Ty Hafan Children's Hospice
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thank you for caring about us xxx cwtch Newsletter: Spring / Summer 2011 Inside... • Aaron's story www.tyhafan.org • Want to win up to £12,000? • What's hot at the shops... Tyˆ Hafan - the family hospice for young lives. St. Hilary Court, Copthorne Way, Culverhouse Cross, Cardiff CF5 6ES Tel: 029 2067 2060 Fax: 029 2067 2061 Registered Charity No: 1047912. Tyˆ Hafan® is a registered trade mark. (apr11) welcome Hi, my name is Anthony and I Tyˆ Hafan has given us so much help As well as our visits to the hospice, Our second child Carys will be able to am dad to a wonderful little boy both at the hospice and at home. They Rhys has been able to enjoy the join in with the sibling activities when called Rhys. are a real support network for us. Our benefits of play therapy in the comfort she gets older and she gets lots of amazing family link worker has been of our own home. It really helps to attention and cuddles from all of the Rhys is severely disabled and is there from day one. She comes to visit stimulate Rhys as well as being great staff to make sure she loves Tyˆ Hafan unlikely to live into adulthood. He us at home or in hospital if Rhys is fun. We can borrow specialist toys for just as much as Rhys. My partner currently has no diagnosis but has poorly and is on the end of the phone Rhys which would otherwise be very Natalie and I are able to relax and an underlying neurological condition, whenever we need her. expensive and so we can carry on the enjoy some quality time together safe severe epilepsy, chronic lung disease fun with Rhys between visits. in the knowledge that Rhys is being and global developmental delay. My family are massive football fans well looked after. This may sound like a lot of medical and with the help of Tyˆ Hafan, Rhys Tyˆ Hafan not only helps Rhys; jargon…but put simply it means Rhys has been able to achieve his dream I really can’t express how much needs round the clock care. of meeting the Manchester United our whole family benefits Tyˆ Hafan has improved every part of squad. This was a proud moment I from its support. my family’s life. What I can say is a In 2007 we were referred will never forget and that is what massive thank you to each and every Tyˆ Hafan is all about for me, person that gives their time, money to Tyˆ Hafan and since then creating memories. and support to Tyˆ Hafan, it really does our lives have never been mean the world to me, Natalie, Rhys and Carys. the same. Pictured: From the left, Anthony, Rhys, Carys and Natalie. 2 providing care, being there www.tyhafan.org 3 the things you'll do want to win up to £12,000? Coleg Glan Hafren’s students have Six brave students and a team of Help the children and What’s more, as a way of saying proved that you don’t have to go to all staff were sponsored to eat a feast families further by signing thanks we will give you an entry into the way to the jungle to experience of frightful fancies, including sheep’s Crackerjackpot*, the weekly Tyˆ Hafan weird and wonderful food. They truly eyes in beef jelly, chillies stuffed with up to receive your copy of Lottery draw, where you are in with a tested their nerve at the Childcare and worms, "surprise" pie, frogs spawn, Cwtch by email. great chance of winning up to £12,000 Education department’s "Bushtucker cheese with maggots, giraffe tongue or one of 80 cash prizes! Challenge" recently, to raise funds for and honeycomb fish heads. Good on All you need to do is visit Please enter your details online by local charities including Tyˆ Hafan. them we say! www.tyhafan.org/signup and leave your name and email address. Friday 20 May, as the draw will be made on Friday 27 May and we want Emails are a much cheaper way for us to be ringing you with the good news! to keep in touch with our supporters. dancing on ice We promise not to bombard your So what are you waiting for, inbox; just send you all the best news, get online now! latest events and inspiring videos. We’re so proud to have the The donations from ticket sales * You must be 16 or over. Each person will only be entered into one draw. continuing support of Holiday on and bucket collections by Tyˆ Hafan volunteers has made a remarkable It’s that simple and it Ice Gala Nights. difference. This year’s show was more only takes a minute. successful than ever and our Tyˆ Hafan Over the last 15 years, the ice-skating Ambassadors Sheila and Jeff Davies team has raised over £30,000 to help were thrilled to receive the cheque hundreds of families in Wales. from the skaters. A huge thank you from all the families! 14 providing care, being there 5 christmas sparkle in bath Sam Smart from Tyˆ Hafan’s Family Over the years at Tyˆ Hafan we’ve We don our silly hats, flashy earrings I’d like to say a big thank you to the 94 Support team describes the very had the privilege to meet so many and trolley dolly aprons and we wait ladies who came along with us this popular annual "Mums' Bath wonderful, brave and inspirational on the ladies hand and foot. Food and year. I’m already being asked about Shopping Trip" which she has women who devote their lives to caring wine are served, goodie bags laden the next trip and I’m really looking organised for the past few years. for their very special children. Very with gifts are given, quizzes and forward to it – it’s a real highlight in often, the attention of these women is games are offered and this year we my year. Thanks to popular demand, in focused entirely on their child 24 hours a even had a Mamma Mia sing-along December last year I organised not day, seven days a week and somehow during the homeward journeys. Sam Smart one but two mums’ shopping trips to "me-time" slips into the background. Family Support worker Bath Christmas Market. Although it’s a ludicrously early start, Tyˆ Hafan Tyˆ Hafan’s annual coach trips are a all the ladies stayed lively and awake Anyone looking in on our coach trip chance to give something back to these for the whole journey to Bath and from the outside would have seen a special ladies. From the moment they home again afterwards. Each time group of ladies having a fun day out board the coach until the moment we I grabbed the microphone to ask in Bath, soaking up the Christmas drop them off exhausted at the end of "what’s it all about ladies?" I was met spirit and shopping until they the day – the focus is them. with the rousing response "…me, me, dropped. But the trip is about so much me" (well done girls!). watch the video... more than that. There are very few people who truly See the fun that was had by visiting: understand the lives of these women: www.tyhafan.org/mums-coach-trip the highs and lows, hopes and fears, joys and sadness are hard to imagine. You can see footage of All the mums on the trip seemed to Tyˆ Hafan's events at: understand that, even during fun www.tyhafan.org/youtube times like the coach trip, laughter may turn into tears, they may need a Definitely a good watch! sympathetic hug or some time out to help get through the day. This is the bond that unites these women. 6 for your welsh copy please visit www.tyhafan.org/lets-cwtch 7 what's hot at the shops... bring us your goodies! It’s been a busy and exciting few We’re always grateful for your months for Tyˆ Hafan shops! A big unwanted, good quality clothing thank you to everyone who’s donated and household items. Why not have items or popped in to a shop. a clear out today and bring them to your local Tyˆ Hafan shop? We’ll be Our newest shop opened just before really pleased to see you and every Christmas in Queen Street, Neath, and bit helps. has had lots of visitors since then – pop along and have a look! Find out where your nearest shop is: www.tyhafan.org/locations 029 2067 2060 makeover magic a little extra goes a long way We’ve also given our shops in They’re looking fantastic and you will Did you know that when you If you are a UK registered taxpayer Caerphilly, Cwmbran, Pontypridd be amazed at how many great things take your unwanted goodies all you need to do is sign a Gift Aid and Talbot Green a fresh new look, there are to buy – from clothes and declaration so your donations will go with lots of positive feedback from jewellery to household ornaments to your nearest Tyˆ Hafan shop, even further to help provide care for customers and our lovely shop teams. and CDs. we can claim an additional 25p families across Wales. from HM Revenue for every £1 that we raise by selling your So make sure that you ask about Gift Aid next time you make a donated items? donation! Thanks! 8 www.tyhafan.org 9 More coffee, cakes and chocolate sweets it's all down to you To fill the hours before our real treat.