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The Life and Times Of'asperger's Syndrome': a Bakhtinian Analysis Of
The life and times of ‘Asperger’s Syndrome’: A Bakhtinian analysis of discourses and identities in sociocultural context Kim Davies Bachelor of Education (Honours 1st Class) (UQ) Graduate Diploma of Teaching (Primary) (QUT) Bachelor of Social Work (UQ) A thesis submitted for the degree of Doctor of Philosophy at The University of Queensland in 2015 The School of Education 1 Abstract This thesis is an examination of the sociocultural history of ‘Asperger’s Syndrome’ in a Global North context. I use Bakhtin’s theories (1919-21; 1922-24/1977-78; 1929a; 1929b; 1935; 1936-38; 1961; 1968; 1970; 1973), specifically of language and subjectivity, to analyse several different but interconnected cultural artefacts that relate to ‘Asperger’s Syndrome’ and exemplify its discursive construction at significant points in its history, dealt with chronologically. These sociocultural artefacts are various but include the transcript of a diagnostic interview which resulted in the diagnosis of a young boy with ‘Asperger’s Syndrome’; discussion board posts to an Asperger’s Syndrome community website; the carnivalistic treatment of ‘neurotypicality’ at the parodic website The Institute for the Study of the Neurologically Typical as well as media statements from the American Psychiatric Association in 2013 announcing the removal of Asperger’s Syndrome from the latest edition of the Diagnostic and Statistical Manual of Mental Disorders, DSM-5 (APA, 2013). One advantage of a Bakhtinian framework is that it ties the personal and the sociocultural together, as inextricable and necessarily co-constitutive. In this way, the various cultural artefacts are examined to shed light on ‘Asperger’s Syndrome’ at both personal and sociocultural levels, simultaneously. -
Curriculum Vitae Laurent Mottron
CURRICULUM VITAE LAURENT MOTTRON Table des matières SECTION I - IDENTIFICATION ET POINTS SAILLANTS DE CARRIÈRE ........................................... 3 SECTION II - FORMATION, DIPLÔMES ............................................................................................. 4 Diplômes .......................................................................................................................................... 4 Études post-doctorales ..................................................................................................................... 4 SECTION III – HONNEURS ................................................................................................................. 5 Bourses de formation et soutien salarial ........................................................................................... 5 Prix et distinctions ............................................................................................................................. 5 SECTION IV - CARRIÈRE ACADÉMIQUE .......................................................................................... 7 Poste de professeur .......................................................................................................................... 7 Poste de direction ............................................................................................................................. 7 SECTION V – EXPERTISE PROFESSIONNELLE .............................................................................. 8 1. Comités de pairs nationaux -
Výroční Zpráva 2018
Výroční zpráVa 2018 V národním ústaVu pro autismus, z. ú. poskytujeme od roku 2003 širokou nabídku služeb pro lidi s poruchou autistického spektra (pas) a jejich rodiny z celé české republiky. a 15 let pomáháme sVětu porozumět autismu a lidem s autismem porozumět sVětu stručně o poruchách autistického spektra (pas) co je autismus? dinný život. I přes různá možná nadání a silné živých situací, vztahy v rodinách bývají napjaté ních dovedností, nebo analyzují a řeší prob - Autismus je vrozená neurovývojová porucha stránky všem osobám s touto diagnózou a jednotliví členové rodiny jsou vystaveni vel - lémové chování . Někteří pracovníci poskytují způsobující deficit v sociálních a komunikač - komplikuje autismus život. Dopad autismu na kému stresu, který často může vést až k roz - odborné poradenství pobytovým zařízením ních schopnostech, která ovlivňuje mnohé člověka a na jeho rodinu lze považovat za zá - padu rodiny a psychickým obtížím souro - sociální péče, které mají v péči klienty s PAS. oblasti života a navenek se projevuje nestan - važný a handicapující. zenců. Založili jsme sociální podnik – Nakladatelství dardním, často sociálně problémovým (spíše PASPARTA , který zaměstnává lidi s autismem. problematickým) chováním. Osoby s autis - jaký problém Ve společnosti řešíme? co děláme pro zlepšení žiVota lidí Podporujeme také činnost tzv. sebeobhájců – mem mají sice mnoho společného, ale záro - Výskyt autismu v populaci je cca 1–2 %. Autis - s autismem a jejich rodin? lidí s PAS, kteří se snaží prosazovat své názory veň se od sebe i výrazně odlišují. Mezi poruchy mus ovlivňuje nejen život lidí s touto diagnó - Poskytujeme komplexní nabídku služeb pro a svá práva ve společnosti. Máme ucelený sys - autistického spektra (PAS) spadá kromě dět - zou, ale také jejich rodiny a širší okolí. -
Autism Practice Parameters
American Academy of Child and Adolescent Psychiatry AACAP is pleased to offer Practice Parameters as soon as they are approved by the AACAP Council, but prior to their publication in the Journal of the American Academy of Child and Adolescent Psychiatry (JAACAP). This article may be revised during the JAACAP copyediting, author query, and proof reading processes. Any final changes in the document will be made at the time of print publication and will be reflected in the final electronic version of the Practice Parameter. AACAP and JAACAP, and its respective employees, are not responsible or liable for the use of any such inaccurate or misleading data, opinion, or information contained in this iteration of this Practice Parameter. PRACTICE PARAMETER FOR THE ASSESSMENT AND TREATMENT OF CHILDREN AND ADOLESCENTS WITH AUTISM SPECTRUM DISORDER ABSTRACT Autism spectrum disorder (ASD) is characterized by patterns of delay and deviance in the development of social, communicative, and cognitive skills which arise in the first years of life. Although frequently associated with intellectual disability, this condition is distinctive in terms of its course, impact, and treatment. ASD has a wide range of syndrome expression and its management presents particular challenges for clinicians. Individuals with an ASD can present for clinical care at any point in development. The multiple developmental and behavioral problems associated with this condition necessitate multidisciplinary care, coordination of services, and advocacy for individuals and their families. Early, sustained intervention and the use of multiple treatment modalities are indicated. Key Words: autism, practice parameters, guidelines, developmental disorders, pervasive developmental disorders. ATTRIBUTION This parameter was developed by Fred Volkmar, M.D., Matthew Siegel, M.D., Marc Woodbury-Smith, M.D., Bryan King, M.D., James McCracken, M.D., Matthew State, M.D., Ph.D. -
The TEACCH Program in the Era of Evidence-Based Practice
J Autism Dev Disord DOI 10.1007/s10803-009-0901-6 ORIGINAL PAPER The TEACCH Program in the Era of Evidence-Based Practice Gary B. Mesibov • Victoria Shea Ó Springer Science+Business Media, LLC 2009 Abstract ‘Evidence-based practice’ as initially defined in children with autism (e.g., Rogers 1998; Rogers and Vis- medicine and adult psychotherapy had limited applicability mara 2008). to autism interventions, but recent elaborations of the The initial definitions for EST in psychology were quite concept by the American Psychological Association (Am rigid (e.g., requiring evidence from at least two group Psychol 61: 271–285, 2006) and Kazdin (Am Psychol studies using randomized controlled trials or nine single- 63(1):146–159, 2008) have increased its relevance to our case studies, using a treatment manual, and employing a field. This article discusses the TEACCH program (of research design that demonstrated that the intervention which the first author is director) as an example of an being studied was better than another treatment [not just evidence-based practice in light of recent formulations of ‘no treatment’ or a ‘waiting list control group’]). These that concept. criteria, designed to evaluate adult psychotherapy, were not a particularly good fit for evaluating autism interventions Keywords TEACCH Á Evidence-based because of the relatively limited research base and the extremely heterogeneous population of people with autism, among other factors (Mesibov and Shea 2009) (The term Brief History of Evidence-Based Practice autism will be used from this point forward to mean all autism spectrum disorders.). The concept of evidence-based interventions began in the Actually, many psychologists chafed under the early field of medicine in the 1970’s and in recent years has been EST criteria, leading the American Psychological Associ- employed in many other disciplines. -
Sprawozdanie Z Działalności Fundacji Ditero Za Rok 2017
FUNDACJA DITERO WOLIMIERZ 18 59-814 POBIEDNA [email protected] Wolimierz, 30.06.2018 Sprawozdanie z działalności Fundacji Ditero za rok 2017 Wprowadzenie Fundacja została powołana aktem notarialnym w dniu 3 lutego 2016 r. W Krajowym Rejestrze Sądowym została zarejestrowana w dniu 12 maja 2016 r. W lipcu 2016 została uruchomiona pracownia terapeutyczna, działająca w ramach podstawowej działalności Fundacji. W roku 2017 działania Fundacji rozwinęły się na nowe obszary związane z pozaszkolnymi formami edukacji oraz kulturą i sportem. Władze Zarząd: Agnieszka Surmacz (Prezes) Rada Fundacji: Danuta Łopuch, Wiktoria Wiktorczyk Rada Nadzorcza: Kaja Pachulska, Aneta Mykietyszyn Cele statutowe organizacji Cele Fundacji zostały szczegółowo opisane w rozdziale II statutu Fundacji. Najważniejsze cele realizowane w 2017 r to: 1. Wspieranie osób niepełnosprawnych i ich rodzin poprzez świadczenie usług diagnostycznych i terapeutycznych, 2. Upowszechnianie i ochrona praw dziecka, praca z osobami mającymi kontakt z dziećmi z niepełnosprawnościami i dysfunkcjami rozwojowymi, 3. Działalność charytatywna, promocja i organizacja wolontariatu na rzecz rodzin z dziećmi z niepełnosprawnościami. 4. Działalności na rzecz organizacji pozarządowych oraz innych podmiotów aktywnych w sferze publicznej, mających cele zbieżne celami Fundacji. 5. Realizacja zadań z zakresu kultury, edukacji sportowej dzieci i młodzieży; Sposób realizacji celów statutowych organizacji Fundacja realizowała swoje cele przede wszystkim poprzez: • realizację usług terapeutycznych (prowadzenie -
Specialisterne & SAP: a Partnership for Access to Markets, Multiple
Boosting Social Enterprise Development Good Practice Compendium © OECD/European Union, 2017 Chapter 19 Specialisterne & SAP: A partnership for access to markets, multiple countries/ Denmark Specialisterne and SAP have established a partnership that aims to harness the special skills of people with autism, and provide them with training and work- integration opportunities. To this end, they have implemented the “Autism at Work Programme”. This chapter describes the partnership’s objectives, rationale and key activities, together with the challenges faced in implementing it and the impact it has achieved to date. It concludes with the lessons learnt and the conditions for transferring this practice to another context. Summary While people with autism spectrum disorder (ASD) have unique skills – for example, an outstanding memory or a remarkable eye for detail, a structured way of working, the ability to think outside the box and perform repetitive tasks with ceaseless enthusiasm – they struggle with social interaction and personal communication. Specialisterne (“The Specialists”) is a social enterprise established in Denmark in 2004 to pioneer new ways of harnessing the untapped skills of people with ASD and empower them by matching them with businesses in need of information technology (IT) experts. An impact assessment of Specialisterne concluded that its consultants have become valuable contributors to the labour market and solid taxpayers, less reliant on social-welfare contributions. In 2008, Specialisterne Foundation (SPF) was established to scale the Specialisterne model and impact, with the objective of creating one million jobs globally for people with ASD by 2025. To this end, it has developed partnerships with international 215 19. -
Webinar Transcript
ROUGH EDITED COPY CONFERTEL CONFERTEL-RESPECTABILITY 6269025 JULY 27, 2016 * * * * * This is being provided in a rough-draft format. Communication Access Realtime Translation (CART) is provided in order to facilitate communication accessibility and may not be a totally verbatim record of the proceedings. * * * * >> Good afternoon, everybody. And welcome to the Respectability webinar for July 27, 2016. I'm delighted to be here with you today, one day after the 26th anniversary of The Americans with Disabilities Act. We're excited to be joined today by Thorkil Sonne. If you've been working on the employment issues with people with disabilities, you probably heard the name Thorkil come up. And that is with some very good reason. He's been doing amazing, innovative work with employment opportunities, high technology jobs with people in the Autism Spectrum. We're delighted to be here today to share his experiences to show-- what it does and we always with these webinars, we want to bring in the leaders and game changers who are at the frontlines with jobs with people with a wide variety of disabilities. We're glad to be here with Thorkil. Our webinar is possible by the wonderful support of JP Morgan Chase. After this webinar, in a couple of days, we shall be posting a recording of this session as well as a copy of the PowerPoint slides that we're going to be going through today. And after Thorkil has gone through his, we'll have a time for questions and answers. We'll have the operator tell you how to dial in. -
Utilizing Social Stories to Reduce Problem Behavior And
UTILIZING SOCIAL STORIES TO REDUCE PROBLEM BEHAVIOR AND INCREASE PRO-SOCIAL BEHAVIOR IN YOUNG CHILDREN WITH AUTISM ________________________________________________________________________ A Dissertation presented to the Faculty of the Graduate School at the University of Missouri-Columbia ________________________________________________________________________ In Partial Fulfillment of the Requirements for the Degree Doctor of Philosophy ________________________________________________________________________ By LISA A. WRIGHT Dr. Rebecca McCathren, Dissertation Supervisor DECEMBER 2007 The undersigned, appointed by the dean of the Graduate School, have examined the dissertation entitled UTILIZING SOCIAL STORIES TO REDUCE PROBLEM BEHAVIOR AND INCREASE PRO-SOCIAL BEHAVIOR IN YOUNG CHILDREN WITH AUTISM presented by Lisa A. Wright, a candidate for the degree of doctor of philosophy, and hereby certify that, in their opinion, it is worthy of acceptance. _________________________________________________ Dr. Rebecca McCathren _________________________________________________ Dr. Janine Stichter _________________________________________________ Dr. Erica Lembke _________________________________________________ Dr. Marilyn Hargrove _________________________________________________ Dr. Greg Holliday ACKNOWLEDGEMENTS First, I would like to thank Dr. Rebecca McCathren for her dedication and support throughout my educational pursuits. She has been a stable, encouraging force in my life for many years. Her patience and gentle manner have been much -
Research Participation and Employment for Autistic Individuals in Library and Information Science: a Review of the Literature Nancy Everhart & Amelia M
Research Participation and Employment for Autistic Individuals in Library and Information Science: A Review of the Literature Nancy Everhart & Amelia M. Anderson Abstract Autism prevalence is growing, and autistic people themselves are important in the library and information science field, both as library patrons and employees. Including them in all stages of research about the neurodivergent experience is valuable, and their input and participation is increasingly used in technology research, particularly usability studies. Neurodivergent persons also have unique abilities that align with a wide array of information professions and accommodations can be made that allow them to thrive in the workplace. It is critical that meaningful involvement of autistic individuals is a component of making policy at all levels. Introduction The population of individuals diagnosed with autism spectrum disorder (ASD) has grown, but current literature regarding autistic adults lacks first-person accounts, particularly in the information environment. Adult voices have been drowned out by the overwhelming emphasis, both in the general public and the scholarly literature, on early identification and intervention for young children with autism (Cox et al. 2017). Much research on college students with ASD also focuses on the perspective of the professor or instructor, not the students themselves (Barnhill 2014). Achieving a representative sample is vital to the validity of social research findings, particularly when findings are used as evidence to inform social policies and programs. Likewise, autistic individuals often seek employment in information settings such as libraries and computer technology. This paper discusses the involvement of persons with ASD in library and information research and employment more broadly, and also specifically within the context of several recent studies. -
Becoming Autistic: How Do Late Diagnosed Autistic People
Becoming Autistic: How do Late Diagnosed Autistic People Assigned Female at Birth Understand, Discuss and Create their Gender Identity through the Discourses of Autism? Emily Violet Maddox Submitted in accordance with the requirements for the degree of Master of Philosophy The University of Leeds School of Sociology and Social Policy September 2019 1 Table of Contents ACKNOWLEDGEMENTS ................................................................................................................................... 5 ABSTRACT ....................................................................................................................................................... 6 ABBREVIATIONS ............................................................................................................................................. 7 CHAPTER ONE ................................................................................................................................................. 8 INTRODUCTION .............................................................................................................................................. 8 1.1 RESEARCH OBJECTIVES ........................................................................................................................................ 8 1.2 TERMINOLOGY ................................................................................................................................................ 14 1.3 OUTLINE OF CHAPTERS .................................................................................................................................... -
The Paradox of Giftedness and Autism Packet of Information for Professionals (PIP) – Revised (2008)
The Connie Belin & Jacqueline N. Blank International Center for Gifted Education and Talent Development The University of Iowa College of Education The Paradox of Giftedness and Autism Packet of Information for Professionals (PIP) – Revised (2008) Susan G. Assouline Megan Foley Nicpon Nicholas Colangelo Matthew O’Brien The Paradox of Giftedness and Autism The University of Iowa Belin-Blank Center The Paradox of Giftedness and Autism Packet of Information for Professionals (PIP) – Revised (2008) This Packet of Information (PIP) was originally developed in 2007 for the Student Program Faculty and Professional Staff of the Belin-Blank Center for Gifted Education and Talent Development (B-BC). It has been revised and expanded to incorporate multiple forms of special gifted programs including academic year Saturday programs, which can be both enrichment or accelerative; non-residential summer programs; and residential summer programs. Susan G. Assouline, Megan Foley Nicpon, Nicholas Colangelo, Matthew O’Brien We acknowledge the Messengers of Healing Winds Foundation for its support in the creation of this information packet. We acknowledge the students and families who participated in the Belin-Blank Center’s Assessment and Counseling Clinic. Their patience with the B-BC staff and their dedication to the project was critical to the development of the recommendations that comprise this Packet of Information for Professionals. © 2008, The University of Iowa Belin-Blank Center. All rights reserved. This publication, or parts thereof, may not be reproduced in any form without written permission of the authors. The Paradox of Giftedness and Autism Purpose Structure of PIP This Packet of Information for Professionals (PIP) Section I of PIP introduces general information related to both giftedness was developed for professionals who work with and autism spectrum disorders.