VOICES Volume 10 reast Number 4 Winter 09/10 ancer of the ribbon oalition of The 8th Annual ARTrageous ochester Affair On Saturday, October In this Issue... 17th, a record 408 people turned out for the 8th Annual ARTrageous Affair . . Cover Breast Cancer Gala…the Mission Statement . . . 2 Artrageous Affair! They Executive Director . . . 2 were there to catch up with Lives Touched . . . . . 3 friends, bid on unique pieces of Complementary Therapy .4 artwork, dance, dine and most importantly, support the Breast Exercise & Lymphedema . 5 Cancer Coalition of Rochester. Clinical Trials . . . . . 7 We were thrilled to raise nearly Programs Update . . . .8 $85,000 this year! Many local ABC Summer Blast . . . 9 women and their families will benefit from the Valued Volunteers . . . 10 generosity of our Healthy You . . . . .12-13 sponsors, donors Book Review . . . . . 14 and attendees. ARTrageous Affair . . 16-19 We would like to Our Programs . . . .20-21 extend an extra special thank Friends Remembered . . 23 you to our Gold Fundraising Friends . 24-25 Ribbon Sponsors: Our Donors . . . . 26-28 Excellus BlueCross More ARTrageous . . . 29 BlueShield, Upcoming Events . . . 30 Martino Flynn and Parkleigh. Support BCCR . . . . 31 As people ABC Seminar . Back Cover arrived at the United Way . . Back Cover Rochester Plaza Hotel they were Melinda Goldberg with Advocate’s Spirit Award recipient Susanne-Callan continued on page 16

SAVE THE DATE: Join us for Advocacy Day in Albany March 9, 2010 ur Executive Director Volume 10 Number 4 Winter 09/10 O

VOICES of the Ribbon The Newsletter of the Breast Cancer Coalition of Rochester Holly Anderson Our Mission is to provide support to those touched by a diagnosis of breast can- cer, to make access to information and care “If you’re not confused, you’re not paying attention.” a priority through education and advocacy, and to empower women and men to par- ~ Tom Peters ticipate fully in decisions relating to breast cancer. It would have been hard for anyone to miss the recent breast cancer news, especially those of us who are breast cancer survivors or provide Board of Directors: services to the breast cancer community. Though there has been much to Chair Anne-Marie Strasenburgh share pertaining to breast cancer in these past weeks, the major breast cancer Past Chair Joyce Wichie news story has been the publication of the updated breast cancer screening Vice Chair Melisande Bianchi guidelines by the United States Preventative Services Task Force. 1, 2, 3 Vice Chair Debra Kusse Treasurer Debra Kusse The new guidelines released on November 16, 2009 are as follows: Secretary Mary Carafos • The USPSTF recommends • The USPSTF recommends against Advocacy Marianne Sargent Major Funds Patricia Cataldi biennial screening teaching breast self-examination (BSE). Chair Emeriti Phyllis Connelly and mammography for women Grade: D recommendation. Sylvia Cappellino aged 50 to 74 years. • The USPSTF concludes that the President, Holly Anderson Grade: B recommendation.* current evidence is insufficient Ex Officio • The decision to start to assess the additional benefits regular, biennial screening and harms of clinical breast Staff: mammography before the examination (CBE) beyond Executive Director, Holly Anderson age of 50 years should be an screening mammography in Office Manager, Janet Wolf individual one and take patient women 40 years or older. Program Coordinator, Tracey Knapton context into account, including Grade: I Statement. Outreach Coordinator, Niki MacIntyre the patient’s values regarding • The USPSTF concludes that the Communications, Susan Meynadasy specific benefits and harms. ** current evidence is insufficient Special Events, Kim Kircher Grade: C recommendation. to assess the additional benefits Special Events-Development, Amy Connell • The USPSTF concludes and harms of either digital Newsletter Editor: Susan Meynadasy that the current evidence mammography or magnetic PALS Coordinator: Pat Battaglia is insufficient to assess the resonance imaging (MRI) instead Technical Support: Alex Cheek additional benefits and harms of film mammography as screening of screening mammography modalities for breast cancer. BCCR extends a hearty thank you to our in women 75 years or older. Grade: I Statement. regular office volunteer Shawna Poisson! Grade: I Statement. Also, welcome to our newest staff member, Pat Battaglia. * Please note that each recommendation is followed by a corresponding grade. For Breast Cancer Coalition of Rochester a list of what these grades indicate, please see page 22. Most media reports have 840 University Avenue excluded these grades, a decision which may have added to the public’s confusion. Rochester, NY 14607 ** This is not the originally released statement. Largely due to public response Office: 585-473-8177 concerning the recommendation for the 40-49 age group, on December 4, 2009 the Fax: 585-473-7689 Task Force unanimously voted to update the language of their recommendation. Online at www.bccr.org continued on page 11

2 Lives To u ch e d , Lives Celebrated by Sharon VanMeenen Sharon VanMeenen, Ann Ellis, and Kathi Johnson sharing a happy moment after On a misty fall evening, a crowd gathered at BCCR the walk for the 9th annual Lives Touched, Lives Celebrated event. Held each year to show support for all those whose lives have been forever changed by a breast cancer diagnosis, Lives Touched, Lives Celebrated comes appropriately during Candles illuminating Breast Cancer Awareness month. raindrops (below) Smiles, hugs, and family introductions were exchanged as candles were lit and cards were filled out to honor someone whose life has been touched by breast cancer. Then Marti Casper of Fickle 93.3 and her daughter Chloe stepped out into the night, leading the others on a candle lit walk down University Avenue through the Neighborhood of the Arts. The group moved slowly and spoke softly as the reflection of the flickering candles shone on the wet autumn leaves underfoot. At the conclusion of this mindful and wonderful walk, all settled into the warmth From Lives Touched... of the BCCR in celebration of The Brown Bag Girls office for the remainder of hey are the program. “T The clear beautiful music of described how a weekly phone call to a sister-in-law the best singer/guitarist Lisa Winter filled battling cancer had brought them so much closer…a women the room. Then Holly Anderson, closeness that remains today. Rabbi Gutterman recalled a to journey Executive Director, warmly childhood incident where she asked (like those of us when on this welcomed everyone present. For diagnosed) “Who signed me up for this?” She reflected road with. the rest of the evening, interspersed on healing and closed with a prayer alternating between Awesome! with Lisa’s music, there were Hebrew and English. The program concluded with Lisa ” reflections from clergy members Winter’s haunting interpretation of “Over the Rainbow.” Reverend Mary Rammerman Tracey Knapton, Program Coordinator, thanked and Rabbi Rebecca Gutterman, as well as the reading musician Lisa Winter for her lovely music, the speakers of cards filled out at the beginning of the event. These and the readers who participated in the program, and writings reflected the thoughts of those who have had a everyone who attended the moving event. Tracey then cancer diagnosis or who have been touched by another’s invited all to linger and enjoy the spirit of the evening, as diagnosis. well as hot cider, donuts, and cookies! As attendees left Marti Casper read an inspiring poem about what BCCR and stepped back into the chilly October night, cancer cannot do to the spirit and the soul. Reverend they left “wrapped” in the warmth of the evening’s Rammerman spoke of hope and celebration as she memories, and the heartwarming presence of true caring recounted her own family experience with cancer. She and support from one another. h

3 ews on N Complementary and Alternative Medicine - What Does it Mean? by Pat Foucht and Bev Levy

Will drinking gallons of green tea and soy shakes, eating broccoli and cauliflower every day and cooking with olive oil and certain spices on a regular basis reduce my chance of getting breast cancer or a recurrence? Will working out on a regular basis and practicing meditation lower my cancer risk? Are there certain deodorants, lotions and make-up I should or should not be using?

These and many other questions prompted our attending the Complementary and Alternative Medicine: What Does the Evidence Show? workshop at the 2009 Advocacy Training Conference in Washington, DC. This was one of many certain complementary therapies as Integrative Medicine. informative workshops we were privileged to attend as As an example, the renowned M.D. Anderson Cancer BCCR Advocacy Committee members. Center has an integrative medicine program which does As we all know, traditional or conventional treatment just that. Their clinic offers professional guidance to for breast cancer include surgery, chemotherapy, assist patients with various complementary treatments. radiation, and certain medications. These treatments This could include selecting nutritional supplements, have been studied and evaluated for years --- and to date, vitamins and herbs and the interactions they may have provide the best chance for survival. Traditional Western with each other and/or conventional medications. medicine primarily addresses the “physical” aspect of the The center also assists with diet, movement therapy, disease. meditation, music and art therapy and acupuncture. The Complementary and Alternative medicine (CAM) following web site might be helpful for those wishing and Complementary and Integrative medicine (CIM) to explore complementary and integrative therapies are proven or unproven therapies that have been used and how they might be incorporated with conventional to promote wellness and help manage symptoms cancer care: www.mdanderson.org/cimer. related to cancer and/or it’s treatment. We should Alternative medicine is built upon a system of theory define complementary as a therapy used in addition to and practice. Two examples which have developed in conventional medicine. Whereas, alternative medicine western cultures include: homeopathic and naturopathic replaces traditional medicine or treatment. medicine. While some alternative approaches have The philosophy of complementary therapy is healing shown to be useful in managing the symptoms of cancer, the “whole person” ---- mind and spirit as well as physical the jury is still out on many CAM treatments due to aspects. This may help reduce stress, certain side effects lack of scientific data. Continuing research is looking of treatment and enhance well being. Many hospitals into the effect of massage on cancer related pain, the use refer to the use of conventional medicine together with of acupuncture for symptom control, the effectiveness of

4 ginger on reducing chemotherapy induced nausea, and Volunteers in Living Color the effect of spiritual healing on survival time. These are BCCR but a few therapies being investigated. volunteer It is very important to discuss any use of Helene Eh- complementary therapies with your doctor. Also keep mann (back) explaining in mind they may or may not be covered by health volunteer insurance providers. Vitamins or herbal supplements opportunities may interfere with the effectiveness of chemotherapy. to someone who stopped It is not suggested that the use of any of these therapies at the BCCR will cure breast cancer or slow it’s progress. However, booth. when used properly, they may be quite valuable. h

From Lives Touched... This event, held at the Village Gate, on Saturday, in appreciation of Susanne Callan-Harris October 3rd. encouraged people to volunteer in their “A ll of her help and support with issues community. BCCR was invited along with many other concerning lymphedema. non-profit organizations to participate and educate those ” attending about the role their organization plays and the volunteer opportunities in that organization.

Exercise Eases Lymphedema Symptoms By Jean Lazeroff

Women who have had breast normally drains from body tissues cancer surgery usually are told to through the lymph nodes and lymph avoid strength training (also called channels. If some lymph nodes and resistance training or weight lifting) channels are removed or damaged to avoid worsening any lymphedema during surgery, lymph fluid doesn't that might develop after surgery. drain properly and collects in the When I was diagnosed with tissue near the surgery site. mild lymphedema in March 2009 Results of a study published in my initial reaction was “Oh no, I’m the August 13, 2009 issue of the such an active person! I won’t be able New England Journal of Medicine to lift weights at the gym or paddle disputes this advice. The researchers my kayak anymore. I’ll have to take found that strength training doesn't up knitting.” However, my physical worsen lymphedema after breast therapist advised against learning to cancer surgery and actually can help knit and encouraged me to continue reduce the symptoms associated with my strength training regime and lymphedema as well as the risk of paddling activities while taking lymphedema flare-ups. appropriate precautions to protect In the study at the Abramson the affected arm. Cancer Center of the University of Between 5% and 25% of women Pennsylvania, Kathryn Schmitz, develop some lymphedema after PhD, MPH, an exercise physiologist, breast cancer surgery. Lymphedema helped to determine the extent to is a build-up of lymph fluid which which a slowly progressive program causes swelling. Lymph fluid continued on page 6

5 lymphodema continued

of strength-training exercises is safe for breast cancer survivors with and How Exercise Helps With Arm Exercise Advice without symptoms of lymphedema. [1] Lymphedema In this study, 141 women who Exercise is a valuable developed lymphedema after breast Researchers think that arm component of lymphedema cancer surgery were split into two muscle contractions may help treatment because the movements groups. About half the women kept move lymph fluid back to veins of muscle and joint pumps increase doing whatever exercise they were in your armpit and neck, so it the rate of lymph flow up to 15 doing before the study started. The can rejoin your blood circulation. times above the resting rate. [2] other women started doing whole- When the lymph fluid goes back Exercise is an important part of body (including arms) resistance into circulation, arm lymphedema the Complete Congestive Therapy exercises using weights 2 times per may improve. Trying some gentle (CDT) program that manages the week. When the study started, the exercises to help the proteins in swelling of lymphedema. This is women's lymphedema was stable (not your lymph fluid be reabsorbed because exercise helps drain the lymph getting better or worse). The women may help arm lymphedema out of the affected area and eventually were monitored for 1 year. symptoms to diminish. The women who started whole- into the bloodstream. body resistance exercises using Resistance-training requires Exercise is also part of a healthy weights: that muscles exert a force against lifestyle. It increases your energy level • had better upper body some form of resistance. and increases the feeling of well being. strength It is believed that this type Be sure to discuss your exercise • were no more likely to have of exercise is beneficial for those plans with your doctor or physical the lymphedema get worse with lymphedema because therapist before you start. Gentle • were more likely to have the contraction of the muscles weight lifting can help to burn lymphedema improve causes a pumping action that more calories to maintain a healthy • were less likely to have helps to move lymphatic fluid weight, increase your energy, give occasional lymphedema flare- away from the affected area and you a feeling of control, plus improve ups compared to women who back toward the chest. These muscle tone and bone density. didn't do resistance exercises. exercises also encourage deep The University of Compression stockings were abdominal breathing to ensure an Pennsylvania research confirmed used in the study during exercise adequate supply of oxygen to the and women still need to be cautious my therapist’s advice and has about injuring their affected arm tissues. This exercises the chest given me the confidence to According to Schmitz anything you and abdomen in a manner that continue to pursue my active can do to avoid things that are going stimulates lymphatic drainage. lifestyle with the knowledge that to strain and stress the arm is a good I am contributing to my overall idea. The results do not imply weight health and well being. training prevents lymphedema. h

[1] "Cancer Patients Can Primary Source: Benefit from Exercise" New England Journal of Medicine Source reference: Schmitz KH, et al "Weight lifting in women with breast-cancer-related a study conducted by lymphedema" N Engl J Med 2009; 361: 664-73. Kathryn Schmitz, PhD, MPH and announced Additional Sources: in the St. Louis Post New England Journal of Medicine Source reference: Denmark-Wahnefried W "A Weighty Matter -- Lifting after Breast Cancer" N Dispatch July 2009. Engl J Med 2009; 361: 710-11. The Effect Of Gentle Arm Exercise And Deep Breathing On Secondary Arm Lymphedema. A.L. Moseley, N.B. Piller, C.J. Carati. [2]The Human Body Lymphology, 38 (2005) 136-145. Explained by P. Exercise and Arm Lymphedema. Karin Johansson, RPT, LT, Lymphedema Unit, Lund University Hospital, Dr. Med. Sci, Dep. of Whitfield. Henry Holt Health Science, Lund University, Sweden. Physiotherapy Theory Practice, 2009 Apr; 25(3):165-73. and Company, 1995, Lymphnotes.com page 128. Breastcancer.org

6 Clinical Trials: What are they? How can I participate? Clinical trials are an important step in developing Patient participation is vital in clinical trials. Doctors new methods of treatment for many diseases, including are a source of information about many trials for which breast cancer. They are used to determine how well their patients may be eligible. The complex issues a new medication, diagnostic test, or other treatment surrounding the question of whether to enter into a study works in people. A new type of therapy makes it to this are the basis of a dialogue that must occur between a stage only after extensive preclinical trials are done, patient and physician before an informed decision can using techniques such as cell cultures or animal studies. be made. It is a very personal choice. However, not every A small percentage of the therapies studied in this doctor participates in a wide array of these trials. It is manner move into the clinical trial stage, and only after empowering for those considering their treatment options their safety and potential benefit have been established. to have access to information on studies that are taking Current mainstream therapies for breast cancer, such place throughout the country. With informed consent in as tamoxifen, aromatase inhibitors, herceptin, and many place, and the participation of their medical providers, others were first studied in clinical trials. New therapies are patients can enroll in studies that are being conducted continually being developed, and research is always under way. both locally and outside of their area. h

There are a number of sources for information on clinical trials.

The National ResearchMatch. The National The American EmergingMed For those Institutes org (http:// Cancer Institute Cancer Society is another site wishing to learn of Health researchmatch. has a popular Clinical Trials that offers a more about what maintains a org/) is a not- search engine Matching matching service clinical trials are, legally mandated for-profit, secure for those seeking Service is a free, for clinical trials: and the types website where website that offers information on confidential http://www. of questions clinical trials patients who clinical trials: program that emergingmed. one typically must be are interested http://www. helps patients and com encounters listed: http:// in participating cancer.gov/ their caregivers when faced with clinicaltrials. in research the clinicaltrials/ find the studies the decision of gov. This is not opportunity to search. From that that are most participating user-friendly be matched with page, there is appropriate to in one, for patients, studies that may access to online an individual’s Breastcancer.org but the website be the right fit for chat-style help. situation. Find discusses this offers a helpful them. Designed Patients can out more at in a thorough, tutorial. Look for patient use, also reach NCI the link:http:// direct manner at for the link, the website offers by phone at www.cancer. http://www. “Background individuals the 1-800-4CANCER. org/docroot/ breastcancer. Information” on chance to self- ETO/content/ org/treatment/ the homepage register on the ETO_6_1X_ clinical_trials/ http:// site. They will be Clinical_Trials_ what_are.jsp clinicaltrials.gov/ then contacted Matching_ ct2/info, and with information Service.asp “Understanding regarding any Clinical Trials” studies that may Decision-making under the extreme stress of a breast cancer diagnosis can be at http:// be appropriate for confusing and difficult. The question of participating in a clinical trial is an issue clinicaltrials. them. The final that many face. Access to information that is accurate, up-to-date, and complete gov/ct2/info/ decision is up to is essential in making an informed choice, empowering patients to move forward understand. the patient. with confidence. The resources listed above are a good place to start. And if you need a friendly voice to talk to, call BCCR weekdays from 9AM until 4:30PM at 473-8177. 7 rogram Coordinator’s Update P Another quarter is upon us, and yet another opportunity to let our readers know what is happening in the programming world at BCCR! I have enjoyed getting to know the routine and details of the various programs offered at the Coalition over the past 6 months. My mind is drawn to the open support groups that we offer for those living with a diagnosis of breast cancer.

Tracey Knapton The traditional breast cancer personal journeys to continue their support groups offered at BCCR attendance. This is a night that is To learn more about our present wonderful tools for those set aside for their own observance, looking for support, comfort, or healing and support. support programs and the simply a listening ear. The two In addition to the more information available at evening support groups offered traditional support groups, BCCR BCCR, please call Tracey at are held every third Tuesday and offers a wonderful group that meets 585-473-8177. the first and third Thursday of once a month, on the third Thursday each month. Both groups begin at of the month at noon. This group 5:30pm and end at 7:00pm, which is our Young Survivor Networking Are you on our offers a convenience to those coming Group. These meetings began a mailing list? from work. Although the Tuesday few years ago, and have seen much and Thursday support groups are growth in a short time! Generally Is your e-mail address led by different facilitators, any speaking, a young survivor is anyone and/or phone number newcomer to either of the groups who is between the ages of 20 and a part of our listing? will find a caring, supportive and 50 and identifies with those who Please send us your infor- inclusive leader allowing each have been dealt a breast cancer blow mation for our mailing list so survivor to share their story. In while in the midst of a career climb, that we can offer e-mail news my past 6 months as Program or while raising children. There is as well as print news. Coordinator here at BCCR, I an understanding and commonality Send your information have also found an understanding that exists within those who share a (full address or just your and intimacy among those who diagnosis of breast cancer. Whether other details) to attend the evening support it is someone’s first time to the group groups. Although attendance Tracey Knapton at or their sixth, one will find support, is not mandated, I have found patience, and understanding when [email protected] that many of those who have a it’s needed most. Thanks! consistent presence in the groups find it most helpful to their own continued on page 15

A HUGE Thank you to Cabot Creamery for generously donating individual cheese packs to our evening seminar series!

BCCR was contacted by Cabot in July and asked if there was any way they could contribute to our programs. At our evening seminars held on the 4th Wednesday of the month, we like to supply small snacks to those in attendance, so we gratefully accepted a case of cheese that was sent to us each month and specifically used for our evening seminars! We further learned that, "Cabot Cheese is a cooperative owned by more than 1300 dairy farmer families from New England and New York State. More than half of the dairy farmer-owners are from New York." Thank you, Cabot, for keeping your donations local too!

8 BCCR Office Transformed into Tropical Paradise

On a sizzling hot Saturday in August, BCCR hosted their first ever Summer Blast for those living with metastatic breast cancer - right here at 840 University Avenue. Every woman who entered through our doors from the University Artwalk district was transported into a Hawaiian tropical paradise - complete with colorful leis, fresh flowers and tropical drinks! In addition to colorful leis, each woman received a warm greeting from BCCR volunteer, Betty Miller! The mood was then set with summer tunes and fresh foods. And what better way to complete your summer ensemble than with freshly painted toes! Scott Miller Salon in Pittsford sent two of their finest nail techs to provide a fresh polish change to all who attended! Rockcastle Florist provided us with a gorgeous bouquet used as a tropical centerpiece and then raffled off to the person with the closest guess to the number of seashells in the glass vase (it’s harder than it looks!)! Ann Ellis, Laura Robertaccio, Marilyn Andraszek, BCCR Program Coordi- Many thanks also to Made You Look Salon for donating nator, Tracey Knapton, and Wendy a gorgeous gift basket filled with spa lotions, creams, and White-Ryan having a blast! beauty products. Each of the women “The mood was set with summer tunes who attended left with a flowered and fresh foods.” gift bag filled with donated products (polishes, lipsticks, hand lotions) from Scott Miller Eve Strella, above and Lori Salon and a gift certificate from Made You Look Salon! Thank you to the DeCarlo at left businesses who donated their time and products for this event! It may seem enjoying the like a small way to give, but it means so much to those who attended. Thank day. you! Although this was our first Summer Blast for our metastatic group, look for it again in Summer 2010! h

BCCR Welcomes Pat Battaglia to our From Lives Touched... in celebration of The Amazing women of BCCR office staff. Pat will be working on BCCR’s PALS project, connecting “Each one of you inspires in so many those newly diagnosed ways. When I came here, I thought with breast cancer with nothing was more devestating than a PAL mentor in our community. Pat’s kind my story. I shared it and worried you spirit is a wonderful calm would be brought down. Instead, you for those going through raised up and in the process raised ME this time of crisis. up. I love you all. Welcome Pat! ”

9 alued Volunteers Volunteer “Volunteers do not SPOTLIGHT V necessarily have the time; they just have the heart” ~ Elizabeth Andrew

Niki MacIntyre

The weather outside my office window is all glorious sunshine and warmth this unseasonable November afternoon. Before I start looking forward to the reality of winter snows, I am enjoying looking back at the past few busy months of working with our volunteers at the many BCCR outreach events. August ended with the Cancer Community Collaborative hosting a Survivor’s Day at Seneca Park Zoo. Volunteer extraordinaire Karen Destino joined me at the registration table and then attended the zoo function with her mother. There were also Third Party fundraisers that needed some BCCR support. The Motorcycle Dice Race in August was attended by Betty Welcome to our newest Miller, Mary Gross and Betty Digby; and a Pink Passion Scrapbooking office volunteer, Shawna event in November asked specifically for our Betty Miller. Popular Betty Poisson. Shawna is a member of also helped at the Highland Hospital Breast Care Clinic’s Free Mamogram our Young Survivor community Day. who brings smiles and a October is naturally a busy month for us. It started off with Linda generous spirit with her every Gaylord and Betty Digby at the Wilmot Breast Health Day, then continued Wednesday morning. With with Phyllis Connelly and Helen Conrad Ehmann working at the Volunteers her family of three young girls in Living Color function. The all day Alesi Health Fair at the Dome was to keep her busy, we marvel supported by Nancy Germond, Marianne Sargent, Shawna Poisson and Jean at her ability to fit us into her Lazaroff. We rounded out the month with Jaime Scripps and Karen Destino schedule. helping at the Pink Ribbon of Knowledge health fair and fashion show at I first met Shawna when she Eastview Mall. volunteered at the Lilac Festival In November we attended another large Women’s Health Expo at the last year. I remember calling the Dome. This health fair was supported by Nancy Weinmann, Karen Destino, office after she worked her shift Sharon Van Meenan and Linda Gaylord; while Benita Aparo helped at the to talk about the new “young IMS Holiday Show. and sweet” volunteer I had just Phew! Thank you to everyone for lending their support, their friendship worked with (this is true – it’s and their humor as we work side by side. Soon these intrepid volunteers even in my notes!). When the will be marching through the snow with our health board and our rolling word went out about our need suitcase ready to keep reaching out to as many women as possible. Please for new office support, Shawna, join us. h thankfully, immediately To volunteer call Niki at 585-473-8177 or email her at [email protected] responded. She has slipped seamlessly into our little office world and we look forward to The Breast Cancer Coalition working beside her in 2010. h wishes you and your family all our best in the coming year.

10 Executive Director’s Column continued

The newly released guidelines have created a lot of are recommendations for those who are in the low risk confusion, stunned bewildered breast cancer survivors, group. In light of the evidence, additional harms from created a wide divide between medical disciplines, screening too early or too often must be considered. These satisfied the long-held assertions of several national include increased false positives, leading to increased breast cancer organizations (though imaging and angering still others), given talk “I know that you believe you radiation show hosts, celebrities, journalists, understand what you think I said, exposure, and certain politicians fodder for but I’m not sure you realize that biopsies and the the next decade. The announcement resulting scarring definitely held our attention as we what you heard is not what I meant.” that can affect watched and listened to the reaction of ~ Robert McCloskey the accuracy a flabbergasted community who had of future been continually reassured that early detection is the best mammograms, and anxiety. Overdiagnosis and protection. After all, that mantra is true, isn’t it? These overtreatment are of concern to nearly all medical past weeks have left many wondering. disciplines. If we take into account that seven out of eight Adding to the confusion was the publication of a new women do NOT ever get breast cancer, the new evidence- analysis of screening risks and benefits in the October based guidelines may begin to make sense. Though this is 21, 2009 issue of The Journal of the American Medical very difficult to accept, especially for large organizations Association (JAMA). 4 The paper, authored by Laura J. who have built their platforms on screening and early Esserman, M.D., Yiwey Shieh, AB; Ian Thompson, MD, detection, the evidence is compelling. reviewed over twenty years of data from screening for Under the newly released guidelines, women breast and prostate cancer. The paper challenged long-held between the ages of 40-49 would no longer be regularly beliefs that all cancer is lethal. In the case of breast cancer, screened for breast cancer. This was the guideline that the data suggests, screening mammography is likely seemed to create the most outrage, particularly because finding small tumors that would be deadly if not treated, those under age 50 have the highest mortality rate. And as well as indolent cancer tumors that would either stop why is this so? One factor is that younger women tend to growing or even resolve and disappear. Overscreening have denser breast tissue. Dense tissue is more difficult may explain why the rate of breast and prostate cancers to accurately image with mammography so more breast continue to rise while the numbers of deaths to these cancers are missed. Younger women also tend to have cancers stay relatively the same. Following the release of more lethal breast cancers such as BRCA I and BRCA the JAMA publication, the chief medical officer for the II, Her-2/Neu Positive, Estrogen Receptor Negative, American Cancer Society, Dr. Otis Brawley, conceded Progesterone Receptor Negative, or Triple Negative that the benefits of early detection are often overstated. breast cancers. Because of this, many believe we are Though the ACS stands by the old breast cancer screening taking a step backwards with these new guidelines. But guidelines, the goal, he said, is to update public health is a not so great tool for this age group better than no messages to better reflect the benefits, risks and limits tool? Many of us are not so sure. Younger women will of various forms of cancer screening. The ACS stance not be ignored under the new regulations. Those with demonstrates the conflict. This sort of messaging further concerns about their risk for breast cancer, or those who adds to public confusion as we attempt to determine find lumps or other changes, or who have any concerns the meaning of the words vs. the scientific evidence as it at all about their breasts, would continue to see their emerges. primary care provider and determine together how With one in eight women receiving a diagnosis of best to proceed. It is important to keep in mind is that breast cancer in her lifetime, the recent news has been a the new recommendations pertain to those who are at tough pill for breast cancer survivors to swallow. After our low risk for breast cancer. Due to increased awareness, own experiences, there is increased worry about friends breast cancer has become a well-funded disease. In light and family members whose cancer might be missed if the of this, is the outrage about this particular guideline new guidelines are followed. We must consider that these misdirected? Might the uproar be better directed to new guidelines are based on the best evidence to date. It is also imperative to keep in mind that the new guidelines continued on page 22

11 Healthy YOU CANCER, THE FLU & YOU What Cancer Patients and Survivors Should Know About the Flu From Centers for Disease Control (CDC)

Living with cancer increases your risk for complications from the flu. If you have cancer now or have had cancer in the past, you are at higher risk for complications from both seasonal and 2009 H1N1 flu (also called influenza or "swine flu"), including hospitalization and death. To help prepare you for the flu this season, CDC answers some of your most important questions about special considerations for cancer patients and survivors for seasonal flu and 2009 H1N1 flu.

What should adult cancer patients survivors are at higher risk for Your fever should be gone and survivors know about the complications from both seasonal without the use of a fever- 2009–2010 flu season? and 2009 H1N1 flu, including reducing medicine. Keep Flu activity is increasing in most hospitalization and death. away from others as much of the United States, with most as possible to keep from states reporting widespread flu What can cancer patients and making them sick. T activity. This flu season, CDC survivors do to protect themselves Follow public health advice expects both 2009 H1N1 flu and from 2009 H1N1 and seasonal flu? regarding school closures, seasonal flu to circulate and cause Like everyone, cancer patients avoiding crowds, and other illness. Some people, including and survivors should take these social distancing measures. T cancer patients and survivors, everyday steps to help reduce the Be prepared in case you are more likely to get flu spread of flu— get sick with a supply of complications that could result in T Cover your nose and mouth over-the-counter medicines, hospitalization and death. with a tissue when you cough alcohol-based hand sanitizer, or sneeze. Throw the tissue in and tissues. the trash after you use it. Other important steps to take: I have had cancer in the past, but T I do not have cancer now. Does T Wash your hands often Stay informed by visiting CDC's this information apply to me? with soap and water. If soap 2009 H1N1 Flu site often. T Develop a plan in advance Yes. If you have had cancer in the and water are not available, use an alcohol-based hand with your doctor about what past, you are at higher risk for to do if you get sick (when complications from flu, even if sanitizer. T you should call your doctor, you are free from cancer now. Avoid touching your eyes, nose, or mouth. Germs whether you will need spread this way. antiviral medication, and Are cancer patients and survivors how to get a prescription for more likely to get the flu than others? T Try to stay at least six feet away from people who appear ill. antiviral medication quickly We do not know if cancer patients T If you are sick with flu-like if needed). T and survivors are at greater risk for illness, stay home for at least Make sure your vaccinations infection with either 2009 H1N1 24 hours after your fever is are up-to-date. T flu or seasonal flu. However, we gone except to get medical Keep a written record of do know that cancer patients and care or for other necessities. the type of cancer you have,

12 treatment you have received What should cancer patients and and when you received Should cancer patients and survivors do if they think they it, the name and contact survivors be vaccinated against may have the flu? information for your doctor, seasonal flu? If you have received cancer and a list of medicines you Yes. People with cancer or a treatment such as chemotherapy are taking. history of cancer should receive and/or radiation therapy within the seasonal flu shot, not the the last month, or have a blood Should cancer patients and nasal spray vaccine. People who or lymphatic form of cancer, call survivors be vaccinated against live with or care for cancer your doctor immediately if you the 2009 H1N1 virus? patients and survivors also get flu symptoms. Yes. People with cancer or a should be vaccinated against All cancer patients and survivors history of cancer should receive the seasonal flu. The 2009 H1N1 should follow the steps below. H1N1 flu shot, not the nasal spray flu vaccine is not expected to 1. Contact your health care vaccine. The seasonal flu vaccine protect against seasonal flu. For provider and follow his or her is not expected to protect against more information, visit Key Facts instructions. 2009 H1N1 flu. People who live About Seasonal Flu Vaccine. 2. Stay home and away from with or care for cancer patients others as much as possible to and survivors also should be What are the symptoms of 2009 keep from making them sick. vaccinated against 2009 H1N1 flu. H1N1 and seasonal flu? This means you should avoid CDC's Advisory Committee Symptoms of the flu include public activities, including work, on Immunization Practices fever, cough, sore throat, runny or school, travel, shopping, social recommends that certain stuffy nose, body aches, headache, events, and public gatherings. groups receive the 2009 H1N1 chills, and fatigue. Some people You should stay home for at least flu vaccine as soon as possible. may have vomiting and diarrhea. 24 hours after your fever is gone This group includes cancer People may be infected with the (without the use of fever-reducing patients and survivors. For more flu, including 2009 H1N1, and medicine), except to get medical information, visit 2009 H1N1 have respiratory symptoms without care or other necessities. Influenza Vaccine. a fever. For more information, visit Flu Symptoms and Severity. continued on page 15 ecipe R A Quick & Warm Way To Begin Your Day Affirmations are positive statements that describe a desired situation. Positive affirmations can help you develop a powerful and positive attitude toward life, which is an essential element to good health. Not Your Average Oatmeal 3/4 Cup Rolled or Steel Cut Oats A large dash of cinnamon Try repeating the following A pinch of sea salt affirmation (or one you choose 1 Cup water yourself) for a few minutes Stir ingredients together and microwave on high for 3 several times a day. minutes. Stir in 1 tablespoon peanut butter (preferably all natural), a handful of fruit (berries, sliced bananas, apples, pears, dates, “I choose health” etc), a handful of pumpkin and/or ground flax seeds, and a little milk if you like.

13 ook Review BRIGHT-SIDED B How the Relentless Pursuit of Optimism has Undermined America -by Barbara Ehrenreich; Reviewed by Pat Battaglia

the insurance issue. However, the opened her eyes to a pervading When she was diagnosed bulk of the responses about her force in American society that she with breast cancer in 2000, Barbara state of mind formed a “chorus of feels “encourages us to deny reality, Ehrenreich was plunged into a world rebukes.” Dismayed but undaunted, submit cheerfully to misfortune, and that so many have become part of; Ms. Ehrenreich sought out studies blame only ourselves for our fate.” an unwilling member of a club that that would firmly establish the The first chapter of the book no one wants to join. As the author connection between a positive deals with her breast cancer of a number of books that take an attitude and good experience, and the iconoclastic look at many of our health, especially remainder is a study cultural phenomena, she tackles cancer survival. of the origins and hard issues from a fresh perspective. She found ramifications of the Her experiences with breast cancer no conclusive culture of positive formed the basis for Bright-Sided, scientific proof to thinking throughout her latest offering. In this book, back the notion American society. she explores the culture of positive that positive Ever the skeptic thinking that is promoted by many thinking can cure, realist, Ms Ehrenreich prominent public figures, a basic or even prevent, displays a charming, tenet of which is that an attitude of cancer. albeit biting wit. optimism will not only guarantee She asserts She describes her happiness, it will cause desired that “…rather cancer cells as “…the results to materialize. than providing fanatics of Barbara- In dealing with her diagnosis emotional ness, the rebel cells and subsequent treatment, Ms. sustenance, the that have realized Ehrenreich became frustrated with sugar-coating of that the genome they what she terms “the pink ribbon cancer can exact carry, the genetic culture,” where “…the appropriate a dreadful cost.” It requires the essence of me in whatever deranged attitude is upbeat, and even eagerly repression of very understandable, form, has no further chance of acquisitive.” There is a dizzying very uncomfortable emotions. normal reproduction in the post- array of merchandise marketed in It takes a great deal of effort to menopausal body we share, so the name of breast cancer, some of maintain an upbeat exterior in why not just start multiplying like it for a good cause by raising funds the face of the uncertainty of a bunnies and hope for a chance to for research. But there is much of breast cancer diagnosis. Some even escape?” This book is eminently dubious value either as a means blame themselves for their disease, readable, and she challenges her of fundraising, or as useful things fearful that their attitude may readers to think while making them for those affected by breast cancer, have somehow contributed to their smile. and she found such items as teddy condition. “Clearly, the failure to Her interpretation of the term bears and boxes of crayons, to be think positively can weigh on a “survivor,” admittedly an imperfect “infantilizing.” When she expressed cancer patient like a second disease.” description at best, is to denote those her fears and frustrations about It is important to see natural who have completed treatment and her treatment and her insurance feelings as valid and acceptable, even currently have no signs of breast woes in an online forum, there unpleasant ones. Ms. Ehrenreich’s cancer. I feel the word, with all of were a few sympathetic replies on experience with breast cancer its shortcomings, applies to anyone

14 at any stage of diagnosis, or in any The Flu & You, continued phase of treatment. Sometimes 3. If you need to go to the doctor’s office, emergency room, or any survival means making it from day other health care facility, cover your mouth and nose with a facemask, to day, or even hour to hour. But if available and tolerable, or cover your mouth and nose with a tissue regardless of the verbiage used, when coughing or sneezing. Let the facility’s staff know you are there the breast cancer experience takes because you think you may have the flu. a toll that’s all too large, without For more information, visit 2009 H1N1 Flu (Swine Flu) and You. compounding it with guilt about not keeping a sunny disposition. Is there treatment for 2009 H1N1 and seasonal flu? Negative emotions have a place in human experience and need to Yes. CDC recommends oseltamivir or zanamivir antiviral drugs to treat be acknowledged. Sometimes the and prevent infection with both seasonal and 2009 H1N1 flu viruses. healthiest thing we can do is to face Antiviral drugs are prescription medicines (pills, liquid, or an inhaled our fears and darker thoughts. Ms. powder) that stop flu viruses from reproducing in your body. If you get Ehrenreich reminds her readers that sick, antiviral drugs can make your illness milder and make you feel “Vigilant realism does not foreclose better faster. They may also prevent serious flu complications. happiness. It makes it possible.” During the current flu season, the priority use for influenza antiviral This book tests some basic cultural drugs is to treat severe flu illness (for example, hospitalized patients) tenets about positive thinking and and people who are sick who have a condition that places them at high finds them lacking. Seeing things risk for serious flu-related complications, including cancer patients and clearly, unmitigated by preconceived survivors. notions of how things “should” be, is the best means we have to improve When should cancer survivors be prescribed antiviral drugs to our situation. It is the way to address prevent the flu? our true circumstances. In the wake of If you have received cancer treatment such as chemotherapy and/or a breast cancer diagnosis, this means radiation therapy within the last month, or have a blood or lymphatic heeding our doubts and worries, asking form of cancer, call your doctor immediately if you have been within the questions that need to be asked, six feet of someone known or suspected to have the flu. Your doctor and relying on our best judgement to may give you antiviral drugs to help prevent the flu. make the difficult decisions needed If you have cancer and have not received treatment within the last to move forward. Perhaps most month, or you have had cancer in the past but are cancer-free now, and importantly, it means not blaming you have had close contact with someone known or suspected to have ourselves for all of this. By dealing the flu, call your doctor and ask if you should receive antiviral drugs. with the situation at hand, we have the chance to overcome it, or at least, as Ms. Ehrenreich affirms, to “…have a For more information please visit the website: good time trying.” h http://www.cdc.gov/cancer/flu/

Program Coordinator’s Update continued

All of the support groups held at BCCR have wonderfully qualified facilitators bound by confidentiality, as are those in attendance. To ensure that BCCR is offering exactly the right tools of support to those in our groups, we have designed an evaluation to be sent to those who have been involved within the group. All evaluation results will remain confidential upon their return at which time they will be compiled and examined by a review team. We value participant and attendee input as it helps us shape our offerings. Evaluations are a wonderful tool that assists us in determining how we can better meet the needs of the BCCR community by developing new key programs, while strengthening others. In closing, should you have questions about any of our support groups (those listed on the previous page as well as our non- traditional support groups), please do not hesitate to contact me. I would be more than happy to give you upcoming dates of the next support groups. I will also offer to meet with you one-on-one prior to the group date if that would be more comfortable. Feel free to contact me at BCCR at 473-8177 ext 303. Many happy wishes for a beautiful and healthy New Year! h

15 Extending Our Sincerest Gratitude To Our Generous Sponsors. Cover story continued welcomed by the Lives Touched, Lives Celebrated portrait exhibit. As they moved into the ballroom PREMIER Sponsor they were greeted by our gorgeous white pumpkin centerpieces, courtesy of Kittelberger Florist and Ellsworth Farms, and tables and tables full of donated artwork, gift certificates, jewelry, decorative items and much, much more. With wine in hand provided by GOLD RIBBON Sponsor Constellation Brands, the crowd bid, outbid and bid again during the silent auction with many attendees using the Buy It Now option so as not to lose out on a coveted item. Each year people scramble to buy a pink GOLD RIBBON Sponsor balloon before they are sold out! Thank you to Glen Moscow Jewelers for providing a stunning pendant necklace as the Pink Balloon Grand Prize. Again this year, we took bids for our “Warrior Wall”, which is currently being designed. The evening’s Mistress of Ceremonies, Rebecca Leclair, kept the audience engaged while auctioneer Carol Ritter Wright got those bid paddles flying high in the air during the live auction. Attendees did battle on items such as a Ramon Santiago piece, a signed poster by Wendell Castle, pottery by Nancy Jurs, tickets to the Rachel Ray Show and a saltwater aquarium donated by The Reef Shoppe. For the first time the Artrageous Affair audience was treated to a live performance by the Rochester City Ballet. The dancers performed two beautiful pieces in honor of this year’s Advocate’s Spirit Award recipient, Susanne Callan-Harris. We finished the evening with Gap Mangione and his band. If you can believe it, we’re already starting to plan the next Affair… mark your calendar for Saturday, October 2, 2010! h Charlotte McCabe, Mel Bianchi, County Execu- tive Maggie Brooks and Holly Anderson Our Honorary Chair, Kitty Vanbortel

16 Extending Our Sincerest Gratitude To Our Generous Sponsors.

Silver Ribbon Sponsors Auctioneer, Carol Ritter-Wright Elizabeth Wende Breast Care, LLC Interlakes Oncology Hematology Normal Communications Pluta Cancer Center Bronze Ribbon Sponsors Borg & Ide Imaging Clark Moving & Storage Creativity Constellation Brands, Inc. Mike Deming, “The Antique Guy” EFP Group Cynthia Fay Photographer Flower City Glass Gallo & Iacovangelo Generation Capital Management, LLC Genesee Surgical Associates, P.C. GSL Group/Merrill Lynch Harter, Secrest & Emery LLP Kittelberger Florist & Gifts Maplewood Nursing Home Mercury Print Productions, Inc. R.I.T. Dr. Robert Rosenblum Western Regional Offtrack Betting Our friends from Parkleigh Pink Ribbon Sponsors Buhite & Buhite, D.D.S., P.C. Constellation Energy Rooted in Encore Chocolates, Inc. Assemblyman Joseph Errigo Five Star Bank HOPE Genesee Region Home Care (Lifetime) Konar Properties Dr. James & Karen LaMar, Elmwood Den- tal Group, P.C. Gap Mangione Radiation Oncology of Rochester The Reef Shoppe Stretch of the Imagination Suter, Levitt & Zugner Dr. Stephen Vega Worldwide Electric Corporation White Ribbon Sponsors Joyce Wichie and Steve Berke Green Ribbon Sponsors Eleanor Chin Ernest Quatro - Quatro Chiropractic Women Gynecology & Childbirth Associates, PC The beautiful centerpieces, courtesy of Kittelberger Florist and Ellsworth Farms

17 O ur Artists Chris Kogut Beth Abdallah Patricia J. Mosca Nina Rupp John Kosboth Frank Argento Diane Mullaney Andrea Sands James E. Kozlowski Lisa Arkus Joan S. Nichols Jacques Schickel Anne M. Kress Chip Arnold Natalie Palermo Dolores Seagren Karyl Kross Terri Baldwin - Hynes Joyce Schmidt Sharon Seeholzer Eileen Kuo Deborah Benedetto Cindi Jo Smith Betty Shamblen Joe Lake Conni Bills Lisa Niffin Smith T.E. Siegel April Laragy Stein Fran Bliek Anna Peters Scott Sober Robin Lehman Sue Blumendale Barbara Raco Adam Spector Kelly Letky Carol Ann Bosek Beverly Rafferty Eve Strella Francoise Long Paul A. Bouchard Pat Rechlin Paul Thatcher Teresa R. Lucas Virginia Braun Kathy Reilly Bing Thayer David Majchrzak Donna Breen Gregory Ricciardiello Debbie Thomas Gina Marie Loretta Brown Anne Townsend Mangiamele Gary Buehler Patricia Tribastone Stephanie Lynge Patricia Bushart Upstate NY Glass Manilla Jane Button Peg and Bix DeBaise Bead and Jewelry Chris Lyons Cathy Cardillo Guild Timothy Maek Marlene Caroselli Marie Evangelista Kathi Higgins Anne Vaclavik Patrice Maloney Wendell Castle Dick Flaherty Dorothea Hillis Anna Walter Jack Mars Cindy Corrigan Pamela Frame Mary Humphreys David K. Walter Suzanne Martin Elaina Cosner Marc Gaiger Nancy Jurs Elly Wane Constance Mauro Karen Craft Patti Gallivan William Kane Teresa Werth Rose McCaughey Bix DeBaise Barbara Gammiero Peter Kane Vi White Mendon Center 3rd Pamela Delyannis Kathryn Gaspar Gina Keyes Nick Williams Graders Rod Dietz Going Marsha King Judy Wood Nancy Miller Karen Disljenkovic John Grieco David King James P. Yockel Dee Miller DLS Jewelry Designs Joan Hambleton Jappie King Black Sharon P. Yockel Hodaka Hasebe Kim Kircher Arlene Miller Diane Dowling Nancy Richards Kate Chace-Young Peggi Heissenberger Paul Knoblauch Marri Mooney John Engel Allison Roberts Wende Logan Young Judy Henry Kathi Morrell Gayle Erwin Kathleen Rouvina Joyce Zinkin, Cederknits O ur Generous Donors Eva Zweifler 13WHAM-TV Jody Beutel County Surrogate age, Inc. Cornell's Jewelers Elizabeth Wende 2 Vine Restaurant Beyond Cuts Salon, Camille's Sidewalk Clix Portrait Studios Crystal Barn Breast Care, LLC A Different Point of Robin Whittaker Cafe Color Me Mine Custom Brewcrafters Ellsworth Farms View Nancy & Randy Canal Side Therapeu- Comprehensive Breast The Dancentre Empire State Week- A Healing Sactuary Bianchi tic Massage Care Center at the Joelle Davis lies, Inc. Absolute Yoga & Black & Blue Steak Canandaigua Motor- Wilmot Cancer Delmonico's Italian Encore Chocolates, Wellness and Crab sports Center Steakhouse Inc. AE Spa Lila Bluestone Sylvia & James Cap- Constellation Brands, Delta Sonic Assemblyman Joseph Andrew J. Kirch Bon Ton Stores, pellino Inc. Mike Deming, "The Errigo Charitable Trust Eastview Kym & Antique Guy" Europa Custom Honorable Carrie Borg & Ide Imaging John DePrez Travel Clothiers Andrews Boulder Coffee Com- Casciani Stamatia Destounis, Excellus BlueCross Steve Argento pany Angela M.D. BlueShield Arthur Murray Dance Buckingham Proper- Cataldi Linda DiCesear Cynthia Fay, Photog- Meri Atanas, Radiation ties Century Doodie Pack rapher Oncology of Roch- Buffalo Sabres Pittsford Downstairs Cabaret Finger Lakes Ra- ester Buhite & Buhite, Wines Theatre diation Oncology Jeff Baker, Summit D.D.S., P.C. Charlie's Dragonfly Garden Center Interiors Burns Personnel Frog Pond Design Fioravanti Florist Judy Barton, Spa Linda Callahan Cheesecake Eagle Vale, The Argyle Kenneth R. Fisher, Consultant Joe Callan Factory Grille Justice Supreme B French Salon Hon. Edmund Chester Cab Pizza Constellation Energy Edible Arrangements Court Bella Bleu Color Calvaruso, Monroe Clark Moving & Stor- Nancy Cooper, Ph.D. EFP Rotenberg LLP Five Star Bank

18 Flaherty's Three Flags Inn Gifts Phillip Murphy, M.D. Red Osier Landmark S.C. Fine Art, Inc. The Brookwood Inn Flaherty's Webster Konar Properties Nan Miller Gallery Beef & Seafood Rhonda St. Amant The Creator's Hands Flower City Glass Mr. & Mrs. Thomas Never Say Never Restaurant Salon Europa The Goodie Shoppe Friends of Mayor Bob G. Kroll Stables Carol & Guy Kevin The Sample Seed Shop The Reverend Mother Duffy Debra Kusse New York Jets Reed The J.F. Jones Jewelers, Inc. KUVASZ Companies Normal Communica- The Reef Shoppe James Gagliano Rob LaFave tions Chairman William Patti Gallivan Dr. Jim & Karen NY Skyride Reilich Gallo & Iacovangelo, LaMar, Elmwood Dr. Avice O'Connell Retreat House Mas- LLP Dental Group, P.C. Terese O’Connor sage & Wellness Pete Garblik Larijames Salon & Jane V. Oertel Center Garth Fagan Dance Spa Oggi Domani Salon Rhondel's Thera- Janet Gawron Diane Lewis, Mary & Spa peutic Massage Generation Capital Kay Beauty Con- Elizabeth Osta Senator Joseph E. Management sultant P.F. Chang's China Genesee Country Vil- LiDestri Foods, Inc. Bistro, Eastview lage & Museum Lifetime Care - Home Mall Genesee Parents Health Care & Albert Paley/Paley Magazine Hospice Studios Genesee Surgical As- MacKenzie-Childs Palmer Food Services Gap sociates, P.C. Made You Look Salon Pare Restaurant Mangione George Eastman Gap Mangione Robin Patterson, House Maplewood Nursing Tastefully Simple Nancy Germond Home Consultant Vanden Brul Foun- Get-it-Straight Ortho- Marketview Liquor Parkleigh dation, Inc. dontics Paula J. Martin Peaceful Garden Thelma's Masectomy Gilda's Club Martino Flynn, LLC Phoenix Graphics, Boutique Shira Goldberg & Maynard’s Electric Inc. Judy & Jim Redmond with Phyllis Connelly Francine & Anthony Mark Lazeroff McCoy's Picture Pier 45 Tramonto, Jr., O.K. Gro-Moore Farms Framing Pilates Plus Robach Sara Silvio Jewelry Barber Shop John Holtz BMW Erin McFadden, Lia Pink Stitches & Rochester Americans Design Trilliant Jewelers L’Avant Garbe Sophia Consultant Presents & Knighthawks Scott Miller Salon Tuthill’s Lamp Shop Lynne Halik, D.D.S. Memorial Art Gallery Plastic Surgery Group Rochester City Ballet Scott Nicholas Salon Union Hill Country Jewish Community Mercury Print Pro- of Rochester Rochester Institute of Seabreeze Amusement Grill Center ductions, Inc. Pluta Cancer Center Technology Park University of Roches- Joan Hambleton Midtown Athletic Pro Nails Rochester Museum & Posy Seifert, D.O. ter Center for Com- Harter, Secrest & Club Proietti's Italian Res- Science Center Sephora munity Health Emery, LLP Dee Miller & Kristin taurant Rochester Philharmonic Serious Skin, Jan Dave VanArsdale Heron Hill Winery Hunt Pure Fishing, Inc. Orchestra Toeper Kitty Van Bortel Highland Breast Glen Moscoe Jewelers Quatro Chiropractic Rochester Rhinos Sexual Health Dis- Vega Aesthetic & Imaging coveries Reconstructive Holiday Valley Resort Shade Tree Greetings Surgery Cynthia Howe, Inc. Laura Veckerelli Pampered Chef Skylon Tower Vitoch Interiors, Ltd. Consultant Patricia Somerville, Western Regional Hunt Hollow Ski M.D. Off Track Betting Club, Inc. City Councilwoman Corporation Joseph & Noreen Elaine Spaull Joyce Wichie & Steve Incavo Jay Stetzer Berke Indoor Environmental Sticky Lips BBQ Linda J. Wilson, Air Specialists, Inc. Anne-Marie & Tom Nothnagle Realtors Interlakes Oncology Strasenburgh Wisteria Flowers & & Hematology, P.C. Stretch of the Gifts Jackson & Hines Imagination Women Gynecology Jacqueline Freitas Surmotech & Childbirth As- Photography Suter, Levitt & sociates, P.C. Joette's on Monroe Mother Muse, Sueann Victoria & Aurelia Rita Rose Zugner Dental Group Woodcliff Hotel & Spa Jreige Realty, LLC Wells Ranno Dr. Robert Rosen- Sutter’s Canandaigua Worldwide Electric Assemblymember Mr. Dominic's at the Bert & Bea Rapowitz blum Syracuse Opera Corporation Susan John Lake Red Fedele's Brook Roswell Park Cancer Tantalo Photography Bev Zimber Kittelberger Florist & Mud About You House Restaurant Institute The Brighton Restaurant

19 Our Programs at the Breast Cancer Coalition of Rochester For more Breast Cancer Support Group I Breast Cancer Support Group II information or to register for our

programs, This discussion-based support group, This discussion-based support group, please call the led by Claire Gladwell, RN, meets led by Peg DeBaise, MFT, meets regularly here at the BCCR. Join regularly here at BCCR and is perfect BCCR at with others coping with a diagnosis for those who are newly diagnosed of breast cancer, share your experi- with breast cancer, or for those within (585) 473-8177 ences and lend your support. We the first two years following the end meet every three weeks on Tuesday of treatment. Meets the 1st and 3rd evenings from 5:30 to 7 pm. Thursday of the month from 5:30- Brown Bag Fridays Though no registration is required, please 7:00 p.m. This is an open support call BCCR for the next meeting date. group- no RSVP required!

Gentle Yoga Living with Metastatic Breast Cancer Support Group www. wrca c.o rg /im ag e s /W

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j At the Breast Cancer Coalition! Any p given Friday at noon finds a group g of women conversing over anything from the latest research on Herceptin to our own locally-funded research The Living with Metastatic Breast initiatives… from hair loss to funky On Monday evenings, you can find Cancer Support Group is designed re-growth...from neoadjuvant thera- women stretched out on BCCR’s to lend support to those who are py to the latest clinical trials…from floor doing Gentle Yoga taught by coping with a diagnosis of advanced acid reflux to exercise...from recurring Susan Meynadasy, a registered yoga breast cancer. The group is led by dreams to friends and family’s be- trainer. Yoga sessions began in Spring Dr. Nancy Cooper, PhD who is havior…from prosthetics to bathing 2005 and have been in high demand a breast cancer survivor as well. suits…from American Idol to The ever since. Sessions run in six week The group meets the 1st and 3rd Amazing Race…and on and on! Feel cycles and the class is limited to 14 Wednesday mornings each month free to bring your lunch and BCCR breast cancer survivors. Advanced at the BCCR. Participation in this will provide delectable desserts! registration is required. group requires pre-registration. This is a non-traditional support group, which is exactly what many COMING SOON! of us have been looking for. Brown Bag is a drop-in program. There is Common Grounds Coffee Hour no need to call ahead.

20 BC 101 Peer Advocates Lending Support: P.A.L.S. SM Peer advocacy is at the core of the philosophy behind the Breast Cancer Coalition of Rochester. Women supporting women, partners supporting partners, families supporting families, all are central to this PA LS PROJECT organization that is unique to the western New

York region. Breast cancer survivors reach out to The Breast Cancer Coalition of Rochester those who are new to the disease and also to their significant others, helping them connect to resources in the community, provid- ing a foundation of caring and working hard to instill confidence and comfort in the face of a difficult time. Please call the BCCR to learn how you can become This program provides information involved as a mentor, or if you would like to be enrolled in the program after your and support to those who are coping own diagnosis and receive the support you need and a pack of goodies. with a breast cancer diagnosis. The goals of the program are to assist participants in managing the complex Voices & Vision: Young Survivor Networking A Writing Workshop for tasks and emotions of a breast cancer Group diagnosis and to empower women to People with Breast Cancer be their own self-advocates as they proceed through treatment, recovery and survivorship. Our professional facilitators are eager to provide a safe, comfortable atmosphere where information can be absorbed and The Young Survivors Networking assimilated, while formulating Group is hopping! The YSNG is co- This exciting program gives people a strategy for coping with each facilitated by Miriam Iker, a clini- individual’s breast cancer experience. with breast cancer an opportunity cal psychologist who specializes in to explore and express their feelings children, families and adult women, through writing. The warm and COMING SOON! and Amy Weetman, a young survivor supportive group is led by a pro- specializing in peer support. Together fessional instructor. Not only has Friends & Family they address issues including the im- writing proven to be very therapeu- Support Group pact of breast cancer on families, chil- tic for breast cancer survivors, but dren, and careers. The Young Sur- this program is getting rave reviews! vivors Networking Group meets on Workshops run in six week cycles the third Thursday at noon of every on Tuesday evenings and advanced month. This is a drop-in group and registration is required. This work- there is no need to call ahead. shop is limited to 12 participants.

Book Club

This group is designed to offer What if a traditional support group isn’t for you, support and guidance to those who but you still like the idea of participating in a have a friend, partner, or family supportive community following a breast cancer member with a diagnosis of breast diagnosis? Join our Book Club! The BCCR Book cancer. When the care-giver (male Club will meet the 4th Thursday of the month, or female – any age) needs support from 6:00-8:00 p.m. – we’re here for you! If you are Participation is limited and sign-up is required. To interested in this program, please call reserve your seat and learn the next book selection, Tracey at BCCR at 473-8177. call Tracy at BCCR.

21 Executive Director’s Column continued understanding why nothing better eventually evolve into something as easily subject to reversal as new has come along? We are still using life threatening, and how to best scientific evidence emerges and an unreliable tool to screen for diagnose and manage the less we gain more knowledge. Pink breast cancer in this age group. aggressive ones. As experts report, ribbons, awareness, screening and Considering that the liklihood of most breast lumps are found by early detection are not enough developing breast cancer increases women themselves, either by doing anymore. We need better. We deserve as we age, why then are we still breast self exam or accidentally, better. The Breast Cancer Coalition screening millions of women while in the shower or just poking of Rochester will be hosting a annually who a) are not as likely to around. It makes sense to become Community Forum on this subject have breast cancer while b) using an familiar with the nuances of our on April 28, 2010. As the dust all too fallible means to find breast bodies. As breast cancer advocates, settles, we hope to help survivors, cancer in those who do? we need to help others understand their caregivers, and the community Where do we go from here? For that public health messages are not at large make sense of all this. Please starters, we need a highly specific always presented clearly. We need plan to join us for what will surely and highly sensitive screening tool to examine the messages and the be an informative evening. h for all women. We also need to scientific evidence behind them understand which breast cancers will carefully. These messages are just The Breast Cancer Coalition of Rochester strives to provide accurate citation for material provided in our newsletter. In One who asks a question is a fool for five minutes; the case where a subscription is required, as one who does not ask a question remains a fool forever. is often the case with scientific journals, an ~ Chinese Proverb alternative source is also provided. 1. The website for the USPS Task Force recommendations, including rationale for the recommendations, can Following is the list of grades associated with each of the updated be found at http://www.ahrq.gov/clinic/ breast cancer screening guidelines provided by the US Preventive uspstf/uspsbrca.htm Task Force: 2. At least one of the US Preventive Task Force members has a Rochester A Recommendation: The USPSTF recommends the service. connection. Task Force member There is high certainty that the net benefit is substantial. Bernadette Melnyk, Ph.D., R.N., C.P.N.P./ N.P.P. served as faculty at the University B Recommendation: The USPSTF recommends the service. of Rochester (School of Nursing), where There is high certainty that the net benefit is moderate or there is she earned her Post Masters Certification moderate certainty that the net benefit is moderate to substantial. and PhD. Currently, she is the Dean and Distinguished Foundation Professor C Recommendation: The USPSTF recommends against in Nursing at the College of Nursing & routinely providing the service. There may be considerations that Healthcare Innovation at Arizona State support providing the service in an individual patient. There is at University in Phoenix, Arizona. Dr. least moderate certainty that the net benefit is small. Melnyk is an internationally recognized expert in evidence-based practice. D Recommendation: The USPSTF recommends against the 3. The website that lists the service. There is moderate or high certainty that the service has no members of the USPS Task Force can net benefit or that the harms outweigh the benefits. be found at http://www.ahrq.gov/clinic/ USpstfab.htm I Statement: The USPSTF concludes that the current evidence 4. Rethinking Screening for Breast is insufficient to assess the balance of benefits and harms of the Cancer and Prostate Cancer. Laura service. Evidence is lacking, of poor quality, or conflicting, and Esserman, MD, MBA; Yiwey Shieh, the balance of benefits and harms cannot be determined. AB; Ian Thompson, MD; JAMA. 2009;302(15):1685-1692 http://www.nytimes.com/2009/10/21/ health/21cancer.html?_r=3&hp

22 Dr.Robert Rosenblum by Phyllis Connoly

Dr. Robert Rosenblum – Why did I feel such a sharp someone I first met late October pang in the pit of my stomach upon 1999. Married to Harriet Susskind reading this? It was such a genuine Friends Remembered... Rosenblum, he was most always at sadness. I sat back quietly for a bit BCCR events with her and we would and let thoughts float around in my share friendly casual conversations. head about Robert, Harriet, and Kelly Bivens Robert became someone I looked others who have come into my life forward to seeing because talking because of BCCR. with him was very pleasant - Slowly, an image came to mind Joanna Connor somehow calming. He was a gentle of a tapestry being woven - thread and kind man with a contagious crossing thread, person meeting smile. person, day after day, year following Lee Dimuro We continued to see him after year – tightly meshed and meant to Harriet passed away, right up to this endure. Richard Gladwell past summer when his health began Robert is one of these threads. to fail. On October 28th, ten years We will truly miss Robert, as we from when we first met, I learned he do Harriet. But forgotten? Never. Dr. Robert Rosenblum was gone. They are an integral part of the BCCR tapestry and our lives. h Dorr Wichie

Laurie Pask Memorial Reception

The Breast Cancer Coalition is pleased to announce the creation of the Laurie Pask Heart & Hands Award. This award, in memory of Laurie Pask, will be presented annually Tributes Welcomed at the Artrageous Affair Gala in October. We have Would you like to write about commissioned a local artist to someone you have lost to breast design this award which will be cancer? We welcome submissions given to the care provider who from friends and family members best exemplifies the balance and are particularly interested in of kindness, compassion, hearing stories about how they have respect and science that Laurie touched and changed your lives. demonstrated while providing Please send your submission care to her own patients. It is with a digital photograph to Susan our intent that this award will Meynadasy, BCCR Voices of the enable Laurie’s spirit of passion, Ribbon Newsletter Editor, hope and joy to live on. h at [email protected]. Laurie’s portrait at BCCR We look forward to hearing from you!

23 A Truly Sweet, Sweet Our Fundraising Friends Sixteen Celebration Allstate Foundation Gives BCCR $500 Donation

Ann Breen presenting BCCR’s Executive Director, Holly Anderson with Allstate’s donation

Pamper Me Pink Benefits BCCR

On October 4th, Girls Spa Parties hosted Pamper Me Pink to benefit the Breast Cancer Coalition of Rochester. The afternoon of On Friday, July 31st four pampering, beauty, entertainment, boutique thoughtful young women, Bailey shopping and sparkling refreshments topped off Garno, Molly Emmert, Shannon with a live fashion show was meant to inspire and Firkins and Rachel Crocetti threw empower women. These great Girls raised $1,000 themselves a joint sweet sixteen for BCCR! Thanks for a pink day! birthday celebration. Each person who was invited was asked not to bring a gift but to make a small donation to BCCR, as each of the Xerox’s Annual Chili-n-Dogs Benefit a Delicious Success! birthday girls had been affected by cancer in some way. They thought Left to right Mary Jo Deichmiller, Gayla this was a great way to make a Sims, Noralee Campisi, difference in something that has Laurie Snyder, Debbie Page, greatly impacted their families. Joanne Thornton, Sam Victorious, Donna Crandall, These special young ladies raised Don Miller, Bernice Jackson, over $850 for BCCR! Tracy DeMarse Pittsford Federal Credit Union Denim Friday - $279

Curves of Mendon $343 Xerox’s Good Neighbor Committee hosted their Annual Chili-n-Dogs Breast Cancer Benefit on November 18th. Tons of crock pots were lined up as were hungry employees. The “dogs”, chili and home made desserts flew out of the cafeteria. Left in their wake was just over $1,600 for the Breast Women for Winesense Cancer Coalition of Rochester. Thank you, Xerox for being so generous… Festive Fizz and hungry! $572

24 Larijames Salon & Spa Raises $500.00 fro BCCR! Larry Alati, owner of the Larijames Salon and Spa, and his staff wanted a way to honor the life of Lynn Kouwe, who in the words of a co-worker, reached the “finale of her 10 year dance with the disease this past January”. They sold raffle tickets throughout October for a chance to win a wonderful gift basket with many hair care and styling items, one of which was a limited edition Pink Paul Mitchell Flat Iron, won by Rachel Cumella! Our sincere thanks to Larry and the staff at the salon for this wonderful fundraiser!

Holiday Shopping at Windsor Cottage Cutting For a Cause It was chilly outside Thank you once again to Artistic Designs Hair but inside Windsor Cottage Salon, located on Park Avenue. On October 25th, at it was warm and festive. their Annual Cut-A-Thon for Breast Cancer the salon On Thursday, December was slammed for six hours and they raised $1,500 3rd BCCR, along with for BCCR! Kudos to Jodi Beutel and her staff for Windsor Cottage, hosted their dedication and precise scissor skills…we greatly “Wrapped in Pink”, a appreciate your efforts! holiday shopping event. Refreshments were Passionate About Pink served, gifts were bought and $750 was raised for “Sharing our Passion to Find a Cure” is the slogan of Pink Passion BCCR. Thank you to Peg Colleen Bracci and Emily Wright’s . These Growney and her fantastic survivors organized a full day of scrapping, card making, staff for such a wonderful raffles, meals, shopping and spa treatments. Held on night! Sunday, November 8th at Lake Shore Country Club this creative day raised over $800! Thank you to all the attendees for your Passion!

Siemens Industry Building Shopping For Hope Big Oak’s Annual Golf Technology Division Tournament Denim Day - $65 On November 8th, the On September 26th Big Oak dancentré of East Rochester hosted Golf Shop held it’s Annual Golf the 7th Annual Shop for Hope. Classic to benefit BCCR. We were so Vendors offered their wares and pleased to receive a check for $2,700 Wende Young & Andrea people shopped. They shopped so – wow! Thank you, Big Oak! So Taylor, Mt. Hope much that BCCR received a check many women and their families will Enterprises for over $1,000! An extra special benefit from your BIGheartedness! $1000 by selling jewelry to thank you to Barb Grosser, owner of patients at Elizabeth Wende the dancentré, for her dedication to Breast Clinic the Coalition. We truly appreciate her support.

25 onations ending September 30, 2009 Contributor’s Circle $1-$49 Carol Giffi D The name of the individual honored or remembered is shown in bold type. Cathleen Corbet The Breast Cancer Coalition thanks donors for these gifts made since our last listing. Sandra Dibiase (Donations made after September 30th will be included in the spring newsletter.) Creative Outlook We apologize for any errors and/or omissions on our donor pages. Mary Graham Karen Lenhardt Maureen Patti Nancy Schadd Todd Stevens Dorthy Batzold In Honor of: Jean Van Allen Jean Van Allen Kenneth and Kristin Warren Sylvia Cappellino Mary Duffy Ann Mazzarella Mary Fox Friend’s Circle $50-$99 Stephen Ashe Deborah Ann Dennis Amanda and Jeff Carpenter’s Kathleen Costello Kendra and Roger Tuttle Wedding EZ Bottle and Can Return Koen Goorman Karen Faul Diane Mazzarella Eileen Meyers Heidi Austin Ann Mazarella David Ogrodowski Monika and Lester Katzel Jay and Hanna Zukoski Carrie and Jason Meath’s Wedding Sarunas Garsys Pink Ribbon Circle $100-$499 Betty and Bob Miller Betty Miller 2 Lovely LLC Antoinette Brown Blackwell Society Mary-Ellen Kane Goldee Hecht-Meyer Maynard Electric Supply, Inc. Karen Morris Marietta Reiss Dorothy Pecoraro Janine Pajek Maryann Platania Helen Kidea Sam’s Club Foundation Patrick and Patricia Malgieri Judy Rohrer Second Bloom Ann Mazarella Jeanne Shanley Lisa Kubby Volvo Rents – American Rentals Aimee and Joseph Shaver’s Wedding Monika and Lester Katzel Advocate’s Circle $500-$999 Elaine Leonard In Honor of the 16th Birthdays Laura and Daniel Scheg of Bailey Garno, Molly Emmert, Nancy Corman Shannon Firkins, and Rachel Edna Morrill Visionary Circle $1,000.00-$4999 The American Legion Dept. of NY Crocetti: Cycle Stop, Inc. Kathy Burritt Beatrice Vangrol Linda Cederstrom Founders Circle $5,000.00 + Terri Schmitt Michelle Fee Triple Creek Golf Club Event: Patrick and Patricia Malgieri Kathleen Firkins Marlene Bassett John and Mary Jane Schmitt Kathryn Firkens Jodi Lynn Davies Mary Freer Joyce Davies The women in her family Patricia Freer Jenny Derrenbacher Lura McHale Carla Interlichia Sandra Downs Rita Kretchmer Florence Gilligan Beatrice Tracy LoCory Properties Inc. Linda’s Hair and Nails Barbara Sass Marianne Luisi Mann Funeral Home, Inc. Kristine Magin James Martin Edward Pryber Donna Metherell Modern Home Betty and Bob Miller Janet Schepler David Morris Donna Murphy Patricia Redden Nunda Station Lodge No. 682 In Memory of: Alice Gillberg Daniel O’Connor Irondequoit School Crossing Guards Nick Agnello Ronald Powers TOPS NY 288 Rochester Ann Mazzarella Nancy Regatuso

26 St. John and Baldwin Shirley Buckingham Delicia Gilchrist Betty Sanderson Susan Bunce Christopher Gillette Jon Shay Rachel Burke David Gitelman Cynthia Cannon Andrea Giugno BCCR Fundraising Event Shannon Carey David Goff Donations: Kenneth Cassara Kimberly Greene Ted Caster Whitney Griffin Pink Ribbon Run Sponsors Darlene Cator Sonia Hahn Nikole Dechau Jessica Cave Megan Hammersmith Michele Webb Halin Cebula Marlene Hampson Catherine Ciardi Laurel Harrington Brown Bag Sponsorships Jennifer Ciardi Patricia Harris Dr. Josette Bianchi-Hayes Teresa Cleffey John Hawkes Sandy Sabatka Nafisah Clay Kathy Hawkins Scott Cochrane Lena Hayes In Kind Gifts Deborah Cordingley Larry Heath Cabot Creamery Wendy Cortese Rachel Hendee Linda Gaylord Ben Cowley Angela Hilton Made You Look Salon & Spa Mary Jo Cowley Susan Hollister Milestone Glass Creations Lisa Craig John & Seana Holtz Foundation Inc Scott Miller Salon Brian Crandall Barbara Huckabee Kathy Reilly Diane Crombach Betsy Indivino Rockcastle Florists Joan Cruz John Interlicchia George Wolf Lynn Daley Lisa Jeffers Anne DaSilva-Tella Evelyn Johnson United Way Donations Adelina Davin Kelly Jones Donor Choice #2334 Sandra Deal Robert Joseph Anonymous Laura Delduca Tracy. Joy Marianne Abraham Patricia Dell’Anno Liese. Kalmus Mr. & Mrs. Michael J. Abraham Sheila DeSimone Monera Kermis Luann Achter Debra DeVantier Edison Kier Lisa Adams Kerri Diehl Evan Kiner Mfalda Agostinelli Jody Dietz Mary Kinsella Lisa Arbore Laura DiPonzio Heise Joan Kircher Daniel Azzolina Linda Distefano Doris Kirk Joan Batzold Patricia Dix David Kittle Timothy Bauch Marie Doell Matthew Knaub Tammy Becker Julia Dumuhosky Sandra Koch Arlene Belicove Margaret Dunn Regina Kozak Jeanette Bellanca Christine Eldridge Marlene Kretser Carmen Bello Kelly Ellis Mary Beth Laboski Megan Benjamin Duane Engle Lisa Landry Delsa Benz Linda Enter Kerri Lehmbeck Stacey Bershod Dennis Fabrizi Michael Lesch Dorothy Bianchi Tara Fenlon Patricia Lewis Jane Biggs Wilma Findlay Jeri Liles Ginger Bileck Jennifer Forbes Jennifer Linton Christine Bittlingmaier Hannah Freida William Little Sr. Jerrold Blackmore Bonnie Freville Susan LoCicero Laura Boyle Stephen Galante Kelly LoVullo Simon Braitman Ann Galbo Kathleen Luther Debora Braman Cinthia Garcia Stephen MacIntyre Tameka Breedlove Cynthia Gary Kisha Magee Dawn Breen Lisa Gawlik Timothy Mahoney Brianna Lee Brockway Janet Gawron Ronald Malley Jennifer Brokaw Cheryl Geer Laurie Malsegna Michael Brown Paul Geer Doreen Mangee Samantha Gentlicore

27 Thomas Marletta Vicma Ramos Harry Snyder Pamela Marzolf Kristin Rappenecker Sara Steenberg Michael Mason Julian Rayburn Annette Stenglein Lisa Matthews Maria Reale Michelle Stewart George McAvinney Carol Reed Sandy Stojanov Turner Maureen McCallum Judy Reed Kevin Stone Lynne McCarthy Michele Rees Marilynn Sullivan Karen McGarrity Michele Reichlmayr Thomas Sullivan Judith McTigue Thomas Reichlmayr Maria Tantillo Amy Menz William Robinson Jill Taylor Alice Merkel Susan Rodio Renee Thibeault Heidi Miller Erick Rodriguez Debbie Thomas Karen Miller Erin Rodriguez-Doyle Lenora Thomas Jocine Montana Beth Rood Richard Thompson Robert Mulcahy George Rosati Ted Thompson Thomas Mullin Maxine Rosby Anne Tomasso Dorothy Mundt Robert E. Rosenblum DMD Jennifer Toppi Virginia Murn Stephanie Rosselli Lisa Tripoli Regina Muscarella Joseph Rossi Willie Tucker Santina Neary Cheryl Rumiano Michael Valentino Gwendolyn Nelson Marcelino Saime Sheryl Valentino Marcia Noble Suanne Santee Sheila VanGrol Kimberly Norman Damir Saracevic Heather Vitello Susan O’Brien Krisiti Sargent Rosemary Volker Kevin O’Gara Isabelle Scalise Gerald Wahl David Pagel Elizabeth Schiano Gladys Wallace Mary O’Grady-Pero Judith Schulman Linda Walsh Christine Palmeri Anna Schwartzman Michelle Walton Kathleen Parisi Dennis Scibetta Lori Weiner Tammy Parker Carl Scripps Michael Wheeler Nicole Passino Jamie Scripps Danielle Whitehouse Janice Paternico Brenda Seaman Laura Whiting Joanne Pecora Michelle Seger Diane Wilfong Leslie Perrotta Marla Hickok-Shannon Judith Wilson Harry Pierre-Philippe Terri Sharpe Jennifer Woodcock Maureen Piles Nicole Sipple Anthony Yonda Darlene Pittman Kelly Sirianno Robert Zeitvogel Antoinette Pollotta Sarah Slesan Karen Zuber-Roberts Carmela Prate Lisa Smith Pat Zubil Deborah Pullyblank Monica Smith Upcoming Fundraising Events WHAT WOMEN WANT WEEKEND & The 6th Annual Rochester Retailers’ Sale: De-Stress & Beat Cabin Fever with your BFFs, January 23 & 24th at the Radisson Hotel, adjacent to RIT!

28 S pecial thanks to ARTrageous volunteers

Jessica Barber Mary Ellen Ditrinco Lisa Jackson Larissa Seiler Colleen Bennett Lew Ditrinco Lynn Jones Heather Smoyer Allison Browar Betsy Ditrinco Todd Jones Susan Smiroldo Marla Canale Mike Dolan Tracey Knapton Michelle Smoyer- Shannon Carswell Colleen Donaldson Carly LeBlanc Mallo Tricia Chapman Phyllis Eddy Cervyn Lee Jody Sokal Cynthia Charles Kristen Fellows Erin McFadden Tatiana Stein Laura Collibee Matt Georger Tom McJury Becki Toy Amy Connell Alisha Gianakakis Sandy Overmier Andrea Vos Aaron Cook Claire Gieser Rosalia Pagliaro Linda Wild Laurie Cook Cathy Goebel Emily Piccione John Wild Michelle Cook Jeanette Guenther Barb Pifer Mandy Williams Sara Christensen Laura Gugliandro Alix Quinn Anna Wilson Kathy Costello Matt Harradine Elain Rallo Karen Wozniak Heather Croteau Patrick Harris Frank Rallo Mary Wodarski Mary Jo Deichmiller Becca Hendrix Patty Reed Jenna Deustch Christine Herrman Drew Sacheli Micki Despard Cindy Howe Roger Sacheli Betty Digby Deborah Howell Pattie Schotis Mistress of Ceremonies, Rebecca Leclaire

RTrageous Affair 2009 ACommittee Members

ARTrageous Affair Chair Karin Hauza Patricia Cataldi Kim Kircher Bonnie Koerner Holly Anderson Bev Levy Melisande Bianchi Niki MacIntyre Laura Collibee Amy Button Kathy Mangione Sylvia Cappellino Erin McFadden Amy Connell Tom McJury atrons Michelle Cook Susan Meynadasy P Linda DiCesare Dee Miller Tom & Holly Anderson Niki Duncan Joyce Schmidt Steve Berke & Joyce Wichie Pat Foucht Lila Bluestone Carol Schweinsberg Eleanor Chin Nancy Germond Anne-Marie Strasenburgh Maria & Tom Cook Melinda Goldberg Joyce Wichie Peter Kaplan Joanne Hammond Avice O’Connell, M.D. Janet Wolf Timothy O’Connor, M.D. Todd & Barbara Pluta Randall Chris & Beth Schiano Thomas & Mary Toole

29 Upcoming Events & Programs at BCCR

Wednesday, January 27, 2010 Evening Seminar: Oriental Medicine and Nature’s Meditation for Healing Presenter Deeanne Bevin 7:00 - 9:00pm Wednesday, February 21, 2010 Evening Seminar: The Breast Cancer Journey: 1882-Present How Far We’ve Come Presenter Dr. Kristin Skinner 7:00 - 9:00pm Wednesday, March 24, 2010 Evening Seminar: Long Term Effects of Chemotherapy Presenter Dr. Marcia Krebs 7:00 - 9:00pm Friday, April 9, 2010 7th Annual Cindy L. Dertinger Advanced Breast Cancer Seminar: Tools for the Journey Memorial Art Gallery Reservations Required

All events unless otherwise noted are at: THE BREAST CANCER COALITION OF ROCHESTER 840 University Avenue (Between Culver and Goodman) Questions? Contact the BCCR at (585) 473-8177

30 Take Action! Wear our pins proudly! ecome a Supporter of the Breast Cancer Coali- Btion of Rochester by making a gift today! Your donation will ensure that you will receive a subscription and invitation to all general meetings, educational forums, and special events. Additionally, you will help support our goal of creating an active voice in the Greater Rochester Region in the fight against breast cancer through advocacy, education, and support.

Name Address City State Zip Phone E-mail ur larger pin, above, is in color on wood and Omeasures 2 inches square. The smaller pin, I am a breast cancer survivor shown below, measures 1 1/2 inches square and is also in color on wood. $5000 Founder’s Circle Gifts of $100 + Both pins are designed and handmade by artist $1000 Visionary Circle receive a LisaBeth Weber and available only at the Breast $500 Advocate’s Circle complimentary Cancer Coalition! $100 Pink Ribbon Circle Comfort Heart. Stop by at 840 University Avenue in Rochester or $50 Friend’s Circle call us at 585-473-8177 for more information or to order one or more! The cost is $10.00 each. We do $25 Contributor’s Circle accept Paypal as well as most major credit cards. h $ Other I am not able to make a donation at this time but would like to be on your mailing list.

I would like to make an additional gift of $ In Honor of Memory of

Please send notification of my gift to: (name and address)

Payment Choice Check, Money Order Visa/Master Card/AmEx Amount Enclosed $ Remember the BCCR Library: Credit Card No. Browse, Expiration Signature Borrow, Name on Card

Breast Cancer Coalition of Rochester Read! 840 University Avenue Rochester, New York 14607 (585) 473-8177; www.bccr.org

31 Breast Cancer Coalition of Rochester 840 University Avenue Rochester, New York 14607

Voices of the Ribbon Published Quarterly by the Breast Cancer Coalition of Rochester Tel. 585-473-8177 • Fax 585-473-7689 • E-Mail: [email protected] • Online at bccr.org

You can help local women and families who are coping with a diagnosis of breast cancer through The 7th Annual Cindy L. Dertinger the donor options program of the United Way! Advanced Breast Cancer Seminar Designate your United Way gift to Breast Cancer Coalition of Rochester, it’s as easy as 1 2 3...

Friday, Obtain a 2010 United Way April 9, 2010 1Donor Designation Form from your employer or by visiting Seminar www.uwrochester.org and typing 1:00 - 5:00pm donor designation in the search line. Reception 5:00 - 6:00pm Please choose the option to give to 2an organization on your United Memorial Art Gallery 500 University Avenue Rochester, New York Way form. Admission is free, however seating is limited and reservations are required.

Write Breast Cancer Coalition RSVP (585) 473-8177 3of Rochester and enter our organization ID number: 2334