European Foundation for the Care of Newborn Infants 1 Our Allies European Foundation for the Care of Newborn Infants

For the best start in life

european foundation for the care of newborn infants 1 Our allies european foundation for the care of newborn infants

Dr Angelika Niebler Dr Gert Jan van Steenbrugge Member of the European Director of the Dutch parent organisation Parliament Vereniging Ouders van Couveusekinderen (VOC) Approximately one in ten babies is born Through the EFCNI platform, families of too soon. Worldwide. Preterm infants re- preterm infants unite over geographical present Europe’s largest child patient group and cultural boundaries to speak with one and their number is continuing to grow, yet strong, growing voice. EFCNI provides pa- their voice has still to be heard. These child- rents with the network and empowerment ren, together with their parents, experience to tackle the necessary changes in their enormous physical, emotional and financial country. challenges. They also represent an added burden on our often struggling healthcare systems.

Health is a very important issue for Europe’s citizens and thus a priority for European in- stitutions, in particular the European Parlia- Professor Luc J. I. Zimmermann ment. President of the European Society for Paediaric Research (ESPR) As a Member of the European Parliament, Professor in Pediatrics and Neonatology, and also as a woman and a mother, I wel- MUMC, Maastricht, Netherlands come the work of EFCNI. The foundation EFCNI brings together healthcare profes- addresses the needs of preterm and new- sionals, parents, and politicians with a sing- born children and turns the spotlight on le aim: To combine forces to improve stan- the various maternal and newborn health dards of care, to nurture the development policies and practices in place in Europe’s of needed infrastructure and to guarantee Member States. As a patron of EFCNI, I am every baby the best start in life. The foun- delighted to be able to actively support the dation is our link to other stakeholders in foundation in Brussels to ensure that Euro- the field and we greatly appreciate their pe’s children receive the best start in life. achievements.

2 3 Who we are What we do The European Foundation for the Care of Newborn Infants (EFCNI) is the first pan-European orga- EFCNI is an advocate for preterm infants, ill newborns, and their families. Our work is dedicated nisation and network to represent the interests of preterm and newborn infants and their families. to improving the situation of pregnant women and newborn infants in Europe across the full It gathers together parents, healthcare experts from different disciplines, and scientists with the spectrum of care, promoting and protecting the right to the best start in life. Our work is based common goal of improving long-term health of preterm and newborn children. Our vision is to on the following three pillars: ensure the best start in life for every baby. Establishing a powerful network With our activities we want to reduce preterm birth rates, ensure the best possible treatment, care, and support, and to improve the long-term health of preterm infants and newborns with We combine the forces of all stakeholders involved and foster collaboration to achieve our illnesses. common vision by:

To achieve our aims, we are focusing on the following three areas: Partnering with parents, healthcare professionals, scientists and their respective societies as well as with policy-makers, international non-profit and private sector organisations, UN agencies

Empowering national parent organisations Preconception and maternal care We want to ensure widely accessible pregnancy informa- Raising awareness tion and the provision of effective, equitable high-quality care for all women of reproductive age. We call attention to the growing challenge of preterm birth and its significant impact onchildren, families, and our societies by:

Running campaigns and (social) media work

Constructive dialogue with political decision-makers and opinion-leaders Treatment and care Making the patient’s voice heard in the professional healthcare setting We aim at continuously improving treatment and care for all preterm babies and ill newborns as well as support for their families. Best practice sharing to implement high-quality treatment and care

We gather and multiply information to improve the quality of care by:

Coordinating interdisciplinary projects, e.g. the development of harmonised European Continuing care Standards of Care for Newborn Health, or the development of a basic framework for the We seek to improve the long-term health of preterm infants operation of breast milk banks in Germany, Austria, and Switzerland and ill newborns. This also includes the provision of medical, Providing easy-to-understand and widely accessible information for free for families and all psychological, socio-pedagogical, and financial support for those interested these children and their families. Promoting research and providing research support from the patient‘s perspective

4 5 Our milestones european foundation for the care of newborn infants

World Prematurity Day 17 November

World Prematurity Day

World Prematurity Day on 17 November LittleBigSouls, the Australian National Prem- is one of the most important days in the mie Foundation, and EFCNI joined together year to raise awareness of the challenges across continents to celebrate this special and burden of preterm birth globally. The day. day was initiated by EFCNI and partnering European parent organisations in 2008. Meanwhile, countless individuals and organisations from more than 100 countries The date 17 November was chosen at the join forces with activities, special events and first EFCNI Parent Organisations Meeting in commit to action to help address preterm Rome, Italy. That day, one of the founding birth and improve the situation of preterm members of EFCNI became proud father of babies and their families. a daughter, after having lost his triplets due to preterm birth. A new awareness day was More information and a download section born. In 2010, the US organisation March of with graphics in about 40 languages: Dimes, the African organisation www.efcni.org/worldprematurityday

6 7 EU Benchmarking Report Call to Action for Newborn Health

The EU Benchmarking Report 2009/2010 The 10 points Call to Action for New- Too Little, Too Late - Why Europe should born Health, initiated by EFCNI and the 14,925 European do more for preterm infants provides European national parent organisations, a compelling picture of the impact of pre- was launched in November 2011 in the citizens call for action. term birth across 14 European countries. It European Parliament. The EU and natio- reveals a troubling lack of European-wide nal policy makers, payers, patient organi- harmonised standards of care and coordi- sations, healthcare professionals, acade- For the best start nated national and European policy initiati- mics, industry and the public were called ves to improve the quality of maternal and upon to work in partnership to ensure in life. newborn health. the best start in life for every baby born in Europe.

One consequence of the call was the start of EFCNI’s cross-country and interdiscip- EFCNI White Paper linary project to develop European Stan- dards of Care for Newborn Health. Caring for Tomorrow - the EFCNI White Paper on Maternal and Newborn Health and Aftercare Services from 2011/2012 aims at highlighting some of the key concerns with regard to the growing patient group affected by preterm birth. The paper is a starting point and source of support on how to improve existing healthcare plans for maternal and newborn health. Its recommendations are feeding into the development of harmonised European Standards of Care for Newborn Health.

8 9 European Standards of Birth & transfer Education & Medical care & training clinical practice

Care for Newborn Health Data collection & documentation Care procedures Topics in the European Standards Patient safety & of Care for Newborn Infant- family- hygiene practice Health project centred care

Follow-up & continuing care NICU design

Ethical decisions Nutrition

Our project European Standards of Care for Newborn Health is an interdisciplinary collaboration To this aim, newborn health is divided into 11 themes. Each of these themes corresponds to a to develop standards of care for key topics in newborn health. We initiated the project in 2013. working group – a Topic Expert Group – that develops standards on this topic. Standards start Since the beginning, we coordinate the project in which we work together with more than 220 with the perinatal period and continue until well after discharge into early childhood. individuals and over 50 supporting organisations. Methodologically, standard development is divided into different stages. It starts with the draf- The organisation of care, the education of healthcare professionals, and the structure and pro- ting of standards in the Topic Expert Groups. For additional parent expertise, the Topic Expert vision of care vary widely across Europe. Currently, there are no cross-European guidelines for Groups can consult the Parents’ Knowledge Forum to get a user perspective to specific ques- newborn health. The European Standards of Care for Newborn Health project addresses these tions. Once standards are readily developed in the Topic Expert Group, they are passed on to disparities by developing standards to contribute to better care for all European infants. the Chair Committee for discussion and approval. From here, standards enter a consultation phase in which all supporting organisations can review the standard drafts. After consultation, standards are submitted for endorsement and published on the project website.

Industry The project is possible thanks to the voluntary contribution and commitment of the project partners members and the financial support by the project industry partners AbbVie, Philips Avent, Healthcare Shire, and Nestlé Nutrition. professionals More information about the project at: www.newborn-health-standards.org Third Parties

Parents

10 11 Our information Our brochures Bonding and care for the preterm infant

This brochure explains developmental care and why material parents are the most important persons in their child’s life. It provides suggestions of how they can be involved in the care for their preterm baby from the very Our website beginning.

We provide tailored, evidence-based and A healthy pregnancy up-to-date information on topics related to preterm birth and newborn health, as well The brochure gives an overview of the most import- as factors for a healthy pregnancy and ant topics during pregnancy. Valuable information valuable links to our network. and tips help parents-to-be to give their child the best conditions for a good start in life right from the View more at: www.efcni.org womb.

Our factsheets Our newsletter

In our monthly newsletter, we compile news With our factsheets, EFCNI covers several preterm about our foundation, feature remarkable birth and maternal health topics, e.g. Breastfeeding activities from our collaborating parent organi- a preterm infant or Welcoming the family in the neo- sations and other networking partners as well natal intensive care unit. as latest research news. In these documents, we provide the most Feel free to order our newsletter at: important information which concisely [email protected] highlights key points and we answer the most important questions on the specific topic.

All EFCNI brochures and factsheets are available for free download.

12 13 Our campaigning Socks for Life

Socks for Life is a worldwide, established campaign uniting all those who want to make a difference for preterm babies, their families, and the care teams involved. The campaign is an initiative by EFCNI and national parent organisations around the world, powered by EFCNI.

Everyone is warmly invited to join: parent organisations, hospitals, non-profit organisations, healthcare professionals, societies, companies, politicians, media, individuals.

To help you visualise your commitment, to promote your activities or events throughout the year and to raise funds for your projects, we developed a comprehensive Socks for Life toolkit and graphic material in about 40 languages as a free download at: www.efcni.org/socksforlife

Social Media

Via our social media channels, we promote current information and recent findings relating to preterm and newborn health, as well as recommendations for a healthy pregnancy.

facebook.com/efcni EFCNI Changemaker Map facebook.com/efcni.socksforlife Following the communication motto “Do good and talk about it”, we created the EFCNI Change- maker Map in order to honour the work of all those who make a difference to preterm babies, ill twitter.com/EFCNIwecare newborns and their families. With this map, we created a platform that visualises the impact of a youtube.com/user/EFCNIwecare great international cooperation. instagram.com/efcni On www.efcni.org/changemakermap everyone is warmly invited to add individual events and milestones. Once added, the input will stay online and can be read by many people around the linkedin.com/company/efcni---european-foundation-for-the-care-of-newborn-infants world.

14 15 Parent and patient organisations A powerful network for newborn infants Healthcare societies, research partners, and supportive organisations 16 17 Parent and patient organisations Healthcare societies, research partners, and supportive organisations

Argentina Denmark Lithuania Slovakia Global eNewborn Union of European Neonatal and Perinatal Mutter-Kind-Hilfswerk Prematuros Grupo Crisálida Dansk Præmatur Forening Neišnešiotukas Malíček Societies / UENPS European Reference Network on Rare inherited projekt Anna – Kinderhilfe Kaliningrad Landsforeningen Præmatures Vilkår Padedu Augti ALL Ladies League / ALL Australia Spain and congenital diseases / ERNICA Ashoka Life’s Little Treasures Foundation Dominican Republic Macedonia Asociación de Padres de Niños Prematuros / APREM Eurochild Sichere Ausbildung für Eltern / SAFE L’il Aussie Prems Foundation Pequeñas Vidas Lulka Asociación Valenciana de Padres de Niños Council of International Neonatal Nurses / National Stiftung für das behinderte Kind Miracle Babies Foundation PremNova Prematuros / AVAPREM COINN Euro-Peristat Egypt Austria National Premmie Foundation / NPF Federación Nacional de Asociaciones de Prematuros / Our Dream Mexico Early Nutrition eAcademy / ENeA Europe Against Infant Brain Injury / EURAIBI Stiftung Ambulantes Kinderhospiz München Preterm Infants` Parents’ Association / PIPA FNAP Berufsverband Kinderkrankenpflege Österreich / Con Amor Vencerás European Association of Perinatal Medicine / Estonia Prematura Every Newborn Action Plan led by WHO and BKKÖ Uplift - Aufwind Austria Fundación Nunu EAPM MTÜ Enneaegsed lapsed UNICEF Nacer temprano… VIVIR EN GRANDE Sweden Österreichische Gesellschaft für Kinder- und FRÜH R LEBEN European Federation of Nurses Association / EFN wellcome Finland Prematurföreningen Mirakel Fetal Medicine Foundation / FMF Jugendheilkunde / ÖGKJ Kleine Helden Netherlands Kevyt / MLL Meilahden yhdistys ry Riksförbundet Svenska Prematurförbundet Global Alliance to Prevent Prematurity and European Critical Care Foundation / ECCF Latvia Belgium Kleine Kanjers VOF Österreichisches Hebammen-Gremium / ÖHG Stiftelsen Tummeliten Stillbirth / GAPPS Néonid France Vereniging Nee-eten! European Academy of Paediatrics / EAP European Latvijas Neonatologu biedrība Board and College of Obstetrics and Bulgaria Premature Baby Fund / PBF SOS Préma Vereniging van Ouders van Couveusekinderen / VOC Taiwan Global Research in Paediatrics / GRiP Gynecology / EBCOG Spain Premature Baby Foundation of Taiwan / PBF Alliance of Bulgarian Midwives / ABM Vlaamse Vereniging voor Ouders van Germany Stichting Prematurendag Healthy Newborn Network, an initiative of Save Red de Salud Materno Infantil y del Desarrollo / Couveusekinderen / VVOC the Children‘s Saving Newborns Lives (SNL) European Federation of Critical Care Nurses Bundesverband „Das frühgeborene Kind“ New Zealand Turkey Germany Red SAMID program Associations / EfCCNa El Bebek Gül Bebek Derneği Brazil Ghana The Neonatal Trust Arbeitsgemeinschaft Gestose-Frauen International Federation of Gynecology and European Hospital and Healthcare Federation / HOPE Sociedad Española de Neonatología Prematuridade LittleBigSouls Nigeria Ukraine Obstetrics / FIGO Ausbildungszentrum Laktation und Stillen Early Birds Ukrainian Preemie Parent Association European Lung Foundation / ELF Bulgaria Greece LittleBigSouls United Kingdom International Postgraduate Organization for BabyCare - FB + E Forschung, Beratung + Our Premature Children Velvet Hearts European Society of Intensive Care Medicine / Ilitominon Northern Ireland Knowledge Transfer, Research and Teaching Evaluation GmbH Children’s Liver Disease Foundation ESICM Canada TinyLife United Kingdom Excellent Students / IPOKRaTES Hungary Bildungsinstitut Fachbereiche Gesundheitswesen / National Institute for Health Research – Clinical Bliss Canadian Premature Babies Foundation Koraszülöttekért Közhasznú Egyesület / KORE Norway Newborn Individualized Developmental Care European Parliamentary Forum on Population BFG Research Network Children / NHS Children’s Liver Foundation / CLDF and Development / EPF Chile Melletted a helyem Egyesulet – Right(s) beside you Prematurforeningen and Assessment Program / NIDCAP LittleBigSouls Bundesverband Bunter Kreis Tommy’s Association Asprem - Asociación de padres de prematuros Partnership for Maternal, Newborn and Child European Patients Forum / EPF Poland Bundesverband der Kinder- und Jugendärzte / Neovidas Uruguay Health / PMNCH USA Iceland Fundacja Świadomi Rodzice European Platform for Patients’ Organisations, BVKJ Asociacion Uruguaya de Padres con hijos Prematuros / Fyrirburar Science and Industry / EPPOSI China Fundacja Wcześniak Rodzice-Rodzicom AUPAPREM The International Preterm Birth Collaborative / March of Dimes PREBIC Deutsche Gesellschaft für Baby- und Home for Premature Babies Ireland European Respiratory Society /ERS Kindermassage / DGBM Portugal USA The Foundation for Premature Infants Irish Neonatal Health Alliance / INHA Associação Pais Prematuros World Association of Perinatal Medicine / WAPM Columbia Hand to Hold European Society for Neonatology / ESN Deutsche Gesellschaft für Gynäkologie und Irish Premature Babies Fundación Milagros de Vida XXS – Associação Portuguesa de Apoio ao Bebé Graham’s Foundation World Prematurity Network / WPN Geburtshilfe / DGGG Prematuro European Critical Care Foundation / ECCF Croatia Israel Preeclampsia Foundation Deutsche Gesellschaft für Pränatal- und European Society of Paediatric Neonatal Intensive Klub roditelja nedonoščadi “Paličići” Lahav Association Romania Geburtsmedizin / DGPGM Vietnam Care / ESPNIC Asociatia Unu si Unu Europe Cyprus Newborns Vietnam Deutsche Stiftung Kranke Neugeborene / DSKN Italy Baby Care Sibiu European Society for Paediatric Research / ESPR Friends of Neonatal Intensive Care Unit Associazione Prematuri Alto Adige Global Alliance for Childhood Erich Saling-Institute of Perinatal Medicine Association Cyprus / FNICU Russia Neocirculation / NEO-CIRC Genitin Onlus International Federation of Spina Bifida and Mora Thavmata Fund “Give Sunshine” Biomedical Research in Europe / BioMed Alliance German Neonatal Network / GNN Piccino Picciò Onlus Hydrocephalus / IFSBH Neonatal estimation of brain damage risk and Pravo Na Chudo Czech Republic Progetto Pulcino Onlus International Patient Organisation for Primary Confederation of Family Organisations in the identification of neuroprotectants / NEOBRAIN Gesellschaft für Neonatologie und Pädiatrische BabyKlokánci, o.s. ZRNKA Vivere Onlus Serbia Immunodeficiencies / IPOPI European Union / COFACE Intensivmedizin / GNPI Screening to improve Health In very Preterm Nedoklubko o.s. Mali div - LittleGiant Early Life Nutrition Network infantS in Europe / SHIPS Harl.e.kin – Nachsorge in Bayern 18 19 european foundation for the care of newborn infants

24 25 Trustee Board

Professor Hercília Guimarães Thomas Föringer Silke Mader EFCNI Boards Portugal Germany Germany

EFCNI’s Executive Board consists of three members. The Board represents the foundation and con- Dr Michael Poschmann Dr Dietmar Schlembach Germany Germany ducts the day-to-day business in accordance with the Trustee Board’s guidelines and resolutions.

The Trustee Board has five members. The Board makes decisions in all fundamental matters. It The treatment and care mothers and newborns receive during advises, supports, and supervises the Executive Board of the foundation. pregnancy, birth, and neonatal period depends on a great extent also on the organisation, structure, and provision of services. These The Parent Advisory Board consists of eight elected members who support EFCNI with their vary widely across Europe. EFCNI is addressing these disparities knowledge and experience from parenting preterm babies and from their work for national and works together with many specialists and different stakehol- parent organisations in their countries. ders towards offering solutions. Fostering information exchange The Scientific Advisory Board gathers together internationally renowned medical experts and and best practice sharing across borders or the development of scientists and provides EFCNI with expert knowledge in the fields of medicine. Dr Dietmar Schlembach standards of care are some important elements to tackle these Chairman of the challenges and to pave the way for better prevention and impro- Trustee Board vement of peri-/neonatal care at a European level. As a member Executive Board of the Trustee Board, I am more than happy to contribute and dedicate my knowledge and experience to help expediting our Silke Mader Professor Neil Marlow Nicole Thiele vision - The best start in life for every newborn. Every small step Germany United Kingdom Germany we achieve is a giant leap for our newborns.

I felt it was important to support the foundation from its very be- Parent Advisory Board ginnings because the parental voice and perspective are critical to improving service delivery and effectiveness. I value the foun- Livia Nagy Bonnard Mandy Daly Paula Guerra dation’s philosophy of uniting all stakeholders in neonatal health Hungary Irland Portugal

to fight for the same cause. Such interdisciplinary collaboration is Dr Tomasz Makaruk Dr Gert van Steenbrugge Dr Eleni Vavouraki Professor Neil Marlow vital to improve health and outcome for preterm babies and their Poland Netherlands Greece Member of the parents everywhere. I am honoured to contribute my knowledge Yannic Verhaest Mónica Virchez Executive Board as a member of the Executive Board to continue this important Belgium Spain work for newborn babies throughout Europe. I am a proud member of EFCNI’s Parent Advisory Board and gra- Making the patient’s voice heard is a key focus of EFCNI’s daily teful to be part of EFCNI’s broad network. Through this network, work: In our field, the patients are too small and too fragile to I have close contacts to other national parent organisations, but speak for themselves, to claim their rights or to demand what is also to healthcare experts and others active in the field of mater- Mandy Daly best for them to develop to their full potential. By combining our nal and newborn care. Here, we learn from each other, empower forces we can give these children and their families the strong Director of Advocacy & Policy each other, and work hand in hand to bring good practice into Nicole Thiele Making at Irish parent Vice Chair of the voice needed to ensure a shift in minds as well as towards organisation Irish Neonatal our countries. EFCNI creates a strong link between all of us for a Executive Board effective and sustainable healthcare systems. Health Alliance (INHA) better future for those we love most – our children.

26 27 EFCNI Boards

Scientific Advisory Board When newborns are critically ill or preterm, they require ad- vanced or intensive care which can only be provided by a team of specially trained experts. Many European countries Odile Frauenfelder, It is a true honour for my colleagues and myself to be part of experience a lack of appropriate curriculums or shortage of RN, Ma ANP EFCNI’s Scientific Advisory Board. I am glad that I can contribu- educated and trained staff to answer the special needs of Vice President of the these infants. In EFCNI, we have found a partner that works te with my expertise and actively support EFCNI and the pow- Registration Committee for er set free by parents. Only by joining forces, and by working in Dutch Nurse Practitioner together with us on closing this existing gap. Past Nursing President of the Professor Kypros open, honest partnership with patients and across disciplines Europe an Society of Herodotou Nicolaides and professions, can we reach the best for mothers, babies Paediatric and Neonatal Professor of Fetal Medicine, and their families. Intensive Care (ESPNIC) King’s College, London, Professor of Fetal Medicine, University College, London

Professor Fiona Alderdice Professor Hans van Goudoever Professor Moshe Hod Professor Hugo Lagercrantz Dr Charles Christoph Roehr Dr Aleid van Wassenaer-Leemhuis United Kingdom Netherlands Israel Sweden Germany Netherlands

Professor Mats Blennow Professor Gorm Greisen Dr Agnes van den Hoogen Professor Jos Latour Professor Mario Rüdiger Professor Gerard H. A. Visser Sweden Denmark Netherlands United Kingdom Germany Netherlands

Professor Giuseppe Buonocore Professor Pierre Gressens Professor Petra Hüppi Dr Atle Moen Professor Manuel Sanchez Luna Dr Axel von der Wense Italy France Switzerland Norway Spain Germany

Dr Morten Breindahl Professor Boubou Hallberg Professor Bo Jacobsson Professor Kypros Herodotou Nicolaides Professor Ola Didrik Saugstad Dr Björn Westrup Denmark Sweden Sweden/Norway United Kingdom Norway Sweden

Professor Olaf Dammann Professor Dominique Haumont Professor Linda Johnston Monique Oude Reimer-van Kilsdonk Professor Umberto Simeoni Professor Dieter Wolke USA/Germany Belgium Northern Ireland Netherlands Switzerland United Kingdom

Professor Gian Carlo Di Renzo Dr Onno Helder Professor Berthold Koletzko Dr Carmen Pallás-Alonso Professor Laurent Storme Professor Luc J. I. Zimmermann Italy Netherlands Germany Spain France Netherlands

Professor Ursula Felderhoff-Müser Professor Ann Hellström Professor Pierre Kuhn Professor Christian Poets Dr Inge Tency Germany Sweden France Germany Belgium

Odile Frauenfelder Professor Lena Hellström-Westas Dr Nicholas Lack Professor Heike Rabe Professor Pierre Tissières Netherlands Sweden Germany United Kingdom France

28 29 European Parliamentary european foundation for the care of newborn infants Interest Group on Maternal and Neonatal Health

It is of crucial importance to improve the quality of life of preterm infants and their families and to prevent preterm birth. Millions of families can benefit from improvements in this area, and money that we invest to improve the conditions or to avoid preterm birth is very well spent because it will

Dr Peter Liese improve conditions for these human beings throughout all Member of the their lifespan. European Parliament

Founding members and chairs

Dr Angelika Niebler Dr Peter Liese Germany Germany

Members

Biljana Borzan Karin Kadenbach Dr Andreas Schwab Croatia Austria Germany

Esther de Lange Jo Leinen Dubravka Šuica Netherlands Germany Croatia

Dr Mariya Gabriel Linda McAvan Glenis Willmott Bulgaria United Kingdom United Kingdom

Elisabetta Gardini Mairead McGuinness Anna Záborská Italy Ireland Slovakia

Lidia J. Geringer de Oedenberg Herbert Reul Poland Germany

30 31 How to support

Donate now and support the best start in life

Your donation is highly valuable. Your support will effectively improve the care of preterm and newborn infants as well as their families in Europe and worldwide.

Make a difference: become a Bodyguard for the smallest children

With a donation from 1,000 Euro up you will promote an individual project and become a Bodyguard. If you have further questions we are happy to assist you.

Donations Be a voice of change and become a supporting member We would like to thank all donors for their generosity and commitment to improving maternal Promote a specific idea with a monthly donation and newborn health in Europe. All contributions, however small, help us to achieve our goals and and enhance the chance to the best start in life will make a vital difference. If you wish to make a donation, please send it to the following EFCNI for every newborn. bank account:

Bank fuer Sozialwirtschaft Account owner: EFCNI BIC: BFSWDE 33 MUE Donation for a special occasion: give a donation IBAN: DE 66 700 205 00 000 88 10 900 instead of a gift Please quote your address in the reference line so that we can issue a donation receipt. Send a message of hope and use special mo- ments with your loved ones to help preterm and A registered charity certified by Munich Tax Office as eligible for support, certificate dated newborn infants and their families. 26.08.2016, tax reference number 143/235/22619.

32 33 Closing words european foundation for the care of newborn infants We feel thrilled and fortunate that in the past we have been able to build a collaborative network of stakeholders working together to make newborn health a priority across Europe. Parent representati- ves, healthcare professionals and politicians now have one common objective: To enable every baby in Europe to have the best start in life.

We are grateful to our partners, who have supported and collaborated Silke Mader with us to operate effectively at both national and European level to Chairwoman of the Executive Board raise awareness, change attitudes and standardise practices. Together, we have made it possible to take the next step: the development of European Standards of Care for Newborn Health.

My sincere thanks go to everyone who has been working with us in the past and who is commit- ted to the cause of preterm and newborn health in Europe. I wish to extend a warm welcome to all those who want to join our network to contribute their dedication, knowledge and experience.

Special thanks

We would like to thank Christian Klant Photography, Foto Video Sessner GmbH, Klinikum Dritter Orden Munich, Vivantes Klinikum Neukölln Berlin, Irish Neonatal Health Alliance (INHA), and St. Joseph Krankenhaus Berlin Tempelhof for supporting EFCNI with photographs.

Images: EFCNI, Shutterstock.com.

We would like to express our gratitude to all partners of EFCNI as well as to all donors and volunteers.

Special thanks to our Premium Partners:

Silver and project Partners: Bronze Partner:

34 35 european foundation for the care of newborn infants

36 37 competence centre for maternal and newborn health and aftercare services

european foundation for the care of newborn infants

Hofmannstrasse 7A fon: +49 (0)89 890 83 26-0 [email protected]

81379 Munich, Germany fax: +49 (0)89 890 83 26-10 www.efcni.org 2016 - SubjectSeptember change. to