February 24, 2021 CONGRESSIONAL RECORD — SENATE S867 submitted the following resolution; Whereas Rare Disease Day is expected to lin, Alex Haley, Dorothy Height, Jon Hen- which was considered and agreed to: be observed globally for years to come, pro- dricks, Olivia Hooker, Lena Horne, Charles viding hope and information for rare disease Hamilton Houston, Mahalia Jackson, Steph- S. RES. 74 and disorder patients around the world: Now, anie Tubbs Jones, B.B. King, Martin Luther Whereas a rare disease or disorder is a dis- therefore, be it King, Jr., Coretta Scott King, Thurgood ease or disorder that affects a small number Resolved, That the Senate— Marshall, Constance Baker Motley, Rosa of patients; (1) designates February 28, 2021, as ‘‘Rare Parks, Walter Payton, Bill Pickett, Homer Whereas, in the United States, a rare dis- Disease Day’’; and Plessy, Bass Reeves, Hiram Revels, Amelia ease or disorder typically affects fewer than (2) recognizes the importance of, with re- Platts Boynton Robinson, Jackie Robinson, 200,000 individuals; spect to rare diseases and disorders— Aaron Shirley, Sojourner Truth, Harriet Whereas, as of the date of the adoption of (A) improving awareness; Tubman, Booker T. Washington, the Greens- this resolution, more than 7,000 rare diseases (B) encouraging accurate and early diag- boro Four, the Tuskegee Airmen, Prince or disorders affect approximately 1 in 10 indi- nosis; and Rogers Nelson, Recy Taylor, Fred viduals in the United States; (C) supporting national and global efforts Shuttlesworth, Duke Ellington, Langston Whereas children with rare diseases or dis- to develop effective treatments, diagnostics, Hughes, Muhammad Ali, Elijah Cummings orders account for a significant portion of and cures. Ella Fitzgerald, Mamie Till, Toni Morrison, the population affected by rare diseases or Gwen Ifill, Diahann Carroll, Chadwick f disorders in the United States; Boseman, John Lewis, Katherine Johnson, Whereas many rare diseases and disorders SENATE RESOLUTION 75—CELE- Rev. C.T. Vivian, Hank Aaron, Edith Savage- are serious and life-threatening and lack ef- BRATING BLACK HISTORY Jennings, Septima Clark, Mary Mcleod Be- fective treatments; MONTH thune, Cicely Tyson, Mary Wilson, John Whereas, as a result of the enactment of Thompson, John Hope Franklin, and Chief the Orphan Drug Act (Public Law 97–414; 96 Mr. BOOKER (for himself, Mr. SCOTT Justice of South Carolina Ernest Finney, Stat. 2049), important advances have been of South Carolina, Mr. DURBIN, Mr. along with many others, worked against rac- made in the research and treatment of rare BLUNT, Ms. HASSAN, Mr. TILLIS, Ms. ism to achieve success and to make signifi- diseases and disorders; cant contributions to the economic, edu- Whereas the Food and Drug Administra- CORTEZ MASTO, Mr. CRAPO, Mr. MERKLEY, Mr. GRASSLEY, Mr. WYDEN, cational, political, artistic, athletic, lit- tion has made strides in gathering patient erary, scientific, and technological advance- Mr. RISCH, Ms. SMITH, Mr. CRAMER, Mr. perspectives to inform the drug review proc- ment of the United States; ess as part of the Patient-Focused Drug De- MARKEY, Mr. WICKER, Ms. HIRONO, Mr. Whereas the contributions of African velopment program, an initiative that was SULLIVAN, Mr. BROWN, Mr. SHELBY, Mr. Americans from all walks of life throughout reaffirmed under the FDA Reauthorization VAN HOLLEN, Mr. RUBIO, Mr. MENEN- the history of the United States reflect the Act of 2017 (Public Law 115–52; 131 Stat. 1005); DEZ, Mr. SCOTT of Florida, Ms. greatness of the United States; Whereas, although the Food and Drug Ad- DUCKWORTH, Mr. PORTMAN, Mr. Whereas many African Americans lived, ministration has approved more than 880 or- BLUMENTHAL, Mr. HAGERTY, Mr. COONS, toiled, and died in obscurity, never achieving phan indications for drugs and biological the recognition those individuals deserved, Mr. LANKFORD, Ms. BALDWIN, Mr. products for the treatment of rare diseases and yet paved the way for future generations and disorders, 90 percent of individuals in the BRAUN, Mrs. MURRAY, Mr. GRAHAM, Mr. to succeed; United States with a rare disease or disorder WARNER, Ms. ERNST, Mr. KAINE, Mr. Whereas African Americans continue to are not receiving an FDA-approved treat- BURR, Mrs. FEINSTEIN, Mr. YOUNG, Ms. serve the United States at the highest levels ment for their condition; ROSEN, Mr. MURPHY, Ms. SINEMA, Mrs. of business, government, and the military; Whereas limited treatment options and dif- SHAHEEN, Mr. WHITEHOUSE, Mr. SCHATZ, Whereas the birthdays of Abraham Lincoln ficulty obtaining reimbursement for life-al- Mrs. GILLIBRAND, Ms. KLOBUCHAR, Mr. and Frederick Douglass inspired the creation tering and lifesaving treatments can be chal- of Negro History Week, the precursor to KING, Mr. BENNET, Ms. WARREN, Mr. lenging for individuals with rare diseases or Black History Month; disorders and their families; OSSOFF, Mr. HEINRICH, Mr. SANDERS, Whereas Negro History Week represented Whereas rare diseases and disorders in- Mr. CARPER, Mr. CASEY, Mr. REED, Mr. the culmination of the efforts of Dr. Carter clude sickle cell anemia, spinal muscular at- CARDIN, Ms. CANTWELL, Mr. LUJA´ N, G. Woodson, the ‘‘Father of Black History’’, rophy, common variable immune deficiency, Mrs. HYDE-SMITH, Mrs. BLACKBURN, and to enhance knowledge of Black history median arcuate ligament syndrome, gly- Mr. HOEVEN) submitted the following through The Journal of Negro History, pub- cogen storage disease type V, pulmonary hy- resolution; which was considered and lished by the Association for the Study of pertension, hemophilia, cystic fibrosis, sar- agreed to: African American Life and History, which coidosis, amyotrophic lateral sclerosis, and was founded by Dr. Carter G. Woodson and autosomal recessive polycystic kidney dis- S. RES. 75 Jesse E. Moorland; ease; Whereas, in 1776, people envisioned the Whereas Black History Month, celebrated Whereas individuals with rare diseases or United States as a new nation dedicated to during the month of February, originated in disorders can experience difficulty in obtain- the proposition stated in the Declaration of 1926 when Dr. Carter G. Woodson set aside a ing accurate diagnoses and finding physi- Independence that ‘‘all men are created special period in February to recognize the cians or treatment centers with expertise in equal, that they are endowed by their Cre- heritage and achievements of Black people their rare disease or disorder; ator with certain unalienable Rights, that in the United States; Whereas the 116th Congress passed a 4-year among these are Life, Liberty and the pur- Whereas Dr. Carter G. Woodson stated, extension of the Rare Pediatric Disease Pri- suit of Happiness’’; ‘‘We have a wonderful history behind us. . . ority Review Voucher program under section Whereas Africans were first brought invol- If you are unable to demonstrate to the 529(b) of the Federal Food, Drug, and Cos- untarily to the shores of the United States world that you have this record, the world metic Act (21 U.S.C. 360ff(b)) as part of the as early as the 17th century; will say to you, ‘You are not worthy to enjoy Consolidated Appropriations Act, 2021 (Pub- Whereas African Americans suffered en- the blessings of democracy or anything lic Law 116–260; 134 Stat. 1182), providing an slavement and subsequently faced the injus- else.’ ’’; incentive for the development of therapies tices of lynch mobs, segregation, and denial Whereas, since its founding, the United for children with rare diseases; of the basic and fundamental rights of citi- States has imperfectly progressed toward Whereas the 116th Congress passed the Ad- zenship; noble goals; vancing Care for Exceptional Kids Act (Pub- Whereas, in 2021, the vestiges of those in- Whereas the history of the United States is lic Law 116–16; 133 Stat. 852), improving ac- justices and inequalities remain evident in the story of people regularly affirming high cess to coordinated, patient-centered health the society of the United States; ideals, striving to reach those ideals but care for children with complex and rare med- Whereas, in the face of injustices, people of often failing, and then struggling to come to ical conditions in Medicaid; good will and of all races in the United terms with the disappointment of that fail- Whereas the Food and Drug Administra- States have distinguished themselves with a ure, before committing to try again; tion and the National Institutes of Health commitment to the noble ideals on which Whereas, on November 4, 2008, the people of support research on the treatment of rare the United States was founded and have the United States elected Barack Obama, an diseases and disorders; fought courageously for the rights and free- African-American man, as President of the Whereas 2021 marks the 38th anniversary of dom of African Americans and others; United States; and the enactment of the Orphan Drug Act (Pub- Whereas African Americans, such as Lieu- Whereas, on February 22, 2012, people lic Law 97–414; 96 Stat. 2049); tenant Colonel Allen Allensworth, Maya across the United States celebrated the Whereas Rare Disease Day is observed each Angelou, Arthur Ashe, Jr., James Baldwin, groundbreaking of the National Museum of year on the last day of February; James Beckwourth, Clara Brown, Blanche African American History and Culture, Whereas Rare Disease Day is a global event Bruce, Ralph Bunche, Shirley Chisholm, Holt which opened to the public on September 24, that was first observed in the United States Collier, Miles Davis, Louis Armstrong, Larry 2016, on the National Mall in Washington, on February 28, 2009, and was observed in Doby, Frederick Douglass, W. E. B. Du Bois, District of Columbia: Now, therefore, be it more than 100 countries in 2020; and Ralph Ellison, Medgar Evers, Aretha Frank- Resolved, That the Senate—

VerDate Sep 11 2014 03:55 Feb 25, 2021 Jkt 019060 PO 00000 Frm 00035 Fmt 0624 Sfmt 0634 E:\CR\FM\A24FE6.032 S24FEPT1 dlhill on DSK120RN23PROD with SENATE S868 CONGRESSIONAL RECORD — SENATE February 24, 2021 (1) acknowledges that all people of the sion of the Senate on Wednesday, Feb- S. 422 United States are the recipients of the ruary 24, 2021, at 4 p.m., to conduct a Be it enacted by the Senate and House of Rep- wealth of history provided by Black culture; hearing. resentatives of the United States of America in (2) recognizes the importance of Black His- Congress assembled, SELECT COMMITTEE ON INTELLIGENCE tory Month as an opportunity to reflect on SECTION 1. SHORT TITLE. the complex history of the United States, The Select Committee on Intel- This Act may be cited as the ‘‘Senate while remaining hopeful and confident about ligence is authorized to meet during Shared Employee Act’’. the path ahead; the session of the Senate on Wednes- SEC. 2. ALLOWING SENATORS, COMMITTEES, (3) acknowledges the significance of Black day, February 24, 2021, at 10 a.m., to LEADERSHIP OFFICES, AND OTHER History Month as an important opportunity conduct a hearing on a nomination. OFFICES OF THE SENATE TO SHARE to commemorate the tremendous contribu- EMPLOYEES. tions of African Americans to the history of SELECT COMMITTEE ON INTELLIGENCE (a) IN GENERAL.—Section 114 of the Legis- the United States; The Select Committee on Intel- lative Branch Appropriation Act, 1978 (2 (4) encourages the celebration of Black ligence is authorized to meet during U.S.C. 4576) is amended— History Month to provide a continuing op- the session of the Senate on Wednes- (1) by inserting ‘‘(a)’’ before ‘‘Notwith- portunity for all people in the United States day, February 24, 2021, at 1 p.m., to standing’’; to learn from the past and understand the conduct a closed hearing. (2) by striking ‘‘position, each of’’ and all experiences that have shaped the United that follows through the period at the end States; and f and inserting the following: ‘‘qualifying posi- (5) agrees that, while the United States tion if the aggregate gross pay from those began as a divided country, the United AUTHORIZING EXPENDITURES BY positions does not exceed— States must— COMMITTEES OF THE SENATE ‘‘(1) the maximum rate specified in section (A) honor the contribution of all pioneers Ms. SMITH. Mr. President, I ask 105(d)(2) of the Legislative Branch Appro- in the United States who have helped to en- unanimous consent that the Senate priation Act, 1968 (2 U.S.C. 4575(d)(2)), as amended and modified; or sure the legacy of the great United States; proceed to the consideration of Cal- and ‘‘(2) in a case where 1 or more of the indi- (B) move forward with purpose, united tire- endar No. 6, S. Res. 70. vidual’s qualifying positions are positions lessly as a nation ‘‘indivisible, with liberty The PRESIDING OFFICER. The described in subsection (d)(2)(B), the max- and justice for all.’’. clerk will report the resolution by imum rate specified in section 105(e)(3) of the f title. Legislative Branch Appropriation Act, 1968 (2 The senior assistant legislative clerk U.S.C. 4575(e)(3)), as amended and modified.’’; AUTHORITY FOR COMMITTEES TO read as follows: and MEET (3) by adding at the end the following: A resolution (S. Res. 70) authorizing ex- ‘‘(b)(1) For an individual serving in more Mr. DURBIN. Mr. President, I have 8 penditures by committees of the Senate for than 1 qualifying position under subsection requests for committees to meet during the periods March 1, 2021 through September (a), the cost of any travel for official busi- today’s session of the Senate. They 30, 2021, October 1, 2021 through September ness shall be paid by the office authorizing have the approval of the Majority and 30, 2022, and October 1, 2022 through February the travel. Minority leaders. 28, 2023. ‘‘(2) Messages for each electronic mail ac- Pursuant to rule XXVI, paragraph There being no objection, the Senate count used in connection with carrying out 5(a), of the Standing Rules of the Sen- proceeded to consider the resolution. the official duties of an individual serving in ate, the following committees are au- Ms. SMITH. I ask unanimous consent more than 1 qualifying position under sub- that the resolution be agreed to and section (a) may be delivered to and sent from thorized to meet during today’s session a single handheld communications device of the Senate: the motion to reconsider be considered provided to the individual for purposes of of- COMMITTEE ON ENERGY AND NATURAL made and laid upon the table with no ficial business. RESOURCES intervening action or debate. ‘‘(3)(A) For purposes of the Ethics in Gov- The Committee on Energy and Nat- The PRESIDING OFFICER. Without ernment Act of 1978 (5 U.S.C. App.), the rate ural Resources is authorized to meet objection, it is so ordered. of basic pay for an individual serving in more during the session of the Senate on The resolution (S. Res. 70) was agreed than 1 qualifying position under subsection Wednesday, February 24, 2021, at 10 to. (a) shall be the total basic pay received by the individual from all such positions. a.m., to conduct a hearing on a nomi- (The resolution is printed in the ‘‘(B) For an individual serving in more nation. RECORD of February 23, 2021, under than one qualifying position under sub- COMMITTEE ON ENVIRONMENT AND PUBLIC ‘‘Submitted Resolutions.’’) section (a), for purposes of the rights and ob- WORKS f ligations described in, or described in the The Committee on Environment and provisions applied under, title II of the Con- Public Works is authorized to meet SENATE SHARED EMPLOYEE ACT gressional Accountability Act of 1995 (2 during the session of the Senate on U.S.C. 1311 et seq.) related to practices used Ms. SMITH. Mr. President, I ask at a time when the individual is serving in Wednesday, February 24, 2021, at 10:15 unanimous consent that the Senate such a qualifying position with an employing a.m., to conduct a hearing. proceed to the immediate consider- office, the rate of pay for the individual shall COMMITTEE ON FINANCE ation of S. 422, which was introduced be the individual rate of pay received from The Committee on Finance is author- earlier today. the employing office. ized to meet during the session of the The PRESIDING OFFICER. The ‘‘(c)(1) If the duties of a qualifying position Senate on Wednesday, February 24, clerk will report the bill by title. under subsection (a) include information 2021, at 10:15 a.m., to conduct a hearing technology services and support, an indi- The senior assistant legislative clerk vidual may only serve in the qualifying posi- on a nominations. read as follows: tion and 1 or more additional qualifying po- COMMITTEE ON INDIAN AFFAIRS A bill (S. 422) to allow Senators, Senators- sitions under such subsection if the indi- The Committee on Indian Affairs is elect, committees of the Senate, leadership vidual is in compliance with each informa- authorized to meet during the session offices, and other offices of the Senate to tion technology standard and policy estab- of the Senate on Wednesday, February share employees, and for other purposes. lished for Senate offices by the Office of the 24, 2021, at 2:30 p.m., to conduct a hear- There being no objection, the Senate Sergeant at Arms and Doorkeeper of the ing. proceeded to consider the bill. Senate. ‘‘(2) Notwithstanding subsection (a), an COMMITTEE ON SMALL BUSINESS AND Ms. SMITH. I further ask unanimous employee serving in a qualifying position in ENTREPRENEURSHIP consent that the bill be read a third the Office of the Secretary of the Senate or The Committee on Small Business time and passed and the motion to re- the Office of the Sergeant at Arms and Door- and Entrepreneurship is authorized to consider be considered made and laid keeper of the Senate may serve in an addi- meet during the session of the Senate upon the table with no intervening ac- tional qualifying position only if— on Wednesday, February 24, 2021, at 2:30 tion or debate. ‘‘(A) the other qualifying position is with p.m., to conduct a hearing on a nomi- The PRESIDING OFFICER. Without the other Office; or nation. objection, it is so ordered. ‘‘(B) the Committee on Rules and Adminis- tration of the Senate has approved the ar- COMMITTEE ON VETERANS’ AFFAIRS The bill (S. 422) was ordered to be en- rangement. The Committee on Veterans’ Affairs grossed for a third reading, was read ‘‘(d) In this section, the term ‘qualifying is authorized to meet during the ses- the third time and passed, as follows: position’ means a position that—

VerDate Sep 11 2014 03:55 Feb 25, 2021 Jkt 019060 PO 00000 Frm 00036 Fmt 0624 Sfmt 0634 E:\CR\FM\A24FE6.033 S24FEPT1 dlhill on DSK120RN23PROD with SENATE