Adult Congenital Heart Association

Building the foundation of a healthy heart

Annual Report 2015 Message from Leadership

In 2015, we kicked off our Strategic Plan (2015-2017) and have some exciting Increasing awareness of ACHA and the needs of the CHD community is a and important accomplishments to report. These accomplishments could critical objective in our Strategic Plan. In order to accomplish this, we had not have been achieved without the passion and commitment of our to look at how we could unite our voice to speak to the CHD community Board of Directors, staff and thousands of volunteers who have supported in a more personal way. In 2015, we began our journey of re-branding to our efforts to increase awareness of congenital heart disease (CHD) and more effectively speak to the CHD community and, as part of this, will be expand the quality of care for our CHD community. unveiling a new website, materials and more in 2016.

Our members and community need to understand our goals and know In order to support all of these important programs and initiatives, that we measure our progress toward these goals. In 2015, we increased we need to raise additional funds. As part of that, we are delighted that the support of our programs that directly affect our members by expanding our Congenital Heart Walks had over 15,000 participants raising more the Heart to Heart Ambassador program. In training 17 new Ambassadors, than $1.9 million in 30 locations across the country. This record setting we were able to offer much needed information and support. Heart support is a testament to the passion and commitment we have in to Heart Where You Are: Regional Events happened in four cities and communities nationwide. served more than 300 patients and family members. Our Webinar series had more than 800 participants and 1,413 online views. There were 186,343 As you read our achievements in 2015 in more detail, please know that website sessions and 57,759 blog post views. This growth and success is due our ability to continue the growth of our programs, advocacy and fund- to your financial support and personal efforts. raising efforts is dependent on your support. Working together, we can provide the much needed awareness and quality of care for those living The Adult Congenital Heart Association (ACHA) has joined with other with CHD. CHD organizations to promote funding of legislation focused on congenital heart disease. In 2015, more than 115 advocates from 19 states gathered We are honored to serve the CHD community and we hope that you will for National Congenital Heart Advocacy Day. We must continue to affect continue your support as well as help increase our public awareness by change and increase funding at the federal level through our collaboration telling those in your community about the work that we do. with legislator champions like Senator Dick Durbin and Representatives Gus Bilirakis and Adam Schiff, including seven additional senatorial co- sponsors and 25 additional congressional cosponsors.

As we know, access to quality care for those living with CHD can be a challenge. Those with CHD need specialized care and testing that can be best provided by adult congenital heart disease (ACHD) specialists. In 2015, ACHA in conjunction with leading ACHD providers across the country, started to develop criteria to set those standards in CHD centers nationwide as part of our ACHA ACHD Accreditation Program. Through the tireless efforts of our Medical Advisory Board, led by Drs. Curt Daniels and Jamil Aboulhosn, we were able to set the groundwork by identifying five Pilot Sites across the country. This is truly an accomplishment we can all be proud of as we get ready to introduce the ACHA ACHD Accreditation John Fernie Glenn R. Tringali Program to centers nationwide in 2016. Board Chair National Executive Director

MISSION VISION The mission of the Adult Congenital Heart Association (ACHA) is to ACHA will be the leading voice in congenital heart disease education and improve and extend the lives of the millions born with heart defects advocacy, and raise the public awareness of congenital heart disease as through education, advocacy, and the promotion of research. a lifelong disease. ACHA will improve the standards for access to and delivery of quality care for adults with congenital heart disease. ACHA in collaboration with our partners will drive the public policy agenda affecting adults with congenital heart disease.

VALUES PATIENT -PROVIDER PARTNERSHIPS. We believe in medical professionals We believe in the following shared principles, beliefs and priorities: and patients working together to promote health in our community.

PATIENT EMPOWERMENT. We believe that those affected by congenital COLLABORATION. We believe in individuals and organizations working heart disease need to be heard and that they are powerful advocates for together in a collaborative effort to achieve common goals in the our community. patients’ interest.

COMMITMENT TO EXCELLENCE. We believe in providing resources and LEADERSHIP FOR CHANGE. We believe that we play a lead role in information from qualified professionals and in promoting quality health- creating a better future for congenital heart patients. care for the congenital heart community. Dues Program 0.9% Other & Events 0.2% 2015 by the Numbers 3.8%

Fiscal year ended December 31, 2015 (in USD) Grants 21.7% PUBLIC SUPPORT AND OTHER REVENUE 2015 2014

Contributions 1,568,313 1,268,084 Grants 463,000 614,700 Contributions 73.4% Program & Events (conference, publications, regional events) 81,044 150,461 Dues 20,080 19,090 Contract (sub grants) 0 0 Administration 11.84% Other (merchandise, interest) 4,728 5,515 Fundraising 7.88% Subtotal revenue, public support and other revenue 2,127,709 2,057,850 Prior year revenue reserved for this year’s operation 974,096 770,123 Total Public Support and Other Revenue (gross) 3,101,805 2,827,973 Revenue restricted for next year’s operations and long term funds (net assets) 1,168,965 974,035 Total Public Support and Other Revenue (net) 1,932,840 1,853,938

EXPENSES 2015 2014

Education Education 1,158,216 1,346,772 Advocacy/ 72.64% Outreach Advocacy/Outreach 328,401 120,096 6.48% Research 0 21,366 Fundraising 295,519 146,124 2-YEAR COMPARISON Administration 150,704 219,580 Public Support and Other Revenue Total Expenses 1,932,840 1,853,938 2015 2014 Contributions 1,568,313 1,268,084 EXPENSES, STRATIFIED 2015 2014 Grants 463,000 614,700 Congenital Heart Walks 489,146 472,429 Program & Events Professional Education Programs 401,539 220,043 81,044 150,461 Dues Advocacy Activities 129,878 93,223 20,080 19,090 Patient/Family Member Services 110,180 98,006 Other H2H Ambassadors Program 72,279 82,716 4,728 5,515 Educational Events 68,869 50,561 Expenses Outreach Activities 198,523 26,872 2015 2014 Research 0 21,366 Education 1,158,216 National Conference 16,203 423,018 1,346,772 Advocacy/Outreach Total Programs 1,486,617 1,488,234 328,401 120,096 Total Fundraising 295,519 146,124 Research 0 21,366 Strategic Planning 30,826 33,474 Fundraising Administration 119,878 186,106 295,519 146,124 Total Management 150,704 219,580 Administration 150,704 219,580 Total Expenses, Stratified 1,932,840 1,853,938

The Adult Congenital Heart Association (ACHA) is a nonprofit organization exempt from income tax under Section 501(c)3 of the U.S. Internal Revenue Code. ACHA has been classified as an organization that is not a private foundation and has been designated as a publicly supported organization. ACHA will be pleased to provide a copy of its audited financial statement upon request. Visit www.achaheart.org for ACHA’s Form 990. 2015 ACHA Accomplishments

ACHA is proud of all our accomplishments this year; some highlights are provided on these two pages.

HEART TO HEART AMBASSADORS TX. The goals of each meeting were 1.) To offer face-to-face support to CHD patients and families and 2.) To assist the clinics ACHA expanded the Heart to Heart Ambassador Program, an in outreach and education for patients and families. Approximately initiative that provides ACHA patient and family members with 300 patients and family members were served. personalized information and support. In 2015, 17 new Ambassadors were trained, bringing the total to 73 Ambassador volunteers. These volunteers offered more than 1,200 ACHA patient and ACHA WEBINAR PROGRAM family members personalized information and support. As our The ACHA webinar series continues to educate ACHD patients Ambassador numbers continue to increase, we are seeing and families by presenting webinars on various interesting and an increase in matching requests. timely topics. More than 800 ACHA members attended 17 different webinars in 2015. National experts spoke on a wide range of topics In 2015, a Senior Ambassador role was created to help support including Pregnancy: What Every CHD Patient Needs to Know, the overall program and the incoming Ambassadors to help The Liver and Legs in the Adult with a Single Ventricle, Radiation acclimate and guide them. As a result, five of our current Risks in the Adult with CHD, and How to Get Insurance Companies Ambassadors were nominated by their fellow peers to serve to Pay for Quality ACHD Care. in this leadership level role including Cassandra Bates, Laura Hoagland, John Latsha, Lena Morsch and Ken Woodhouse. LIFELONG CARE CAMPAIGN HEART TO HEART WHERE YOU ARE: In 2015, ACHA Ambassadors and staff presented on the importance REGIONAL EVENTS of lifelong cardiac care at over 20 events. These included Mended Little Hearts meetings, community health fairs, hospital cardiac ACHA continued offering a regional pilot program with selected care meetings and Congenital Heart Walks, a partnership with ACHA Ambassadors and adult congenital heart disease clinics The Children’s Heart Foundation. Hundreds of CHD patients and hosting informal education meetings. Four meetings were held families received this carefully crafted message. in 2015: Los Angeles, CA; Denver, CO; Columbus, OH; and Houston, The Congenital Heart Walk continued to bring together thousands of children, adults, and families to unite to fight CHD. More than 50,000 walkers raised more than $1.9 million in 30 cities across the United States from California to Florida and Texas to Minnesota.

CONGENITAL HEART WALK The Congenital Heart Walk (CHW) continues to grow each year through the hard work of our volunteers, teams and sponsors. In 2015, CHW raised more than 1.9 million, an increase of more than 20% in revenue. More than 50,000 walkers participated in CHW in 30 cities across the country to raise awareness, funds and bring families together to celebrate their loved ones with CHD.

The Congenital Heart Walk is a national event series sponsored by the Adult Congenital Heart Association and The Children’s Heart Foundation to raise awareness of the nation’s #1 birth defect, and to support, honor, and remember the millions affected by CHD. To join in our efforts, visitwww.congenitalheartwalk.org ACHD TRAVEL DIRECTORY AND ONLINE PROGRAM DIRECTORY In collaboration with the International Society of Adult Congenital Heart Disease, the ACHD online Clinic Directory lists over 115 ACHD clinics in the United States and Canada; the directory continued to be the only resource of its kind available in the United States.

ONLINE AND PRINTED MATERIALS ACHA provides its members with resources for specific congenital heart defects as well as associated medical conditions and common psychosocial issues. In 2015, ACHA added to the website a significant expansion of information for patients and families explaining various medical insurance options, how to obtain insurance thorough the Affordable Care Act, and resources to help them navigate the healthcare insurance system. Educational materials on Pregnancy in Women with CHD, Atrial Septal Defect, Single Ventricle Defects and the Fontan, and Spanish Guidelines were added to our growing educational library.

CONGENITAL HEART DISEASE TRAINING FELLOWSHIPS In 2015, ACHA developed an application and review process to offer training awards to two institutions with a commitment to high-quality adult congenital heart disease (ACHD) care. These awards will fund one fellowship at each institution with a requirement of ACHD leadership and mentoring throughout the ACHA ONLINE BY THE NUMBERS 2015 award period. Funding priority will be given to new and emerging ACHD training programs. Two Fellowship awards were processed in 2015. The awards were given to a fellow at Montefiore Medical WEBSITE 382,043 PAGEVIEWS Center, The Children’s Hospital at Montefiore, Albert Einstein College of Medicine; and Vanderbilt University. ACHA BLOG 93 POSTS PUBLISHED IN 2015

FACEBOOK 7,323 FOLLOWERS BY YEAR’S END ADULT CONGENITAL HEART DISEASE ACCREDITATION PROGRAM In 2015, ACHA and members of the Medical Advisory Board CHD. Hosted by ACHA, Children’s Heart Foundation and the developed a process for accreditation with over 99 different Pediatric Congenital Heart Association, this annual event brought pieces of criteria broken into 19 different sections. The ACHA ACHD together patients, family members, medical professionals, and Accreditation Program will raise the bar for ACHD care in the supporters from across the country to connect with more than 75 United States, encouraging ACHD programs to strive to meet legislative offices. the criteria, which will provide more and much needed resources to the programs and will ultimately benefit the patient. Through CONGRESSIONAL CONGENITAL the Accreditation Program we are also looking for additional HEART CAUCUS data collection to show the benefit of accreditation criteria met in a program setting compared to an ACHD program that The formation of the Congressional Congenital Heart Caucus in doesn’t meet the necessary criteria. In 2015, the first of five total 2012, initiated by ACHA advocacy efforts, is an informal group of Pilot Site visits occurred in December. members of Congress dedicated to issues related to congenital heart defects. We are grateful to Congressman Gus Bilirakis, who NATIONAL CONGENITAL HEART serves as the founding chairperson of this caucus. ADVOCACY DAY More than 115 advocates from 19 states gathered in Washington, D.C. on February 25-26, 2015 to talk to their lawmakers about Membership and Support

2015 MEDICAL William Douglas, MD Chun Huie Lin, MD Beverly Smulevitz, Cedars-Sinai Medical Center Anne Dubin, MD Tracy Livecchi, LCSW BS, RDCS, RVS Children’s Heart Center Nevada PROFESSIONAL Michael Earing, MD Cindy Lohrentz, NP Walter Sobczyk, MD Cincinnati Children’s Hospital MEMBERS James Eichelberger, MD Camila Londono-Obregon, MD Theresa Stamato, MD Medical Center Felicia Eichelbrenner, David Lopez, MD Gary Stapleton, MD CNA Financial MSN, RN, CNP Pankaj Madan, MD Herbert Stern, MD Dell Employee Giving Program January 1, 2015 to Robert Elder, MD Anthony Magalski, MD Richard Swensson, MD Google Alexander Ellis, MD David Majdalany, MD Nikola Tede, MD, FAAP Helen DeVos Children’s December 31, 2015 Georges Ephrem, David Malenka, MD David Teitel, MD Hospital ACHA Medical Professional MD, MSc, RPVI Robert Mangano, MD Jennifer Ting, MD Houston Methodist Hospital Members not only support Peter Ermis, MD Larry Markham, MD Martha Tomlin, James S. Wong Private the vital work ACHA does to William Evans, MD Richard Martinez, MD RN, CNP, MSN, CRNP Foundation improve health for adults with Royceanne Faggins Richard Martinez, MD Mark Townsend, MD Lexis Nexis Cares CHD, but also demonstrate that John Fahey, MD Michael McConnell, MD Bhavya Trivedi, MD, PhD Matching Donations as medical professionals, they Theresa Faulkner, DNP, RN Doff McElhinney, MD Shane Tsai, MD Mended Little Hearts have a vital stake in ACHA’s Desiree Fleck, CRNP Marion McRae, NP Shailendra Upadhyay, MD of Binghamton mission. The list below includes Hector Fontanet, MD Marla Mendelson, MD Gruschen Veldtman, Parnassus Investments all paid professional members Lisa Forbess, MD Sandy Menker, BSN, RN FRCP, MBChB St. Jude Medical Foundation of ACHA for 2015. Elyse Foster, MD Pamela Miner, RN, MN, NP Sandhya Venugopal, MD St. Jude Medical, Inc. Elman Frantz, MD Kara Motonaga, MD Joseph Vettukattil, MD Texas Children’s Hospital Elizabeth Adams, DO Natasha Frazee, BSN, RN Kevin Mulhern, MD Julia Viger, RN, MSN The University of Texas Anushree Agarwal, MD Michael Freed, MD Teimour Nasirov, MD Juan Villafane, MD USC Adult Congenital Luis Alday, MD Richard Friedman, MD, MBA Jennifer Nelson, MD Marion Wachtenheim, MSW Heart Program Jorge Alegria, MD Hrair Garabedian, Jo Ann Nieves, Benjamin Waller, III, MD Craig Alexander, MD MD, FAAP, FACC MSN, CPN, ARNP-BC Carole Warnes, MD Friends ($100-$999) Naser Ammash, MD Michael Gewitz, MD John Nigro, MD Gary Webb, MD Anonymous (2) Erle Austin, MD Lisa Gilmore, Connie Nixon, RN Thomas Weigel, MD Allsup Carl Backer, MD MS, RN, CPNP-AC/PC Jacqueline Noonan, MD Catherine Weinberg, MD AmazonSmile Foundation Steven Bailey, MD Cynthia Glasglow, Mark Norris, MD Deborah West, CNS, RNFA American Express Foundation – Heather Bartlett, MD RN, MSN, FNP-C Barbara Novais, ANP-C Roberta Williams, Employee Giving Program Peter Bartz, MD Stafford Grady, Jr, MD David Nykanen, MD MD, MACC, FAHA Bravelets, LLC Robert Battle, MD, FACC David Gregg, MD Erwin Oechslin, MD Stanley Wright, MD Children’s Hospital Colorado Stanley Beder, MD Pooja Gupta, MD Alexander Opotowsky, Ming-Lon Young, MD ConocoPhillips David Beisel, MD Sallie Gustafson, RN, BSN MD, MPH Thomas Young, MD Coughlin & Gerhart, LLP Farhouch Berdjis, MD Dan Halpern, MD Kathryn Osteen, MSN Evan Zahn, MD CustomInk Campaigns Steven Bibevski, MD Joel Hardin, MD Dhaval Parekh, MD Ali Zaidi, MD Dickinson & Company Certified Joseph Billadello, MD Steven Healan, MD Mehul Patel, MD, DNB, CCDS Elizabeth Zimmerly, RN Public Accountants Martin Bocks, MD Mary Heitschmidt, RN, MS Manisha Patel, MD Eric Zintz, MD Dinsmore & Shohl, LLP William Bommer, Frederick Helmcke, MD Dorothy Pearson, PA-C Jerel Zoltick, MD Driven Solutions MD, FACC, FACP James Hennessy, MD Orlando Petrucci, MD, PhD Matthew Zussman, MD Consulting Corp Wendy Book, MD Ziyad Hijazi, MD, MPH, Sabrina Phillips, MD DST Systems, Inc Alison Branigan, MD FSCAI, FACC, FAAP Priscilla Phillips, MD SUPPORTERS Eventbrite Andras Bratincsak, MD Arvind Hoskoppal, MD Scott Pilgrim, MD Good Shop Pamela Burg, MD Daphne Hsu, MD Priya Pillutla, MD (BUSINESSES, Honors Student Association of Craig Byrum, MD D. Dunbar Ivy, MD Robert Popper, MD ORGANIZATIONS & Frederick Community College Dawn Calderon, DO, FACC Jamie Jackson, PhD Natasha Powell IBM Employee Services Center Candace Campbell, Gretchen Jayawardena Kit Powers, MD FOUNDATIONS) James W. Hogan & Associates MSN, RN, APRN, FNP-C Cerrisa John Jana Reid, MSN, ARNP-BC La Reve LLC Mary Canobbio, RN, MN Gregory Johnson, MD Emily Reinhardt, RN, BSN Lansdowne Construction, LLC Scott Ceresnak, MD Thomas Johnson, MD Aurelio Reyes, MD January 1, 2015 to Madera Sunrise Rotary Frank Cetta, Jr, MD Andrea Johnson Edward Rhee, MD December 31, 2015 Microsoft Matching Nancy Chase, MD Walter Johnson, Jr, MD John Rhodes, Jr Gifts Program John Cheatham, MD William Kay, MD Camille Richards, NP Platinum ($250,000 & more) Mooneyham Nursery Nicholas Chee, DO Yuli Kim, MD Mary Richardson Actelion Pharmaceuticals National Multiple Scott Cohen, MD Stephen Kimmel, MD, MSCE Donald Riopel, MD US, Inc. Sclerosis Society Lucas Collazo, MD James Kirklin, MD Fred Rodriguez, MD Nationwide Children’s Hospital Katherine Collier, RN, FNP-C Nancy Klein, RN, BSN, CPN Ian Rogers, MD, MPH Silver ($10,000-$49,999) Olympus Corporation of Jack Colman, MD, FRPC Marc Knepp, MD Anitra Romfh, MD Edwards Lifesciences the Americas Heidi Connolly, MD Diana Knoedel, PA Marlon Rosenbaum, MD Corporation Orthopaedic Nurses Stephen Cook, MD, FACC Julie Kovach, MD, FACC, FASE Emily Ruckdeschel, MD Gilead Sciences, Inc. Certification Board Timothy Cotts, MD Adrienne Kovacs, PhD David Sahn, MD Meil Family Foundation Painting With A Twist - Ambler Daniel Cox, DO Kimberly Koyanagi, NP Arwa Saidi, MD, FACC Pennsylvania Shakespeare Marc Cribbs, MD Richard Krasuski, MD Satinder Sandhu, MD Bronze ($1,000-$9,999) Festival Zilda Crist, RN, BSN Eric Krieger, MD Mary Schlater, APRN Anonymous (1) Philadelphia Phillies Jane Crosson, MD Damon Kwan, MD Renee Schnug, CNP AbbVie Foundation Pura Vida Bracelets Tara Dade, MSHS, PA-C Wilson Lam, MD Frank Scholl, MD Employee Engagement Fund QVC Gul Dadlani, MD Ranae, Larsen, MD Keri Shafer, MD Ahmanson UCLA Adult Sarfino and Rhoades, LLP William Davidson, Jr, MD, FACC Warren Laskey, MD Christina Sillman, RN Congenital Heart Shook, Hardy and Bacon Karen Day, RN Larry Latson, MD Lynn Simko, PhD, RN Disease Center SquareUp Rajiv, Devanagondi, MD Keane Lee, MD Harsimran Singh, MD BAE Systems Matching Stan Smith Insurance Services Emily Dong, PA-C Susan Leshan, MSW Michael Singh, MD Gift Program Super Fence LLC The Batten Group Nick and Andrea Pottebaum Georgia and Bill Krehbiel Lavetta L. Evans Linda Lucarelli United Way of Coastal Serina and Marlon Rosenbaum Mr. and Mrs. Scott Leezer Judith F. Fabiniak Catherine Luck Fairfield County James, Barbara, and Rick and Joy McTyre Mr. and Mrs. Robert G. Farrell Mr. and Mrs. Gregory J. United Way of Long Island David Ruppel Thomas and Marren Meehan Peggy Farrell MacClelland Upper Deerfield Volunteer Carrie and Russ Rydin Christopher Memoli Helen Feldman-Goldstein Lynn S. Machen Fire Company #3 Arwa Saidi, MB, BCh, FACC Sharon Meyer Alan and Ruthanne Ferguson Mr. and Mrs. Wayne Macktinger WeMED Wellness Center of Craig and Nancy Schnuck Pam Miner, RN, MN, NP Robert Fernie Mr. and Mrs. Phillip H. Manger Integrated Medicine Dean, Vicki, Wes, Deana, and James R. Murphy Amy Fesmire Joshua Mariea Chelsea Schooler Mr. and Mrs. Alex Primm Mark Foote Sally and John McCarthy SUPPORTERS Bianca Scott John and Jeannine Salamone Anita and Ted Fowler Mr. and Mrs. Richard McCarthy Faith and Terry Sincich Jeremy Salsman Jessica Freely Kim and Tom McKeon (INDIVIDUALS) Mr. and Mrs. Stanley Smith J. Gregory and Joan Sarfino Robert J. Furce Ellen L. McKeon Julie Spangler Jeffrey and Mary Sisson Valija and Modris Galenieks Kathy Meilner Margo Steurbaut Richard and Lynelle Smith Seana and Ike Gallagher Angela and Frank Melazzo Karen Stout, MD, FACC Emily Thompson Mr. and Mrs. Marland Gammon Victor Menashe, MD Thank you to all of ACHA’s Glenn and Nancy Tringali Wallace and Aurora Tourtellotte Geoffrey Gerhardt Madeleine C. Meyer, MD and donors in 2015. Below is a list Tom Uher Heather Abbott Vogel Mr. and Mrs. Anthony Giancana Martin J. London, MD of our donors who gave $100 Brent and Rachel Weinberg Carol A. Gillis Thomas and Jani Millard and more. Advocate ($750-$999) John Whitcomb Diane Gilmartin Linda Miller and Ben Miller Nicholas and Margret Chee Barbara Wilson Marlene and Allen and Sandra Miller Pinnacle Society ($100,000 & more) Christy and Jeff Ferguson Mr. and Ms. Brian Wolf Michael Goodman Brigid and James Mook Mr. and Mrs. James Postle Scott Klewer, MD William and Janice Wong Doug and Janice Goransson Janelle Morio Gareld and Marilyn Kneepkens The Wright-Jones Family Joshua Gorman Don and Naomi Morshead Visionary ($5,000-$9,999) Adrian and Kimberly McCarthy Monique Gougeon-DiComo Rachelle Moulton Anonymous (1) Roberta G. Williams, Friend ($100-$249) Robert Grabel Karen Muccino The Fernie Family MD, MACC, FAHA Anonymous (12) James Grange Christina Mullins Tony and Denise Garvy Mr. and Ms. Daniel T. Abazia Sandra Snyder Grant Amber Murphy Rosamond P. Warren Leader ($500-$749) Carol Abbott Mr. and Mrs. Howard Peter and Tina Murray Anonymous (3) Tanya Abrams Greenawalt Scott Nay Patron ($2,500-$4,999) Elahe Amani Elizabeth Adams, DO William and Rochelle Joanne Neuhoff Jamil A. Aboulhosn, MD Marjorie Bernstein Lynne Adrian Greenberg Jo Ann Nieves, and Julie Kasem John W. Church Shirley A. Anderson Mr. and Mrs. Gary Greenberg MSN, CPN, ARNP-BC Ronny and Judy Altman Stephen Crumb, DNP Diana L. Anderson Mary and James Gries Kenneth M. Niji Steven Flier, MD and Dean and Karen Dubey Mr. and Mrs. Jay K. Bailey Barbara A. Gross Kathryn Osteen, MSN Carol Efron-Flier Susan M. Fernandes, MPH, PA-C Daniel Barnes and The Guillaud Family The Paganelli Family Elyse Foster, MD and Mr. and Mrs. William Gammon Elaine Wilson John Habib Sara and Scott Pate William Shalen, MD Richard Johnson Linda Barrett Dr. and Mrs. Nelden Hagbom Kenneth C. Perkins-Gough Paul W. Snider William A. Kay, MD Kristie Bartee Mr. and Mrs. Nicholas R. Halper Mr. and Mrs. Michael J. Robert Klaber Margaret Bayless Mr. and Mrs. Frank M. Pontarolo Benefactor ($1,000-$2,499) Christopher P. Learn, MD Albert and Jean Beck Harkcom, Jr. and Family James Poovey Michael Achiro Lynette W. Lissin, MD Christine Belmont Paula Harker Sharon Pottebaum Naser M. Ammash, MD Sandra Louise MacKey Amy Berge Jeannie Harrell Juanita Potts, RN Stephen Back, DO Mr. and Mrs. Dan Majetich Kristen H. Billingsley Mr. and Mrs. John Hassenfeld Kit Powers, MD Scott Beaumont Tim McCarthy Elizabeth Hastings Block Angela and Tom Heigle Mr. and Mrs. Michael Putnam Jerry Boegler and Brian Altman Diane Neff Tzvi and Sareet Bluestone Nancy J. Henry Nicole Rea Craig Broberg, MD Lucy and Joe Overgaag Joanne Bortoli and Nick Tentes David Highfill, LCSW Melinda Rehfeldt Anthony Castor, III Marjorie Perloff Stephen J. Brabeck, MD, FACC Alexander Hildebrand Timothy A. Reilly Gail V. Cherochak Peggy Powers Jorge A. Brasil Leona G. Himmelspach Anne and Brian Reilly Anne Coffman and Rick Puder Mr. and Mrs. Tom Bray Marianne B. and R. Joni Reilly Paul Schmidt Alexis Raymond Lisa Browne James Hunter Ms. Ruth Reschenberg Susan Coleman and Ruth J. Richter Michelle Browning Coughlin Kathleen Hutchinson and Family Mitchell Freedman Dr. and Mrs. Nelson B. Schiller Mr. and Mrs. Dale Brunner Richard Imamura Krystal Richard Jeff and Denise Coulter Jeffrey and Allison Stachnik Emily M. Bunch Rick Jackson James Richter Kathleen Deeney and Dr. and Mrs. Leo Twiggs Audrey B. Burton Debra Johnson Mr. and Mrs. Ronald J. Richter Carl W. Miller Marion L. Wachtenheim, MSW Mary M. Canobbio, RN, MN, FAAN Harlan L. Joseph Tina Rinaldi Michelle M. DeRoo Gary D. Webb, MD Valerie Carlisle Christy Kaeser Paul Rodrigues Cheryl and Bart Dickins Mr. and Mrs. Peter Weilnau Tammy Carlos Martin and Cheryl Kahn Ian Rogers, MD, MPH Lisa W. Forbess, MD The Yasutake Family Megan and Taylor Carrington Thomas Karnavezos Ashlee Rooks Kevin Gordon and Alex Zamora, PA-C Ronald R. Castonguay, MD Shiva Kashanian, DDS and Bradley Rubin Michelle Traeger Mr. and Mrs. John B. Catalano Mohammad R. Khosravi, MD Stacy and Mike Salvevold Ian S. Harris, MD Partner ($250-$499) Pamela C. Charlesworth Mr. and Mrs. Barry Kimmel Ari Savitsky Marcus Haw, MD Anonymous (1) Ed and Susan Clarke Ted and Mary Kay Klein Nick and Terri Schaefer Cindy and Richard Huie Nancy Bangel Jeff Coffin Angeline Koh Michael and Lori Schemmel Anitha S. John, MD Christopher Cannon Lynn Cohen Paul Koven Al and Sue Schlesinger Yuli Y. Kim, MD Chad and Segen Chase Mr. and Mrs. Howard Cohen Mr. and Mrs. Lionel Koven Teresa Scilipote Richard A. Krasuski, MD Stephen C. Cook, MD, FACC Timothy B. Cotts, MD Miriam R. Krause Mr. and Mrs. Anthony Serra Michael and Abby Landzberg Mr. and Mrs. Raymond L. Costanzo Dietra Cox Mr. and Mrs. Paul Krauss Donna Shannon Delphine Lee Wendy Dahm Carol Croce Victor W. Kregel Bruce and Linda Sherbow Mr. and Mrs. Charles Liamos Maynard Darrow Casey Culbertson, MD Mr. and Mrs. Robert Kropp Neal Siegel George K. Lui, MD Urmi and Rajesh Desai Marjorie Curtis-Cohen, MD Karen S. Kuehl, MD, MPH Melinda Simon Daniel M. Lynn Geoffrey and Ruth Duffine Marc F. Cymes Kathryn Kunkel Penny Sims Margaret P. Martin and Debbie Fiser Marie-France Cyr Mr. and Mrs. Jerry Laird Mr. and Mrs. Gary A. Smith Devon Martin Brendan Gaeng Margaret Damico Nathan, Ashley and Eric Lam Mr. and Mrs. Jeffrey B. Smith The Matson Family Rose Gaggini and Family Maria Diaz Ranae Larsen, MD Robert and Joan Stachnick Mr. and Mrs. Sean McCarthy Sandra Grier Dorothy J. Dickoff James W. Larson Deanna Stark Mr. and Mrs. Daniel McDermott Mr. and Mrs. Earl Imhoff Jessica and Michael and Linda LaSorsa Laurie Stiles Alison Knauth Meadows, MD, PhD David C. Isenberg Anthony DiGiovanni Stephen Latin Lawrence and Gayle Stortz Robert and Linda Moore Jeffrey Ishida Lenore Duchnowski Mr. and Mrs. Philippe Lavielle Stephanie Swirsky Barbara O’Connor Steven Izen Noel Dyer Roy Livingston Mr. and Mrs. Henry Swirsky Alexander Opotowsky, MD, MPH Jill Jones, RN Leonard and Christine Dzik Robin Lokich Ed Syrup Disty Pearson and Phil Zuckerman Mr. and Mrs. Richard Karlson Tom and Karen Elfers Steve Lopez Matthew Tanck Michael J. Pernick Mara Koven-Gelman Julie Estell Mr. and Mrs. Martin C. Lougen, Jr. Continued on the back >> Allison Teger, M.Ed., LMHC Nicholas Pottebaum* Scott Klewer, MD Welton M. Gersony, MD Sandra Teger Chicago, IL University of Arizona New York-Presbyterian Hospital SusanAd Timminsult JenniferCon C.g Ting,en itaMD l Carrie Rydin* Richard Krasuski, MD Thomas P. Graham, MD JacquelineHear Tinneyt Highlands Ranch, CO Cleveland Clinic Vanderbilt Children’s Hospital Mr. and Mrs. Mark Torre ElroyA ssocand Bettyiat Traegerion Arwa Saidi, MB, BCh, MEd, FACC Brian Kogon, MD David J. Sahn, MD Anthony Ustohal Winter Park, FL Emory University Oregon Health & Science Mr. and Mrs. George S. University Waddington * indicates an ACHD patient Emeritus Winifred Waldron ** indicates a CHD family Karen S. Kuehl, MD, MPH Jane Somerville, MD B. Rush Waller, III, MD member/spouse Children’s National Royal Brompton Hospital Mr. and Mrs. George Medical Center Imperial College School Wannamaker ACHA MEDICAL Washington Hospital Center of Medicine, London, UK Mr. and Mrs. Charlie Wheeler III Leslie F. Whelchel-Mathews, Esq. ADVISORY George Lui, MD Roberta G. Williams, MD, MACC Mr. and Mrs. Thomas Wilhelm Stanford University University of Southern Tracy Williams BOARD 2015 Medical Center California/Children’s Steve and Susan Wilson Hospital Los Angeles Mr. and Mrs. Roger Wing Emeritus Karen Wisniewski Chair Michael McConnell, MD Carole A. Warnes, MD Mark Wolf Curt J. Daniels, MD, FACC Emory University Mayo Clinic, Rochester, MN Ken Woodhouse Nationwide Children’s Hospital/ Melissa Worrell The Ohio State University Alison K. Meadows, MD, PhD Gary D. Webb, MD Mr. and Mrs. William Worrell Past Chair Kaiser Permanente, The Heart Institute at Ann Wright Michael J. Landzberg, MD Northern California Cincinnati Children’s Bradley Wuggazer Boston Children’s Hospital/ Hospital Medical Center Connie Youngers Brigham and Women’s Hospital Pamela D. Miner, NP Ahmanson/UCLA International We make every effort to present Vice Chair Medical Center Advisors complete and accurate donor JamilBuilding Aboulhosn, MD Luisthe Alday, MD, MACC information. Please advise us Ahmanson/UCLA Alexander Opotowsky, MD Air Force Hospital and of any errors or omissions. Medical Center Boston Children’s Hospital/ Sanatorio, Allende, Argentina Brigham and Women’s Hospital BOARD OF MAB Board Members Jack M. Colman, MD Naser M. Ammash, MD Disty Pearson, PA-C Toronto General & Mount Sinai DIRECTORS Mayo Clinic, Rochester, MN Boston Children’s Hospital/ Hospitals foundationBrigham and Women’s Hospital University of Toronto Craig S. Broberg, MD, MCR Toronto, Canada Board Chairperson Oregon Health & Science Marlon Rosenbaum, MD John C. Fernie** University Columbia University Michael A. Gatzoulis, MD, PhD Lafayette, CO Medical Center Royal Brompton Hospital Stephen C. Cook, MD Presbyterian Hospital Imperial College School of Vice Chair ofUniversity a of Pittsburgh healthy School Medicine, heart London, UK Cindy Huie** of Medicine Ronen Rozenblum, PhD, MPH Scottsdale, AZ Brigham and Women’s Hospital/ Paul Khairy, MD, PhD Stephen Crumb, DNP, AACC Harvard Medical School Montreal Heart Institute/ Treasurer Nationwide Children’s Hospital/ University of Montreal Kevin Gordon* The Ohio State University Arwa Saidi, MB, BCh Boston Children’s Hospital/ Minnetonka, MN University of Florida Brigham and Women’s Hospital Michael G. Earing, MD Secretary Medical College of Wisconsin Michael Singh, MD Adrienne Kovacs, PhD Denise Garvy, JD** Boston Children’s Hospital/ Toronto General Hospital Glen Ellyn, IL Susan Fernandes,Annual LP.D., PA-C Brigham Reportand Women’s Hospital University 2015 of Toronto Stanford University Toronto, Canada Officers Medical Center Karen Stout, MD Jerry Boegler** University of Washington Ariane Marelli, MD, MPH Potomac, MD Jonathan Ginns, MD Seattle Children’s Hospital McGill University Health Center, Columbia University Montreal, Canada Curt J. Daniels, MD Medical Center Jennifer Ting, MD Columbus, OH Presbyterian Hospital Kaiser Permanente, Philip Moons, PhD, RN Northern California University Hospitals Leuven Elyse Foster, MD Michelle Z. Gurvitz, MD Belgium Mill Valley, CA Boston Children’s Hospital Ali Zaidi, MD Harvard Medical School Montefiore Medical Center Barbara JM Mulder, MD, PhD Christy Ferguson* Academic Medical Center Aurora, CO Ian Harris, MD Emeritus Amsterdam, the Netherlands University of California William R. Davidson, Jr., MD Anne Gammon** Penn State Heart & Koichiro Niwa, MD Myrtle Beach, SC Emeritus Vascular Institute Chiba Cardiovascular Joseph D. Kay, MD Milton S. Hershey Center Japan Barry Meil** University of Colorado at Denver Medical Center Potomac, MD Yuli Kim, MD Elyse Foster, MD Peggy Powers University of Pennsylvania University of California, San Francisco, CA San Francisco, CA

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