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12Th MS Nurse International Workshop FINAL PROGRAM AND ABSTRACTS 0 1 0 2 , 2 1 r e b o t c O - n e ed w , S urg Gothenb 12 th MS Nurse International Workshop Your Continuing Medical Education Partner www.seronosymposia.org GENERAL INFORMATION VENUE The Workshop will take place at the: Gothenburg Convention Centre, Sweden (GCC) Mässans Gata 20, SE-402 26 Gothenburg, Sweden www.gcc.se LANGUAGE The official language of this Workshop will be English. TRAVEL INFORMATION Gothenburg is the second largest city in Sweden. It is located on the Swedish west coast. Gothenburg is home to many students, as the city includes both the University of Gothenburg, one of the largest universities in the Nordic countries, and Chalmers University of Technology. The sea, trade and industrial history of the city is evident in its cultural life. Due to the Gothenburg's advantageous location in the centre of Scandinavia, trade and shipping have always played a role in the city's economic history, and they continue to do so. Gothenburg port has come to be the largest harbour in the whole of Scandinavia. Gothenburg is a popular destination for tourists on the Swedish west-coast, and offers a number of cultural and architectural highlights. The first major architecturally interesting period is the 18 th century when the East India Company made Gothenburg an important trade city. Imposing stone houses with a Classical look were erected around the canals. One example from this period is the East India House, which today houses Gothenburg’s City Museum. Other interesting buildings are the Gothenburg Museum of Art, the city's theatre, the concert hall, the Gothenburg Opera house and the Museum of World Culture. One of Gothenburg's most popular natural tourist attractions is the Southern Gothenburg Archipelago, which is a set of many picturesque islands that can be reached by ferry boat. 12 th MS Nurse International Workshop Serono Symposia International Foundation 12 TH MS NURSE INTERNATIONAL WORKSHOP Gothenburg, Sweden - October 12, 2010 AIM OF THE WORKSHOP This is an educational program created to encourage the dissemination of scientific knowledge among nurses working in the field of Multiple Sclerosis (MS). Disease management in research and clinical practice, with a special emphasis on the nurses’ crucial role, will be reviewed. Management of main signs and symptoms of the disease, such as spasticity, pain, psychosocial distress, cognitive impairment and genitourinary problems will be addressed both from the physician and nurse perspective. LEARNING OBJECTIVES At the conclusion of this Workshop, participants will: • Be updated on diagnostic tools used to define physical and psychological disorders related to MS • Be able to implement the most advanced tools in disease management in their practice • Have an updated knowledge of the management of experimental therapies and clinical trials in Multiple Sclerosis TARGET AUDIENCE Nurses involved in the treatment of persons with Multiple Sclerosis. ACCREDITATION This continuing education activity has been approved by the International Council of Nurses (ICN) for 6.45 International Continuing Nursing Education Credits (ICNECs). All Serono Symposia International Foundation programs are organized solely to promote the exchange and dissemination of scientific and medical information. No forms of promotional activities are permitted. There may be presentations discussing investigational uses of various products. These views are the responsibility of the named speakers, and do not represent an endorsement or recommendation on the part of Serono Symposia International Foundation. This program is made possible thanks to the unrestricted Educational grant received from: Centre d’Esclerosi Multiple de Catalunya, Vall d'Hebron University Hospital, ComtecMed, Congrex Sweden, Congrex Switzerland, Cryo-Save, Datanalysis, Esaote, Fundación IVI, ISFP International Society for Fertility Preservation, ISMH International Society of Men’s Health, K.I.T.E., Merck Serono, Ministry of Health of the State of Israel, University of Catania. SCIENTIFIC ORGANIZER MS NURSE WORKSHOP STEERING COMMITTEE Giancarlo Comi Sharalyn Anderson Department of Neurology Department of Neurology Institute of Experimental Neurology North East Lincolnshire Care Trust Vita-Salute San Raffaele University London, UK Milan, Italy Dawn Carle Department of Neurology Ottawa Hospital WORKSHOP MODERATOR General Campus Ottawa, Ontario, Canada Eija Luoto Masku Neurological Rehabilitation Centre Giancarlo Comi Masku, Finland Department of Neurology President RIMS - Rehabiliation in MS Institute of Experimental Neurology European network of MS Centres Vita-Salute San Raffaele University Milan, Italy Amy Perrin Ross Department of Neurosciences Sara Dishon Loyola University Medical Center The MS Centre Oak Brook, Illinois, USA Carmel Medical Centre Immediate Past President IOMSN - Haifa, Israel International Organization of MS Nurses Mark S. Freedman The Ottawa Hospital MS Research Unit Ottawa, Ontario, Canada Barbara Kieser Neurologische Klinik Kantonsspital Kuttingen, Switzerland Dawn Langdon Department of Psychology Royal Holloway University of London SCIENTIFIC SECRETARIAT London, UK Serono Symposia International Foundation Salita di San Nicola da Tolentino, 1/b Eija Luoto 00187 Rome, Italy Masku Neurological Rehabilitation Centre Associate Project Manager: Serena Dell’Ariccia Masku, Finland Tel.: +39-06-420 413 251 Fax: +39-06-420 413 677 E-mail: [email protected] Roberta Motta Italian Multiple Sclerosis Society Serono Symposia International Foundation is a Swiss Foundation with headquarters in Rehabilitation Centre 14, rue du Rhône, 1204 Genève, Switzerland Genoa, Italy ORGANIZING SECRETARIAT Amy Perrin Ross Department of Neurosciences Meridiano Congress International Via Mentana, 2/B - 00185 Rome - Italy Loyola University Medical Center Congress Coordinator: Federica Russetti Oak Brook, Illinois, USA Phone: +39-06-88595 209 Fax: +39-06-88595 234 E-mail: [email protected] LIST OF SPEAKERS AND CHAIRMEN Maria Pia Amato Jürg Kesselring Department of Neurological Department of Neurology and Psychiatric Sciences and Neurorehabilitation University of Florence Valens Clinic Rehabilitation Centre Florence, Italy Valens, Switzerland Sharalyn Anderson Dawn Langdon Department of Neurology Department of Psychology North East Lincolnshire Care Trust Royal Holloway University of London London, UK London, UK Giancarlo Comi Fred Lublin Department of Neurology Corinne Goldsmith Dickinson Center for MS Institute of Experimental Neurology Mount Sinai School of Medicine Vita-Salute San Raffaele University New York, NY, USA Milan, Italy Eija Luoto Monica Falautano Masku Neurological Rehabilitation Centre Functional Unit of Psychology Masku, Finland Department of Neurology and Clinical Neurophisiology Xavier Montalban IRCCS Fondazione San Raffaele Multiple Sclerosis Center of Catalonia del Monte Tabor Unit of Clinical Neuroimmunology Milan, Italy Vall d’Hebron University Hospital Barcelona, Spain Oscar Fernández Neuroscience Institute Roberta Motta Service of Neurology Italian Multiple Sclerosis Society University Regional Hospital “Carlos Haya” Rehabilitation Centre Malaga, Spain Genoa, Italy Mark S. Freedman Amy Perrin Ross The Ottawa Hospital Department of Neurosciences MS Research Unit Loyola University Medical Center Ottawa, Ontario, Canada Oak Brook, Illinois, USA Urs N. Gamper Jaume Sastre-Garriga Department of Therapy Multiple Sclerosis Center of Catalonia Valens Clinic Rehabilitation Center Unit of Clinical Neuroimmunology Valens, Switzerland Vall d’Hebron University Hospital Barcelona, Spain Claudio Gasperini Department of Neurosciences San Camillo Forlanini Hospital Rome, Italy June Halper CMSC/IOMSN Hackensack, NJ, USA SCIENTIFIC PROGRAM TUESDAY - OCTOBER 12, 2010 08.30 Serono Symposia International Foundation Opening Giancarlo Comi , Italy 08.45 Workshop Introduction Eija Luoto , Finland - Amy Perrin Ross , USA SESSION I PRACTICAL ISSUES AND SOLUTIONS IN DMD s Session Chair: Eija Luoto , Finland 09.00 L1: Immunomodulatory treatments Fred Lublin , USA 09.20 L2: Fostering adherence to DMDs Jaume Sastre-Garriga , Spain 09.40 L3: Fostering adherence to DMDs - The Nurse perspective Sharalyn Anderson , UK 10.00 Discussion 10.10 L4: Nurses: key interface between patients and physicians Mark S. Freedman , Canada 10.30 L5: MS at home assistance Claudio Gasperini , Italy 10.50 L6: MS at home assistance - The Nurse perspective Amy Perrin Ross , USA 11.10 Discussion 11.20 Coffee Break SESSION II COGNITIVE PROBLEMS IN MS Session Chair: Eija Luoto , Finland 11.30 L7: Cognitive problems in MS Maria Pia Amato , Italy 11.50 L8: Cognitive rehabilitation in MS Monica Falautano , Italy 12.10 Discussion SESSION III MOTOR PROBLEMS AND REHABILITATION IN MS Session Chair: Eija Luoto , Finland 12.20 L9: Motor problems and rehabilitation in MS Jürg Kesselring , Switzerland 12.40 L10: Motor problems and rehabilitation in MS - The Physiotherapist perspective Urs N. Gamper , Switzerland 13.00 Discussion 13.10 Lunch SESSION IV EMOTIONAL PROBLEMS IN MS Session Chair: Amy Perrin Ross , USA 14.30 L11: Affective and emotional problems in MS Giancarlo Comi , Italy 14.50 L12: Management of psychological problems in MS Dawn Langdon , UK 15.10 Discussion Scientific Program SESSION V GENITO-URINARY PROBLEMS IN MS PATIENT Session Chair: Amy Perrin Ross , USA 15.20 L13: Genito-Urinary problems in MS patient Oscar Fernández , Spain 15.40 L14: Genito-Urinary deficiency in MS patient - The nurse perspective Roberta Motta , Italy 16.00
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