ICIS : information for life we specialise in finding you help
IICCIISS NNeewwss
S i g n p o s t i n g y o u t o s e r v i c e s
p r o v i d i n g a d v i c e , c a r e a n d s u p p o r t
Is sue No: 54
Services supporting those with cancer 2
Support for carers 8
Support for victims 18
Other support services 22
Volunteering and getting involved 25
Training and learning 25
Service development 26
Funding and awards 26
Resources 28
Services no longer running 28
Supporting people directory 30
ICIS room and equipment hire 31
Who to contact at ICIS 32
For more information on sources of support for a person’s individual need,
phone the ICIS Enquiry Line on 0800 859929
A large print version of this newsletter can be downloaded from our website:
www.icis-info4life.org.uk or sent by email.
ICIS News: Issue No 54, Summer 2010 Page 1 of 32
ICIS : information for life we specialise in finding you help
Services supporting those with cancer
Breast Cancer Care For anyone affected by breast cancer. They bring people together, provide information and support and campaign for improved standards of care. They use their understanding of people’s experience and their clinical expertise in supporting people with, and affected by, breast cancer. Helpline: 0808 800 6000 Switchboard: 0845 092 0800 Email: [email protected] www.breastcancercare.org.uk
Butterflies Breast Cancer Support Group Group for breast cancer patients, family and friends. Meets every other month at the East Worthing Community Centre, Pages Lane, Worthing BN11 2QN. Other events and social activities arranged throughout the year. Tel: 01903 246402 24hr answerphone: 01903 285068 Email: [email protected]
Cancer Buddies Network Website for people with cancer and their relatives, friends and carers. It brings together people for cancer support and friendship, and gives the opportunity to share feelings, experiences and ideas with people who understand. www.cancerbuddiesnetwork.org
Cancer Index website Website aimed at patients, relatives, carers and health professionals, making it easier to find specific information about cancer. Includes a directory of cancer-related sites. www.cancerindex.org
Cancer Journey Cancer information signposting service for anyone affected by any type of cancer. The website has an email enquiry service. Aims to assist in all areas of living with cancer; helpline staff are trained by Macmillan Cancer Support. Helpline: 03033 330003 Email: [email protected] www.cancerjourney.org.uk
Cancer Patients Forum Forum for people who have, or have had, cancer; meets every 6 weeks. Open to people in St. Richard's Hospital catchment area who were cared for by the hospital at some time. St Richard's Hospital Spitalfield Road Chichester PO19 6SE Tel: 01243 831762 Email: [email protected]
Cancer Screening website NHS website with information on the cancer screening programmes for breast, cervical, bowel, and prostate cancer in England. Leaflets have been produced in Braille and on tape in English and translated into various languages. www.cancerscreening.nhs.uk
ICIS News: Issue No 54, Summer 2010 Page 2 of 32 ICIS : information for life we specialise in finding you help Cancerbackup Charity where specialist cancer nurses provide information and emotional support to anyone affected by cancer, including patients, family and carers. Can discuss all aspects of cancer and living with it. Free helpline (translation service available), plus several drop- in centres. Many booklets and factsheets, free to individuals. Macmillan Cancer Support 89 Albert Embankment London SE1 7UQ Helpline: 0808 800 1234 www.cancerbackup.org.uk
CancerHelp Patient information website of Cancer Research UK. This is a free information service about cancer and cancer care for people with cancer and their families. The aim is to make information about cancer available to all and written in an understandable way. www.cancerhelp.org.uk
Cancervive Self-help group for families, friends and colleagues of cancer patients. Several support groups for people from Mid Sussex district meet at 41 Western Road, contact prior to first visit. There are three support groups: one for anyone who knows someone who has been diagnosed with cancer, or who has undergone treatment and not yet recovered; one for those whose loved one's treatment has not proved successful and who are having to come to terms with the outcome. The third group is for those who are dealing with bereavement due to cancer. Each group meets once every three weeks. Telephone helpline for anyone who would like advice or support. 41 Western Road Hurstpierpoint BN6 9SU Helpline: 08454 386418 Alternative Helpline number: 01273 834912 Email: [email protected] www.cancervive.org.uk
CancerWise Support and information to anyone concerned about cancer. The approach is positive and holistic, focusing on relaxation techniques, complementary therapies and gentle exercise such as yoga. Shares tips on how to look and feel good, has information on health, nutrition and lifestyle choices. On Thursdays from 10am to 12 noon there is a get-together for cancer patients and carers with a chance to meet others. Tavern House, 4 City Business Centre Basin Road Chichester PO19 8DU Tel: 01243 778516 Email: [email protected] www.cancerwise.org.uk
Christian Lewis Trust Children's Cancer Charity Aims to improve the quality of life for children with cancer, and to provide emotional and practical support to their families. Family Services include: a confidential 'listening ear' for anyone who is or ever has been affected by a child with cancer; Bereavement support - befriending, self-help parents support groups; Play therapy - play for a child with a life- threatening condition; Holiday programme - crisis breaks via four mobile home sites in Wales for which there is no charge - Disneyland Paris and Disney World Florida at special rates. Discounted UK Mini Breaks and 'day out' excursions. Specialist comprehensive travel insurance contact. 62 Walter Road ICIS News: Issue No 54, Summer 2010 Page 3 of 32 ICIS : information for life we specialise in finding you help Swansea SA1 4PT Tel: 01792 480500 Email: [email protected] www.christianlewistrust.org
Chrysalis Crawley Breast Cancer Support Group Self-help group for men or women affected by breast cancer, whenever or wherever they received their treatment. Partners, family and friends also welcome. Talks from various speakers as well as informal evenings. A Macmillan Breast Care Nurse is usually in attendance. Postgraduate Centre, Crawley Hospital Tel: 01293 512378 www.chrysalisbreastgroup.org.uk
CLIC Sargent (Cancer Care for Children) Support to children and young people with cancer and leukaemia and their families. Help includes funding for specialist doctors, nurses, social workers, family support workers, youth workers, play specialists to provide care, support and advocacy to children and young people with cancers and their families in hospital and at home. Also runs homes to allow parents, children and siblings to stay together near the hospital. Free holidays for families to take a break from treatment in supported settings; grants to help families cope financially. Funds research projects to work on causes and treatments for childhood cancer and manage the side effects that treatment imposes on children. Helpline: 0800 197 0068 Email: [email protected] www.clicsargent.org.uk
Friendly Faces Head and Neck Cancer Support Group Informal support and advice to adults with any kind of facial disfigurement, particularly post-operatively, e.g. through scarring, facial palsy, radiotherapy and on-going treatment. Often has visiting speakers or trips to various locations. Also has one or two social evenings in addition to regular group meetings. Also available to laryngectomee patients. Aims to meet every three months at Worthing Hospital or Homefield Building. Maggie Morley, Clinical Nurse Specialist or Kim Cheetham/Mary-Anne Ley Sisters, Botolphs and Downlands Ward, Maxillo-Facial Outpatients Department Worthing Hospital Worthing BN11 2DH Tel: 01903 205111 ex 4372 or 4501 Email: [email protected]
Friendship Group Support for people and families affected by cancer. Informal group meetings held once a month at different venues, including Postgraduate Medical Centre at Worthing Hospital. Social evenings held each month at MacMillans Bar, Union Place, Worthing. 25 Campbell Drive Rustington BN16 3QR Tel: 01903 770547
Headstart Support group for people who have, or have had, head and neck cancer. Provides a supportive environment and brings people together to share their experiences. The group meets at three venues: Queen Victoria Hospital, Medway Maritime Hospital and Maidstone Oncology Centre every 2-3 months, alternating between sites. Contacts: Pauline Mortimer or Brooke Quinteros c/o Maxillofacial Unit, Queen Victoria Hospital NHS Trust Holtye Road, East Grinstead RH19 3DZ ICIS News: Issue No 54, Summer 2010 Page 4 of 32 ICIS : information for life we specialise in finding you help Tel: 01342 414493 Email: [email protected] Email: [email protected]
Heathers Horsham Cancer Support Informal support group for anyone affected by cancer, including sufferers, family, those bereaved or carers. Drop-ins held 1st and 3rd Monday of each month. Also has an information service with someone available over the phone at most times. Occasional visiting speakers give talks. Also provides buddying, befriending and other support as needed. Unitarian Church Hall, Worthing Road, Horsham Tel: 01403 250816 Sue Evans: 01403 823858 Yvonne Woolger: 01293 512378 Email: [email protected]
InsureCancer Underwrites insurance policies for those living with cancer. Provides cover for those with active, metastatic, relapsed or terminal cancer to destinations worldwide including North America. A key requirement is that holiday makers should be clinically stable and be travelling with the consent of their specialist Consultant. Quotes: 01252 780190 Email: [email protected] www.insurecancer.com insurepink Travel Insurance Provides travel insurance for those affected by breast cancer as well as general travel insurance. Tel: 0800 022 3213 Email: [email protected] www.insurepink.co.uk
LEUCAN Support group for families with children who have cancer, leukaemia or haematological conditions. Offers emotional support and practical advice for all the family. Organises social events for families who wish to meet others in informal situations to exchange experiences and provide encouragement to each other. 9 Darlington Close Angmering BN16 4GS Tel: 01903 775756 Email: [email protected] www.leucan.org.uk
Lymphoma Association Support for people with lymphatic cancer, Hodgkin Lymphoma (HL) and non-Hodgkin Lymphoma (NHL). Provides emotional support and information on diagnosis, treatment, therapies and coping with these illnesses; patient to patient telephone links; local support groups in some areas. Quarterly newsletter - Lymphoma News. Freephone Helpline: 0808 808 5555 Email: [email protected] www.lymphomas.org.uk
Macmillan Cancer Support Provides practical, medical, emotional and financial support. As well as providing help and social care professionals (Macmillan Nurses) the support provided includes CancerLine and information services in hospitals, libraries and the community. Also provides benefits advice services, Macmillan grants and support to carers. Macmillan supports a network of ICIS News: Issue No 54, Summer 2010 Page 5 of 32 ICIS : information for life we specialise in finding you help self-help and support groups and provides information in different languages: Hindi: 0808 808 0100; Punjabi: 0808 808 0101; Urdu: 0808 808 102 Cancerline Mon-Fri,9am-9pm: 0808 808 2020 Textphone: 0808 808 0121 Switchboard: 020 7840 7840 Youth line: 0808 808 0808 Specialist Nurse Line: 0808 800 1234 Email: [email protected] www.macmillan.org.uk
Macmillan Nurse - Surrey and Sussex NHS Trust Cancer Support Nurses have specialist expertise in symptom control and emotional support. They can offer advice, information, guidance and support to people with cancer and other progressive illnesses, their family and professionals. The Cancer Services Secretary can provide contact details for a specialist nursing team. Macmillan Cancer Services Secretary Tel: 01737 768511 Ext 6684 Email: [email protected]
Macmillan Specialist Palliative Care Service – Midhurst Specialist advice and support for patients with advanced illness and their families in the community. Provides advice to other healthcare professionals and training and education for doctors, nurses and social workers. Offers bereavement support to carers and families of patients referred to the Macmillan service. Also offers a volunteer service available to support those patients and families registered with the Macmillan service, which includes a transport service for patients and relatives, where appropriate. Midhurst Community Hospital Dodsley Lane, Midhurst GU29 9AW Tel: 01730 811121
Marie Curie Nursing Service The service (subject to availability) is primarily for cancer patients and their families, but may also be accessed by patients with other life-limiting conditions needing end of life care. Patients need to be registered with a GP in Adur, Arun East or Worthing. The service is provided free in the patient's own home. Care is given by registered nurses and health care assistants, who offer support, advice and physical care. The service is co-ordinated through Marie Curie's Referral Centre, based at Pontypool. Informal enquiries welcomed. 1 The Causeway, Goring by Sea Worthing BN12 6BT Tel: 01903 708519
The Mary How Trust for Cancer Prevention Provides a health screening service in Pulborough. As the Trust makes no charge for this service, it relies on donations from the public and fund-raising events. Contact for information and to make an appointment. Cannot screen pregnant women. Pulborough Primary Care Centre Spiro Place, Pulborough RH20 1FG Tel: 0845 241 0956 Email: [email protected] www.maryhowtrust.org
My New Hair - by salons that care Supports and trains a national network of independent salons and professionals who provide a wig styling service for people suffering from cancer and medical hair loss. The website has a directory showing local salons and also provides information and advice about wearing wigs. ICIS News: Issue No 54, Summer 2010 Page 6 of 32 ICIS : information for life we specialise in finding you help Tel: 01798 812547 Email: [email protected] www.mynewhair.org
Oesophageal Patient's Association website Support and information for patients with cancer of the oesophagus, and their families. Helpline - Mon-Fri, 9am-5pm: 0121 704 9860 Email: [email protected] www.opa.org.uk
The Olive Tree Cancer Support Centre For cancer patients and their families. Offers information, support, a telephone helpline, discussion groups, support groups, counselling and complementary therapies including: art therapy, acupuncture, aromatherapy, spiritual healing, reflexology, reiki and yoga. Bereavement support is also available. Crawley Hospital, RH11 7DH Helpline: 01293 534465 General Enquiries: 01293 534465 Email: [email protected] www.olivetreecancersupport.org.uk
PCaSO Prostate Cancer Network Free confidential help and support through a helpline, newsletters, publications, library, website and meetings. Regular meetings are held in Chichester, Rustington, Fareham, Southampton and Basingstoke. Also has a Wives and Partners Support group, contact details available from the website. Helpline: 0845 650 2555 Email: [email protected] www.pcaso.com
PSA Prostate Cancer Support Association National helpline service. Provides support and information to all people affected by prostate cancer. Local support groups; monthly meetings and fundraising activities. A patient-led charity with membership open to all those affected by prostate cancer. Tel: 0845 601 0766 [email protected] www.prostatecancersupport.info
SCAN UK Charity which promotes greater awareness of stomach cancer in order to bring about early diagnosis and treatment. Aims to provide up-to-date information to the general public, health professionals and medical research teams. Welcomes information from people who have had, or have experience of, gastric cancer, especially those who care for patients and their families. The website has information about symptoms and causes as well as new advances in treatment. 32 Victoria Road, Southwick BN42 4DH Tel: 01273 233817 www.scanuk.org.uk
Sussex Cancer Network website For people receiving treatment or care within Sussex or who care for someone who does. Website contains information about specific cancers, about what patients can expect in terms of investigations, diagnosis or treatment, how to find each hospital or service and where to find a support group. Email: [email protected] www.sussexcancer.net ICIS News: Issue No 54, Summer 2010 Page 7 of 32 ICIS : information for life we specialise in finding you help TIC - Teen Info on Cancer website Gives cancer information written specifically for teenagers, advice and support on how to cope with cancer, and the space to share experiences of cancer with other teenagers. The site provides information on understanding cancer, coping with the effects of cancer or treatment and depression, and offers the opportunity to contribute your own ideas and share your own experiences in your own personal website. www.click4tic.org.uk
Tuesday Fan Group Group for women newly diagnosed with breast cancer. This is a small group with a maximum of 15 people. Patients stay in the group until they feel ready to move on. Access to the group is through the Breast Care Team at Worthing Hospital and each person has an individual initial session before joining. Tel: 01903 285068
Wessex Cancer Trust MARCS Line National telephone helpline providing support and information on matters relating to skin cancer (Melanoma and Related Cancers of the Skin - MARCS). A voluntary Professional Nurse Network acts as a contact for callers at a local level. Helpline: 01722 415071 Email: [email protected] www.wessexcancer.org
Worthing Upper GI Cancer Support Group Support group for people who are having treatment for oesophageal or stomach cancer or who have had upper gastrointestinal surgery. Tel: 07900 140967 Email: [email protected]
Support for Carers
Age UK (formerly known as Age Concern and Help the Aged) International charity fighting to free disadvantaged older people from poverty, isolation and neglect both at home and abroad. Services provided in the UK include: SeniorLine - a freephone information service for older people covering welfare, disability benefits, finance, housing, care in the community, safety, access to health services, etc. Care fees advice provided in partnership with Nursing Home Fees Agency Ltd. Also produces a range of free advice factsheets. SeniorLink - telephone-based alarm service providing 24hr access to a centre which can arrange emergency assistance, or offer reassurance or companionship. SeniorLine: 0808 800 6565 Email: [email protected] Care Fees Advice: 0500 767476 SeniorLink Alarm: 0845 603 4576 Head Office: 020 7278 1114 Email: [email protected] www.helptheaged.org.uk
Alzheimer's Society - Central Sussex Branch Support, information and advice on all aspects of dementia, as well as information on benefits and legal matters for carers. Has a listening service for carers. Contact the local Helpline and leave name and number; trained operators will return the call. Oasis Clubs
ICIS News: Issue No 54, Summer 2010 Page 8 of 32 ICIS : information for life we specialise in finding you help provide respite to carers for people with dementia on 1st and 3rd Saturdays in Crawley, and on 2nd and 4th Sundays in Horsham. Horsham Dementia Outreach Service provides support, advice and information to people with dementia and their carers living in the Horsham District. Support groups for carers of people with dementia and their families currently operating in Crawley (1st Wed of each month), Horsham (3rd Tues of each month) and Steyning (4th Tues of each month). Dementia awareness courses for carers of people with dementia. Training Workshops in Dementia Care available for people working in the care sector. Access to a large library of information, videos and cassettes that may be of interest to people with dementia and their carers. Contact: Sue Rennie, Branch Manager The Orchard, 1-2 Gleneagles Court Brighton Road Crawley RH10 6AD Helpline: 01293 519944 General Enquiries: 01293 657070 National Helpline: 0845 3000336 Email: [email protected] www.alzheimers.org.uk
AMAZE Support and information to parents of children with special needs (physical, illness, learning difficulties, emotional or behavioural difficulties). Runs courses on bringing up children with special needs for parents and professionals working together. Provides one- to-one support with educational issues, regular public meetings and workshops as well as support groups. Has a volunteer scheme which covers Brighton and Hove where volunteers can visit a parent to help with form filling (eg DLA), meetings with schools and education authorities and providing general educational support. Produces handbooks and leisure factsheets containing local information about services for children and young people with special needs. Can provide parents with a Compass Card entitling the child to free or reduced entrance to local attractions. Community Base, 113 Queens Road Brighton BN1 3XG Helpline Tel: 01273 772289 Email: [email protected] www.amazebrighton.org.uk www.thecarer.co.uk Website offering a reference point on the practicalities and emotional needs of caring. Provides information and advice on caring; covers all aspects of life such as finding help and support, financial aid and organising accommodation. Covers what the role of being a carer actually entails, including articles on specific types of caring such as caring for a spouse and caring for a friend or neighbour.
Carers Connect Website for both carer and care sector worker. Offers a place online to relax and take some recreational time. For those engaged in the care sectors, the site is intended to help workers develop strengths from a supportive network. The idea is that both communities can draw from each other’s experiences. www.carersconnect.com
Carers Direct Free, confidential information and advice for people in a caring role who want to talk to someone about what options are available. Helpline advisers can give information to help make decisions about personal support needs and the needs of the person being looked after. This can cover assessments, benefits, direct payments, individual budgets, time off and maintaining, leaving or going back to work or education. The staff can complain if ICIS News: Issue No 54, Summer 2010 Page 9 of 32 ICIS : information for life we specialise in finding you help anything goes wrong with any of the services carers use or with their contact with a local authority. The helpline does not provide personal, financial, medical or legal advice; it cannot provide casework, advocacy, representation, counselling or emotional support. The helpline advisers can put callers in touch with specialist national or local sources of help including social care, health and self-help networks and resources. Language Line available which is a telephone translation and interpreting service This three-way conferencing facility enables helpline advisers to communicate through a trained interpreter, making Carers Direct accessible to people whose first language is not English. Tel: 0808 802 0202 Email: [email protected] www.nhs.uk/carersdirect/Pages/CarersDirectHome.aspx
Carers Emergency Alert Card scheme - West Sussex A free scheme for people who look after an adult or child who depends on them because they are ill, have a disability or are frail. Carers are provided with a card that identifies them as a carer and includes the number of a 24-hour emergency alarm centre that can be alerted if the carer is involved in an accident while they are away from the person they care for. ICIS : information for life 35 Worthing Road East Preston BN16 1BQ Tel: 01903 859929 Email: [email protected] www.icis-info4life.org.uk/ForCarers/carerscard.htm
Carers Support Group - Bognor Regis Group providing an opportunity for carers to meet, share ideas and gather information on local services. The group has regular speakers and meets at the Quaker Meeting House, 6 Victoria Drive, Bognor once a month. Contact: Beryl Richards Carers Support Service 60a North Street Chichester PO19 1NB Tel: 01243 537011 Email: [email protected] www.carerssupportservice.org.uk
Carers Support Group - Eating Disorders Support group in Worthing for carers of people with eating disorders. Contact: Julie Appleton 49 St Lawrence Avenue Worthing BN14 7JJ Tel: 01903 230625 Email: [email protected]
Carers Support Group - Mental Health, Burgess Hill Support group for carers of adults (18-65) with severe or enduring mental health problems who live in and around the Burgess Hill and Haywards Heath area. Meetings held once a month at Summerfold Community Mental Health Centre, 152 Leylands Road, Burgess Hill. Linwood Community Mental Health Centre Butlers Green Road Haywards Heath RH16 4BE Tel: 01444 416606
ICIS News: Issue No 54, Summer 2010 Page 10 of 32 ICIS : information for life we specialise in finding you help Selsey & District Carers Support Group A group of carers and former carers who get together to support each other, share ideas, exchange information and promote the improvement and recognition of the caring role. Meetings are held monthly for tea, chat and respite and includes speakers and demonstrations on alternate months. Special events are arranged for both carers and the people they care for; Helpline service available at all times. St Wilfrid's Church Hall Ellasdale Road Selsey PO21 2SG Mobile: 07977 382503 Carers helpline 24 hours: 01243 601039 Email: [email protected] www.selseycarerssupport.org.uk/
Carers Support Group - Witterings An informal group of carers who meet to support each other. Various events, outings and guest speakers are arranged during the year. Richardson Room Church Hall, Church Road East Wittering June Stadius, Chairman - Tel: 01243 672358 Valerie Bennett, Secretary - Tel: 01243 572621
Carers Support Service - Bognor Regis, Chichester & Rural Supports carers by providing up up-to-date information on local services in the Chichester District and West Arun. Organises social, training and information events for carers. Gives carers a voice in planning services. Helps carers to meet and support each other. Gathers information on the services carers want. Produces a Carers Information Pack, available upon request, together with a quarterly newsletter. The service can also provide carers with a one-to-one interview, emotional support and telephone support call-back service. Support Workers are available for people caring for someone with mental health problems, of working age or who look after someone with learning difficulties. Is able to offer carers the opportunity to apply for grants for short breaks and also a selection of grants available through the Princess Royal Trust for Carers. 60a North Street Chichester PO19 1NB Helpline: 01243 537011 Emotional Support for Carers: 01243 782561 Telephone Call Back for Carers: 01243 780712 www.carerssupportservice.org.uk
Carers Support Service - Male Carers Group, Worthing and District Male carers group which meets twice monthly for socialising, mutual support, problem- solving and exchange of experiences. They have a wide-ranging programme of events including speakers, pub lunches, walking, visiting places of interest and meetings at Methold House. Activities are held in the Littlehampton and Worthing areas. Contact: Ian Stuart Methold House North Street Worthing BN11 8DU Tel: 01903 528600 Email: [email protected] or [email protected] www.carerswsx.org.uk
ICIS News: Issue No 54, Summer 2010 Page 11 of 32 ICIS : information for life we specialise in finding you help Carers Support Service - Mental Health Carers Support, Bognor Regis, Chichester and Rural Support for people caring for someone of working age with a mental health difficulty. Provides one to one support, information on services available to the carer and cared for, informal advocacy, social support groups and events, information sessions and access to funding for respite from the caring role. Support group for carers of someone with eating disorders meets monthly. Contact: Sarah Robinson, Senior Mental Health Carers Support Worker Carers Support Service 60a North Street Chichester PO19 1NB Tel: 01243 380937 Email: [email protected] or [email protected] www.carerssupportservice.org.uk
Carers Support Service - North and Mid Sussex Support for carers in the Horsham, Crawley and Mid Sussex areas. Provides information on a one to one basis or via a regular newsletter and information booklet on local and national support services. Helps to get services for carers and the people they care for, assistance in completing forms, providing individual assistance grants, running support groups, healthy carers sessions and discounted complementary therapies for registered carers, and short breaks funding. Provides a voice for local carers in the planning of services through local information days and workshops to identify carers' needs and gaps in services. Issues and concerns are then taken to various strategic planning and implementation arenas. Services include: Emotional support service, offering call back and one-to-one counselling; Specialist worker for carers of people with learning difficulties; GP- attached support workers and Hospital support workers; Mental Health carers support worker specialising in supporting carers of adults (16-65) with a functional mental illness - Tel: 01293 657043. The Orchard, 1-2 Gleneagles Court Brighton Road Crawley RH10 6AD Tel: 01293 657040 Email: [email protected] www.carerssupport.org.uk
Carers Support Service - Worthing & District Support and information for people looking after someone who is ill, frail or has a disability. Has support workers for carers of working age adults with a mental health difficulty, and a learning difficulty carers support worker (Martina Osei-bobie). Also provides telephone support and access to free counselling via the Emotional Support Service. Will give information and support for carers of people considering nursing, residential or non- residential care or advice on respite via the Relatives Support Service. Produces a newsletter for carers giving news and information such as training opportunities, new services and benefit changes. Will provide carers with a Carers Information Pack of health, social care and voluntary services on request. Holds regular carers activities including back care workshops, gentle exercise, pampering days, open meetings. Healthy Living Centre for older people and carers includes low-cost and free activities such as computer tuition, hairdressing, healthy walks, handicrafts, complementary therapies. Access to Princess Royal Trust for Carers individual grants; and details of local carers groups. Methold House, North Street Worthing BN11 1DU Enquiry Line: 01903 536378 Admin: 01903 528600 Email: [email protected] www.carerswsx.org.uk ICIS News: Issue No 54, Summer 2010 Page 12 of 32 ICIS : information for life we specialise in finding you help Carers UK Campaigning organisation providing information and advice on all aspects of caring to both carers and professionals. UK-wide network of offices, branches and individuals offer support to carers and provide feedback on local practices and policies towards carers. CarersLine: Weds & Thurs 10am-12 noon and 2pm-4pm. Confidential free advice line for carers staffed by experts advising on welfare rights, benefits and community care issues. Carers' Rights information packs available. Contact: Jean French, Advice and Information Manager Carers Line: 0808 808 7777 Admin: 020 7378 4999 Email: [email protected] www.carersuk.org
Children with Caring Responsibilities (Young Carers) Support for children and young people with caring responsibilities, up to the age of 18. One to one support available, as well as groups for young carers; initial contact should be made by telephone. Young Carers Workshops for ages 10-16, with full-day activities during school holidays. KIDS ALOUD Young Carers Group in Crawley; and Bognor Young Carers Group. Funding may be available to enable children with caring responsibilities to take part in local interest groups such as sports, drama clubs, Guides and Scouts or to have a day out with their family. Contact: Lorraine Butcher, Project Manager Family Resources Team, Cedar House 51 Chesswood Road Worthing BN11 2AA Tel: 01903 236562 Email: [email protected]
COPE - Carers Offering Personal Experiences Group of people who have all cared at home for friends or family members. Trained by West Sussex Adults Services, they design and develop training courses and give talks to aid the training of health and social care professionals by sharing their experiences. Contact: Roy Hayward Tel: 01444 416336 Email: [email protected]
Crossroads Care West Sussex Services for carers with fully trained and vetted staff: Home respite service for adults of up to 4 hours per week (longer periods can be negotiated); Night sitting service of up to 10 hours, one night per week, for carers who experience disturbed sleep at night; Social clubs providing carers with a 5-6 hour break in the Balcombe, Horsham and Bognor areas; Social club in Balcombe for people with early onset dementia. All of the above are subsidised by WSCC Adult Services and hourly charges apply. Also provides a home respite service for children with disabilities in the Worthing area, subsidised by WSCC Child Disability Team, and home support for children with disabilities living outside the Worthing area of up to 4 hours per fortnight, subsidised through the Aiming High project for WSCC Child Disability Team. 2nd Floor, 76 Bersted Green Court Hazel Road Bognor Regis PO22 9DY Tel: 01243 830797 or 01243 864600 Email: [email protected] www.crossroads.org.uk/westsussex
ICIS News: Issue No 54, Summer 2010 Page 13 of 32 ICIS : information for life we specialise in finding you help Crossroads Care West Sussex - Neil's Club Weekly social and activities club in the Balcombe area for people with dementia; also holds a regular carers' support group. Provides emotional, physical and social care and aims to enable members to enjoy themselves in an environment that fosters self-respect, dignity, independence and comfort. Lunch is at local venues. Booking essential. Rachel Whitlam Tel: 01403 258015 Mobile: 07769 578891
Emergency Respite Care Scheme A West Sussex scheme providing emergency care for a person if their carer becomes ill or is involved in an accident. Care can be provided for up to 48 hours (72 hours over a weekend or bank holiday) to enable the person to stay safely in their home until the emergency is over or until other care arrangements can be made. To apply for an Emergency Plan contact Crossroads at. Tel: 01403 243924 Email: [email protected] www.westsussex.gov.uk/ccm/content/social-care-and-health/carers/carers-emergency- respite-care-scheme.en
Emotional Support for Carers - North and Mid Sussex Free one-to-one counselling sessions and telephone call-back service for carers in the Horsham, Crawley and Mid Sussex areas. Lyn Chappell, Co-ordinator Jane Burt, Senior Mental Health Carers Support Worker The Orchard, 1-2 Gleneagles Court Brighton Road Crawley RH10 6AD Tel: 01293 657040 Email: [email protected] www.carerssupport.org.uk
Emotional Support for Carers - Western West Sussex Counselling service offered in three locations. A free and confidential service is provided for unpaid carers who feel that they may benefit from talking to someone in confidence. Telephone support worker offers free call back service to the carers' home at a convenient time for the carer. Also provide some complementary therapies to carers. Caroline Hedicker, Service Co-ordinator 60a North Street Chichester PO19 1NB Carers Support Line: 01243 780712 Emotional Support for Carers: 01243 782561 Email: [email protected] www.carerssupportservice.org.uk/pages/emotionalSupport.html
Emotional Support for Carers - Worthing & District Offers free face to face confidential counselling for carers and former carers. Trained volunteer counsellors can help to explore feelings about being a carer and help to reach a better understanding of the caring situation. Sessions last for one hour with regular weekly appointments. Offers both brief therapy and longer term counselling. Methold House, North Street Worthing BN11 1DU Tel or Fax: 01903 528629 Email: [email protected] www.carerswsx.org.uk/emotional_support.htm
ICIS News: Issue No 54, Summer 2010 Page 14 of 32 ICIS : information for life we specialise in finding you help FirstStop Care Advice An independent, free service providing advice and information for older people, their families and carers about care and housing options in later life. FirstStop also offers information for carers looking for support and advice, as well as an information service for carers covering care, housing, finance and rights. Helpline: 0800 3777 070 www.firststopcareadvice.org.uk/
Friends of Carers - Mid Sussex Aims to provide a friendly social gathering on a regular basis for both carers and ex-carers in Burgess Hill, Haywards Heath and Hassocks areas. Formerly part of Carers UK. Sarah Tapp Tel: 01444 453397 Email: [email protected]
Funding for Caring Resource for anyone requiring information on the cost of care, whether for themselves or for someone else. Gives information on benefits, grants and other financial help, as well as information on costs and financial planning. They aim to provide information that is clear and easy to understand. www.fundingcaring.co.uk/ www.direct.gov.uk/carers Government website for carers, providing a single point of access to government information and services, including Carer's Allowance, carers' assessments and other support.
GP Attached Carers Support Service - Crawley, Horsham and Mid Sussex Service providing regular attendance at all GP surgeries in Crawley, Horsham and Mid Sussex, providing support and a listening ear for carers. Also provides information on caring issues such as respite care, domiciliary care, equipment etc; will put carers in touch with other sources of help. The service is aimed at carers over the age of 18. The Orchard, 1-2 Gleneagles Court Brighton Road Crawley RH10 6AD Answerphone: 01293 657046 General Office: 01293 657040
Information, Drop-in and Support Centre for Carers - Selsey Offers information, emotional or practical support, or just a friendly face, tea and a chat. Provides information for carers about services, support groups and help available locally. Other services include a befriending service and an occasional free taxi service to medical appointments. 109 High Street Selsey PO20 0QB Carers helpline 24 hours: 01243 601039 Tel - Office and Business: 01243 603602 Mobile: 07977 382503 Email: [email protected] www.selseycarers.org.uk
Kiloran Trust Registered charity offering respite to full-time carers with a five night break in their West London house. The atmosphere is intended to be informal, friendly and relaxed. Kiloran can help set up arrangements to get the cost of the stay covered for those on low benefits. Contact: Norma Graham, Manager ICIS News: Issue No 54, Summer 2010 Page 15 of 32 ICIS : information for life we specialise in finding you help 157 Blythe Road London W14 0HL Tel: 020 7602 7404 Email: [email protected] www.kilorantrust.org.uk
Maidenbower Day Centre - Carers' Saturday Service Scheme for carers of adults in the Crawley, Horsham and Mid Sussex areas. Carers are able to leave the person they care for to enjoy structured activities while they have a break themselves. Alternatively, carers may stay to enjoy the day with the person they care for. Lunch is included; the service can be used for all or part of the day. Priority will be given to those not already receiving day care services. The scheme operates on the 2nd and 4th Saturday of each month. Assistance with personal care and medication can be provided. Contact: Liz Bassett Harvest Road, Maidenbower Crawley RH10 7RA Tel: 01293 885156 / 01293 881815 / Tel: 01293 885167 Email: [email protected]
National Carers Forum Message board for carers. The forum is a place for carers to make friends, talk about their everyday problems and to get information on benefits, equipment and holidays, etc. Also campaigns on issues related to carers and older people. Contact: Tony Rhodes Mobile - Carers Contact: 07906 165632 Email: [email protected] www.nationalcarersforum.co.uk
Parent and Carers Support Organisation - Chichester (PACSO) Provides recreation activities to meet the varying needs of disabled children and young people. Events are held in Bognor and Chichester. Activities include Saturday Club for ages 5-11, Arun Saturday Club for ages 5-19, Energy Club from 12-19 and After School Club, Play Days and Playschemes for all ages. Holds free coffee mornings for parent carers. Contracted under the Aiming High for Disabled Children Scheme to provide a weekly two hour buddying scheme for eligible young people aged 13-18 in the Arun and Chichester areas who do not have moving and handling needs. PO Box 58 Chichester PO19 8UD Tel: 01243 533353 Email: [email protected] www.pacso.org.uk
Parent Carers Support Group - Crawley, Horsham and Mid Sussex Support for parents of children with special needs which meets on alternate months at The Tree, except during summer holidays. Contact: Ann Boss The Orchard 1-2 Gleneagles Court Brighton Road Crawley RH10 6AD Tel: 01293 657040 Email: [email protected] www.carerssupport.org.uk
ICIS News: Issue No 54, Summer 2010 Page 16 of 32 ICIS : information for life we specialise in finding you help Phone Support for Carers Confidential telephone support line for carers and former carers in the Adur, Arun, Chanctonbury and Worthing areas manned by volunteers. The service provides a one-to- one call-back service to carers in their own home. Offers carers an opportunity to discuss their caring role or just to have a friendly chat. Calls by arrangement, weekly, fortnightly or monthly. Methold House, North Street Worthing BN11 1DU Tel: 01903 528629 Email: [email protected] or [email protected] www.carerswsx.org.uk/emotional_support.htm
Relatives Support Service Project run by the Carers Support Service for carers considering residential care for the person they care for, or who have someone in residential care. Can also offer information on residential respite, and home care for people who are self-funding. Contacts: Sally Male / Cheryl Francis c/o Carers Support Service Methold House, North Street Worthing BN11 1DU Relatives Support: 01903 528604 Carers Support Service: 01903 536378 Email: [email protected] www.carerswsx.org.uk
Respite Service Respite service covering Adur, Arun and Worthing. Works in partnership with carers to offer help to people of all ages who have mental health problems. The service is an innovative way to meet people's needs and offers an assessed, activity-based service which provides a break away from the home. Contact: Pauline Russell, Service Co-ordinator c/o The Corner House Resource Centre 45 Southwick Street Southwick BN42 4TH Tel: 01273 871573 Email: [email protected] www.corner-house.org.uk
Telephone support for carers of people with Multiple Sclerosis Support and advice to anyone caring for people with MS. Contact: Jenny Stewart 44 Burnside Crescent, Sompting Lancing BN15 9TJ Tel: 01903 761891
Wellspring West Sussex Registered charity for children and young people with disabilities and special needs, and their parents and carers in West Sussex. A free newsletter is produced regularly providing information about local and national services, leisure opportunities and articles focusing on issues of interest. The newsletter aims to inform and provide a means of dialogue between parents, carers, young people and service providers in the county. 26 Goldsmith Road Worthing BN14 8ER Tel: 01903 203657 Email: [email protected] www.wellspringwestsussex.org.uk ICIS News: Issue No 54, Summer 2010 Page 17 of 32 ICIS : information for life we specialise in finding you help West Sussex Carers Website (also known as: West Sussex Carers Online Project). Website providing information and help for carers and ex-carers in West Sussex. Information about caring and caring concerns, searchable database of local support and services, links to national services, young carers section, news pages, books, carers stories and more. Tel: 01903 859928 Email: [email protected] www.westsussexcarers.org.uk
West Sussex Forum Ltd Forum of local independent providers of care which can provide people with a list of member nursing and residential care homes in their local area. Can also provide a list of questions to ask when visiting homes and general information and advice. Members of the Forum can offer a range of respite breaks, including those where the carer and cared for go together. A weekly Bed Vacancy Register is administered by the Forum and used by Social Workers and the public when seeking a suitable residential or nursing home. Office 1, Chandos House 12-21 Chandos Road Worthing BN11 1TJ Tel: 01903 202100 Email: [email protected] www.caringinfo.com
Support for Victims
Anti Bullying Alliance website Provides links to a wide range of resources for parents, children, teachers and other professionals. Brings together over 60 organisations with the aim of reducing bullying and creating safer environments in which children and young people can live, grow, play and learn. It hosts the latest news on developments in the field including publications, surveys, training events, and conferences. http://www.antibullyingalliance.org
BrakeCare Supports people affected by road accidents as well as for professionals and volunteers who care for people affected by road crashes. The organisation believes that everyone who has been bereaved or seriously injured in a road crash, and their carers and family, has a right to free, effective support to enable long-term recovery and rehabilitation. Helpline: 0845 603 8570 www.brake.org.uk
Bully Online Information and advice on types of bullying, bullying tactics and how to deal with bullying, particularly in the workplace. Also provides information on related topics including school bullying, stress, trauma, Post Traumatic Stress Disorder and suicide. Email: [email protected] www.bullyonline.org
Criminal Justice System Online website Website for those who have come into contact with the criminal justice system as a victim of crime, a witness or a juror or you have been accused or convicted of a crime. It includes information about what is likely to happen next, which organisations you will come into
ICIS News: Issue No 54, Summer 2010 Page 18 of 32 ICIS : information for life we specialise in finding you help contact with and who you can get in touch with for further help and support. Information is included about the Criminal Justice System in England and Wales and leads on key priorities of reducing crime and administering justice in the local area. www.cjsonline.gov.uk
Enough Abuse Child protection agency giving education and parental guidelines for identifying and managing issues created by the grooming and sexual abuse of children under the age of 16. A signpost group is used as a helpline supporting families who discover a child has been sexually groomed and abused. Guideline booklet available for those whose remit is to care for children. The book: 'Never Take No For An Answer' written by Marilyn Hawes, Director of Enough Abuse, tells her personal story and emotions she experienced as a non- abusing mother discovering her best friend had groomed and abused her sons. PO Box 30, Martock Post Office East Street, Martock Somerset TA12 6JQ Contact: Marilyn Hawes, Director Mobile - Elaine MacKenzie: 07775 603921 Mobile - Lisa Hooper: 07970 010361 Email: [email protected] www.enoughabuse.co.uk
Government - Foreign & Commonwealth Office website Services provided: The Forced Married Unit - advice and support on forced marriages; Child Abduction Section - advice and support on international child abduction; support and help for British Nationals abroad with the death of relatives overseas, missing people and kidnapping, or if you have suffered rape or serious assault. Can provide details of local lawyers, interpreters, doctors and funeral directors. www.fco.gov.uk
National Association for People Abused in Childhood (NAPAC) Information and support for adult survivors of childhood abuse through free support line. Support Line: 0800 085 3330 Email: [email protected] www.napac.org.uk
Parents, Professionals & Politicians Protecting Children with Illness and/or Disability Organisation formed by parents of children with an illness or disability who have been falsely accused of over-anxious parenting or similar forms of supposed child abuse, and concerned and supportive professionals and politicians. They raise issues in Parliament and support wrongly-accused parents where possible. So far the support has mostly been supplying documents for parents to show to officials in order to show that their cases are not unique and that these issues are of concern in Parliament and elsewhere. www.parents-protecting-children.org.uk
Sussex Police Sussex Police is divided into five divisions each led by a Divisional Commander. These areas are further split into districts which follow Sussex's local authority boundaries and are policed by District Commanders. West Downs (Arun, Chichester, Adur & Worthing); North Downs (Crawley, Horsham, Mid-Sussex); Brighton and Hove (Central, East, West); Gatwick; East Sussex (Eastbourne, Lewes, Wealden, Hastings and Rother). To contact any of the districts by email, insert their name followed by @sussex.police.uk, e.g. [email protected] .The names, photographs and details of local neighbourhood officers are available on the website by typing in a postcode. Tel: 0845 607 0999 SMS: 07786 208090 ICIS News: Issue No 54, Summer 2010 Page 19 of 32 ICIS : information for life we specialise in finding you help Crimestoppers: 0800 555 111 Anti-Terrorist Hotline: 0800 789321 Email: [email protected] www.sussex.police.uk
Rape & Sexual Abuse Support Centre - Guildford Confidential telephone helpline available to male and female survivors of rape and sexual abuse in Surrey and surrounding counties. Also provides face to face counselling on a donation basis for 16+. Self-help groups and counselling for families and partners supporting a partner. Helpline: 01483 546400 Tel - Office and Admin: 01483 452900 Email: [email protected] www.rasasc-guildford.org
Rape Crisis Centres website Website information about rape and sexual violence and details of nearest Rape Crisis Centre for anyone needing support. There is also information for family, friends, students and professionals. Email: [email protected] www.rapecrisis.org.uk
The Roofie Foundation website Specialised agency dealing with issues surrounding drug-rape and sexual abuse through drink spiking. Helpline: 0800 783 2980 www.roofie.com
Safeline Helpline for adults and young people suffering the after-effects of the trauma of childhood sexual abuse and rape. Services are open to partners, carers, parents and anyone who has been affected. Safeline Helpline: 0808 800 5005 Office: 01926 408315 Email: [email protected] www.safelinewarwick.co.uk
Support After Murder & Manslaughter (SAMM) - South East Offers understanding and support in confidence to families and friends bereaved through murder or manslaughter as well as to promote and support research into the effects of murder and manslaughter on society. Has information about the judicial system to members and provides support by telephone, newsletters and visits where necessary. Meetings held at Sofitel Hotel, Gatwick. Contact: Joan I. Martin, Trustee/Co-ordinator 46 Beeches Avenue Worthing BN14 9JF Tel: 01903 239860 Email: [email protected] www.samm.org.uk
Teachernet (also known as: Don't Suffer in Silence, DFES bullying website) Government website primarily for teachers and schools with information on bullying and how to tackle it. www.teachernet.gov.uk/wholeschool/behaviour/tacklingbullying www.parentscentre.gov.uk/educationandlearning/schoollife/ifthingsgowrong/bullyingproble ms ICIS News: Issue No 54, Summer 2010 Page 20 of 32 ICIS : information for life we specialise in finding you help The Saturn Centre Provides services to men or women who have been raped or sexually assaulted. Clients do not have to be referred by a third party but need to ring first to make an appointment. On arrival they spend time with a support worker, talking in confidence about their options and answering any questions they may have. Support and services can be offered whether or not the police are involved. All services are confidential but there is a legal duty to share information with police and/or Children’s Social Care if a child or young person is considered to be at risk of significant harm. Clients will be able to make choices at all times on what happens to them. Lower Ground Floor Crawley Hospital West Green Drive Crawley RH11 7DH Tel: 01293 600469 www.saturncentre.org
Unity Injustice website Supports families who have been accused of abusing their children and have subsequently lost their children to adoption through the action of Social Services. The group helps to protect parents from the action of poor Social Services teams, return children to their original families if possible and as soon as possible, to allow them later in life to contact their original families, and to prevent fostering agencies from profiting from this system. www.unity-injustice.co.uk
Victim Support - Sussex Area Office Offers emotional support and practical help to victims of crime. Provides a visitor and telephone service, information and advice on issues as compensation, insurance and court procedures. Can help with applications to the Criminal Injuries Compensation Authority (CICA). Unit 11, Riverside Business Centre Brighton Road Shoreham-by-Sea BN43 6RE Tel: 0845 389 9528 Tel - Support Line: 0845 303 0900 www.victimsupport.org.uk
Victim Support Sussex - North Branch, Crawley, Horsham and Mid Sussex Provides emotional support and practical advice to victims of crime, including support services for completion of criminal injuries compensation. Covers Crawley, Horsham, Mid Sussex and Chanctonbury areas. Can help with applications to the Criminal Injuries Compensation Authority. Contact: Brenda Henson, Volunteer & Community Liaison Manager PO Box 101 Crawley RH10 8UA Enquiries - 9am-5pm: 01293 613010 Referrals - 8am-8pm: 0845 389 9528 Email: [email protected]
Victim Support Sussex - West Branch, Chichester, Bognor, Littlehampton, Worthing and Adur Offers victims of crime emotional support and practical help. Provides a visitor and telephone service, information and advice on such issues as compensation, insurance and court procedures. Can help with applications to the Criminal Injuries Compensation Authority. Contact: Diane Willson, Manager Bognor Regis Police Station ICIS News: Issue No 54, Summer 2010 Page 21 of 32 ICIS : information for life we specialise in finding you help London Road Bognor Regis PO21 1BA Tel: 0845 3899528 Email: [email protected]
VOICE UK Support and information for children and adults with learning disabilities who have experienced crime or abuse, their families and carers; and campaigns for changes in the law and practice. Helpline for people with learning disabilities, their parents, carers or professionals. Equal Access to Justice Project provides training to advocacy and self- advocacy groups, training for people in the justice system, produces accessible guides, and works with groups and organisations to protect people from abuse. Tel: 01332 291042 Helpline: 0845 122 8695 Email: [email protected] www.voiceuk.org.uk
West Sussex Harm Reduction Team (HRT) Responsible for the coordinated response to Hate incidents resulting from domestic violence, race, disablism, homophobia, transphobia and sexual violence within West Sussex. In conjunction with Victim Support, the Harm Reduction Team (HRT) has set up the Hate Incident Support Service where victims, witnesses and third parties can report hate incidents. There is an online hate incident reporting form. Community Safety Section City Gates, 2-4 Southgate Chichester PO19 8DJ Tel - HRT: 01243 382964 Tel - Victim Support: 0845 0751 021 Email: [email protected] www.westsussex.gov.uk/ccm/navigation/community-and-living/making-your-communities- safer/harm-reduction/hate-incident
Witness Service - Brighton Magistrates Court Service operating in all courts across Sussex. Witnesses coming to court to give evidence in trials are supported in a confidential, emotional and practical way. The Witness Service offers pre-trial visits and support in court and prepares witnesses on all court procedures. Tel: 01273 694949 Email: [email protected]
Witness Service Aims to assist all witnesses who are to give evidence, both before and on the day of their trial. Service also in the Magistrates Court. Chichester Crown Court, Southgate Chichester PO19 1SX Tel: 01243 782422 Email: [email protected] www.victimsupport.org.uk/sussex
Other Support Services
It’s Cool2Care in West Sussex! An agency-style community interest company working with families looking after disabled children in West Sussex. Employing a care worker or personal assistant can provide the ICIS News: Issue No 54, Summer 2010 Page 22 of 32 ICIS : information for life we specialise in finding you help family and the child or young person with a short break and can enable the primary carer to return to work or college, spend time with siblings or other family members and have a break from these demands. Cool2Care provides skilled and cool carers or buddies. All carers are screened, CRB checked and trained before placement. Contact: Jacqui Parfitt, Family Liaison Manager Tel: 07872 502751 Email: [email protected] www.cool2care.co.uk
Cinnamon Trust Provides homes for pets while owners over pensionable age are in hospital. Operates through volunteers on a national basis to provide help at home, such as walking a dog for a housebound owner. Can make arrangements for looking after pets if owner dies, providing arrangements are made with the Trust well in advance. Has a national register of residential accommodation that will allow residents to keep their pets. 10 Market Square, Hayle Cornwall TR27 4HE Tel: 01736 757900 Email: [email protected] www.cinnamon.org.uk
Companion Bus Pass Bus pass available to those who need assistance on buses and cannot travel alone. The pass is only valid for the district the person lives in. Applications are available from the local District Council/Borough Council. Pass is available for people over and under 60. Adur & Worthing District & Borough Council: 01273 263399 Arun District Council: 01903 737655 Chichester District Council: 01243 534734 Mid Sussex District Council: 01444 477304 Horsham District Council: 01403 215444 Crawley Borough Council: 01293 438635
The Littlehampton Larder Provides short-term emergency food to individuals or families in crisis. It is intended to provide sufficient food for three days to cover an immediate crisis while support agencies arrange to meet their clients' needs. Food is donated by churches, individuals, groups and charities; donations can be taken to Littlehampton Baptist Church. Contact: Rosie Parfitt, Community Resources Officer Tel: 01903 732063
Myplace Housing-related support service aimed at vulnerable young people living in the Chichester District. It is a partnership between Southdown Housing, HydeMartlet, Chichester District Council and West Sussex County Council 14+ team. Suite 40e, Forum House, Stirling Road Chichester PO19 7DN Tel: 01243 839048 Email: [email protected] www.southdownhousing.org
Pagham Association for the Elderly Group that meets for coffee mornings at St Ninian's Church Hall with occasional talks, outings, events and holidays. Raffle and stall at every meeting. Transport arranged with the Sammy Community Bus. 3 Rose Court, Aigburth Avenue, Aldwick, Bognor Regis PO21 3DB Tel: 01243 263772 ICIS News: Issue No 54, Summer 2010 Page 23 of 32 ICIS : information for life we specialise in finding you help UCanDoIt 13 week course teaching blind, deaf and disabled people how to use computers, with a particular focus on Internet and e-mail skills. They teach learners in their own homes, on their own computers. All training is given on a one to one basis by CRB checked, freelance tutors, some of whom have themselves been on the course. Highfield House 4 Woodfall Street London SW3 4DJ Tel: 020 7330 7766 www.ucandoit.org.uk
Understanding Differences Aims to link with families and organisations to provide a network of information, support and personal knowledge about any diagnosis, loss or bereavement for children and adults. Helps families affected by fear, isolation or grief by raising awareness, offering information, and creating support that is accessible to everyone. Has a drop-in at Langley Green Youth Centre, Lark Rise, Crawley RH11 7QG on the fourth Wednesday of each month from 7pm- 8.45pm. Contact: Donna Nevill, Group and Project Co-ordinator 50 Ashdown Drive, Tilgate Crawley RH10 5HB Tel: 07832 245014 Email: [email protected] www.understandingdifferences.org.uk
Domestic Violence and Child Abuse Worldwide statistics shows that just as many men as women are victims of domestic violence, and children are just as likely to be abused physically, sexually and emotionally by women as men. Also, women are just as likely to abduct children as men. What is not realised, because Scotland and Northern Ireland are separate jurisdictions to England and Wales, is that it is a criminal offence to remove a child from one jurisdiction to another permanently without the consent of the other parent, or if consent is denied, getting a court order to allow the removal. As well as any removal of a child out of the UK, Both Parents Forever can help any victim of domestic violence or anyone whose child has been abducted, prepare their case, and get a proper investigation.
On 20th June, Both Parents Forever are planning to hold a series of Candlight Vigil at 7.30pm to campaign for Shared residence to be the normal order following divorce or separation. This is part of an international campaign. Phone: 01689 854343
Parkinson’s UK Parkinson’s UK – the support and research charity – is passionate about finding a cure and improving life for everyone affected by Parkinson’s. Parkinson’s UK is the new name of the Parkinson’s Disease Society. Every hour, someone in the UK is told they have Parkinson’s. Because we’re here, no one has to face Parkinson’s alone. We bring people with Parkinson’s, their carers and families together via our network of local groups, our website and free confidential helpline. Specialist nurses, our supporters and staff provide information and training on every aspect of Parkinson’s. As the UK’s Parkinson’s support and research charity, we’re leading the work to find a cure, and we’re closer than ever. We also campaign to change attitudes and demand better services. At a local level, our Information and Support Work in West Sussex, Jonathan Smith, provides up-to-date information on Parkinson’s, emotional support to people with Parkinson’s and their families and information about benefits and local services. Contact Jonathan on 0844 225 3667 Email: [email protected] www.parkinsons.org.uk ICIS News: Issue No 54, Summer 2010 Page 24 of 32 ICIS : information for life we specialise in finding you help Information Drop-In For people with Parkinson’s, families and carers
The Newell Centre, Tozer Way, off St Pancras, Chichester Monday 19th July, 2pm – 5pm
The Drop-In will be during the Chichester Branch Meeting of Parkinson’s UK, but will allow space for people to have individual time with the West Sussex Information and Support Worker.
If you would like to book a time contact Alan Colenutt: 01243 781704 If you would like details of Branch meetings contact Alan Mee (Chairman): 01243 788539
Volunteering & Getting Involved
Playday Wednesday 4 August 2010 is the annual celebration of children's right to play. On Playday and throughout the summer, thousands of children, young people and communities will get out to play at hundreds of locally organised events across the UK. As well as a celebration of children's right to play, Playday is also a campaign that raises awareness about some serious issues affecting children's play. Whether you’re organising a small neighbourhood get together or a city- wide Playday extravaganza to celebrate Playday 2010 you can register your event online and receive a free registration pack. Visit: www.playday.org.uk/
Residents e-panel Are you passionate about West Sussex? Do you have ideas about how we can make the place we live even better? West Sussex County Council (WSCC) wants to hear from you. WSCC believes that services will be delivered better if we listen and respond to the needs of those who use or are affected by them. The residents' e-panel is a way for contacting residents and acts as an invaluable tool for listening to all types of people. To join the panel, visit: www.westsussex.gov.uk/residents-e-panel
Have Your Say Sussex Partnership NHS Foundation Trust provides specialist mental health, learning disability and substance misuse services for people of all ages across West Sussex. Members of the local community, service users and carers, staff and volunteers will have an opportunity to take part in a series of world café-style events with ‘speed debating’ to provide a fun way to find out more about the Partnership and to ‘have your say’. Consultation will take place on: 21st June, 3-4:30pm and 21st June, 6-8pm. Venue: Lecture Theatre, Sussex Education Centre, Mill View Hospital, BN3 7HY. To book a place email: [email protected] or phone: 01903 845736 (accepts Typetalk).
Training & Learning
Rise – Violence against women is everybody’s concern Wednesday 23rd June 2010, 2pm-4pm Billinghsurst Village Hall Rise is inviting people to attend an event with special guest speakers from Women’s National Commission and Women’s Resource Centre, along with their CEO, Gail Gray. Light refreshments are available. For more information phone: 01403 252220 or email: [email protected]
ICIS News: Issue No 54, Summer 2010 Page 25 of 32 ICIS : information for life we specialise in finding you help Shaping the Future of your Ambulance Service Wednesday 30th June 2010, Martlets Hall, Civic Way, Burgess Hill Opportunity to help plan for the future of the South East Coast Ambulance Service (SECAmb). This event gives patients, members of the public, staff and people from organisations a chance to hear from the Chief Executive, put questions to the Directors, take part in group discussions about how to improve services, and meet other people. Questions for discussion at the event will include: Given the financial pressures we expect to face, how should SECAmb prioritise? How should SECAmb work with stakeholders as it moves to become a Foundation Trust? What should the ambulance service look like in five years time? How can SECAmb make sure our services are part of a ‘joined-up’, holistic health service? To register your attendance contact: Shaping the Future, South East Coast Ambulance Service NHS Trust FREEPOST BR1578, 40-42 Friars Walk Lewes BN7 2XW. Phone: 01273 897840 Email: [email protected]
Service Development
Ladder4learning Looking at the skills of staff, management committee and volunteers is an important part of organisational development. It is also something that many organisations in the voluntary, community and social enterprise (VCSE) sector feel they need support with. Ladder4learning have prepared a briefing sheet: http://tinyurl.com/33eofrz. There are also current news stories, funding opportunities and events in the newsletter available at: www.ladder4learning.org.uk/newsletters. Ladder4learning provides a regional workforce development resource for the community and voluntary sectors and social enterprises across the South West and South East. Tel - Mon-Fri 10am-3pm: 01225 792505 Email: [email protected] www.ladder4learning.org.uk
Shared Energy Toolkit Designed to help community organisations raise awareness of climate change and plan for possible future scenarios, with a booklet of games, ideas and discussion topics to get staff, volunteers and service users talking and thinking. Produced by bassac, the body for multi- purpose community organisations. Visit: www.bassac.org.uk/node/881
Funding & Awards
Home Access Programme Provides grants to get a laptop computer and one year’s broadband internet access at home, mainly for children in school years 3-9 (7-14 age group) – wider age range for looked-after children. To find out if your child is eligible phone 0333 200 1004 or visit www.homeaccess.org.uk/Information-for-parents/
Family Fund Provides grants to families and working families with disabled children who have a net annual income (including benefits) of below £25,000. Unit 4, Alpha Court Monks Cross Drive ICIS News: Issue No 54, Summer 2010 Page 26 of 32 ICIS : information for life we specialise in finding you help Huntington, York YO32 9WN Phone: 0845 130 4542 Email: [email protected] www.familyfund.org.uk
Bus Service Operators Grant Grants to help non-profit organisations running community transport organisations to expand and develop their services by saving on fuel duty. To apply, organisations must submit a copy of their Section 19 permit to the Department for Transport (DFT). Contact: DFT, F14 Ashdown House, Sedlescombe Road North, St Leonards on Sea, East Sussex TN35 5LP. Phone: 020 7994 8588 or email: [email protected].,uk www.dft.gov.uk/pgr/regional/buses/busgrants/bsog/busserviceoperatorsgrantbsog3542
Health and Social Care Volunteering Fund Funding to enable third sector organisations achieve their objectives for long-term sustainability. Organisations selected to receive a Volunteering Fund grant will need to commit to working closely with the Volunteering Fund Managing Body. Two schemes are available: local grant scheme aimed at supporting volunteering in health and social care, and a national portfolio scheme where national organisations can apply for larger awards to deliver more strategic or developmental volunteering programmes. Deadline for applications is 5th July. Guidance notes for local project applications can be downloaded from www.volunteeringfund.com/current-funding-rounds.html. For more details phone 0845 172 8058 or email: [email protected] www.volunteeringfund.com
Aid for the Aged in Distress (AFTAID) Provides grants to older people for nearly anything which is required to take away hardship from their day to day life. In recent years grants have been made to provide, or help in the purchase of: mobility scooters, walk-in showers, radiators, beds, bedding, clothing, rise/recliner chair, small emergency house repairs, essential or emergency house cleaning, rewiring, boiler, video intercom, wheelchair access ramp and bath lift. Applicants must be of pensionable age, with minimal savings and on low income. Phone: 0870 803 1950 or email: [email protected] www.aftaid.org.uk
Make I.T. Happy 2010 Cash awards programme to recognise UK primary schools involved in projects to promote the internet in their local community. Regional and national cash prizes will be awarded for innovative, community-based IT projects led by 9-11 year olds. The awards are run by the Parliamentary IT Commission (PITCOM), e-skills UK and supported by the Institution of Engineering & Technology and the Nominet Trust. Entries will be assessed on IT skills, design skills, relevance to the national curriculum, and efficient use of the school’s ICT resources. Deadline for submissions is 30th July 2010. Phone: 020 7963 8920 Email: [email protected] www.makeithappy.cc4g.net/ www.e-skills.com
Funding to help faith groups have their voices heard National faith-based organisations can apply for a share of £1 million to help them develop a bigger voice and strengthen their capacity to challenge and engage government. Grants of up to £30,000 will be made to national organisations that can show a track record of representing and having real roots in their communities, of working with government, and having a real contribution to make. Applications will open in the summer 2010. Expressions of Interest email: [email protected] News release: www.gos.gov.uk/news/923731 ICIS News: Issue No 54, Summer 2010 Page 27 of 32 ICIS : information for life we specialise in finding you help
Resources
Free support for small charities The Small Charities Coalition helps small charities access the skills, experience and resources needed to achieve their aims. It matches small charities with organisations that have the skills and experience that may be lacking. Tel: 0207 391 4812 Visit: www.smallcharities.org.uk Email: [email protected]
Commissioning Local Services Joseph Rowntree Foundation has published a study by Age Concern London, which brought commissioners and service users together to discuss how service users can be involved in shaping local services. Download from: www.jrf.org.uk/publications/users-local-services
CharityBuilder UK Tennyson Insurance, in partnership with West Sussex County Council, has a free online resource which provides a host of tailor-made documents, information and advice to all charities and community groups. It interacts with users to create tailor-made documents such as staff contracts and handbooks and a range of essential policies. To register for this service visit: www.charitybuilderuk.com
Tool for Providers of Personalised Services Updated tool to help providers think about their progress in responding to the personalisation agenda; simple self-assessment tool developed by commissioners. The tool particularly focuses on delivering personalised, individual costs services and individual service funds. Visit: www.helensandersonassociates.co.uk/news/files/2010/03/progressforprovidersdownload.pdf
Creating and Managing New Projects for Voluntary Organisations A new project can often bring new life to an organisation by breaking routines and structures. Managing a project effectively can unite and encourage people by providing a new focus and direction. This revised edition looks at the organisational implications of being project-based, joint projects and partnerships, risk analysis and management, financial strategies, full costing and the full cost recovery model, new case studies and exercises. Price: £18.95. Available from: www.dsc.org.uk/cmnp
Services no longer running
Alternative Vision (Brighton) – club closing Arundel Bridge Club – no longer running Ashington Ladies Netball Club – no longer running Autumn Leaves (New Hope Church, Crawley) – no longer running Caltek Healthcare (Surrey) – closed Carers Support Group (Meadowfield) – no longer running ICIS News: Issue No 54, Summer 2010 Page 28 of 32 ICIS : information for life we specialise in finding you help Children’s Music Group (Upper Beeding) – no longer running Childwatch (Hull) – service suspended Colwood Adolescent Unit (Haywards Heath) – closed Community Games Club (Upper Beeding) – no longer running Contact the Elderly (Crawley group) – no longer running Craft Group (Upper Beeding) – closed Dart Court Lunch Club (East Grinstead) – no longer running Disabled Persons Accommodation Agency (Kent) – service closed Evergreen (Copthorne) – no longer running Freestyle London – closed Future Care UK (Lancing) – closed Ham Strollers (Worthing) – no longer operating Homefields Permanency Project (Suffolk) – no longer running Homeshare West Sussex – scheme decommissioned Interact Detached Youth Work Project (Worthing) – no longer running Keith Jay Care Centre (Selsey) – branch closed Lone Parenting Coffee Mornings (Worthing) – no longer running Mother and Toddler Group (Horsham) – no longer running Outreach 3 Way Supported Employment Agency, Work Aid (Crawley) – closed Over 50’s Coffee Mornings (Littlehampton) – no longer running Personal Practical Services (Horsham) – no longer operating Phab Club – closed Phoenix Afternoon Art Club (Lancing) – closed Postbus (Balcombe) – service withdrawn Recorded Music Group (Worthing) – no longer running Relaxation Group (Horsham) – no longer running Soul Edge (Yapton) – no longer running Steps to Work Partnership (Worthing) – closed in Worthing Sudden Death Support Association (Reading) – closed Sussex Downs ADHD Support Group (Portslade) – no longer running The New Leaf Programme (Chichester) – no longer running Tourist Information Centre (Petworth) – closed down Trading Up (Southampton) – no longer running West Sussex Enterprise Gateway, Outreach – closed down Women’s Institute (Madehurst) – suspended, too few members Woodhall Hostel (Crawley) – closed Worthing Homebirth Group – no longer running
ICIS News: Issue No 54, Summer 2010 Page 29 of 32 ICIS : information for life we specialise in finding you help
ICIS has been awarded a small grant from West Sussex ChangeUp to help support the objectives of the West Sussex ChangeUp Business Plan. We are using this grant to help develop the 'Support for Services' database which we have been piloting on our website. The aim of this database is to capture and share information that we discover about services that can provide training, support and other opportunities for organisations (mainly but not exclusively) from the voluntary and social enterprise sector. Developing the content of this database will help support a key outcome for ChangeUp, which is to help voluntary and community organisations in West Sussex become better informed about, and accessing, a wide range of support.
To view the 'Support for Services' database visit: http://www.icis-info4life.org.uk/ForOrganisations/SforS.htm
We welcome your comments on this resource, or suggestions for other support that could be added.
ICIS and the new ‘Supporting People Directory of Services’
ICIS has been working with West Sussex Supporting People to create an online directory of Supporting People services, enabling people to search for services based on type of support, location and by keyword.
The Supporting People Directory is accessible via a link to the ‘Supporting People Directory of Services’ on the home page of the ICIS website. The Directory will be refreshed every night with amendments made that day. An online, printable, help manual is available from the ‘Search help’ tab, and there is an email address on the home page of the Directory so you can feed back your comments about using the Directory at any time. ICIS will gather data on site traffic and visitor activity to monitor usage.
For more information about ICIS or the Supporting People Directory contact:
ICIS on 01903 859929 or visit: www.icis-info4life.org.uk
The next issue:
The Autumn 2010 newsletter will cover services providing support, advice and information on:
Personal aids and equipment
Activities for people with disabilities
Mediation services
If you offer a service that you would like promoted in the newsletter please contact Gemma at ICIS on 01903 859928.
ICIS News: Issue No 54, Summer 2010 Page 30 of 32 ICIS : information for life we specialise in finding you help
I CI S ROOM & EQUI PMENT HI RE
SMALL ROOM MEETING ROOM ICIS has two ground floor rooms available Monday – Friday, 9am – 5pm. Broadband is available in the meeting room. There is level access, an accessible toilet and kitchen facilities. Parking is available adjacent to the premises. Please confirm in advance if parking spaces are required.
Tariffs
The room hire cost is reduced for voluntary and community sector use.
Per hour Per day Voluntary / Voluntary / Statutory / Statutory / Community Community Public sector Public sector sector sector Meeting Room £7 £15 £40 £75 (holds 10 people max) Small Room £5 £10 £25 £40 (holds 4 people max)
Equipment – available with room hire
Overhead projector …………………...£3.00 per day/session
Digital projector ……………………….£5.00 per day/session
Video and DVD…….………………….£3.00 per day/session
Flip chart …………….………………...£4 per day/session
Photocopying…………………….…….5p per single-sided sheet
Refreshments
Tea, coffee and biscuits can be provided for room hirers at a minimum charge of £3.
. All prices quoted exclude VAT
For enquiries or to hire a room contact:
phone: 01903 859928 email: [email protected]
ICIS News: Issue No 54, Summer 2010 Page 31 of 32 ICIS : information for life we specialise in finding you help
Contacts ICIS
Liz Hall, Chief Executive Officer: Phone: 01903 777603 Email: [email protected]
If you need help or information for yourself or someone else
Enquiry Line: 0800 859929 or 01903 859929 (voice and text) Monday to Friday, 10am-12.30 and 1.30-4pm Email: [email protected] Website: www.icis-info4life.org.uk
For administrative matters, for example to: arrange a visit or order ICIS publicity material let us know about our service, offer feedback or suggestions for ICIS enquire about volunteering at ICIS Admin Line: 01903 859928 Email: [email protected]
Services for Organisations
to discuss information provision to discuss development of customised datasets of managed information to subscribe to ICISdirect Phone: 01903 777603 or 01903 777604 Website: www.icis-info4life.org.uk
Services for Carers
West Sussex Carers website: Email: [email protected] Website: www.westsussexcarers.org.uk
West Sussex Carers Emergency Alert Card Scheme: Phone: 01903 859929 or 01903 859928 Email: [email protected]
Wellspring: a newsletter for parents/carers of children with disabilities Email: [email protected] Website: www.wellspringwestsussex.org.uk
Articles for the next issue to Gemma by 1st September 2010 Phone: 01903 859928 Fax: 01903 777601 Email: [email protected]
Information contained in this newsletter was correct to the best of our knowledge at the time of printing. ICIS is an impartial service and inclusion in this newsletter does not constitute a recommendation by ICIS. (This newsletter was printed on: 09/12/2009)
ICIS : information for life: 35 Worthing Road, East Preston, West Sussex BN16 1BQ Charity Registration No:1095945 Co Ltd by Guarantee No:4603381 VAT No:813 0102 00
ICIS News: Issue No 54, Summer 2010 Page 32 of 32