Autism Handout Class
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Gesnerus 2020-2.Indb
Gesnerus 77/2 (2020) 279–311, DOI: 10.24894/Gesn-de.2020.77012 Vom «autistischen Psychopathen» zum Autismusspektrum. Verhaltensdiagnostik und Persönlichkeitsbehauptung in der Geschichte des Autismus Rüdiger Graf Abstract Der Aufsatz untersucht das Verhältnis von Persönlichkeit und Verhalten in der Defi nition und Diagnostik des Autismus von Kanner und Asperger in den 1940er Jahren bis in die neueren Ausgaben des DSM und ICD. Dazu unter- scheidet er drei verschiedene epistemische Zugänge zum Autismus: ein exter- nes Wissen der dritten Person, das über Verhaltensbeobachtungen, Testver- fahren und Elterninterviews gewonnen wird; ein stärker praktisches Wissen der zweiten Person, das in der andauernden, alltäglichen Interaktion bei El- tern und Betreuer*innen entsteht, und schließlich das introspektive Wissen der ersten Person, d.h. der Autist*innen selbst. Dabei resultiert die Kerndif- ferenz in der Behandlung des Autismus daraus, ob man meint, die Persönlich- keit eines Menschen allein über die Beobachtung von Verhaltensweisen er- schließen zu können oder ob es sich um eine vorgängige Struktur handelt, die introspektiv zugänglich ist, Verhalten prägt und ihm Sinn verleihen kann. Die Entscheidung hierüber führt zu grundlegend anderen Positionierungen zu verhaltenstherapeutischen Ansätzen, wie insbesondere zu Ole Ivar Lovaas’ Applied Behavior Analysis. Autismus; Psychiatriegeschichte; Wissensgeschichte; Verhaltenstherapie; Neurodiversität PD Dr. Rüdiger Graf, Leibniz-Zentrum für Zeithistorische Forschung Potsdam, Am Neuen Markt 1, 14467 Potsdam, [email protected]. Gesnerus 77 (2020) 279 Downloaded from Brill.com09/27/2021 01:45:02AM via free access «Autistic Psychopaths» and the Autism Spectrum. Diagnosing Behavior and Claiming Personhood in the History of Autism The article examines how understandings of personality and behavior have interacted in the defi nition and diagnostics of autism from Kanner and As- perger in the 1940s to the latest editions of DSM and ICD. -
Gruson-Wood Julia F 2018 Phd.Pdf (1.393Mb)
‘I’M A JUGGLING ROBOT:’ AN ETHNOGRAPHY OF THE ORGANIZATION AND CULTURE OF AUTISM-BASED APPLIED BEHAVIOUR THERAPIES IN ONTARIO, CANADA JULIA GRUSON-WOOD A DISSERTATION SUBMITTED TO THE FACULTY OF GRADUATE STUDIES IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY GRADUATE PROGAM IN SCIENCE AND TECHNOLOGY STUDIES YORK UNIVERSITY, ONTARIO AUGUST 2018 © Julia F Gruson-Wood 2018 ABSTRACT This dissertation is an ethnographic study of the culture, social organization, and everyday practices of providers and recipients of autism-based applied behavior therapies in Ontario, Canada. Autism-based applied behavior therapies are highly controversial evidence-based autism interventions that have become the standard of care, and the only guaranteed-funded services, for autistic people in this province. These therapies are provided by teachers in public autism classrooms, by parents in the home, and by personal support workers in group homes with autistic residents. The lives of many autistic people in this province, whether at school, in the home, or the community, are structured through completing behaviour therapy activities. The growing voices that resist and proliferate applied behaviour therapies, highlight the importance of critical scholarly attention to these therapies. This dissertation is situated within the fields of science studies, medical anthropology, and critical autism studies, and focuses on the experiences and practices of providers. Learning about what providers do, and how they make sense of what they do, helps to understand the professional culture in which they work, and the complex forces of power that govern both their activities and the everyday lives of autistic people in this province. -
April 2011 Issue As I Knew That Kim Pittaway, Who Did This Article Also About Adam and Myself, Also Wrote an Article About Michelle
6/26/2019 Estée Klar Estée Klar - Page 14 of 32 - My autistic son and I explore issues and meanings of autism in our lives Estée Klar Home Bio Lectures/Events Published Articles/Papers Books Contact Me Media Youtube Autistic Wandering and the DSM Filed Under (Activism, autism, Autism Spectrum and Diagnosis, Discrimination) by Estee on 04-04-2011 Recently, the CDC proposed a separate criteria for wandering in autism. You can find the PDF here. I have received permission from the Autism National Committee (AUTCOM) to make this letter available to readers in response to the proposal: Dear Ms. Pickett: We are writing as a coalition of organizations representing a wide variety of different constituents in the disabilities field. We include organizations run by people with disabilities as well as those run by parents, other family members, professionals, providers and many others. Our coalition also includes groups representing a wide array of different kinds of disability categories, including developmental disabilities, mental health conditions, physical disabilities and sensory disabilities. We are writing to express our profound concern about the proposed ICD-9-CM code for wandering discussed at the last meeting of the ICD Coordination and Maintenance Committee on March 9th-10th. While wandering behavior leading to injury and death represents an important and legitimate safety issue for the disability community, we are concerned that the proposal put forward by CDC’s National Center for Birth Defects and Developmental Disabilities (NCBDDD) is not rooted in high quality research and has significant potential unintended consequences for people with disabilities and family members. -
The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
Introduction
Volume 1. No. 1 Introduction. October 17, 2012 By Larry Arnold. Introduction. By Larry Arnold In ‘Hopi Culture and a Matter of Representation,’ Lomayumtewa Ishii[1] describes the excessive preoccupation of North American academic ethnology and anthropology with the Hopi tribe to the extent that the representation of ’hopiland‘, as he describes it, has resulted in a cultural archive (citing Said) that maintains and continues to perpetuate an ‘intellectual colonisation’ over the Hopi people. As editor of this journal, I cannot help but see the parallels with the scientific, and more recently, the disability studies world’s preoccupation with autism, to the extent that in order to maintain our own academic credibility We find ourselves having to to cite outside “ethnographers” to validate ideas that had originally been introduced to this discussion by the autochthonous autistic community itself. It is with this background in mind that ‘Autonomy’ has been set up by a small group of autistic academics under the auspices of the Autreach Press, an organisation formed for the purpose, which subscribes to the general principles of the Autreach[2] group of autonomous organisations who share the common aim of promoting greater autistic autonomy, hence the title of this journal. Introduction. Indeed this mirrors the experience that Sinclair[3] has described with the establishment of the Autism Network International (ANI) after the experiences of attending various academic conferences and meeting other autistic people, hearing time and again papers about them, but not written by them. Often the only role we as ‘Autists’ play on this circuit is that of the subjects of research, either as volunteers or unwittingly when our autobiographic materials and many web sites and forums have been trawled by ethnographers and ethnomethodologists searching for readily available material. -
May 24, 2013, NIH Record, Vol. LXV, No. 11
MAY 24, 2013 The Second Best Thing About Payday VOL. LXV, NO. 11 ‘Something Amazing Happened’ Response to HIV Alters Health Care Paradigm, Says El-Sadr By Belle Waring ABOVE · Congressman Chaka Fattah (l) gets a glimpse of NIH research. See more photos he myth of the American hero glorifies the rugged individual—the cowboy who and story, p. 12. Trides alone. But there’s a new model: the public health heroes. The plague fighters. features Working in their teams, there is magic. Some people think that HIV has gone away, 1 but over the last 3 decades, more than 60 mil- HIV Response Fundamentally Shifts lion people globally have been infected with Health Care Delivery, El-Sadr Says the virus and nearly 30 million people have 3 died of AIDS. NIDDK Opens Lab in Micronesia This makes the ongoing work of physicians 5 and researchers such as Dr. Wafaa El-Sadr es- Therapy Offers Personalized Care sential. She recently visited NIH to give the an- For Cancer Patients nual Dr. James C. Hill Memorial Lecture, “The 12 Global Response to the HIV Epidemic: Lessons Congressional Delegation Tours, Learned and Lasting Legacy.” A full house at- Shares a Working Lunch at NIH tended her talk in Lipsett Amphitheater. see el-sadr, page 4 Dr. Wafaa El-Sadr departments Autism Awareness More Than 80 Activities Author Robison’s Inspiring Story NIH Celebrates Take Your Child to Work, Educates about Asperger’s Earth Day Briefs 2 By Dana Steinberg By Dana Steinberg Digest 9 Milestones 11 “Autism made me NIH hosted its 18th Seen 12 a misfit lonely kid,” Take Your Child to said John Elder Work Day and cel- Robison at an Apr. -
Autistic Adult and Non-Autistic Parent Advocates: Bridging the Divide
AUTHORS' VERSION Rottier, H. & Gernsbacher, M. A. (2020). Autistic adult and non-autistic parent advocates: Bridging the divide. In. A. C. Carey, J. M., Ostrove, & T. Fannon (Eds.) Disability alliances and allies (Research in social science and disability, Vol. 12, pp. 155-166). Emerald Publishing Limited. https://doi.org/10.1108/S1479-354720200000012011 Chapter 7 AUTISTIC ADULT AND NON-AUTISTIC PARENT ADVOCATES: BRIDGING THE DIVIDE Helen Rottier and Morton Ann Gernsbacher ABSTRACT Purpose: Due to the developmental nature of autism, which is often diagnosed in preschool or elementary school-aged children, non-autistic parents of autistic children typically play a prominent role in autism advocacy. How- ever, as autistic children become adults and adult diagnoses of autism continue to rise, autistic adults have played a more prominent role in advo- cacy. The purpose of this chapter is to explore the histories of adult and non-autistic parent advocacy in the United States and to examine the points of divergence and convergence. Approach: Because of their different perspectives and experiences, advocacy by autistic adults and non-autistic parents can have distinctive goals and conflicting priorities. Therefore, the approach we take in the current chapter is a collaboration between an autistic adult and a non-autistic parent, both of whom are research scholars. Findings: The authors explore the divergence of goals and discourse between autistic self-advocates and non-autistic parent advocates and offer three principles for building future -
Articles and Books About U.S, for Example, That People Will Make Eye Contact As They Have Autism
RTICLE A EER EVIEWED UBMISSION P R S Neuropluralism Alexandra Perry MEd EdD (candidate) Department of Philosophy, Bergen Community College Lyndhurst, NJ, USA the indications that a person may fall within the autism spectrum Abstract is the unwillingness or inability to make eye contact. Parents of autistic children are more oft en than not familiar with the results Autism is currently one of the most pressing issues in of developmental evaluations noting a lack of eye contact, and healthcare. Scholarship on the topic is commonly found many autistic children are sent squirming with the words “look among psychologists, educators, and, to some extent, me in the eye…” Autistic adults, too, oft en note that they tire of 1 philosophers. Surprisingly little scholarship, however, being reminded to make eye contact. has focused on the ethical issues relevant to autism. Bioethicists ought to give autism consideration, though John Elder Robison (2007) wrote a well-known memoir on the this may prove to be more diffi cult than it seems at fi rst experience of growing up autistic. Robison remembers people glance. The neurodiversity movement is likely to be noting his lack of eye contact with such comments as “You look credited with starting discussions on autism and related like a criminal,” or “nobody trusts a man who won’t look them in issues of justice and ethics, but perhaps this movement the eye.” (pp. 2) Robison also notes that: has set its sights short. Rather than looking for recognition ‘[S]ociopath’ and ‘psycho’ were two of the most common of neurological divergence, a society that is grounded in fi eld diagnoses for my look and expression. -
Autism Speaks Does Not Provide Medical Or Legal Advice Or Services
100 Day Kit A tool kit to assist families in getting the critical information they need in the first 100 days after an autism diagnosis. Autism Speaks does not provide medical or legal advice or services. Rather, Autism Speaks provides general information about autism as a service to the community. The information provided in this kit is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider and does not replace the advice of medical, legal or educational professionals. This kit is not intended as a tool for verifying the credentials, qualifications, or abilities of any organization, product or professional. Autism Speaks has not validated and is not responsible for any information or services provided by third parties. You are urged to use independent judgment and request references when considering any resource associated with the provision of services related to autism ©2013 Autism Speaks Inc. Autism Speaks and Autism Speaks It’s Time To Listen & Design are trademarks owned by Autism Speaks Inc. All rights reserved. About this Kit Autism Speaks would like to extend special thanks to the Parent Advisory Committee for the time and effort that they put into reviewing the 100 Day Kit. 100 Day Kit Parent Advisory Committee Stacy Crowe Rodney Goodman Beth Hawes Deborah Hilibrand Dawn Itzkowitz Stacy Karger Marjorie Madfis Donna Ross- Jones Judith Ursitti Marcy Wenning Family Services Committee Members Dan Aronson Parent Liz Bell Parent Sallie Bernard Parent, Executive Director, SafeMinds Farah Chapes Chief Administrative Officer, The Marcus Autism Center Peter F. Gerhardt, Ed.D Director, Upper School, The McCarton School Founding Chair of the Scientific Council, Organization for Autism Research Lorrie Henderson Ph.D., LCSW, MBA Brian Kelly * ** Parent ©2013 Autism Speaks Inc. -
It Reveals Who I Really Am”: New Metaphors, Symbols, and Motifs in Representations of Autism Spectrum Disorders in Popular Culture
“IT REVEALS WHO I REALLY AM”: NEW METAPHORS, SYMBOLS, AND MOTIFS IN REPRESENTATIONS OF AUTISM SPECTRUM DISORDERS IN POPULAR CULTURE By Summer Joy O’Neal A Dissertation Submitted in Partial Fulfillment of the Requirements for the Degree of Doctor of Philosophy in English Middle Tennessee State University 2013 Dissertation Committee: Dr. Angela Hague, Chair Dr. David Lavery Dr. Robert Petersen Copyright © 2013 Summer Joy O’Neal ii ACKNOWLEDGEMENTS There simply is not enough thanks to thank my family, my faithful parents, T. Brian and Pamela O’Neal, and my understanding sisters, Auburn and Taffeta, for their lifelong support; without their love, belief in my strengths, patience with my struggles, and encouragement, I would not be in this position today. I am forever grateful to my wonderful director, Dr. Angela Hague, whose commitment to this project went above and beyond what I deserved to expect. To the rest of my committee, Dr. David Lavery and Dr. Robert Petersen, for their seasoned advice and willingness to participate, I am also indebted. Beyond these, I would like to recognize some “unofficial” members of my committee, including Dr. Elyce Helford, Dr. Alicia Broderick, Ari Ne’eman, Chris Foss, and Melanie Yergau, who graciously offered me necessary guidance and insightful advice for this project, particularly in the field of Disability Studies. Yet most of all, Ephesians 3.20-21. iii ABSTRACT Autism has been sensationalized by the media because of the disorder’s purported prevalence: Diagnoses of this condition that was traditionally considered to be quite rare have radically increased in recent years, and an analogous fascination with autism has emerged in the field of popular culture. -
The Joy of Autism: Part 4
I also have a list of prominent unconfirmed participants, who should be confirmed shortly. I am looking for Canadian autistic persons to consider joining the board. Please send letters of interest to: [email protected] PERM ALINK POSTED BY ESTEE KLAR-WOLFOND AT 3/16/2006 11:19:00 AM 13 COM M ENTS LINKS TO THIS POST TUESDAY , M ARCH 14, 2006 The Difficulty of Knowing There is an old adage: Ignorance is Bliss. In the case of liberal eugenics, human genome research and ethics, some people might think this as they read on. As we come closer to discovering what makes us physically human, we come closer to becoming god-like. In the name of progress we fly higher and seek control. Apollo had a son called Phaethon, who was human. Phaethon nagged at Apollo to let him borrow the sun chariot and fly across the sky. Finally Apollo agreed. Phaethon proudly drove the sun chariot up into the sky, but then he lost control of the horses. The sun chariot dived towards the earth, burning everything. Finally Jupiter had to stop him with a thunder bolt. In the name of progress, human genetics, biotechnology and the economic engine that will profit dearly from it all, this movement will go on. To what end is yet to be determined. In the meantime, let’s keep talking about what this all means as my son hugs me from behind with his cherub smile this morning. I’ve been pondering my first pregnancy with Adam. The expectation of him. Needless to say, after thirty-six years of waiting, I was ecstatic. -
Autism Now Spring 2010 Volume 23, Number 2
Autism Now Spring 2010 volume 23, number 2 OPENING DOORS GALA SPONSORS AUTISM SOCIETY OF EDMONTON AREA www.autismedmonton.org BOARD OF DIRECTORS AUTISM SOCIETY OF EDMONTON AREA AUTISM SOCIETY OF EDMONTON AREA EXECUTIVE #101, 11720 Kingsway Avenue Edmonton, AB T5G 0X5 PRESIDENT Ryan Guenter 780-453-3971 / 780-447-4948 VICE PRESIDENT Arif Khan email: [email protected] TREASURER Jackie Ryan website: www.autismedmonton.org SECRETARY Jean Ashmore DIRECTORS PLEASE PHONE THE SOCIETY FOR AD PLACEMENT AND RATES Karen Bain Holly Brown Marcy Henschel Mark Lynch Layout by Backstreet Communications Shane Lynch David Nicholas Printed by McCallum Printing Group Inc. Terri Robson Alan Wagner PM# 40020698 Articles, opinions and events in this publication do not necessarily imply the endorsement of the Autism Society of Edmonton Area and are printed for information only. The editors of Autism Now are Deborah Barrett and Roman Sokolowski. The Autism Society of Edmonton Area is a non-profit organization founded in 1971 by a concerned group of parents and professionals. The Autism Society of Edmonton Area helps families and communities embrace and support people on the autism spectrum throughout their lives. Spring Fever 2 AUTISM SOCIETY OF EDMONTON AREA www.autismedmonton.org President’s Message Ryan Guenter ASEA continues to work on ways to support individuals and families affected by autism throughout their lives. On a Besides the regular executive and board recent Saturday afternoon, the entire board and several of our meetings for the Autism Society, it is fine staff had a visioning session to plan out what our priorities always nice to get out and do other types of as an organization are going forward.