A Low Priority? How Local Health and Care Plans Overlook the Needs of Dying People

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A low priority? How local health and care plans overlook the needs of dying people

Appendices

Appendix A

To the Freedom of Information Officer, Health and Wellbeing Boards, England By email

Date: Monday 1 February 2016 Subject: Freedom of Information request

Dear Sir/Madam,

I am writing to you under the Freedom of Information Act 2000 to request the following information about your authority’s health and wellbeing board (HWB):

 Does your HWB currently have a nominated lead for palliative and/or end of life care for i) adults and/or ii) children?

 Does your HWB have a joint strategic needs assessment (JSNA) either planned or completed for 2016/17?

 If your HWB does have a JSNA either planned or completed for 2016/17, does it include a section on palliative and/or end of life needs?

 Does your HWB’s joint health and wellbeing strategy (JHWS) specifically include people with terminal and/or life-limiting conditions or palliative and/or end of life care services?

I would be grateful if you could provide this information by return email to [email protected].

Please do contact me if you want any clarification on the information I am requesting.

I look forward to your response within 20 working days, as set out by the Act.

Kind regards,

Mr Stephen McCauley Hospice UK

Company Limited by Guarantee, Registered in England and Wales No. 2751549, Charity registered in England and Wales No. 1014851 and in Scotland No. SC041112. VAT No. 731 304476.

Note We asked HWBs a question on whether they had a nominated lead for palliative or end of life care. We decided not to include this in the report as many HWBs stated that they did not work in this way; either they did not have nominated leads for any health or social care issue, or they had delegated this responsibility to the CCG level.

We also asked a question on whether HWBs had a joint strategic needs assessment (JSNA) planned or completed for 2016/17. Again, many HWBs replied that they did not work in this way. In some areas, needs assessments are completed on an ongoing basis and remain a live document, rather than as a single document that is completed or updated annually.

To the Freedom of Information Officer, Clinical Commissioning Groups, England By email

Date: Monday 1 February 2016 Subject: Freedom of Information request

Dear Sir/Madam,

I am writing to you under the Freedom of Information Act 2000 to request the following information:

 Does the clinical commissioning group (CCG) currently have a nominated lead for palliative and/or end of life care for i) adults and/or ii) children?

 Does the CCG have a specific palliative and/or end of life care strategy for i) adults and/or ii) children?

I would be grateful if you could provide this information by return email to [email protected].

Please do contact me if you want any clarification on the information I am requesting.

I look forward to your response within 20 working days, as set out by the Act.

Kind regards,

Mr Stephen McCauley Hospice UK

Appendix B

Responses to the freedom of information request from Hospice UK to health and wellbeing boards

Region Public Authority If your HWB does Does your HWB’s have a JSNA either joint health and planned or wellbeing strategy completed for (JHWS) specifically 2016/17, does it include people with include a section terminal and/or life- on palliative and/or limiting conditions end of life needs? or palliative and/or end of life care services?

Blackburn with Darwen N N Borough Council Blackpool Council No response No response Bolton Metropolitan Borough No response No response

North West North Council Bury Metropolitan Borough N Y Council Cheshire East Y Y Cheshire West and Chester N N Cumbria County Council Y N Halton Borough Council Y N Knowsley Metropolitan Y Y Borough Lancashire County Council N N Liverpool City Council Y N Manchester City Council N N Oldham Metropolitan Borough N N Council Rochdale Metropolitan N N Borough Council Salford City Council No response No response Sefton Metropolitan Borough Y Y Council St Helens Borough Council Y Y Stockport Metropolitan Y Y Borough Council Tameside Metropolitan N Y Borough Council Trafford Council Y N Warrington Council Y Y Wigan Metropolitan Borough Y N Wirral Metropolitan Borough Y N

Darlington Borough Council No response No response

Durham County Council Y Y Gateshead Metropolitan Y Y

North East North Borough Council Hartlepool Borough Council Y Y Middlesbrough Borough Y N Council Newcastle upon Tyne City N N Council North Tyneside Council N N Northumberland County Y N Council Redcar & Cleveland Y N South Tyneside Metropolitan Y N Borough Council Stockton-on-Tees Borough Y Y Council Sunderland City Council Y Y

Barnsley Borough Council No response No response Bradford Metropolitan Council Y N

Calderdale Council N N umber City of York Council Y Y

Yorkshire Yorkshire Doncaster Metropolitan Not answered Y and H and Borough Council East Riding of Yorkshire Y Y Council Hull City Council Y Y Kirklees Metropolitan Borough Y N Council Leeds City Council N N North Lincolnshire Council Y N North East Lincolnshire N N Council North Yorkshire County Y Y Council Rotherham Metropolitan Y Y Borough Council Sheffield City Council Y N Wakefield City Metropolitan Y N District Council

Birmingham City Council N Y Coventry City Council N N West West Dudley Metropolitan Borough Y N

Herefordshire Council N N Midlands Sandwell Metropolitan Y Y Borough Council

Shropshire Council Y N Staffordshire County Council Y Y Stoke-on-Trent City Council N N Solihull Metropolitan Borough Y Y Council Telford & Wrekin Council N N Walsall Metropolitan Borough Y Y Council Warwickshire County Council No response No response Wolverhampton City Council Y N Worcestershire County Council N N

Derby City Council N N Derbyshire County Council Y N Leicester City Council Y Y Leicestershire County Council Y Y Lincolnshire County Council N N

Milton Keynes Council Y N East Midlands East Northamptonshire County N N Council Nottingham City Council Y N Nottinghamshire County Y N Council Rutland County Council N Y

Bedford Borough Council Y Y Cambridgeshire County Council Y Y Central Bedfordshire Council Y N Essex County Council Y Y Hertfordshire County Council Y N

East of England East Luton Borough Council N N Norfolk County Council Y Y Peterborough City Council N N Southend-on-Sea Council Y Y Suffolk County Council Y N Thurrock Council Y N

City of London Corporation Y N City of Westminster Y Y London Borough of Barking & Not answered Y

London Dagenham London Borough of Barnet N Y London Borough of Bexley Not answered Y London Borough of Brent Y N London Borough of Bromley Y N London Borough of Camden Not answered N London Borough of Croydon N Y

London Borough of Ealing Y N London Borough of Enfield No response No response London Borough of Greenwich N N London Borough of Hackney N N London Borough of Y N Hammersmith & Fulham London Borough of Haringey N N London Borough of Harrow N N London Borough of Havering N Y London Borough of Hillingdon Y Y London Borough of Hounslow Not answered N London Borough of Islington N N London Borough of Lambeth Y N London Borough of Lewisham N N London Borough of Merton Y N London Borough of Newham Y N London Borough of Redbridge Y Y London Borough of Richmond Y Y upon Thames London Borough of Southwark Y Y London Borough of Sutton Y Y London Borough of Tower Y Y Hamlets London Borough of Waltham Y Y Forest London Borough of Y N Wandsworth Royal Borough of Kensington Y N & Chelsea Royal Borough of Kingston Y N upon Thames

Bath & North East Somerset Y Y Council West Bournemouth and Poole No response No response Bristol City Council N N

Cornwall Council N N South South Devon County Council Y Y Dorset County Council Y Y Gloucestershire County Y Y Council Council of the Isles of Scilly Y N North Somerset Council N N Plymouth City Council N N Somerset County Council N N South Gloucestershire District N Y Council Swindon Borough Council Y Y

Torbay Council Y Y Wiltshire Council Y Y

Bracknell Forest Council Y N Brighton and Hove City Y Y Council Buckinghamshire County Y N

South East South Council East Sussex County Council Y Y Hampshire County Council Y N Kent County Council Y Y Isle of Wight Council No response No response Medway Council Y N Oxfordshire County Council N Y Portsmouth City Council Y N Reading Borough Council Y N Slough Borough Council Y N South Kent Coast N Y Southampton City Council Y Y Surrey County Council Y N West Berkshire Council N Y West Sussex County Council Y Y Royal Borough of Windsor and Y N Maidenhead Wokingham Council Y N

Responses to the freedom of information request from Hospice UK to clinical commissioning groups

Region Public Does the CCG Does the Does the Does the Authority currently CCG CCG have a CCG have a have a currently specific specific nominated have a palliative palliative lead for nominated and/or end and/or end palliative lead for of life care of life care and/or end of palliative strategy for strategy for life care for i) and/or end i) adults? ii) children? adults? of life care for ii) children?

NHS Blackburn with Darwen CCG Y Y Y N NHS Blackpool

CCG Y Y Y N North West North NHS Bolton CCG Y Y Y Y NHS Bury CCG Y Y Y N

NHS Central Manchester CCG Y Y N N NHS Chorley and South Ribble CCG Y Y Y N NHS Cumbria CCG Y Y Y N NHS East Lancashire CCG Y N Y N NHS Eastern Cheshire CCG Y N Y N NHS Fylde & Wyre CCG Y Y Y Y NHS Greater Preston CCG Y Y Y N NHS Halton CCG Y Y N N NHS Heywood, Middleton & Rochdale CCG Y Y Y N NHS Knowsley CCG Y Y N N NHS Lancashire North CCG Y Y Y Y NHS Liverpool CCG Y Y Y Y NHS North Manchester CCG Y Y N N NHS Oldham CCG Y Y Y Y NHS Salford CCG Y Y Y N NHS South Cheshire CCG Y Y Y Y NHS South Manchester CCG Y Y N N NHS South Sefton CCG Y Y Y N NHS Southport and Formby CCG Y Y Y N NHS St Helens CCG Y Y Y N NHS Stockport CCG Y Y N N

NHS Tameside and Glossop CCG Y Y N N NHS Trafford CCG Y Y Y Y NHS Vale Royal CCG Y Y Y Y NHS Warrington CCG Y Y Y N NHS West Cheshire CCG Y Y N N NHS West Lancashire CCG Y Y Y N NHS Wigan Borough CCG Y Y Y Y NHS Wirral CCG Y N N N

NHS Darlington Y Y Y Y CCG NHS Durham Y Y Y Y Dales,

North East North Easington and Sedgefield CCG NHS Hartlepool Y Y Y N and Stockton- on-Tees CCG NHS Newcastle Y Y Y Y Gateshead CCG NHS North Y N Y N Durham CCG NHS North Y Y Y Y Tyneside CCG NHS Y Y Y N Northumberland CCG NHS South Y Y N N Tees CCG NHS South Y Y Y N Tyneside CCG NHS Y N Y N Sunderland CCG

NHS Airedale, Y Y Y N Wharfedale and

Craven CCG Humber

NHS Barnsley Y Y Y Y CCG NHS Bassetlaw Y Y Y Y CCG NHS Bradford Y Y Y N City CCG

Yorkshire and Yorkshire NHS Bradford Y Y Y N Districts CCG NHS Calderdale Y Y N N CCG NHS Doncaster Y Y N N CCG NHS East Y Y Y N Riding of Yorkshire CCG NHS Greater Y Y Y N Huddersfield CCG NHS Y Y Y N Hambleton, Richmondshire and Whitby CCG NHS Harrogate Y Y Y Y and Rural District CCG NHS Hull CCG Y Y Y N NHS Leeds Y N Y Y North CCG NHS Leeds Y N Y Y South and East CCG NHS Leeds Y N Y Y West CCG NHS North East Y Y Y Y Lincolnshire CCG NHS North Y Y Y N Kirklees CCG NHS North Y Y Y Y Lincolnshire CCG NHS Rotherham Y Y Y Y CCG NHS Y Y Y N Scarborough

and Ryedale CCG NHS Sheffield Y Y Y N CCG NHS Vale of Y N N N York CCG NHS Wakefield Y Y Y N CCG

NHS Birmingham CrossCity CCG Y Y Y Y NHS Birmingham South and West West Midlands Central CCG Y Y Y Y NHS Cannock Chase CCG Y Y Y Y NHS Coventry and Rugby CCG No response No response No response No response NHS Dudley CCG Y Y Y N NHS East Staffordshire CCG N N N N NHS Herefordshire CCG Y Y Y Y NHS North Staffordshire CCG Y Y Y N NHS Redditch and Bromsgrove CCG N N N N NHS Sandwell and West Birmingham CCG Y Y Y Y NHS Shropshire CCG Y Y Y N NHS Solihull CCG Y N N N NHS South East Staffs and Seisdon and Peninsular CCG Y Y N N NHS South Warwickshire CCG No response No response No response No response

NHS South Worcestershire CCG Y Y Y N NHS Stafford and Surrounds CCG No response No response No response No response NHS Stoke on Not Not Trent CCG answered Y answered N NHS Telford & Wrekin CCG Y Y Y Y NHS Walsall CCG Y Y Y N NHS Warwickshire North CCG No response No response No response No response NHS Wolverhampton Not Not CCG Y answered Y answered NHS Wyre Forest CCG Y N N N

NHS Corby Y Y Y N CCG NHS East Y Y Y N Leicestershire and Rutland CCG East Midlands East NHS Erewash Y Y Y N CCG NHS Hardwick Y Y Y N CCG NHS Leicester No No response No response No City CCG response response NHS Y N Not Not Lincolnshire answered answered East CCG NHS Y N Not Not Lincolnshire answered answered South CCG NHS Y N Not Not Lincolnshire answered answered South West CCG NHS Y N Y N Lincolnshire West CCG NHS Mansfield Y Y Y Y & Ashfield CCG NHS Milton Y Y Y Y

Keynes CCG NHS Nene CCG No No response No response No response response NHS Newark & Y Y Y Y Sherwood CCG NHS North Y Y Y N Derbyshire CCG NHS Y Y N N Nottingham City CCG NHS No No response No response No Nottingham response response North & East CCG NHS No No response No response No Nottingham response response West CCG NHS Rushcliffe No No response No response No CCG response response NHS Southern Y N Y N Derbyshire CCG NHS West Y Y Y Y Leicestershire CCG

NHS Basildon Y Y N N and Brentwood CCG NHS N N N N Bedfordshire CCG

East of England East NHS Y Y Y N Cambridgeshire and Peterborough CCG NHS Castle Y Y Y Y Point, Rayleigh and Rochford CCG NHS East and Y Y N Y North Hertfordshire CCG NHS Great Y Y Y N Yarmouth & Waveney CCG NHS Herts Y Y Y Y Valleys CCG

NHS Ipswich Y Y N N and East Suffolk CCG NHS Luton CCG No No No No response response response response NHS Mid Essex Y Y Y Y CCG NHS North East Y Y Y Y Essex CCG NHS North Y Y N N Norfolk CCG NHS Norwich Y Y Y Y CCG NHS South Y Y Y N Norfolk CCG NHS Southend Y Y N N CCG NHS Thurrock Y Y N N CCG NHS West Y Y Y Y Essex CCG NHS West Y Y N N Norfolk CCG NHS West Y Y N N Suffolk CCG

NHS Barking & Y Y N N Dagenham CCG

London NHS Barnet Y Y Y Y CCG NHS Bexley Y Y Y N CCG NHS Brent CCG Y Y N N NHS Bromley Y Y N N CCG NHS Camden Y Y Y N CCG NHS Central Y Y N N London (Westminster) CCG NHS City and Y Y N N Hackney CCG NHS Croydon Y Y Y N CCG NHS Ealing Y Y N N CCG NHS Enfield Y Y Y N

CCG NHS Greenwich Y N Y N CCG NHS Y Y N N Hammersmith and Fulham CCG NHS Haringey Y Y N N CCG NHS Harrow Y Y Y N CCG NHS Havering Y Y Y N CCG NHS Hillingdon Y Y Y Y CCG NHS Hounslow Not N Not N CCG answered answered NHS Islington Y Y Y Y CCG NHS Kingston Y N Y N CCG NHS Lambeth Y N Y N CCG NHS Lewisham Y N Y N CCG NHS Merton Y Y Y N CCG NHS Newham Y Y Y Y CCG NHS Redbridge Y Y Y N CCG NHS Richmond Y Y Y Y CCG NHS Southwark Y N Y Y CCG NHS Sutton Y N Y N CCG NHS Tower Y Y Y Y Hamlets CCG NHS Waltham Y Y Y N Forest CCG NHS Y Y N N Wandsworth CCG NHS West Y Y N N London (K&C & QPP) CCG

NHS Bath and Y Y Y Y North East Somerset CCG NHS Bristol Y Y Y Y CCG South West South NHS Y Y Y N Gloucestershire CCG NHS Kernow Y Y N Y CCG NHS North Y Y Y Y Somerset CCG NHS North, Y Y Y N East, West Devon CCG NHS Somerset Y Y Y Y CCG NHS South Y Y N N Devon and Torbay CCG NHS South Y Y N Y Gloucestershire CCG NHS Swindon Y Y Y N CCG NHS Wiltshire Y Y Y N CCG

NHS Ashford Y Y Y N CCG NHS Aylesbury Y Y N N Vale CCG

South East South NHS Bracknell Y N Y N and Ascot CCG NHS Brighton & Y Y N N Hove CCG NHS Canterbury Y Y Y N and Coastal CCG NHS Chiltern Y N Y N CCG NHS Coastal Y Y Y N West Sussex CCG NHS Crawley Y Y Y N CCG NHS Dartford, Y Y N N Gravesham and Swanley CCG

NHS Dorset Y Y Y Y CCG NHS East N N N N Surrey CCG NHS Y N Y N Eastbourne, Hailsham and Seaford CCG NHS Fareham Y Y Y N and Gosport CCG NHS Guildford Y Y Y N and Waverley CCG NHS Hastings & Y N Y N Rother CCG NHS High Y Y Y Y Weald Lewes Havens CCG NHS Horsham No No No No and Mid Sussex response response response response CCG NHS Isle of Y Y Y Y Wight CCG NHS Medway N N Y Y CCG NHS Newbury Y N Y N and District CCG NHS North & Y N Y N West Reading CCG NHS North East Y Y Y N Hampshire and Farnham CCG NHS North Y Y N N Hampshire CCG NHS North Y N Y N West Surrey CCG NHS Y Y Y N Oxfordshire CCG NHS Y Y Y Y Portsmouth CCG NHS Slough Y N Y N CCG NHS South Y Y Y N

Eastern Hampshire CCG NHS South Kent Y Y Y N Coast CCG NHS South Y N Y N Reading CCG NHS Y N N N Southampton CCG NHS Surrey Y N Y N Downs CCG NHS Surrey Y Y Y N Heath CCG NHS Swale Y N N N CCG NHS Thanet Y Y Y N CCG NHS West Y Y Y N Hampshire CCG NHS West Kent Y Y Y Y CCG NHS Windsor, Y N Y N Ascot and Maidenhead CCG NHS Y N Y N Wokingham CCG