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Care at Home for children with life-threatening or terminal illnesses Spring 2012 EVENTS DIARY 2012 newsletter

2 in 7 EASTER CHARITY BALL College Westgate Fields 7 April, 6.45pm – late Tickets - £15.00pp Details available from 2011 Observer Community Awards Snowdrop Admin Office Tel : 01243 572433 It was a starry, starry night when people across the area were honoured for their achievements at the 2011 Observer Community Awards. The stage at the Chichester Festival Theatre was aglow with

shining stars including voluntary groups, teachers and sportspeople. Among the winners were not only ANNUAL our Charity, but two Snowdrop Children and a very loyal supporter. CHARITY WALK Arundel Castle Park BEST YOUTH – Nicky Stubbs Nicky (right), a Snowdrop child with a heart condition, collected hundreds of 13 May, 2.00 – 5.00pm signatures in protest at the threat of closure of the heart unit at Southampton

Hospital. Nicky’s Mother said, “I think Diana is amazing and the whole BOGNOR PROM Team. Without them we wouldn’t be able to cope with our special children”. 10K ROAD RACE Well done Nicky! West Park, Aldwick 20 May, 10.30am start BEST CARER – The Snowdrop Trust See inside for full details Di Levantine (left), Chairman & Co-Founder of the Trust, collected the award on behalf of the Snowdrop ‘Care at Home Team’ and family EAST DEAN volunteers. OPEN GARDENS Roundhill Cottage, East Dean OUTSTANDING BRAVERY – 3 & 4 June, 2.00 - 6.00pm Luke Sharp Luke (right), a Snowdrop child,

has shown so much courage in QUILTERS’ SHOW coping with his complex health Medmerry School, Selsey needs throughout his life. He is a 24, 25, 26 August happy and very inspirational little lad. Well done Luke! SNOWDROP AGM BEST SHOPKEEPER Village Hall – Mac Patel 18 September, 10.00am Mac, of Rose Green Post Office (far left), along with his staff and customers, are very keen supporters of the Trust and we are VENETIAN MASKED BALL delighted he won this Award. Hilton Avisford Park Hotel, Yapton, Arundel NOMINEE FOR COURAGE – Louise Winslade 6 October, 7.30pm – 1.00am Louise was a Snowdrop child until her late teens and came to the See inside for full details Snowdrop Annual Walk last year to show us her Marathon medal. Louise is the first double lung transplantee to take part in the Marathon. Louise said, “Ten years ago I had just started using

oxygen and eight years ago I was in a wheelchair, on oxygen 24/7, I couldn’t even walk out of the front AUTUMN TEA PARTY door to the car.” Amazing – WELL DONE Louise! Boxgrove Village Hall 30 October, 2.00 – 4.00pm “It was a wonderful evening and a real celebration of all that’s good in our community.” – Colin Channon, Observer Editor. CHRISTMAS TREE FESTIVAL St. George’s Church, Cleveland Road, Chichester 27 – 30 Nov & 1 – 2 Dec Snowdrop Scroll of Honour Past Events OVER THE MOON AT THE COOKERY DEMO Rosemary Moon, cookery expert, author, broadcaster and lecturer gave Snowdrop supporters a fantastic and amusing winter cookery demonstration. Our guests not only received many Delighted winners of the Hilton Hotel mini-break prizes tips and recipes, but were also hugely entertained by Rosemary’s tales of fun and frivolity about the time she met with TV Presenter Matt Baker! Champagne & Diamonds Ball The event raised almost £700 for the Trust. ‘Thank You’ Rosemary. Last November, over 200 charity supporters attended a Champagne & Diamonds Ball at the Hilton Avisford Park Hotel in Walberton. A fantastic £12,200 was raised from the event, this being shared equally between Snowdrop and the Hilton in the Community Foundation.

Snowdrop Children’s Christmas Party

Once again Christmas cheer was shared with the ‘Snowdrop Children’ and their siblings at a fabulous Christmas Party, held at the Hilton Avisford Park What’s Hotel. Entertainment was provided by Nick Clark and a visit by Santa proved to be extremely popular! The event was made possible with the help of generous local businesses: SupremeClean, Chichester sponsored the event, Carte Blanche Greetings provided cuddly toys, and the Co-op Store, East Coming Up? Wittering donated chocolates and sweets.

Advanced notice of Snowdrop’s 20th Anniversary The Snowdrop Annual We are delighted to let you know well in advance Arundel Charity Walk that 2013 will see the 20th Anniversary of The Sunday, 13 May 2.00 – 5.00pm Sussex Snowdrop Trust. We intend to celebrate Please come along and join us for this wonderful family this achievement of the Charity and its work, and afternoon.Do try to get sponsors and then entry is hope that you will join us at the many events we free. Sponsorship Forms are available from the Admin are hoping to host. Full details will be shared in our Office and can be downloaded from our website. future Newsletters and on our website.

Bognor Prom 10k Race Saturday 6 October 2012, 7:30pm-1:00am Hilton Avisford Park Hotel, Walberton Sunday, 20 May 2012, 10.30am For the third year in succession Snowdrop have Snowdrop are delighted to announce that they been invited by Hilton to be the charity partner for have been chosen by the organisers of the event, this wonderful and entertaining event. This year we the Rotary Club of Bognor Hotham, to be the thought we would do something a little different official charity partner. Entry Forms/Race Packs and have decided on a themed evening: and full details can be obtained by calling Gavin Oclee-Brown on 01243 829065. Venetian Masked Ball Closing date for entries to the Race is 9 May. £55pp or £500 for a table x 10 Black Tie. 4 course dinner with wine. Dancing to live band. Silent auction Junior Fun Run Champagne Raffle - mini break to Venice Two separate events take place on the Prom for the lucky winner. before the main race. 800 metres for 8-11 year Tables can be reserved by calling the olds and 1500 metres for 12-14 year olds. Admin Office on 01243 572433 £2 entrance fee. Entry forms available from Nigel Hasted on 01243 584049. What Do We Do?

Snowdrop helps local children (from newborns to 19 year olds) who are diagnosed with any life-threatening illnesses, eg., cancer, cystic fibrosis, heart condition. By providing ‘Care at Home’ for the children and their families, everyone can continue to have as normal a life as possible. Our professional nursing team of Community Paediatric Nurses, Health Care Assistants and Family Support Counsellor can visit, give advice and teach parents the skills required to look after their child at home. Our Family Volunteer Co-ordinator, with the help of Snowdrop Family Volunteers, is able to organise more general assistance in the home, eg., babysitting. Sadly, some children do die and our Counsellor can be with the families to listen and offer continued invaluable support and advice at this very sad and difficult time.

How do the families benefit from the work How much do we of Snowdrop? need? When a child is diagnosed with a life-threatening illness, lives The expenditure of the Trust, in keeping with the are changed forever. Parents, siblings, relatives and friends are Country’s economy, in on the increase. The need to all affected. Snowdrop can support the families in many ways support our families financially continues to grow; in our throughout this difficult time by providing care at home. In addition: last financial year we will have spent £225,000 on direct • Reduced travel needs to/from hospital for routine care for the children and their families. appointments. Thanks to our generous and loyal supporters Snowdrop’s • Following an operation when the child has returned home, income remains steady, but it is imperative that this is much needed reassurance is available and answers to questions maintained so as to enable the charity to continue its can be delivered quickly and in full. work in the local community, caring for children with life- threatening or terminal illnesses. • Often working mothers have to give up their jobs and the families can suffer financially; Snowdrop can alleviate some of is the cost for a return taxi fare to a the resulting worries by paying for travel expenses, household £194 London hospital. When possible our bills and equipment . Family Volunteers are able to help with transport, but as • Day’s outings can be arranged/funded which helps to reduce fuel costs continue to increase, just one relatively short stress levels and bring some fun for the whole family. return trip to Southampton hospital – 70 miles – costs the Trust £31.50. • In our experience, most parents want to look after their child at home. Should the trauma of a child dying be experienced, will buy a new washing machine for a our Team are on call 24 hours a day to give compassionate £300 Snowdrop Family. When there is a sick support and advice. child in the home, time-saving items such as w/machines and t/dryers are vital. If these items break down, much hardship is experienced. Snowdrop are able to use their funds to step in immediately and arrange for the replacement of such essential household items.

will pay for a laptop for a £400 Snowdrop child to use in hospital or at home. If a child is undergoing treatment in hospital for leukaemia, they can be away from their family and friends for between 6-8 weeks. By providing a laptop, the child has an excellent way of communicating with the outside world and, of course, keeping up with school work!

The Sussex Snowdrop Trust does not receive any Government funding. How Can You Help Us? There are many ways you can help the Trust – here’s a few ideas... Why not turn your sporting events into a ‘Charity Fundraiser’?

The Charlton, East Dean & Singleton Valley Golf Club held a Charity Challenge Golf Day and raised an amazing £7,159 The Barr Family of Hunston (top Why not let us right) spent their Christmas holidays on become your a 300 mile cycle ride across Bangladesh and raised over £1,060. ‘chosen Charity of Langmead Farms’ employees (right) the Year’? competed in the 3 Peaks Challenge and raised £3,354. Schools, Clubs, Committees and Groups choose to support Snowdrop for one-off Would you be willing to give an hour or so of your time events or let us become their ‘chosen and help us with a supermarket bucket collection? If so, Charity of the Year’. please call the office for your name to be Arundel Catenians (above) held a added to our ‘Event Volunteers’ List’. variety of fundraising events over a 12 Make a one-off or regular month period and raised £2,892. Standing Order donation – Arundel Rotary donation form can be found Club recently made overleaf. a donation of £500 Attend one of our fundraising events to be used towards – please visit our website or call the covering the cost of this office for details. newsletter. When celebrating birthdays Brambletye School in or anniversaries many of our have taken Snowdrop on as their ‘Charity supporters have very generously of the Year’ and have so far donated suggested to family and friends that they could almost £10,000! make a donation to the Trust in lieu of them (below) held a receiving gifts – we now have ‘Gift Envelopes’ Christmas Fashion Show and were able to make this process a little easier. to donate £1,666.

THINKING OF WRITING or RE-WRITING YOUR WILL – maybe leaving a legacy to Snowdrop?

If so, Solicitors George Ide LLP now provide a will-making service at a discount to the Trust’s supporters. You can take advantage of this service by calling Paul Asling on 01243 831006. You do not have to leave a gift in your Will to use this service, but George Ide will make a donation to Snowdrop for every Will made by a Snowdrop supporter. SNOWDROP WELCOMES WELCOME to a new In the language NEW TRUSTEE Team Member Richard Jordan (right) joined Snowdrop Sharon Deakins (left) joined of flowers, as a Trustee in February. Richard is a the Snowdrop ‘Care at Home the snowdrop partner in the law firm Thomas Eggar Team’ at the end of February. LLP in Chichester, where he is the Head Sharon’s role is that of Health means hope and of Private Client Services. Richard, Care Assistant/Support Worker, originally from Yorkshire, moved to the and she joins Jackie Wheatland consolation south east some ten years ago, and is in providing valuable support to married with two young children. the families. Meet the admin team... ABOUT US

Jo Rule and Angela have been with the Trust for five years and Chairman, Co-Founder & Trustee two years respectively. Many of you will have met them at our events or Diana Levantine at least spoken to them when calling the admin office. Jo’s background is Vice Chairman & Trustee that of project management, finance, exec PA and event planning, whilst Valerie Seddon Angela has many years hotel, office and recruitment experience. The admin office is known as the ‘engine room’ for the Charity and, as such, Trustees Jo and Angela ensure all legal and financial requirements are maintained; Margaret Eva OBE Deirdre Hoggarth they are also the first point of contact for anyone wishing to offer support Richard Jordan by way of fundraising or event volunteering. Should you need to know anything about the work of Snowdrop, its events or fundraising please do Business Manager call either Jo or Angela on 01243 572433. Joanne Rule Office Administrator NEW FAMILY (left) Angela England Joanne Time to say VOLUNTEERS Ambrose Registered Charity Address 3 Kingley Centre FOR 2012 (right) farewell... Downs Road Snowdrop are delighted Kirsty West Stoke James Snowdrop says Chichester to welcome 5 new Family ‘Farewell’ to Jane , PO18 9HJ Volunteers for 2012. Wilkinson who, Our Family Vols are a crucial T: 01243 572433 for 2½ yrs, has part of the Snowdrop E: [email protected] been the Trust’s www.thesussexsnowdroptrust.com Team; the understanding Family Volunteer and support they give to Registered Charity No. 1096622 Co-ordinator. Jane our families is essential Limited Company No. 4557686 is returning to her to relieving in some way, (Limited by Guarantee) former nursing career the stress and anxieties and we wish her well experienced by the whole THE SNOWDROP Kate Patricia Caroline in her new role. family. Dobson Seager Breheny CARE AT HOME TEAM The Centre 28-29 Westhampnett Road To help us reduce our postage costs, Chichester West Sussex, PO19 7HH please do D onationlet us know ifF ormyou have an email address to which we can send future T: 01243 815227 The Charity spends aroundMAKE £225,000 A annually on Newsletters; please email your details to DONATION direct care for the Families and The Snowdrop ‘Care Children’s Nurses [email protected] at Home’ Team. This crucial financial support helps parents to cope with the day-to-day problems of caring T: 01243 815227 name Jane Evans ...... for a very sick child. The financial problems that Rosy Turner I/We would like to make a donation and enclose £...... parents have can be overwhelming, possibly becoming address Gill Cunningham Michele Walker ...... The Trust receives no help from the Government Communityand depends – Schools, on theClubs,the generous ‘last Church straw’. support Groups, ofTrusts, this Support Workers T: 01243 815227 P lease appreciatedOrganisations and enables and Individuals.Snowdrop to beEvery able pennyto continue is Jackie Wheatland treat Sharon Deakins year to provide this vital help. Please can you help us to

i this will S donation help these children and their families. Family Support Counsellor nowdrop pay UK T: 01243 815227 Phil Portway send income as will G ift postcode to claim 3 Kingley Centre, Downs tx Road, A Family Volunteer West Stoke, :Chichester The Sussex PO18 Snowdrop 9HJ id Trust, at on . I Co-ordinator least confirm my ...... Please make cheques payable to T: 01243 815273 gift equ , that The Sussex Snowdrop currentlyal to Team in the this Administrator 25% tax. Trust. financial T: 01243 815227 that Karen Spencer

Many, many donations are received throughout the year from our loyal supporters. Here is just a selection of those who have helped Snowdrop T in recent months.

Karen Arundel Players donation, £230; Rosalinda O’Brien, Slimming World Raffle, Ongley-Snook, £150: Emily Rose, plant sale proceeds, £312; Lodge No. 4460, Christmas event donation £1,000; C&M Trophies fundraising, £845; Nicola Jordan, Chi proceeds, £205; h Olympic Triathlon sponsorship, £1,335; Emsworth Horticultural Pendean House, Society, Show proceeds, £300; Spirit FM, Local Heros’ Awards donation, £705; Southbourne Raffle proceeds, £930; R Fabricus, donation, £675; Thomas Eggar County Infant School, Carol Solicitors, Quiz Night proceeds, £204; Walberton & Concert proceeds, £210; Binsted School, donations and nativity plays’ proceeds, Primary School, Carol £1,410; Marianne Cullis, jam sales proceeds, Service proceeds, £166; Itchenor £250; Arun Lodge Masons, donation, £1,000; Society, Christmas donation, £380; a M Hodgson, Harting Harvest Festival proceeds, Russell’s Garden Centre, proceeds £220; Coombelands Equestrian Show, proceeds from Vintage Weekend event, £715; David £1,550; Chichester Park Hotel, Dinner Dance Prior, sponsorship from Great South Run, proceeds, £500; Rotary Club of Chichester, £385; A Portlock, donation, £200; S Mills, donation, £500; Grittenham Barn donation, £200; , Christmas Fair proceeds, £1,339; fundraising events, £218; Rumboldswhyke CE n Stroud Green Residents Assoc, School, Christmas collection, £213; Brain Varney, donation, £437; Patricia Seager, donation, £200; Relief Chest/Nine Muses Lodge, donations in lieu of 60th Birthday donation, £500; Susie Pike & Friends, proceeds gifts, £571; Heirlooms, B/Regis from Reindeer Run, £150; Sadhana Hairdressing, donation £500; ARUNNERS donation, £190; Authority, Property Running Club, annual fundraising, Department donation, £250; V Strudwick, Christmas £350. lights donation, £147; Rosy Turner, proceeds from sale of k knitted Christmas decorations, £266; Pagham Pram Race, F Sayce, donation, £100; P Hobbs, donation, £100; Sandy donation, £400; CIS Golf Society, Christmas raffle, £285; Lewis/Selsey Jigsaw Club, donation, £211; K Anderson, sponsorship from Bognor Birdman event, D Magee/St. Richard’s Nurses, donation in lieu of sending £125; I Michael/Chi Runners, Charity Trail Run, £204; J&D Christmas cards, £160; Dominic Twinn, ‘Grow-a-Mo for Jewellers, customer donations, £143; S Beckwith-Smith, Movember’, £180; Simon Wilkinson, Brighton Marathon donation, £600; O Everson, annual word puzzle & Sahara Desert Trek, sponsorship, £1,035; Tony Powell, proceeds, £448. 1000 Km Cycle Ride, £575; Contract Candles, donation in lieu of sending Christmas cards, £250; Caroline & St. Paul’s PCC, donation £3,370; Bosham Daniel Kelly, 2011 BUPA Great South Run sponsorship, PCC, donation, £100; St. Andrew’s £762; Mike Yeatman, Gary Jakeman & Malcolm, Virgin United Reform Church, donation, £250; Active London Triathlon, £1,195; the Barr Family, cycling Rumboldswhyke, Whyke & Portsfield across Bangladesh, £930; Direct Life, fundraising, PCC, Christmas collection, £359; Tillington £1,411; Portlock Family, raffle proceeds, £200; PCC, carol singing proceeds, £190; St. R Softly, donation, £250; Beaver Tool Hire, James’ Church, , Crib Service donation, £1,000; Chichester Quilters, proceeds, £305; St. Richard’s Church, Y Chilli Fiesta/Raffle proceeds, £1,400; Neil Christmas Service, £192; , & Sue Edden, proceeds from craft sale, donation, £500; Church, Carol Service £135; M Harris, donation in lieu proceeds, £410; PCC, donation, £164; Sutton of 60th Birthday gifts, £160; & PCC, donation from Christingle Service, £200 Selsey Ladies Group, annual o fundraising, £400; Bognor Alec Coleman Charitable Trust, donation, £250; Patricia Regis Lions, fashion show Routledge Charitable Trust, grant, £1,000; St. James’ Place proceeds, £272; Lotus Foundation, grant, £2,500; Friarsgate Trust, grant, £1,000 House Restaurant, customer Regular supporters include : donations, Sainsbury’s Store/Sainsbury’s Petrol Station, Chichester; Aldingbourne Social u £134; Club; Sussex Camera Centre; C&P Cole Newsagents; Rose Green Post Office; Sophie Barrie Seaman; Kids Stuff Toys; Oldwick Saddlery; Walberton Coffee Shop; Donna Hamilton, Redman; Ann Conlon; Rita & Tony Hope; Boxgrove Post Office; J & D Jewellers; Kings donation, Arms Arundel; Fred & Edna Strong; Arundel Players; Edible Sandwich Arundel; White Stuff £250; Foundation; Print of Wales Pub, Woodgate; Rosalinda O’Brien @ Slimming World; Wayfarer’s Lodge.... who donate Easter Eggs for the Snowdrop children! !