Memoria De Actividades 2015 Activities Report 2015 Memoria De Actividades

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Memoria De Actividades 2015 Activities Report 2015 Memoria De Actividades Activities Report Memoria de actividades 2015 Activities Report 2015 Memoria de actividades A word from the Director Saludo del director 2 The Pasqual Maragall Foundation La Fundación Pasqual Maragall 4 The year 2015 in figures El año 2015 en cifras 6 Clinical research program Programa de investigación clínica 8 Social intervention program Programa de intervención social 16 New facilities Nuevas instalaciones 18 Fundraising and social support Captación de fondos y apoyo social 19 Edition Edición Pasqual Maragall Fundation Wellington, 30 08005 Barcelona Dissemination Tel. 93 316 09 90 Divulgación 26 [email protected] www.fpmaragall.org Recognition Reconocimientos 33 Date of publication March 2016 Fecha de publicación Marzo de 2016 Origin and destination of resources Origen y destino de los recursos 34 Partners Colaboradores 36 Total or partial reproduction of this publication, treatment in any form or by any Board and team means, electronic, mechanical, photocopying, recording, or other methods, or its Patronato y equipo 38 loan, rent or any other form of cession of use of the copy is not allowed without prior written permission of the copyright holder. Press No está permitida la reproducción total o parcial de esta publicación, 40 ni su tratamiento informático, ni su transmisión de ninguna forma o por cualquier Dossier de prensa medio, ya sea electrónico, mecánico, por fotocopia, por registro u otros métodos, ni su préstamo, alquiler o cualquier otra forma de cesión de uso del ejemplar, sin permiso previo y por escrito del titular del copyright. A word from the Director Saludo A word del Director from the Director The new clinical research facilities Saludo and neuroimaging del director platform at the service of the research will make us a reference centre in research of this disease. 2015 has been a year marked with El 2015 ha sido un año marcado por dos ageing and healthy lifestyles. promocionar la salud cogniti va mediante Las nuevas two major accomplishments. The fi rst importantes logros. El primero ha sido This year, our partner network has el envejecimiento acti vo y los hábitos de instalaciones de one has been the beginning of the el inicio de la internacionalización del doubled, reaching almost 5,000 vida saludables. internati onalizati on of the scienti fi c proyecto cientí fi co que la Fundación members. We were able to have the investigación project developed by the Pasqual Pasqual Maragall desarrolla a través del involvement of MotoGP world champion Este año, nuestra red de socios se ha Maragall Foundati on through the Barcelonaβeta Brain Research Center, Marc Marquez, who has been the doblado, hasta alcanzar los casi 5.000 Jordi Camí clínica y la Barcelonaβeta Brain Research Center, su centro de investi gación. El impulso image of our annual campaign. We socios. Hemos podido contar con la Director its research centre. The impulse and y coliderazgo en la puesta en marcha have received, likewise, conti nued implicación del campeón mundial de plataforma de co-leadership launched in the European del consorcio europeo EPAD para la expressions of support and collaborati on MotoGP Marc Márquez, que ha sido la neuroimagen al Consorti um for the preventi on of prevención del Alzheimer supone la of organizati ons and individuals, which imagen de nuestra campaña anual. Se han Alzheimer EPAD gathers the eff orts of suma de esfuerzos de 35 centros de toda resulted in meals and charity galas, sucedido, así mismo, muestras conti nuas servicio de los 35 centres in Europe to fi nd a soluti on to Europa para encontrar una solución a esta sporti ng events, concerts and various de apoyo y colaboración por parte de this disease by clinical trials of medicines enfermedad mediante ensayos clínicos acti viti es with the common goal of enti dades y parti culares, que se han investigadores that slow down or delay it from de fármacos que frenen o retrasen su pushing research forward to overcome traducido en comidas y galas solidarias, appearing. We are convinced that this is aparición. Estamos convencidos de que Alzheimer’s. acontecimientos deporti vos, conciertos y nos convertirán the way to follow. este es el camino a seguir. acciones diversas con el objeti vo común en un centro de It is diffi cult to express our grati tude de avanzar en la investi gación para vencer On the other hand, the completi on of Por otro lado, la fi nalización de los to many expressions of support and el Alzheimer. referencia en la constructi on works, adaptati on and trabajos de construcción, adecuación confi dence, in parti cular to Obra Social equipment of the new headquarters y equipamiento de la nueva sede de la ”la Caixa”. Strategic partners, donors, Resulta difí cil expresar nuestra grati tud investigación de of the Foundati on in the Ciutadella Fundación en el Campus de la Ciutadella supporters, volunteers...: our strength is ante tantas muestras de apoyo y Campus of the University Pompeu de la Universidad Pompeu Fabra supone based on the sum of all eff orts. Without confi anza, en parti cular a la Obra Social esta enfermedad. Fabra is the beginning of a new era, el inicio de una nueva etapa, con them our work would not be possible. ”la Caixa”. Mecenas, socios, donantes, with new challenges and prospects. nuevos retos y perspecti vas. Las nuevas It wouldn’t be either without the colaboradores, voluntarios…: nuestra The new clinical research faciliti es and instalaciones de investi gación clínica y la commitment and dedicati on of our team fuerza se basa en la suma de todos neuroimaging platf orm at the service of plataforma de neuroimagen al servicio de members. One more year, thank you los esfuerzos. Sin ellos no sería posible the research will make us a reference los investi gadores nos converti rán en un to all who share the desire for a future nuestra labor. Tampoco lo sería sin centre in research of this disease. At centro de referencia en la investi gación without Alzheimer’s. el compromiso y la dedicación de los the same ti me, ourteam conti nues to de esta enfermedad. A la vez, nuestro miembros de nuestro equipo. Un año grow, and we are working to expand our equipo conti núa creciendo, y seguimos más, gracias a todos los que compartí s el therapeuti c groups for caregivers and to trabajando para ampliar nuestros grupos deseo de un futuro sin Alzheimer. 2 promote cogniti ve health through acti ve terapéuti cos para cuidadoresy para 3 The Pasqual Maragall Foundation La Fundación The Pasqual Pasqual Maragall Maragall Foundation La Fundación © Jordi Bedmar © Jordi Pasqual Maragall Transparency and good practices The Pasqual Maragall Foundati on has a Transparency Policy and The objectives los objetivos a Code of Good Practi ce in transparency and accountability, Prevent the onset of Alzheimer’s. We want Prevenir la aparición del Alzheimer. by which it adopts the set of to determine what factors infl uence the Queremos determinar qué factores inciden principles and commitments onset and development of this disease and en el inicio y desarrollo de esta enfermedad governing its acti on. act before it is too late. The early detecti on y actuar antes de que sea demasiado tarde. of the disease is crucial to test preventi ve La detección precoz de la enfermedad treatments before the manifestati on of the es determinante para poder ensayar fi rst symptoms. tratamientos preventi vos antes de la Transparencia manifestación de los primeros síntomas. y buenas prácticas The vision la visión Caring for the caregivers. We want to improve the welfare and quality of life of Cuidar a los cuidadores. Queremos mejorar La Fundación Pasqual Maragall those who dedicate their lives to care for el bienestar y la calidad de vida de aquellos cuenta con una Políti ca de A future without Un futuro sin people suff ering from this disease through que dedican su vida a atender a las personas Transparencia y un Código Alzheimer’s, because Alzheimer, porque research in the design of products and que sufren esta enfermedad, mediante la de Buenas Prácti cas en services that facilitate their daily lives. investi gación en el diseño de productos y transparencia y rendición de cuentas nowhere it is written en ningún lugar Raising awareness about the disease servicios que faciliten su día a día. , por los cuales adopta el conjunto de principios y and its eff ects. We want to contribute Sensibilizar sobre la enfermedad y that this disease is está escrito que esta compromisos que rigen su to the acceptance and normalizati on of sus efectos. Queremos contribuir a la actuación. invincible. enfermedad sea Alzheimer’s. In order to do so, we develop aceptación y normalización del Alzheimer acti ons that promote social awareness and desarrollando acciones que propicien el invencible. refl ecti on about this disease. conocimiento y la refl exión social en torno a The mision esta enfermedad. Consult the texts of the Transparency We are facing one of the most prevalent la misión The research Policy and the Code of Good Practi ce. diseases worldwide that does not yet have la investigación any curati ve treatment. Also we ignore Nos enfrentamos a una de las The Pasqual Maragall Foundati on manages when and how to start and what factors enfermedades con más prevalencia en its scienti fi c acti vity through a research La Fundación Pasqual Maragall gesti ona su Barcelonaβeta Brain Research may favour or prevent its onset. We are todo el planeta que todavía no dispone centre, the acti vidad cientí fi ca a través de un centro Consulta los textos Center Barcelonaβeta Brain convinced that only by applying more de ningún ti po de tratamiento curati vo.
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