Mission Statement The American

Autoimmune Related AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION , I NC . Diseases Association, Inc., Founded 1991 (AARDA) is dedicated to

the eradication of

autoimmune diseases and

the alleviation of suffering

and the socioeconomic

impact of autoimmunity

through initiating,

fostering, and facilitating

collaboration in the areas

of education, public

awareness, research, and 2ANN0UA1L RE5PORT patient services in an

effective, ethical, and

efficient manner.

Participants for AARDA's Auto- Lilly Stairs (lower center) and her "50 Cents for 50 Partha Nandi, M.D., of "Ask Dr. Nandi," with guests immune Walks represented by all Million" campaigners visit Children's Hospital, enjoying AARDA's annual fund raiser the Derby Luncheon ages, Washington DC area Boston, to distribute 100 "Strength Bunnies" and Silent Auction AARDA FY 2015: View from the Top Chairman of the Board President and Executive Director the Rev. Dr. Herbert G. Ford Virginia T. Ladd

year ago I greeted ne of afflicting them as "fatigue" but perhaps AARDA Annual Report the "function-impaired." The Center, the Areaders as a newly real first such facility in the United States, elected Chairman of the Board; O joys of being has received support as an AARDA pilot and, not surprisingly, this past both President program. year has been a time of chal - and Executive lenge and growth. I am In the meantime, AARDA has Director— developed and published a white paper pleased to give you a bit of my forget the own "View from the Top" as an on biologics and biosimilars to educate paper work autoimmune organizations' leaders and introduction to the more and endless detailed view in this report. individual patients. This will enable e-mails—is them to be well informed advocates of AARDA is definitely a national viewing the organization from both the organization on the move. policies that protect patient safety issues AARDA office and the stimulating meet - related to the approval of biologics. With my own background in finance, management, com - ings around the country in which I am munity nonprofit involvement, and faith-building, I know Also, with the help of AARDA Board included. Sometimes it's easy to be dis - Advisor Stephanie Hales, we have that the foundation is important. Thus, I have been particu - couraged that no cure for autoimmune larly cognizant of the effective leadership of members of the submitted several comments to the FDA disease has been found. Then I see the regarding biosimilar patient safety issues AARDA Board of Directors, utilizing their variety of back - excitement and learning generated by, grounds in their own goal-setting and overview while draw - and CMS regarding Part D guidelines for example, AARDA's "The State of and essential benefits. ing on the Executive Director's experience and judgment. Autoimmune Disease: A National Also, from its very beginning, AARDA has sought the Summit," and I see possibilities. All this is simply a smattering of wisdom of its Scientific Advisory Board. Led initially by AARDA activities. For details, see "Major internationally known researcher Noel R. Rose, M.D., Ph.D., This National Summit featured Accomplishments for FY 2015" in this now Chairman Emeritus, the Board is chaired by highly leading physicians and researchers, plus Annual Report. respected researcher Betty Diamond, M.D. Comprised of patients and patient advocates, including our own National Spokesperson Kellie Scientific colloquia, congressional outstanding researchers representing six countries (Australia, briefings, public forums, media expo - France, Israel, Italy, Germany, and the U.S.A.), this widely Martin. Together we learned about the past and looked into "Paths for the sure, research support, establishment of scattered Board has been available in speaking, reviewing, an Autoimmune Disease Patient Registry advising, and teaching—simply ask! Future." The profound fatigue felt by many autoimmune disease patients was (ARNet), "Linking for the Cure" With this combination of advisors and mentors, plus the autoimmune walks across the country, dedicated volunteers carrying out fundraising, autoimmune discussed. We heard about a possible "mapping process" in which physicians grassroots fundraising with awareness awareness, and support across the country—and, indeed, opportunities, personal contacts—they into some other countries—we have maintained a firm and their patients try to pinpoint when the fatigue starts and what factors, like involve both "lofty" views and real peo - foundation on which to build our work in advancing ple issues. Yes, the current autoimmune AARDA's mission of "facilitating collaboration in the areas of stress, diet, and sleep patterns, may be at play. disease picture is both disheartening and education, public awareness, research, and patient services in hopeful—but always exciting. an effective, ethical and efficient manner." We heard the suggestion for a direc - From a President/Executive Director's We are grateful for the generous support of corporate tory of physicians who themselves have and foundation grants and contributions plus the equally autoimmune disease or who have family "View from the Top" and on a very valuable individual donations that have enabled AARDA to members with autoimmune disease. personal level, I'm privileged to share move ahead steadily in those stated areas. Those physicians might help educate the autoimmune fight with the many patients and others who definitely won't We are particularly pleased that we have been able to other physicians and advocate for im - proved diagnostic tools and treatments quit—and I am grateful to our many facilitate collaboration among diverse businesses and groups donors, sponsors, volunteers, and having a mutual interest in autoimmune diseases. With the for patients. These are truly patient/ in-kind contributors who make every establishment of the Autoimmune Partnership Council, offer - people oriented topics for discussion, gain possible. ing memberships to the business community and institutions exciting stuff not only for organization of learning, combined with the increasing effectiveness of the administrators but also for researchers. Just as there is "no such thing as a National Coalition of Autoimmune Patient Groups, we are What about environment and free lunch," there are no such things as encouraging a sharing of autoimmune information and goals. autoimmunity? Speakers pointed out free research, education, patient services, While AARDA and friends have a long way to go toward that over the past several decades, a sig - and awareness or the administration to achieving the eventual defeat of the category of autoimmune nificant number of autoimmune diseases facilitate them. The 50 Million Ameri - disease, we know that progress continues in all aspects of the have increased in frequency not only in cans, and others, are depending on us. fight, as interested readers can see in "Overview of Major the U. S. but also around the world. Thank you—for doing and being. Accomplishments" elsewhere in this report. Mounting evidence for the role of envi - Not listed, however, but perhaps the most important part ronment comes from a variety of sources, of our "View from the Top" is the genuine concern, the including environmental agents that can caring, shown among the supporters of AARDA's mission. alter the structure of cells, making them Even when hurting on a personal basis, AARDA's supporters appear to be foreign invaders, resulting show compassion for the 50 Million Americans—and others in either an activation or suppression of throughout the world—who are afflicted by the life-threat- the immune system. ening consequences of many of the autoimmune diseases. Speakers emphasized the difficulties in Autoimmune diseases cross the boundaries of all ages, getting an autoimmune disease diagno - genders, races, and socioeconomic levels. As we say, some - sis. Surprisingly, one roadblock may be one you know has an autoimmune disease. Is it you? Is it a the way that patients describe their Virginia Ladd, AARDA President/Executive loved one? Or is it someone else who has touched your life? symptoms. As Dr. Abid Khan, Director Director, addresses Congressional Briefing at The need for support is great. of the MidMichigan Health Autoimmune National Press Club, Washington DC, held in On behalf of the 50 Million whom we serve, I thank you Disease Center, suggested, patients conjunction with the National Coalition of for any support you have given—or will give. should not describe the chronic fatigue Autoimmune Patient Groups Report of the AARDA Scientific Advisory Board autism spectrum disorder. Another con - Biologic agents that disrupt regulatory ference was "Eosinophils, Types II Im - pathways in the immune system have munity and Autoimmune Disease" that successfully unleashed the power of the focused on this neglected area of re - immune system to combat tumors but search in autoimmune diseases. A third also, in a high number of cases, to lead meeting, "Pregnancy and Lactation in to autoimmunity. These observations Women with Autoimmune Disease," ad - highlight the importance of regulatory dressed hormonal regulation of immune checkpoints in controlling autoimmu - and autoimmune responses which needs nity and potentially suggest new to be better understood as well as the therapeutic strategies. Betty Diamond, M.D., Chair —Dr. Diamond is Center impact of transfer of maternal antibodies Studies of the microbiome and its Head, Department of Autoimmune Diseases, The to the developing fetus and neonate. Feinstein Institute for Medical Research, North Shore- relationship to the development and Long Island Jewish Health System, Manhasset, NY These meetings which are organized maintenance of autoimmunity have annually by AARDA help focus the exploded. These studies reveal a new ur awareness of autoimmune research agenda in autoimmunity. arena for prevention and treatment, and diseases continues to increase, AARDA also continues to advocate they provide important insights into Oand the number of conditions on behalf of individuals with autoim - pathways to autoimmunity. we now recognize as autoimmune con - mune diseases, holding in 2015 a It is clear that AARDA continues to tinues to expand. In order to focus on national summit in Washington DC, and advance its mission in autoimmunity to these various aspects of autoimmunity, public forums in Tampa FL and West improve our understanding of (1) the AARDA sponsored several meetings this Bloomfield MI. While the major efforts genetic and non-genetic risk factors of past year. of AARDA are directed to advocacy, diseases; (2) the mechanisms that One of these meetings addressed public awareness of autoimmune dis - routinely suppress autoimmunity in "Neuropsychiatric Manifestations of Au - eases, and public access to information, healthy individuals; and (3) the novel toimmune Diseases." Presentations AARDA also funds research trainees and therapeutic targets that are suggested by ranged from new data on diseases al - early career investigators. a greater understanding of disease risk ready known to be autoimmune in ori - The autoimmunity field continues to and pathogenesis. With its focus on gin, such as multiple sclerosis, to newly learn about disease pathogenesis and advocacy and education, AARDA recognized autoimmune diseases, such therapy, sometimes from unexpected continues to have an important impact as limbic encephalitis (the topic of the sources. The use of immune modula - in the field and to help set the national book Brain on Fire ), to the potential con - tory therapy in cancer has provided new research agenda. tribution of maternal autoimmunity to insights into autoimmune disease.

A message from Kellie Martin... ho would have guessed that the We also know that it can take 3.5 years passing of a beautiful young col - to obtain an accurate diagnosis, with visits Wlege student could evolve into a to an average of five physicians before the nationwide campaign on behalf of 50 mil - diagnosis is made—and in the meantime, lion Americans with autoimmune diseases? the disease is steadily progressing. That is Yet that is what happened after I had gone where AARDA and I, with my media through the shock, grief, denial, and— contacts, come in—AWARENESS! We yes—anger caused by the loss of my 19- know that awareness can lead to year-old sister Heather who had gone education which can lead to diagnosis undiagnosed—until too late—with lupus. which can lead to very possibly life-saving I had to do SOMETHING, and that some - treatment . And this is where YOU, our thing turned out to be volunteering with interested reader, come in. AARDA as its National Spokesperson. I am blessed to find opportunities to During the 17 years that I have spoken lend not only my time and talent but also out on behalf of the 50 million Americans financial support to the fight against au - afflicted with autoimmune diseases, I have toimmune diseases. You, too, very likely been blessed with a successful acting career have talents for creating donations, grants, ("ER," "Life Goes On," "," bequests, and ideas or resources for raising "Christy," "Mystery Woman," and others), a We know that approximately 75 per - funds. A little or a lot, it all makes a differ - loving marriage, deeply meaningful moth - cent of those afflicted with autoimmune ence. Research, education, and awareness erhood—and a book, Madam , to my credit. diseases are women, many in their child - require money. No surprise there! Underlying the public awareness messages bearing years. In fact, autoimmune dis - If you already are actively supporting via TV, radio, printed pages, and personal eases are a leading cause of death among AARDA in some way—money, in-kind appearances have been the memory of women and children in the United States. contributions, volunteering—we thank Heather's unanswered pleas for help with While autoimmune diseases are not inher - you. If you see the autoimmune fight as a her illness and the knowledge that my own ited, researchers have found "family clus - worthy cause, welcome aboard. We'll take two little girls have been born into a family ters" of autoimmunity; and persons with the journey together. with autoimmune diseases. Both the past autoimmune diseases often find that many and the future keep me moving in this members of their family also have autoim - fight for AARDA's mission: ". . . the eradi - mune disease—not necessarily the same cation of autoimmune diseases, the allevia - one, but still at least one autoimmune dis - ease from the 100+ such known diseases. Kellie Martin tion of suffering, and the socioeconomic AARDA National Spokesperson impact of autoimmunity. . . ." and Dedicated Volunteer What happened in FY 2015? We present an “Overview of Major Accomplishments”....

Research • Contributed, to date, a total of $4,762,310 to research • Introduced a campaign to fund a National Autoimmune Diagnostic and Treatment Center • Sponsored five students in the Johns Hopkins University Summer Diversity Student Internship Program, Baltimore MD • Provided "Young Investigator" grants to three Postdoctoral Fellows: Young researchers, JHU Diversity Summer Internship Program 2015 - L to r: Alejandra Massachusetts General Hospital, Garcia, Chelsee Sauni, Mankaah Acho, Brandon Mallory, Felix Contreras-Castro Boston MA; The Feinstein Institute for Medical Research, Manhasset NY; Education (Scientific, Public, nity Curriculum for Elementary and and Johns Hopkins University, Patient) Middle School Teachers, at no charge Baltimore MD • Sponsored, cosponsored, or to teachers • Sponsored 17th Annual Autoimmu - supported the following: • Continued as a source of autoimmune nity Day, Center for Autoimmune —Scientific round table, "Eosinophils, disease information on WebMD Disease Research, Johns Hopkins Type II Immunity and Autoimmune • Continued to offer "My Autoimmune University Bloomberg School of Public Disease," Washington DC Story" video on AARDA YouTube Health, Baltimore MD —Scientific colloquium, "Neuropsy - channel • Continued research support for the chiatric Manifestations of Auto- • Maintained social networking sites following: immune Disease," Washington DC (Facebook page, 88,582 "likes," —O'Leary-Wilson Autoimmune —"Pregnancy and Lactation in Twitter account, 2,497 followers) Disease Fellowship, basic autoim - Women with Autoimmune Disease: • Published quarterly lay-friendly, mune research, Johns Hopkins Sharing Knowledge Across 12-page newsletter InFocus University, Baltimore MD Disciplines," San Diego CA • Made available informational brochure —Role of the innate immune system —"The State of Autoimmune Disease: and PowerPoint presentation of in lupus, The Feingold Institute for A National Summit," Washington AARDA's "Risk/Benefit" study Medical Research, Manhasset NY DC • Provided free educational brochures • Completed research study, —"What Every American Needs to and newsletters to numerous health- "Autoimmune Disease and Fatigue: Know About Autoimmune Disease," centered meetings and events (CA, VA, Patients Speak" AARDA public forums, Tampa FL, MI, NY, GA, DC, IL, AZ, NC, IN, AR, West Bloomfield MI NJ) —"How to Dance in the Rain," • Maintained 24-hour toll-free request Conference for the Autoimmune line Community, Scleroderma Founda - • Provided referrals and non-medical tion Michigan Chapter and others, information during office hours via Grand Rapids MI the Patient Educator —American College of Rheumatology • Maintained Local Contact list with Annual Meeting (AARDA provided support groups as available staffed display booth), San Francisco CA • Provided representation at Congres - sional Briefing on "Inflammatory Eye Diseases, Focus on Uveitis," Congres - sional Briefing sponsored by National Alliance for Eye and Vision Research • Continued to distribute Autoimmu -

Noel R. Rose, M.D., Ph.D., addresses audience at AARDA Public Forum in Michigan GORDON ADVISORS, P.C. Certified Public Accountants INDEPENDENT AUDITORS’ REPORT To The Board of Directors, American Advocacy and Awareness Autoimmune Related Diseases Association We have audited the accompanying financial • Continued facilitation of the 38- statements of American Autoimmune Related member National Coalition of Diseases Association (a nonprofit organiza- Autoimmune Patient Groups (NCAPG) tion) which comprise the statement of finan- cial position as of September 30, 2015, and • Provided representative at United the related statements of activities, functional Nations World Health Organization expenses and cash flows for the year then meeting on biologic and biosimilar ended, and the related notes to the drugs, Geneva, Switzerland financial statements. • Provided representative to Advocacy Management’s Responsibility for the Financial Statements Day sponsored by the Partnership to Management is responsible for the preparation Fight Chronic Disease and fair presentation of these financial state- princi- • Co-sponsored with the NCAPG a news ments in accordance with accounting ples generally accepted in the United States of briefing, "The State of Autoimmune America; this includes the design, implemen- Disease, A National Summit," at the tation, and maintenance of internal control National Press Club, Washington DC Fundraising relevant to the preparation and fair presenta- tion of financial statements that are free from • Continued development and informa - • Continued to encourage and provide material misstatement, whether due to fraud tion gathering for a first-of-its-kind support for "grassroots fundraising," or error. National Autoimmune Disease Registry including the online Grassroots Auditor’s Responsibility • Cosponsored Capitol Hill Congres - Newsletter Our responsibility is to express an opinion on these financial statements based on our audit. sional Briefing ("Step Therapy and Re - • Expanded the Autoimmune Disease We conducted our audit in accordance with lated Patient Concerns"), Washington Awareness Walks schedule and auditing standards generally accepted in the DC provided support for Virtual Walks United States of America. Those standards re- quire that we plan and perform the audit to • Compiled data collected from a Web- • Sponsored the AARDA Annual Fund obtain reasonable assurance about whether based survey on how the Affordable Raiser in the Greater Detroit area the financial statements are free of material Care Act is affecting autoimmune ($59,817 profit) misstatement. disease patients An audit involves performing procedures to Administration obtain audit evidence about the amounts and • Provided interviews and information • Maintained the following ratings: disclosures in the financial statements. The for news media; had major advertise - procedures selected depend on the auditor’s —Better Business Bureau Wise Giving ments in national publications judgment, including the assessment of the Alliance Charity risks of material misstatement of the financial statements, whether due to fraud or error. In —Best in America Certified by making those risk assessments, the auditor Independent Charities of America considers internal control relevant to the —Charity Navigator Three Star entity’s preparation and fair presentation of the financial statements in order to design Charity audit procedures that are appropriate in the • Maintained membership and active circumstances, but not for the purpose of ex- participation in the International pressing an opinion on the effectiveness of the entity’s internal control. Accordingly, we ex- Alliance of Patients' Organizations press no such opinion. An audit also includes (IAPO) evaluating the appropriateness of accounting • Continued to meet all Standards of policies used and the reasonableness of signif- icant accounting estimates made by manage- National Health Council and maintain ment, as well as evaluating the overall long-time membership presentation of the financial statements. • Continued standing in the Combined We believe that the audit evidence we have Federal Campaign (CFC) obtained is sufficient and appropriate to provide a basis for our audit opinion. • Remained recognized Member Organi - Opinion zation of Health & Medical Research In our opinion, based on our audit, the finan- Charities of America cial statements referred to above present fairly, in all material respects, the financial position • Held combined management and of American Autoimmune Related Diseases fundraising costs at 10 percent of total Association as of September 30, 2015 , and expenses (compared with 25 percent the changes in its net assets and its cash flows acceptable for nonprofit organizations) for the year then ended in accordance with accounting principles generally accepted in the United States of America.

May 13, 2016 1301 W. Long Lake Rd., Ste. 200 Troy, MI 48098-6319 t 248.952.0200 f 248.952.0290 AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION, INC. STATEMENT OF FUNCTIONAL EXPENSES For The Year Ended September 30, 2015 Program Services Supporting Services Public Total Program Management Fund Education Awareness Research Services and General Raising Total In-Kind Goods and Services $ 498,967 $ 943,322 $275,634 $ 1,717,923 $ 61,565 $ 95,007 $1,874,495 Other Expenses: Wages 156,649 122,069 7,478 286,196 14,191 19,323 319,710 Professional fees 5,197 7,991 14,172 27,360 12,725 4,197 44,282 Postage and shipping 6,553 4,020 183 10,756 334 1,163 12,253 Public relations 23,661 39,497 0 63,158 0 60 63,218 Printing and stationery 11,393 4,821 94 16,308 217 567 17,092 Office supplies 1,027 951 0 1,978 74 37 2,089 Operating supplies 718 593 0 1,311 26 231 1,568 Dues and subscriptions 2,858 2,187 500 5,545 200 44 5,789 Filing fees 565 564 0 1,129 285 565 1,979 Equipment maintenance 1,142 899 0 2,041 61 380 2,482 Telephone 3,583 3,580 0 7,163 302 191 7,656 Insurance 970 970 0 1,940 1,035 971 3,946 State and national meetings 26,654 16,335 9,018 52,007 1,288 536 53,831 Travel 13,737 9,400 6,520 29,657 1,856 984 32,497 Depreciation 3,649 2,322 1,742 7,713 332 249 8,294 Payroll taxes 11,065 7,000 5,250 23,315 1,000 750 25,065 Insurance—Health 6,377 5,070 293 11,740 863 827 13,430 Fundraising— Derby 0 0 0 0 0 25,280 25,280 Board expenses 0 0 0 0 1,435 0 1,435 Grants 13,116 0 41,000 54,116 0 0 54,116 Repairs and maintenance 852 543 0 1,395 77 77 1,549 Utilities 2,143 2,143 0 4,286 182 91 4,559 Miscellaneous 15 14 0 29 76 1 106 Retirement plan contributions 5,911 4,491 0 10,402 468 673 11,543 Website 3,119 2,042 0 5,161 108 108 5,377

Total Other Expenses 300,954 237,502 86,250 624,706 37,135 57,305 719,146 Total Expenses $ 799,921 $ 1,180,824 $ 361,884 $ 2,342,629 $98,700 $ 152,312 $ 2,593,641

AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION, INC. STATEMENT OF ACTIVITIES For The Year Ended September 30, 2015 Unrestricted Temporarily Restricted Total Revenue and Other Support: Contributions Contributions $ 762,157 $ 17,083 $ 779,240 In-Kind Less: Donor designations (80,000) 0 (80,000) Net Contributions 682,157 17,083 699,240 In-kind goods and services 1,874,495 0 1,874,495 25% Fundraising income 153,890 0 153,890 Contributions 69% Interest income 202 0 202

2,710,744 17,083 2,727,827 6% Fundraising Net Assets Released From Restrictions 54,000 (54,000) 0 Total Revenue and Other Support 2,764,744 (36,917) 2,727,827 Support & Revenue Expenses: Program services: Education 799,921 0 799,921 Public awareness 1,180,824 0 1,180,824 Research 361,884 0 361,884 Research Awareness Total program services 2,342,629 0 2,342,629 14% Supporting services: Management and general 98,700 0 98,700 Fundraising 6% Fundraising 152,312 0 152,312 Management 4% 45% Total supporting services 251,012 0 251,012 and General Total Expenses 2,593,641 0 2,593,641 31% Change In Net Assets 171,103 (36,917) 134,186 Education Net Assets, Beginning of Year 742,402 54,000 796,402 Expenses Net Assets, End of Year $ 913,505 $ 17,083 $ 930,588 Major Contributors in Fiscal Year 2015

Major In-Kind Contributors Contributions $1000 thru $4999 Anne Hammell Payroll Campaigns & Aaron Abend Althea & Simon Cices Judith & Charles Harris Matching Gifts Sidley Austin, LLP Anonymous Nancy Harris AT & T Nona Bear Arbor Assays Barbara Hayes Agilent Technologies Carway Communications Scott & Ann Barnhouse Dr. & Mrs. Edward & Carolyn Allstate Giving Campaign The Education Center Dr. Marvin Bellin Hecker Ally Financial Environmental Consulting and Ed & Judy Christian Jan Hewlett American Express Investigations Kellie & Keith Christian Ellen Hipsky Boeing Stanley M. Finger, Ph.D. Conyngham Family Charitable Gloria Jones Chevron Humankind FoxKiser Foundation Jake Jones Cigna Foundation Richard M. Hodge Denim and Donations Fundraiser Geoffrey Karny City of Seattle Johns Hopkins University Mary Deters William & Lisa Keller Clorox Noel R. Rose, M.D., Ph.D. Nigel Drepaul Melinda & Roy Kelley GE Foundation Google Ad Word Enterprise Holdings Foundation Suzanne Klein Give with Liberty John Kaiser, CPA Louis and Helen Fanaroff Robert & Jeri Krueger Goldman, Sachs & Co. Key Bridge Associates Foundation Ltd. Heather Kupets Harris Halliburton Abid Khan, M.D. The Farkas Family Foundation Ferne Lambert IBM Kristi-Fundraising Greatest Commandments Karen Langdon Markel Corporation Natasha Leskovsek Foundation, Inc. Howard Lifshitz Maryland Charity Campaign Kellie Martin Oxford Autoimmune Race Erica London Merck National Cable TV Company Across America Fundraiser Lord & Taylor Coupon Book Morgan Stanley Neutron Media JG Interests, LLC Fundraiser Shell Oil Company Michelle Ouellet Peggy Lichter & David Merrill Magner United Way California Capital Julia Pandl DiDomenico Marovato Industries Inc. Region Pennquarters Consulting Douglas & Marta Mayer Marovato Italian Imports United Way of Greater Linda Pesonen Consulting, LLC Daniel & Diana McCoy James & Patricia Miller Philadelphia and Southern PharmaNexus, Inc. Nancy Monaghan Marilyn & Alan Morris New Jersey Charles Pottenger Diane Moss Michael & Kara Mozina United Way of Northern Haley Ramm National Institute of NYU Hospital for Joint Diseases New Mexico Saga Communications Environmental Health Harriet & Richard Orkand Wells Fargo George Schussler Sciences (NIEHS) Family Educational & USA Special Editions NECABA Management Charitable Foundation Other Friends and Todd Graphic Design Group, Inc. William & Margy Kaye Padnos Contributors Ann Pearson Daniel Panzer Space does not allow us to Individual, Corporate, and Sibella Pedder Jeffrey Parker include the names of all the Foundation Donors Kenneth Pullig Peony Flowers, Inc. other persons and organizations Contributions $20,000 and Over Mike & Mary Quinlan Richard Rath who gave their financial AbbVie Inc. Raising awareness fund raiser Anne Remington support to AARDA, but we Allergan USA, Inc. in honor of Cara Lian Lebedda James Ryan want to say "Thank you"— Amgen USA Ron & Diana Shepard Saks Fifth Avenue again—as we give this Anonymous Step by Step Dance Studio Sample Czar Inc. recognition in honor of BIO Valrie Thomas Jennifer Seaman their generosity. Genentech, Inc. Robert A. Waller Foundation Karen Sheridan Pfizer, Inc. Brad & Erin Yoho William Spitler Memorials and Tributes PhRMA Spoonful of Hearts Fundraiser Since it is our policy not to Mr. & Mrs. Joseph Scoby Contributions $250 thru $999 T & L Fabricators release amounts given for Kevin Andersen Joseph & Rebecca Taylor these donations, we take this Contributions $5000 thru Anonymous David Teague opportunity to express our $19,999 Marilyn Assiff Kathleen & Daniel Thornberry appreciation once more to those 50 Cents for 50 Million Diane Becker Louise Torri kind donors. Every contribu - Fundraiser Elaine Belter Jayashree Vangala tion has been ackmowledged to Aaron Abend & Shelley Joan Boddie Mark & Mary Beth Vogt the donors and to those persons Orenstein Dave & Michelle Brown Alex & Iris Wagman honored or to the families of Anonymous Marilyn Clague Dennis Weiss those held in memoriam. Nona Bear Andrew & Maryan Dunnet Carol Lynn White Brave Dave Foundation Duro Dyne National Carol Williams Celgene Corporation Corporation Charles Wofford Howl at the Moon 1K Shirin Emami Fundraiser Lawrence Eppolito Gerald & Virginia Ladd Andrew Fawer Partnership to Fight Chronic Sandra Filbert Disease Stanley & Shelley Finger Henry Riordan Akiva Flesher Floralia Decorators Herbert & Margaret Ford Linda Fredo The Gardner Family Foundation Dinh Ha Officers and Board Members Michelle Ouellet, Secretary Julia Pandl CACI International Author and Humorist The Rev. Herbert G. Ford, D.Min. Vienna, Virginia Bayside, Wisconsin Chairman of the Board John Kaiser , CPA, Treasurer Linda M. Pesonen President, Director, Assurance Services Linda Pesonen Consulting, Inc. NECABA Management Group, Inc. McGladrey & Pullen, LLP Marketing Consultant Detroit, Michigan Chicago, Illinois Plymouth, Michigan Pastor, Good Shepherd Missionary Baptist Church Nona Bear Robert H. Phillips, Ph.D. Southfield, Michigan Health Care Consultant Director, Center for Coping Falls Church, Virginia Long Island, New York Stanley M. Finger, Ph.D. Vice Chairman Althea Cices J. Michael Quinlan, LL.M President Registered Dietitian Attorney & Corporate Executive Environmental Consulting and Investigations Monsey, New York McLean, Virginia Bluffton, South Carolina Richard M. Hodge Lawrence Damian Tobias Virginia T. Ladd, President Senior Director for Congressional Affairs Founder and President Executive Director Healthcare Information Management Systems PharmaNexus, Inc. American Autoimmune Related Fairfax Station, Virginia Montville, New Jersey Diseases Association Clinton Township, Michigan

Maurizio Cutolo, M.D. Ian Reay Mackay, A.M., M.D., F.A.A. Scientific Advisory Board Professor Professor (Honorary) Director for Laboratory Research Department of Biochemistry and Chair, Scientific Advisory Board and Division of Rheumatology Molecular Biology, Betty Diamond, M.D. Department of Internal Medicine Monash University Center Head University of Genova, Genova, Italy Clayton Victoria, Australia Department of Autoimmune Diseases The Feinstein Institute for Medical Research Luis Diaz, M.D. Kenneth Olden, Ph.D., ScD. North Shore-Long Island Jewish Health System Professor and Chairman Founding Dean Manhasset, New York Department of Dermatology School of Public Health , University of North Carolina at Chapel Hill Hunter College Chairman Emeritus Chapel Hill, North Carolina New York, New York Noel R. Rose, M.D., Ph.D. Department of Pathology Robert A. Eisenberg, M.D. Michelle Petri, M.D., M.P.H. Brigham and Women's Hospital Professor of Medicine Emeritus Professor of Medicine Harvard Medical School Department of Medicine Division of Molecular and Clinical Boston, MA, U.S.A. University of Pennsylvania Rheumatology Philadelphia, Pennsylvania Department of Medicine Frank C. Arnett, M.D. M. Eric Gershwin, M.D. Johns Hopkins University Retired Baltimore, Maryland University of Texas Medical School at Houston Distinguished Professor of Medicine Houston, Texas The Jack and Donald Chia Professor Robert H. Phillips, Ph.D of Medicine Director Jean-François Bach, M.D., D.Sc. Chief, Division of Rheumatology, Center for Coping Secrétaire perpétuel Allergy and Clinical Immunology Long Island, New York Academie des Sciences School of Medicine Paris, France Yehuda Shoenfeld, M.D. University of California at Davis Head: Department of Medicine ‘B’ and Patrizio Caturegli, M.D. Davis, California Center for Autoimmune Diseases Director, Center for Autoimmune Bevra H. Hahn, M.D. Chaim Sheba Medical Center Disease Research, Professor of Medicine (Affiliated to Tel-Aviv University) Bloomberg School of Public Health Vice Chair, Department of Medicine, Incumbent of the Laura Schwarz-Kipp Chair Department of Pathology, School of Medicine Chief of Rheumatology for Research of Autoimmune Diseases Department of Molecular Microbiology University of California, Los Angeles Tel-Aviv University and Immunology Los Angeles, California Tel-Hashomer, Israel School of Public Health Johns Hopkins University E. Nigel Harris, M. Phil, M.D., D.M. Yaron Tomer, M.D. Baltimore, Maryland Retired Anita and Jack Saltz Chair in Diabetes Research The University of the West Indies Professor and University Chair, Nicholas Chiorazzi, M.D. Mona, Kingston, Jamaica, West Indies Department of Medicine Investigator Albert Einstein College of Medicine The Feinstein Institute for Medical Research Steven A. Krilis, Ph.D. Head, Department of Immunology, Allergy and Montefiore Medical Center Manhasset, New York Bronx, New York Professor of Medicine and Cell Biology Infectious Disease Albert Einstein College of Medicine The St. George Hospital Hartmut Wekerle, M.D. Bronx, New York Kogarah, New South Wales, Australia Professor, Direktor Department of Neuroimmunology Joseph E. Craft, M.D. Parviz Lalezari, M.D. Clinical Professor Max-Planck-Institut für Neurobiologie Professor of Medicine and Immunobiology Planegg-Martinsried, Germany Chief, Section of Rheumatology Department of Medicine and Pathology Department of Internal Medicine Albert Einstein College of Medicine Caroline Whitacre, Ph.D. Yale University School of Medicine Montefiore Medical Center Vice President for Research New Haven, Connecticut Bronx, New York Office of Research President, The Biomedical Research Institute Professor, Department of Microbial Scarsdale, New York Infection and Immunity The Ohio State University Columbus, Ohio

MERICAN UTOIMMUNE National Office A A 22100 Gratiot Avenue • Eastpointe, Michigan 48021-2227 RELATED DISEASES ASSOCIATION , I NC . Phone: (586) 776-3900 • Fax: (586) 776-3903 Virginia T. Ladd, Executive Director Web Site: www.aarda.org The American Autoimmune Related Diseases Association, Inc., (AARDA), DBA Autoimmune Diseases Association, is a 501(c)(3) national voluntary health organization founded in 1991. AARDA is a member group and meets all standards of the National Health Council, in Washington DC, and of the Health & Medical Research Charities of America. AARDA is a member group of the Combined Federal Campaign (CFC). As a Better Business Bureau Accredited Charity, AARDA meets the strong and comprehensive standards of the Better Business Bureau Wise Giving Alliance. AARDA also carries the seal “Best in America,” certified by the Independent Charities of America, and has a Three Star Charity rating from Charity Navigator.