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impactSPRING 2009 | VOL 9 ISSUE 1 Whole and the Free Diet – Can You Still Be Whole Without the ? By Lara Field, MS, RD, LDN Let the whole grains reign, make half of your grains whole, make sure ingredient lists include the word “whole”. These are some of the catchy statements promoting whole consumption these days. What do these messages mean to For more information on nutrition, please those following a gluten-free diet? Can we still include whole contact: Lara Field, MS, RD, LDN. grains when avoiding wheat? [email protected] According to the U.S. Dietary Guidelines, at sugar. This excess of sugar causes insulin lev- of these parts, you are missing the benefits of least three servings (48 grams) of els to rise, which over time could cause insulin the whole grain and may not be receiving the per day should be consumed to improve insensitivity, leading to . Furthermore, key health benefits they provide. health. Some of these health benefits include: eating whole grain can decrease risk of certain types of including colorectal and stom- Tips to find whole grains: Managing your waistline ach cancer. 1. Look for the words WHOLE on the ingre- Choosing whole grains may help you battle the dient label. Don’t be misled with foods that bulge by reducing the feeling of hunger. Whole What are whole grains anyway? claim to be “multi-grain” or “high fiber”. Those grains include fiber, which helps you eat less at It is important to understand the term “whole don’t necessarily mean whole grain. Look for by making you feel fuller faster, thus less- grains.” Whole grains do not only come from the words WHOLE such as WHOLE GRAIN ening the chance of overeating and packing on wheat. Whole grain can come from , corn or WHOLE GRAIN CORN. extra calories during the day. and other grains in addition to the forbidden gluten-containing grains, wheat, and . 2. Look for foods marked with a 100% whole Reducing risk of heart disease grain council stamp. Studies have found that whole grains help re- There are three natural parts of a grain kernel: duce risk for heart disease by slowing buildup 1) , 2) , and 3) germ. Together 3. Choose foods that are a “good” or “excel- of arterial plaque. As compared with diets these equal the whole grain. Each of these parts lent” source of fiber. The amount of fiber in a rich in refined , recent research has benefits. The bran is the outer shell whole grain varies depending on the type showed the levels of wom- which protects the and contains fiber, vita- of grain, amount of bran, density of the product, en who replaced the sources mins and trace minerals. The endosperm pro- and moisture content. Labeling regulations al- with whole grain were significantly lower. vides energy, carbohydrates, and . The low a food to be called a good source of fiber if germ is considered the “nutrient storehouse” and the food contains 2.5 to 4.9 grams of fiber per Lower diabetes and cancer risk contains , and healthy . serving; an excellent source if it contains more After a , your body quickly breaks down than 4.9 grams per serving. refined carbohydrates to its simplest form of If you consume foods that leave out one or two >> continued on page 2 >> continued from page 1 The most common types of whole grains are brown rice, , popcorn, and . Less common types of whole grains include: : High in protein, calcium, and iron, amaranth is a small, golden colored grain that is nutty flavored. It can be used to thicken Stefano Guandalini, M.D. , ground into and prepare baked Founder and Medical Director goods. It is a good substitute for rice and is also University of Chicago Comer Children’s used to make . Hospital Section Chief, Pediatric : Millet is a tiny grain that can be cooked Gastroenterology, Hepatology and Nutrition and eaten like rice or used to make baked goods such as and muffins. Millet can Advisory Board also be mixed with sliced or . Deborah Gordon, Board Chairperson Millet is a good source of manganese, magne- Tripti Kasal, Vice Chairperson Stuart Gordon, Treasurer sium, and phosphorous. Bonnie Sclamberg, Membership : Sorghum is a small round berry Lara Field, M.S., R.D., Secretary that can range in color from white to cream to Leonard Gail, Immediate Past Chairperson yellow. Sorghum is one of the top five most Lisa Aiken important cereal crops behind rice, wheat, corn Susan Blumenfeld and barley. It has a hearty, chewy texture that Rebecca Christopher is a perfect substitute for barley or in Cindy Day Erwin soups and side dishes and even can be popped free crackers Mark Fitzgerald like popcorn. • Try as a side dish instead of rice or Gary Frank potatoes Joyce Frank What about or Quinoa? Are • Choose that is made from whole grain Beckie Gorin Lara Hamilton, R.D. these whole grains? instead of Bana Jabri, M.D., Ph.D. Though these are not actually considered • Use whole grain corn tortillas for a fantastic Kim Koeller “grains” these are excellent sandwich wrap Laura I. Lazarczyk sources of nutrition that should be incorporated • Try amaranth crumbs in casseroles or Karen Luby into every gluten-free diet. as a meat or poultry coating Judy Petrungaro Buckwheat: Similar to a , buck- Gail Pierce wheat is a single seed inside an outer hull, rich How do I get 3 servings (48 g) of whole Carol Semrad, M.D. in iron, and selenium. Buckwheat is found grains per day? Sara Star, M.D. as flour, to make noodles or in baked goods or It can be confusing to understand what counts as Sueson Vess available as buckwheat groats that are used to a serving of whole grains. Typically half a cup Peggy Wagener make commonly called , texture of cooked brown rice, 100% whole grain pasta, Wendy Weil, D.P.M. similar to rice or . or hot cereal counts as a serving. Look for the Carol M. Shilson Quinoa: An amino acid-rich seed high in man- Whole Grain Stamp. By eating three foods with Executive Director ganese, , iron, copper, and phos- the 100% stamp, you meet your whole grain phorous. Quinoa has a fluffy, creamy, slightly needs with ease. Alternatively, eat about an Ronit Rose nutty texture. It is a fantastic side dish with ounce of a food made totally with whole grains, Program Manager meat, poultry, or fish. to get about a serving of whole grain. Tips to include whole grains into your In summary, choose your foods wisely. The University of Chicago Celiac Disease diet Don’t get bogged down by the details, and Center is dedicated to raising awareness • Replace half of the flour in your pancake incorporate a variety of foods into your meals and diagnosis rates and meeting the critical recipe with whole grain brown rice flour everyday. Explore new food products and go needs of people affected by celiac disease •Choose popcorn as a snack instead of gluten- for the whole grains! nationwide through education, research and advocacy. The contents of this newsletter are not intended to diagnose or recommend New Care treatment for celiac disease. Please consult your healthcare provider with questions Package Partners about your condition. We are thrilled to work with several new partners: For more information about the General Mills (Rice Chex cereal), Dr. Lucy’s Cookies, Bob’s Red University of Chicago Celiac Disease Mill, Bhuja Snacks Center, please contact our office: Welcome aboard to all our new partners. We are delighted University of Chicago Celiac Disease Center to introduce you to our gluten-free community, and we 5839 S. Maryland Ave., MC 4069 Chicago, IL 60637-1470 urge our readers to try your products. Ph.: (773) 702-7593 2 Gourmet Galaxy Gala Get ready for the University of Chicago Celiac What Do We Do With Disease Center’s Annual Fundraising Benefit on May 6! This year, our theme is Gourmet Your Fundraising Dollars? Galaxy, and we will have an entire universe of Chicago’s finest chefs, offering the very best of The University of Chicago Celiac Disease Center has so many different programs and areas, and their gluten-free . The restaurants and they are all supported by our fundraising efforts. Many readers will be familiar with our programs chefs represented are: and services, but for those who are not, here is a synopsis: A New Dawn McCormick & Adobo Schmick’s Medical Research: The University of Chicago Celiac Disease Center’s research program is Dr. Berry Chill Mitchell’s Fish Bana Jabri. Dr. Jabri is pursuing several areas of potential new discoveries and therapies for celiac Market Ben Pao disease. She is very close to developing a mouse model for celiac disease to test new therapies and Mon Ami Gabi treatments for the disease. This will be the first of its kind in the world. Café Ba Ba Reeba Papa Lena’s Medical Education: The University of Chicago Celiac Disease Center holds a two-day annual City Park Grill Pear Tree Catering Preceptorship Program to educate medical professionals about celiac disease. The participants Da Luciano P.F. Chang’s China attend two days of lectures, discussions and clinics with a wide variety of experts in celiac disease Deerfields and related specialties. Physicians, nurse practitioners and dietitians are all encouraged to apply. Bistro Flemings Prime Information is on our website at www.CeliacDisease.net. Pinstripes Steakhouse and Advocacy: The University of Chicago Celiac Disease Center is a founding member of the Ameri- Wine Bar RL can Celiac Disease Alliance, based in Alexandia, VA. The Center works closely with the ACDA on Francesca’s Roh & Jo’s Gluten core public policy issues such as improving gluten-free lifestyles, implementing national standards Restaurant Free Sweets for gluten-free products, mandating gluten-free lunches and improving labeling laws. For more Rose’s Wheat Free information on the ACDA, visit www.americanceliac.org. Kendall College Bakery & Café Blood Screening: Every October, the University of Chicago Celiac Disease Center holds a free Maggiano’s Little Smokin’ T’s BBQ blood screening for individuals at risk of celiac disease. To date we have screened more than 2,800 Italy individuals, and found approximately five percent of them to be positive.This year’s Screening Marcello’s Father Swirlz Cupcakes date is October 10th. Please check our website for information about registration in the coming and Son Vinci months. Wildfire Information Line: The Celiac Center’s Information Line is a great resource for information about In addition to the sumptuous food, we will celiac disease. If we do not have the information at hand, we will do our best to steer you to the have a great silent and live auction. The live best resources to find it. While we are not able to staff the Information Line 24/7, all calls are per- auction will feature some fabulous vacation sonally addressed and returned within 48 hours. homes, from the Florida Keys to romantic Care Package Program: The Care Package contains gluten-free food samples and written infor- Italy, as well as sports packages and more. The mation to help the newly diagnosed celiac patient get started on the gluten-free diet. The samples silent auction offers a great selection of gluten- range from pasta to mixes to crackers, and the information includes a booklet entitled “Jump free baskets and gift certificates to stores and Start Your Diet,” written by University of Chicago pediatric dietitian Lara Field, with recipes restaurants, as well as many other wonderful by Celiac Center board member Sueson Vess, a magazine on living gluten-free, and many other items. helpful items. The Care Package is available to new patients within three months of their biopsy- you can get more information or buy tickets confirmed diagnosis. for this wonderful event at our website, Outreach: We spread the word about celiac disease with an active schedule of appearances at vari- www.CeliacDisease.net, or by calling us at ous events, and participating in major international meetings. Last year we maintained a booth at (773) 702-7593. the annual American Dietetics Association convention in Chicago, which gave us the opportunity to speak with hundreds of dietitians about celiac disease. In the coming months, the Celiac Center will participate in THRIVE: Expo, Digestive Disease Week, and the 13th Annual Interna- tional Symposium.

To keep up with our many endeavors, please visit us at: www.CeliacDisease.net.

Enjoy a lovely, relaxing vacation in Italy! >>

3 Going the Distance True or Lots of people ask us how they can get their friends and family in- False?—Test volved in fundraising for celiac disease. To help make things easier, we created a program called Going the Distance. Going the Distance is a kit that we provide for you to hold Your Celiac your own fundraising campaign, in the way that best suits you, be it a Jeans Day at your office, a Knowledge: local community walk or any other type of event or activity. Q: There are several valid ways to test for To find the kit, go to”http://www.celiacdisease.net/fundraising . Scroll down, and you’ll see a celiac disease; stool testing is one of them. list of documents to help you get started. They range from a Sponsor Sign-up Sheet to samples of request letters and thank you notes. It even includes a fact sheet about celiac disease, that you can A: False. The only way to screen for and print out and give to your supporters to help spread awareness about celiac disease. diagnose celiac disease is through antibody The best known example of a self-created fundraiser is the suburban Chicago “Skate for Ce- blood tests and an endoscopic biopsy. Stool liac”. A group of six hardworking mothers and their children created the highly popular “Skate for tests are not a valid way to test for celiac Celiac” event in Highland Park, IL. Skate for Celiac 2009 took place on March 29, and, for the disease and have no scientific credibility in third year running, had a sell-out crowd. Guests bought tickets and enjoyed an hour and a half of helping diagnose celiac disease. ice skating, as well as a raffle and delicious gluten-free treats.The event benefited the University of Chicago Celiac Disease Center. Q: Celiac disease is a recessive trait—you Skate for Celiac is the perfect example of how the Going the Distance program works: All you need to inherit the gene from both parents in need is a good idea and a desire to further the important work of the University of Chicago Celiac order to develop the disease. Disease Center. The summer months are a great time to fundraise; communities have so many events that you A: False. Celiac disease is a multifactorial can participate in and ask your friends and family to sponsor you. It’s not too early to get started, disease, meaning it needs both, genes choosing your event or creating your own. Good luck! and environmental factors to develop. The genes associated with celiac disease are known as DQ2 and DQ8. Just one copy of either of the two genes is sufficient to put you at risk to develop the disease. You can develop it if you inherit the gene from just one parent.

The UnifiedV oice of Celiac Disease

• Driving Critical Policy • Advocating for Improved Gluten-Free Lifestyles • Educating Consumers & Decision Makers • Informing Health Professionals Skate for Celiac: • Working for GF Standards a simple idea • National School Lunch took on a life of Program its own to help • Gluten-Free Labeling support the Laws Celiac Center. Learn more at www.AmericanCeliac.org

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