The Cerebral Subject and the Challenge of Neurodiversity
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The Life and Times Of'asperger's Syndrome': a Bakhtinian Analysis Of
The life and times of ‘Asperger’s Syndrome’: A Bakhtinian analysis of discourses and identities in sociocultural context Kim Davies Bachelor of Education (Honours 1st Class) (UQ) Graduate Diploma of Teaching (Primary) (QUT) Bachelor of Social Work (UQ) A thesis submitted for the degree of Doctor of Philosophy at The University of Queensland in 2015 The School of Education 1 Abstract This thesis is an examination of the sociocultural history of ‘Asperger’s Syndrome’ in a Global North context. I use Bakhtin’s theories (1919-21; 1922-24/1977-78; 1929a; 1929b; 1935; 1936-38; 1961; 1968; 1970; 1973), specifically of language and subjectivity, to analyse several different but interconnected cultural artefacts that relate to ‘Asperger’s Syndrome’ and exemplify its discursive construction at significant points in its history, dealt with chronologically. These sociocultural artefacts are various but include the transcript of a diagnostic interview which resulted in the diagnosis of a young boy with ‘Asperger’s Syndrome’; discussion board posts to an Asperger’s Syndrome community website; the carnivalistic treatment of ‘neurotypicality’ at the parodic website The Institute for the Study of the Neurologically Typical as well as media statements from the American Psychiatric Association in 2013 announcing the removal of Asperger’s Syndrome from the latest edition of the Diagnostic and Statistical Manual of Mental Disorders, DSM-5 (APA, 2013). One advantage of a Bakhtinian framework is that it ties the personal and the sociocultural together, as inextricable and necessarily co-constitutive. In this way, the various cultural artefacts are examined to shed light on ‘Asperger’s Syndrome’ at both personal and sociocultural levels, simultaneously. -
Gesnerus 2020-2.Indb
Gesnerus 77/2 (2020) 279–311, DOI: 10.24894/Gesn-de.2020.77012 Vom «autistischen Psychopathen» zum Autismusspektrum. Verhaltensdiagnostik und Persönlichkeitsbehauptung in der Geschichte des Autismus Rüdiger Graf Abstract Der Aufsatz untersucht das Verhältnis von Persönlichkeit und Verhalten in der Defi nition und Diagnostik des Autismus von Kanner und Asperger in den 1940er Jahren bis in die neueren Ausgaben des DSM und ICD. Dazu unter- scheidet er drei verschiedene epistemische Zugänge zum Autismus: ein exter- nes Wissen der dritten Person, das über Verhaltensbeobachtungen, Testver- fahren und Elterninterviews gewonnen wird; ein stärker praktisches Wissen der zweiten Person, das in der andauernden, alltäglichen Interaktion bei El- tern und Betreuer*innen entsteht, und schließlich das introspektive Wissen der ersten Person, d.h. der Autist*innen selbst. Dabei resultiert die Kerndif- ferenz in der Behandlung des Autismus daraus, ob man meint, die Persönlich- keit eines Menschen allein über die Beobachtung von Verhaltensweisen er- schließen zu können oder ob es sich um eine vorgängige Struktur handelt, die introspektiv zugänglich ist, Verhalten prägt und ihm Sinn verleihen kann. Die Entscheidung hierüber führt zu grundlegend anderen Positionierungen zu verhaltenstherapeutischen Ansätzen, wie insbesondere zu Ole Ivar Lovaas’ Applied Behavior Analysis. Autismus; Psychiatriegeschichte; Wissensgeschichte; Verhaltenstherapie; Neurodiversität PD Dr. Rüdiger Graf, Leibniz-Zentrum für Zeithistorische Forschung Potsdam, Am Neuen Markt 1, 14467 Potsdam, [email protected]. Gesnerus 77 (2020) 279 Downloaded from Brill.com09/27/2021 01:45:02AM via free access «Autistic Psychopaths» and the Autism Spectrum. Diagnosing Behavior and Claiming Personhood in the History of Autism The article examines how understandings of personality and behavior have interacted in the defi nition and diagnostics of autism from Kanner and As- perger in the 1940s to the latest editions of DSM and ICD. -
Gruson-Wood Julia F 2018 Phd.Pdf (1.393Mb)
‘I’M A JUGGLING ROBOT:’ AN ETHNOGRAPHY OF THE ORGANIZATION AND CULTURE OF AUTISM-BASED APPLIED BEHAVIOUR THERAPIES IN ONTARIO, CANADA JULIA GRUSON-WOOD A DISSERTATION SUBMITTED TO THE FACULTY OF GRADUATE STUDIES IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY GRADUATE PROGAM IN SCIENCE AND TECHNOLOGY STUDIES YORK UNIVERSITY, ONTARIO AUGUST 2018 © Julia F Gruson-Wood 2018 ABSTRACT This dissertation is an ethnographic study of the culture, social organization, and everyday practices of providers and recipients of autism-based applied behavior therapies in Ontario, Canada. Autism-based applied behavior therapies are highly controversial evidence-based autism interventions that have become the standard of care, and the only guaranteed-funded services, for autistic people in this province. These therapies are provided by teachers in public autism classrooms, by parents in the home, and by personal support workers in group homes with autistic residents. The lives of many autistic people in this province, whether at school, in the home, or the community, are structured through completing behaviour therapy activities. The growing voices that resist and proliferate applied behaviour therapies, highlight the importance of critical scholarly attention to these therapies. This dissertation is situated within the fields of science studies, medical anthropology, and critical autism studies, and focuses on the experiences and practices of providers. Learning about what providers do, and how they make sense of what they do, helps to understand the professional culture in which they work, and the complex forces of power that govern both their activities and the everyday lives of autistic people in this province. -
Editorial: Pride and Autism Spectrum Disorder
EDITORIAL: PRIDE AND AUTISM SPECTRUM DISORDER June 14, 2019 Tuesday June 18 is Autistic Pride Day and every April, thanks to National Autism Awareness Month, there’s a renewed sense of support for people living with Autism Spectrum Disorder (ASD) and those who’ve worked tirelessly to foster environments of inclusion and self-determination for all. Yet, when Autism Awareness Month comes to an end, so too does much of the focus on autism from the general public. As a society, we’ve made positive strides, but it’s important to remember that the conversations about acceptance, inclusion and support for people with ASD need to happen year-round. Today Autistic Pride Day is about celebrating differences in the autism community and realizing people’s infinite possibilities and potential. People with autism have hopes, dreams, aspirations, and a right to participate in the working world. Unfortunately, people with ASD are not afforded the same opportunities as the rest of us when it comes to employment. While the majority of Americans are enjoying a low unemployment rate and strong economy, the unemployment rate for adults with developmental disabilities remains high. According to the Bureau of Labor Statistics, only 29 percent of Americans ages 16 to 64 with a disability were employed as of June 2018, compared with nearly 75 percent of those without a disability. The unemployment rate for people with disabilities who are actively seeking work is 9.2 percent — more than twice as high as for those without a disability (4.2 percent). Employers’ lack of understanding and lasting stigmas are partly to blame for this discrepancy. -
Autism, Asperger's & Theory of Mind a Literature Review
Autism, Asperger©s & Theory of Mind A Literature Review Abstract: This literature review examines the history and pertinent research on Autism, a brain development disorder characterized by social impairment, communication difficulties and ritualistic behavior, and Theory of Mind, the ability for one to impute mental states to the self and to others. An introduction to these topics is followed by an investigation of whether Theory of Mind is missing in cases of autism, whether it is truly a core deficit of the disorder and what the ramifications are if this is the case. Also examined is whether this deficit is also present in cases of Asperger©s syndrome, where language is not delayed and IQs are usually high, as there has been controversy in this area. Possible biological connections are examined, including the Mirror Neuron system. A look at the world of treatment and adaptive technology solutions for the deficit is also undertaken. Lars Sorensen Cognition and Children©s Thinking Seminar : 295:590 Spring 2009 1 Introduction Theory of mind (ToM), the ability to impute mental states to the self and others and make reasoned decisions based on this information, is a cognitive skill usually found in typical children by the age of four or five years old. It is now believed to be a core deficit in cases of autism, a neurological disorder characterized by social and communication impairment, repetitive behavior and delayed speech. A great deal of research has been done in the last thirty years that focuses on this area. Do autistic children -
L Brown Presentation
Health Equity Learning Series Beyond Service Provision and Disparate Outcomes: Disability Justice Informing Communities of Practice HEALTH EQUITY LEARNING SERIES 2016-17 GRANTEES • Aurora Mental Health Center • Northwest Colorado Health • Bright Futures • Poudre Valley Health System • Central Colorado Area Health Education Foundation (Vida Sana) Center • Pueblo Triple Aim Corporation • Colorado Cross-Disability Coalition • Rural Communities Resource Center • Colorado Latino Leadership, Advocacy • Southeast Mental Health Services and Research Organization • The Civic Canopy • Cultivando • The Gay, Lesbian, Bisexual, and • Eagle County Health and Human Transgender Community Center of Services Colorado • El Centro AMISTAD • Tri-County Health Network • El Paso County Public Health • Warm Cookies of the Revolution • Hispanic Affairs Project • Western Colorado Area Health Education Center HEALTH EQUITY LEARNING SERIES Lydia X. Z. Brown (they/them) • Activist, writer and speaker • Past President, TASH New England • Chairperson, Massachusetts Developmental Disabilities Council • Board member, Autism Women’s Network ACCESS NOTE Please use this space as you need or prefer. Sit in chairs or on the floor, pace, lie on the floor, rock, flap, spin, move around, step in and out of the room. CONTENT/TW I will talk about trauma, abuse, violence, and murder of disabled people, as well as forced treatment and institutions, and other acts of violence, including sexual violence. Please feel free to step out of the room at any time if you need to. BEYOND SERVICE -
Becoming Autistic: How Do Late Diagnosed Autistic People
Becoming Autistic: How do Late Diagnosed Autistic People Assigned Female at Birth Understand, Discuss and Create their Gender Identity through the Discourses of Autism? Emily Violet Maddox Submitted in accordance with the requirements for the degree of Master of Philosophy The University of Leeds School of Sociology and Social Policy September 2019 1 Table of Contents ACKNOWLEDGEMENTS ................................................................................................................................... 5 ABSTRACT ....................................................................................................................................................... 6 ABBREVIATIONS ............................................................................................................................................. 7 CHAPTER ONE ................................................................................................................................................. 8 INTRODUCTION .............................................................................................................................................. 8 1.1 RESEARCH OBJECTIVES ........................................................................................................................................ 8 1.2 TERMINOLOGY ................................................................................................................................................ 14 1.3 OUTLINE OF CHAPTERS .................................................................................................................................... -
April 2011 Issue As I Knew That Kim Pittaway, Who Did This Article Also About Adam and Myself, Also Wrote an Article About Michelle
6/26/2019 Estée Klar Estée Klar - Page 14 of 32 - My autistic son and I explore issues and meanings of autism in our lives Estée Klar Home Bio Lectures/Events Published Articles/Papers Books Contact Me Media Youtube Autistic Wandering and the DSM Filed Under (Activism, autism, Autism Spectrum and Diagnosis, Discrimination) by Estee on 04-04-2011 Recently, the CDC proposed a separate criteria for wandering in autism. You can find the PDF here. I have received permission from the Autism National Committee (AUTCOM) to make this letter available to readers in response to the proposal: Dear Ms. Pickett: We are writing as a coalition of organizations representing a wide variety of different constituents in the disabilities field. We include organizations run by people with disabilities as well as those run by parents, other family members, professionals, providers and many others. Our coalition also includes groups representing a wide array of different kinds of disability categories, including developmental disabilities, mental health conditions, physical disabilities and sensory disabilities. We are writing to express our profound concern about the proposed ICD-9-CM code for wandering discussed at the last meeting of the ICD Coordination and Maintenance Committee on March 9th-10th. While wandering behavior leading to injury and death represents an important and legitimate safety issue for the disability community, we are concerned that the proposal put forward by CDC’s National Center for Birth Defects and Developmental Disabilities (NCBDDD) is not rooted in high quality research and has significant potential unintended consequences for people with disabilities and family members. -
Neurodiversity: Accepting Autistic Difference
Accepted version. Published in Learning Disability Practice, May 2013 | Volume 16 | Number 4, p. 32-37. Neurodiversity: accepting autistic difference Thomas Owren1 and Trude Stenhammer2 Abstract ‘Insider’ descriptions of living with autism in a world where most people are not autistic may at the same time inform and challenge a professional approach to what can be termed as ‘autistic behaviour’. This article draws on the perspectives of the ‘neurodiversity’ movement, people who themselves have diagnoses on the autistic spectrum but reject that autism is a disorder, choosing instead to fight for their right to be autistic. The authors include a case study to explore how such descriptions and perspectives can be applied to services supporting an autistic service user. They conclude that, regardless of whether autism is seen as a difference or a disorder, care staff providing services to autistic service users may need to examine their assumptions carefully if they are to avoid discriminatory practices. Introduction Autism, including Asperger syndrome, is generally perceived as a disorder. But over the past two decades, helped by the emergence of the internet (Sinclair 2010), autistic self-advocates have been cultivating the idea of autism as a neurological difference. Referring to this movement called the ‘autism rights’ or ‘neurodiversity’ movement, French researcher Brigitte Chamak writes: ‘If the disability movement is considered as the latest generation of social movements, the action of autistic persons can be viewed as the latest generation of the disability movements’ (Chamak 2008). British autism researcher Simon Baron-Cohen (2012) also commented in a recent talk that looking at the neurobiology of autism there is not much evidence for dysfunction, but a lot of evidence that people on the autistic spectrum are simply different. -
Heller 7-Day Neurodiversity Inclusion Challenge-Introduction
The 7-Day Neurodiversity Inclusion Challenge at Heller Introduction Many people are unfamiliar with the term “neurodiversity,” a concept originating in the autistic community and made widely known, in particular, by Jim Sinclair, a pioneer of autistic self-advocacy. Briefly, “neurodiversity” refers to the range of neurological divergence from “neurotypical” patterns of cognition. The term and concept originated from the neurodiversity movement, a social movement that argues that society should accommodate and include people with neurological disabilities rather than seek to cure them or enforce typical behavior. Human minds vary, and these variations do not all require a cure. The term also can imply that no typical or normal brain exists at all; all brains are variations on a theme. Associated primarily with autism (now known clinically as autism spectrum disorder [ASD]), neurodiversity usually also includes attention-deficit/hyperactivity disorder (ADHD), dyslexia, and dyspraxia as well as many other conditions. Some apply the term not only to innate conditions but also to acquired conditions, for example, neurological divergence caused by brain injury. Different disability communities have different politics. While some do seek cures or other interventions designed to promote typical function, a growing number of communities have adopted the neurodiversity framework as offering a better approach to research, support, and advocacy. While neurodiversity is consistent with services and supports designed to help people achieve important person-centered goals like communication, independent living, and avoiding self-injury, therefore, the neurodiversity movement rejects the idea that service provision or research should promote typical behavior, like eye contact or standard movement and speech patterns. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing. -
Autism Spectrum Disorder
SPRING 2014 HALDIMAND-NORFOLK HEALTH UNIT COMMUNICATION MATTERS A NEWSLETTER FOR PARENTS, TEACHERS, EARLY LEARNING PROVIDERS AND CAREGIVERS OF PRESCHOOL-AGED CHILDREN. Autism spectrum disorder The last time we featured the topic of autism The following table highlights the most important differences between the DSM-5 and in Communication Matters was 2002. the previous edition, DSM-4. A lot has changed since then! More DSM IV DSM V people receive this diagnosis now than Diagnostic Labels Autism Spectrum Disorders Autism Spectrum Disorder: ever. Scientists are working hard to identify include: Level 1, Level 2, Level 3 the causes of autism. And in Ontario, the • Autistic Disorder, (Levels are defined by Ministry of Children and Youth funds a • Asperger’s Disorder, how much support the range of services for children with autism • PDD-NOS (Pervasive individual needs) and their families. Developmental Disorder Not Otherwise Specified) In this issue, we’ll look at some of the Criteria for diagnosis • Impairments in • Impaired Social recent information available about Autism Communication Communication and/or Spectrum Disorder. • Impairments in Social Interaction Interaction • Restricted and/or • Restricted Interests and Repetitive Behaviors What is Autism Spectrum Repetitive Behaviours. Disorder (ASD)? Age of diagnosis Geared towards Symptoms must show in Autism spectrum disorder is a neurological identification in school-aged early childhood even if condition. It affects the way the brain children diagnosis isn’t made until functions and results in difficulties with later. social communication. People with the disorder also exhibit unusual patterns of down to a few things that may have a in the old diagnosis, social skills and behaviour, activities and interests.