Autistic Authors Booklist and Facts
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Check These Sites for Up-To-The-Minute Information on Autism Spectrum Disorders
World Wide Web links on Autism - Check these sites for up-to-the-minute information on Autism Spectrum Disorders: Asperger Syndrome: http://www.familyvillage.wisc.edu/lib_aspe.htm www.edul.edu/bkirby/asperger www.asperger.org/ Autism & Brain Development Research: http://nodulus.extern.ucsd.edu/abdrl/html Autism Research Institute: http://www.autism.com.ari Autism Resources - John Wobus http://web.syr.edu/~jmwobus/autism/ Center for the Study of Autism: http://www.autism.org/ http://www.autism.org/ http://www.autism.org/links.html Childhood Disintegrative Disorder: http://info.med.vale.edu/chldstdv/autism/ccd-info.html Family Village - Autism Resources: http://www.familyvillage.wisc.edu/lib_autm.htm MN Dept. of CFL Web Page on Autism Spectrum Disorders: http://cfl.state.mn.us/speced/Autism.htm National Alliance for Autism Research http://www.naar.org Pervasive Developmental Disorder Not Otherwise Specified (PDD-NOS): http://info.med.vale.edu/chldstdy/autism/pdd-info.html Rett's Disorder: http://www.familyvillage.wisc.edu/lib_rett.htm AUTISM Title Description 101 Activities for Kids in When what you've got is a small space and a Tight Spaces restless child, what you need are 101 ingenious by: Carol Stock solutions - right away! Here they are - easy to Kranowitz, M.A. 1995 implement, creative fun for the three to seven year old - activities that can turn tough moments into teachable, terrific ones. A "5" Could Make Me This interactive way of using the 5-point scale Lose Control! offers a very concrete way of helping children by: Kari Dunn Buron with autism spectrum disorders to understand and control their emotional responses. -
Gesnerus 2020-2.Indb
Gesnerus 77/2 (2020) 279–311, DOI: 10.24894/Gesn-de.2020.77012 Vom «autistischen Psychopathen» zum Autismusspektrum. Verhaltensdiagnostik und Persönlichkeitsbehauptung in der Geschichte des Autismus Rüdiger Graf Abstract Der Aufsatz untersucht das Verhältnis von Persönlichkeit und Verhalten in der Defi nition und Diagnostik des Autismus von Kanner und Asperger in den 1940er Jahren bis in die neueren Ausgaben des DSM und ICD. Dazu unter- scheidet er drei verschiedene epistemische Zugänge zum Autismus: ein exter- nes Wissen der dritten Person, das über Verhaltensbeobachtungen, Testver- fahren und Elterninterviews gewonnen wird; ein stärker praktisches Wissen der zweiten Person, das in der andauernden, alltäglichen Interaktion bei El- tern und Betreuer*innen entsteht, und schließlich das introspektive Wissen der ersten Person, d.h. der Autist*innen selbst. Dabei resultiert die Kerndif- ferenz in der Behandlung des Autismus daraus, ob man meint, die Persönlich- keit eines Menschen allein über die Beobachtung von Verhaltensweisen er- schließen zu können oder ob es sich um eine vorgängige Struktur handelt, die introspektiv zugänglich ist, Verhalten prägt und ihm Sinn verleihen kann. Die Entscheidung hierüber führt zu grundlegend anderen Positionierungen zu verhaltenstherapeutischen Ansätzen, wie insbesondere zu Ole Ivar Lovaas’ Applied Behavior Analysis. Autismus; Psychiatriegeschichte; Wissensgeschichte; Verhaltenstherapie; Neurodiversität PD Dr. Rüdiger Graf, Leibniz-Zentrum für Zeithistorische Forschung Potsdam, Am Neuen Markt 1, 14467 Potsdam, [email protected]. Gesnerus 77 (2020) 279 Downloaded from Brill.com09/27/2021 01:45:02AM via free access «Autistic Psychopaths» and the Autism Spectrum. Diagnosing Behavior and Claiming Personhood in the History of Autism The article examines how understandings of personality and behavior have interacted in the defi nition and diagnostics of autism from Kanner and As- perger in the 1940s to the latest editions of DSM and ICD. -
Gruson-Wood Julia F 2018 Phd.Pdf (1.393Mb)
‘I’M A JUGGLING ROBOT:’ AN ETHNOGRAPHY OF THE ORGANIZATION AND CULTURE OF AUTISM-BASED APPLIED BEHAVIOUR THERAPIES IN ONTARIO, CANADA JULIA GRUSON-WOOD A DISSERTATION SUBMITTED TO THE FACULTY OF GRADUATE STUDIES IN PARTIAL FULFILLMENT OF THE REQUIREMENTS FOR THE DEGREE OF DOCTOR OF PHILOSOPHY GRADUATE PROGAM IN SCIENCE AND TECHNOLOGY STUDIES YORK UNIVERSITY, ONTARIO AUGUST 2018 © Julia F Gruson-Wood 2018 ABSTRACT This dissertation is an ethnographic study of the culture, social organization, and everyday practices of providers and recipients of autism-based applied behavior therapies in Ontario, Canada. Autism-based applied behavior therapies are highly controversial evidence-based autism interventions that have become the standard of care, and the only guaranteed-funded services, for autistic people in this province. These therapies are provided by teachers in public autism classrooms, by parents in the home, and by personal support workers in group homes with autistic residents. The lives of many autistic people in this province, whether at school, in the home, or the community, are structured through completing behaviour therapy activities. The growing voices that resist and proliferate applied behaviour therapies, highlight the importance of critical scholarly attention to these therapies. This dissertation is situated within the fields of science studies, medical anthropology, and critical autism studies, and focuses on the experiences and practices of providers. Learning about what providers do, and how they make sense of what they do, helps to understand the professional culture in which they work, and the complex forces of power that govern both their activities and the everyday lives of autistic people in this province. -
April 2011 Issue As I Knew That Kim Pittaway, Who Did This Article Also About Adam and Myself, Also Wrote an Article About Michelle
6/26/2019 Estée Klar Estée Klar - Page 14 of 32 - My autistic son and I explore issues and meanings of autism in our lives Estée Klar Home Bio Lectures/Events Published Articles/Papers Books Contact Me Media Youtube Autistic Wandering and the DSM Filed Under (Activism, autism, Autism Spectrum and Diagnosis, Discrimination) by Estee on 04-04-2011 Recently, the CDC proposed a separate criteria for wandering in autism. You can find the PDF here. I have received permission from the Autism National Committee (AUTCOM) to make this letter available to readers in response to the proposal: Dear Ms. Pickett: We are writing as a coalition of organizations representing a wide variety of different constituents in the disabilities field. We include organizations run by people with disabilities as well as those run by parents, other family members, professionals, providers and many others. Our coalition also includes groups representing a wide array of different kinds of disability categories, including developmental disabilities, mental health conditions, physical disabilities and sensory disabilities. We are writing to express our profound concern about the proposed ICD-9-CM code for wandering discussed at the last meeting of the ICD Coordination and Maintenance Committee on March 9th-10th. While wandering behavior leading to injury and death represents an important and legitimate safety issue for the disability community, we are concerned that the proposal put forward by CDC’s National Center for Birth Defects and Developmental Disabilities (NCBDDD) is not rooted in high quality research and has significant potential unintended consequences for people with disabilities and family members. -
FORGOTTEN: Ontario Adults with Autism and Adults with Aspergers.”
FORGOTTEN Ontario Adults with Autism and Adults with Aspergers PUBLISHED BY AUTISM ONTARIO, 2008 Autism Ontario has been the voice of people with Autism Spectrum Disorders (ASD) and their families since 1973, working to ensure that each individual with ASD is provided the means to achieve quality of life as a respected member of society. With thousands of members and supporters across the province, Autism Ontario is the largest collective voice for families whose teen and adult children struggle to receive necessary clinical and support services to meet their unique needs. PHOTOS Our thanks to our cover and report photo participants! Eric Beedham, Pam Newman Button, Tony Hill, Andrew Kyneston, Dwayne McLaughlin, Nadine McLaughlin, Marsha Serkin, Beth Waleski, Gary Waleski, and Jordan Weinroth. COPYRIGHT This document is in the public domain and may be used and reprinted without special permission, except for those copyrighted materials noted for which further reproduction is prohibited without the specific permission of copyright holders. Autism Ontario will appreciate citation as to source. The suggested format for citation is: “Autism Ontario (2008). FORGOTTEN: Ontario Adults with Autism and Adults with Aspergers.” This report can be downloaded from www.autismontario.com Autism Ontario 1179A King Street West Toronto, ON M6K 3C5 416-246-9592 Table of Contents ACKNOWLEDGEMENTS 4 COMMENTARY FROM DR. SUSAN BRYSON 5 EXECUTIVE SUMMARY & RECOMMENDATIONS 6 REPORT 10 What are Autism Spectrum Disorders? 10 Everyday Barriers 11 Impact of Increased -
The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
Constructing Narratives and Identities in Auto/Biography About Autism
RELATIONAL REPRESENTATION: CONSTRUCTING NARRATIVES AND IDENTITIES IN AUTO/BIOGRAPHY ABOUT AUTISM by MONICA L. ORLANDO Submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy Department of English CASE WESTERN RESERVE UNIVERSITY May 2015 2 CASE WESTERN RESERVE UNIVERSITY SCHOOL OF GRADUATE STUDIES We hereby approve the dissertation of Monica Orlando candidate for the degree of Doctor of Philosophy.* Committee Chair Kimberly Emmons Committee Member Michael Clune Committee Member William Siebenschuh Committee Member Jonathan Sadowsky Committee Member Joseph Valente Date of Defense March 3, 2015 * We also certify that written approval has been obtained for any proprietary material contained therein. 3 Dedications and Thanks To my husband Joe, for his patience and support throughout this graduate school journey. To my family, especially my father, who is not here to see me finish, but has always been so proud of me. To Kim Emmons, my dissertation advisor and mentor, who has been a true joy to work with over the past several years. I am very fortunate to have been guided through this project by such a supportive and encouraging person. To the graduate students and faculty of the English department, who have made my experience at Case both educational and enjoyable. I am grateful for having shared the past five years with all of them. 4 Table of Contents Abstract ............................................................................................................................... 5 Chapter 1: Introduction Relationality and the Construction of Identity in Autism Life Writing ........................ 6 Chapter 2 Clara Claiborne Park’s The Siege and Exiting Nirvana: Shifting Conceptions of Autism and Authority ................................................................................................. 53 Chapter 3 Transformative Narratives: Double Voicing and Personhood in Collaborative Life Writing about Autism .............................................................................................. -
Introduction
Volume 1. No. 1 Introduction. October 17, 2012 By Larry Arnold. Introduction. By Larry Arnold In ‘Hopi Culture and a Matter of Representation,’ Lomayumtewa Ishii[1] describes the excessive preoccupation of North American academic ethnology and anthropology with the Hopi tribe to the extent that the representation of ’hopiland‘, as he describes it, has resulted in a cultural archive (citing Said) that maintains and continues to perpetuate an ‘intellectual colonisation’ over the Hopi people. As editor of this journal, I cannot help but see the parallels with the scientific, and more recently, the disability studies world’s preoccupation with autism, to the extent that in order to maintain our own academic credibility We find ourselves having to to cite outside “ethnographers” to validate ideas that had originally been introduced to this discussion by the autochthonous autistic community itself. It is with this background in mind that ‘Autonomy’ has been set up by a small group of autistic academics under the auspices of the Autreach Press, an organisation formed for the purpose, which subscribes to the general principles of the Autreach[2] group of autonomous organisations who share the common aim of promoting greater autistic autonomy, hence the title of this journal. Introduction. Indeed this mirrors the experience that Sinclair[3] has described with the establishment of the Autism Network International (ANI) after the experiences of attending various academic conferences and meeting other autistic people, hearing time and again papers about them, but not written by them. Often the only role we as ‘Autists’ play on this circuit is that of the subjects of research, either as volunteers or unwittingly when our autobiographic materials and many web sites and forums have been trawled by ethnographers and ethnomethodologists searching for readily available material. -
Developing an Individual Transition Plan (ITP)
2/5/09 Developing an Individual Transition Plan (ITP) Presented by Nancy LaCross Autism Resource Specialist [email protected] Individual Transition Plan An ITP is like a road map It tells us how to get from here to there. Where to start? . Start with your dreams and the dreams of your child! . Start asking questions: “Can my child have a job….live alone….take care of himself?” 1 2/5/09 When to start? .NOW ! . Beginning the process early gives the family a focus and the child a future Transition – moving to adulthood A process and a plan to bridge the gap between the school and community where the student will live, work and enjoy adult life Federal Law . IDEA = Individuals with Disabilities Education Act . ITP = Individual Transition Plan 2 2/5/09 Coordinated set of activities Community Adult life participation Vocational training Post-secondary education Continuing Adult services Independent living education Job ITP = Individual Transition Plan • Should be written when student is 14 (NC) • Team of people • Outlines training and support needed • Highly individualized • To prepare the student for life after high school Who’s on the team? . Parents . Student . Teachers . Guidance counselor . Transition coordinator . Vocational counselor . Job coach . Employer . Adult service representative . Friends/relatives 3 2/5/09 As someone famous once said: “It takes a village…..” . Preparing for this transition will require a long- term planning process . Ensure that your child has access to more resources than you can offer alone . Network, network, network…..and be creative Be clear about requirements……………. Even with a diploma a student may be ineligible for admission to a technical school or college if they fail to meet their admissions criteria. -
Transcript of the September 13, 2010 IACC Services Subcommittee Meeting
1 U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES INTERAGENCY AUTISM COORDINATING COMMITTEE SERVICES SUBCOMMITTEE MEETING MONDAY, SEPTEMBER 13, 2010 The Subcommittee met in Conference Rooms A1 and A2 of the National Institute of Mental Health, located at 6001 Executive Boulevard, Rockville, Maryland, at 1:00 p.m., Ellen W. Blackwell, M.S.W., and Lee Grossman, Co- Chairs, presiding. PRESENT: SUSAN DANIELS, Ph.D., Office of Autism Research Coordination, National Institute of Mental Health, and Designated Federal Official ELLEN W. BLACKWELL, M.S.W., Co-Chair, Centers for Medicare and Medicaid Services LEE GROSSMAN, Co-Chair, Autism Society GAIL R. HOULE, Ph.D., U.S. Department of Education JENNIFER G. JOHNSON, Ed.D., (representing Sharon Lewis), Administration for Children and Families CHRISTINE M. McKEE, J.D. ARI NE'EMAN, Autistic Self-Advocacy Network NEAL R. GROSS COURT REPORTERS AND TRANSCRIBERS 1323 RHODE ISLAND AVE., N.W. (202) 234-4433 WASHINGTON, D.C. 20005-3701 www.nealrgross.com 2 PRESENT (continued): DENISE D. RESNIK, Southwest Autism Research and Resource Center CATHY RICE, Ph.D., Centers for Disease Control and Prevention (For Edwin Trevathan, M.D., M.P.H.) STEPHEN M.SHORE, Ed.D., Autism Spectrum Consulting NEAL R. GROSS COURT REPORTERS AND TRANSCRIBERS 1323 RHODE ISLAND AVE., N.W. (202) 234-4433 WASHINGTON, D.C. 20005-3701 www.nealrgross.com 3 TABLE OF CONTENTS Roll Call, Welcome and Introductions, Agenda Items and Housekeeping Dr. Susan Daniels ....................4 Presentation on the Extension of Good Teaching Practices, Inclusion -
11/14/13 Complete List Family & Community Resource Center
11/14/13 Complete List Family & Community Resource Center Special School District of St. Louis County 12110 Clayton Road St. Louis, MO 63131 314-989-8438/989-8108/989-8194 A+ Guide to Transitions from High School to College for Special Education. (2001/video/50 minutes) (2000/DVD) A "college prep" video for parents and students. Teachers, parents and school administrators describe the transition process and offer their best advice for having a positive experience. A is for All Aboard! Paula Kluth & Victoria Kluth (2010) Grades K and up. Fun facts, vibrant art, and in-the-know slang about trains. (32 pages) A is for Autism, F is for Friend. Joanna L. Keating-Velasco (2007) Grades 3 and up. A kid's book on making friends with a child who has autism. (54 pages) The ABA Program Companion: Organizing Quality Programs for Children with Autism and PDD. J Tyler Fovel, MA. (2002) Helps the reader integrate important theories and concepts from ABA into powerful, practical and comprehensive educational programming, from assessment through program methodology and evaluation of results. Manual & CD. The ABCs of Autism. M. Davi Kathiresan (2000) Grades K and up. This book was written to educate families, children and professionals and make them aware of the skills, strengths and capacities of persons with autism. ABCs of Emotional Behavioral Disorder. (video) (2004) (35 minutes) Outlines a best practice approach to successfully integrate elementary and middle school students with Emotional or Behavioral Disorders into the educational mainstream. ABC’s of Inclusive Child Care. (video) (1993) (14 minutes) Resource to encourage child care providers to accept children with developmental disabilities and to increase public awareness of the capabilities of individuals with disabilities. -
Autism Speaks Does Not Provide Medical Or Legal Advice Or Services
100 Day Kit A tool kit to assist families in getting the critical information they need in the first 100 days after an autism diagnosis. Autism Speaks does not provide medical or legal advice or services. Rather, Autism Speaks provides general information about autism as a service to the community. The information provided in this kit is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider and does not replace the advice of medical, legal or educational professionals. This kit is not intended as a tool for verifying the credentials, qualifications, or abilities of any organization, product or professional. Autism Speaks has not validated and is not responsible for any information or services provided by third parties. You are urged to use independent judgment and request references when considering any resource associated with the provision of services related to autism ©2013 Autism Speaks Inc. Autism Speaks and Autism Speaks It’s Time To Listen & Design are trademarks owned by Autism Speaks Inc. All rights reserved. About this Kit Autism Speaks would like to extend special thanks to the Parent Advisory Committee for the time and effort that they put into reviewing the 100 Day Kit. 100 Day Kit Parent Advisory Committee Stacy Crowe Rodney Goodman Beth Hawes Deborah Hilibrand Dawn Itzkowitz Stacy Karger Marjorie Madfis Donna Ross- Jones Judith Ursitti Marcy Wenning Family Services Committee Members Dan Aronson Parent Liz Bell Parent Sallie Bernard Parent, Executive Director, SafeMinds Farah Chapes Chief Administrative Officer, The Marcus Autism Center Peter F. Gerhardt, Ed.D Director, Upper School, The McCarton School Founding Chair of the Scientific Council, Organization for Autism Research Lorrie Henderson Ph.D., LCSW, MBA Brian Kelly * ** Parent ©2013 Autism Speaks Inc.