Country Club

ong-time Texas Children’s supporters Sidney Faust, Elsie Eckert, Judi McGee and Scott Basinger chaired their ninth annual Celebration of Champions Levent, raising $260,000 for Texas Children’s Cancer Center. FOX 26 news anchor, Melissa Wilson, emceed the event and helped Texas Children’s patient Crew Cones “light” the Torch of Hope to kick off the event. Guests enjoyed watching the $260,000 2016 Community Champions strut down the runway in fall fashions from Saks Fifth raised for Avenue while escorting our special Patient Champions dressed in the latest fashions from Dillard’s. Texas Children’s Plans are underway for a special 10th anniversary celebration on Friday, October 6, Cancer Center 2017, at River Oaks Country Club.

A. ISSUE 4 – 2017

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2016 Community Champions!

Cathy and Joe Cleary Jo and Jim Furr Diane and Harry Gendel Susan and Dick Hansen Betty and John Hrncir Mady and Ken Kades Carmen and Butch Mach Joanna and Brad Marks Trini Mendenhall Macy and Mayes Middleton B. D. Sharon and Douglas Owens Dr. Timothy Porea Nathalie and Charles Roff Lindy and John Rydman Sharleen and Ron Walkoviak Dancie and Jim Ware Jane and Jim Wise

Event Chairs

Sidney Faust Judi McGee Scott Basinger Elsie Eckert

See more event photos at aspire.texaschildrens.org/Champions2016 C.

A. Event chairs (from left to right) Sidney Faust, Judi McGee, Scott Basinger, Elsie Eckert and 2016 Patient Champions B. A Patient Champion gets ready for the runway C. A Patient Champion strikes a pose D. Excited Patient Champion waits for the show to start E. Ron and Sharleen Walkoviak and Patient Champion give a thumbs-up F. (From left) Scott Basinger, Sidney Faust, Judi McGee, Elsie Eckert E. F. aspire.texaschildrens.org

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Miraclesare on the Way The cries of my seven-month-old son, Keller, awakened me in the early morning hours just after my 40th birthday. My husband, Reggie, and I attempted to comfort him, but he would not stop crying. Around 7:00 a.m. that day, June 12, 2011, we took him to the St. Luke’s Emergency Center near our home in The Woodlands. I knew something was wrong, and by the time we arrived at St. Luke’s, his lips had turned blue.

fter assessing Keller, the Emergency Center staff after he had passed the 21-day surveillance period from the promptly arranged for his transfer to Texas Children’s possible time of his exposure to chickenpox at his daycare. Hospital Texas Medical Center Campus via the We waited, and as the clock ticked, Keller’s health declined. KangarooA Crew — a specialized transport service for The next day, one of the critical care specialists gently said, critically ill babies and children. “Keller is the sickest child in the pediatric intensive care unit I rode with him on what seemed like the longest and (PICU) right now, and we are preparing for his other organs scariest 40-mile trip ever. Knowing that my son needed the to start shutting down.” expert care Texas Children’s provides to the sickest children Nothing prepares a parent to hear that your son may die. was frightening to me, but the comfort of the Kangaroo Crew We wailed. Then, we dropped to our knees and prayed. The staff encouraged me so much that I sang to my sweet baby hospital staff comforted us again in that awful moment boy along the way. when hope seemed dim. The medical staff at Texas Children’s intubated Keller “I vigilantly prayed and read the Bible out loud to Keller shortly after we arrived at the hospital. The examining all night,” Reggie said. “Family and friends also prayed.” physician diagnosed him with asthma, a collapsed lung On June 14, Keller was able to receive oral steroids. His and double pneumonia. The news shocked Reggie and me, body responded well to the medication, and he showed because Keller had seemed perfectly healthy the day before signs of improvement a little each day. We watched a miracle and had no prior health issues. take place as health returned to his small body. What a Unfortunately, the news got worse. The oral steroids Keller precious gift it was for my husband to finally hold our son needed could not be administered for another 48 hours — again on June 19 — Father’s Day. ISSUE 4 – 2017

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“Knowing that the same level of pediatric care ... is now available to us much closer to home at Texas Children’s Hospital The Woodlands gives us such peace of mind.”

— Kristina Gray

“The staff was so kind and personable. It felt like a bunch of friends were with us, watching over our child.”

— Reggie Gray

Keller remained in the PICU for one more week. I never asthma and is on a daily treatment regimen, but he has left the hospital and was grateful for access to the on- never had to go back to Texas Children’s for critical site Ronald McDonald House, where we could eat meals, care. Perhaps because of the wonderful doctors he take showers and lie down in a bed. The greeting cards has interacted with his entire life, he wants to be a created by family and friends through the hospital’s online doctor someday. greeting card program also brought us comfort and Reggie and I are so thankful for Texas Children’s. encouragement during this tough time. Knowing that the same level of pediatric care we From our first interaction with the received at the hospital’s Main Campus in the Kangaroo Crew, we knew Keller was in good Texas Medical Center is now available to hands — and so were we. An entire team us much closer to home at Texas Children’s of family-centered pediatric specialists Hospital The Woodlands gives us such came together to consistently provide peace of mind. Our experience with Keller compassionate, high-quality care. They let strengthened not only our faith, but also our us listen in on rounds, ask lots of questions devotion to Texas Children’s. We now serve and advocate for our son. as Ambassadors to tell others about this “The staff was so kind and personable,” Reggie wonderful place where miracles happen said. “It felt like a bunch of friends were with us, and to raise awareness and funding that will help watching over our child.” Texas Children’s continue providing the best care Today, Keller is a healthy 6-year-old boy. He still has to all children in need. aspire.texaschildrens.org

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mbassadors for Texas Children’s Hospital is a included Candi and Gerald Glenn, Vicki and Michael vibrant group of like-minded individuals who share Richmond, Johnna and Ryan Edone, Tracey and Sean Aa commitment to the hospital’s mission. Through O’Neal, Rachael and Mark Terry, and Carol and Phil active social engagement and generous philanthropic Garner. These events raised more than $600,000 for giving, they serve as a strong voice for children and women Texas Children’s Hospital. in need of the most specialized health care available. In addition to raising funds, Ambassadors also Each year, Ambassadors raise significant funds for the participate in a wide array of events, such as hospital’s area of greatest need. Now that Texas Children’s Ambassadors On Call luncheons — which feature has expanded its world-class care both at the Texas Texas Children’s experts and offer guests an Medical Center campus and in the communities north of opportunity to see the hospital’s world-class facilities Houston, the need for support is greater than ever. That’s firsthand — and annual favorites like Family Fun Day why last year, Ambassadors expanded their reach to and the Holiday Party. Ambassadors also make use meet that need with the formation of Ambassadors for of special Navigation Line services for assistance Texas Children’s Hospital The Woodlands. with referrals, appointments, and health and safety Throughout 2016 and early 2017, Ambassadors have information — an invaluable resource for parents and held numerous kick-off events in private homes. Hosts grandparents alike.

D. E.

A. B. C.

F. G. H. I. J.

AMBASSADORS CELEBRATE THE HOLIDAYS AND A. (From left) John and Cari Griggs and Sarah and TEXAS CHILDREN’S IN THE WOODLANDS AND HOUSTON Gregg Snyder B. Dawn and Richard Rawson DECEMBER 2016 C. Nicole and Will Murphy D. Missy and Wayne Herndon E. Coco Mahoney and Noelle ore than 250 revelers gathered at the on behalf of Ambassadors for Texas Children’s Jahncke home of Promise Campaign co-chairs Hospital The Woodlands. F. Kirby and Scott McCool MJudy and Glenn Smith for the inaugural Sarah and Gregg Snyder hosted more than 400 G. (From left) Hollis Grace, Ambassadors for Texas Children’s Hospital The guests at their Houston home for the seventh annual Carolyn Anderson, Mary Groves Woodlands Holiday Party. Ambassadors Holiday Party. Promise Campaign H. Jennifer and Chris LaPorte Michelle Riley-Brown, executive vice president co-chairs, Cari and John Griggs, accepted the I. Brooke and Scott Hutson of Texas Children’s Hospital and president of annual check, which totaled more than $2.1 million, J. (From left) Judy Smith, Michell Riley-Brown, Glenn Smith Texas Children’s Hospital The Woodlands, and shared why giving to Texas Children’s is so welcomed attendees and shared the success of the important.

new hospital’s outpatient services thus far. Following More than 20 bins of toys, games Become an Ambassador today at personal remarks from Glenn Smith, a check for and art supplies were donated to the ambassadors.texaschildrens.org more than $1 million was presented to Riley-Brown Child Life team from the two parties. ISSUE 4 – 2017

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AMBASSADORS AMBASSADORS ON CALL LUNCHEONS Q&A WITH TEXAS CHILDREN’S EXPERTS

Medical Marijuana: Social Cruelty, Cyber Miracle or Myth? Citizenship and Building a Community of Connection Dr. Christopher Greeley, Chief, Dr. Amy B. Acosta, Adolescent Section of Public Health Pediatrics Medicine Section

As chief of the Section of Public Health Pediatrics, Dr. Acosta is a licensed psychologist at Texas Children’s and Dr. Greeley works with state and local agencies to study and currently provides mental health services through Texas Children’s pilot strategies, interventions and policies directed toward inpatient adolescent clinic. Her clinical specialties include eating addressing adversity and strengthening resilience for disorders, body image concerns, and anxiety and depression, while children and their families. her academic and research interests focus on bullying, parenting in the digital age and digital wellness.

Q: What is a cannabinoid? government approval. A: A cannabinoid is an There’s only one legal grower Q: How do you know when a at 3:00 when we went home. active substance found in of medicinal marijuana in specific behavior is bullying? There’s this idea that with marijuana. The cannabinoid the country, and that’s the A: What one person perceives today’s teens, stress is ongoing most people are familiar with University of Mississippi. So as bullying or an act of and is being broadcast out to a is tetrahydrocannabinol, that’s the only place that can harassment, another person larger complex social network. or THC. Though THC is the guarantee quality control or might not. People’s feelings main ingredient in marijuana, how much THC is in a dose. can be hurt by something Q: Is there a personality there are 60 to 70 other active This also means that marijuana that was unintentional, like type that tends to be more cannabinoids. hasn’t been studied enough. So a joke gone wrong. But the victimized? though there appear to be some three criteria prevalent in A: What we know is that a child Q: How long have people been interesting benefits, we still just instances of bullying are who has been bullied is more using marijuana for medical don’t know enough about all of intentionality, repetition at risk to bully others. And if purposes? the different cannabinoids in and power imbalance. For you think of that more broadly, A: Marijuana has been used in marijuana and their effects on example, when we talk about that could even mean at home. treatments of various kinds in the human body. peer victimization, this would Maybe the person who’s many different cultures dating be repeated harassment, an hurting or bullying a child is a back to Old Testament times. Q: If given the opportunity imbalance of power in the parent or family member. So Ancient Chinese writings from to participate in a medicinal relationship and the intention then that aggression comes 2700 B.C. discuss its healing marijuana study, what would to cause harm. And that can be with the child to school. And properties. Egyptians around be your focus? either verbal or nonverbal, and that can have long-term 1500 B.C. used it for something A: First, I would research its can include exclusion of the physical and mental health resembling pinkeye. And effectiveness in the treatment victim. effects. It hurts everybody. Romans documented using it of childhood epilepsy and for arthritis pain around 79 A.D. seizures. I think that’s where the Q: What is cyberbullying? Q: What kinds of health biggest potential public health A: Cyberbullying is problems can stem from Q: What are some of the benefit lies to be able to make harassment that occurs bullying? issues hindering medicinal inroads for children and their online, and it happens most A: Obviously bullying can have marijuana research? families. I also think it would frequently among peers. One a negative impact on health, A: Marijuana is a Schedule be worth exploring potential of the biggest differentiators especially over time. It can 1 drug, meaning it can’t be benefits for autism. between cyberbullying and cause depression, anxiety, studied without special in-person bullying is the idea self-esteem issues and physical of minimal physical and social health problems, which of Hear more from these experts at cues. When we adults were course can all lead to school aspire.texaschildrens.org/ambassadors2016 teens, we were granted an absences, refusal to go to end to the stresses of the day school and lowered grades. aspire.texaschildrens.org

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LIFETIME MEMBERS In addition to its generous annual members, Ambassadors for Texas Children’s Hospital membership includes hundreds of dedicated lifetime members. We honor them here.

Debbie Adams Katie and John Forney Ann and John Ligums Kristi and John Schiller Shirley and Charles Alexander Tobey and Billy Forney Kristi Marimon and George Lindahl Courtney and Gregory Schilling Joan and Stanford Alexander Carolyn and Bill Forney, Jr. Carol and Mike Linn Maryann T. Seaman Carolyn and Willie Alexander Ann and Randy Fowler Jamie and Howard Lorch Ally and Mike Seder The D. Kent and Linda C.Anderson Frank Lockwood Family Foundation Cynthia and Larry Lueckemeyer Jordan and Dylan Seff Foundation Frankel Family Foundation Joella and Steven Mach Raquel and Andrew Segal Elle and Clarke Anderson Carol and Jim Frankel Louis Magne Cathy and Dennis Seith Linda Anderson Kristina and Kevin Frankel Coco and Kelly Mahoney Kristy and John Sexton Phyllis and Steven Anderson Dara and Scott Frankel The Mailman Foundation The Shackouls Family Foundation The Andras Foundation Elizabeth and Clint Freeland Rosalyn and Barry Margolis Judy and Bobby Shackouls Alisa and Jim Andras Phil and Carol Garner Holly and Thomas Mason Elizabeth and Scott Shackouls Mary and Oscar Andras Julianne and J Gaut Morganne and Jefy Mathew Mary Eliza and Park Shaper Stephanie and Tim Armstrong Helen and Terry Gebert Lisa and Will Mathis Amy and Peter Shaper Family Fund Laura and John Arnold Erin and Brian Gilmore Kirby and Scott McCool Elise de Compiegne Shatto Ascende Charitable Trust Clare A. Glassell Laura and Andrew McCullough Lynn Des Prez and William T. Shearer Heather and Richard Avant Candi and Gerald Glenn Rebecca and Shay McGarr Danielle and Christopher Shield Nadine and Tim Balombin Benjamin Go Corinne and Michael McVay Erin and Jeff Shilt Leslie L. Harris and Edward G. Baptista Margaret Go Arnold and Suzanne Miller Dr. Joan E. Shook and Shanna and Eric Bass Jackie and John Godbold Charitable Fund Dr. Jeffrey R. Starke Sheryl and Douglas Bech Maureen and John Graf Jan and Arnold M. Miller Amy and Kyle Simson Donna and Steve Benotti Claire and Joe Greenberg Denise Monteleone Sherry and Vincent Sinisi Melony and B.J. Bergeron Beth and Douglas Grijalva Jennifer and Will Monteleone Elaine and Christopher Slaughter Carole and Bruce Bilger Windi and David Grimes Kristy and Jeff Montgomery Michelle and Alan Smith Heidi and Todd Binet Carol and John Gunn Christine and Shea Morenz Chirsti and Chase Smith Darlene Bisso Cindy and John Hageman Christina and Steve Morse Nancy Smith Eva and Beau Bisso Amy and Charles Hankins Alice and Keith Mosing Anne and Stephen Smith Deana and Larry Blackburn Barbara and Wayne Harms Nicole and Will Murphy Christina Dixon and Stuart Smith Gary Blackie Susan Feigin and Jonathan M. Harris Bobbie and John Nau Susie and Tommy Smith Collier and Richard Blades Pat and Mike Hartman Stephanie, Celine and Randy Nelson Mary Martha and Joel Staff Marylou and Ted Bland Ann Lents and David Heaney Jan and Joe Netherland Stargel Office Solutions Stacey and Stephen Bourque Mia and Joseph Heil Amy and David Novelli Vicki and Jack Stargel Susan and Bob Boykin Caroline and Bill Helander Heidi and Tobin O’Donnell Slade Stargel Jennifer and Jimmy Branch Leila and Jason Higham Alice and Billy Oehmig Jessica and Tyson Stargel Katie and A.J. Brass Mindy and Jeff Hildebrand Tracey and Sean O’Neal Cindy and Larry Stein Broesche Family Foundation Marian and Tim Hilpert/Air Texas Diane and Garry Osan Andy and Liz Stepanian Karl Broesche Mechanical, Inc. Beth Otilliar Lindsay and Trent Stout Kelly and Kirt Broesche Wendy and Jeff Hines Luana and Gary Owens Debbie and Steve Sukin Henry T. Brooks Kitty and Lex Hochner Susan and Mike Padon Suzanne and Joseph Sutton The Brown Foundation, Inc. Lindsay and Rand Holstead Mrs. C.N. Papadopoulos Courtney and Doug Swanson Chris Brown Lisa and Michael Holthouse Diane and Jeff Paul Chay and Tory Taylor Jennifer Brown Courtney and Bo Hopson Cynthia and Tony Petrello Kelly and Adam Tepper Charlene and Philip Carroll Becky and Kevin Hostler Brenda and Larry Petru Rachael and Mark Terry Keely and Carl Carter The Houston Family Foundation Jenny and Rich Petru Lee and Ty Tillman Barbara and Larry Catuzzi Ana Lee and Marc Jacobs Susan and Mike Plank Matthew R. Titus Ann and Clarence Cazalot Noelle and Davis Jahncke Faye and Jack Polatsek Erika and John Toussaint Holly and Kirk Coburn Randall H. Jamail Suzanne and Bob Potter Candie and Steven Tramonte Cockrell Family Fund Christy and Webb Jennings Karen Pulaski Lori and Hank Van Joslin Estela and David Cockrell Cathy and Mel Jodeit Bradley Radoff Jennifer and Wil VanLoh Stephanie and Ernie Cockrell Linda W. and Gary C. Johnson The Radoff Family Rachael and Jason Volz Adonia and Kevin Cokinos Matthew Johnson Holly and Steve Radom Shannon and Mark Wallace Stacey and Cooper Collins Victoria and Parks Johnson Judith Ragsdale, DDS, MSD, Whitney and Marc Walsh Nancy and Brady Cook Mary and Hank Jones Pediatric Dentistry Elizabeth and Peter Wareing Susie and Lloyd Cunningham Wendy and Kenneth Jones Amy and Matt Ralls Kalen and Mike Webb Hilda and Greg Curran Laura and Steve Jones Louise Ratz Emily and Danny Weingeist Mary-Kathryn and Chris D’Agostino Katherine and Stewart Jones Dawn and Richard Rawson Lucille and Richard Weiss Shawn and Chuck Dalio Shelley and Gene Jorgensen Carroll and Hugh Ray Ardy and Pat Weston Autumn and Mike Davidson Leigh and Chris Joseph Leigh Anne and John Raymond Mary and Greg Whalley Claire and David de Roode Elise and Russ Joseph Noelle and Eric Reed Mary Whalley Elizabeth and Anthony DeLuca George Joseph Elizabeth and Bobby Reeves Krista and Robby White Joelle and Mitch Derrick Melissa and Brad Juneau Amy and Mike Reeves Pam and Gary Whitlock Melisa and Albert Dion II Kristie and Kyle Kafka Krissi and Taylor Reid Leslie Frankel-Wiener and Gary Wiener Staci and John Donovan Elizabeth and Tommy Kanarellis Vicki and Michael Richmond Julia and Carl Williams Jan Ellis Duncan Nicole and Evan Katz Michelle Riley-Brown and James Brown Sue and David Williams Andrea and Lyle Eastham Emily and Rusty Kelley Brooke and Corby Robertson Shannon and Brian Wing Pepper and Ashley Edens Lilia Khakimova and C. Robert Bunch Barbara and Corby Robertson William and Marie Wise Family Johnna and Ryan Edone Tracey and Mike Killion Laura and Will Robertson Foundation Jenny Elkins The William S. and Lora Jean Kilroy Wendy and John Roddey Mandy and Blaik Wisenbaker Andrea and Larry Elliott Foundation Sheila and Jon D. Rodermund Joan Wolfe John Emmitte Marie Louise and David Kinder Sybil Roos Elizabeth and Judson Wolfe Entergy Texas, Inc. Dave King Suzanne and Mike Rose Janet Wong and Ronald Mullins Mary and Doug Erwin Debbie and Bobby Knapp The Jerry and Maury Rubenstein Hank and Sheryl Wood Genna and Jon Evans Jennifer and JC Kneale Foundation Lori and Scott Wulfe Marita and J.B. Fairbanks Saranne and Livingston Kosberg Nancy and Bryan Ruez Judge Clarease Yates and Mr. Cary Yates Zeina and Nijad Fares Damon and Karen Krehbiel Amy and Tom Ryan Christa Ziegler Carolyn Faulk Huntley and Dan Kubitza Tani and Tony Sanchez, Jr. Marcie and Robert Zlotnik Judy Feigin Faulkner Susan and Mike Larson Vanessa and Tony Sanchez III Huda and William Zoghbi Barbara and Michael Feigin Terry and Ray Larson Vanessa and Eduardo Sanchez Robert L. and Barbara Zorich Family Leslie and Michael Fertitta Lisa and Evan Lee Norma and Pete Sanchez Foundation FKP Architects, Inc. Jenny and Justin Leonard Patricio Sanchez Barbara and Robert Zorich Sally and Rigo Flores Jean and Richard Lewellen Cheryl and Robert Sanford Natalie and John Ford Jessica and Lance Lightfoot Leslie and Shannon Sasser Lauren and Don Fornes Jennifer and Jeb Ligums Joan and John Scales ISSUE 4 – 2017

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PROFILES IN PHILANTHROPY

A GIFT FOR CAROLINE ELIZABETH AND ANTHONY De LUCA

Our journey with Texas Children’s began genetic testing. We always gave Caroline the genomic testing, which ultimately found the when our youngest daughter was just two opportunity to say yes or no to the blood draws. culprit for Caroline’s condition in the STXBP1 days old. I found Caroline unresponsive and She always said yes — and she would grin, gene. We finally had a mission for our donation turning blue in her bassinet and began CPR because she knew she was helping others. to the NRI — finding a cure for catastrophic on our kitchen floor. When the ambulance The seizures continued and always seemed epilepsies, beginning with STXBP1. arrived, I immediately said, “She needs to be to happen at the worst times, like when she Dr. Zoghbi had a researcher in mind, taken to Texas Children’s Hospital” — and was getting ready for a Special Olympics swim Dr. Mingshan Xue, and she was trying to thus began new lives for me and my husband, meet. She participated in several different convince him to come to Houston. She Anthony, and for our other daughters. decided to introduce him to Caroline. They Caroline had seizures for the first three immediately hit it off. During that visit, months of her life. She did not meet any of Caroline began having a series of very bad her developmental milestones, but we had a Caroline was always seizures — and Drs. Xue and Zoghbi saw reprieve from the seizures until she turned a fighter, and she was firsthand what she was dealing with. As they three. When the seizures returned, though, left our home that day, Mingshan whispered we were told that her condition was severe determined to get well. to me: “99 percent sure I’ll be back here and untreatable — catastrophic epilepsy, in Houston.” Mingshan did come, and he they called it. developed a mouse model for STXBP1 — At four years old, Caroline suffered a stroke, clinical trials — we tried everything we could and the mice seized exactly as Caroline did. which paralyzed her on her right side and to bring her relief. When we heard that The NRI is at the forefront of efforts to solve affected even her swallowing function. Even Dr. Huda Zoghbi was going to be the director the myriad neurological issues affecting so, after a little while, Caroline began to come of the Jan and Dan Duncan Neurological children. We believe it’s going to happen not out of her extreme illness, learning to walk for Research Institute (NRI) at Texas Children’s in the far-flung future, but in the near future. the first time in her life and learning to swallow Hospital, we immediately wanted to learn In March of 2016, our beautiful Caroline again. We began to believe that we just might more. Anthony and I felt strongly that if a cure passed away in my arms. Thanks to beat the odds. for catastrophic epilepsy were to be found, it Texas Children’s, she lived 18 years, far Caroline was always a fighter, and she was was going to be at the NRI. surpassing her expected life span. She determined to get well. She was asked several When she was 11, Caroline lost her ability to was the bravest, strongest, silliest, most times to donate samples of her blood for walk. About this time, we began hearing about amazing person I will ever know.

“During the worst year of our lives, Anthony and I became even more committed than ever to helping solve the riddle of catastrophic epilepsy. In Caroline’s memory, we will solve it, and we will solve it at the NRI — of that I am sure.” – Elizabeth and Anthony DeLuca, Promise Campaign donors NON-PROFIT ORGANIZATION U.S. POSTAGE PAID HOUSTON, TX PERMIT NO. 6131

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