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On the Spectrum AHA Association Publication Fall 2015 ON THE SPECTRUM Proudly Supporting the Autism Community Since 1988 IN THIS ISSUE... Legal Forms: Common Mistakes and Misconceptions Aspergers and Sexuality: What Parents Need to Know UNWAAD: United Nations World Autism Awareness Day Lights, Camera, Action: A Day from the Set of Keep the Change Ask the Expert: Not “Just” Autism. Understanding Co-Occuring OCD Aspie Viewpoint: Creating a Support Network at College Sure Bets from Beth: Teaching Independence to Your Teen Research Update: IMFAR: The Largest Group of Autism Researchers Meet AHA Association/Asperger Syndrome and High Functioning Autism Association, Inc./ahany.org AHA Board of Directors Contents: Executive Director, Board President Pat Schissel, LMSW Featured Articles: Board Vice President 4 Fall Conference Highlight: Legal Forms: Common Mistakes Michael A. Buf a, Esq. and Misconceptions Deputy Director Bernice Polinsky 11 UNWAAD: United Nations World Autism Awareness Day Treasurer 10 Lights, Camera, Action: A Day from the Set of Keep the Change Lynn Levine, PE 25 Aspergers and Sexuality: What Parents Need to Know Recording Secretary Jodi B. Kaplan, MS, MBA In Each Issue: Corresponding Secretary 3 Executive Director’s Corner 16 People Who Make A Diff erence Bea Gravino 3 Who’s Who 24 Research Update Board Director John Almont 5 Ask the Expert 26-27 Organization Updates Board Director 6 Aspie Viewpoint 27 All Around the Town Joan Resnick Ehrlich 9 Sure Bets from Beth 28-29 Books to Read Board Director Patricia Fitzgerald, MS, CCC-SLP, TSHH 10 From the Trenches 31 Support Sheet Board Director William J. Heslin, CLU, ChFC Contact Information: Board Director AHA Association Carole Kalvar 330 Broadway, Amityville, NY 11701 Board Director Joe Kraker 303 Fifth Avenue, Suite 1003, New York, NY 10016 Pat Schissel, LMSW, Executive Director Board Director Victoria Rodriguez Minowitz Bernice Polinsky, Deputy Director www.ahany.org [email protected] Board Director Anne Marie Swerz, LMSW Board Director Mission Statement Oleg Zuto Our mission is to provide information, education, support, awareness, and advocacy for those affected by Autism Spectrum Disorder. That includes family members, individuals on the autism spectrum, and the professionals who work alongside them. Professional Advisory Board John C. Pomeroy, MD, Chair Diane Adreon, EdD Ways to Donate to AHA May-Lynn Andresen, RN Donate through our website (www.ahany.org), Amex’s Just Give, the United Way, the Combined (CFC), Tony Attwood, PhD Federal Campaign or mail a check or money order directly to AHA. Volunteers are always needed and appreciated. Call or email for further information. AHA is a 501(c)(3) not-for-profi t Susan Deedy, Esq. organization; all donations are tax deductible. Michelle Dunn, PhD V. Mark Durand, PhD Valerie Gaus, PhD AHA Board Meeting Dates Lynda Geller, PhD September 16, October 7, November – No Meeting, December 9. All meetings in Amityville. Peter F. Gerhardt, EdD Temple Grandin, PhD The Importance of Scientif c and Evidence-based Information C. Faith Kappenberg, PhD, LCSW T e search for eff ective treatment of autism spectrum disorders (ASD) is made more dif- Ami Klin, PhD fi cult because each individual on the autism spectrum is unique. Myriad interventions are Matthew D. Lerner, PhD being off ered, including a wide variety of medications, therapies, educational method- Brenda Smith Myles, PhD Jerry Newport, BA ologies and nutritional approaches. While many of these methods refl ect sound current Shana Nichols, PhD practice, many of them do not. A parent’s urgency to take action may be exploited by Martin Schwartzman, CFE, CIE, CPCU unsound practices that can be costly, time-consuming and physically demanding. T rough Stephen Shore, EdD our support programs, website, eNews and our publication, On T e Spectrum, we make every eff ort to provide objective, up-to-date, reliable, evidence-based information, and we urge you to thoughtfully evaluate any proposed treatment. ON THE SPECTRUM The AHA Publication Become an AHA member online at www.ahany.org or contact us at [email protected] PO Box 916, Bethpage, NY 11714-0916 ahany.org [email protected] AHA does not endorse any products, services, establishments, individuals, programs, or Administrative Editor Managing Editor treatments represented on these pages. Individuals should educate themselves and make their Bernice Polinsky Becca Lory Advertising Coordinator: Jeannie Wright own decisions concerning their particular needs. Authors’ opinions expressed in this publication Editorial Staf : Rosalie Edelson, Joan Hourihane, are not necessarily those of AHA. Carol Koch, Chic Schissel, Eric Schissel © 2015 AHA Association. No part of this newsletter may be reprinted without permission of AHA. 2 printed on recycled paper. AHA Association • On The Spectrum • Fall 2015 • ahany.org irector’s Corner tive D ecu Dear Members and Friends, Ex T ose of you who are new to AHA we expect are opening our latest issue of On T e Spectrum (OTS) and beginning to scour the pages for information, articles, and resources that are of interest to you. For those familiar with us, our members, friends, and supporters, what must you be thinking? WOW?!?! What did the staff at AHA do during SUMMER 2015? Let me tell you. We got a notice that all websites had to be mobile friendly by June of 2015 or GOOGLE would no longer support a ‘query’. Many of you found us through these searches; these helped change isolation, perceptions, and services for families and people on the spectrum. Our website needed a real facelift that we had been avoiding because of cost and the sheer eff ort involved. But we bit the bullet with the able lead of staff member Becca Lory and returning intern Grace Barrett-Snyder and my excited involvement. As you know, when you start one project it snowballs into another. Grace, as you may recall, is a talented artist and writer. We took advantage of her talents and she spearheaded the redesign of our logo and branding (colors, stationery, fonts used on the site and in OTS). Voila! Lots of time, eff ort, and work still to be done! Isn’t there always? At the same time we were preparing a move to Adelphi University for our newly formatted, single day fall conference on Saturday, October 24th in partnership with CHI/Center for Health Innovation. We will be off ering ASHA CEU’s (for speech/language pathologists), Social Work CE hours, and Autism Specialist hours. Kathleen Barrett-Snyder and Jenn Feldman, back from her graduate studies for the summer, were preparing to launch ROCK ‘N’ BOWL for Autism (RNB) 2015. T is is AHA’s major yearly signature fundraiser. We look forward to seeing you all on Saturday, November 21st at Farmingdale Lanes! RNB is also a wonderful opportunity for everyone to come together, have a great time, and raise funds to keep us going for another year. Jenn is back at school now but continuing as a volunteer, dedicated to AHA and our mission. Joan Hourihane and Jeannie Wright continue in their part-time positions and, along with Bernice and me, the AHA team gets it done. During the summer Caitlin Zaugg, a junior at Stony Brook University, helped out in our offi ce, and Alex Wright continues work on our eNews all year. Our newest volunteer, Leslie Feinberg, contributes experienced and welcome help with our ever-growing email requests. NOTE: T e referral form on our new website is working well. Please use this to get in touch with us. Your reply will be faster and more effi cient. Don’t forget, all this happened while getting this issue ready for our printer. Whew! T e AHA staff works tirelessly to provide the quality support and resources that our members and our community deserve. T ank you all!! Continue to read the weekly AHA eNews for many more programs and events for you and your families! All my best, Who’s Who Rahimeh Andalibian, PsyD Rahimeh Andalibian is a clinical psychologist whose expertise centers on trauma, individuals, couples, and family therapy. Dr. Andalibian believes that trauma is misunderstood and under identifi ed in the autism population and has dedicated her practice at T rive: Full Spectrum Services in New York City to meeting the needs of the community by serving families, consulting with colleagues, and collaborating with schools and programs. In her nearly two decades of work with families, couples, children, and groups she helps her clients liberate themselves from their past, and transform their lives with an understanding that emotional pain has physical, psychological and emotional implications. Dr. Andalibian, author of the recently released memoir T e Rose Hotel (National Geographic Books), re-examines her idyllic childhood in 1970s Iran where her affl uent world is suddenly shattered by the violence of the Iranian revolution, and her family’s life is forever altered. T e family is uprooted fi rst to London, then to California where she and her brothers suff er a diff erent kind of revolution. Struggling to make sense of her new world in America she realizes that while her family is safe, they are not free from the burdens of their own secrets, lies, and hidden truths. Dr. Andalibian’s life and the impact of trauma and mental illness in her family have given her rare tools that led her to her chosen profession. Now, as one of the leading forces at T rive: Full Spectrum Services, her infl uence will be even greater. AHA Association • On The Spectrum • Fall 2015 • ahany.org printed on recycled paper. 3 AHA 15th Annual Spring Conference Legal Forms: Common Mistakes and Misconceptions by Sharon Kovacs Gruer, Esq. Many individuals fi nish their estate pleted form on fi le with the bank or other institution so plan, put their copies of the will away, your family has proof of what was provided on the form.
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