DOCSLIB.ORG

Issues in the Spectrum of Associations Representing Autism

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Issues in the Spectrum of Associations Representing Autism Issues in the spectrum of associations representing autism Pietro Cirrincione on the autism spectrum AE Vice-president [email protected] @pietrolem Autism-Europe Brussels, Belgium AutismEurope.org @autismeurope Amsterdam, 11 November 2017 /autismeurope.AE Hogeschool van Amsterdam (HvA) (University of Amsterdam) What is the correlation with Autminds theme? InsideOut Traditionally the spectrum about autism is referred to the heterogeneous conditions linked to it, in my contribution the spectrum about autism is referred to the heterogeneous associations representing it and the complex relationships among them. 2/30 Italians like to make associations for everything In Italy associations are around 500 000 (ratio is 1 association to 120 inhabitants!): cultural, sporting and recreational, social cooperatives, foundations, ecclesiastical bodies, volunteer organizations, non-governmental organizations, trade unions, study and research institutions, training, mutual and health care institutions Example of partners for a local event for cats lovers 3/30 Background: my international affiliations Vice-president Autism-Europe aisbl almost 90 member autism organisations from 38 European countries, not yet autistic- led, only individual members AutismEurope.org Information and Communication Technologies Expert Group Member European Disability Forum EDF-FEPH.org Board member World Autism Organization very limited representation WorldAutismOrganisation.com Invited Expert World Wide Web Consortium the main international open standards organization for the Web W3.org 4/30 Background: my Italian affiliations President and captain Autistic Football Club asd Inclusive football sport club of people on and out of the autism spectrum AutisticFootball.club Board member Gruppo Asperger onlus Italian national association of people on the autism spectrum and their families Asperger.it Board member Gruppo Asperger Lazio onlus Italian regional association of people on the autism spectrum and their families AspergerLazio.it member Asperger Pride aps Italian national association led by people on the autism spectrum AspergerPride.it 5/30 Background: my Italian affiliations Athlete member Atletica Roma Acquacetosa Athletics amateur sports club AtleticAcquacetosa.net Obviously, I’m involved in other volunteering associations as active member, but in other fields than autism, so I do not mention here... 6/30 Background: Autism-Europe collaborations 7/30 Background: my Italian collaborations Cooperativa Garibaldi Work cooperative made by people on the autism spectrum Garibaldi.coop Giuliaparla onlus cooperative of caregivers for autism Giuliaparla.it OfficinaMente cognitive and behavioural psychologists practice OfficinaMente.org culturAutismo cultural association by professionals for autism culturAutismo.it Studio Caretto e associati association of psychologists for autism CarettoEAssociati.it 8/30 Background: my Italian cooperations Laboratorio di Esplorazione Multimediale association of social promotion led by people on the autism spectrum, born from previous work cooperative LEM LEM-aps.org Barikama’ Microcredit project led by African people and one person on the autism spectrum in Italy Barikama.altervista.org SS Romulea Football Sport association SSRomulea.it 9/30 Background: my Italian cooperations Associazione Nazionale Genitori Soggetti Autistici The biggest parent-led Italian association for autism ANGSA.it Associazione Nazionale Famiglie di Persone con Disabilità Intellettiva e/o Relazionale the biggest and oldest parent-led association for intellectual and relational disabilities ANFFAS.net Federazione Italiana per il Superamento dell’Handicap Italian Federation of associations about disabilities FISHonlus.it Together Gruppo Asperger onlus we form National Coordination about autism 10/30 Background: my Italian cooperations Istituto Superiore di Sanità Italian National Health Institute ISS.it Sapienza University of Rome Department of Social and Developmental Psychology dip38.psi.uniroma1.it Aglioti LAB Social & Cognitive Neurosciences laboratory AgliotiLAB.org Società Italiana di Neuropsichiatria dell’Infanzia e dell’Adolescenza Italian Society of Child Neuropsichiatry Sinpia.eu 11/30 Examples: World Autism Awareness Day events 12/30 Examples: World Autism Awareness Day events 13/30 Examples: World Autism Awareness Day events 14/30 Examples: Autistic Pride Day events 15/30 Please note modern autism definition Report of the Special Rapporteur Report of the Special Rapporteur on the rights of persons with disabilities (12/01/2016) "37. The Convention on the Rights of Persons with Disabilities has accelerated the process of establishing organizations of self-advocates with intellectual disabilities, of autistic persons and of other individuals who may need extensive support to express their positions. Organizations of parents and relatives of persons requiring support have often played a role in providing such support and one can find organizations that include parents as well as self- advocates. The role of parents in such organizations should increasingly move towards the provision of support, with self-advocates in full control. States need to ensure that the will and preferences of persons with disabilities themselves are given priority.[…]" http://ap.ohchr.org/documents/dpage_e.aspx?si=A/HRC/31/62 http://www.ohchr.org/EN/Issues/Disability/SRDisabilities/Pages/SRDisabilitiesIndex.aspx 19/30 Self-advocacy and direct participation Self-advocacy Self-advocacy is the defence of their rights in first person and refers to the civil rights movement of persons with disabilities, born from the larger civil rights movement of the '60s and '70s. People with disabilities have the right to take control of their lives, talking for themselves, they can always ask for the support of others. Direct participation and UN CRPD “In the development and implementation of legislation and policies to implement the present Convention, and in other decision-making processes concerning issues relating to persons with disabilities, States Parties shall closely consult with and actively involve persons with disabilities, including children with disabilities, through their representative organizations.” Article 4, paragraph 3 of the Convention on the Rights of Persons with Disabilities 20/30 AE process for direct participation Autism-Europe is open to comprise members from the whole autism spectrum, including organizations led by people on the autism spectrum. Informal meetings among AE members and local autistic groups are conducted regularly. In 2015 during an AE board meeting, two board members on the autism spectrum held a workshop on how to ensure that autism organizations are representative of the whole spectrum http://www.autismeurope.org/files/files/conference-bcn-2015/involving-self-advocates-barcel ona-03-05-2015.pdf In 2016 a person on the autism spectrum was elected as the vice-president of AE and one AE full member has chosen to have a person on the autism spectrum represent them for all AE meetings and activities (the Dutch member!). In some European countries organizations led exclusively by people on the autism spectrum already exist for many years but none of them are yet AE members. Publications, activities, meetings and governing bodies of autism organizations have to be as accessible as possible by people from whole autism spectrum, implementing UN CRPD, fulfilling in practice disability movement historical right: "NOTHING ABOUT US WITHOUT US”. 21/30 ITALY: milestones 1/2 1977 – Public mainstream schools for all students: no more special classes/schools 1992 – Law 104/1992 "Framework Law for the assistance, social integration and the rights of disabled persons": a very strong jurisprudence about disabilities, in some aspects strongest than UN CRPD 2005 – Scientific Guidelines about autism by Sinpia (Italian Society of Child and Adolescent Neuropsychiatry) 2007 – Autism table sponsored by the Ministry of Health 2008 – Founding of Fantasia (National Federation of autism spectrum associations) 2009 – Ratification of UN CRPD and Optional protocol 22/30 ITALY: milestones 2/2 2011 – Scientific Guidelines about autism spectrum interventions in children and adolescents by ISS (National Institute of Health) and stakeholders 2012 – Guidelines on autism: Agreement between the Government, Regions and local authorities in the Unified Conference of State and Regions 2015 – National Law 134/15 on the autism spectrum: it places intervention for autism among the essential services provided by the Italian healthcare system. It also updates guidelines for diagnosis and care and promotes research in the field 2015 – Law 208/15 (Stability Law 2016) sets "Fund for the care of individuals with autism spectrum disorder" with an annual budget of 5 million Euros 2016 – Decree for the update of the Essential Levels of Assistance (LEA 2016): the NHS will ensure people on the autism spectrum: early diagnosis, care and individualized treatment, through the use of methods and tools based on the best scientific evidence; updating the guidelines every three years 23/30 ITALY: situation in education Inclusive mainstream school for all but often there is lack of qualified personnel. Problems: ● implementation ● public funds ● quality of training of support teachers Limits hard to assure: special teachers/students with disabilities = 1/2, 1/1 in some cases special teachers hours/week = 9 to 25 students/students with disabilities needing intensive support = 20/1 Peer support Some students
Load more

Recommended publications
  • Editorial: Pride and Autism Spectrum Disorder
    EDITORIAL: PRIDE AND AUTISM SPECTRUM DISORDER June 14, 2019 Tuesday June 18 is Autistic Pride Day and every April, thanks to National Autism Awareness Month, there’s a renewed sense of support for people living with Autism Spectrum Disorder (ASD) and those who’ve worked tirelessly to foster environments of inclusion and self-determination for all. Yet, when Autism Awareness Month comes to an end, so too does much of the focus on autism from the general public. As a society, we’ve made positive strides, but it’s important to remember that the conversations about acceptance, inclusion and support for people with ASD need to happen year-round. Today Autistic Pride Day is about celebrating differences in the autism community and realizing people’s infinite possibilities and potential. People with autism have hopes, dreams, aspirations, and a right to participate in the working world. Unfortunately, people with ASD are not afforded the same opportunities as the rest of us when it comes to employment. While the majority of Americans are enjoying a low unemployment rate and strong economy, the unemployment rate for adults with developmental disabilities remains high. According to the Bureau of Labor Statistics, only 29 percent of Americans ages 16 to 64 with a disability were employed as of June 2018, compared with nearly 75 percent of those without a disability. The unemployment rate for people with disabilities who are actively seeking work is 9.2 percent — more than twice as high as for those without a disability (4.2 percent). Employers’ lack of understanding and lasting stigmas are partly to blame for this discrepancy.
    [Show full text]
  • The Cerebral Subject and the Challenge of Neurodiversity
    BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks.
    [Show full text]
  • The Joy of Autism: Part 2
    However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing.
    [Show full text]
  • Gyvūnai Autistiškų Žmonių Gyvenime – Nuo Draugų Iki Terapeutų Kaip Kalbėti Su Vaikais Apie Autizmą?
    Spalis lietaus vaikai 2020 / NR. 9 Lietuvos autizmo asociacijos žurnalas GYVŪNAI AUTISTIŠKŲ ŽMONIŲ GYVENIME – NUO DRAUGŲ IKI TERAPEUTŲ KAIP KALBĖTI SU VAIKAIS APIE AUTIZMĄ? IŠŠŪKIŲ KELIANTĮ ELGESĮ LEMIA SAUGUMO TRŪKUMAS lietaus vaikai 2020 / Nr. 9 1 TURINYS Neuroįvairovės revoliucija 3–5 Žurnalas Diana Romanskaitė „Lietaus vaikai“ ISSN 2669-1825 Janne Fredikssonas: „Autistiškiems 6–7 Vyriausioji redaktorė asmenims itin svarbu ginti savo teises“ Barbora Suisse Kristina Košel-Patil [email protected] +370 698 00803 Iššūkius keliančio elgesio autistiški Projekto vadovė 8–9 vaikai ir jaunuoliai lieka be pagalbos Kristina Košel-Patil Julija Dargienė [email protected] +370 609 41420 Mokyklai einant įtraukties keliu, Redaktorė Sigita Bertulienė 10–11 svarbiausia bendruomenės požiūris Kristina Košel-Patil Dizainerė Inesa Gervė Kaip kalbėti su vaikais apie autizmą? Spaustuvė 12–13 Julija Dargienė UAB „Grafija“ Gyvūnai autistiškų žmonių gyvenime 14–16 – nuo draugų iki terapeutų Julija Dargienė Tiražas 1000 vnt. Leidinys platinamas nemokamai. Verbalinio elgesio etapų vertinimo ir 17 Elektroninė žurnalo versija skelbiama ugdymo plano rengimo programa – www.lietausvaikai.lt jau ir lietuvių kalba Eglė Steponėnienė Žurnalą leidžia Lietuvos autizmo asociacija „Lietaus vaikai“ Būti kaip visi: autistiškų asmenų 18–19 taikomos „kamufliažo“ strategijos Laura Valionienė Iššūkių keliantį elgesį lemia saugumo Žurnalą finansuoja 20–22 trūkumas Laura Valionienė Potrauminio streso sutrikimas ir Visos teisės saugomos. 23–25 autizmas Kopijuoti ir platinti galima tik gavus raštišką Laura Valionienė redakcijos atstovo sutikimą. „Lietaus vaikų“ šeimų stovykla Viršelio nuotraukos autorė – Laura Čekanauskienė 26 pajūryje – visiems vaikams! Modelis – Rapolas (7 metai). Sandra Lopetaitė Neuroįvairovės revoliucija psichikos žmonės“, kuris, mano nuomone, išreiškia svarbiausią neuroįvairovės šalininkų idėją – nenormatyvių jausmų, mąstymo, emocinių ir dvasinių būsenų pripažinimą ir pagarbą jų turėtojams.
    [Show full text]
  • A Brief Instigation to Autism: Review Article
    International Journal of Research and Scientific Innovation (IJRSI) | Volume IV, Issue VIIS, July 2017 | ISSN 2321–2705 A Brief Instigation to Autism: Review Article Ashima Sindhu Mohanty1, Dr. Krishna Chandra Patra2, Akshya Kumar Sahoo3 1Research scholar, SUIIT, Sambalpur University, Odisha, India 2HOD, Dept. of Electronics, SUIIT, Sambalpur University, Odisha, India 3Assistant professor in Dept. of EEE, GIET, Gunupur, Odisha, India Abstract: - The composite brain comprises of billions of components with distinguishable shape, size and wiring patterns. It supervises all the essential functions of the body by receiving the information through five senses: sight, hear, smell, taste and touch and the messages are assembled in a way that has meaning for us. Humans are affected from a number of neurodevelopmental disorders which results in poor ability to function in daily life. Autism Spectrum Disorders (ASD) are a composite set of mental disorders due to deterioration in the growth and development of brain defined by impaired social interaction, verbal and non-verbal communication and repeated unusual behaviours. ASD incorporates Autism, Asperger syndrome and pervasive developmental disorder-not otherwise . specified (PDD-NOS). This review article assembles information on different interventions adopted against autism. Figure 2. Keywords: Autism, Asperger syndrome, PDD-NOS, ABA, DSP, Source: https://pmgbiology.com/2015/02/18/nerve-cells-and-synapses-a- EIBI, Medication. understanding-for-igcse-biology/ There is a gap which is particularly known as synapse I. INTRODUCTION between the axon and the dendrite of the neighbouring neuron and the message sent by the signal must cross this synapse in utism is a mental disorder due to deteroriation in the [3] A growth and development of brain characterised by order for the message to be carried on to the next neuron.
    [Show full text]
  • Biopolitics and Subjectivity: the Case of Autism Spectrum
    BIOPOLITICS AND SUBJECTIVITY: THE CASE OF AUTISM SPECTRUM CONDITIONS IN ITALY By M. ARIEL CASCIO Submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy Department of Anthropology CASE WESTERN RESERVE UNIVERSITY May, 2015 2 CASE WESTERN RESERVE UNIVERSITY SCHOOL OF GRADUATE STUDIES We hereby approve the thesis/dissertation of M. Ariel Cascio candidate for the degree of Ph.D.*. Committee Chair Atwood D. Gaines Committee Member Eileen Anderson-Fye Committee Member Lee Hoffer Committee Member Anastasia Dimitropoulos Date of Defense March 6, 2015 * We also certify that written approval has been obtained for any proprietary material contained therein. 3 Table of Contents List of Tables ...................................................................................................................... 7 List of Figures ..................................................................................................................... 8 Preface................................................................................................................................. 9 Acknowledgments............................................................................................................. 11 List of Acronyms .............................................................................................................. 13 Abstract ............................................................................................................................. 11 Introduction ......................................................................................................................
    [Show full text]
  • Rethinking Autism, Communication, and Community
    Portland State University PDXScholar Dissertations and Theses Dissertations and Theses Winter 3-31-2015 Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination Colleen Anne Kidney Portland State University Follow this and additional works at: https://pdxscholar.library.pdx.edu/open_access_etds Part of the Psychology Commons Let us know how access to this document benefits ou.y Recommended Citation Kidney, Colleen Anne, "Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination" (2015). Dissertations and Theses. Paper 2224. https://doi.org/10.15760/etd.2221 This Dissertation is brought to you for free and open access. It has been accepted for inclusion in Dissertations and Theses by an authorized administrator of PDXScholar. Please contact us if we can make this document more accessible: [email protected]. Rethinking Autism, Communication, and Community Involvement: Exploring Involvement in Online Communities, Communication Preference, Autistic Identity, and Self-Determination by Colleen Anne Kidney A dissertation submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy in Applied Psychology Dissertation Committee: Eric Mankowski, Chair Katherine E. McDonald Greg Townley Christina Nicolaidis Laurie Powers Portland State University 2015 i Abstract Autistic individuals experience marginalization and stigmatization, and are often not connected to mainstream services or organizations fostering peer relationships (Boundy, 2008; Jaarsma & Welin, 2012; Robertson, 2010). Therefore, the accomplishments of the online Autistic community in building a community for self- advocacy, peer-support, friendships, and identity development (Brownlow & O’Dell, 2006; Kidney, 2012) are important to recognize, empirically examine, and promote (Blume, 1997a; Davidson, 2008).
    [Show full text]
  • Get Ahead Newsletter Issue 9 – May 2021
    Get Ahead Newsletter Issue 9 – May 2021 The Disability Rights UK newsletter co-edited with and for young people Stay informed with news and information on your journey through education, training and work Schools and colleges to benefit from boost in expert mental health support! Children and young people to benefit from better support and expert advice in school and college thanks to a new multi-million package of mental health support to help them recover from the challenges of the pandemic. As part of Mental Health Awareness week (May 10-16), the Government has announced more than £17 million to build on mental health support already available in education settings. “Our children and young people have faced unique challenges over the course of this very difficult and unsettling pandemic, and while they have shown great resilience, I recognise the need for additional support. “It is essential that children and young people can access the support they need and this extra funding further cements our commitment to their wellbeing, equipping them with the tools to look after their mental health.” Children and Families Minister Vicky Ford Funding also includes a new £7 million Wellbeing for Education Recovery programme, which provides free expert training, support and resources for staff dealing with children and young people experiencing additional pressures from the last year. The Department for Education will also fund an adapted ‘Link' programme which is designed to improve partnerships between health and education leaders in local areas, raise awareness of mental health concerns and improve referrals to specialist help when needed.
    [Show full text]
  • L'exemple De L'autisme
    AU-DELA DE L’EVIDENCE : L’EXEMPLE DE L’AUTISME Brigitte Chamak To cite this version: Brigitte Chamak. AU-DELA DE L’EVIDENCE : L’EXEMPLE DE L’AUTISME. Abel Guillen. Es- sais d’épistémologie pour la psychiatrie de demain, ERES, pp.51-65, 2017, 9782749254012. halshs- 01470200 HAL Id: halshs-01470200 https://halshs.archives-ouvertes.fr/halshs-01470200 Submitted on 17 Feb 2017 HAL is a multi-disciplinary open access L’archive ouverte pluridisciplinaire HAL, est archive for the deposit and dissemination of sci- destinée au dépôt et à la diffusion de documents entific research documents, whether they are pub- scientifiques de niveau recherche, publiés ou non, lished or not. The documents may come from émanant des établissements d’enseignement et de teaching and research institutions in France or recherche français ou étrangers, des laboratoires abroad, or from public or private research centers. publics ou privés. Pour citer ce document : Chamak B. (2017) Au-delà de l’évidence : l’exemple de l’autisme. In Guillen A. (ed.), Essais d’épistémologie pour la psychiatrie de demain, éditions érès. Au-delà de l’évidence : l’exemple de l’autisme Brigitte Chamak La difficulté à distinguer entre connaissances scientifiques stabilisées et études ou informations relevant du marketing ou d’intérêts particuliers a toujours existé mais l’ampleur du phénomène s’est accrue avec la diffusion d’informations plus rapide via internet. Faire le tri relève de la gageure. Le milieu de la recherche, comme le reste de la société, s’est transformé. En redéfinissant l’université comme moyen de développement économique, l’État a contribué à faire disparaître les bases de l’opposition entre « intérêt public » et « intérêt privé », ce qui a exacerbé les sources de conflits d’intérêts surtout lorsque les chercheurs créent leur propres entreprises et déposent des brevets (Gingras et al.
    [Show full text]
  • Asperger Syndrome
    Texto de apoio ao curso de especialização Atividade física adaptada e saúde Prof. Dr. Luzimar Teixeira Asperger syndrome (sometimes called Asperger's syndrome, AS, or the more common shorthand Asperger's), is characterized as one of the five pervasive developmental disorders, and is commonly referred to as a form of high-functioning autism. In very broad terms, individuals with Asperger's have normal or above average intellectual capacity, and atypical or poorly developed social skills, often with emotional/social development or integration happening later than usual as a result. Asperger described his patients as "little professors". The term "Asperger's syndrome" was coined by Lorna Wing in a 1981 medical paper. She named the syndrome after Hans Asperger, an Austrian psychiatrist and pediatrician who himself had used the term autistic psychopathy. Contents [hide] • 1 Prevalence • 2 Characteristics o 2.1 Social impairments o 2.2 Narrow, intense interests o 2.3 Speech and language peculiarities o 2.4 Other characteristics • 3 Living with Asperger syndrome • 4 Definitions and diagnostic criteria • 5 Relationship to autism • 6 A gift and a curse o 6.1 Speculation about recognized people who may have Asperger syndrome o 6.2 Shift away from view as a disease • 7 Causes and etiology • 8 Controversies • 9 Culture • 10 See also • 11 Further reading • 12 References • 13 External links [edit] Prevalence A 1993 total population study carried out in Sweden found that, at a minimum, 3.6 per 1000 school-aged children definitely meet the criteria for Asperger syndrome. If merely suspected cases are included, the prevalence becomes approximately 7.1 per 1000 (Ehlers & Gillberg).
    [Show full text]
  • More Positive Autism Young Blogger Asks Age Old Question
    It saddens me everyday to see that the ABA “advocates” want to make this a zero-sum game: either you’re an absolute ABA supporter or you “swim with the dolphins.” It should be extremely frightening to society at large to hear parents call their children useless, or to think that ABA and institutions are the only options for autistic people. It is even sadder when a Globe and Mail reporter doesn’t do her research to either get her facts right, or to get the very important other side of the story from autistic people and the many parents like me who just wants my son to go to school and be allowed to receive the accommodations he requires – whatever they may be at different points throughout his life. PERM ALINK POSTED BY ESTEE KLAR-WOLFOND AT 11/22/2006 11:33:00 PM 7 COM M ENTS LINKS TO THIS POST WEDNESDAY , NOVEM BER 15, 2006 More Positive Autism I'm about to go away for a few days and may not post to my blog. I find I'm at a loss for words these days, which is a sure sign I need to retreat, be alone, collect my thoughts. In the meantime, for Toronto viewers, I've posted a little more "positive autism," and I hope that people will figure out that no matter what level of "functioning" we can surely all learn from each other. It's like what Jonathan Lerman says, a man who at ten was still completely mute, who is learning to speak more and more today, going on nineteen years of age: "There's no such word as can't." And you don't have to be a Nobel Laureate either! Vernon Smith, Nobel Prize Winner & Autistic, PERM ALINK POSTED BY ESTEE KLAR-WOLFOND AT 11/15/2006 12:11:00 PM 6 COM M ENTS LINKS TO THIS POST THURSDAY , NOVEM BER 09, 2006 Young Blogger Asks Age Old Question To cure or not to cure, that is the question.
    [Show full text]
  • Niterói 2017 Universidade Federal Fluminense Instituto De Ciências
    Universidade Federal Fluminense Instituto de Ciências Humanas e Filosofia Programa de Pós-graduação em Psicologia Amanda Muniz Logeto Caitité O autismo como diversidade: ontologias trazidas à existência no ativismo político, em práticas da psicologia e em relatos em primeira pessoa. Niterói 2017 Amanda Muniz Logeto Caitité O autismo como diversidade: ontologias trazidas à existência no ativismo político, em práticas da psicologia e em relatos em primeira pessoa. Tese apresentada ao Programa de Pós-Graduação em Psicologia do Departamento de Psicologia da Universidade Federal Fluminense, como requisito parcial para a obtenção do título de Doutora em Psicologia. Área de concentração: Subjetividade, política e exclusão social Orientadora: Profª. Dra. Katia Aguiar Niterói 2017 Ficha Catalográfica elaborada pela Biblioteca Central do Gragoatá C137 Caitité, Amanda Muniz Logeto. O autismo como diversidade : ontologias trazidas à existência no ativismo político, em práticas da psicologia e em relatos em primeira pessoa / Amanda Muniz Logeto Caitité. – 2017. 212 f. : il. Orientadora: Katia Aguiar. Tese (Doutorado) – Universidade Federal Fluminense. Instituto de Psicologia, 2017. Bibliografia: f. 190-202. 1. Ontologia. 2. Transtorno do espectro autista. 3. Psicologia. 4. Deficiência psicossocial. I. Aguiar, Katia. II. Universidade Federal Fluminense. Instituto de Psicologia. III. Título. Bibliotecária: Mahira de Souza Prado CRB-7/6146 DEDICATÓRIA Às forças misteriosas do mundo. A mainha, painho, Loy, Bento e Rubem, porque são uma família muito amorosa. Às tias Ivanilde, Neide, Cleusa, Célia, Sylene, Simone, Vera, Madá, Tania, aos tios Reginaldo e Paschoal, assim como a Arilson e Dra. Bertine, pelas preces e conselhos. Às demais amigas e amigos, porque sem o amor de vocês eu não teria conseguido.
    [Show full text]