AUTUMN

NEWSLETTERTHE NEWSLETTER OF ALZHEIMER’S AUSTRALIA SA 2013

SERVICES • EDUCATION • Q&A • PEOPLE • NEWS AUTUMN NEWSLETTER CONTENTS For members and people interested in the activities of Alzheimer’s Australia SA Inc. 3 CEO & Chairman's Anniversary Message

Patron 4 Thirty Years On The Hon Dr Kemeri Murray AO CEO 6 2012 Australian of the Year; Ms Kathryn Cunningham Itta Buttrose Board of Directors Chairman 9 Valentines Day Campaign Mr Tony Newman

Vice Chairman 10 Creative Aging Awards for Excellence Mr Tim White

Company Secretary & Public Officer Dignity in Care: It Matters Ms Kathryn Cunningham Ms Alison Kimber 11 LGBTI and Dementia Project Mr John Giles Mr Alan Bevan 13 Senate to Investigate Dementia Care Mr Scott Langford Ms Jenny Richter Consumers Alliance Mr Michael Janus

Rosemary Foundation for Memory 14 Safe Return Support Inc. Patron Upcoming Events His Excellency, Rear Admiral Kevin Scarce, AC, CSC, RANR, Governor of SA 10 Ways AASA Can Help Public Officer Ms Kathryn Cunningham 15 Access & Equity Unit Board of Directors Vice Chairman 16 Research Dr Jane Hecker 17 Team TLC Hon Secretary Prof John McKellar 18 Forget Me Not Rose Treasurer Mr Ian Conrad Q&A Mr Tim White Ms Kathryn Cunningham 19 Community Fundraising Mrs Patsy Bennett Hon Greg Crafter Mr John Haigh Members Make a Difference Mrs Joan Lyons Prof Alistair Goss 20 Donation Form Crossword

Alzheimer’s Australia SA Inc 27 Conyngham Street, GLENSIDE SA 5065 Phone: 08 8372 2100 NATIONAL DEMENTIA HELPLINE: 1800 100 500 F: 08 8338 3390 E: [email protected] W: alzheimers.org.au rosemaryfoundation.org.au

Disclaimer: Articles in this publication provide a general summary only of the subject matter covered. Any person with dementia or carer for a person with dementia should seek professional advice about their specific case. Alzheimer’s Australia SA Inc is not liable for any error or omission in this publication. Permission should be sought from the editor before reproducing articles. Once permission is given the source must be acknowledged. CEO & CHAIRMAN’S REPORT ANNIVERSARY MESSAGE Kathryn Cunningham Tony Newman CEO Chairman

elcome to our special edition of the Alzheimer’s Australia SA newsletter in which we celebrate our 30th W Anniversary of service to people with dementia, their families and carers in South Australia. It has been an extraordinary journey, from the very first meeting held on Saturday the 19th February 1983 by a group of 750 concerned South Australians who advocated the desperate In just 3 short need for an association to represent people with dementia their decades we have families and carers, to the organisation that we are now, the peak body in South Australia leading the fight against dementia. In just grown to support 3 short decades we have grown to support thousands of people in need each year. With over 70 dedicated and passionate staff thousands of members delivering services right across our state. AASA now has offices in Adelaide, Port Lincoln and Mount Gambier. people in need each Today AASA delivers a suite of services serving people with dementia and their carers. These services include clinical, year. With over community and community development programs. Education and workforce training has grown over the years and we have 70 dedicated provided training to thousands of people in South Australia. and passionate As we celebrate our past 30 years it is not possible to do so without thinking about all of the people who have been impacted staff members by dementia, their families and friends who have reached out to AASA. delivering services We know our organisation has made a difference in the lives of many South Australians. right across our Our organisation would not be what it is today without the contribution of the people who gave freely of their time and state. expertise to serve on our board and to govern our organisation. We also place on record our thanks to our volunteers, past and present, who assist with programs, workshops, events and fundraising. Thank you to our members and friends, and to all those wonderful individuals and organisations that support our work through their kind donations, sponsorships and partnerships. We also acknowledge the support of our State and Federal Governments.. Over the years our funding has grown to assist more people that have been impacted by dementia and the need for funding will continue. No matter what part you have played in our 30 year journey we sincerely thankyou for your support.

Kathryn Cunningham CEO Tony Newman Chairman

AUTUMN NEWSLETTER 2013 3 COVER STORY THIRTY YEARS ON AND THE FIGHT CONTINUES

IN 2013, ALzHEIMER’S AUSTRALIA SA CELEBRATES ITS 30TH BIRTHDAY. AASA HAS GROWN FROM A FEW PASSIONATE VOLUNTEERS TO BE THE PEAk ORGANISATION FIGHTING FOR PEOPLE WITH DEMENTIA, THEIR FAMILIES AND THEIR CARERS.

1983 1985 1989 1992 1995 1998 The Alzheimer’s The first round of ADARDS is given ADARDS now In March a The Rosemary Disease and government $500,000 by Home known as building appeal Foundati on is Related Disorders funding was and Community Alzheimer’s commenced and established as a Society of South received from the Care (HACC) which Association (SA) raised over capital fund to Australia [ADARDS Minister of Health, enabled major Inc to assist the $300,000 by June generate income for SA] is Born . Dr John Cornwall. growth and a nationwide to help the AASA. $75,000 over three move to new promotion constructi on of years. premises . strategy. With the the new Family slogan “Sharing Resource Centre the Caring”. (opened 1996).

4 AUTUMN NEWSLETTER 2013

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COVER STORY

Alzheimer’s Australia SA is grateful for the generosity of the community and continues to grow and serve the needs of people with dementia, their carers and families as we progress on this journey forward together.

t’s 1983. Australia II has won the America’s Cup, Bob a small office shared with staff of Glenside Hospital with all Hawke is Prime Minister, the last episode of M.A.S.H is funds kept in small donation tin. Iseen by 125 million people, The Ash Wednesday Bush Through volunteer; Zsoka Prochazka’s incredibly hard Fires devastate South Australia. work and lobbying of government in 1985, ADARDs was Alzheimer’s Australia South Australia is born... given its first round of funding of $75,000 over three In 1983 with the tremendous efforts of a group of years and by 1989 received $500,000 from Home and volunteers the fight against dementia was started. This Community Care (HACC) which allowed the organisation amazing group gave of their time, energy and wisdom to to expand onto new premises and begin counselling ensure that we could become what we are today. services. This hearty band of volunteers, (The Downey Grove March 1995 a building appeal commenced and by June Relatives Group at Glenside Hospital), recognised there 1995 had raised over $300,000 of the $380,000 needed to was a real need in the community to educate, care and help toward the construction of the new Family Resource encourage research into Alzheimer’s and Dementia. Centre. March 1996: The official opening of the new centre They began their journey in early 1983, and held the at Conyngham Street first public meeting to discuss an association which was Over the past 3 decades, funding and donations have held on 19 February, over 750 people attended, despite increased from both government and the community at South Australia still in a state of shock following the Ash large and AASA has grown in staff and volunteer numbers Wednesday bushfires only 3 days earlier. which have assisted in the implementation of successful Due to the overwhelming response and huge success support programs and services. Alzheimer’s Australia of the meeting, the new organisation was born, The SA is grateful for the generosity of the community and Alzheimer’s Disease and Related Disorders Society, continues to grow and serve the needs of people with (ADARDS SA Inc). dementia, and their carers and families as we progress on The original committee was supported by a volunteer this journey forward together. roster 5 days a week to assist with administration duties in

1999 2002 2005 2006 2011 2012 AASA becomes a Formal adoption of Opening of the The first regional Alzheimer’s The Federal registered training the new name: Rosemary Garden office was Australia adopts Budget recognised organisation. The Alzheimer’s by Her Majesty, established in Port new branding. dementia as a innovative Safe Australia SA. Queen Silvia of Lincoln in Versatile and national health Return project in Sweden in partnership with strong; reflective priority, conjunction with November who West Coast Home of how far the committing $268.4 SA Police for also observed Care. The organisation has million through people with group sessions Connexus program come. the Living Longer, memory loss is for people with (lifestyle program Living Better aged launched. dementia and to support people care reform carers. DBMAS with younger package to tackle secured Funding. onset dementia the disease. and their carers).

AUTUMN NEWSLETTER 2013 5

RECENT NEWS

Ita buttrose: Australian Of the year winner Ita Buttrose, Alzheimer’s Australia National President, was named Australian of the Year for her work in the media and as a champion of medical causes.

lzheimer’s Australia’s National President has The CEO of AlzSA, Kathryn Cunningham, said that been named the 2013 Australian of the Year. joining such luminaries is a very well-deserved honour Ita Buttrose was honoured in recognition of for Ita. Aher groundbreaking media career and the commitment “We are thrilled that Ita has been recognised so she has made to championing medical education and appropriately for all she has done,” Kathryn said. “Ita has health care. not only had a trailblazing media career, she has done “The men and women we honour are our tall poppies, an enormous amount in the health and charity sector. who have grown high in achievement and stature,” said Since taking on the role of President of Alzheimer’s Prime Minister Julia Gillard at the presentation. Australia, Ita’s leadership in the organisation’s Fight “Through the Australian of the Year Awards, we don’t Dementia Campaign contributed to the April 2012 cut them down, we lift them up, honouring in them all announcement of the ‘Living Longer. Living Better’ aged that is best about our nation, our values and ourselves.” care reform package by the Prime Minister Julia Gillard Ita is the first female to be named Australian of the and the Minister for Mental Health and Ageing Mark Year since Dr Fiona Wood was honoured in 2005, Butler, and to dementia being named a National Health and joins the ranks of Dr Wood, plastic surgeon, Priority Area.” ‘spray-on skin’ pioneer and one of the main figures Ita has great compassion and dedication to the cause. in disaster management following the 2002 Bali “Ita is a very worthy recipient of such an honour,” bombings; Australian test cricket captains Allan Kathryn said. Border, Steve Waugh and Mark Taylor; Australia’s first Indigenous senator Neville Bonner; opthamologist and humanitarian Professor Fred Hollows; scientist and author Professor Tim Flannery; and winners of the Nobel Prize for Medicine, Professor Peter Doherty and Sir John Eccles.

6 AUTUMN NEWSLETTER 2013 “ON BEHALF OF ALL OUR MEMBERS AND PEOPLE LIVING WITH DEMENTIA, WE WOULD LIkE TO CONGRATULATE ITA AND THANk HER FOR HER ONGOING COMMITMENT AND DEVOTION TO OUR ORGANISATION.”J

AUTUMN NEWSLETTER 2013 7 RECENT NEWS

As well as working in the spotlight to garner support for dementia research and care, Ita also hits the street to talk to the public.

1976 1981 1942 Refused a bank loan despite being Becomes Editor-in-Chief of the Daily Born in Sydney’s Potts Point. one of the highest-paid women in and Sunday Telegraphs — first woman Australian media. to edit an Australian metro newspaper.

1949 1975 1980s Returns from New York, where her Becomes Editor of Women’s Weekly, Chairs the National Advisory father, former Daily Mirror editor which achieves the world’s highest Committee on HIV/AIDS, becoming Charles Buttrose, had been working. circulation per capita. the public face of AIDS education.

1957 1972 Leaves school to start working as a Cleo launches under Ita’s editorship, 1989 ‘copy girl’, aged 15, on The Australian when “women had to drink in a Launches Ita magazine. Women’s Weekly. separate area to men in a bar!”

1959 1966 2011 Covers the Australian tour of Princess Wins a ticket to the 1967 World After several years of involvement in Alexandra as a cadet, aged 17, for Expo in Montreal, prompting Alzheimer’s Australia, Ita becomes the Daily and Sunday Telegraphs. several years living overseas. National President.

8 AUTUMN NEWSLETTER 2013 RECENT NEWS VALENTINES DAY CAMPAIGN

undreds of people in SA shared their favourite memories better care for people living with the condition are grossly on Valentines Day to help call for investment in underfunded,” Ms Buttrose said. “Australia has some of the Hdementia research. world’s leading dementia researchers, but the sector lacks the The team from South Australia along with the ‘Queen of capacity of long-established health research areas, so vital Hearts’ were located at Rundle Mall on Valentine’s Day and had research into new treatments and interventions is falling behind. the opportunity to ask members of the public to plant memories “An investment of $200 million over five years is the only way that will last a lifetime, in support of a call for $200 million to be Australia will have a chance at working towards a world without directed to dementia research over the next five years. dementia.” The event showcased a six-foot memory tree that came to In 2012-13, the National Health and Medical Research life as people customised leaves with their favourite memories. Council allocated $21.5 million for dementia research, compared Alzheimer’s Australia’s National President and 2013 Australian of with $162.4 million for cancer research, $93.6 million for the Year Ita Buttrose said the event was about raising awareness cardiovascular disease research, $63 million for diabetes of the need for a much greater investment in dementia research. research and $55.1 million for mental health research. “Research into the causes and treatments for dementia, and

AUTUMN NEWSLETTER 2013 9 RECENT NEWS Creative Ageing Awards for Excellence practice and innovative arts and health programs, effective health promotion & prevention campaigns, methods of project evaluation and scientific research. The conference regularly attracts high profile key note speakers both locally and from around the world such as Dr Gary Christenson, Clinical Associate Professor Psychiatry, University of Minnesota, & Vice President Society for Arts in Healthcare, Washington DC, Molly Carlile, Manager, Palliative Care Services, & Arts in Health Program Manager, Olivia Newton John Cancer Centre for Wellness both part of Austin Health, Melbourne, Clive Parkinson, Director Arts for Health, Manchester Metropolitan University and Mike White, Research & Development Fellow, University of Durham Deb Treherne (L) , Pamela Aldridge (R) with Margret Meagher (centre) Executive Director, Pamela presented on Montessori-based activities, principles Arts and Health Australia (AHA)& Founding and methods for people with dementia, which focuses on four Director, Australian Centre for Creative Ageing domains: motor skills, sensory, cognitive, and roles & routines to maintain interests and skills to enhance wellbeing. The lzheimer’s Australia SA Dementia Educators, Pamela delegates were positively impacted by the DVD portraying Aldridge and Deborah Treherne were presented with Thelma, a lady with dementia, happily engaged in Montessori ACreative Ageing Excellence Awards at the 4th Annual activities with her daughter Cheryl. Thelma’s MMSE (Mini Mental International Arts and Health Conference, Notre Dame University, State Examination), over the six month period of doing the three Freemantle in November 2012: being recognized as leaders in activities had increased eight points. Quite an achievement! their field by consistently delivering high quality innovative and Deborah presented on creativity and dementia care, focusing creative projects for people with dementia and their carers. on the effectiveness of Therapeutic art programs for people with Both Pamela and Deborah have been regular presenters at dementia and the difference between Art Therapy and standard the conference since 2010. art and craft programs. The annual international conference attracts leaders in the Arts and Health fields from around the world and showcases best Dignity in Care: It Matters n Friday the 1st of February 2013, Alzheimer’s Australia SA participated in the inaugural Dignity in Care OConference hosted by the Queen Elizabeth Hospital Dignity in Care group. The one day conference considered the concept and journey of Dignity in Care in South Australia and the relevance of the 10 standards of care to health care professionals. The conference theme It Matters, centred on the concept that dignity in care is not a statement but actions that ensure all patients that seek care in our service are treated with respect and the principles of dignity are applied to all aspects of the patient’s journey. Speakers included Dignity in Care Patron, Maggie Beer, and representatives from the Queen Elizabeth Hospital, Central Adelaide Local Health Network, Dignity in Care Workgroup, Country Health SA, and Alzheimer’s Australia SA. Alzheimer’s Australia SA, Dementia Behavior Management Advisory Service South Australia, and the South Australia and Northern Territory Dementia Training Study Centre are proud to participate in the Dignity in Care program.

10 AUTUMN NEWSLETTER 2013 RECENT NEWS International Guest Speakers Visit Adelaide CHRISTIAN BAKKER: Service Provision in Younger Onset Dementia: Towards an Integrated Approach

t is currently estimated that 24,400 people across Australia are living with Younger Onset Dementia. By 2050, this is set to Iincrease substantially. International guest speaker Christian Bakker, visited Adelaide on the 14th of March 2013 to discuss the unique needs of people living with Younger Onset Dementia and their families, and how services have been provided in the Netherlands. The seminar individual care programs that consist of different services that was held for people living with dementia, their carers and families can be initiated to compliment informal care. and local health professionals. The issue of younger onset dementia has been a major focus Dr Bakker is a health care psychologist from the Florence for Alzheimer’s Australia with the recent successful allocation of Group and Radboud University in The Netherlands; and is a 40 key workers nationally to our services to support people living co-founder of the Florence Centre for Specialized Care in Young with younger onset dementia. Dr Bakker left us with thoughts Onset Dementia. The impact of dementia on individuals and for the future and an international connection that demonstrates families is different for those diagnosed at a younger age. The change to support the quality of life for carers and people living Florence Centre for Specialized Care in Young Onset Dementia with younger onset dementia. provides information, support services, and care options to form

MICHELLE BOURGEOIS: Unlocking the Silent Prison: Using Visual Cues to Communicate with Persons with Dementia

picture is worth 1,000 words; and according to international guest speaker Professor Michelle Bourgeois, Acombining pictures and words can help to form memory retrieval strategies. Professor Bourgeois from Ohio State University in the USA visited Adelaide on the 9th of April 2013, to present the workshop Unlocking the Silent Prison: Using Visual Cues to Communicate You can learn more about memory retrieval skills such as with Persons with Dementia for local health professionals. spaced retrieval and Montessori methods in upcoming training Hosted by the South Australia and Northern Territory Dementia events. Training Study Centre, the workshop explored the concepts of For more information about upcoming workshops and seminars enhancing conversation and memory related behaviours for by the South Australia and Northern Territory Dementia Training people with dementia through the use of visual cues. Study Centres, visit www.dtsc.com.au/events-near-you Strategies that emphasised the use of written and graphic And watch for more information about the return of Dr Cameron cues were discussed, and the use of memory wallets, memory Camp in September 2013. Cameron will present workshops for books and reminder cards were explored as a method to assist health professionals and carers and this event will be the event behaviour and to maintain conversation skills to enhance to not to miss in 2013. overall quality of life for people living with dementia and their caregivers. Outcomes of Professor Bourgeois’ clinical research studies in the USA and Japan were discussed as well as the process of implementing activities from the studies using written and graphic cues for people living with dementia in Australia.

AUTUMN NEWSLETTER 2013 11 SERVICES ALZHEIMER’S AUSTRALIA SA LGBTI and DEMENTIA PROJECT

the LGBTI and Dementia Project continues to gain momentum in the development of a broad range of partnerships and working relationships within the various LGBTI communities

Funded by the Department of Health and Ageing in July how that will assist them in providing quality care to clients who 2012, the Lesbian, Gay, Bisexual, Transgender & Intersex may identify as LGBTI. For example strategies to deal with (LGBTI) and Dementia Project continues to gain momentum in issues, barriers and impacts of ageing and Dementia for older the development of a broad range of partnerships and working LGBTI community members, their partners, friends and family relationships within the various LGBTI communities and across of choice. the Ageing and Aged Care sector to develop dementia specific There have been many positive outcomes to date for the training with a specialised focus on the more diverse areas of LGBTI and Dementia Project and program evaluations indicates the LGBTI communities including Transgender and Intersex the acceptance and need for the inclusion of LGBTI issues in the people. In November last year David Hockley joined Norman aged care and dementia sectors. With a growing older population Radican in the development of this project. There are three which includes a significant percentage of LGBTI elders, coupled modules in development, with the first one called “The beginning with the growing incidence of dementia across the community, of a conversation”, which has been designed to raise awareness this program will equip organisations and aged care workers of frontline health workers, health professionals and aged care with the tools to provide best practice with LGBTI elders with service providers to the sexual and gender diversity and the dementia in the future. unique needs and concerns of LGBTI older adults who live with If you would like further information on the project please dementia, their partners, caregivers and networks of support. contact Norman Radican – LGBTI Project Officer on 08 8372 The LGBTI community is a culturally diverse group, workers are 2100. If you would like to speak anonymously with someone from provided with an access and equity framework which is both Alzheimer’s Australia SA you can call the National Dementia culturally sensitive and culturally appropriate while encompassing Helpline: 1800 100 500 or a person-centred approach, treating each person as an individual email us:- [email protected] with a unique set of strengths and needs. Participants overwhelming indicated that they would like to learn more about the area of LGBTI Ageing and Dementia and

12 AUTUMN NEWSLETTER 2013 SERVICES SENATE COMMITTEE TO INVESTIGATE DEMENTIA CARE

ederal Senators have agreed to investigate the care and psychiatric symptoms of dementia. Of interest to he of people living with dementia. The Senate community committee will be respite care and the reduction of the use of FAffairs Reference Committee is to explore “the care physical and chemical restraints. and management of younger and older Australians living Kathryn Cunningham, CEO of Alzheimer’s Australia SA with dementia and behavioural and psychiatric symptoms of welcomed the investigation. She said that Alzheimer’s Australia was dementia.” looking forward to supporting the work of the Senate Committee. The inquiry will look at the scope and adequacy of different Public submissions will be invited. models of community, residential and acute care; resourcing The Committee is due to report on the inquiry by 26 June 2013. those models; the scope for improving the provision of care and For more information go to www.aph.gov.au/Parliamentary_ management of Australian living with dementia and behavioural Business/Committees/Senate_Committees ALzHEIMER’S CONSUMERS ALLIANCE SA he Alliance was established in mid 2012. Membership includes current, ‘relinquished’ and ‘past’ carers and Trepresentatives from community care and aged care organisations and government and health sectors. Members have a wide range of skills, experience and knowledge. They are providing valuable insights into issues of concern for people living with dementia, their families and carers. Priorities being discussed include awareness and stigma, education, navigation support, timely diagnosis, respite and caring for carers.

NATIONAL SPONSOR: BRINGITTOTHETABLE.COM.AU See page 18 for details

Phone SA Marketing on: 08 8372 2100

AUTUMN NEWSLETTER 2013 13 SERVICES

Trial participants UPCOMING wanted for EVENTS personal safety device Alzheimer's Australia 15th National Conference Tuesday May 14 - 17, 2013 Hobart, Tasmania

Adelaide Knowledge Transfer Workshops 2013 Thursday June 13, 2013 Save the Date

Julian Hughes Workshop 'Models of dementia care: can we lzheimer’s Australia SA and one • The watch/pendant has a fully do it better?' of South Australia’s most trusted functioning emergency trigger Wednesday July 3, 2013 Aand respected organisations, the providing automatic contact to the RAA, are investigating a new piece of RAA monitoring system equipment which is designed to help • The system can be programmed Love Loss Laughter carers manage the support and care of around the individual, based on the September 2013 vulnerable people. support and care they receive and their Volunteers are being sought to daily routine. Kimberly Van Hatisma trial the experiment in their home for September 2013 approximately six weeks. As recognition What will I have to for their assistance, participants will do if I participate Cameron Camp Family receive a free Erica system and 12 in the trial? months free monitoring valued at Carer Workshops approximately $1200, should the • Undertake a simple interview in your Monday September 9 - 10 2013 investigation be proved of benefit to home to determine eligibility people with dementia and their carers. • Work with RAA to determine the DAW Dementia Awareness appropriate program for the user • The user must wear the watch/pendant Week 2013 Are you a suitable trial at all times during the 6 week trial period Monday September 16 - 22, 2013 participant? • Provide RAA with feedback on how the The new system is suitable for a couple Erica Personal Safety System works Kristine Yaffe – Dementia in their own home where one partner is in your situation including how it has Awareness Week cared for by the other, or a family unit helped or any issues Thurs September 19, 2013 that is caring for someone living with • Return the system at the end of the trial. dementia. Memory Walk Numbers of participants are limited Sunday October 27 How does the so if you are interested in trialling the system work? Erica Personal Safety System and qualifying for a free system and 12 • The emergency trigger can be worn as months free monitoring* contact the a watch or pendant National Dementia Helpline on • It is programmed into a base unit that 1800 100 500 now. will raise an automatic alert to the RAA monitoring centre if the wearer goes out of range from the base unit (about 100m in open air) • The unit can be set to different alarm delays from 3min to 60minutes to provide the user with greater flexibility • An early warning system allows onsite carers to cancel the activation if need be • An away function allows the carer to disable the system for a short period and leave the property without removing the pedant. It will automatically reconnect when you return

14 AUTUMN NEWSLETTER 2013 SERVICES ALzHEIMER’S AUSTRALIA SA ACCESS & EQUITY UNIT

Alzheimer’s Australia SA recognises the many and varied social and cultural diversities within the Australian population which are created by an individual’s unique background and life experiences.

ALzHEIMER’S AUSTRALIA SA WILL ENDEAVOUR TO WORk WITH COMMUNITIES TO DEVELOP PROGRAMS AND SERVICES THAT MEET THEIR DIVERSE NEEDS.

lzheimer’s Australia SA is leading the way in better to entrenched social isolation and situational circumstance, understanding the issues around homelessness and homeless people are far less likely to access specifi c dementia Adementia. There are many factors which may lead to services, attend dementia information and intervention programs increased homelessness, including a lack of affordable housing, and unlikely to receive dementia appropriate supports. family unit breakdown, unemployment and chronic ill health. The Homelessness and Dementia project, part of the Homelessness is a whole societal problem and it includes those Alzheimer’s Australia SA Access and Equity team, takes on who live on the streets, sleep in parks or other open places, the challenge of raising awareness and scoping the scale of who set up temporary shelters in cars, who ‘couch surf’ through homeless people living with dementia. By better understanding transitory accommodation or move between emergency shelters the issues confronting this marginalised group, the Project works and boarding homes. with agencies and services to identify gaps in services and Homeless people have specifi c needs as it is known that they develop pathways which better support homeless people living experience premature and accelerated aging and have increased with dementia. exposure to the wider risk factors of developing dementia. This results from lifestyle issues such as poor nutrition, substance (alcohol and drug) misuse, smoking, brain injury, mental health issues and a general lack of medical care. In addition, due

AUTUMN NEWSLETTER 2013 15 RESEARCH RECENT STUDIES THE NEED FOR DEMENTIA-SPECIFIC TRAINING FOR HEALTHCARE PROVIDERS, AND GREATER FOCUS ON THE USE OF ANAESTHETICS AND BENZODIAZEPINES IN OLDER PEOPLE.

DEMENTIA-SPECIFIC TRAINING New Australian research from the Dementia Collaborative Research Centre – Carers and Consumers suggests that understanding of dementia among health care staff could be improved, particularly in relation to medical aspects such as risk reduction and the course of the disease. “The study clearly showed that those who had had dementia-specific training had better knowledge and understanding,” says study author Dr Elaine Fielding. “Our primary recommendation is making dementia-specific training a component of clinical practice.” Read more: goo.gl/R9wGO ANAESTHESIA RISK Research led by Associate Professor David Scott from St Vincent’s Hospital in Melbourne has found that older people who already have mild cognitive impairment before anaesthesia are more likely than others to suffer increased cognitive dysfunction after surgery. More worryingly, some of these people do not return to their presurgery level of cognitive function. “Patients with post-operative cognitive dysfunction may experience a longer stay in hospital, have a reduced quality of life and even have an increased mortality,” says Dr Scott. “We need to be able to identify patients susceptible to BENZODIAZEPINES BRAIN HEALTH STUDY postoperative cognitive dysfunction and AND DEMENTIA Researchers from Alzheimer’s Australia modify how we treat them.” Recently published results of a 15-year and the Australian National University are EARLY DETECTION French study have found a 50 per cent working together to assess Australians’ increase in the risk of developing dementia More than 10,000 Australians are commitment to improving brain health. with prolonged use of benzodiazepines in participating in a study led by the Florey “The particular focus is on lifestyle older people. Institute of Neuroscience and Mental choices that impact the health of the Benzodiazepines are commonly used Health in Melbourne. The Trajectory- brain,” says project leader Dr to treat anxiety, insomnia, agitation and, Related Early Alzheimer’s Database Maree Farrow. less commonly, seizures, muscle spasms (TREAD) project will assess the memory The team is looking for participants who: and alcohol withdrawal. Previous studies and cognitive function of healthy over-50s • are over 18 focusing on a link between dementia and over the next three-and-a-half years. • can read and write English benzodiazepine use have had conflicting “Our research aims to detect the earliest • have daily access to email and internet results. possible signs of dementia in otherwise • have a smartphone or tablet The results emphasise the importance healthy people even before significant • undertake moderate physical exercise of monitoring the use of anxiety and sleep symptoms are noticed,” said project leader • can commit to four weeks of regular treatments, says UK Alzheimer’s Society Associate Professor David Darby. participation and three surveys over four Director of Research Professor Clive If you are aged over 50 and healthy, months Ballard. you can volunteer. Find out more: brainhealthstudy.org.au Read more: goo.gl/pHLdD Find out more: tread.florey.edu.au

16 AUTUMN NEWSLETTER 2013 TEAM TLC eamtlc tender loving carers held a major fundraising With our fundraising efforts being such a success, we are event on Saturday 16th February at the Bay Function now able to plan towards assisting carers of people living with TCentre, Glenelg. The theme of the evening was younger onset dementia to have a very well deserved break from "Sharing an Evening of Memories with Elite Sports Identities". their caring role. Graham Cornes our Master of Ceremonies on the night, The committee would like to sincerely thank everyone who has conducted interviews of our well known sporting guests Libby supported us in every way since teamtlc commenced fundraising Kosmala (Paralympian shooter 2012), Patrick Jonker (Tour in May 2012. We will keep on keeping on, as our motto is "we de France competitor and 2004 Tour Down Under winner), are not here to do great things; we are here to do small things Rachael Sporn (ex Adelaide Lightning and 3 times Olympian) with great love" (Mother Theresa). and Jimmy Jacques (Harness race caller and Tour Down Under If anyone has some spare time and would like to be involved in race caller). It was very interesting to listen to their stories with our fundraising group, by being on our committee which involves many laughs, and also gave us all a better understanding of the a meeting once a month, or as a volunteer with just helping at total commitment and sacrifices elite sports people dedicate to events, please do not hesitate to contact Jenny Potter on their chosen sports. Through the evening an auction was held 0408 080 901 for information. of items so generously donated to our fundraising group. The whole event was a huge success with many, many positive Jenny Potter comments. Chair Team TLC

AUTUMN NEWSLETTER 2013 17 COMMUNITY THE FORGET ME NOT Q&A Q WE HAD CHRISTMAS WITH ROSE MY GRANDFATHER WHO HAS AVAILABLE IN JULY DEMENTIA. UNUSUALLY FOR HIM, HE WAS VERY This beautiful dusty plum pink and WITHDRAWN AND GOT UPSET highly-perfumed rose was developed for Alzheimer’s Australia SA Inc. OFTEN. WHAT IS HAPPENING? The ‘Forget Me Not’ rose is an ideal Every person’s experience of dementia is choice when purchasing a rose for A your own garden. It would make a unique. Difficulties communicating thoughts perfect gift to remember a special and feelings are common, especially around person, or to plant yourself in memory Christmas. To make things easier for you and of a loved one. your grandfather, contact a counsellor on the Proceeds from the sale of the ‘Forget National Dementia Helpline: 1800 100 500. Me Not’ rose will assist Alzheimer’s Australia SA to continue providing and expanding services and support to the Q MUM HAS ALZHEIMER’S increasing number of people who are AND LIVES INTERSTATE. diagnosed with dementia, their carers and families in South Australia. WHAT SHOULD I DO? A Dementia does not automatically mean that ORDER FORM a person cannot care for themselves. Helping your mum stay for as long as possible in the Name: familiar surrounds of her home is the ultimate Address: goal. To support her independence, access our Helpsheets at www.fightdementia.org.au or call P/C Phone: the National Dementia Helpline: 1800 100 500. Quantity:______‘Forget Me Not’ Roses @ $20 each The counsellor that you speak with can give you a number to call to talk with someone in Plus postage (if needed): $11.00 first rose - $4.00 per additional rose the state your mother is living. I will collect my rose from Alzheimer’s Australia SA when notified it is available

TOTAL COST: $______(inc postage if needed)

Cheque/Money Order Visa Mastercard cheques made payable to Alzheimer’s Australia SA Inc.) Bring It To Card Number:

/ / / The Table

Expiry Date______/______Name on Card:______The fight against dementia is being brought Signature:______to the nation’s tables in June, with a get- Alzheimer’s Australia SA wishes to thank Kim Syrus of Corporate Roses together with a difference. Please return or fax to: Supporters, carers and anyone who wants Order by phone: Alzheimer’s Australia SA Office Use to make a difference are being invited to host (08) 8372 2100 27 Conyngham Street, Glenside 5065 Receipt events such as a high tea, a games night, or a (08) 8339 3390 Batch good old fashioned dinner party, while raising much-needed funds for Alzheimer’s Australia. Funds raised will help provide vital support services for people living with dementia, their families and carers. So get involved, enjoy a great get together with your friends and feel good about raising funds for an important cause. Just head to: www.bringittothetable.com.au to get started. the ‘Forget Me Not’ rose

18 AUTUMN NEWSLETTER 2013 FUNDRAISING MEMBERS COMMUNITY MAKE FUNDRAISING A DIFFERENCE COMMUNITY SEND US FUNDRAISERS YOUR STORY. We have been able to produce hank you to all supporters WOULD YOU LIKE some wonderful news stories of our community TO SHARE YOUR lately and to help the political T fundraisers so far this year. STORY? parties sit up and take notice We had some great events helping Some of our members have about dementia and us raise much-needed funds and helped us with our fundraising and awareness for our cause. Alzheimer’s Australia SA. awareness-raising efforts by sharing • Southern Cross Care – This has in a large part been their story of dementia. Would you Rebbecca Bratovich like to share your story also? It can due to fantastic support from • Aveo Ackland Retirement Village make an enormous difference to our members. • Seacliff KindaGym our fundraising and awareness - We are at a critical stage in the community • The Good Guys Hectorville raising efforts. awareness of dementia and the tide is turning • Move Through Life – The stories can be funny, in our favour! Jo McDonald heartfelt, empowering, uplifting, We want to continue this and really make • Million Kilo Challenge inspirational, or emotional. the community, the media and our Governments • Burnside Podiatry If you would like to help our • Toscana Club understand and support us. fundraising and awareness-raising • Rachel Slekenics To help us achieve this we need your help, efforts by telling your story, If you are considering we need you to join us not only in spirit but in a please call SA Marketing on planning your own community way that shows we have a great groundswell of (08) 8372 2100. fundraiser please contact John people and large numbers of supporters. The on (08) 8372 2100 or best way to do this is to become a Member of [email protected] Alzheimer’s Australia SA. Membership is crucial in the fight against FUNDRAISING SIGN-OFF dementia, can you help? If you are not already on our email data base and would like to be updated with all the news and events from If you would like more information or AASA please email [email protected] and to join please contact the Marketing ask to be added to our email list or call SA Marketing on Department on 8372 2100 or [email protected] (08) 8372 2100.

CROSSWORD SOLUTION U N A F F E C T E D E K E D HELP US F A A L N O N E O F A R C E N C H I L A D A FIGHT DEMENTIA S T A O L V D A B H O R R E D W H E E L B R L E E I R E A L I T Y S O L O M O N Like Alzheimer’s O N N L E E O L D H A N D R A S C A L S Australia SA on M C U E N S S C A N T R E L O C A T E Facebook T I I A I O F I M M O V A B L E W E A V E www.facebook.com/alzheimersaustraliasa C E E L V E S U K I D S R E S E A R C H E D

AUTUMN NEWSLETTER 2013 19

15C Handy3161s.eps Yes! I want to help, please accept my gift of:

q $30 which will help provide Counselling for carers. q $60 which will help support activities such as Memory Lane Cafe which brings such joy to people living with dementia. q $100 which will help fund a support group meeting, giving strength and encouragement to carers q My choice $ Please find enclosed: Cheque/Money order (payable to ‘Alzheimer’s Australia SA’) Please debit this card: qVisa qMaster Card Credit Card number: Expiry date: / CVC: Name of cardholder: Signature:

Do we have your correct details? Please check, and amend if they are incomplete in the box below. q Please send me information on how to leave Address: a bequest to Alzheimer’s Australia SA q Please send me information on how to become a regular supporter of Alzheimer’s Australia SA Email Please return this completed form in the Telephone: (home) enclosed reply paid envelope. Telephone: (mobile) All gifts of $2 and over to Alzheimer’s Australia SA are tax deductible.

LEAVE A LASTING LEGACY FOR SOME PEOPLE GIVING THROUGH THEIR GIVING For further details, or to receive an information brochure, please contact ESTATE WILL BE THE ONLY TIME THEY ARE ABLE Brenton Cox on 08 8372 2172 or [email protected] TO GIVE A SIGNIFICANT GIFT TO AN ORGANISATION THEY RESPECT AND WISH TO SUPPORT. Making a bequest gift to Alzheimer’s Australia SA is a meaningful way to give back to the community. Every bequest, no matter how large or small, makes a real difference to the support and services that Alzheimer’s Australia SA provides to people with dementia, their carers and families.

1 2 3 4 5 6 7 8 CROSSWORD 9

ACROSS DOWN 10 11

1.Unchanged 1. Alien spacecraft (1,1,2) 6. Scraped (out a living) 2. Battery size (1,1,1) 12 13 14 10. French heroine, Joan ... (2,3) 3. Common-law spouse, de ... 11. Tortilla with chilli sauce 4. Plainly 15 Alzheimer’s Australia NSW 12. Found repugnant 5. Puts into cipher 120 Coxs Road, North Ryde NSW 2113 16 17 18T 1300 636 679 F 02 887519 4665 E [email protected] 14. Potter's turning device 7. Rogue www.fightdementia.org.au

16. Truth 8. Lethal quality ABN 27 109 607 472 18. Biblical wise judge 9. Petroleum pits (3,5) 20 21 22 20. Experienced person (3,4) 13. Trademark 22. Scoundrels 15. Witch's transportALZ1241_LH_A4-FINAL-AW.indd 1 12/11/12 7:20 PM 23. Barely sufficient 17. Passive 23 24 25 26 25. Change premises 19. Implied

28. Securely fixed 21. Made to last 27 29. Zigzag (through traffic) 22. Alleviate 31. Young children 24. Intended 28 29 30 32. Investigated 26. Cringe 27. Family war 30. Cigar dust 31 32

20 AUTUMN NEWSLETTER 2013