A Shared Outcome Perinatal Mental Health Value Scorecard to Support Health Visitors to Improve Outcomes for Children 0-5 Years and Their Families
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A shared outcome perinatal mental health value scorecard to support health visitors to improve outcomes for children 0-5 years and their families Caroletha Irish1, Rosemary Jarvis1, Helen Gleeson2, Julian Edbrooke- Childs2, Jessica Deighton2, Matthew Franklin3, Rachael Hunter4, Monica Lakhanpaul1, 5* September 2015 *corresponding author: [email protected] 1 UCLPartners 2 Anna Freud Centre 3 University of Sheffield 4 Primary Care and Population Health, UCL 5 Institute of Child Health, UCL Final report, 30th September 2015 PROJECT GROUP Caroletha Irish, Health Visitor Fellow, UCLPartners Monica Lakhanpaul, Programme Director, Children and Young People, UCLPartners; Professor of Integrated Community Child Health, Institute of Child Health, UCL Jenny Jackson, Director AHSN Integrated Children and Young People's Programme, UCLPartners Susan Crane, Programme Manager for Children and Young People, UCLPartners Lynette Linkson, Quality Improvement coach, UCLPartners Rosemary Jarvis, Project Manager, UCLPartners Diane Butterfield, East London NHS Foundation Trust; Fahima Yusuf, Bart's Health NHS Trust; Archibong Mfon, Homerton University Hospital NHS Foundation Trust; Paula Carr and Teresa Bell, North East London NHS Foundation Trust, Health visitor leads for the four sites Zina Kristalli, parent representative EVALUATION GROUP Helen Gleeson, Research Fellow - Service Evaluation, Anna Freud Centre Julian Edbrooke-Childs, Research Fellow for the Child and Adolescent Mental Health Services Evidence Based Practice Unit, Anna Freud Centre Jessica Deighton, Deputy Director and Research Programme Lead for the Evidence Based Practice Unit, Anna Freud Centre HEALTH ECONOMIC GROUP Rachael Hunter, Senior Health Economist. Primary Care and Population Health, University College London Mathew Franklin, HEDS, ScHARR, University of Sheffield Perinatal Mental Health Scorecard final report_full_v1 2_30Sept15.docx 1 PROJECT EXPERT ADVISORS Jonathan Campion, Professor of Population Mental Health, UCL; Director of Population Mental Health, UCLPartners Peter Fonagy, Head of the Research Department of Clinical, Educational and Health Psychology, UCL; Programme Director - AHSN Integrated Mental Health Programme Simon Munk, Programme Manager for Children and Young People’s Mental Health, UCLPartners Cheryll Adams, Director Institute of Health Visiting Health Visiting Advisory Group members not already mentioned: Alison Wall, Camden/Islington Public Health; Anna Lucas, Hackney Clinical Commissioning Group; Amy Wilkinson, Hackney Clinical Commissioning Group; Esther Trenchard-Mabere, Tower Hamlets Public Health; Jenny Gilmour, Health Education East of England; Kelley Webb-Martin, Tower Hamlets Public Health; Kenny Gibson, NHS England; Lynne Hall, Health Education England; Marcia Smikle, Homerton University Hospital NHS Foundation Trust; Nicky Brown, NHS England; Pauline Watts, Department of Health; Rachel McNickle, Newham Public Health; Rita Newland, South Bank University; Sara Rance, Health Education North Central East London; Sarah Rolfe, East London NHS Foundation Trust; Sue Hatton, Health Education North Central East London. Acknowledgements Our sincere thanks go to the parents who worked with us to develop the “’I’ statements” and took an active part in the life of the project. Particular thanks go to Zina Kristalli for her unwavering support and willingness to contribute. We would like to acknowledge the help and assistance of members of the steering group not already mentioned: Emily Savage McGlynn and Ron Gray, National Perinatal Epidemiology Unit, Oxford. The members of task and finish group provided regular advice on implementation of the project: Agnes Adentan and Tatenda Chigodora, East London NHS Foundation Trust; Anne Foster, Bart's Health NHS Trust; Catherine Platt, Tower Hamlets Clinical Commissioning Group; Dean Rogers, Bart’s Health; Gita Patel, Whittington Health NHS; Jennifer Baker, Homerton University Hospital NHS Foundation Trust; Judith McCann, Bart's Health NHS Trust; Mark Scott, Homerton University Hospital NHS Foundation Trust; Monica Vassall, Homerton University Hospital NHS Foundation Trust; Paula Holt, Tower Hamlets Children’s Centre; Sandra Bryan and Ruth Blackburn, North East London NHS Foundation Trust; Sue Nolan, Bart's Health NHS Trust; Tatenda Chigodora, East London NHS Foundation Trust; Parents representatives: Zina Kristalli and Clara Baroi, from Social Action for Health; Fathimah Rofe, Maryam Tela, Rahima Khan. UCLPartners The project was funded by Health Education England North Central and East London on behalf of the Department of Health. Perinatal Mental Health Scorecard final report_full_v1 2_30Sept15.docx 2 Definitions 1. For the purposes of the scorecard, perinatal mental health problems were defined as including depression, anxiety, post-traumatic stress disease and alcohol-related problems 2. Value was defined as the cost per outcome gained 3. The term “mother” was used when referring to the primary care-giver; however, it is acknowledged that there are others who also fulfil this role 4. Inclusion criteria: women in the prenatal stage from 28 weeks gestation to birth, women from 10-14 days up to one year post-partum, infants from birth up to one year Project sites 1. East London NHS Foundation Trust 2. Bart's Health NHS Trust 3. Homerton University Hospital NHS Foundation Trust 4. North East London NHS Foundation Trust Perinatal Mental Health Scorecard final report_full_v1 2_30Sept15.docx 3 Table of Contents List of figures ......................................................................................................................................... 7 List of tables .......................................................................................................................................... 7 Abbreviations ........................................................................................................................................ 9 Executive summary ............................................................................................................................. 10 What is the scorecard? ................................................................................................................... 10 Key questions addressed ................................................................................................................ 10 Development of the scorecard ....................................................................................................... 10 Support for health visitors .............................................................................................................. 11 Evaluation aims and methods ......................................................................................................... 11 Discussion of findings ...................................................................................................................... 11 Facilitators and barriers to implementing the scorecard ............................................................... 12 Economic analysis ........................................................................................................................... 12 Introduction ................................................................................................................................ 12 Aims and objectives .................................................................................................................... 12 Methods ...................................................................................................................................... 12 Results ......................................................................................................................................... 13 Limitations of the analysis for this report ................................................................................... 14 Conclusion ................................................................................................................................... 14 Recommendations .......................................................................................................................... 14 Implementation: ......................................................................................................................... 14 Practice: ...................................................................................................................................... 15 Future development work: ......................................................................................................... 15 Policy: .......................................................................................................................................... 15 Summary ......................................................................................................................................... 16 1 Development of the scorecard ................................................................................................... 17 1.1 Introduction ........................................................................................................................ 17 1.2 Background ......................................................................................................................... 17 1.3 The role of health visitors ................................................................................................... 18 1.4 Scope of the project ...........................................................................................................