How did the dysplasia website and the international institute get started? Why Go to our website? IHDI affiliated sites

It all began when When you visit hipdysplasia.org, you will enter • Adelaide, AUSTRALIA Preventing a mother had a website developed for the sole purpose of • Toronto, CANADA the vision and answering your questions about hip dysplasia. A • Southampton, ENGLAND HIP DYSPLASIA the resources to website developed so you can find in one place • Mexico City, MEXICO help others avoid the answers you need. A website that is always • Boston, UNITED STATES the problems changing to keep you updated with the most • Orlando, UNITED STATES she faced with current information. Some examples are: • San Diego, UNITED STATES her son. One • Information for parents paragraph written by Cara Whitney captures • Finding a specialist the essence of what we are trying to achieve. • Practical tips during treatment “Once I started questioning the system of • Living with hip dysplasia curing hip dysplasia I realized there was no • Questions to ask the doctor system. No categories, no percentages. The only thing that has been agreed is that ‘We Facts about hip dysplasia don’t know,’” she says. “We need a place to • What are the symptoms and signs of learn, create and gather information about hip dysplasia? something that is curable but could be cured • Hip dysplasia treatment methods more efficiently with less harness hours • What if treatment fails? logged and avoiding . Developing a system that all doctors with less experience Learn more about us can use confidently (avoiding the ‘I don’t • Our Mission The International Hip Dysplasia Institute depends know’). The possibility of creating a universal • Our Affiliates completely on the generous support of those who harness and a website that is informative to • The Medical Advisory Board believe in the mission of reducing the burden of doctors and parents who want the answers I • The International Advisory Board hip dysplasia through family support, prevention, was seeking.” • Sponsored Research and Clinical Trials advocacy, education, research, and treatment of hip dysplasia worldwide. For more information on how The International Hip Dysplasia Institute For answers to your questions go to you can make a charitable contribution, please visit (IHDI) is a not-for-profit effort to improve the our website, hipdysplasia.org. Children and families health and quality of life of those afflicted hipdysplasia.org around the world appreciate your support. with hip dysplasia. Thank you!

The IHDI is supported by the Arnold Palmer Hospital Foundation in Orlando, Florida, with major sponsorship from Dan Whitney (“Larry the Cable Guy”) and his wife, Cara. With this combined effort, we have joined forces with International several noted medical centers around the world to promote prevention, diagnosis and HIP DYSPLASIA treatment of hip dysplasia. Institute 1379-113113b 9/10

1379-113113b.indd 1 9/7/10 3:10 PM What is hip dysplasia and how common is it? Prevention Hip dysplasia is the medical term for How is Hip Dysplasia Diagnosed? What can you do to protect Cultures that hold their instability, or looseness, of the hip . This your baby’s ? babies hips in a “jockey” affects thousands of children each year and Hip dysplasia and dislocation are usually diagnosed position strapped on ranges from mild instability to complete by routine examination of the hip joint. An Swaddling babies the wrong way can cause their mother’s back dislocation. About one out of every 20 full- ultrasound study of the hip may be recommended serious hip problems. It is important to leave the have very low frequency term babies has some hip instability and two for a baby at risk or when the pediatrician has any hips free to move and not tightly strapped down of hip dysplasia. or three per thousand will require treatment. concern about hip dysplasia. The ultrasound study with the legs straight out and pressed together. Cultures that wrap is harmless and painless and gives the doctor a Let the baby hold his or her hips bent up like they their babies tightly on a picture of the hip joint. were when the baby was born and allow room for papoose board with the the legs to move freely legs straight out have the high rates of hip About 40 years ago, dysplasia. before the advent of all the modern technology Which babies are at risk for of medicine, some hip dysplasia? Normal SubluxationDysplasia well-respected doctors recommended bulky Babies at risk for hip dysplasia include those Hip dysplasia is not a “” because diapers, or something who have a: nothing is missing. This looseness is because called “abduction pants”, the mother makes hormones that help to protect babies’ hips • Family history of hip dysplasia ligaments relax during the birth process. The The American Academy of recommends in the first few months • Breech position in the womb birth position may also stretch the hips and an ultrasound study at six weeks of age for almost of life while the hips make them loose. are growing rapidly. all baby girls who were in the breech, or • Twisted neck or foot bottom-first position. Babies When healthy babies Fortunately, most loose hips in babies tighten with other risk factors may also are born, their hips are bent up and don’t want • Birth weight more than 8 lbs 13 oz up naturally and the hips grow correctly. benefit from an ultrasound, to straighten into the adult position for walking. Tight swaddling, genetics, and other especially when the pediatrician Protecting the hips in this position may allow the • Mother more than 35 years old conditions can prevent natural correction has any concerns about the mother’s hormones to leave the baby as the hip from occurring. examination of the hips. sockets become tighter and stronger. The baby will • Hip click An X-ray at four months of still have plenty of time to stretch out the hip Prevention and early diagnosis are the keys age or older is sometimes before they start to walk. This natural method has You can help your baby have healthy to simple treatment before the hip dislocates recommended. been used in Serbia, Japan and in other parts of hips by recognizing risk factors, or becomes stuck in a bad position. the world and has helped prevent hip dysplasia. keeping your doctor appointments, and protecting your baby’s hips without swaddling the legs too tightly in the first few months of life. Visit our website at hipdysplasia.org

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