The National Autism Project: Aims and Objectives
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Curriculum Vitae Laurent Mottron
CURRICULUM VITAE LAURENT MOTTRON Table des matières SECTION I - IDENTIFICATION ET POINTS SAILLANTS DE CARRIÈRE ........................................... 3 SECTION II - FORMATION, DIPLÔMES ............................................................................................. 4 Diplômes .......................................................................................................................................... 4 Études post-doctorales ..................................................................................................................... 4 SECTION III – HONNEURS ................................................................................................................. 5 Bourses de formation et soutien salarial ........................................................................................... 5 Prix et distinctions ............................................................................................................................. 5 SECTION IV - CARRIÈRE ACADÉMIQUE .......................................................................................... 7 Poste de professeur .......................................................................................................................... 7 Poste de direction ............................................................................................................................. 7 SECTION V – EXPERTISE PROFESSIONNELLE .............................................................................. 8 1. Comités de pairs nationaux -
Výroční Zpráva 2018
Výroční zpráVa 2018 V národním ústaVu pro autismus, z. ú. poskytujeme od roku 2003 širokou nabídku služeb pro lidi s poruchou autistického spektra (pas) a jejich rodiny z celé české republiky. a 15 let pomáháme sVětu porozumět autismu a lidem s autismem porozumět sVětu stručně o poruchách autistického spektra (pas) co je autismus? dinný život. I přes různá možná nadání a silné živých situací, vztahy v rodinách bývají napjaté ních dovedností, nebo analyzují a řeší prob - Autismus je vrozená neurovývojová porucha stránky všem osobám s touto diagnózou a jednotliví členové rodiny jsou vystaveni vel - lémové chování . Někteří pracovníci poskytují způsobující deficit v sociálních a komunikač - komplikuje autismus život. Dopad autismu na kému stresu, který často může vést až k roz - odborné poradenství pobytovým zařízením ních schopnostech, která ovlivňuje mnohé člověka a na jeho rodinu lze považovat za zá - padu rodiny a psychickým obtížím souro - sociální péče, které mají v péči klienty s PAS. oblasti života a navenek se projevuje nestan - važný a handicapující. zenců. Založili jsme sociální podnik – Nakladatelství dardním, často sociálně problémovým (spíše PASPARTA , který zaměstnává lidi s autismem. problematickým) chováním. Osoby s autis - jaký problém Ve společnosti řešíme? co děláme pro zlepšení žiVota lidí Podporujeme také činnost tzv. sebeobhájců – mem mají sice mnoho společného, ale záro - Výskyt autismu v populaci je cca 1–2 %. Autis - s autismem a jejich rodin? lidí s PAS, kteří se snaží prosazovat své názory veň se od sebe i výrazně odlišují. Mezi poruchy mus ovlivňuje nejen život lidí s touto diagnó - Poskytujeme komplexní nabídku služeb pro a svá práva ve společnosti. Máme ucelený sys - autistického spektra (PAS) spadá kromě dět - zou, ale také jejich rodiny a širší okolí. -
Specialisterne & SAP: a Partnership for Access to Markets, Multiple
Boosting Social Enterprise Development Good Practice Compendium © OECD/European Union, 2017 Chapter 19 Specialisterne & SAP: A partnership for access to markets, multiple countries/ Denmark Specialisterne and SAP have established a partnership that aims to harness the special skills of people with autism, and provide them with training and work- integration opportunities. To this end, they have implemented the “Autism at Work Programme”. This chapter describes the partnership’s objectives, rationale and key activities, together with the challenges faced in implementing it and the impact it has achieved to date. It concludes with the lessons learnt and the conditions for transferring this practice to another context. Summary While people with autism spectrum disorder (ASD) have unique skills – for example, an outstanding memory or a remarkable eye for detail, a structured way of working, the ability to think outside the box and perform repetitive tasks with ceaseless enthusiasm – they struggle with social interaction and personal communication. Specialisterne (“The Specialists”) is a social enterprise established in Denmark in 2004 to pioneer new ways of harnessing the untapped skills of people with ASD and empower them by matching them with businesses in need of information technology (IT) experts. An impact assessment of Specialisterne concluded that its consultants have become valuable contributors to the labour market and solid taxpayers, less reliant on social-welfare contributions. In 2008, Specialisterne Foundation (SPF) was established to scale the Specialisterne model and impact, with the objective of creating one million jobs globally for people with ASD by 2025. To this end, it has developed partnerships with international 215 19. -
Webinar Transcript
ROUGH EDITED COPY CONFERTEL CONFERTEL-RESPECTABILITY 6269025 JULY 27, 2016 * * * * * This is being provided in a rough-draft format. Communication Access Realtime Translation (CART) is provided in order to facilitate communication accessibility and may not be a totally verbatim record of the proceedings. * * * * >> Good afternoon, everybody. And welcome to the Respectability webinar for July 27, 2016. I'm delighted to be here with you today, one day after the 26th anniversary of The Americans with Disabilities Act. We're excited to be joined today by Thorkil Sonne. If you've been working on the employment issues with people with disabilities, you probably heard the name Thorkil come up. And that is with some very good reason. He's been doing amazing, innovative work with employment opportunities, high technology jobs with people in the Autism Spectrum. We're delighted to be here today to share his experiences to show-- what it does and we always with these webinars, we want to bring in the leaders and game changers who are at the frontlines with jobs with people with a wide variety of disabilities. We're glad to be here with Thorkil. Our webinar is possible by the wonderful support of JP Morgan Chase. After this webinar, in a couple of days, we shall be posting a recording of this session as well as a copy of the PowerPoint slides that we're going to be going through today. And after Thorkil has gone through his, we'll have a time for questions and answers. We'll have the operator tell you how to dial in. -
Appendix A. Exact Search Strings
Appendix A. Exact Search Strings Table A1. MEDLINE® – Ovid Version Table A2. MEDLINE® In-Process and Other Non-Indexed Citations – Ovid Version Table A3. PsycINFO® – Ovid Version Table A4. ERIC – Ovid Version Table A5. EMBASE – Ovid Version Table A6. CINAHL® (Cumulative Index to Nursing & Allied Health Literature) – Ovid Version Table A7. CINAHL® (Cumulative Index to Nursing & Allied Health Literature) – EBSCO Version Table A8. AMED (Allied and Complementary Medicine) – Ovid Version Table A9. Central (EBM Reviews - Cochrane Central Register of Controlled Trials) – Ovid Version Table A10. PsychARTICLES (OVID Journals) – Ovid Version Table A11. Web of Science® – Institute for Scientific Information – Thomson Corporation Table A12. BIOSIS Previews® – Institute for Scientific Information – Thomson Corporation Table A13. Social Sciences Abstracts Table A14. Academic Search Premier – EBSCO Version Table A15. Child Development and Adolescent Studies – EBSCO Version Table A16. Linguistics and Language Behavior Abstracts Table A17. Psychology and Behavioral Sciences Collection – EBSCO Version Table A18. Cochrane Database of Systematic Reviews, Database of Abstracts of Reviews of Effects, Heath Technology Assessment Database, NHS Economic Evaluation Database – Wiley Version Table A19. OCLC Papers First and OCLC Proceedings First – OCLC FirstSearch Table A20. Dissertation Abstracts Table A21. LILACS – OCLC FirstSearch Table A22. NLM Gateway – National Library of Medicine Table A23. DOAJ - Directory of Open Access Journals Databases searched for -
Committee Business
IACC Committee Business IACC Full Committee Meeting April 19, 2018 Susan A. Daniels, Ph.D. Director, Office of Autism Research Coordination Executive Secretary, IACC National Institute of Mental Health Thanks to OARC Staff Susan Daniels, Ph.D. Director Oni Celestin, Ph.D. Julianna Rava, M.P.H. Science Policy Analyst Science Policy Analyst Rebecca Martin, M.P.H Matthew Vilnit, B.S. Public Health Analyst Operations Coordinator Angelice Mitrakas, B.A. Jeff Wiegand, B.S. Management Analyst Web Development Manager Karen Mowrer, Ph.D. Science Policy Analyst April is National Autism Awareness Month NIMH Special Event for Autism Awareness Month The Story Behind Julia, Sesame Street’s Muppet with Autism April 9, 2018 • Panel presentation featuring speakers from Sesame Workshop, the nonprofit educational organization behind Sesame Street • Meet-and-greet with a costumed Julia character Archived video available: https://iacc.hhs.gov/meetings/autism- events/2018/april9/sesame- street.shtml#video Autism Awareness Month News • 2018 Presidential Proclamation: President Donald J. Trump Proclaims April 2, 2018, World Autism Awareness Day • 2018 UN Secretary-General Message: António Guterres' Message on World Autism Awareness Day Autism Awareness Month Events • Autism Awareness Interagency Roundtable Indian Health Service April 2, 2018; Bethesda, MD • Empowering Women and Girls with Autism United Nations April 5, 2018; New York, NY Event page: https://www.un.org/en/events/autismday/ Archived video available: https://www.youtube.com/watch?v=Tyhm7p8Gr2A -
Inclusive Practices for Neurodevelopmental Research
Current Developmental Disorders Reports https://doi.org/10.1007/s40474-021-00227-z AUTISM SPECTRUM (A RICHDALE AND LH LAWSON, SECTION EDITORS) Inclusive Practices for Neurodevelopmental Research Sue Fletcher-Watson1 & Kabie Brook2 & Sonny Hallett3 & Fergus Murray3 & Catherine J. Crompton4 Accepted: 9 March 2021 # The Author(s) 2021 Abstract Purpose of Review Inclusive research practice is both a moral obligation and a practical imperative. Here we review its relevance to the study of neurodevelopmental diversity in particular, briefly describing a range of inclusive research models and justifying their use. The review itself is inclusively co-authored with three autistic collaborators and community leaders who all have extensive experience of research involvement. Recent Findings Drawing on theoretical arguments and specific exemplar projects, we describe six key considerations in the delivery of inclusive research. These are the following: taking the first steps towards inclusive practice; setting expectations; community-specific inclusion measures; inclusion and intersectionality; the role of empowerment; and knowledge exchange for inclusion. Together, these sections provide an illustrated guide to the principles and process of inclusive research. Summary Inclusive research practice is both beneficial to and a requirement of excellence in neurodevelopmental research. We call for greater engagement in this participatory research agenda from grant-awarding bodies to facilitate not just inclusive but also emancipatory research. Keywords Participatory research . Inclusion . Neurodiversity . Patient and public involvement . Participation Introduction for its use. We then illustrate six key facets of inclusive re- search in neurodevelopment, drawing on our own experiences What Is Inclusive Research Practice? and including illustrative examples from the literature. Arnstein’s ladder of participation [4•] provides a rudimentary Inclusive research takes place with members of the relevant model for thinking about inclusive research practice. -
Working with Parents and Carers to Help Autism Development
Health and Medicine ︱ Dr Catherine Aldred & Professor Jonathan Green Guas/Shutterstock.com PACT:Working with parents and carers to help autism development Autism is an enduring condition utism is a common Newcastle, have over 15 years developed affecting over 1% of people neurodevelopmental disorder and tested a new approach, using video- worldwide but with a lack of A affecting over 1% of children feedback techniques with parents to help evidenced therapy to reduce and young people globally. It arises early them understand and respond to the its symptoms. PACT is an in development with often profound particular communication style of their PACT helps adults to interact in different ways to more effectively improve the communication skills of children who early social communication effects on social understanding and young child with autism. The Paediatric have different communication resulting from their autism. intervention working through communication and patterns of Autism Communication Therapy (PACT) parents and carers that is the thinking and behaviour; effects that aims to help autistic children to develop first to have demonstrated long- usually endure through the lifespan. their early social communication skills. to usual care, as well as improved term improvements in autism Additionally, a quarter of people with A not-for-profit community interest PACT aims to help autistic children to develop everyday language. symptoms after therapy within autism go through their lives with company called Interaction Methods a clinical trial. This relatively low no or very little language. All this for Paediatric Autism Communication their early social communication skills. Importantly, these relative improvements intensity approach is referenced inevitably affects social skills, education, Therapy (IMPACT), has been set up to were still apparent when the children in UK national guidance confidence, and ability to find a job. -
AUTISTIC SPECTRUM DISORDERS a Guide to Services for Children
the Foundation for People with Learning Disabilities AUTISTIC SPECTRUM DISORDERS A Guide to Services for Children with Autistic Spectrum Disorders for Commissioners and Providers Rita Jordan, Glenys Jones & Hugh Morgan The Mental Health Foundation is the UK’s leading charity working for the needs of people with mental health problems and those with learning disabilities. We aim to improve people’s lives, reduce stigma surrounding the issues and to promote understanding. We fund research and help develop community services. We provide information for the general public and health and social care professionals. We aim to maximise expertise and resources by creating partnerships between ourselves and others including Government, health and social services. Since October 1998, The Foundation’s work with people with learning disabilities has been carried out under the name, the Foundation for People with Learning Disabilities. It remains part of the Mental Health Foundation. The Foundation for People with Learning Disabilities would like to thank The Shirley Foundation for funding this publication. Contents Contents Introduction ___________________________________________________ 2 Section 1: Definition, Identification and Diagnosis ________________ 3 What is an Autistic Spectrum Disorder? _________________________ 3 The Triad of Impairments in Autistic Spectrum Disorders _________ 3 Levels of Explanation __________________________________________ 5 Individual Differences __________________________________________ 6 Associated Conditions __________________________________________ -
Real-Time 3D Graphic Augmentation of Therapeutic Music Sessions for People on the Autism Spectrum
Real-time 3D Graphic Augmentation of Therapeutic Music Sessions for People on the Autism Spectrum John Joseph McGowan Submitted in partial fulfilment of the requirements of Edinburgh Napier University for the degree of Doctor of Philosophy October 2018 Declaration I, John McGowan, declare that the work contained within this thesis has not been submitted for any other degree or professional qualification. Furthermore, the thesis is the result of the student’s own independent work. Published material associated with the thesis is detailed within the section on Associate Publications. Signed: Date: 12th October 2019 J J McGowan Abstract i Abstract This thesis looks at the requirements analysis, design, development and evaluation of an application, CymaSense, as a means of improving the communicative behaviours of autistic participants through therapeutic music sessions, via the addition of a visual modality. Autism spectrum condition (ASC) is a lifelong neurodevelopmental disorder that can affect people in a number of ways, commonly through difficulties in communication. Interactive audio-visual feedback can be an effective way to enhance music therapy for people on the autism spectrum. A multi-sensory approach encourages musical engagement within clients, increasing levels of communication and social interaction beyond the sessions. Cymatics describes a resultant visualised geometry of vibration through a variety of mediums, typically through salt on a brass plate or via water. The research reported in this thesis focuses on how an interactive audio-visual application, based on Cymatics, might improve communication for people on the autism spectrum. A requirements analysis was conducted through interviews with four therapeutic music practitioners, aimed at identifying working practices with autistic clients. -
Autistica Action Briefing: Adult Mental Health
Autistica Action Briefing: Adult Mental Health Harper G, Smith E, Simonoff E, Hill L, Johnson S, Davidson I. March 2019 Autistica is the UK’s autism research charity. This briefing summarises the most important scientific findings about mental health in autistic adults. It was developed in collaboration with leading researchers and autistic people with experience of the topic as an insight into the latest evidence. We strongly urge the Department of Health and Social Care, NHS policy-makers, commissioners, services and public research funders to act on this information. The evidence about mental health in autistic adults has moved on; services and policies to improve mental health must now do so as well. www.autistica.org.uk/AutismStrategy “If a neurotypical person was afraid to leave the house, that wouldn’t be seen as normal or okay. But if you’re 1 autistic you should just accept that that is the way your life is going to be.” What we know “The main problem with mental health services is that no one seems to want the responsibility 1 of putting him on their books… He keeps getting passed around departments” ▪ Almost 8 in 10 autistic adults experience a mental health problem.2 Autism is not a mental health condition itself, but mental health problems are one of the most common and serious challenges experienced by people across the spectrum. ▪ Up to 10% of adults in inpatient mental health settings are autistic,3 even though only 1% of the population is on the spectrum.4 ▪ Autistic people are often unable to access community mental health -
About Autism
Jose H. Velasco and Peggy Monaghan About Autism A developmental disorder that impairs the ability to communicate and interact. Impact 1/42 Boys and 1/189 Girls according to CDC Costs In the United States - 250 Billion per year. To families, a lifetime cost of 1.4 Million Dollars over lifetime in lost productivity and interventions Unemployment 85% of people diagnosed with autism spectrum disorders are unemployed even though 60% have average to above average cognitive abilities. Many people who are employed are under-employed or partially employed. Opportunity 50,000 Unfulfilled STEM jobs in the Bay Area alone Autism at Work In May of 2013, SAP Announced its objective to have 1% its global workforce represented by employees in the autism spectrum. About 650 Jobs SAP Vision Make the World Run Better and Improve People’s Lives Why Do We Hire People With Autism ? Attract the Best Talent in Our Industry Bring a Different Perspective to Our Creative Process Tap into Underutilized Source of Talent Capture Special Skills of People with ASD Retention: Loyalty Works Both Ways Roadmap 2013 2015 2016 2017 2019 2020 … LEARN VIA PILOTS AT PROCESS MAINSTREAMING & PROCESS MATURITY LOCATIONS WORLDWIDE SUSTAINABILITY ONBOARDING EQUIVALENCY Create “Good /Basic Practices”. From Good to Better Practices From Better to Best Practices. Create “Glocal” Globally defined practices with Consolidate SAP Autism at Work Practices The organization has organic practices to country-optimized processes and transfer these to Mainstream SAP source, train, onboard and retain employees Processes with autism Change Management Mainstreaming Best Practices, Sharing Learnings Employees Contractors 7 Countries 100+ Interns Montreal Vancouver 2 11 Prague 9 6 Dublin 20 2016 Bay Area 18 19 5 Newtown Sq.