How did the hip dysplasia website and the international hip dysplasia institute get started? Why Go to our website? IHDI affiliated sites

It all began when When you visit hipdysplasia.org, you will enter • Adelaide, AUSTRALIA What is a mother had a website developed for the sole purpose of • Toronto, CANADA the vision and answering your questions about hip dysplasia. A • Southampton, ENGLAND HIP DYSPLASIA? the resources to website developed so you can find in one place • Mexico City, MEXICO help others avoid the answers you need. A website that is always • Boston, UNITED STATES the problems changing to keep you updated with the most • Orlando, UNITED STATES she faced with current information. Some examples are: • San Diego, UNITED STATES her son. One • Information for parents paragraph written by Cara Whitney captures • Finding a specialist the essence of what we are trying to achieve. • Practical tips during treatment “Once I started questioning the system of • Living with hip dysplasia curing hip dysplasia I realized there was no • Questions to ask the doctor system. No categories, no percentages. The only thing that has been agreed is that ‘We Facts about hip dysplasia don’t know,’” she says. “We need a place to • What are the symptoms and signs of learn, create and gather information about hip dysplasia? something that is curable but could be cured • Hip dysplasia treatment methods more efficiently with less harness hours • What if treatment fails? logged and avoiding surgeries. Developing a system that all doctors with less experience Learn more about us can use confidently (avoiding the ‘I don’t • Our Mission The International Hip Dysplasia Institute depends know’). The possibility of creating a universal • Our Affiliates completely on the generous support of those who harness and a website that is informative to • The Medical Advisory Board believe in the mission of reducing the burden of doctors and parents who want the answers I • The International Advisory Board hip dysplasia through family support, prevention, was seeking.” • Sponsored Research and Clinical Trials advocacy, education, research, and treatment of hip dysplasia worldwide. For more information on how The International Hip Dysplasia Institute For answers to your questions go to you can make a charitable contribution, please visit (IHDI) is a not-for-profit effort to improve the our website, hipdysplasia.org. Children and families health and quality of life of those afflicted hipdysplasia.org around the world appreciate your support. with hip dysplasia. Thank you!

The IHDI is supported by the Arnold Palmer Hospital Foundation in Orlando, Florida, with major sponsorship from Dan Whitney (“Larry the Cable Guy”) and his wife, Cara. With this combined effort, we have joined forces with International several noted medical centers around the world to promote prevention, diagnosis and HIP DYSPLASIA treatment of hip dysplasia. Institute 1379-113113a 9/10

1379-113113a.indd 1 9/7/10 3:08 PM What is hip dysplasia? How is hip dysplasia diagnosed?

Hip dysplasia is the medical term for The term Developmental Dysplasia, or DDH, instability, or looseness, of the hip joint that is generally preferred for infants because this affects thousands of children each year. condition can develop after birth. Also, the This ranges from mild instability to complete term congenital tends to refer to a defect dislocation. Approximately one out of every where something is missing or added to normal 20 full-term babies has some hip instability tissues. In the case of DDH, the infant’s joint is and two to three per 1000 will require otherwise normal except for the instability. treatment. When the hip is completely out of the joint, it is Persistent hip instability is a silent childhood called a dislocation. The hip is a ball-and-socket condition that frequently causes disability joint that is held together by ligaments. The ball Normal Subluxation Low Dislocation High Dislocation and arthritis in adults. In spite of the is called the head of the femur (femoral head) frequency and the potential for lifelong and the socket is called the acetabulum. disability, there is poor awareness of this condition outside the medical profession. Hip dysplasia and dislocation are usually diagnosed by Early diagnosis and simple treatment is routine examination of the infant. the best solution, but some cases are Acetabulum (hip socket) undetected or difficult to treat with current A “hip click” can be a sign of hip dislocation, but this can methods of care. Also, many children Femoral Head also be a normal finding in some infants because there are around the world do not have access to ligaments inside the hip joint that can make a snapping noise early diagnosis and treatment. Ligament and Joint Capsule in certain positions. But even with careful examination, complete hip dislocation can be difficult to detect in newborn infants. Femur Please visit hipdysplasia.org for more Also, there are documented cases where the hips were information. normal at birth, but became dislocated in the first few months of life. This is why it is important for Doctors use a number of different terms babies to have regular examinations of the hips for hip dysplasia depending on severity and In some infants the ligaments around the hip during the first year of life. An ultrasound study time of occurrence. These names include: joint are loose and the ball does not stay in in young infants or X-ray study in older infants the socket. Sometimes the condition is mild and children is performed when hip dysplasia • Hip Dysplasia and resolves spontaneously. Other times the is suspected. This is necessary to make the • Acetabular Dysplasia ball is slightly or completely dislocated from diagnosis or to be sure the hip is normal. • Hip Dislocation the socket. • Congenital Dislocation of the Hip (CDH) • Developmental Dislocation of the Hip (DDH) • Developmental Dysplasia of the Hip (DDH)

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