Is every Nordic patient really a research patient ?
- case HUH Comprehensive Cancer Center
Tuula Helander Development Manager Comprehensive Cancer Center, Helsinki University Hospital, and Comprehensive Cancer Center Finland (FICAN); Secretary General, Finnish Cancer Institute Nordic Cooperation Meeting, August, 25th 2016
HUCH COMPREHENSIVE CANCER CENTER
CANCER PATIENTS SURVIVAL RATES AMONG THE BEST
Prostate Melanoma Finland Breast Northern Europe Non-Hodgkin Entire Europe Colon lymphoma Rectum RCC
Ovarian Ventricular Lung
reasearch and education Eurocare-5 Study: Lancet Oncology 2014
28.8.2016 ©Tuula Helander CANCER SURVIVAL IN EUROPE 1995-2007: RESULTS OF EUROCARE-4 AND -5 POPULATION BASED STUDIES
EUROCARE'4)study:)Cancer)survival)) rates)in)Finland)among)highest)in)Europe)
• Cancer survival rates among highest in Finland, Sweden and Norway • 2.7 million patients diagnosed 1995-1999 – Berrino et al., Lancet Oncology 2007
Eurocare-5 (Dec, 2013): cancer registry coverage 100% in Nordic countries - 29 countries - includes data for more than 10 million patients diagnosed 1995-2007 28.8.2016 ©Tuula Helander
HUH Comprehensive Cancer Center • 9000 new cancer patients/year • treated 26.500 patients 2015 OUH • Budget for cancer care: 125 m€ Hyvinkää Hospital Area KUH Hyvinkää Kellokoski Hospital TUH Hospital Lohja Mäntsälä Lapinjärvi Hospital Area Hyvinkää TUCH Karkkila Askola Nummi- Järvenpää HUCH Nurmijärvi Pornainen Pusula Tuusula Loviisa Lohja Hospital Vihti Kerava Porvoo Paloniemi • HUS is a municipal Hospital Lohja Vantaa Sipoo Karjalohja Espoo federation owned by Kauniainen Porvoo Siuntio Helsinki Hospital 26 Uusimaa area Peijas Kirkkonummi Hospital Porvoo municipalities. Inkoo Jorvi Hospital Area Raasepori Hospital HUH Comprehensive • Population of the district: 1.5 Million Hanko Cancer Center Tammiharju Hospital • Budget 1.6 Billion € Länsi-Uusimaa Länsi-Uusimaa • The largest hospital Hospital Area Hospital in Finland Cancer care is highly centralized 28.8.2016 ©Tuula Helander
HUCH COMPREHENSIVE CANCER CENTER
CANCER TREATMENT HELSINKI UNIVERSITY HOSPITAL
ACCREDITED AS COMPREHENSIVE CANCER CENTER
• Accredited by the Organization of European Cancer Institutes (OECI) • The only certified cancer center in the Nordic countries • Responsible for the oncological treatment of cancer throughout the area with a population base of 1.6 million. • Hospitals throughout the world participate in clinical studies led from our center (as breast cancer study called SOLD; 70 hospitals from 7 countries) • The only Finnish hospital in the NordicNECT cooperation network to perform early clinical trials in oncology.
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
OECI, ORGANISATION OF EUROPEAN CANCER INSTITUTES
- a cancer network - almost 80 centers and institutions in Europe
28.8.2016 ©Tuula Helander THE MISSION OF THE OECI
• Organisations of cancer centres • Improve quality of cancer care and translational research • Increase comprehensive care • Integration of research in care • Production and diffusion of knowledge
• Ultimately: improving patients’ quality of life
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
MULTIDISCIPLINARY TEAMS (MDTs) • All MDT procedures carefully re-evaluated • New MDTs started in gynecological and prostate cancer and CML
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
PATIENT INFORMATION OF ONGOING TRIALS
• http://www.hus.fi/en/medical-care/ medical-services/Oncology/research- and-development/Pages/ongoing- research-projects.aspx
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
CANCER SURVIVORSHIP
• To provide sufficient care and support for survivors • Increasing the size of the psychosocial unit and the number of personnel (both psychiatric and physiotherapeutic) • Patient information center launched • Mobile follow-ups of breast cancer patients and of prostate cancer patients (after prostatectomy or radiotherapy) are developed, and mobile follow-ups will be developed (already ongoing) on all other cancers as well
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
PATIENT INVOLVEMENT
• To promote patient and family advocacy • Group information for patients • Continuous patient satisfaction tool (in the web) • Patient information center launched • ”Patient as educator program” being planned • ’Patient Advisory Board’ created in the end of 2015; first Meeting in August 2016.
28.8.2016 ©Tuula Helander HYKS SYÖPÄKESKUS NORDIC NECT – PATIENT ACCESS TO INVESTIGATIONAL DRUGS (FI, DK, N, S)
28.8.2016 ©Tuula Helander NORDIC COLLABORATION - Nordic Nect (early cancer trials, phase I/II) - Nordic Lymphoma Group - Scandinavian Sarcoma Group (SSG) - Colorectal cancer - Breast cancer (NETBCG) - etc.
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
CANCER – BIG CHALLENGES
- the amount of cancer patients is increasing - some treatments are becoming yet more demanding - costs are increasing - regional differences are growing?
à a national cancer center is needed !
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
COMPREHENSIVE CANCER CENTER FINLAND, FICAN
- university hospital districts (joint authorities) and universities establish FICAN - five regional cancer centers are in charge of the operations - coordinated by a joint central unit (FICAN- FICAN North NCC) located in connection of the FICAN South. - operating in January, 1st 2017. FICAN East FICAN Centre
FICAN South FICAN West National Coordination Centre, FICAN NCC 28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
COMPREHENSIVE CANCER CENTER FINLAND, FICAN - basic research and patient care meet: faster and more efficient clinical application of research innovations. - highly selective drugs and precision diagnostics meet: better, more effective care. - possibilities for concentrated treatment of rare forms of cancer: better treatment results. - a better training environment for researchers and the personnel involved in patient care. - an active and attractive partner for international companies.
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER Environment of the Comprehensive Cancer Center Finland
Foreign Cooperation Partners (Universities, Scientific Organisations, Research Financiers)
Finnish Cancer Organisations, Patient Cancer Associations Enterprises
CCC Joint Enterprises Comprehensive Cancer Ministries Center Finland (STM,OKM, TEM) Finnish Cancer Registry, FIMM, VTT TampereCC Oulu CC Kuopio CC
©Tuula Helander 28.8.2016 From the Proposal of the Finnish Cancer Institute, 2009 NATIONAL COORDINATION CENTER, AND PROFILES OF REGIONAL CENTERS - The operations of FICAN would be coordinated by a central unit (located in connection of one regional center, in Helsinki) - Regional profiling i.e. naming certain focus areas in accordance with the expertise of the region (university hospital/university).
FICAN: a national top expert and preparatory organ – that the entire cancer treatment process operates efficiently, both from the aspect of the patient and the service system, from the phase of prevention to early diagnosis and all the way to high-quality treatment and rehabilitation.
28.8.2016 ©Tuula Helander HUCH COMPREHENSIVE CANCER CENTER
COMPREHENSIVE CANCER CENTER FINLAND, FICAN
1. Combines diagnostics and treatment with high-quality research and education
2. Forms a nationwide cooperation and innovation environment
3. Safeguards the equality and high quality of cancer treatment in future Finland
28.8.2016 ©Tuula Helander ASCO, Annual Meeting 2016, June, 2-7
28.8.2016 ©Tuula Helander