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The Life and Times Of'asperger's Syndrome': a Bakhtinian Analysis Of
The life and times of ‘Asperger’s Syndrome’: A Bakhtinian analysis of discourses and identities in sociocultural context Kim Davies Bachelor of Education (Honours 1st Class) (UQ) Graduate Diploma of Teaching (Primary) (QUT) Bachelor of Social Work (UQ) A thesis submitted for the degree of Doctor of Philosophy at The University of Queensland in 2015 The School of Education 1 Abstract This thesis is an examination of the sociocultural history of ‘Asperger’s Syndrome’ in a Global North context. I use Bakhtin’s theories (1919-21; 1922-24/1977-78; 1929a; 1929b; 1935; 1936-38; 1961; 1968; 1970; 1973), specifically of language and subjectivity, to analyse several different but interconnected cultural artefacts that relate to ‘Asperger’s Syndrome’ and exemplify its discursive construction at significant points in its history, dealt with chronologically. These sociocultural artefacts are various but include the transcript of a diagnostic interview which resulted in the diagnosis of a young boy with ‘Asperger’s Syndrome’; discussion board posts to an Asperger’s Syndrome community website; the carnivalistic treatment of ‘neurotypicality’ at the parodic website The Institute for the Study of the Neurologically Typical as well as media statements from the American Psychiatric Association in 2013 announcing the removal of Asperger’s Syndrome from the latest edition of the Diagnostic and Statistical Manual of Mental Disorders, DSM-5 (APA, 2013). One advantage of a Bakhtinian framework is that it ties the personal and the sociocultural together, as inextricable and necessarily co-constitutive. In this way, the various cultural artefacts are examined to shed light on ‘Asperger’s Syndrome’ at both personal and sociocultural levels, simultaneously. -
Gesnerus 2020-2.Indb
Gesnerus 77/2 (2020) 279–311, DOI: 10.24894/Gesn-de.2020.77012 Vom «autistischen Psychopathen» zum Autismusspektrum. Verhaltensdiagnostik und Persönlichkeitsbehauptung in der Geschichte des Autismus Rüdiger Graf Abstract Der Aufsatz untersucht das Verhältnis von Persönlichkeit und Verhalten in der Defi nition und Diagnostik des Autismus von Kanner und Asperger in den 1940er Jahren bis in die neueren Ausgaben des DSM und ICD. Dazu unter- scheidet er drei verschiedene epistemische Zugänge zum Autismus: ein exter- nes Wissen der dritten Person, das über Verhaltensbeobachtungen, Testver- fahren und Elterninterviews gewonnen wird; ein stärker praktisches Wissen der zweiten Person, das in der andauernden, alltäglichen Interaktion bei El- tern und Betreuer*innen entsteht, und schließlich das introspektive Wissen der ersten Person, d.h. der Autist*innen selbst. Dabei resultiert die Kerndif- ferenz in der Behandlung des Autismus daraus, ob man meint, die Persönlich- keit eines Menschen allein über die Beobachtung von Verhaltensweisen er- schließen zu können oder ob es sich um eine vorgängige Struktur handelt, die introspektiv zugänglich ist, Verhalten prägt und ihm Sinn verleihen kann. Die Entscheidung hierüber führt zu grundlegend anderen Positionierungen zu verhaltenstherapeutischen Ansätzen, wie insbesondere zu Ole Ivar Lovaas’ Applied Behavior Analysis. Autismus; Psychiatriegeschichte; Wissensgeschichte; Verhaltenstherapie; Neurodiversität PD Dr. Rüdiger Graf, Leibniz-Zentrum für Zeithistorische Forschung Potsdam, Am Neuen Markt 1, 14467 Potsdam, [email protected]. Gesnerus 77 (2020) 279 Downloaded from Brill.com09/27/2021 01:45:02AM via free access «Autistic Psychopaths» and the Autism Spectrum. Diagnosing Behavior and Claiming Personhood in the History of Autism The article examines how understandings of personality and behavior have interacted in the defi nition and diagnostics of autism from Kanner and As- perger in the 1940s to the latest editions of DSM and ICD. -
Editorial: Pride and Autism Spectrum Disorder
EDITORIAL: PRIDE AND AUTISM SPECTRUM DISORDER June 14, 2019 Tuesday June 18 is Autistic Pride Day and every April, thanks to National Autism Awareness Month, there’s a renewed sense of support for people living with Autism Spectrum Disorder (ASD) and those who’ve worked tirelessly to foster environments of inclusion and self-determination for all. Yet, when Autism Awareness Month comes to an end, so too does much of the focus on autism from the general public. As a society, we’ve made positive strides, but it’s important to remember that the conversations about acceptance, inclusion and support for people with ASD need to happen year-round. Today Autistic Pride Day is about celebrating differences in the autism community and realizing people’s infinite possibilities and potential. People with autism have hopes, dreams, aspirations, and a right to participate in the working world. Unfortunately, people with ASD are not afforded the same opportunities as the rest of us when it comes to employment. While the majority of Americans are enjoying a low unemployment rate and strong economy, the unemployment rate for adults with developmental disabilities remains high. According to the Bureau of Labor Statistics, only 29 percent of Americans ages 16 to 64 with a disability were employed as of June 2018, compared with nearly 75 percent of those without a disability. The unemployment rate for people with disabilities who are actively seeking work is 9.2 percent — more than twice as high as for those without a disability (4.2 percent). Employers’ lack of understanding and lasting stigmas are partly to blame for this discrepancy. -
Becoming Autistic: How Do Late Diagnosed Autistic People
Becoming Autistic: How do Late Diagnosed Autistic People Assigned Female at Birth Understand, Discuss and Create their Gender Identity through the Discourses of Autism? Emily Violet Maddox Submitted in accordance with the requirements for the degree of Master of Philosophy The University of Leeds School of Sociology and Social Policy September 2019 1 Table of Contents ACKNOWLEDGEMENTS ................................................................................................................................... 5 ABSTRACT ....................................................................................................................................................... 6 ABBREVIATIONS ............................................................................................................................................. 7 CHAPTER ONE ................................................................................................................................................. 8 INTRODUCTION .............................................................................................................................................. 8 1.1 RESEARCH OBJECTIVES ........................................................................................................................................ 8 1.2 TERMINOLOGY ................................................................................................................................................ 14 1.3 OUTLINE OF CHAPTERS .................................................................................................................................... -
Neurodiversity: Accepting Autistic Difference
Accepted version. Published in Learning Disability Practice, May 2013 | Volume 16 | Number 4, p. 32-37. Neurodiversity: accepting autistic difference Thomas Owren1 and Trude Stenhammer2 Abstract ‘Insider’ descriptions of living with autism in a world where most people are not autistic may at the same time inform and challenge a professional approach to what can be termed as ‘autistic behaviour’. This article draws on the perspectives of the ‘neurodiversity’ movement, people who themselves have diagnoses on the autistic spectrum but reject that autism is a disorder, choosing instead to fight for their right to be autistic. The authors include a case study to explore how such descriptions and perspectives can be applied to services supporting an autistic service user. They conclude that, regardless of whether autism is seen as a difference or a disorder, care staff providing services to autistic service users may need to examine their assumptions carefully if they are to avoid discriminatory practices. Introduction Autism, including Asperger syndrome, is generally perceived as a disorder. But over the past two decades, helped by the emergence of the internet (Sinclair 2010), autistic self-advocates have been cultivating the idea of autism as a neurological difference. Referring to this movement called the ‘autism rights’ or ‘neurodiversity’ movement, French researcher Brigitte Chamak writes: ‘If the disability movement is considered as the latest generation of social movements, the action of autistic persons can be viewed as the latest generation of the disability movements’ (Chamak 2008). British autism researcher Simon Baron-Cohen (2012) also commented in a recent talk that looking at the neurobiology of autism there is not much evidence for dysfunction, but a lot of evidence that people on the autistic spectrum are simply different. -
The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing. -
Gyvūnai Autistiškų Žmonių Gyvenime – Nuo Draugų Iki Terapeutų Kaip Kalbėti Su Vaikais Apie Autizmą?
Spalis lietaus vaikai 2020 / NR. 9 Lietuvos autizmo asociacijos žurnalas GYVŪNAI AUTISTIŠKŲ ŽMONIŲ GYVENIME – NUO DRAUGŲ IKI TERAPEUTŲ KAIP KALBĖTI SU VAIKAIS APIE AUTIZMĄ? IŠŠŪKIŲ KELIANTĮ ELGESĮ LEMIA SAUGUMO TRŪKUMAS lietaus vaikai 2020 / Nr. 9 1 TURINYS Neuroįvairovės revoliucija 3–5 Žurnalas Diana Romanskaitė „Lietaus vaikai“ ISSN 2669-1825 Janne Fredikssonas: „Autistiškiems 6–7 Vyriausioji redaktorė asmenims itin svarbu ginti savo teises“ Barbora Suisse Kristina Košel-Patil [email protected] +370 698 00803 Iššūkius keliančio elgesio autistiški Projekto vadovė 8–9 vaikai ir jaunuoliai lieka be pagalbos Kristina Košel-Patil Julija Dargienė [email protected] +370 609 41420 Mokyklai einant įtraukties keliu, Redaktorė Sigita Bertulienė 10–11 svarbiausia bendruomenės požiūris Kristina Košel-Patil Dizainerė Inesa Gervė Kaip kalbėti su vaikais apie autizmą? Spaustuvė 12–13 Julija Dargienė UAB „Grafija“ Gyvūnai autistiškų žmonių gyvenime 14–16 – nuo draugų iki terapeutų Julija Dargienė Tiražas 1000 vnt. Leidinys platinamas nemokamai. Verbalinio elgesio etapų vertinimo ir 17 Elektroninė žurnalo versija skelbiama ugdymo plano rengimo programa – www.lietausvaikai.lt jau ir lietuvių kalba Eglė Steponėnienė Žurnalą leidžia Lietuvos autizmo asociacija „Lietaus vaikai“ Būti kaip visi: autistiškų asmenų 18–19 taikomos „kamufliažo“ strategijos Laura Valionienė Iššūkių keliantį elgesį lemia saugumo Žurnalą finansuoja 20–22 trūkumas Laura Valionienė Potrauminio streso sutrikimas ir Visos teisės saugomos. 23–25 autizmas Kopijuoti ir platinti galima tik gavus raštišką Laura Valionienė redakcijos atstovo sutikimą. „Lietaus vaikų“ šeimų stovykla Viršelio nuotraukos autorė – Laura Čekanauskienė 26 pajūryje – visiems vaikams! Modelis – Rapolas (7 metai). Sandra Lopetaitė Neuroįvairovės revoliucija psichikos žmonės“, kuris, mano nuomone, išreiškia svarbiausią neuroįvairovės šalininkų idėją – nenormatyvių jausmų, mąstymo, emocinių ir dvasinių būsenų pripažinimą ir pagarbą jų turėtojams. -
A Brief Instigation to Autism: Review Article
International Journal of Research and Scientific Innovation (IJRSI) | Volume IV, Issue VIIS, July 2017 | ISSN 2321–2705 A Brief Instigation to Autism: Review Article Ashima Sindhu Mohanty1, Dr. Krishna Chandra Patra2, Akshya Kumar Sahoo3 1Research scholar, SUIIT, Sambalpur University, Odisha, India 2HOD, Dept. of Electronics, SUIIT, Sambalpur University, Odisha, India 3Assistant professor in Dept. of EEE, GIET, Gunupur, Odisha, India Abstract: - The composite brain comprises of billions of components with distinguishable shape, size and wiring patterns. It supervises all the essential functions of the body by receiving the information through five senses: sight, hear, smell, taste and touch and the messages are assembled in a way that has meaning for us. Humans are affected from a number of neurodevelopmental disorders which results in poor ability to function in daily life. Autism Spectrum Disorders (ASD) are a composite set of mental disorders due to deterioration in the growth and development of brain defined by impaired social interaction, verbal and non-verbal communication and repeated unusual behaviours. ASD incorporates Autism, Asperger syndrome and pervasive developmental disorder-not otherwise . specified (PDD-NOS). This review article assembles information on different interventions adopted against autism. Figure 2. Keywords: Autism, Asperger syndrome, PDD-NOS, ABA, DSP, Source: https://pmgbiology.com/2015/02/18/nerve-cells-and-synapses-a- EIBI, Medication. understanding-for-igcse-biology/ There is a gap which is particularly known as synapse I. INTRODUCTION between the axon and the dendrite of the neighbouring neuron and the message sent by the signal must cross this synapse in utism is a mental disorder due to deteroriation in the [3] A growth and development of brain characterised by order for the message to be carried on to the next neuron. -
Overcoming the Odds: Disability Studies,Fat Studies, and Rhetorics
© 2014, Laura Thacker. Overcoming the Odds: Disability Studies, Fat Studies, and Rhetorics of Bodily Control Laura Thacker, Kansas State University s the field of disability studies expands, a question that is cropping Aup in theoretical discussions more and more often is whether or not Fatness falls into the category of disability. Theorist April Herndon gives a compelling argument for the inclusion of Fat within disability studies, making an especially interesting connection between the idea of “elective disability” in the Deaf community (associated with a refusal to undergo procedures for cochlear implants or similar surgeries) and the idea that Fat people actively “choose” to be Fat by foregoing medical treatment. Herndon states, “[B]oth Fat and Deaf people are often considered morally blameworthy when they choose not to adopt recommended treatment. Similarly, both fatness and deafness are routinely recognized as medical conditions but seldom as the counter-hegemonic identities of Fat and Deaf, especially within the contexts of law and medicine” (128). The connection Herndon is making is that, rather than recognizing Fat and Deaf as identities that 81 Reflections | Volume 14.1, Fall 2014 many people embrace, both are seen as defects that could and should be fixed. Thus, Herndon is making a clear connection between Fat studies and disability studies—that of medicalization, perceived choice, and normalization. Feminist theory also actively discusses issues of normalizing bodies. While many theorists make the connection between feminism and disability studies, Rosemarie Garland-Thomson was one of the first to do so in her article “Integrating Disability, Transforming Feminist Theory.” However, although Garland-Thomson makes a very clear argument for how feminist theory can help transform the ways we look at embodiments of disability, she never explicitly mentions how considering Fat embodiments might add to this discussion. -
1 with Permission to Put It Online Till It Goes Onto
1 With permission to put it online till it goes onto their webpage Preprint: To appear online (in different formatting of the table) in Disability Studies Quarterly, January 2014 Vol 34(1) Analyzing the discourse surrounding Autism in the New York Times using an ableism lens Alshaba Billawala Bachelor and Gregor Wolbring2* 1 BHSc student, University of Calgary; E-Mail: [email protected] 2Faculty of Medicine, Dept. Community Health Sciences, stream of Community Rehabilitation and Disability Studies, University of Calgary, 3330 Hospital Drive NW, Calgary, Alberta, Canada T2N 4N1; E-Mail: [email protected] * Author to whom correspondence should be addressed; [email protected]; Abstract: The topic of Autism is highly visible within academic literature (over 20000 articles in the database PubMed of US National Library of Medicine, National Institutes of Health and the public domain (79 Million hits in Google). Newspapers also show a great interest in autism. However despite the prevalence of autism coverage very little media analysis has been performed. We present here an analysis of the coverage of autism in the New York Times from the time the term autism first appeared (1973) to 2012. Ability expectations 2 and preferences are one dynamic through which members of a group judge others, themselves and their lives. Ability preferences and judgments are at the root of many rules of behaviours and customs. Ableism was one lens through which we analyzed the discourse surrounding autism in the NYT. We found that readers that rely on the NYT as a primary source of information get very limited information about what autism is and what factors are associated with autism and they are heavily exposed to a medical narrative. -
Disabling Composition: Toward a 21St-Century, Synaesthetic Theory of Writing
Disabling Composition: Toward a 21st-Century, Synaesthetic Theory of Writing Dissertation Presented in Partial Fulfillment of the Requirements for the Degree Doctor of Philosophy in the Graduate School of The Ohio State University By Melanie Yergeau Graduate Program in English The Ohio State University 2011 Dissertation Committee: Brenda Brueggemann, Advisor Cynthia Selfe, Advisor H. Lewis Ulman Copyright by Melanie Yergeau 2011 Abstract My dissertation examines the ways in which composition pedagogies have, both in theory and in practice, systematically worked to exclude individuals with disabilities. Persisting in composition studies is the ideological belief that traditional writing and intelligence are somehow inherently linked, that traditional literacy is central to defining one’s intellectual worth. This privileging of composing as print-based, I contend, masks the notion that writing is simply one among many systems of making and conveying meaning, that among our readers are those who cannot always access the messages delivered within print-based texts. I argue that disability studies can enable us to reconceive the rhetorical triangle and what it means to compose. Disability studies allows us to perceive the ways in which traditional writing—and composition studies’ investment in traditional writing— normalizes and has been normalized by our understanding of “the” rhetorical triangle. But disability studies also allows us to regard the ways in which multimodal composing normalizes and has been normalized by our understanding of “the” rhetorical triangle. In order to create the inclusive, radically welcoming pedagogy that so many teacher- scholars strive for, I suggest that we disable composition studies—what we think we know about composers, composing, and composition(s).