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The Official Autism 101 E-Book: Autism Today Experts Discover the awesome in Autism! The Official Autism 101 E-Book: Autism Today DISCOVER THE AWESOME IN AUTISM! The Official Autism 101 Manual ©2006 Autism Today Autism Today 2016 Sherwood Dr., Suite 3, Sherwood Park, Alberta Canada T8A 3X3. <www.autismtoday.com> All contributors hold the copyright to the work they have contributed to this e-book and are solely responsible for the views expressed in its content. All trademarks and registered trademarks are the property of their respective owners. Cover design: Dunn + Associates Design Interior design & typesetting: Folio Bookworks ISBN: 0-9724682-8-5 ISBN-13: 978-0-9724682-8-2 Publisher’s Cataloging-in-Publication Data The official autism 101 manual / [created and compiled by] Karen L. Simmons. -- Alberta, Canada : Autism Today, c2006. p. ; cm. ISBN-13: 978-0-9724682-8-2 ISBN-10: 0-9724682-8-5 Contains contributions from professionals in the autism community. Also available in electronic book format. Includes bibliographical references. 1. Autism. 2. Autism--Diagnosis. 3. Autism--Treatment. 4. Autism--Psychological aspects. I. Simmons, Karen L. II. Autism 101 manual. RC553.A88 S56 2006 616.85/882--dc22 0604 The Official Autism 101 E-Book Contents ii Dedication—To the real stars of autism iii Introduction—Why Autism Today is providing this e-book 1 Chapter 1—What exactly are autism spectrum disorders? 3 What is autism? ■ Lori Ernspberger, Ph.D. 6 What is Asperger’s Syndrome? ■ Dr. Tony Attwood 8 Savant syndrome ■ Darold A. Treffert, MD 23 Chapter 2—Early diagnosis and best outcomes 24 Early detection of autism syndrome disorders ■ Rebecca Landa, Ph.D. 29 Early detection of autism syndrome disorders ■ Terrylynn Tyrell 37 Medical testing for autism, Asperger’s Syndrome and PDD ■ William Shaw, Ph.D. 42 Study: Pediatricians do not always recognize ASD symptoms in infants ■ Lawrence P. Kaplan, Ph.D. 43 Chapter 3—Historical perspectives on autism 44 How autism has been understood ■ Lawrence P. Kaplan, Ph.D. 47 Chapter 4—Dealing with autism 49 Addressing behavioral challenges for individuals with ASD ■ Lori Ernspberger, Ph.D. 56 Addressing masturbation ■ Mary Wrobel, SLP 58 Monitor and chart your child’s development ■ Lawrence P. Kaplan, Ph.D. 61 Chapter 5—Exploring the relationship between autism and ADD/ADHD 63 What is the the difference between Asperger’s Syndrome, ADD/ADHD? ■ Sharon A. Mitchell, BA, B.Ed., MA 65 The difference between Autism, Asperger’s Syndrome, ADD and ADHD ■ Diane Burns 67 Chapter 6—Why is autism on the rise? 69 Why is autism on the rise? ■ Stephen M. Edelson, Ph.D. 71 Why is autism on the rise? ■ Daniel Hawthorne 73 The belief in vaccines ■ Sherri Tenpenny, DO 79 Chapter 7—What is all the buzz about mercury? 81 Evidence of harm ■ David Kirby 85 Chapter 8—Where do I begin when autism has been diagnosed? 87 Advice for parents of young autistic children: spring (2004) ■ James B. Adams, Ph.D. 100 When parents first hear the diagnosis of autism ■ Thomas McKean 101 Where do I begin if someone I know has been diagnosed with autism? ■ Daniel Hawthorne 102 The color of autism ■ Toni Flowers 103 Chapter 9—Helping a parent cope emotionally with a child’s autism diagnosis 105 The difference between heaven and earth ■ Ellen Notbohm 108 Helping a parent cope with a child’s diagnosis of autism ■ Karen Siff Exkorn 113 Chapter 10—Family matters: helping siblings and extended families 114 Helping others understand the one you love ■ Lisa Simmons 118 Siblings of children with autism ■ Sandra L. Harris, Ph.D. 121 Chapter 11—How to deal emotionally with spousal and other relationships around autism 122 How to deal emotionally with spousal and other relationships around autism ■ Nicholas Martin, MA 123 Dealing emotionally with relationships around autism ■ Daniel Hawthorne 125 Chapter 12—Creating positive parent–physician partnerships 127 A parent–physician team approach ■ Lawrence P. Kaplan, Ph.D. 131 Chapter 13—Helping the child with ASD gain social skills 133 Social skills training for children with Autism Spectrum Disorders ■ Jed Baker, Ph.D. 140 Learning styles and autism ■ Stephen M. Edelson, Ph.D. 142 Idioms and metaphors and things that go bump in their head ■ Ellen Notbohm 145 Chapter 14—Adolescents with autism and Asperger’s Syndrome 146 Preparing for the essential tasks of the real world ■ Teresa Bolick, Ph.D. 163 Chapter 15—Autism coaching: what it is and how it can help you 164 Autism coaching ■ Barry Bettman, PCC Professional Certified Coach 177 Chapter 16—Typical areas of strength, building self-esteem and positive tools for those on the autism spectrum or with ADHD 178 Genius may be an abnormality: educating students with Asperger’s Syndrome or high functioning autism ■ Temple Grandin, Ph.D. 185 The Strongest Urge of All ■ Karen Simmons Sicoli, CEO 189 I Am . for mothers of children with disabilities ■ Michelle M. Guppy 191 Chapter 17—Treatment methodologies and therapies 192 Medication management in Asperger’s Syndrome and high functioning autism: General guidelines ■ Keith McAfee, MD 197 Evaluating the effects of medication ■ Temple Grandin, Ph.D. 199 Navigating the sea of approaches for working with children on the autism spectrum ■ Stephen Shore, M.Ed 205 The Miller Method®: A cognitive-developmental systems approach for children on the autism spectrum ■ Arnold Miller, Ph.D. 208 The Berard method of auditory integration training (AIT) improves learning, language and social skills ■ Sally Brockett, M.S 211 Pacific Autism Centre: Applied Behavioral Analysis ■ Laura Cook, President, Pacific Autism Center 213 The SCERTS Model™: A comprehensive educational approach ■ Barry M. Prizant, Ph.D., CCC-SLP 219 Diet therapy ■ Lisa Lewis, Ph.D. 223 Autism and nutrition: resources available ■ Laurence A. Becker, Ph.D. 226 Peace and calm for Special Needs ■ Gwen Randall-Young 228 Music therapy and autism ■ Jennifer Buchanan 231 Reaching the child with autism through art ■ Toni Flowers 233 The simple but most overlooked solution to your child’s reading problems ■ Pat Wyman, MA 237 Scotopic sensitivity syndrome and the Irlen lens system ■ Stephen M. Edelson, Ph.D. 239 Chapter 18—Planning for the future 241 Life Map ■ Anne Addison, MBA 244 Planning for the future ■ Sharon A. Mitchell, BA, BEd, MA 247 Chapter 19—By and for people on the autism spectrum 249 My mother nearly died from German Measles ■ Veronica York 252 And then, they’ll see my mother ■ Jessica “Jazz” Summers 255 My story ■ Daniel Hawthorne 257 Light at the end of the tunnel ■ James B. Adams, Ph.D. Anne Addison,MBA, NHA Anthony Attwood, Ph.D. Jed E. Baker, Ph.D. CONTRIBUTINIG AUTHORS Laurence A. Becker, Ph.D. Barry Bettman, PCC Professional Certified Coach Teresa Bolick, Ph.D. Sally Brockett, MS Jennifer Buchanan, BMT, MTA Diane D. Burns Laura Cook Stephen M. Edelson, Ph.D. Lori Ernsperger, Ph.D. Karen Siff Exkorn, BA., MA Toni Flowers Temple Grandin, Ph.D. Michelle M. Guppy Sandra L. Harris, Ph.D. Daniel Hawthorne Lawrence P. Kaplan, Ph.D. David Kirby, Journalist Rebecca Landa, Ph.D., CCC-SLP Lisa S. Lewis, Ph.D. Nicholas Martin, MA Keith McAfee, MD Thomas A. McKean Arnold Miller, Ph.D. Sharon Mitchell, BA, BEd, MA Ellen Notbohm Barry M. Prizant, Ph.D. Gwen Randall-Young, MEd Cpsych Bernard Rimland, Ph.D. William Shaw, Ph.D. Stephen Shore, AbD Lisa Simmons Karen L. Simmons, CEO, Author Jessica “Jazz” Summers Sherri Tenpenny, DO Darold A. Treffert, MD Terrylynn M. Tyrell, Med Mary Wrobel, CCC, SLP Pat Wyman, MA Veronica York i Dedication To the real stars of autism dedicate this resource first and foremost to my because of your contributions. I children, Kimberly, Matthew, Christina, Jonathan, A great big thank you goes out to all the Stephen and Alex. They are all my favourites! This wonderful authors and presenters who have book sets out to share the wealth of information contributed to this resource. Your commitment and and resources I have found and used to help my two perseverance in discovering help for this special group special needs children, Jonathan and Alex. Though of people is what is moving the entire field forward. there have been many challenges over the years, I One of my goals is to facilitate the change of views wouldn’t have my children any other way. They are and attitudes that people have about autism around who they are—whole, loving and complete, exactly as the world. It is important to help people see that they are. Jonny’s humour and wit make me laugh. His autism is a unique condition, with many symptoms ability to focus and concentrate enables him to hone that can be overcome through intervention, rather in on what he enjoys most while offering him hope than as a negative affliction, as it was viewed in days for the future. Alex’s persistence will carry him far in past. Regardless of our circumstances, we can choose life and certainly keeps us all on our toes! So much for to see peace within it. By doing so, the quality of growing old quickly! everyone’s lives will become more positive and loving. I also dedicate this resource to all of Jonny and The person with autism is in your life for a reason. Alex’s peers with Attention Deficit Hyperactivity Perhaps this person is there to teach you love, patience Disorder (ADHD) or autism. You are the real shining and understanding. If you are the person with autism, stars of autism and you offer a unique perspective that you also have your lessons to learn. Maybe they are enriches the fabric of human kind. I like to say we to accept yourself, explore your strengths and learn must all “discover the awesome in autism,” and this is to love and laugh more easily.