NPF Annual Report 2014 0.Pdf

The mission of the

National Parkinson

Foundation (NPF) is

to improve the quality

of Parkinson’s care ABOUT THE FOUNDATION

through research, Founded in 1957, the National Parkinson Foundation (NPF) is a leading national organization with an extensive education and outreach. network of chapters, support groups and our global Centers of Excellence. NPF chapters offer community outreach programs and services across the country.

NPF programs touch more than one million people a year through our network of United States chapters, support groups and our online resource, Parkinson.org. NPF’s Centers of Excellence are leading medical centers around the globe that excel in Parkinson’s research, delivering care to more than 50,000 Parkinson’s patients.

NPF has funded more than $182 million in research, education and support services.

1 ANNUAL REPORT 2014 Cover photo taken at McGill University by Owen Egan CEO’S MESSAGE

In 2014, the National Parkinson Foundation embarked on a strategic planning process to develop an updated vision and plan. In the process, we listened to scientists, patients and families, community leaders and supporters like you. Our communities from across the country told us that it’s important to live a better life today but research for a better tomorrow is the number one reason they are inspired.

As a result, we are committed to increasing funding in this important area in the years ahead. Today we are making a real difference in the lives of people who have Parkinson’s through funding research by the brightest people in medicine and science; by studying the disease and its symptoms so they can be reduced or eliminated; and by developing new treatments and approaches to care that have the greatest impact.

The cornerstone of our work is the Parkinson’s Outcomes Project: the largest clinical study of Parkinson’s ever conducted. Launched in 2009, the project is now tracking 7,700 patients over time, with over 17,500 clinical evaluations at 21 NPF Centers of Excellence across four countries. The project’s goal is to find what works best in the treatment and care of Parkinson’s, with the aim of slowing the impact of the disease.

Our latest research shows that expert care quite literally saves lives. That is why our network of Centers and Chapters is so important—we are disseminating best practices and promoting transparency so that every person living with Parkinson’s can make the best choice of treatments.

The following pages detail research successes from the past year that your support made possible. With your ongoing assistance, we will continue to make life better for people with Parkinson’s on an even bigger scale. We will help people live better lives today and in the future through better care and research.

Together, we can beat this disease. Your support matters and is deeply appreciated.

Warm Regards,

Joyce Oberdorf President and CEO

2 DRIVING RESEARCH FOR A BETTER FUTURE

My research team works to understand the impact of Parkinson’s

“ pathology on brain cells. Our goal is that new discoveries at the

Photo: Owen Egan cellular level could be the starting point for the development of drugs to halt the progression of the disease. I am grateful to the National Parkinson Foundation for funding this critical research. ” Edward A. Fon, MD, FRCP-C Lead investigator, NPF-funded research study Montreal Neurological Institute, McGill University, Montreal, Canada, an NPF Center of Excellence

3 ANNUAL REPORT 2014 SPREAD 1 OPTION A

DRIVING RESEARCH FOR A BETTER FUTURE

In keeping with our commitment to fund to induce Parkinson’s – in order to create a disease trailblazing research leading to improved model for testing new drugs. Parkinson’s treatments, NPF awarded four Parkinson’s-related cognitive changes profoundly grants in 2014 for innovative scientific research affect quality of life. With NPF funding, Stephen into critical questions about the disease. Goperts, MD, PhD, at Massachusetts General Hospital, is investigating their cause by tracking Two NPF-funded teams are advancing knowledge the accumulation in the body of the protein tau, of how Parkinson’s spreads through the brain and associated with impaired cognition. body, an essential step in developing new drugs that slow or even stop its progression. Edward A. Fon, Moreover, a promising new Parkinson’s exercise MD, FRCP-C, at Montreal Neurological Institute, regimen designed to improve high-level McGill University, is literally creating “Parkinson’s thinking, is under study by Giselle M. Petzinger, in a petri dish,” examining how Parkinson’s affects MD, at the University of Southern California. neurons (nerve cells) and testing new drugs on If it produces improvement, this will represent those cells. a huge leap forward in best care practices.

At the University of Florida Health Center for Our 2014 grants are making possible potentially Movement Disorders and Neurorestoration, Benoit transformative research offering new hope to Giasson, PhD, is studying the spread of a faulty millions. form of the protein alpha-synuclein – now thought

Learn more about NPF’s research programs at www.parkinson.org/research.

Edward A. Fon, MD, FRCP-C Lead investigator, NPF-funded research study Montreal Neurological Institute, McGill University, Montreal, Canada, an NPF Center of Excellence

4 BETTER CARE FOR LIVING WELL TODAY

The data from the Parkinson’s Outcomes Project strongly show

“that neurological care and expertise favor a positive outcome for patients affected by Parkinson’s disease. The data gathered in this

Photo: Jesse S. Jones, unique research project is advancing the world’s knowledge that University of Florida lets people live significantly better lives with Parkinson’s. ” Michael S. Okun, MD NPF National Medical Director Co-Director, University of Florida Health Center for Movement Disorders and Neurorestoration, an NPF Center of Excellence

5 ANNUAL REPORT 2014 SPREAD # 2

BETTER CARE FOR LIVING WELL TODAY

Through the groundbreaking Parkinson’s defined as at least annual, can save the lives Outcomes Project, NPF is identifying best of approximately 7,000 people with Parkinson’s care practices with the greatest benefit to a year in the United States. people with Parkinson’s. What’s more, seeing a neurologist who specializes in movement disorders appears to Launched in 2009, it is the largest data-driven offer twice the benefit of care from a regular study of Parkinson’s treatment ever undertaken. neurologist. Given the fact that many people More than 7,700 people in four countries are with Parkinson’s disease never see a enrolled, providing an unprecedented wealth of neurologist, or only do so every few years, these data linking care to outcomes for real people. findings will have a unique and positive impact. Based on the data, NPF has already issued The life-saving 2014 discoveries from NPF’s guidelines on best care practices, resulting in Parkinson’s Outcomes Project demonstrate again tangible progress in treatment, particularly in that this study is a driver of crucial progress in the field of depression. beating the disease. In 2014, data from the registry led to the spectacular finding that regular neurologist care,

Learn more about the Parkinson’s Outcomes Project at www.parkinson.org/outcomes.

Michael S. Okun, MD NPF National Medical Director Co-Director, University of Florida Health Center for Movement Disorders and Neurorestoration, an NPF Center of Excellence

6 FOR KATHERINE CASTLE, EXPERTISE MAKES ALL THE DIFFERENCE

If you are diagnosed with Parkinson’s “ disease, it’s important to know you can

cope and survive. There is plenty of help

available. Your life has not ended and you

can still enjoy life. In fact, I enjoy my life

more because I have more reason to trust Photo: Jesse S. Jones, University of Florida and appreciate the care and support I get. ”

Katherine Castle Diagnosed with Parkinson’s disease in 1995

7 ANNUAL REPORT 2014 SPREAD # 3

FOR KATHERINE CASTLE, EXPERTISE MAKES ALL THE DIFFERENCE

After being repeatedly misdiagnosed, Katherine calls Parkinson’s a “hydra with Katherine Castle has lived well with several heads – many different symptoms Parkinson’s for 19 years, thanks to regular under one name.” To address these various expert care. Katherine’s experience reflects facets, Katherine attends physical therapy, the 2014 finding from NPF’s Parkinson’s practices Qi Gong, and participates in a Outcomes Project regarding the enormous support group, saying “I like talking to people benefits of regular care from a neurologist who really understand.” Katherine is now with in-depth knowledge of Parkinson’s. discussing deep brain stimulation (DBS) with her team of experts. “I’m interested because Everything changed for Katherine when I want to continue to live independently.” she began treatment for Parkinson’s with a neurologist who is a movement disorders She enrolled in our Parkinson Outcomes specialist at the University of Florida Project because “It’s important to be involved Health Center for Movement Disorders in research for my own benefit and to benefit and Neurorestoration, an NPF Center of future patients.” Excellence. Finally put on proper medication, she felt an immediate difference.

To find an NPF Center of Excellence near you, visit www.parkinson.org/search.

8 NPF : 2014 THE YEAR IN NUMBERS

TRAINED SPECIALISTS AT OUR 40,000 TOLL-FREE HELPLINE, FREE, LIFE-SAVING 1-800-4PD-INFO, AWARE IN CARE KITS PROVIDED VITAL WERE DISTRIBUTED COUNSELING TO TO HELP PEOPLE GET BETTER CARE 38,500 CALLERS IN A HOSPITAL

SUPPORTED OUR MISSION TO 73,500 IMPROVE THE QUALITY OF LIFE FOR PEOPLE LIVING DONORS WITH PARKINSON’S DISEASE

ENROLLED IN NPF’S PARKINSON’S 7,700 OUTCOMES PROJECT, THE LARGEST PATIENTS CLINICAL STUDY OF PARKINSON’S, AT 21 NPF CENTERS OF EXCELLENCE

9 YR-IN-NUMS OPTION J REV

PARKINSON.ORG (THE GO-TO RESOURCE ON THE WEB) HAD 1.3 million UNIQUE VISITS

25,000 WALKERS PARTICIPATED IN NPF’S MOVING NPF’S VIBRANT DAY®, IN LOCATIONS ACROSS ONLINE COMMUNITY ENGAGED WITH THE COUNTRY, RAISING CRITICAL FANS MORE THAN AWARENESS OF THE DISEASE IN LOCAL COMMUNITIES 54 MILLION TIMES

MORE THAN 225,000 1 million COPIES PEOPLE OF OUR FREE EDUCATIONAL VIEWED OUR AWARENESS MANUALS ON 10 DIFFERENT VIDEO, “KNOW THE EARLY TOPICS AND NPF’S NEWSLETTER WARNING SIGNS” FEATURING (THE PARKINSON REPORT) MAILED U.S. SENATOR CORY BOOKER TO HOMES ACROSS AMERICA

10 NATIONAL PARKINSON FOUNDATION HONOR ROLL 2014

GIFTS OF $250,000 GIFTS OF $100,000 GIFTS OF $50,000 GIFTS OF $20,000 AND ABOVE TO $249,999 TO $99,999 TO $49,999

Estate of Alice B. Dunn Estate of Donald L. Allred AbbVie Neuroscience Andrew B. and Mona Albert Trust of Ruby R. Clawson The Applebaum Foundation, Trust of Rex A. and The Jane H. Berktold Trust of Norine Matthews Inc. Josephine S. Collins Parkinson Fund Estate of Allen F. Baciak Dr. and Mrs. Robert and Bloomfield Family The Batchelor Foundation, Judith K. Cornfeld Foundation Inc. Trust of Louise M. Deere Community Health Charities Blackwood Family Trust Mr. Jermey G. Gaynor The Diller-Von Furstenberg Estate of Liesel Brown Rollin M. Gerstacker Family Foundation Trust of Roy L. and Foundation Donate For A Cause, Inc. Berna L. Derrett The Don A. Hunziker Ross S. Evans Lynn Diamond Memorial Foundation, Inc. Dr. and Mrs. Bernard J. and Jerry M. Lindzon Estate of Richard A. Jordan Judith Fogel Parkinson’s Unity Walk Mr. Helmut Leeser Trust of Edward O. and Marion Gabriel Edmond J. Safra Medtronic, Inc. Philanthropic Foundation NPF South Palm Beach Estate of Theodore R. Grimes Harcourt M. & Virginia W. County Sylvester Foundation Parkinson Foundation of Estate of Betty R. Hoffman UCB, Inc. the National Capital Area The Eleanor M. and Herbert D. Katz Family Foundation, Monty Yokel Charitable Estate of Carol C. Price Inc. Lead Trust Right at Home, Inc. Trust of Elaine Kosof Teva Neuroscience, Inc. NPF Central & Southeast US WorldMeds Ohio NPF Minnesota The Oreffice Foundation The Parkinson Alliance, Inc. Robertson Foundation Anne Nevard Sherr Solomon Family Foundation Jerome A. Yavitz Charitable Foundation, Inc. Zuckerman Investment Group

11 ANNUAL REPORT 2014 The National Parkinson Foundation gratefully acknowledges all of the people who made a donation of $1,000 or more between July 1, 2013 and June 30, 2014. It is your thoughtfulness that allows us to educate and assist people in communities across the country. We thank you for your dedicated support.

GIFTS OF $10,000 Leonard Miller GIFTS OF $1,000 Mrs. Catherine L. Bean TO $19,999 Frank Morrell TO $9,999 Mr. W. Morton Beck The New York Community J. Gordon Beckham, Jr. Anonymous Trust World-Wide Holdings, Anonymous Claire Beekman Inc. Fund AbbVie Inc. Employee ACBL Charity Foundation Mrs. Shirley Belon Giving Campaign NPF Central Savannah Corporation Mr. Samuel Belzberg Trust of Rita Alexander River Area AEW Capital Managment, LP NPF Heartland Patricia and Gardner Bemis Terry and Regina Armstrong Ms. Milicent C. Agnor Fund of The Minneapolis Family Charitable Foundation NPF Western New York AIG Matching Grants Program Foundation Braman Family Foundation, Inc. NPF Western Pennsylvania Mr. George J. Albertelli Mrs. Diohn Benedict Chelsea Therapeutics Office Depot Foundation Mr. and Mrs. Richard Mr. David Berg Kate and Lynn A. Christianson The Parkinson Council Alexander Lisa D. Bertani W. G. Christianson Foundation The Pratt Family Foundation Robert W. Allyn Revocable Mr. Steven Bethke Trust Agreement Colliers Abood Wood Fay Ms. Sophia J. Rivers Mr. Robert S. Bloom Real Estate Group, LLC The Ame Foundation, Inc. Sathrum Family Trust Mr. and Mrs. Herschel Bloom Community Health Charities Dr. Ramin Amirnovin Alan M. Slewett Bloomberg, LP of the National Capital Area The Anders Foundation Enrique and Irene Sosa Ms. Pamela Bond John P. Clulow Fund Ms. Connie Anderson Estate of Thomas D. Soutter Bongo Entertainment, Inc. Robert and Joanne Crown Degna Spoldi Private Kathleen and Harold Anderson Income Charitable Fund Charitable Lead Annuity Trust Family Foundation Mr. Robert Anderson ULWT of Gladys S. Borrus The Eccles Family Foundation Williams & Connolly, LLP Aileen S. Andrew Foundation COL (Ret) and Mrs. Conrad Linda and Robert P. Fetch Otto C. Winzen Memorial Linda and Martin Ardman Boterweg Florman Family Foundation Advised Fund of the Catholic Mrs. Amy Ardman Shea Ms. Caroline F. Brady Georgia Nut Company Community Foundation and Mr. Mitchell Shea Roxanne Brandt Mr. and Mrs. Robert S. Gibble Trust of Richard White Associated Electrics, Inc. Mr. Sheldon Braun The Bob & Dolores Hope Mary Ellen and Bruce Wisnicki Assurant, Inc. Mr. Charles Bray Charitable Foundation Sherryl A. Woods E. H. Avery Mr. Stephen F. Breimer JC White Architectural Phyllis I. Wormwood Fund Interior Products Isabel L. Bader Mr. Dennis Breit Amy and Michael L. Landa Mr. Robert Baittie Mr. Peter Brody Rita A. Lehnert Ed Baker Mr. and Mrs. William F. Broll Estate of Beulah-Mae Dorothy M. Ball Lewis D. Brounell Jones-Mitchell Mr. and Ms. R. Franklin Charitable Trust MacArthur Foundation and Marcia V. Balotti The Brunetti Foundation Marian S. & Frederic T. Eugene M. Bane Mr. John N. Buckley Charitable Trust McAuslan Endowment Fund Mr. Albert L. Burnett Clay H. Barr The McCamish Family Donald Burns Charitable Fund John E. and Nellie J. Bastien Mr. and Mrs. Robert S. Burnstine Gail and Robert Milhous Memorial Foundation Mr. Clifford T. Bauer Estate of Hildegard Butler

12 NATIONAL PARKINSON FOUNDATION HONOR ROLL 2014

GIFTS OF $1,000 The Daus Family Foundation Rudolph and Hilda U. Mrs. Joyce C. Gumm TO $9,999 (continued) David O. Davis Forchheimer Foundation, Inc. Mr. Jeffrey R. Gural Ms. Donna de Molina Harriet Ford Dickenson Gustaf Westfeldt McIlhenny Foundation Ms. Judith Canel Leo Deboer Family Trust Family Foundation Ms. Anne Fortney Riddell Mr. and Mrs. Michael Cannizzo DeFreitas Family Charitable Jerry Haar, Ph.D. Mr. James Capalino Gift Fund The Stephen and Elisabeth Mr. Chip Hadaway Frank Foundation Gary O. Caris Delouri Farms, Inc. Mr. William W. Hague Freedom Fresh, LLC Mr. Jeff Carson Mr. Jeffrey L. Dennis Estate of Martin Hamburger Mr. Leslie Friesen Harry Wayne Casey Charles H. Denny, III Mr. Jeff Hamer Charitable Trust Mr. and Mrs. David and Sheila Cemex Materials, LLC Fuente Estate of Lillian Handel Mr. Charles C. Derry Catholic Care Center The Russell and Ronalee Galbut The Hansen Trust Billie Determan Dr. Edward M. Caulfield Family Foundation John A. Hash, Jr. Mr. Pascal W. Di Fronzo Mr. Vernon F. Chalfant Robert Gathman Ernest “Tommy” Hayden Evelyn Diament Dr. and Mrs. Craig E. Chalfie GE Healthcare and Harriett “Rusty” Jean Robert and Michelle Diener Thomas Fund The Chalfont Foundation Mr. Joel Geeske Foundation Mr. Gerald C. Hayward Mr. John Cheatham Mr. Richard K. and DL Power Technology Corp. Ms. Marie Head Chicago Bulls Charities Mrs. Cheryl Gelber Dr. Joe Dockery-Jackson Health Care Service Corporation Chicago Power And Process, Mr. and Mrs. John Gergich Mr. David Drehobl Inc. Dr. Kathryn Gerken Mr. and Mrs. Mark Heimer Mark Duffy Chinowth Charitable Lead Trust Ms. Judith S. Gillies Mrs. Marianne Heineman Ms. Lois Dyk Ms. Josephine Chu James Gillis Ms. Debra Hernberg Eagan Family Foundation, Inc. Mr. Anthony B. Cimmarrusti Global Payments, Inc. Mr. Arthur H. Hertz Dr. Lawrence Elmer Mr. Alan L. Clark The GMK Family Fund Marilyn and Donald Hibbert Mr. Edward Erwin Ms. Allison B. Clark Mr. Bill Goloway The Hibbert Family Foundation Robert Ettleman Douglas R. Clovis Dr. Moses and Beatrice Mr. Harold Hill Ms. Reina Cohen Mr. Henry J. Faarup Goodman Fund Mr. John M. Hogan Ms. Toby Cohn Fatboy’s Saloon Ms. Patrice Gordon Ms. Nancy E. Hogan Coldwell Banker Residential Erin Fauber H. Gail Gordon Mr. Ken Holec Real Estate Cares Helen and Charles Fedalen, Jr. Mr. Peter M. Gotsch Holland & Knight, LLP Mr. Edward D. Colina Mr. Steven Feldman Mr. Kenneth Granat Mr. David Holtze Community Health Charities Fidelity Brokerage Services, LLC Mr. and Mrs. Douglas T. Granat Ms. Robin Holzhauer of Florida Jane Feldman Fields Mrs. Carole Gray Nancy Hopkins Reilly ConocoPhillips Company Ms. Jennifer T. Findley Green Cohan Foundation Mrs. Geri Howard Trust of Edna Cottun Mr. Mark E. Fine Meg Green Family Foundation Ms. Peggy J. Hoy Cox Media Group Ms. Judi Fishman Greenberg Traurig Ms. Judith S. Huss CreativeArtistsAgency The Five Millers Family James H. Grew Irving Place Capital Foundation, Inc. Management LP Daluge Family Fund Mr. and Mrs. Vernon Grizzard Estate of James E. Fletcher Denise and Barry R. Jackson The Gerald and Joyce Dancer The Robert & Lynne Grossman Family Fund Mr. James A. Fletcher Family Foundation Ms. Kathleen Jackson Leo Daniel Foundation Florida Power & Light Company Mr. Stuart Z. Grossman Mr. Gregg A. Jacobson Rodger L. and Gloria F. Daniels Ms. Kathleen Fones Mrs. Natalie L. Gubb Ms. Sara J. Jacoby Charitable Foundation

13 ANNUAL REPORT 2014 THANK YOU !

Ms. Lynn Jenkins Mr. Steven M. Laufer Ms. Irene McCallister Ms. Katherine Neisser Ms. Beverly A. Jensen Mr. James Lavigne The Henry F. McCamish, Jr. New Century Financial JGB, Jr. Charitable Giving Fund Lawson Products, Inc. Charitable Fund Services, Inc. Johnson Family Fund Mr. Richard Leebow Mr. Robert E. McCleary New Horizon Communications Mr. and Mrs. David Johnson The Legacy Foundation James and Marie McCurdy Newton Family Foundation Family Charitable Trust Mr. and Mrs. Robert Josefsberg William R. Leighton, Jr., MD Robert Nolan Mr. Miles McGrane Dr. Jason R. Justice Edward Leske Company NPF Hawaii Mr. and Mrs. Shawn McIntosh JSJ Family Foundation Francis and Gertrude NPF Greater Rochester Mr. and Mrs. George and Kay J.W. Mitchell Company Levett Foundation NPF South Dakota Meadors Burton and Rose Kahn Family Mr. and Mrs. Edwin and Mr. Bill Nygren Mr. Jeffry Melnick Foundation Carolyne Levy Mr. Thomas J. O’Brien H. S. Merlin Kaplan Family Charitable Fund Edwin and Carolyne Levy Lisa Orberg Charitable Foundation, Inc. Merrill Lynch Mr. and Mrs. Eli G. Katz Mrs. Lisa Padget Ms. Marilyn Lewis Mr. and Mrs. Jon Meyer Mrs. Marilyn Katzman Mr. and Mrs. Roberto and Silvia Mr. and Mrs. Matthew R. Little The Miami Foundation Anita Kaufman Palenzuela Estate of Joan V. Littlewood Mr. and Mrs. Stephen M. Mihaly Kayne Anderson Capital Marie Justine Palmer Advisors Foundation LMR Trucking, Inc. Mr. Mike Miller and Foundation Ms. Sharron G. Reiss The Kerler Family Gift Fund James L. Long Mr. John Parker The Wayne F. and Barbara B. Mr. Leigh P. Kinnamon Jane P. Long Fund Mr. and Mrs. Richard M. Miller Charitable Fund Patterson Estate of Marion L. Kintner LRWL Incorporated Miller Realty Family Mr. James Madden Mr. Michael Peffers Ms. Mildred Kirsch Philanthropic Fund Mr. and Mrs. Robert E. Klispie Family Trust Madigan Family Foundation Mr. Alan B. Mirken Perkinson Knights of Columbus FR Magnakron Corporation James and Charlotte Monhart Pamela I. Perry, Esq. Maurice J. Wolfe Council Matthew M. Maguire Mr. John Moore Edward P. Petrosky Michael A. Kolodny Mr. Allan Maier Ms. Elizabeth R. Moran Estate of Clarence Ira Phillips Mr. Jacob Kornman and Bernard Malberg, MD The Moriah Fund, Inc. Pillsbury Winthrop Shaw Ms. Sandy Linver Ms. Anastasia Malicka Deborah Morris Pittman, LLP Koshiba & Associates David Manheim Morrison, Brown, Argiz & Farra, Lincoln N. Pinsky Ms. Andria Kosich Mr. John F. Manning, Jr. LLP Ms. Ashlee Pitta-Lima The Kozyak-Silverman Mr. Robert Maresca Brian D. Morrison Charitable Fund Mr. Robert J. Pliska The Marketing Arm Ms. Mary M. Morrow Mr. Jeremy Kramer Mr. Ray Politano Edythe and William Marsa Mr. Stephen Moyer Krantz Family Foundation Mr. John D. Pope Edwin P. and Esther M. Mr. and Mrs. Charlie Musser Ms. Stephanie Krieger Estate of Mary F. Price Marshick Fund Namic Insurance Agency Jackie Kropman Mr. and Mrs. William G. Mrs. Sandy Marske Natixis Global Asset Pritchard Estate of Dianne C. Kuhrt Mr. Timothy E. Martorella Management Prudential Financial John C. Kupetz Ms. Ann M. Maxwell Nationwide United Way The Prudential Foundation Lair Family Ventures, LLC Mr. Todd Mayman Campaign Matching Gifts Program Robert L. Lambert Mayo Foundation Medical Ms. Joan M. Naughton PT Solutions Holding, LLC Ms. Donna Langston Education and Research Ms. Ambika Nayar Lawrence Puckett Mrs. Tami Lasco Mr. Michael J. McAvoy Mrs. Denise M. Neiditch-Breger Mr. Rocco V. Pugliese

14 NATIONAL PARKINSON FOUNDATION HONOR ROLL 2014

GIFTS OF $1,000 Mr. Douglas L. Schultz Mr. Bernard G. Suess Milton and Miriam Waldbaum TO $9,999 (continued) Mr. Keoni A. Schwartz Ms. Nancy C. Sully Family Foundation Elizabeth Scrivner Jeff Sultan Mr. James Walsh Ms. Mary T. Quade Lee S. Selander Suntrust Foundation Mr. James D. Ward Mr. Albert Rabil Ms. Wendy M. Serrino Franklin Surnamer Mr. and Mrs. Glenn Warren Mr. Douglas Rachlin George & Elizabeth Shearer Svoboda, Collins Management, Mr. Alvin Warsaw Kenneth L. Rall Family Charitable Trust LLC Mr. Steven D. Watts Rita Ramirez Mr. Robert Shearn Hope F. Syverson Mr. Edward Weber Raymond James and SHURE, Inc. Mr. T’s Family Foundation Mr. John C. Weicher Associates, Inc. Nancy Silverman Mr. Stanley Tedford Mr. and Mrs. Harvey M. Faye and Leonard Redlich Virginia Simmons Mr. and Mrs. Thomas and Dana Weidenfeld Rehabilitation Institute Tellijohn Mr. Thomas Weisel of Chicago Mr. Kerry C. Simons Ronald N. Sinclair The James and Patricia Tolley Wessel Family Foundation Mrs. Cheryl Remmert Charitable Gift Fund Sheila Slewett Ms. Marilyn J. Weston Ms. Katherine H. Reynolds Martin Tomberg The Sloan Family Fund Ms. M. Wexler The William D. Rhodes Robert H. Traurig, Esq. Foundation Smith & Howard, PC Estate of Norman Wexler Trigran Investments, Inc. Ms. Virginia Richert Edward W. Smith, Jr. Jay Whipple Family Harley and Sherry Tropin Fund Foundation Rocker Family Foundation Foundation Ms. Marilyn A. Smith Trukenbrod Family Foundation Dr. Jessica White and Mr. David Rogers Mr. Christopher White Mrs. Mary G. Smith Trustmark National Bank Leon V. and Marilyn L. Zygmunt & Audrey Wilf Ms. Mary R. Smith Mr. and Mrs. John W. Turner Rosenberg Foundation Martin H. Snitzer Mrs. Esta Turner Stanley and Susan Rosenblatt Trust of Robert N. Williams Family Foundation Mr. and Mrs. Nelson Soggs Mrs. Marc M. Twinney Mr. John I. Williams, Jr. Ms. Ellen R. Rosenthal Mr. Eric F. Sombers Mr. Richard H. Tyler Anthony L. Wilner Mr. Louis Roye Mr. Harry Sommer Estate of V. Virginia Tyler Mrs. Jane Wilner Regina M. Rubenstein Soros Fund Management Union Pacific Corporation Mitchell Wolfson, Sr. Matching Gifts Program United Way Of The Bay Area Mr. Arthur Rubin Foundation SPX Foundation United Way Of Central Mr. Clive Runnells Ms. Polly P. Wright Sylvia M. Stafford Maryland M. Jacki and Jim Rupert Steve Yonker Thomas L. Safran Ms. Deborah Stange United Way of Greater Philadelphia & Southern New Mr. and Mrs. Edwin York The Steel Partners Foundation The Phyllis H. Scerebini Trust Jersey Dr. Michael Youssef Senator Paul B. Steinberg W. S. Scharff Family University of Miami Yum! Brands Foundation, Inc. Foundation Mr. Mark S. Stephenoff Mr. Marcello Vaccaro Mr. Amir A. Zebian Ms. Liz Schaub Mrs. Norval Stephens Mr. and Mrs. Russell Van Nuis Mr. Tim Zeller Stuart Schecter, MD Mr. Thomas Stern Ms. Maria Vecchiotti Zissu Family Foundation Mrs. Margaret Schnackenberg The Frieda M. & Arthur W. The Vitanovec Family Mr. and Mrs. Donald and Lynn Steudel Foundation Mr. Richard W. Schoenbohm Charitable Fund Zucker Mr. Robert W. Stone Schoenstadt Family Mr. and Mrs. Malte Von Eleanor and Leo Zucker Foundation Mr. Keith Straka Matthiessen Family Foundation Mr. and Mrs. William E. John and Audrey Stratman Mr. Dennis C. Von Waaden Mr. Daniel Zuckerman Schroeder, IV Mr. Walter Struve

15 ANNUAL REPORT 2014 E. Richard Alhadeff Ida Hutzler Charitable Trust Leo M. Amoroso Edward D. Jervey Helen C. Avchin Rachel K. Johnson Eugene M. Bane Charitable Trust Yetta Kaemmer

A. Jeffrey Barash Barry Kaye NATIONAL PARKINSON FOUNDATION Ben Berkowitz Heinrich E. Kolbel Hanes Lassiter Leonard M. Bielski Helmut Leeser LEGACY SOCIETY Connie Bierlein Dorothy Marienau Jean Bressler Erna L. Mayer Marshall R. Burack John McConeghy Legacy Society members are a select group of Maida Burka James & Marie donors who have recognized the National Parkinson Tom Campbell McCurdy Family Charitable Trust Kari Clark Foundation in their wills, trusts, estates and other Karen A. Moschetto Estate of Lewis F. and planned gifts. Their generosity and forethought Mildred E. Collier Anna M. Nalbandian will help thousands of Parkinson’s patients live Richard and Susan Kimrey D. Newlin Comeau Paul F. Oreffice better lives in the years to come. We would like to Robert A. Coppenrath Ruth Orfield recognize the following Legacy Society members: Deloris Crews Margaret Paul Thomas A. Curtis Anne Romanello Burke and Rena Dambly Kim Schrotenboer

Esther Danielson Alan M. Slewett

Mary Dexter Centre Unversaw

Mary J. Elioff Miguel Vargas

James A. Enloe Dorothy M. Vaughn

Alvin Gardner Michael L. & Antoinette H. Wilkerson Dr. Moses & Beatrice Goodman Fund Bruce Wisnicki

Genie B. Hollen

16 NATIONAL PARKINSON FOUNDATION TEAM HOPE

Every year, our Team Hope for Parkinson’s™ members take the lead in creating unique ways to build awareness of Parkinson’s disease and raise funds for the National Parkinson Foundation. The list below acknowledges the nearly 100 marathon runners who particpated in community fundraisers that took place between July 1, 2013 and June 30, 2014. We would like to extend our sincerest gratitude for your creativity, energy and commitment.

Executive Monetary Management staff participating in the Chase Corporate Challenge in Memory of Martin L. Solomon

TEAM HOPE™ MEMBER NAME • EVENT NAME

Robyn Abner • Miami Half Marathon Nicholas Mandich • Miami Half Marathon Devin Albert • Shaken Not Stirred in Honor of Sandy Albert Justin Mark • Pastries for Parkinson’s Allstate Insurance • Fight Back, Move Forward Awareness Walk Alexandra Marsek • Earthly Treasures, LLC Jewelry Show ALM Media • Passing of the Gavel Matthews Medical Books • Dress Down Day Rose Babcock • Team Babbingham for Parkinson’s McGladrey, LLP • Jean’s Day Blake Middle School • PJ’s for Parkinson’s Mer Rouge Community Chest • 34th Annual Drive Bravelets, LLC • Parkinson’s Charity Bracelets Sarah Nedde • Dallas Half, Full and Relay Marathon Bristal Assisted Living • Facebook Campaign Ni River Middle School • Student Council Association The Cadence McShane Corporation • Jean’s Day Amanda Orsillo • Whatever It Takes Bracelets Marshall Campbell • Ragnar Relay Palermo Elementary Parent Teacher Club • Denim Day Amy Cantu • Marine Corps Marathon Michael Pearson • Marine Corps Marathon Card Playes Club, RPI • Student Event Donna Peterson • Jean’s Day Giddel Casadesus • Marine Corps Marathon, Miami Half Marathon Melissa Phillips • Marine Corps Marathon Catch the Cure • Paddle for Parkinson’s Pulte Mortgage, LLC • Jean’s Day Annette Chu and Natalie Ng • Bay Area Golf for Parkinson’s Pura Vida Bracelets • Parkinson’s Charity Bracelets Linda Cibula • Mardi Gras Ball John D. Kelly, III Family • 15th Annual John D. Kelly, III Memorial Logan House 5K Brenna Clark • OneAmerica 500 Festival Mini-Marathon Cristina Ramirez • TriathlonMami Does An IronMan For Dad Monica Conroy • Flying Pig Half Marathon Terri Rauseo • Unmask a Cure for Parkinson’s Disease Kimberly Curtis-Scheer • Marine Corps Marathon Brian Reetz • Reetz Rebel Run Fausto De La Grana • Miami Half Marathon Mike Ricciardelli • Marine Corps Marathon Madison Deniston • Par for Parkinson’s Sara Rosenberg • Miami Half Marathon Amanda DiPaola • Curious for a Cure Rosenthal Automotive • Cars for a Cause Seth Dunn • Ponies Against Parkinson’s Shannon Rusbudlt • Fashion’s Fight Against Parkinson’s Rachel Ely • Coach Katie Althea Silver • Silpada Jewelry Fundraiser Cristina Fernandes • Chase Corporate Challenge in Memory of Martin L. Solomon St. Luke’s Center for Neuroscience • Polka for Parkinson’s Flat Creek Baptist Church • The Chris Gaunt 5K Run/Walk Over Parkinson’s Stafford Rosenbaum, LLP • Casual for a Cause Day in March Daniel Fruik • Attacking Parkinson’s Disease Brian Stroud • Senior Project Memorial Walk Garden of Life • Ocean 3’s Better Brain donations John Swartz • Marine Corps Marathon Harold Garoutte • Shakin’ Not Stirred Benefit Carmen Tank • Carmen’s Ride for Parkinson Disease David Goldberg • TransAm Bike Race The Gage Restaurant • Michael Jackson Beer Hunter Documentary Theresa Gordon • Marathon Runner The Johnson Chamber of Commerce • United Fund Drive GTE Financial • Jean’s Day Thurmont Middle School • Candy Bingo Alan Jackowitz • Record Store Days Miami Megan Tidmore • Marine Corps Marathon John J. Ahern Middle School • Second Annual Choose Your Charity Walk-A-Thon Chris Tidmore • Marine Corps Marathon Allison Kallevig • Miami Marathon, 40 Miles on 40th Birthday TRC Global Solutions • Jean’s Day Keenan Antiques • Summer Wade Fest Washington Lake Combined Charities • Annual Charity Drive Alisha Khan • Chicago Half Marathon Curt Weeden • Dutch Island Book Donations Rachel Klammer • Coins for the Cure Jamie Whalen • Sole Trainers, Lincoln Presidential Half Marathon Michelle Kravat • Atlanta Half Marathon Jay Whipple • The Common Game Virtual Bridge Tournament Alison Loria • San Francisco Marathon Wixon • Dress Down Day P.D. Love • Marine Corps Marathon Katherine Wolinsky • Miami Half Marathon Kristen Maguire • Marine Corps Marathon Saul Wolinsky • Miami Half Marathon Kelley Malcolm • Miami Half Marathon Janet Wu • Musicians of the Auger Trio Charity Concert Matthew Wukovitz • Marine Corps Marathon 17 ANNUAL REPORT 2014 2013-2014 FINANCIAL HIGHLIGHTS CHAPTER SERVICES PUBLIC EDUCATION As illustrated below, the National Parkinson Foundation directed 71% of its 2013–2014 spending on mission-related activities and 29% on fundraising and management combined. RESEARCH

Interest income & Realized Gain PATIENT CARE SERVICES EXPENSES BY CATEGORY

Chapter Services $ 1,868,503 | 22%

Public Education $ 1,985,020 | 23% Total Operating Expenses 100.0% | $ 11,899,923

Subtotal Mission-Related 70.9% | $ 8,436,141 Interest Income Patient Care Fundraising Services 19.7% | $ 2,348,419 $ 3,004,426 | 36% Special Events General & Administration $ 9.4% | 1,115,363Legacies and bequests CHAPTER SERVICES Research $ 1,578,192 | 19% Private and Corporate PUBLIC EDUCATION

RESEARCH

PATIENT CARE SERVICES REVENUES BY CATEGORY

Special Events $ 173,205 | 2% Interest Income & Realized Gains $ 1,535,693 | 14%

Total Revenue Legacies $ 11,186,240 & Bequests $ 2,615,507 | 23%

Private & Corporate Total Year-End Assets $ $ 6,861,835 | 61% 16,948,204

18 BOARD OF BOARD OF DIRECTORS DIRECTORS

The National Parkinson Foundation is privileged to have an outstanding and dedicated group of volunteers who generously donate their time and talents by serving on the NPF Board of Directors. Without their selfless efforts, the work of the foundation would not be possible.

OFFICERS MEMBERS EMERITUS BOARD

John W. Kozyak, Esq.* Daniel Arty, CPA* Edythe Kay-Marsa Chairman of the Board A. Jeffrey Barash, Esq. Harold P. Kravitz, Esq.* President Emeritus Bernard J. Fogel, MD* J. Gordon Beckham, Jr. Past Chairman Paul R. Blom Jo Ann Pepper Oreffice Erin R. Borger Paul F. Oreffice* Alan M. Slewett Ricardo Caporal Chairman Emeritus Robert H. Traurig, Esq. Carmen Y. Cartaya, Esq.* Andrew B. Albert* Patricia de Stacy Harrison Vice Chairman Alessandro Di Rocco, MD E. Richard Alhadeff, Esq.* Alberto Dosal Vice Chairman Honorable Shelley J. Kravitz In Remembrance of Marshall R. Burack, Esq.* Timothy Martorella Martin L. Solomon Secretary Mindy McIlroy* Robert M. Melzer* NPF Board Member Gail Milhous 1936-2014 James F.T. Monhart* Roberto L. Palenzuela Enrique J. Sosa, PhD* Senator Paul B. Steinberg, Esq.

*Member of the Executive Committee

19 ANNUAL REPORT 2014 SENIOR LEADERSHIP TEAM

The entire team at the National Parkinson Foundation is a group of compassionate individuals committed to making a measurable difference in the lives of people living with Parkinson’s.

Joyce A. Oberdorf Leilani Pearl President and Vice President Chief Executive Officer Marketing and Communications

Michael S. Okun, MD Peter Schmidt, PhD National Medical Director Vice President Research and Professional Programs, Ariel Y. Deutch, PhD Chief Information Officer Chair, Clinical & Scientific Advisory Board Darcy Taylor Vice President Oksana Cardini, CPA Constituent Relations Vice President Finance & Administration Robert G. Shaw Senior Director Amy Gray National Signature Events Vice President Chapter Relations and Community Partnerships

20 ORDER YOUR AWARENESS ITEMS

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21 ANNUAL REPORT 2014 JOIN MOVING DAY® A WALK FOR PARKINSON’S!

Taking place in cities across the United States, Moving Day® is your chance to speak up about Parkinson’s disease and move others to take action. It is a movement for change — toward more awareness, more funding, and more understanding of a disease that affects so many of our family and friends. We use movement as a symbol of hope and progress because of its essential role in treating Parkinson’s. So choose to move any way you can by walking, stretching or doing yoga in our signature Movement Pavilion. Every move you make and every penny you raise will bring us closer to beating Parkinson’s!

Find a Moving Day® walk near you at www.npfmovingday.org.

22 200 S.E. First Street Suite 800 Miami, FL 33131

800.4PD.INFO (473-4636)

www.parkinson.org

Engage and interact with the Parkinson’s community and the National Parkinson Foundation on social media.