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FORGOTTEN: Ontario Adults with Autism and Adults with Aspergers.”
FORGOTTEN Ontario Adults with Autism and Adults with Aspergers PUBLISHED BY AUTISM ONTARIO, 2008 Autism Ontario has been the voice of people with Autism Spectrum Disorders (ASD) and their families since 1973, working to ensure that each individual with ASD is provided the means to achieve quality of life as a respected member of society. With thousands of members and supporters across the province, Autism Ontario is the largest collective voice for families whose teen and adult children struggle to receive necessary clinical and support services to meet their unique needs. PHOTOS Our thanks to our cover and report photo participants! Eric Beedham, Pam Newman Button, Tony Hill, Andrew Kyneston, Dwayne McLaughlin, Nadine McLaughlin, Marsha Serkin, Beth Waleski, Gary Waleski, and Jordan Weinroth. COPYRIGHT This document is in the public domain and may be used and reprinted without special permission, except for those copyrighted materials noted for which further reproduction is prohibited without the specific permission of copyright holders. Autism Ontario will appreciate citation as to source. The suggested format for citation is: “Autism Ontario (2008). FORGOTTEN: Ontario Adults with Autism and Adults with Aspergers.” This report can be downloaded from www.autismontario.com Autism Ontario 1179A King Street West Toronto, ON M6K 3C5 416-246-9592 Table of Contents ACKNOWLEDGEMENTS 4 COMMENTARY FROM DR. SUSAN BRYSON 5 EXECUTIVE SUMMARY & RECOMMENDATIONS 6 REPORT 10 What are Autism Spectrum Disorders? 10 Everyday Barriers 11 Impact of Increased -
Constructing Narratives and Identities in Auto/Biography About Autism
RELATIONAL REPRESENTATION: CONSTRUCTING NARRATIVES AND IDENTITIES IN AUTO/BIOGRAPHY ABOUT AUTISM by MONICA L. ORLANDO Submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy Department of English CASE WESTERN RESERVE UNIVERSITY May 2015 2 CASE WESTERN RESERVE UNIVERSITY SCHOOL OF GRADUATE STUDIES We hereby approve the dissertation of Monica Orlando candidate for the degree of Doctor of Philosophy.* Committee Chair Kimberly Emmons Committee Member Michael Clune Committee Member William Siebenschuh Committee Member Jonathan Sadowsky Committee Member Joseph Valente Date of Defense March 3, 2015 * We also certify that written approval has been obtained for any proprietary material contained therein. 3 Dedications and Thanks To my husband Joe, for his patience and support throughout this graduate school journey. To my family, especially my father, who is not here to see me finish, but has always been so proud of me. To Kim Emmons, my dissertation advisor and mentor, who has been a true joy to work with over the past several years. I am very fortunate to have been guided through this project by such a supportive and encouraging person. To the graduate students and faculty of the English department, who have made my experience at Case both educational and enjoyable. I am grateful for having shared the past five years with all of them. 4 Table of Contents Abstract ............................................................................................................................... 5 Chapter 1: Introduction Relationality and the Construction of Identity in Autism Life Writing ........................ 6 Chapter 2 Clara Claiborne Park’s The Siege and Exiting Nirvana: Shifting Conceptions of Autism and Authority ................................................................................................. 53 Chapter 3 Transformative Narratives: Double Voicing and Personhood in Collaborative Life Writing about Autism .............................................................................................. -
Developing an Individual Transition Plan (ITP)
2/5/09 Developing an Individual Transition Plan (ITP) Presented by Nancy LaCross Autism Resource Specialist [email protected] Individual Transition Plan An ITP is like a road map It tells us how to get from here to there. Where to start? . Start with your dreams and the dreams of your child! . Start asking questions: “Can my child have a job….live alone….take care of himself?” 1 2/5/09 When to start? .NOW ! . Beginning the process early gives the family a focus and the child a future Transition – moving to adulthood A process and a plan to bridge the gap between the school and community where the student will live, work and enjoy adult life Federal Law . IDEA = Individuals with Disabilities Education Act . ITP = Individual Transition Plan 2 2/5/09 Coordinated set of activities Community Adult life participation Vocational training Post-secondary education Continuing Adult services Independent living education Job ITP = Individual Transition Plan • Should be written when student is 14 (NC) • Team of people • Outlines training and support needed • Highly individualized • To prepare the student for life after high school Who’s on the team? . Parents . Student . Teachers . Guidance counselor . Transition coordinator . Vocational counselor . Job coach . Employer . Adult service representative . Friends/relatives 3 2/5/09 As someone famous once said: “It takes a village…..” . Preparing for this transition will require a long- term planning process . Ensure that your child has access to more resources than you can offer alone . Network, network, network…..and be creative Be clear about requirements……………. Even with a diploma a student may be ineligible for admission to a technical school or college if they fail to meet their admissions criteria. -
Autism Speaks Does Not Provide Medical Or Legal Advice Or Services
100 Day Kit A tool kit to assist families in getting the critical information they need in the first 100 days after an autism diagnosis. Autism Speaks does not provide medical or legal advice or services. Rather, Autism Speaks provides general information about autism as a service to the community. The information provided in this kit is not a recommendation, referral or endorsement of any resource, therapeutic method, or service provider and does not replace the advice of medical, legal or educational professionals. This kit is not intended as a tool for verifying the credentials, qualifications, or abilities of any organization, product or professional. Autism Speaks has not validated and is not responsible for any information or services provided by third parties. You are urged to use independent judgment and request references when considering any resource associated with the provision of services related to autism ©2013 Autism Speaks Inc. Autism Speaks and Autism Speaks It’s Time To Listen & Design are trademarks owned by Autism Speaks Inc. All rights reserved. About this Kit Autism Speaks would like to extend special thanks to the Parent Advisory Committee for the time and effort that they put into reviewing the 100 Day Kit. 100 Day Kit Parent Advisory Committee Stacy Crowe Rodney Goodman Beth Hawes Deborah Hilibrand Dawn Itzkowitz Stacy Karger Marjorie Madfis Donna Ross- Jones Judith Ursitti Marcy Wenning Family Services Committee Members Dan Aronson Parent Liz Bell Parent Sallie Bernard Parent, Executive Director, SafeMinds Farah Chapes Chief Administrative Officer, The Marcus Autism Center Peter F. Gerhardt, Ed.D Director, Upper School, The McCarton School Founding Chair of the Scientific Council, Organization for Autism Research Lorrie Henderson Ph.D., LCSW, MBA Brian Kelly * ** Parent ©2013 Autism Speaks Inc. -
Autism Information Guide (1) 2017.Pdf
Autism is a general term used to describe a group of complex pervasive developmental disorders that are characterized by: o impaired social interaction o problems with verbal and nonverbal communication o unusual, repetitive, or severely limited activities and interests I. A total of six (or more) items from heading (A), (B), and (C), with at least two from (A), and one each from (B) and (C): (A) Qualitative impairment in social interaction, as manifested by at least two of the following: • Marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body posture, and gestures to regulate social interaction. • Failure to develop peer relationships appropriate to developmental level. • A lack of spontaneous seeking to share enjoyment, interests, or achievements with other people, (e.g., bya lack of showing, bringing, or pointing out objects of interest to other people). • A lack of social or emotional reciprocity. (B) Qualitative impairments in communication as manifested by at least one of the following: • Delay in or total lack of, the development of spoken language (not accompanied by an attempt to compensate through alternative modes of communication such as gesture or mime). • In individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others. • Stereotyped and repetitive use of language or idiosyncratic language. • Lack of varied, spontaneous make-believe play or social imitative play appropriate to developmental level. (C) Restricted repetitive and stereotyped patterns of behavior, interests and activities, as manifested by at least two of the following: • Encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus. -
Autistic Authors Booklist and Facts
Volume 1. No. 2 AUTISTIC AUTHORS BOOKLIST AND FACTS October 28, 2013 By Amanda M Baggs Abstract: A list of autistic authors, previously published on autistics.org. This was originally part of the library of articles available on the Autistics.org web site and therefore the references are not to any particular academic style. Although the list is not up to date it is nonetheless worth wider publication as it contains a valuable number of references not to be found collected elsewhere, and it is the editors consideration that they should be more widely known. Autistic Authors Booklist and Facts Autistic Authors Booklist and Facts By Amanda M Baggs Last updated Sunday 25 June 2006. The following is a booklist of books by autistic authors, alphabetical by author's last name and then as close to chronological as possible. Most are in English, although there are some in other languages. There is a link to the author's website where possible, and in the event that the entire book is published on the web, there is a link to the book. This list does not include people speculated to be autistic, or closeted autistic people, only people who have published as autistic. Bill Gates and Einstein are not here, nor are people who have published books but are not openly autistic (I respect their privacy). Some items in this list are more articles than books, but have been published as if they are books. Some interesting facts about these books are listed below the booklist. Where determinable, books that don't mention autism will have the words "not autism-related" after them. -
Adult Autism Issues in Waterloo-Wellington (AAIWW)
ADULT AUTISM ISSUES IN WATERLOO-WELLINGTON Joint newsletter of Guelph Services for the Autistic and Waterloo-Wellington Autism Services AAIWW Newsletter No 19, April 2003 Do you wonder …. WWAS BULLETIN BOARD what it’s like to be me? Annual General Meeting of by Andrew who types instead of speaking Waterloo-Wellington Autism Services rd Tuesday 3 June 2003 at the Stanley Park Baptist I’m a bundle of sensations Church, 31 Lorraine Ave, Kitchener. I get the urge Current members of WWAS will also receive formal to touch and pick notices of this meeting. Agenda: and I must follow my urges. 7 pm - Registration 7:30 pm - AGM business meeting Can you see my urges? 8 pm - General discussion of adult autism issues, with I can’t tell you refreshments. Representatives of the three local I just show you. chapters of Autism Society Ontario and of Guelph Services for the Autistic are being invited, so we can share ideas about priorities and problems in our I’m a bundle of nerves region. There will be reports on current WWAS and a jumble of thoughts. projects: the Victoria Bloomfield Bursary program, I’m in constant motion progress of ASPIRE, and the forthcoming launch of and my mind’s always going. the Kitchener Public Library’s Autism Collection. I wonder what it’s like to be you. The WWAS Board invites applications for Victoria Do you wonder what it’s like to be me? Bloomfield bursaries. Since early 1996, WWAS has I’m a time bomb waiting to explode offered one-time grants of up to $2,500 each to individual adults with autism/pdd to help make a We neurotypicals on the sidelines do difference in their lives by developing abilities or wonder what it’s really like. -
Assembling Autism
City University of New York (CUNY) CUNY Academic Works All Dissertations, Theses, and Capstone Projects Dissertations, Theses, and Capstone Projects 6-2014 Assembling Autism Kate Suzanne Jenkins Graduate Center, City University of New York How does access to this work benefit ou?y Let us know! More information about this work at: https://academicworks.cuny.edu/gc_etds/231 Discover additional works at: https://academicworks.cuny.edu This work is made publicly available by the City University of New York (CUNY). Contact: [email protected] i ASSEMBLING AUTISM by KATE SUZANNE JENKINS A dissertation submitted to the Graduate Faculty in Sociology in partial fulfillment of the requirements for the degree of Doctor of Philosophy, The City University of New York 2014 ii @ 2014 KATE JENKINS All Rights Reserved iii This manuscript has been read and accepted for the Graduate Faculty in Sociology in satisfaction of the dissertation requirement for the degree of Doctor of Philosophy. NAME Date Chair of Examining Committee NAME Date Executive Officer NAME NAME NAME NAME Supervisory Committee THE CITY UNIVERSITY OF NEW YORK iv Abstract ASSEMBLING AUTISM by KATE SUZANNE JENKINS Adviser: PATRICIA CLOUGH Autism is a growing social concern because of the epidemic-like growth in diagnoses among children. The lives and experiences of adults who have an autism diagnosis, however, are not as well documented. This dissertation project seeks to resolve that dearth of research. I conducted a year of participant observation at four locations of social, self-advocacy, and peer to peer support groups. I also conducted interviews with leaders and participants. I also participated (as a researcher) in an experiment in social skills acquisition led by participants from my ethnographic field work, fulfilling the planned participatory action research component of my original proposal. -
Autism Lending Library Offerings
ASD Library Subject Index June 2013 Adapted Physical Education A Teacher's Guide to Including Students with Disabilities in General Physical Education, Third Edition Block, Martin (2007) Adapted Physical Education and Sport, Fourth Edition Winnick, Joseph (2005) Exercise Connection (DVD) Geslak, David (2010) Inclusive Games: Movement Fun for Everyone Kaser, Susan (1995) Lieberman, L, & Houston-Wilson, C. Strategies for INCLUSION: A Handbook for Physical Educators (2002) Asperger's Syndrome Asperger's and Self Esteem Ledgin, Norm (2002) Asperger Syndrome and Difficult Moments Brenda Smith Myles/Jack Southwick Asperger's Syndrome: A Practical Guide for Parents and Professionals Attwood, Tony (1998) Asperger's Syndrome: A Practicial Guide for Parents and Professioanls (Niles resource) Attwood, Tony (2004) Asperger's Syndrome: A Practical Guide for Parents and Professionals Attwood, Tony (1998) Asperger's Syndrome: A Practical Guide for Teachers Cumine, Val (1998) Dr. Tony Attwood: Asperger's Syndrome Vol.2 (DVD) (Niles resourse) Dr. Tony Attwood Presents: Asperger's Diagnostic Assesment (DVD) Higher Functioning Adolescents and Young Adults with Autism- A Teachers Guide Fullerton, Ann(1996) Higher Functioning Adolescents and Young Adults with Autism- A Teachers Guide Fullerton, Ann(1996) Intricate Minds- Understanding Classmates with Asperger's Syndrome (DVD) Coulter Video Intricate Minds II- Understanding Elementary School Classmates with Asperger's Syndrome (DVD) Coulter Video Intricate Minds III- Understanding Elementary School Classmates -
Disability Worlds
CURRENT ANTHROPOLOGY T HE WENNER-GREN SYMPOSIUM SERIES DI SABILITY WORLDS V FAYE GINSBURG AND RAYNA RAPP, GUEST EDITORS OLUME 61 D isability/Anthropology: Rethinking the Parameters of the Human The Politics of Disability Performativity: An Autoethnography FEBRUARY 2020 FEBRUARY 2020 VOLUME SUPPLEMENT 61 21 S Disability Expertise: Claiming Disability Anthropology UPPLEMENT 21 Disability, Anonymous Love, and Interworldly Socials in Urban India Kinship Destabilized! Disability and the Micropolitics of Care in Urban India Autism, “Stigma,” Disability: A Shifting Historical Terrain F EBRUARY 2020 Activism, Anthropology, and Disability Studies in Times of Austerity: In Collaboration with Sini Diallo Prosthetic Debts: Economies of War Disability in Neoliberal Turkey Torture without Torturers: Violence and Racialization in Black Chicago People as Affordances: Building Disability Worlds through Care Intimacy The Ability of Place: Digital Topographies of the Virtual Human on Ethnographia Island The Skilling Journey: Disability, Technology, and Sociality in Postconflict Northern Uganda In the Long Run: Ugandans Living with Disability C H ICAGO SPON SORED BY THE WENNER-GREN FOUNDATION FOR ANTHROPOLOGICAL RESEARCH PUBLISHED BY THE UNIVERSITY OF CHICAGO PRESS CURRENT ANTHROPOLOGY Wenner-Gren Symposium Series Editor: Danilyn Rutherford Wenner-Gren Symposium Series Managing Editor: Laurie Obbink Current Anthropology Editor: Laurence Ralph Current Anthropology Managing Editor: Lisa McKamy Book Reviews Editor: Heath Pearson Associate Editors: Sheela Athreya -
Understanding Autism Spectrum Disorder
Understanding Autism Spectrum Disorder A handbook designed with parents in mind Italy??? I’m often asked to describe the experience of raising a child with a disability to try and help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this…. When you’re going to have a baby, it’s like you’re planning a fabulous vacation trip to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum. Michelangelo’s David. The Gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says “Welcome to Holland!” “Holland?!?!?!?!?!” you say. “What do you mean Holland?? I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.” But there’s been a change in the flight plan. They’ve landed in Holland, and there you’ll stay. The important thing is that they haven’t taken you to a horrible, disgusting, filthy place full of pestilence, famine and disease. It’s just a different place. So you must go out and buy a new guidebook. And you must learn a whole new language. And you will meet a whole group of people you never would have met. It’s just a different place. It’s slower paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around and you begin to notice that Holland has windmills. -
Complete Guide to Asperger's Syndrome / Tony Attwood
‘Tony Attwood explores in depth the complexity of the mysterious group of clinical pictures known collectively as Asperger’s syndrome, part of the wider autistic spectrum. He describes all the puzzling and fascinating aspects of these conditions and brings them vividly to life with illustrations from personal histories. He emphasises the fact that the individuals concerned have special skills as well as disabilities. Most important of all, he makes imaginative but always practical suggestions for helping people with the syndrome, their families and others who are involved. The author has achieved real empathic understanding of children and adults whose basic problem is a biologically based lack of empathy with others. The book is to be highly recommended for those with Asperger’s syndrome as well as for families, other carers and professionals in the field.’ – Lorna Wing ‘Tony Attwood’s Complete Guide to Asperger’s Syndrome is a boon for all those who are confronted by this intriguing condition in their daily lives. It is full of good sense and the wisdom that comes from years of clinical experience, and full of compassionate advice for a host of problems, vividly illustrated by case material. This is a comprehensively researched and beautifully written state of the art review of what is currently known about Asperger’s syndrome. I would recommend this volume as essential reading not only to those who want to learn about Asperger’s syndrome, or expand their knowledge, but also to professionals who would like to gain a fuller, wiser and richer picture than can currently be gained from any other source.’ – Uta Frith ‘An encyclopedia on Asperger’s syndrome written in easy-to-read non-technical language.