ICIS : information for life we specialise in finding you help ICIS News ICIS News S i g n p o s t i n g y o u t o s e r v i c e s S i g n p o s t i n g y o u t o s e r v i c e s p r o v i d i n g a d v i c e , c a r e a n d s u p p o r t Is sue No: 54 Services supporting those with cancer 2 Support for carers 8 Support for victims 18 Other support services 22 Volunteering and getting involved 25 Training and learning 25 Service development 26 Funding and awards 26 Resources 28 Services no longer running 28 Supporting people directory 30 ICIS room and equipment hire 31 Who to contact at ICIS 32 For more information on sources of support for a person’s individual need, phone the ICIS Enquiry Line on 0800 859929 A large print version of this newsletter can be downloaded from our website: www.icis-info4life.org.uk or sent by email. ICIS News: Issue No 54, Summer 2010 Page 1 of 32 ICIS : information for life we specialise in finding you help Services supporting those with cancer Breast Cancer Care For anyone affected by breast cancer. They bring people together, provide information and support and campaign for improved standards of care. They use their understanding of people’s experience and their clinical expertise in supporting people with, and affected by, breast cancer. Helpline: 0808 800 6000 Switchboard: 0845 092 0800 Email: [email protected] www.breastcancercare.org.uk Butterflies Breast Cancer Support Group Group for breast cancer patients, family and friends. Meets every other month at the East Worthing Community Centre, Pages Lane, Worthing BN11 2QN. Other events and social activities arranged throughout the year. Tel: 01903 246402 24hr answerphone: 01903 285068 Email: [email protected] Cancer Buddies Network Website for people with cancer and their relatives, friends and carers. It brings together people for cancer support and friendship, and gives the opportunity to share feelings, experiences and ideas with people who understand. www.cancerbuddiesnetwork.org Cancer Index website Website aimed at patients, relatives, carers and health professionals, making it easier to find specific information about cancer. Includes a directory of cancer-related sites. www.cancerindex.org Cancer Journey Cancer information signposting service for anyone affected by any type of cancer. The website has an email enquiry service. Aims to assist in all areas of living with cancer; helpline staff are trained by Macmillan Cancer Support. Helpline: 03033 330003 Email: [email protected] www.cancerjourney.org.uk Cancer Patients Forum Forum for people who have, or have had, cancer; meets every 6 weeks. Open to people in St. Richard's Hospital catchment area who were cared for by the hospital at some time. St Richard's Hospital Spitalfield Road Chichester PO19 6SE Tel: 01243 831762 Email: [email protected] Cancer Screening website NHS website with information on the cancer screening programmes for breast, cervical, bowel, and prostate cancer in England. Leaflets have been produced in Braille and on tape in English and translated into various languages. www.cancerscreening.nhs.uk ICIS News: Issue No 54, Summer 2010 Page 2 of 32 ICIS : information for life we specialise in finding you help Cancerbackup Charity where specialist cancer nurses provide information and emotional support to anyone affected by cancer, including patients, family and carers. Can discuss all aspects of cancer and living with it. Free helpline (translation service available), plus several drop- in centres. Many booklets and factsheets, free to individuals. Macmillan Cancer Support 89 Albert Embankment London SE1 7UQ Helpline: 0808 800 1234 www.cancerbackup.org.uk CancerHelp Patient information website of Cancer Research UK. This is a free information service about cancer and cancer care for people with cancer and their families. The aim is to make information about cancer available to all and written in an understandable way. www.cancerhelp.org.uk Cancervive Self-help group for families, friends and colleagues of cancer patients. Several support groups for people from Mid Sussex district meet at 41 Western Road, contact prior to first visit. There are three support groups: one for anyone who knows someone who has been diagnosed with cancer, or who has undergone treatment and not yet recovered; one for those whose loved one's treatment has not proved successful and who are having to come to terms with the outcome. The third group is for those who are dealing with bereavement due to cancer. Each group meets once every three weeks. Telephone helpline for anyone who would like advice or support. 41 Western Road Hurstpierpoint BN6 9SU Helpline: 08454 386418 Alternative Helpline number: 01273 834912 Email: [email protected] www.cancervive.org.uk CancerWise Support and information to anyone concerned about cancer. The approach is positive and holistic, focusing on relaxation techniques, complementary therapies and gentle exercise such as yoga. Shares tips on how to look and feel good, has information on health, nutrition and lifestyle choices. On Thursdays from 10am to 12 noon there is a get-together for cancer patients and carers with a chance to meet others. Tavern House, 4 City Business Centre Basin Road Chichester PO19 8DU Tel: 01243 778516 Email: [email protected] www.cancerwise.org.uk Christian Lewis Trust Children's Cancer Charity Aims to improve the quality of life for children with cancer, and to provide emotional and practical support to their families. Family Services include: a confidential 'listening ear' for anyone who is or ever has been affected by a child with cancer; Bereavement support - befriending, self-help parents support groups; Play therapy - play for a child with a life- threatening condition; Holiday programme - crisis breaks via four mobile home sites in Wales for which there is no charge - Disneyland Paris and Disney World Florida at special rates. Discounted UK Mini Breaks and 'day out' excursions. Specialist comprehensive travel insurance contact. 62 Walter Road ICIS News: Issue No 54, Summer 2010 Page 3 of 32 ICIS : information for life we specialise in finding you help Swansea SA1 4PT Tel: 01792 480500 Email: [email protected] www.christianlewistrust.org Chrysalis Crawley Breast Cancer Support Group Self-help group for men or women affected by breast cancer, whenever or wherever they received their treatment. Partners, family and friends also welcome. Talks from various speakers as well as informal evenings. A Macmillan Breast Care Nurse is usually in attendance. Postgraduate Centre, Crawley Hospital Tel: 01293 512378 www.chrysalisbreastgroup.org.uk CLIC Sargent (Cancer Care for Children) Support to children and young people with cancer and leukaemia and their families. Help includes funding for specialist doctors, nurses, social workers, family support workers, youth workers, play specialists to provide care, support and advocacy to children and young people with cancers and their families in hospital and at home. Also runs homes to allow parents, children and siblings to stay together near the hospital. Free holidays for families to take a break from treatment in supported settings; grants to help families cope financially. Funds research projects to work on causes and treatments for childhood cancer and manage the side effects that treatment imposes on children. Helpline: 0800 197 0068 Email: [email protected] www.clicsargent.org.uk Friendly Faces Head and Neck Cancer Support Group Informal support and advice to adults with any kind of facial disfigurement, particularly post-operatively, e.g. through scarring, facial palsy, radiotherapy and on-going treatment. Often has visiting speakers or trips to various locations. Also has one or two social evenings in addition to regular group meetings. Also available to laryngectomee patients. Aims to meet every three months at Worthing Hospital or Homefield Building. Maggie Morley, Clinical Nurse Specialist or Kim Cheetham/Mary-Anne Ley Sisters, Botolphs and Downlands Ward, Maxillo-Facial Outpatients Department Worthing Hospital Worthing BN11 2DH Tel: 01903 205111 ex 4372 or 4501 Email: [email protected] Friendship Group Support for people and families affected by cancer. Informal group meetings held once a month at different venues, including Postgraduate Medical Centre at Worthing Hospital. Social evenings held each month at MacMillans Bar, Union Place, Worthing. 25 Campbell Drive Rustington BN16 3QR Tel: 01903 770547 Headstart Support group for people who have, or have had, head and neck cancer. Provides a supportive environment and brings people together to share their experiences. The group meets at three venues: Queen Victoria Hospital, Medway Maritime Hospital and Maidstone Oncology Centre every 2-3 months, alternating between sites. Contacts: Pauline Mortimer or Brooke Quinteros c/o Maxillofacial Unit, Queen Victoria Hospital NHS Trust Holtye Road, East Grinstead RH19 3DZ ICIS News: Issue No 54, Summer 2010 Page 4 of 32 ICIS : information for life we specialise in finding you help Tel: 01342 414493 Email: [email protected] Email: [email protected] Heathers Horsham Cancer Support Informal support group for anyone affected by cancer, including sufferers, family, those bereaved or carers. Drop-ins held 1st and 3rd Monday of each month. Also has an information service with someone available over the phone at most times. Occasional visiting speakers give talks. Also provides buddying, befriending and other support as needed. Unitarian Church Hall, Worthing Road, Horsham Tel: 01403 250816 Sue Evans: 01403 823858 Yvonne Woolger: 01293 512378 Email: [email protected] InsureCancer Underwrites insurance policies for those living with cancer. Provides cover for those with active, metastatic, relapsed or terminal cancer to destinations worldwide including North America.