MSConnection July/August 2003 Vol. 03, Issue 4 Greater Connecticut Chapter

Complementary and Alternative Medicine hen faced with a diagnosis of MS, people investigate all possible Women Against W avenues for treatment. Every day the Chapter receives phone calls and e-mails MS New Haven about effective therapies. The questions focus on the disease modifying drugs, Avonex, Thursday, September 25 Betaseron, Copaxone and Rebif or other omen Against treatments such as Novantrone, chemotherapy MS is coming medications, steroids, or symptom manage- to New Haven! ment drugs used to treat bladder difficulties, W Join keynote speaker spasticity, fatigue, depression or other Zoe Koplowitz and problems. We also get questions about non- hundreds of women for traditional approaches. People want to know lunch this September Zoe about everything from dietary supplements to Koplowitz bee venom therapy. at Woodwinds in Branford. Studies show that approximately two thirds of people with MS have continued on page 14 tried some form of non-traditional therapy. Usually, this is done in ADDITION to traditional medical approaches, not INSTEAD of using conventional medicine. At the focus groups conducted by the Chapter last year, we found that many people with MS are using alternative therapies and are interested in learning more about this subject. With MS Sights & Sounds so many people trying alternative therapies, it is important to provide September 20 & 21 accurate, factual, information about both the risks and benefits associated. Yet, many people use the Internet as their resource, oin us this without really knowing the validity of the information. September for J the Bayer MS When people have questions about alternative practices, they should Sights & Sounds not hesitate to call the Programs staff at the Chapter. Our most Bike Tour, New continued on page 12 England’s best-kept secrets. Successful Transplant of Cells continued on page 10 esearchers at the San Raffaele Hospital (Milan, Italy) published landmark Rev’in It Up For MS! R results of studies in which they oin us this successfully injected adult mouse neural stem summer for cells to promote tissue repair and clinical J the third recovery in mice with MS-like disease. annual MS Motor- Researchers report that immature nerve cells cycle Ride. Motor- (adult mouse neural stem cells, or neuro- cyclists will travel spheres) injected into the blood or brain cavities of mice with MS-like 60-miles through disease can move throughout the brain and spinal cord to sites of continued on page 9 tissue damage, promote repair of nerve-insulating myelin, decrease damage to nerve fibers, and reverse clinical disease. If confirmed, this success in lab animals represents a significant step forward in the Inside This Issue . . . effort to find a way to repair nerve tissue damage in people with MS. In recent years, scientists have been exploring ways to repair the President’s Message ...... 2 damage of brain and spinal cord tissues during the course of the Research Highlights ...... 6 immune attack in MS. Evidence suggests that the body does successfully repair some myelin damaged in MS, but not enough to Support Groups ...... 19 keep up with its loss. Research has shown that adult brains contain Calendar of Events...... 20 continued on page 7

The National MS Society . . . One thing people with MS can count on. President’s Message Waxman and his esteemed nerve fibers from damage, and colleagues provided hope at MS enhance the growth of nerve Research Night. They removed fibers and recovery of function. the lid from this complex Another could stop the immune- disease and let us examine cell invasion into the brain in by what they see inside. All the MS-like disease. Lisa Gerrol researchers are confident that Through dedication and current breakthroughs in collaboration these Connecticut research are moving us closer to researchers are searching for a cure. Each said they are the silver bullet. As they move ometimes I’m asked if slowly removing the layers and closer to that end, people with we will ever find a cure piecing the puzzle together. MS continue to benefit from Sfor MS. All of us are How could this local research their initial findings and from hopeful and encouraged when impact MS? One study may lead your continued support. Thank we read the latest research to new means of protecting you. ■ bulletins. But when we are confronted with “more research is necessary” or “approval is pending”, these closing statements sometimes cause us to wonder when we’ll ever get there and find that silver Call to Action bullet, a cure for MS. Each hanks to significant advances in research, the FDA has small step towards a cure is a approved several treatments that may alter the underlying victory that brings us closer to disease course of multiple sclerosis, and early treatment is eventually winning the battle, T critically important. People with MS should consult their doctors and we certainly are getting about using one of these FDA-approved medications and other closer. effective treatments for the symptoms of MS. If you or someone Recently more than 100 people you know has MS, contact the National Multiple Sclerosis Society with MS and their families in at 1-800-FIGHT MS or nationalmssociety.org for more the Greater Connecticut information. ■ Chapter area discovered this after they had the opportunity to meet local researchers who could possibly hold the key to a cure or better therapies for The mission of the National MS Society is to MS. Nine researchers from the end the devastating effects of multiple sclerosis. University of Connecticut and (860) 953-0601 • 1-(800) FIGHT MS (344-4867) • Fax (860) 953-0602 Yale were recognized for their www.nationalmssociety.org or contributions to MS research at MS Research Night: Many www.ctnmss.org (Local Web Site) Minds, One Goal. They Dan Doty, Chairman, Board of Trustees represent only a small fraction Lisa Gerrol, President and Chief Professional Officer of the 300 MS research investigations nationally, but Jill Zorn, Chapter Programs Director their contributions are Susan Raimondo, Community Programs Director immense. Gary Griffin, Editor We have some of the nation’s The Greater Connecticut Chapter of the National Multiple Sclerosis elite MS researchers right in Society is proud to be a source of information about multiple sclerosis. our own backyard. Much of Our comments are based on professional advice, published experience their work has been recognized and expert opinion, but do not represent therapeutic recommendation at the national level and in or prescription. For specific information, consult a qualified physician. The Greater Connecticut Chapter of the National Multiple Sclerosis prestigious medical journals. Society does not endorse products, services or manufacturers. Such Dr. Stephen Waxman of Yale names appear in this publication solely because they are considered and MS Research Night valuable information. The chapter assumes no liability whatsoever for keynote speaker is one of only the contents or use of any product or service a handful of researchers to win mentioned. the Dystel Prize, given jointly The publisher reserves the right to refuse by the National MS Society advertising deemed inappropriate to the and the American Academy of philosophy of the National Multiple Sclerosis Neurology. Society.

2 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Chapter Advocates In Raising Moo-Lah for MS Washington owParade will be delegation from hosting cows in West Connecticut CHartford from A including September through Jennifer Werner, a December. “CowParade West volunteer on our Government Relations Hartford, The Cows Come Committee, Jill Zorn, Home” presented by Guida’s Chapter Programs Milk & Ice Cream will Cowabunga (surfer cow) Director and Susan feature 50 or moo-re original Raimondo, Community Programs Director pounded the pavement this spring in Washington, DC to creations by top regional artists and a special advocate for federal programs and services that “Moooving Herd” collection of cows from past benefit people with MS. events, turning the The main issues that the MS Society is advocating charming West Hartford for during the 108th Congress include: Center into a virtual cow • Medicare Prescription Coverage of all 4 MS moo-seum. injectable medications. Bill HR 1956 would amend part B of title XVIII of the Social Security Act to To make the event provide coverage of certain self-administered “udderly” unique, intramuscular and subcutaneous drugs under the CowParade is inviting top Medicare Program. This was introduced on May 6, artists from past 2003 by Representative James C. Greenwood of CowParades. Pennsylvania. •The Lifespan Respite Care Act of 2003 (Bill HR CowParade West 1083), which would amend the Public Health Hartford will conclude Service Act to establish a program to assist family with a live auction. caregivers in accessing affordable and high-quality Proceeds from Guida’s 15 respite care, and for other purposes. Daisy’s Dream cows will benefit the •Comprehensive Medicare Prescription Drug Benefit Greater Connecticut Chapter.For more If you would like to get more involved with our Government Relations Committee, contact Susan information visit Raimondo at 800-233-7617, ext. 229. ■ www.cowparade.net/west_hartford ■ Many Minds, One Goal Protecting Legislation, ore than 100 Advocating for More people he Greater Connecticut Chapter sent attended M advocates to the Capitol in April for Lobby Many Minds, One Day. More than 25 advocates met with their Goal: Research Night T legislators in support of the Society’s legislative 2003, at the Rocky agenda. Hill Marriott. Research Night The day included an issues update with Chapter honors Connecticut’s lobbyist, Betty Gallo of Betty Gallo and Company. National MS Society Research Grantees and provides Highlights of the event included presentations by information about local MS research projects. Representative Steve Fontana, Representative Toni Dr. Stephen Waxman, Professor and Chairman of Walker, House Majority Leader, Representative Neurology at Yale University in New Haven was the James Amann and Assistant President Pro Tempore keynote speaker and master of ceremonies. of the Senate, State Senator Edith Prague. The honorees were, from the University of Lobby Day is an Connecticut: Rashmi Bansal, PhD, Akiko Nishiyama, MD, PhD; Nada Zecevic, MD, PhD; Elisa Barbarese, opportunity for the PhD; Cecilia Marta, PhD; and Joel Pachter, PhD. critical perspective From Yale University: Jeffery Kocsis, PhD; Nancy of people with MS Ruddle, PhD; and Stephen Waxman, MD, PhD. and their families The Greater Connecticut Chapter thanks the to be heard. If you following companies for supporting the program: would like to join our MS Action Silver Sponsors Network, contact BIOGEN Susan Raimondo SERONO/PFIZER (REBIF) at the chapter office, 860-953- Lisa Gerrol, president Greater Supported by 0601, ext. 229. ■ Connecticut Chapter, BERLEX LABORATORIES (BETASERON) Representative James Amann and Peggy Lutz, president Western TEVA NEUROSCIENCE ■ Connecticut Chapter

Visit Our Web site at: ctnmss.org MS Connection 3 Travel Tips Editor’s Note: or scooters be Summer has finally equipped with a “gel ushered itself in and cell” or “dry cell” for many that batteries. “Wet cell” signals the batteries, similar to the ones used in beginning of the automobiles, are travel season. Before strongly discouraged you take to the skies, since airlines must separate these from your scooter roads and rails here or wheelchair and store them in a leak proof are some helpful container. travel tips that may Scooters – To protect your scooter from other help you have a more pleasurable experience. passengers and airline staff, we recommend the following: Before turning the scooter over to the What to Know Before You Go airline staff, place a piece of removable tape on top of the throttle control and secure the throttle raveling With Wheelchair or Scooter – control in the slowest position. This tape should If your chair has not been serviced recently, read “Do Not Remove.” Be sure the key, or power T send it to a repair shop for a general check pin, is well secured to the scooter. Use a strong, over. For domestic travel, place your name and durable cord to attach the key or control pin. Do not address on all removable parts of your wheelchair use a rubber band. A 12 or 14 inch steel leader that before leaving home. A return address, sticky can be purchased at any fishing supply store is mailing label covered by a piece of clear tape, works recommended. Remove baskets and portable seat well for this task. However, for international travel cushions . . . these do not travel well and are likely during times of heightened security, consider using to be lost. a label that displays only your name. Electric Wheelchairs – Switch the transmission If your wheelchair is equipped with pneumatic to “neutral” so the chair can roll freely. Unplug the tires, bring a small repair kit containing the items battery connection and place a piece of electrical necessary to change a flat. Bicycle repair shops tape on both connectors. If the power cord is have all types of nifty, compact, repair kits. These removable, take it with you in your carry on bag. resources may not be available in Europe or other parts of the globe so make sure your equipment is If the entire “joystick control” can be removed . . . in top working order before leaving home. remove it! If not, loosen the knob that positions the joystick control and point the joystick downward, Air Travel – Confirm your towards the ground. An unprotected joystick is an flights with your airline 24-48 accident waiting to happen. hours before departure. Flight times and flight numbers are Aisle Chairs – The aisle chair is a skinny, narrow, subject to change. You must seat on wheels used to usher passengers down the notify the airline that you will aisle of the aircraft. be traveling by wheelchair. And inform them of the Most airline seating configurations include seats type: manual, electric, or scooter. When confirming with “knock down” or “fold down” arm rests. Knock your flight, ask the airline for “maximum down armrests help ease the requests for bulkhead assistance” at all airport terminals. Reconfirm your seating. The amount and distribution of these seats request for “maximum assistance” when you arrive has made it possible for airlines to accommodate at the airline ticket counter. the increased number of wheelchair travelers Unfortunately, when it comes to handling taking to the skies. wheelchairs and scooters, not all airlines make the By law the airline is required to store your extra effort to ensure that these vital luggage items wheelchair in the aircraft cabin (providing space is make it to their destinations unharmed. available). You should not expect any airline to At the airport, ask the ticket personnel to “gate handle your wheelchair with extreme care, or to check” your wheelchair and obtain a luggage claim perform every task correctly. The job of the airline receipt for your wheelchair. When you “gate check” is the safe transport of passengers. The job of the your wheelchair it allows you to roll your wheelchair passenger is to properly prepare their wheelchair directly to the fuselage of the plane wheelchair for flight. Hopefully, by following our where you will either walk to your seat or transfer simple suggestions your wheelchair will arrive into an “aisle chair” for assistance to your seat. safely too. Before turning your wheelchair over to the airline – Some information courtesy of Accessible Journeys. staff, remove the leg supports and portable seat Visit www.disabilitytravel.com. cushions and carry these into the plane . . . these Travel Resources: items are most likely to be lost. Collapse your wheelchair and use a small strap or a piece of “duct www.access-able.com tape” to hold the sides together. This makes for a compact wheelchair less likely to be damaged from airport handling. www.sath.org

Air Travel: Scooters & Electric Wheelchairs – Disability Travel and It is strongly recommend that electric wheelchairs Recreation Resources www.makoa.org/travel.htm

4 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Ask the Professional A special needs trust acts like an emergency back- up fund that is secondary to public resources. The Michael J. Keenan is an trustee is directed to use the funds to provide for elder law attorney at the needs of the beneficiary that are not covered by Kearns & Kearns, PC in SSI and Medicaid. The result is that the beneficiary West Hartford. Attorney remains eligible for public benefits and receives Keenan specializes in coverage for “necessities” while still having access estate planning, probate to a special fund to cover needs that are not covered law and Medicaid/Title 19 by government benefits. Examples include: planning. Contact (860) recreation, help with housework, an electric 233-1281 or e-mail wheelchair or a handicapped-accessible car or van. [email protected] The main purpose of the trust is to supplement and Michael J. Keenan Q: What options do I have not replace government benefits. for including my spouse or other family The trustee (or co-trustees) should be chosen very member with MS in my estate planning? carefully. The trustee should be someone who (a) A: Most families mistakenly assume that a family has a good understanding of the beneficiary’s MS, member with MS must be disinherited in order to (b) knows the eligibility rules for SSI and Medicaid, preserve their eligibility for government benefits. and (c) is responsible with managing finances. Or worse, they leave money to them in a “general The language of the trust cannot give the person support” trust. If you have a family member with with MS any power over the trust funds. The MS, you must be aware that a “special needs trust” trustee must be given sole and absolute discretion is usually your best estate planning option. over trust fund management and distribution. A “special needs” trust provides a source of funds A properly drafted and properly managed special for the beneficiary while simultaneously preserving needs trust can be an excellent option for families any government benefits the beneficiary is who wish to provide for family members with MS currently receiving or may receive in the future. without disrupting government benefit eligibility. ■ Many people with MS receive both SSI (Supple- mental Security Income) and Medicaid. However, you cannot be eligible for these benefit programs unless your level of assets and income are extremely low.

Save the Date! The Greater Connecticut and Central New England Chapters of the National Multiple Sclerosis Society will be hosting MS Vacation Week from Sunday, May 23 to Friday, May 28, 2004 at Easter Seals Camp Hemlocks. Mark Your Calendars! If you are interested in attending or volunteering for MS Vacation Week and would like to receive additional information, call the Chapter programs department at 860-953-0601 or 800-233-7617.

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Visit Our Web site at: ctnmss.org MS Connection 5 R e s e a r c h H i g h l i g h t s Under the Microscope Cecilia Marta, PhD Q: How is the investigating going? Is it Postdoctoral Fellow showing any promise? Department of Neuroscience A: The investigation is progressing well. We are University of Connecticut School identifying the proteins involved in anti-MOG of Medicine antibody signaling with a combination of Q: How long have you been proteomic approaches. Using a combination of two- funded by the NMSS? dimension gel electrophoresis, Western blot A: I received an advanced analysis of phosphorylated proteins, and mass postdoctoral fellowship from the spectrometry, we can identify hundreds of proteins NMSS approximately a year ago. in a single experiment. Cecilia Marta, PhD Q: What are some of your Q: What does this research mean for people investigations? with MS? Could it have an immediate impact? A: I am concentrating on understanding how A: Our hope is that our results would have an certain cells of the brain, the oligodendrocytes, immediate impact for people with MS, although it respond to external stimuli, such as the ones is always hard to predict. We are concentrating involved in Multiple Sclerosis (MS). I study now on the identification of the main players of oligodendrocytes because these cells synthesize demyelination that would allow the design of new myelin, the membrane that wraps axons, therapies to target them. facilitating nerve conduction. Loss or damage of this functionally active membrane results in Q: Why is it important for the Society to fund neurological deficits. this research? Q: Have you had success? A: Our work is directly related to MS and the Society funding is helping us to develop this A: Yes. Our work was recently accepted for project. publication in the Journal of Neuroscience, and we have successfully presented our results in Q: Why does your research involve MS? different meetings for scientific societies as well as in our scientific community at the University of A: As I mentioned above, demyelination is a key Connecticut. feature in MS and the role of anti-MOG antibodies in this process is well established. We are now Q: Why did you choose to investigate “MOG understanding how the demyelination starts and signaling in oligodendrocytes via lipid rafts”? identifying the players involved in this process. A: Because of its implications for MS. It is a very challenging project, showing how basic science can Q: What do you think the future holds for have a direct and important impact in someone with MS? understanding a disease (MS in this case). A: MS is a very complex pathology, involving what I would call a series of chain reactions, from an Q: What does this mean? abnormal immune response, accessibility of this A: Myelin oligodendrocyte glycoprotein (MOG) is response to the brain, damage of myelin and quantitatively a minor component of the myelin axons, alterations in conduction velocity through membrane. Administration of MOG in animals axons, overall resulting in disability of sensory evokes pathology similar to MS in humans. function. Despite this complexity, there are a lot of Antibodies against MOG are elevated in MS research groups whose work stands at different patients and cause myelin destruction. Therefore, points of this chain, all with the goal of it appears that MOG-related myelin loss is understanding the molecular mechanism involved dependent on anti-MOG antibody. However, the at a particular step and the design of new mechanism(s) is unclear. therapies. It is hard to predict whose work will Of potential significance are observations that succeed to prevent or ameliorate MS, but the some protein components are selectively probability that at least one will be successful and distributed into specialized microdomains (“lipid will stop the chain reactions is high. ■ rafts”) in the plasma membrane that may serve as platforms for the initiation of signaling between the environment and the cell. In myelin several proteins, including MOG, are associated with rafts, whereas others are excluded. Our data shows that Home Sweet Home upon anti-MOG antibody exposure, specific protein HEALTHCARE tyrosine, serine and threonine residues become Wheelchairs – Manual, phosphorylated or dephosphorylated, which is Motorized, & Lightweight

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6 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS R e s e a r c h H i g h l i g h t s Aricept® Shows Potential to Improve Memory in MS new study showed that the oral medication cognitive improvements in 54.3 percent of the Aricept® (donepezil hydrochloride, Pfizer, Aricept group, versus 29.4 percent in the placebo A Inc.) modestly improved performance on a group. The study did not examine the extent to memory test in individuals with multiple sclerosis which improvement in memory might have had an (MS). impact on everyday activities. Cognitive changes often occur in MS, most The drug was well tolerated. Two persons in the commonly problems with learning, memory and the Aricept group and two in the placebo group stopped speed of information processing. Although these treatment due to gastrointestinal symptoms. problems are not equivalent to those seen in This study, although small, suggests that Aricept Alzheimer’s disease, researchers are investigating may have the potential to modestly improve whether Aricept – a drug shown to improve memory function in individuals with MS who have memory in Alzheimer’s disease – can improve mild to moderate cognitive impairment. However, it memory in MS. Aricept is an inhibitor of an enzyme is not clear to what extent this improvement would (acetylcholinesterase) that normally breaks down have an impact on daily activities. Larger studies messenger chemicals (neurotransmitters) through are needed to confirm the safety and benefits of this which brain cells communicate. It is thought to medication for improving memory in MS. enhance memory by temporarily increasing the — Research Programs Department ■ concentration of neurotransmitters that are involved in memory. There is no evidence that it alters the underlying course of Alzheimer’s disease or MS. Two open-label studies have found that Aricept improved cognitive function in people with MS. (In the open-label studies, all participants were treated with Aricept, and no comparison with inactive placebo was undertaken.) A recent clinical trial of Successful Transplant of Cells Aricept in people with MS who had cognitive continued from Page 1 dysfunction was discontinued because sufficient numbers of patients could not be enrolled in the stem cells – also known as precursors or study. Now, researchers are reporting results from a progenitors – that might serve as replacement cells. small study of Aricept in people with MS with mild It has been hoped that, given the right signals, to moderate cognitive impairment. these may be stimulated to grow into viable new After screening to ascertain eligibility for the trial, tissue. individuals in the study were randomly assigned to These exciting results, if confirmed, represent an once-daily oral treatment with Aricept (35 subjects) early but significant step forward in efforts to find a or inactive placebo (34 subjects). Treatment way to repair nerve tissue damage that may be continued for 24 weeks, with safety, clinical and relevant in people with MS. They must be viewed neurological assessments conducted at weeks 4, 14 with caution, given the differences between mice and 24. Study participants and clinic personnel and humans, and the problem of identifying donor were “blinded” as to which treatment each cells that would not be rejected by recipients’ individual was taking. The primary outcome immune systems. measured was the participants’ ability to recall words that they learned on the Selective Studies involving transplantation of immature Reminding Test (SRT), a test widely used in MS myelin-making cells (oligodendrocyte precursors) and other conditions. The basic task involved in the have been successful in rodent models, triggering SRT is learning and then recalling a list of 12 recovery of function and restoring nerve conduction. words presented six times in a single session. The However, such repair has only been successful in maximum possible score is thus 72. Researchers isolated areas of the brain, whereas MS and MS- also recorded, as secondary outcomes, the clinicians’ like diseases in animal models involve lesions and patients’ impressions of how cognitive function scattered throughout the brain and spinal cord. changed during the study period. Finding a way to introduce potential replacement cells that can migrate throughout the central Individuals taking Aricept showed significantly nervous system and hone in on damaged areas has greater improvements on the SRT than people presented a significant hurdle in this field. taking placebo. On average, those taking Aricept improved their SRT scores by approximately 5 Neural stem cells transplanted into mice with an compared to approximately1 for those taking MS-like disease were able to migrate to multiple placebo. This difference remained significant even if areas of myelin and nerve fiber damage in mice other factors that might have affected cognitive with an MS-like disease, repair this damage, and function, such as reading level or years of restore clinical function. Clinical recovery occurred education, were taken into consideration. In faster when cells were injected into the addition, 65.7 percent of subjects in the Aricept bloodstream, suggesting that less invasive methods group reported cognitive improvements, versus 32.4 of tissue repair may be possible. percent in the placebo group. Clinicians noted — Research Programs Department ■

Visit Our Web site at: ctnmss.org MS Connection 7 R e s e a r c h H i g h l i g h t s

$13 Million Awarded For New Changes in Prescription MS Research Projects Drug Coverage

he National Multiple he Medicaid/Title Sclerosis Society has just XIX (19) Connecticut T committed $13.4 million to T Pharmacy Assistance support 31 new research projects by Program for individuals has top scientists investigating many implemented a number of aspects of multiple sclerosis (MS). new policy changes that Added to present commitments, the Society will could make accessing spend some $30 million this year to fund over 300 prescription drugs more new and ongoing MS investigations – more MS difficult. research than any voluntary health organization in the world – to cure, treat, and better Beginning in July, the Medicaid Pharmacy understand this unpredictable disease of the Assistance Program requires prior authoriza- central nervous system. tion of some prescriptions, before they can be filled by a pharmacy. Your pharmacist will have In addition to the 31 new projects, the Society to contact a service. launched three new Collaborative MS Research Centers, committing $2.48 million to three teams What does this mean for people with MS on of investigators from diverse fields focusing on Title XIX? promising avenues of research related to MS If your doctor prescribes a medication that costs genes, tissue repair and diagnostic technology. more than $500 per month, it is necessary for your pharmacist to obtain Prior Authorization “These new research projects hold incredible before the prescription can be filled. Once filled, promise for advancing our understanding of MS,” the Prior Authorization is good for up to six says Stephen C. Reingold, PhD, Vice President of months. Research Programs. “We’ve invested $380 million to find the cause and cure for MS since our If you use medications that have generic founding 56 years ago – an investment into basic substitutions available, pharmacists will fill your and clinical research that is responsible for the prescription using the generic drug. However, if a rapid progress we’re seeing now.” person is not able to use the generic drug, and a specific brand name drug is medically necessary, There are now five drugs on the U.S. market pharmacists must obtain Brand Medically (Avonex, Betaseron, Copaxone, Novantrone and Necessary Prior Authorization. Prior Rebif) that can impact the underlying disease authorization is also necessary if you need an course in people with the more common forms of early refill on your medication. MS. But none of these drugs can stop or reverse the disease. The National MS Society funded In April 2003, the Department of Social Services much of the basic research that led to the implemented a $1 co-pay for prescription development of several of these drugs, and medications. If you are unable to afford the continues to advance research that will help end co-pay do not stop taking your medication! There the devastating effects of MS. is help . . . Two of the newly funded projects focus on the Statewide Legal Services has developed a wallet- Society’s targeted research initiative on gender sized card that you can present to pharmacists differences in MS. Another new grant supports an that cites State/Federal laws. This card should innovative study in Australia designed to assist you in getting your prescription filled if you determine whether exposure to sunlight protects are on Title XIX. Call the chapter office for a copy against the development of MS. of the card. Funds for research awards are provided in large Editor’s note: If you are having difficulty getting part by contributors to the nationwide network your medications filled under Medicaid, please ■ of local chapters of the National MS Society, contact the Chapter at 800-233-7617. which also provide programs in communities across the U.S. ■

8 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Rev’in It Up . . . Sponsors continued from Page 1

northern Connecticut to support the programs and services provided by the Greater Connecticut Chapter. The July 27 ride starts at TSI Harley-Davidson in Ellington and ends at East Hartford Elk’s Lodge. Participants will enjoy a raffle, live music and free BBQ at the end of the ride. The top two fund-raisers receive leather jackets courtesy of TSI Harley-Davidson. Fees for the tour are $20 for riders and $10 for passengers. To register, visit www.ctnmss.org or call (860) 953- 0601. All motorcycles welcome! ■

Incentive Prizes: Raise Receive $500 Leather Riding Gloves, T-Shirt, Bandanna & Pin $300 MS Motorcycle Ride Sweatshirt, T-Shirt, Bandanna & Pin Northeast Beverage Corporation of Connecticut $150 MS Motorcycle Ride Long-Sleeved T-Shirt, Bethel, CT T-Shirt, Bandanna & Pin $55 MS Motorcycle Ride T-Shirt, Bandanna & Pin $40 MS Motorcycle Ride Bandanna & Pin $20 MS Motorcycle Ride Pin

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Visit Our Website at: ctnmss.org MS Connection 9 MS Sights & Setting the Pace in Cyberspace Sounds . . . Teams are the theme of this year’s tour. continued from Page 1 One person can make a ripple; a team can make a splash! The tour, 55-miles the first day Team captains and bikers can use the and 60-miles the second, takes Chapter’s newly upgraded website to participants along scenic roads, fundraise and recruit team members. Post through charming historic towns, information, and pictures on your own state parks and along the personal section of the Chapter’s website! Connecticut coastline. To register a team or use the personal web pages, log onto It’s more than a bike tour. It’s a www.ctnmss.org and click on the team section. two-day adventure that shortens the road to a cure for MS. The All cyclists receive a commemorative 8th Annual Bayer MS cure might just be hanging in Bike Tour T-Shirt and Water Bottle. your garage. Deadline: To qualify for prizes, bikers must turn in pledge money More than 35,000 state residents affected by MS will benefit from to the National MS Society, Greater CT Chapter office before your participation. Our goal is to October 25, 2003. have 260 riders raise $135,000 to support Chapter programs, Incentive Prizes services and research. Raise Win The tour starts Saturday $7,500 MS Tour of Champions Trip & MS Tour Jersey morning, September 20 from the $5,000 MS Tour Jersey & $500 Bike Shop Gift Certificate pavilion at Hammonasset State $2,500 MS Tour Jersey And MS Tour Jacket Park and travels north along the $1,000 MS Tour Jersey And MS Tour Sweatshirt Connecticut coast 55-miles to Saturday’s final checkpoint, $ 750 MS Tour Jersey Sunrise Resort in Moodus. $ 500 MS Tour Sweatshirt Complete with three rest stops per day featuring refreshments and lunch, the ride also features Elite Fundraising Clubs sag wagons, motorcycle escorts, and bike shop support. Millennium Circle At Sunrise Resort, cyclists will be treated to a pasta dinner, and Participants who raise $2,000 or more receive a Commemorative are free to utilize the resort’s watch or pen set coupled with local recognition! facilities, such as a pool, hot tub, and sauna during their overnight stay. Mission Possible On Sunday cyclists enjoy a carb- loaded breakfast before the Participants who raise $10,000 or more receive the Millennium second leg of the tour that Circle benefits in addition to a Mission Focused Award and travels through Devil’s Hopyard national recognition! and back down the coast for a welcoming celebration and beach party at Hammonasset State Park. Special Thanks Everything kicks off Sept. 20th at Hammonasset State Park. So come ride with us because this tour will be one to remember! Register at www.ctnmss.org or call (860) 953-0601. ■

The MS Sights & Sounds official media sponsor is 97.7 WCTY. Look for DJs Jimmy Lane, Karen Kowalski and their crew at the tour. Tune in to 97.7 FM for tour updates and interviews.

10 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Bayer MS Sights & Sounds Bike Tour New England’s Best Kept Secret

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Visit Our Website at: ctnmss.org MS Connection 11 Alternative Medicine Q&A with Dave Hallowes continued from Page 1 Q. When were you useful resource for answering diagnosed and how did you these questions is the book respond to the diagnosis? Alternative Medicine and A. In 1988 I learned that my Multiple Sclerosis, by Dr. Allen older half-sister and an older Bowling. Dr. Bowling, a brother had been diagnosed neurologist, and Medical Director with amyotrophic lateral of the Rocky Mountain MS sclerosis (ALS), also known as Center in Colorado, is a Lou Gehrig’s disease. Since we recognized expert in alternative medicine. His book separates all had the same father, I rumor from fact, identifies decided to see if I had this therapies in use, what scientific dreaded disease. After an MRI studies have been done, and my doctor gave me good news whether these therapies have and bad news. (Not his words, been shown to be beneficial, but that’s the way it came out.) harmful, or at least neutral. I did not have ALS, but I had Dave Hallowes Several copies are available from MS! I didn't know anything our lending library. Dr. Bowling about MS! Was it a death Our son lives in the Boston also has a website: sentence? My doctor told me to area, and our daughter lives in http://www.ms-cam.org/. contact the National MS New York City. Our last trip Subscribers receive regular Society. They put me in touch this past April and May was a updates about the latest in with a local MS support group, “biggie!!” My wife and I went alternative medicine and MS. which I attended regularly, and on a three-week cruise from Dr. Bowling will be traveling to they gave me information Cape Canaveral, Florida Connecticut in September for an about MS. The more you know through the Caribbean, the educational program for clients about something, the less you Panama Canal, and several and family members. This pro- come to fear it! stops at ports in Costa Rica gram, sponsored in collaboration and Mexico. It was a great way with the Western Connecticut Q. What has been your for someone with a disability Chapter, will be held September career path and did you to travel. (See Page 4 For 20 at the Omni Hotel in New have to make adjustments Haven. The program features a Travel Tips) panel discussion that includes a as a result of your MS? pharmacist, nutritionist and a A. When I was diagnosed, I Q. What are some of the Tai Chi and Reiki practitioner. was an officer of the challenges of traveling and On Friday, September 19, Dr. Connecticut Development how do you overcome Bowling will be featured at a Authority (CDA) in Hartford. them? professional conference at But I have progressive MS, and A. Thus far I have not Gaylord Hospital (see page 13). If retired 8 years after my encountered that many you are interested in these diagnosis. I was able to take challenges. One thing that programs, please contact us for disability retirement after “bugs” me is people who park more information. You can reach having been with CDA for 15 the Programs Department staff cars, without proper permits, Monday – Friday, 8:30-4:30 pm. years. in designated handicapped at (860) 953-0601. parking spaces! Q. What are some of your hobbies/activities? Q. Do you have words of OTHER RESOURCES A. I enjoy reading, watching wisdom, advice or The following brochures television and going out to inspiration to help others may be of interest: dinner with my wife and who may be struggling with Food for Thought, friends at good local the disease? MS and Nutrition restaurants. I also enjoy doing A. NEVER GIVE UP!!! Taming Stress in Multiple Sclerosis volunteer work at the Chapter Researchers have made great offices. Vitamins, Minerals, and Herbs in strides with drugs for MS: An Introduction relapsing-remitting MS. Maybe Q. Do you travel much? Tell they are close to developing Exercise as Part of Everyday Life us about your last trip. something to help people with ■ Clear Thinking About A. We take a few trips a year, progressive MS. Alternative Therapies primarily to visit our children. To order these brochures, contact the Programs Department. ■

12 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Considering All the Options: Nominate your Employer Conventional and Unconventional Do A Little Brown Nosing Therapies for MS Professional as your employer accommodated you Education Conference at in the workplace and increased or Gaylord Hospital Henhanced employment opportunities for you? Then acknowledge Friday, September 19, 2003 their efforts by nominating them for the Keynote speaker: Dr. Allen Bowling Chapter’s Employer of the Year Award. Author, Alternative Medicine and Multiple Sclerosis Medical Director, Rocky Mountain MS Center, Applicants will be judged on: how Englewood, Colorado consistently the company exhibits Director of Complementary and practices that enhance Alternative Medicine Program employment for people with MS Dr. Bowling will speak on “Complementary and and other disabilities, the company’s Alternative Medicine (CAM) and MS” as well as actions to increase or enhance “Diet, Dietary Supplements and other CAM employment opportunities for people Therapies in MS” with MS and the company’s compliance with the Other presenters include rehabilitation and nursing Americans with Disabilities Act. professionals speaking on the role of such therapies To nominate your employer send an e-mail as reiki, yoga, aquatic therapy, and therapeutic before August 1 that outlines the reasons why massage in MS. your employer meets the above criteria to CME’s available for physicians. [email protected] or call (860) 953-0601 CEU’s available for nurses, case managers, Ext. 230. ■ physical therapists, occupational therapists, social workers.

Co-Sponsored by Gaylord Hospital and the Greater Connecticut and Western Connecticut Chapters of The National Multiple Sclerosis Society Got questions?

For more information contact the We’ve got answers! Programs Department Call us at (860) 953-0601 or (800) 233-7617 (in CT) (860) 953-0601 ■ These are just some of the questions we can answer: • How do I decide on a treatment for MS? • Can I have a baby if I have MS? • Which neurologists in CT specialize in MS? • What is available to help with my symptoms? • How can I talk to my family or friends about my MS? • Should I tell my employer I have MS? Call us with your questions! The Greater Connecticut Chapter he National MS Society is a member of is proud to offer a helpline, Community Health Charities (CHC) of available Monday through Friday T Connecticut, a non-profit federation from 8:30 a.m.–4:30 p.m. dedicated to raising funds and awareness for 37 of the nation’s leading health agencies. CHC of Connecticut conducts its fundraising efforts through employee giving campaigns in companies throughout the state and participates in both the Combined Federal Campaign and the

CT state Employee Campaign. formerly New England Wheels West Inc. Builders of Quality Vehicles for the Physically Challenged 15F International Drive, East Granby, CT 06026 Through simple and convenient payroll Phone: 860-653-8064 Fax: 860-653-4331 deductions, donors can help in the fight against Trust Your Family’s Safety To Our Factory Trained Technicians MS by designating their dollars to the National Safety, Experience, Reliability MS Society, Greater Connecticut Chapter or with a donation to the CHC of Connecticut General See Us First For Quality Service, Vans & Equipment Fun. ◆ Custom Van Conversions ◆ Needs Assessment ◆ High Tech Driving Systems ◆ Hand Controls If your company does not have a Community ◆ Lifts – Wheelchair & Scooter ◆ Commercial Transporters HUNDREDS OF SATISFIED CUSTOMERS – REFERENCES AVAILABLE Health Charities of Connecticut campaign, please Licensed by Dept. of Motor Vehicles – Fully Insured call (860) 953-0601. ■ CHARTER MEMBER: NATIONAL MOBILITY EQUIPMENT DEALERS ASSOCIATION

Visit Our Website at: ctnmss.org MS Connection 13 Serono/Pfizer DOES YOUR HOUSE NEED A FACE LIFT? Women . . . continued from Page 1 The Greater Connecticut Chapter of the National Multiple Sclerosis Society is participating in the United Way’s Diagnosed with MS 22 years ago, Koplowitz has completed Day of Caring on Friday, September 5, 2003 and we need 11 New York City Marathons. A HOUSE OR TWO!! News Channel 8 Health Reporter Jocelyn Maminta will VOLUNTEERS ARE WILLING TO: emcee the event. With the help of these two Clean out the attic & basement dynamic women Serono/Pfizer Paint your back porch or a room Women Against MS hopes to increase MS awareness, and Vacuum, dust, and clean raise money in support of the Install or wash windows programs, research and Organize closets services offered by the Chapter. Women Against MS also Clean your refrigerator celebrates women teaming Move furniture for a new look together to make a difference in their communities. To attend Do yard work! the luncheon a minimum donation of $100 is required. Homes selected based on the number of volunteers available. For more information, please call Mary McClintock, Call the Chapter office at 1-800-233-7617 Development Director, (860) for an application. Ask for Lynette Coleman at ext. 238

953-0601 Ext. 235, or visit The National MS Society … One thing people with MS can count on.

www.ctnmss.org for more www.ctnmss.org information. ■

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Keep S’myelin is now available online. Visit the National MS Society Web site at www.nationalmssociety.org/keepsmyelin.

❏ I wish to subscribe to “Keep S’myelin,” the quarterly newsletter for children with parents or other relatives with multiple sclerosis. Signing this subscription form indicates that permission has been granted for the child to receive this publication.

Child’s Name ______

Child’s Address ______

Date of Birth for Child/Subscriber ______

Name of Parent/Guardian______

Phone Number of Parent/Guardian ______

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Relation to Child ______

Please return to: National Multiple Sclerosis Society, Greater Connecticut Chapter 705 North Mountain Road, Suite G102, Newington, CT 06111-1411 or Fax to (860) 953-0602

14 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Serono/Pfizer Women Against MS

ilm and television star Teri Garr was her usual Fcomedic self at this year’s Serono/Pfizer Women Against MS luncheon. Her quips brought much laughter from a crowd of nearly 800 women, but mixed within her humor was a clear direct Fritz Schmalberger, District Manager, message: we have made great Pfizer Inc.; Lisa Gerrol, President, National Multiple Sclerosis Society, Greater CT strides but we need to do more Chapter; Actress Teri Garr and Fred Fox, in the fight against MS. Regional Business Director, Serono, Inc. Teri Garr Garr, recently diagnosed with MS, told her story publicly last year for the first time on Larry King Live on CNN. In May, she ➔ shared it with Connecticut Lisa Gerrol; Event Emcee Diane residents at the Aqua Turf Smith, WTIC 1080; Teri Garr Club in Southington. and Mary McClintock, Development Director She spoke of how she suspected something was wrong years ago while jogging through Central Park and ➔ tripping over herself more Committee Members: than usual. Later she was Erica Jessen, Maureen Jessen, diagnosed, but refused to Kirsten Carleton, Chris Silansky, disclose it. Lisa Gerrol, Rebecca Lund, Development Coordinator, “I didn’t tell people because I Monica Marchese didn’t want pity, and I was afraid I wouldn’t get work,” the Oscar-nominated actress said. “But people with MS need to know we are not alone. We don’t have to be victims.” ➔ Even though she suffers from Maureen Jessen, Erica Jessen, Teri Garr, the common symptoms, Garr Brian and Ben Jessen is hopeful and refuses to complain. “My body has given me a terrific life,” said an emotional Title Sponsor Garr. “Now it’s time for my spirit and mind to take over.” With the help of Garr and Hope Sponsors Diane Smith of WTIC 1080, the event raised more than $115,000 to support Greater Connecticut Chapter programs The Sandy & Arnold Chase Family Foundation and services. Courage Sponsors Serono/Pfizer Women Against MS also celebrates women teaming together to make a difference in their communities. Spirit Sponsors To get involved with Women Blue Fox Enterprises NORDSTROM Against MS contact Mary Fleet Capital Foundation Pepe & Hazard McClintock, (860) 953-0601 Glaxo Smith Kline Reid & Riege x235. ■ Lee Hecht Harrison Tallan, a cmgi Company Manafort Brothers, Inc.

Visit Our Website at: ctnmss.org MS Connection 15 2003 MS Corporate Achievers Presented by

John Patrick Michael Schweighoffer CEO, Banknorth Senior Vice President, 2002 MS Corporate Achievers Banknorth

he National Multiple Sclerosis Society, Greater Connecticut Chapter will honor state business leaders who help the Chapter in its mission to end the devastating effects of MS and increase its Tawareness in their corporate communities. Honorees receive the prestigious MS Leadership Award, one of the highest honors bestowed by the MS Society, during a special reception at the Aqua Turf Club on Thursday, September 18. In last year’s campaign MS Corporate Achievers raised $120,000. Uniprise, a UnitedHealth Group Company, is the event’s title sponsor. The company along with CEO, R. Channing Wheeler, has supported the event since its inception in 2000. The Chapter is pleased to announce John Patrick, Chief Executive Officer, Banknorth, as Honorary Chairman of this year’s MS Corporate Achievers. Michael T. Schweighoffer, Senior Vice President Banknorth, is Chairman of the Advisory Council. The council, comprised of 20 former Corporate Achievers, nominates the honorees. To nominate a Corporate Achiever contact Mary McClintock at (860) 953-0601 Ext. 235 or e-mail [email protected]. ■

Paid Advertisement MS teleconference/chat series Summer 2003 schedule:

1. "Exercise: The Importance of Health and Fitness" July 8&9 at 8pm Teleconference July 10 at 8pm On-line Chat

Speaker- Dr. Randall Schapiro Founder and Director of the Fairview MS Center, Clinical Professor of Neurology at the University of Minnesota

2. "MS Relapses: What you know can make a difference" August 5&6 at 8pm Teleconference August 7 at 8pm On-line Chat

Speaker- Dr. Timothy Vollmer Chairman, Division of Neurology and Director of Barrow MS Program at Neurological Institute, Phoenix, AZ

3. "MS Therapy Options: What to look for in a Therapy" September 16&17 at 8pm Teleconference September 18 at 8pm On-line Chat

Speaker- Dr. Khurram Bashir Assistant Professor, Department of Neurology, UAB School of Medicine

RSVP required. Please call 1-800-938-1912 to register. No registration is necessary for the on-line chats. Simply go to msdiaglogue.com on the designated date and time to participate.

Supported by Teva Neuroscience

16 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS Ch a p t e r N e w s What’s New In Online Programs

The Raymond P. Howell Library? our times a year the National MS Society hosts informative Books: broadcasts over the Internet. HEALTH INSURANCE RESOURCES, Options for F The 60-minute programs are on People with a Chronic Disease or Disability. Written by various topics for people affected Dorothy E. Northrop and Stephen E. Cooper. Published by Demos by MS. Medical Publishing, Inc. 2003. 196 pages. The programs start with a 30- THE FIRST YEAR – MULTPLE SCLEROSIS: An Essential Guide minute live audio presentation, for the Newly Diagnosed. A patient-expert walks you through followed by an interactive question everything you need to learn and do. Written by Margaret Blackstone and answer segment. Using e-mail, and published by Marlowe and Company, 2002. 232 pages. people can send questions to the presenter. Later this year the WHY ARE YOU SO SAD? A Child’s Book about Parental Depression. Society will open chat rooms on Written by Beth Andrews and published by Magination Press, 2002. the site. 32 pages. Directions on how to participate THE ART OF GETTING WELL: A Five Step Plan for Maximizing in the broadcasts are available at Health When You Have a Chronic Illness. Written by David Spero, RN www.nationalmssociety.org, the and published by Hunter House, Inc., 2002. 210 pages. Web site of the National MS Society. ONE CANDLE POWER, Seven Principles that Enhance Lives of Programs will be broadcast through the Microsoft Windows Media People with Disabilities and Their Communities. Written by Cathy Player, a standard feature on all Ludlum and published by Inclusion Press, 2002. 205 pages. computers with Windows. Tech ACCESSIBLE CONNECTICUT, A Guide to Recreation for Children support is available. with Disabilities and Their Families. Written by Nora Ellen Groce, Those tuning in to MS Learn-On- Lawrence C. Kaplan, MD and Joseph David Kaplan and published by Line say that they have new Yale University Press, 2002. 265 pages. knowledge and confidence about THE CHRONIC ILLNESS WORKBOOK, Strategies for Taking their MS. Back Your Life. Written by Patricia A. Fennell and published by New UPCOMING PROGRAM: Harbinger Publications, Inc. 2001. 239 pages. For upcoming programs visit LOVE, HONOR AND VALUE, A Caregiver Speaks Out About the www.nationalmssociety.org Choices and Challenges of Caregiving. Written by Suzanne Geffen Mintz and published by Capital Books, Inc. 2002. 204 pages. ***WEB NEWS*** MS Learn-on-Line programs are Audiotapes: archived. More than 20 previous UNDERSTANDING EMOTIONS AND MS. A National Multiple programs can be accessed on the Sclerosis Society Teleconference featuring Dr. Rosalind Kalb, 3/20/03. National MS Society Web site. ■ Running time: 1 hr. 15 mins. HEALTH JOURNEYS FOR PEOPLE WITH MULTIPLE SCLEROSIS (A GUIDED IMAGERY TAPE) by Belleruth Naparstek. Produced by Image Paths, Inc., 1991. Running time is 39 minutes. Accompanied by a booklet, Guided Imagery: Opening a World of Possibilities. Published by Image Paths, Inc. 23 pages. ■

Remember We’re A Click Away!! ave you been to the Greater Connecticut Chapter Web Hsite, www.ctnmss.org yet? Stop in and let us know what you think. Aquatic Programs Visit the site at www.ctnmss.org New England Health Club, and get real time updates for Cromwell. Mondays and Fridays upcoming programs and events. 10:45 a.m. Call Lynn at (860) Register online with a click of your 267-7012. mouse. View event pictures, event Gaylord Hospital,Wallingford. results, or learn about the latest news in MS research or contact us Monday-Saturday during posted via e-mail with your questions. Reserve a book from the lending hours. Call pool office (203) 284- library, view the latest MS Connection before it hits your mailbox, 2800 x3438. get information on volunteering; find support groups in your area and much, much more. Hospital for Special Care, The Chapter’s site is attractive to the eye, easy to navigate and community and group quick. Stay updated – give us a click! ■ memberships available. Call 1-877-HSC-POOL. ■

Visit Our Website at: ctnmss.org MS Connection 17 Donate Vehicles Wish List: Short-Term Online to Help • Photographers for events Equipment Loans Fight MS • Lightweight wheelchairs ■ he Greater Connecticut Please contact the Chapter. aving difficulty getting Chapter’s equipment rid of an unwanted loan closet provides T vehicle? Tired of placing people with MS and their H classified ads? Worried about Classifieds families devices that can be the vehicle’s attractiveness to For Sale: Pride Sidekick used to maximize their health car hunters? Well now you can scooter with charger, good and independence. donate vehicles to the National condition, everything works. Asking $650. Out-sider scooter All medical equipment, Multiple Sclerosis Society by lift, asking $500. Both items wheelchairs, lifts, electric visiting www.ctnmss.org. Your $900. Contact Dan (860) 739- scooters, walkers, and hospital donation not only helps to end 0813 or [email protected]. beds are loaned for three the devastating effects of months with the option of multiple sclerosis, but you can For Sale: Vantage lowered renewal. take an income tax deduction floor wheelchair access based on the blue book value mini van with installed ramp. For more information about 60k. Comes with: cruise control, of the vehicle. Remember, we the equipment loan closet privacy glass, power windows, call Lynette at (860) 953-0601 do not reject vehicles based on remote start, alarm system, Ext. 238. ■ their appearance or condition. remote automatic side door, Visit www.ctnmss.org or call ramp, minimum effort steering, Amanda at (860) 953-0601, power steering back up. ext. 226. ■ Contact Dan at (860) 739-0813 or e-mail [email protected]. For Sale: Invacare Lynx LX3 scooter, excellent condition. Asking $1,100 obo. Rover rolling walker includes brakes, seat and basket. Asking $175. Contact (203) 272-0738. Local Organizations Contribute to the For Sale: 1999 Ford full-size van, V-8, 30k, good condition. Mission Lift package. Call (860) 663- he Greater Connecticut Chapter would like to extend a special 1321. thanks to the following organizations, businesses and clubs for For Sale: Power T hosting fund-raisers to benefit the MS Society. Your time and wheelchair, excellent energy is greatly appreciated. condition; wheelchair, brand • Hospital of Saint Raphael: Donated $330 from employee new; hospital bed fully electric, call for prices. Contact annual pledges. (860) 749-7792. • Fox Institute of Business: Donated $310 from a fundraiser. For Sale: Pride Victory • Adams Middle School of Guilford: Donated $50 from a three wheel scooter, asking fundraiser. $1,700. Invacare three • The Rebekah Assembly of Connecticut: Donated $1,726 from wheeled scooter, asking a fundraiser. $1,800. Contact (203) 468- • Gary Griffin, Chapter PR Coordinator: Donated $1,159 from 2146. “Leaping for MS”, a skydiving fundraiser for MS. For Sale: 2001 Dodge • Eagles Auxiliary of Middletown: Donated $1,758 from “Las Grand Caravan ES, Vegas Review” a benefit for MS. loaded, 30K, asking $26,500. Contact (860) 496-1890, • Memorial Boulevard School of Bristol: Donated $150 from a [email protected]. ■ pumpkin, potpourri, and pie sale. ■

18 July/August 2003 Toll-Free Number: 1-800-FIGHT-MS ANDOVER GRANBY MILFORD SIMSBURY Support 1st Wednesday, 10:30 am 2nd & 4th Monday 2nd & 4th Saturday 3rd Friday 11 am-1 pm Groups Hop River Homes 1:00 pm 1:30 pm Simsbury Senior Center Joan (860) 742-6779 Salmon Brook Milford Hospital Peter (860) 651-5481 Apartments Joy (203) 378-0936 Please contact BLOOMFIELD Jane (860) 653-2436 John (203) 874-1225 SOUTHINGTON leaders for 4th Thursday 10:30 am Lois (203) 878-6222 2nd Monday, 7:00 pm HARTFORD information and Bloomfield Senior Center Bradley Memorial remember that dates Lenny (860) 242-8354 3rd Thursday, 7 pm NEW LONDON Hospital and times may Nancy (860) 688-4584 Chelsea Place 4th Wednesday, 6:30 pm Christine (860) 721-6400 change from month Victor (860) 246-4519 Lawrence and Memorial Carleen (860) 378-0260 COLCHESTER Ben (860) 675-5257 Hospital, Baker to month. VERNON 2nd Saturday, Auditorium MADISON 1st Friday 7:00 pm The names and 10:30 am - 12 pm Carol Vara (860) 442- 1st & 3rd Wednesday Vernon Police numbers listed are Westchester 0711 ext. 2483 11:30 am - 1:00 pm Department, not to be used for any Congregational Church Memorial Town Hall NEWINGTON Community Room solicitation or Ed (860) 267-4096 Karen (203) 245-4691 nd th Rhona (860) 644-0038 promotional purpose. Peggie (860) 267-9759 2 & 4 Thursday Nancy C. (860) 742-5155 MANSFIELD 7:00 pm Newington Senior and Nancy N. (860) 871-6634 For other support DANIELSON 35 and under only Disabled Center group information 1st Sunday 6 pm Bring photo ID WEST HAVEN contact the Chapter Healthcare Center of Charlie (860) 667-1314 2nd Saturday, 12 pm Thursdays 12 pm office. Danielson Natchaug Hospital OLD SAYBROOK VA Hospital, Bldg. 2 Peggy (860) 974-8770 Keisha (860) 429-4742 3rd Wednesday 10:30 am 2nd Floor FARMINGTON MANCHESTER St. Paul Church Mary Lou (203) 932-5711 ext. 2276 3rd Monday, 7-9 pm 1st Monday 10 am Bruce (860) 767-2039 Northwest Village School Church of Christ PUTNAM WINDSOR LOCKS OTHER SUPPORT Wheeler Clinic 394 Lydall Street rd 2nd Wednesday 6:00 pm George (860) 793-9589 Nancy (860) 643-5137 3 Friday 7 pm Infoline Day Kimball Hospital Windsor Locks Public GLASTONBURY Donna (860) 646-6335 24 hour counseling Peggy (860) 974-8770 Library 3rd Monday, 7 pm Dial “211” MIDDLETOWN Jeanie (860) 668-2792 Laurel Gardens ROCKY HILL 2nd Saturday, 1 pm David (860) 633-8533 rd * * * * * * * * * * Samaritans Wadsworth Glen 3 Thursday 1-3 pm Carol (860) 657-2013 Cora Beldon Library 24 hour support Call Chapter for more Carin (860) 379-6745 information *Groups may change (860) 232-2121 Maureen (860) 537-2145 dates from month to Celeste (860) 347-1362 month, please call leaders before attending a group.

Support Group News New Middletown Support Group Telephone Group for Spanish-speaking A new support group in Middletown meets people with MS on the 2nd Saturday of every month at 1 pm The Chapter is considering starting a in the Recreation Room at Wadsworth Glen. telephone support group for people with MS This group is open to the public and to whose primary language is Spanish. Please family and friends of people with MS. contact Lynette at (800) 233-7617, x238 if New Madison Support Group you are interested in participating. A new support group in Madison meets on Estamos considerando comenzar un grupo de the 1st and 3rd Wednesday of each month at apoyo por telefono para las personas con 11:30 a.m. in Memorial Town Hall. The group Esclerosis Multiple en espanol. Por favor de meetings are followed by an optional yoga for comunicarse con Lynette si tiene interes en health segment featuring breathing for participar: (800) 233-7617, x238. relaxation and stretching. For more To find out more about these or other groups information, call Karen at (203) 245-4691. in your area, or to find out how to start your A new young adults support group for own group, call Amy at the chapter at (860) people under age 35 meets at Natchaug 953-0601 ext. 247. ■ Hospital in Mansfield Center on the 2nd Saturday of every month at noon. Photo ID required to enter the hospital. For info, call Keisha at (860) 429-4742.

Visit Our Website at: ctnmss.org MS Connection 19 Non-Profit Org. U.S. Postage PAID Hartford, CT Permit No. 01870 National Multiple Sclerosis Society Greater Connecticut Chapter 705 North Mountain Road, Suite G-102

Newington, CT 06111

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