May 24, 2013, NIH Record, Vol. LXV, No. 11
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MAY 24, 2013 The Second Best Thing About Payday VOL. LXV, NO. 11 ‘Something Amazing Happened’ Response to HIV Alters Health Care Paradigm, Says El-Sadr By Belle Waring ABOVE · Congressman Chaka Fattah (l) gets a glimpse of NIH research. See more photos he myth of the American hero glorifies the rugged individual—the cowboy who and story, p. 12. Trides alone. But there’s a new model: the public health heroes. The plague fighters. features Working in their teams, there is magic. Some people think that HIV has gone away, 1 but over the last 3 decades, more than 60 mil- HIV Response Fundamentally Shifts lion people globally have been infected with Health Care Delivery, El-Sadr Says the virus and nearly 30 million people have 3 died of AIDS. NIDDK Opens Lab in Micronesia This makes the ongoing work of physicians 5 and researchers such as Dr. Wafaa El-Sadr es- Therapy Offers Personalized Care sential. She recently visited NIH to give the an- For Cancer Patients nual Dr. James C. Hill Memorial Lecture, “The 12 Global Response to the HIV Epidemic: Lessons Congressional Delegation Tours, Learned and Lasting Legacy.” A full house at- Shares a Working Lunch at NIH tended her talk in Lipsett Amphitheater. see el-sadr, page 4 Dr. Wafaa El-Sadr departments Autism Awareness More Than 80 Activities Author Robison’s Inspiring Story NIH Celebrates Take Your Child to Work, Educates about Asperger’s Earth Day Briefs 2 By Dana Steinberg By Dana Steinberg Digest 9 Milestones 11 “Autism made me NIH hosted its 18th Seen 12 a misfit lonely kid,” Take Your Child to said John Elder Work Day and cel- Robison at an Apr. ebrated Earth Day on 17 Autism Aware- Apr. 25. Thousands ness Month lecture. of school-age kids He spoke with such (grades 1-12) came for eloquence, one could a day of discovery and easily overlook that fun and their parents/ he has Asperger’s guardians probably syndrome, an autism even learned a thing spectrum disorder. or two. While he is articu- More than 80 activi- late and successful, John Elder Robison Youngster enjoys “Brains ties on and off cam- Robison reminded Up Close” exhibit at pus kept youngsters the audience that many people with autism 6001 Executive Blvd. engaged and intrigued. are not as fortunate and need help so they too Some budding junior scientists conducted sim- can thrive. ple biology and chemistry experiments. Guests Author of the 2007 New York Times bestseller, learned about bones, blood, the brain, diseases, Look Me in the Eye: My Life with Asperger’s, Rob- robotics and rehabilitation, biomedical imaging, The NIH Record is recyclable ison grew up in the 1960s before Asperger’s nutrition and exercise and more. as office white paper. see robison, page 10 see children visit, page 6 Use Social Media to Report Adverse Effects? The National Library of Medicine Informatics Lecture Series will briefs feature Dr. Graciela Gonzalez on Wednes- 6th Annual NIH Take a Hike Day, June 6 day, June 5 from 2 to 3 p.m. in Natcher All employees and contractors are invited to Bldg., balcony A. Her participate in the 6th annual Take a Hike Day. It topic is “Can Social will be held Thursday, June 6, from 11:30 a.m. Media Provide Reliable to 1:30 p.m. Walk around the perimeter of the Signals of Adverse Drug NIH campus (approximately 2.8 miles) rain Reactions?” Gonzalez is an assistant professor or shine. Support your institute/center when in the department of biomedical informatics at you register at www.ors.od.nih.gov/pes/dats/ Arizona State University. She is exploring the value wellnes/hike/Pages/hike.aspx. of social media postings as a source of signals of Individuals with disabilities who need sign potential adverse drug reactions soon after drugs language interpreters and/or reasonable hit the market. accommodation to participate should contact Joy Gaines at [email protected] or (301) The talk will be broadcast live and archived at 402-8180. Requests should be made at least 5 http://videocast.nih.gov/. Sign language interpret- days before the event. ers will be provided. Individuals who need reason- able accommodation to participate should contact Ebony Hughes, (301) 451-8038, Ebony.Hughes@ Panel To Discuss LGBT Bullying, June 13 nih.gov or the Federal Relay (1-800-877-8339). For In observance of Pride Month, the Office of more information about the lecture contact Dr. Jane Equal Opportunity and Diversity Management, Ye, (301) 594-4882, [email protected]. The NIH Record is published biweekly at Bethesda, MD by the Editorial Operations in collaboration with Salutaris: The NIH LGBT Branch, Office of Communications and Public Employees’ Forum and LGBT Fellows and Friends Liaison, for the information of employees of will host a panel discussion on new and emerg- the National Institutes of Health, Department ing research that addresses LGBT bullying. It will of Health and Human Services. The content is reprintable without permission. Pictures may take place Thursday, June 13 from 10 to 11:30 be available upon request. Use of funds for a.m. in Natcher Bldg., balcony A. Panelists will printing this periodical has been approved by address how bullying affects the physiologi- the director of the Office of Management and cal and psychological health of LGBT youth; Budget through September 30, 2013. how positive school environs contribute to the To receive alerts to our latest issue, send an development of resiliency in LGBT youth; and email to [email protected] with the words how the intersection of race, poverty, ability and “Subscribe NIHRECORD” in the message body. LGBT status exacerbates the susceptibility of NIH Record Office Bldg. 31, Rm. 5B41 double and triple minorities. All are welcome. Phone (301) 496-2125 Fax (301) 402-1485 Web address http://nihrecord.od.nih.gov Next Protocol Navigation Lecture, June 3 NIAMS Participates in Hill Briefing on Psoriasis Editor The IRP Protocol Navigation Training Program Richard McManus NIAMS director Dr. Stephen Katz (r) recently [email protected] Seminar Series continues with a lecture on took part in a panel discussion on psoriasis at a Monday, June 3 from 1 to 2 p.m. in Bldg. 50, congressional briefing organized by the National Associate Editor Conf. Rm. 1227/1328. The program is a trans-NIH Carla Garnett Psoriasis Foundation (NPF) and the American [email protected] effort to develop resources and tools and to provide training for intramural staff and contrac- Heart Association. The purpose was to shed light Staff Writers tors involved in protocol development, writing, on co-morbidities often associated with psoriasis, Jan Ehrman including psoriatic arthritis and heart disease. [email protected] coordination and management. Dinora Domin- guez, chief of the patient recruitment and public Katz, an immunodermatologist, discussed NIH Dana Steinberg liaison section at the Clinical Center, will present research advances related to psoriasis. In addition [email protected] “Study Promotion and Patient Recruitment at to Rep. Jim Gerlach (R-PA, not shown), who hosted Belle Waring the NIH: Resources Available through the NIH the event, Katz was joined by (from l) psoriasis [email protected] Clinical Center.” For more information, contact patient and past chair of the NPF board of trustees The NIH Record reserves the right to make Beverly Barham, (301) 594-2494, bbarham@ Richard Seiden; NIH-supported cardiologist Dr. corrections, changes or deletions in submitted mail.nih.gov or Marcia Vital, (301) 451-9437, Erin Michos from Johns Hopkins University; and copy in conformity with the policies of the [email protected]. paper and HHS. NPF President and CEO Randy Beranek. NIH...Turning Discovery Into Health 2 NIH RECORD MAY 24, 2013 2 MAY 24, 2013 MAY 24, 2013 VOL. LXV, NO. 11 NIDDK Opens Lab in Federated States of Micronesia NIDDK’s Short-Term Education Program for Underrepresented Persons (STEP- UP) celebrated the opening of its Molecular Biology Lab in Pohnpei, Federat- ed States of Micronesia (FSM) in a recent ceremony. The audience included the eight Micronesian students accepted to this summer’s STEP-UP training, their friends and relatives and staff from the Pohnpei board of education. STEP-UP provides research opportunities for students from groups under- represented in biomedical research, including students with disabilities, those from disadvantaged backgrounds and certain racial and ethnic minorities such as Pacific Islanders. The facility is the fourth STEP-UP lab to be built in a U.S.- administered or affiliated territory of the Pacific region. The other labs are locat- ed in American Samoa, Commonwealth of the Northern Mariana Islands and Republic of the Marshall Islands. The program will establish its fifth and last planned lab in Republic of Palau. “Students in the Pacific region often live thousands of miles away from facilities that can support cutting-edge research,” said Dr. Lawrence Agodoa, director of NIDDK’s Office of Minority Health Research Coordination, which manages the STEP-UP program. “By providing laboratories and training local science teachers as mentors, we expose students to the newest biomedical research techniques without them needing to travel far from home.” Nobel laureate Dr. Brian Kobilka (r) accepts the As part of STEP-UP, students work over the summer at one of several John Daly Award on Apr. 26 from Dr. Jurgen Wess, NIDDK-funded labs in the United States and its territories, including the new chief of the molecular signaling section in NIDDK’s lab in Pohnpei. Most of the students participating in the program present their Laboratory of Bioorganic Chemistry. research at NIH at the end of the summer program.