FOUNDATION REPORT

2018.2019 SUPPORT EDUCATION RESEARCH ADVOCACY SUPPORT EDUCATION RESEARCH ADVOCACY LEADERSHIP

Board of Directors Global Medical Honorary Global Medical Advisory Board Advisory Board Jim Crone, President Matthew LaRocco, Vice President Kenneth C. Gorson, MD, Chairman Barry, G.W. Arnason, MD Patricia H. Blomkwist-Markens, Bart C. Jacobs, MD, Vice Chairman Arthur K. Asbury, MD Vice President of International Activities Vera Bril, MD Richard J. Barohn, MD Russell Walter, Secretary Peter D. Donofrio, MD Mark J. Brown, MD Jim Yadlon, Treasurer John D. England, MD David R. Cornblath, MD Josh Baer Diana Castro, MD Marinos C. Dalakas, MD Nancy Di Salvo Richard A. Lewis, MD Thomas Feasby, MD Kenneth C. Gorson, MD Robert Lisak, MD Jonathon Goldstein, MD Gail Moore Eduardo Nobile-Orazio, MD, PhD Clifton L. Gooch, MD Shane Sumlin David S. Saperstein, MD Michael C. Graves, MD Kazim A. Sheikh, MD John W. Griffin, MD Executive Director Joel S. Steinberg, MD, PhD Angelika F. Hahn, MD Lisa Butler Pieter A. van Doorn, MD Han-Peter Harting, MD Professor Hugh J. Willison, MBBS, Professor Richard A.C. Hughes Founder PhD, FRCP Susan T. Iannaccone, MD Estelle L. Benson Gil I. Wolfe, MD, FAAN Jonathon Katz, MD Professor Peter Van den Bergh, MD Carol Lee Koski, MD Jeffrey Allen, MD Robert G. Miller, MD Eroboghene E. Ubogu, MD Garreth J. Parry, MD President’s Council Betty Soliven, MD Allan H. Ropper, MD Maureen Su, MD John T. Sladky, MD Jerry L. Jones Mamatha Pasnoor, MD Nobuhiro Yuki, MD Kim Koehlinger Philip H. Kinnicutt Ronald B. Kremnitzer, Esq. Ralph G. Neas

2 GSB|CIDP Foundation International MISSION AND Support VISION STATEMENT

About Us Education The GBS|CIDP Foundation International is a global nonprofit organization supporting individuals and their families affected by Guillain-Barre’ syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related conditions through a commitment to support, education, research and advocacy. Research

Our Vision Advocacy Every person affected by GBS, CIDP, or related syndromes will have access to early and accurate diagnosis, appropriate treatment, and knowledgeable support services.

Our Mission

We improve the quality of life for individuals and families affected by GBS, CIDP, and related conditions. Our unwavering commitment to the patients we serve is built on four pillars: support, education, research and advocacy. • We support patients by nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide them with critical, timely, and accurate information; • We educate doctors, clinicians, patients and caregivers to increase awareness and understanding; • We fund research through grants, establishing fellowships and other appropriate avenues to identify the causes of and discover treatments; • We advocate at the federal, state, and grassroots levels to educate policymakers and help them make informed decisions that benefit our patient community.

Annual Report 2018.2019 3 Dear Friends,

I congratulate each and every one of you for joining and supporting this remarkable 39 year journey of hope and healing. Our path in 2018 and 2019 has lead us to groundbreaking progress in support, education, research and advocacy for the GBS, CIDP and variant community. It is our great pleasure to inform you of all the new initiatives and achievements of the Foundation and to remind you that each step was inspired by you, our wonderful community of patients and caregivers! The stories shared throughout this report come from the newly launched Advocacy Action Center and remind us how important it is to come together as a community for a shared goal. This year, we were empowered by your support to achieve the following goals:

• Launching our first patient-reported registry, currently over 1000 patients enrolled! • Transforming our Walk & Roll Program to Walk & Roll for Research, Raising $150,000 in 2018 (Goal 2019=$200,000) • Growth of program from 3 to 4 one-day Regional Conference serving over 600 patients in total • New online advocacy portal : The Advocacy Action Center where we have received over 200 constituent letters to date As we recognize • Increased advocacy efforts on Capitol Hill with over 100 in-person our supporters, meetings with Legislators in support of a Medicare Home Infusion Bill • Record breaking attendance of 575 at 2018 Symposium with 22 Specialists be assured that including sub-specialties like our new “ZenDen!” • Investing in Research through our ever-expanding Walk & Roll program your presence with over 2,000 Walkers in 2019! is your true gift • Expansion in Centers of Excellence to 49 centers worldwide • Live Online Educational Programming to us and we • Incorporation of new International Chapters (Hungary and Denmark) • Responding, supporting, educating over 150 patient inquiries per month are grateful. across the globe!

I am reminded, as I write these words – transformation, growth, expansion – of how far we’ve come, and of the incredible power of a small, dedicated group of caring and determined individuals. And I hope that the following pages offer a close-up view of the current culture and future vision of the Foundation. Please know that we are here for you; your stories inspire, empower and drive us to respond with all that we can! I hope that you are inspired to join us and see how far we can go.

In gratitude, Lisa Lisa Butler, Executive Director

4 GSB|CIDP Foundation International FINANCIALS

Endowment Summary GROWTH OF GBS/CIDP ENDOWMENT Over the past ten years, the endowment has grown from $800,000 to $8,000,000 through generous contributions, bequests and portfolio performance. The Board’s fiduciary focus has always been on managing risk 2009 $800,000 within the portfolio while striving to fulfill the mission of support, education, advocacy and research. 2010 $2,800,000 In an effort to minimize costs, the endowment utilizes low cost exchange traded funds and individual, high quality bonds. The exchange traded funds 2011 $3,000,000 allow for the creation of a well-diversified portfolio and the individual bonds seek to provide stability and income required by the Board. 2012 $3,500,000 As fiduciaries, the Board seeks to limit spending to no more than 4% of the aggregate portfolio. The Investment Policy Statement provides guidance 2013 $5,500,000 to both current and future Board members, with preferred allocations of: 60% Domestic Equities, 10% International Equities and 30% Fixed Income. 2014 $6,000,000 The Domestic Equity allocations are spread across large, mid and small companies. The Fixed Income allocations focus on capital preservation. The 2015 $6,300,000 aggregate portfolio is managed to focus on Total Return, protecting principal while trying to achieve reasonable levels of growth. 2016 $7,200,000 Since 1999, Doug Swope, CFP® has been assisting The Foundation in the prudent management of the endowment assets. Doug’s brother, John, was 2017 $7,625,000 diagnosed with GBS in 1998. During Doug’s 25 year career, he has been with industry leaders Merrill Lynch & Smith Barney, and in 2009 he and his father 2018 $7,150,000 co-founded registered investment advisory firm, Stillwater Capital in Wayne, PA. The firm currently has 550 clients and manages over $775 million. 2019 (6.30.19) $8,050,000

EXPENSE ALLOCATION

800,000 700,000 600,000 500,000 400,000 300,000 200,000 100,000 0 2014 2015 2016 2017 2018

■ Patient Education & Services ■ Research ■ Programs ■ Advocacy

Annual Report 2018.2019 5 Support

“It was truly our pleasure to attend the Foundation’s regional conference. Keep up the fantastic work! You all make a great difference in the lives of many.” —Caroline Biagi (parent of CIDP patient) FOUNDER ESTELLE BENSON NAMED 2018 Serving patients with GBS, CIDP or variants such as MMN, with the NORD HONOREE most valuable and up-to-date information and support is our top priority. FOR ABBEY S. MEYERS Here’s an at-a-glance look at how it’s done: LEADERSHIP AWARD

In May of 2018, The National 103 Chapter Meetings Worldwide Organization for Rare Disorders (NORD) honored Founder, Estelle Benson, and the work of the volunteers in countries GBS|CIDP Foundation International 232 49 with the Abbey S. Meyers Leadership Award.

members including patients, caregivers, “Abbey Meyers, NORD’s founder and 45,000 first president, agrees. “During my friends and medical professionals time as president of NORD, many rare disease support group leaders would call us about administrative problems they were experiencing. I would tell 49 global Centers of Excellence them to call Estelle Benson because she understood the basic rules of effective leadership,” she says. “For Estelle, leadership was not telling people what $4 million in research grants since 2006 to do; she actually made them want to do it.”

WE ARE AN INTERNATIONAL FOUNDATION AND HAVE MANY VOLUNTEERS THROUGHOUT THE WORLD

■ Volunteers

6 GSB|CIDP Foundation International Support

8 New Centers of Excellence in 2018 & 2019

Our Global Medical Advisory Board has set standards for what they consider to be excellent medical centers for the diagnosis and treatment of GBS and CIDP. Based on levels of expertise, available treatments, facilities, and research capabilities, these are the medical centers that we can unequivocally recommend as “Centers of Excellence.” There are currently 48 medical facilities worldwide, that have been deemed GBS|CIDP Foundation International Centers of Excellence.

AMSTERDAM, THE NETHERLANDS LONDON, ENGLAND PARIS, FRANCE Academic Medical Center (AMC), King’s College Hospital Groupe Hospitalier Henri Mondor, University of Amsterdam LEUVEN, BELGIUM Universite’ Paris Est SYDNEY, AUSTRALIA University Hospital, Saint Luc, PALO ALTO, CA University of Sydney University Louvain Stanford Neuromuscular Program, BALTIMORE, MD LONDON, ENGLAND Stanford Healthcare The John Hopkins University School of MRC Center for Neuromuscular PHILADELPHIA, PA Medicine and The John Hopkins Hospital Disease, National Hospital for Perleman School of Medicine at BARCELONA, SPAIN Neurology and Neurosurgery the University of Pennsylvania Hospital De La Santa Creu I Sant Pau LOS ANGELES, CA PHOENIX, AZ BELGRADE, SERBIA Cedars-Sinai Medical Center Barrow Neurological Institute University of Belgrade Clinical LOS ANGELES, CA PHOENIX, AZ Neurology Clinical Center of Serbia The University of CA – Los Angeles Phoenix Neurological Associates BIRMINGTON, UNITED KINGDOM NEW ORLEANS, LA RICHMOND, VA University Hospitals of Birmingham Louisiana State University Virginia Commonwealth University BUENO AIRES, ARGENTINA MALAYSIA ROCHESTER, MN Argentina Hospital Britanico University Malaya Medical Centre Mayo Clinic BUFFALO, NY MILAN, ITALY ROTTERDAM, THE NETHERLANDS The University at Buffalo School of Milan University, Humanitas Erasmus MC University Medical Centre Medicine and Biomedical Sciences, Clinical and Research Center SAN FRANCISCO, CA State University of NY MINNEAPOLIS, MN California Pacific Medical Center BURLINGTON, VT University of Minnesota Medical Center SALT LAKE CITY, UT University of Vermont NASHVILLE, TN University of Utah CHARLOTTESVILLE, VA Vanderbilt University Hospital SEATTLE, WA University of Virginia NEW YORK, NY University of Washington CHICAGO, IL Columbia University TAMPA, FL The University of Chicago NEW BRUNSWICK, NJ University of South Florida COLUMBUS, OH Rutgers, Robert Wood Johnson TORONTO, ONTARIO, CANADA Ohio State University – Wexner Medical School University of Toronto, Toronto Medical Center ORANGE, CA General and Western Hospitals DALLAS, TX University of CA-Irvine WARSAW, POLAND The University of Texas OSAKA, JAPAN, KINDAI Medical University of Warsaw Southwestern Medical Center University Faculty of Medicine WELLESLEY, MA DETROIT, MI Saint Elizabeth’s Medical Center Wayne State Univeristy Group/ Detroit Medical Center DUESSELDORF, GERMANY Heinrich-Heine University Department of Neurology HOUSTON, TX The University of Texas Health Science U.S. Center at Houston (UTHeath) KANSAS CITY, KS VOLUNTEERS The University of Kansas Medical Center ■ KARNATAKA, INDIA Volunteers National Institute of Mental Health & Neurosciences

Annual Report 2018.2019 7 Education

Live Online Series for Patients & Medical Professionals

In 2018, GBS|CIDP Foundation International partnered with Platform Q for Live Educational Programming. Three live online educational programs (NeuroCareLive series) were produced to help patients and caregivers, physicians, and medical employees in a hospital setting to better understand the rare condition of GBS|CIDP and variants. Members of the GBS|CIDP Global Medial Advisory Board, along with Four Regional Conferences other specialized physicians, patients, and the Foundation’s Executive In spring of 2019, one-day regional conferences in Princeton and Colorado Director, Lisa Butler, participated as Springs brought together a combined 250 attendees including local presenters and panelists, answering physicians, patients, caregivers and loved ones for a day of sharing, learning questions from viewers in real time. and connecting. Over 300 viewers on average logged on to the live events, and Our medical presenters on March 9th at the Princeton, New Jersey Regional nearly 1,500 viewers have since viewed the recorded programs. Conference included Steven S. Scherer, MD, PhD, Professor of Neurology at Penn Medicine along with Shan Chen, MD, PhD, Neurologist at Robert Wood Johnson University Hospital. On April 9 in Colorado Springs, Colorado, our team of medical presenters included GMAB member David Saperstein, MD, Neurologist at Phoenix Neurological Associates, and Dianna Quann, MD, Neurologist and Professor at University of Colorado. Both GBS|CIDP medical teams presented the latest in GBS|CIDP research as well as “What to Expect” after a GBS or CIDP diagnosis, and an interactive “Ask the Experts” session with specific questions from attendees.

Additional topics presented at both conferences ranged from breakout sessions for patients based on their specific condition, insurance and advocacy, We are pleased to announce the 2020 patient symposium will be October 1-3, social work and your circle of care, adaptive living devices for the home, caring 2020, at the Hilton Mark, Alexandria, VA. for the caregiver, and various sessions on current treatments available. There will be a DC Walk & Roll on Sunday, October 4. The event will be preceded by Two more one-day regionals are scheduled in Indianapolis (September 7th, a Patient Advocacy Day on Capitol Hill. More information will be shared this fall at 2019) and Boston (October 5th, 2019). gbs-cidp.org. We hope you can join us.

2018 Benson volunteer awards were given to four of our passionate volunteers by none other than Founder Estelle Benson herself. These dedicated volunteers best represent the mission pillars of the organization. BENSON Included in the roster were Board of Directors member and Regional Director Jim Yadlon, for his VOLUNTEER unwavering commitment to SUPPORT, GMAB member Dr. Richard Lewis for is determination to EDUCATE patients worldwide, GMAB member Dr. Kazim A. Sheikh for his innovative spirit and AWARDS dedication to RESEARCH, and Liaison, Hill Day Advocate and Walk & Roll Chair, Tonya Charleston, for her passion and persistence in the area of patient ADVOCACY.

8 GSB|CIDP Foundation International Education

Communications Corner

Efforts towards marketing and communications were enhanced in 2018 and 2019. We revised our mission and vision statement, expanded our social media outreach, and gave a refined brand look to our library of resources and communications materials in an effort to increase overall reach and impact. We have also integrated our website contact forms with our database management system to A 30th Celebration to Remember streamline our workflow, and ensure accuracy in donation tracking and It was the best of all worlds in November of 2018 at the International Patient patient record keeping. Additionally, Symposium in San Diego where a record-breaking 575 attendees gathered we have incorporated a new for 3 days of GBS|CIDP patient support, education, research, and advocacy. CMS system to ensure continual Attendees included patients, caregivers, presenters, sponsors, and our and consistent messaging in all international circle of friends from around the globe including France, Canada, programmatic and news-related Australia, Japan, Germany, Italy, Mexico, Nepal, the Netherlands, England, email communications and social media posting. Please contact Trinidad & Tobago. the office if any of your contact information has changed! Our San Diego Welcome Walk kicked off the Symposium with a burst of energy, warmth, and friendship. Over 300 participants gathered for a one mile walk to the Symposium opening reception. Sponsors of the event cheered patients from the sidelines and the spirit of hope and camaraderie grew stronger with each step. Keynote Speakers were Dr. Richard Lewis and TV actor and GBS survivor, Michael Coleman.

“We are at the Symposium for the first time. It has only just kicked off but it has already been such an amazing experience for our family. Thanks to all who make these meetings possible, so we can connect with others and learn!” —CHARLENE COWELL

CLINICAL During the symposium, over 65 patients were able to meet for 15 one-to-one discussions with some of the top neurologists in the world. And if more questions arose after their meeting, VISITS & there was ample opportunity‘‘ to ask during our 4 “ask the experts” breakout sessions followed EXPERT by expert-led sessions on emotional health, PT/OT, best practices for IVIG, integrative GUIDANCE healthcare, guidance on sexual health issues for women, promising new therapies for GBS, and transformational topics and tips for coping with physical and mental stress.

Symposium sponsors included CSL Behring, Grifols, Kedrion, Shire, PPTA, NuFactor, Soleo Health, RMS Medical Products, Accredo, NeuroCareLive/PlatformQ, Briova, Kroger and Diplomat Pharmacy.

Annual Report 2018.2019 9 Research

Grant Awards given by the GBS|CIDP Foundation International

2018 2019 ELISABETTA BABETTO, PhD KARISSA GABLE, MD BETTY SOLIVEN, MD Research Assistant Professor Duke University University of Chicago The Research Foundation for Pathogenic Th17 cell pathology in CIDP Exploring possible role of TGR5 and SUNY on behalf of U. at Buffalo FXR in autoimmune neuropathy Targeting Wallerian-like degeneration EDUARDO NOBILE-ORAZIO, in GBS mouse models MD, PhD H.G. (RUTH) HUIZINGA, PhD Milan University, IRCCS Humanitas & BART C. JACOBS, MD, PhD LUANA BENEDETTI, MD, PhD Erasmus MC, University Medical Center A randomized controlled trial with

AND LUCILLA NOBBIO, PhD Rituximab versus placebo in patients Neuromuscular ultrasound (NMUS) University of Genova, ITALY with chronic inflammatory demyelinating parameters as diagnostic and prognostic Sphingomyelin dosage in GBS/ polyradiculoneuropathy (CIDPRIT). biomarker in chronic inflammatory CIDP patients: biomarker validation demyelinating polyneuropathy (CIDP) in a multicenter, prospective study A. JUNG-JOON SUNG, MD, MS, PhD PAOLO RIPELLINO, MD, Seoul National University College NEUROLOGIST Development of New Biomarkers Neurocenter of Southern Switzerland Using Immune Cells Profiling and (IGOS) in Switzerland: a deeper T-cell Specific Sequencing look into HEV-induced GBS

LUIS QUEROL, MD, PhD Hospital de la Santa Creu i A New GBS|CIDP Patient Registry Sant Pau, Barcelona On February 28, 2019, the GBS|CIDP Foundation launched its first patient reported Disease-specific Biomarkers In registry for patients with GBS|CIDP or variants of the condition. Currently, over Inflammatory Neuropathies 1,000 patients have enrolled in the online Patient Registry. The Registry consists of patient reported standardized questionnaires that will allow healthcare professionals LAURA ZAMBREANU, to access critical, de-identified patient data and a more in-depth understanding MD, MRCP of the patient experience. This unique collection of data can be critical for the National Hospital for Neurology pursuit of medical advancements and development of patient resources. and Neurosurgery, UK IF YOU ARE A PATIENT, OR THE PRIMARY CARETAKER OF A PATIENT Intravenous immunoglobulin and LIVING WITH GBS, CIDP OR A VARIANT OF THE CONDITION, WE intravenous methylprednisolone ENCOURAGE YOU SHARE YOUR EXPERIENCE, ENROLL IN GBS|CIDP as optimal induction treatment PATIENT REGISTRY AND PLAY A ROLE IN A BETTER TOMORROW in CIDP (OPTIC trial) FOR GBS|CIDP PATIENTS EVERYWHERE. GBS-CIDP.IAMRARE.ORG

RESEARCH INVESTMENTS Grants, PNS Sponsorship, IGOS, Benson Fellow $112,599 $217,987 $200,388 $150,000 $175,000 $150,000 $210,000 $195,000 $255,000 $735,000 $315,000 $296,300 $299,000 $637,661

‘05 ‘06 ‘07 ‘08 ‘09 ‘10 ‘11 ‘12 ‘13 ‘14 ‘15 ‘16 ‘17 ‘18

10 GSB|CIDP Foundation International Advocacy

Department of Defense Research Grant Fund Includes GBS on list for 3rd Year in Row

Advocacy efforts of the GBS|CIDP Foundation have influenced the US Senate to name Guillain-Barré syndrome as an eligible condition on the Department of Defense peer- review medical research program (PRMRP). The addition allows researchers access to compete Advocacy Action Center for more than three billion dollars set aside for the program. In May 2019, patients and caregivers were encouraged to be their own The Peer Reviewed Medical best advocate by joining a congressional letter writing campaign. Over 150 Research Program, established advocates wrote letters through the Advocacy Action Center, representing 37 in 1999, has supported research states. Additionally, on May 23 — GBS|CIDP Hill Day — 32 advocates from across the full range of science all over the US joined Foundation Representatives on Capitol Hill to meet and medicine, with an underlying with 52 different Congressional Offices to ask for support of the Foundation’s goal of enhancing the health and legislative agenda. During that same week, Congressman Blumenauer and well-being of military service Congressman Holding introduced the Medicare IVIG Enhancement Act, members, veterans, retirees, and which is a bill that would create the demonstration project in Medicare Part B their family members. to allow CIDP and MMN patients to receive IVIG infusions at home through their Medicare Part B benefit.The bill was given the number of H.R. 2905.

FOUNDATION PRINCIPAL INVESTIGATOR: Kazim A. Sheikh, of Texas, University of GMAB MEMBER Houston, Health Science Center, was awarded KAZIM SHEIKH, $1,699,402.00 through the DOD PRMRP in MD, AWARDED (FY) 2017. DEPARTMENT STUDY TOPIC: OF DEFENSE Defining Final Common Pathogenetic GRANT FOR Pathway of Endoneurial Inflammation STUDY IN and Nerve Injury in Models of Immune IMMUNE- Neuropathy. MEDIATED NEUROPATHY

Annual Report 2018.2019 11 Advocacy

2018-2019 Advocacy at a Glance

Advocacy Priorities & Successes HR 2905 Medicare IVIG Access Enhancement Act Progress • Introduced to 115th Congress – HR 4724 We continue to • Reintroduced with stakeholder input to 116th Congress – HR 2905 work with the Senate Finance • Current CoSponsors: Committee and Rep. Earl Blumenauer Rep. George Holding Rep. Doris O. Matsui hope to introduce Rep. G. K. Butterfield Rep. Mike Kelly Rep. David E. Price a Senate Rep. Susan A. Davis Rep. Robin L. Kelly Rep. Terri A. Sewell Companion Rep. Dwight Evans Rep. Elaine G. Luria Rep. Adrian Smith during the Rep. John Garamendi Rep. Kenny Marchant 116th Congress

NIH and CDC Funding Increases • Two important federal agencies involved with research into GBS and triggers, CIDP, and variants. Due to the collective advocacy of like-minded groups, these institutions continue to receive funding increases to continue essential work

DoD PRMRP • Because of grassroots advocacy, GBS continues to be listed 2018 HILL DAY as a condition eligible for study through the Department of 15 patient advocates Defense’s Peer Reviewed Medical Research Program participated

2019 HILL DAY 32 patient advocates met with 52 Congressional Offices

FIND OUT MORE If you would like to find out more about our legislative agenda and learn how to get started with advocacy efforts, contact Advocacy Manager, Chelsey Fix, at [email protected].

12 GSB|CIDP Foundation International Report of Donors 2018-2019

Carol & Michael Ceci Margaret & Russell Holdredge Shirley Perkins Yi-Mei Chang James Horstmann Thomas Petersen President’s 1980 Society Tonya Charleston Jean & Robert Hubbs Robert & Ada Belle Peterson Edna Cierelli Susan Huebschman Dorothy Pierce Circle In recognition of Frances Clark Mary Immenhausen Matthew Pinto donors who have given Marilyn Clark Gloria Jamie Robert & Georgia Piorkowski In recognition of more than twenty Luey Clough Sharon Jarrell Richard & Debbie Plimmer cumulative gifts Mark & Evelyn Cole Joan & Jerry Jones Joy Poirot donations. Since its reaching $10,000 Mary Collins Jerry & Annette Jones Bob & Jenny Polis founding in 1980, the or more. President’s Melissa & Scott Conger Carolyn Jukich Robert Prestwich William & Sadie Cooper Diane & Thomas Kaczmarek Jane & Donald Prior, MD Circle members Foundation has relied on the generosity Bill Copeland Doug & June Kaiser Ann Proctor demonstrate leadership Gloria & Donald Cote John & Rynette Kantzer Thomas Rees in philanthropy. This of friends to grow James Cottrell Stephen & Linda Kates Thomas & Nancy Reiland group of leadership into the outstanding Edwin Cridland Ryan & Phyllis Keefer Carolyn & Hyman Rifkin donors make financial organization that it is Evelyn Crompton Susan & Christopher Kiechel Lynn Rogers commitments of today. The 1980 Society James & Jennifer Crone Adam Kempenaar Vivian Rothschild gifts that enable the donors are the most William Curry Robert Kern Marlyn Rothstein Eleanor Curry Philip Kinnicutt Janice Ruder greatest impact for loyal donors and play Donald & Sigrid Dahlin Gail Klein Helen Rummelsburg the Foundation. In a significant role in the Myron Daniels Kim & Donna Koehlinger Lorraine Rumore appreciation for their past, present and future Joan Decker Juanita & Joseph Krokos Doris Ryan gifts, President’s circle of the Foundation. In Janice DeDora Jane Kuriki Claire Sachs members receive appreciation for their Rochi Demo Barbara Kuzmitski Crystal & Jai Sada Peggy Dettwiler Ellen Lacey Ann Santarlasci special recognition loyalty, 1980 Society throughout the year. Pam & Michael Dobos Mimi & Alvin Lakind Patricia Schardt members will receive Abby Dolliver Sarah Lammonds John Schilke, MD & special recognition Betty & Skip Donelson Lu Lawrence & Atlus Simpson Susan Schilke throughout the year. Marjorie Downey Barry Leitman Shirley Schleimer Arthur & Carolyn Asbury James Drue Margaret Lichtenstein Dick & Beryl Schoonover Sue Baier Excell Duncan Jay Lindauer Wernert Schuler Jr. William Beam George Eberhart Harriette Lion Elizabeth Schultz Estelle Benson Siegline Abendroth David & Lesly Eckstein Charlotte & Benjamin Litwin L. E. & Janet Schultz Mitchell & Bonnie Benson Anne Acerman Laura Edwards & Seymour Siegal Barbara Luhrs Jacob Sergent Garrett Bergman, MD Charles Ackerson, PhD John Elligers John Lynch Shirley Shirey Barbara Blair James & Sue Adair Ronald & Caroline Ellis Richard & Leanne Lysholm Betty Stafford Calvin Bright Louis Adams Jean de Elorza Dorothy & Leonard Mackles Brian Stahl, Ph. D & Sue Ellen Burr Barbara & John Alessio Shane English Judy Macor Rightlnad Stahl, Ph. D Barbara Cressman Aida Alfonso Mark & Marsha L Ensminger Merrilyn & Tim Macurak Robert Stanley Edwin Cridland Jose Amijide Margaret Epplett Kenneth & Terry Marshall Pamela Stein Karen Crombie Richard Anderson Virginia & John Ertz Lois Martillo Joel Steinberg, MD, Ph D. R. Kenneth Doehrman Kathlee Antonucci Richard & Constance Etherton Kenneth Marx & Linda Hayward & Susan Steinberg Marjorie Downey Jorge & Maria Arroyave Ralph Feick Michael Mattia Bryan & Rachelle Donnelly Storm William Gaffney Arthur Asbury, MD James Fels Charles & Wanda Mayberry Shawni & Ted Strzelecki David & Janice Haley Carolyn Asbury Joann Fenlon Enrica McCann Mary Stubbe Joan & Nany Hanisco Joan Athey Barbara Fisher James McCarthy David & Gloria Sullivan Debra Harvey Gregory August Wendy Fisher Thomas & Andrea McCullum Danielle Sullivan Ernest Hayden Sue Baier Mary Fluke Lila McKay Barbara Szitta Mitchell Herbets Nancy & Allan Bailey Evelyn Force Kristan McMahon Elizabeth Tausz Marilyn Horan Verna Bain Shirley Frederick Catherine Menichini Merlaine & Winston Taylor Susan Huebschman Charles Bauer Mary Ellen Friedlander Carol & Marvin Mensching Marilyn & Louis*Tedesco Margaret Hunt Harold Becker Leora Fuller Bernard & Joan Merten Jon Toumey Jerry & Annette Jones Vona Benge Susan Gabay- Laughnan Tom & Kay Metzler Joseph Tremari Joe & Robin Maas Estelle Benson William Gaffney Mary Midghall Kassandra & Richard Ulrich Louis Mazawey Mitchell & Bonnie Benson Santo Garcia Dana & Mark Mildebrath Nancy & John Wagner Abbey & Jerry Meyers Lillian Bearese Don & Patricia Garrison Ann Millar Roman & LaVon Wankum Allen & Nany Minton Carla & Laurence Bernay Linda Gawthrop Jeff & Phyllis Miller Kim Waterman Nelufar Mohajeri David Beymer Thelma Gifford Rose Mitchell Hans & Sharon Wehl Ellen Moseley Philamaine & Franklin Biffle David Gill Virginia Molenaar Kenneth & Dorothy Wells Ralph Neas Magdalee Bland Linda Gindt Caroline Morrison Bill & Barbara Werling Cynthia & Eugene Oliver Barbara & Charles Blankenship Robert & Linda Gingras Phyllisjane Muller Rosanna Wheeler Helen Rummelsburg Hannah & Charles Blanton Kathy & Ira Goldberg Shawn Murphy Walt Whelan Albin Rzeszotarski* Maureen Bozicevich Joan & Bernard Goldman Anneliese Nathan Patricia White Crystal & Jai Sada Wendy Bradley Marilyn & Steve Gordon Ralph Neas Elizabeth Widdifield Patricia Schardt Gerald Brady David & Lois Greer Beverly & LeRoy Neuenfeld Raymond Wieczorek Christine & Ron Sobchik Dorothy & Alfred Brandstatter Frank Grim Mary Carmel & Donald Edna & John Wilken Lawrence & Rebecca Stern Ann & George Brandt Marcia & Stan Grubel Michael Neville William & Elaine Willever Amanda Swope David & Nelda Brooks Eric & Karen Gustafson Josephine Nicolosi Maureen & Rockford Williams Douglas & Jeanne Swope Bettie Brown Miriam & John Haggerty Beatrice & Kenneth Nilsen Midge Winchegter Jack & Joan Swope Mark Brown, MD Dean & and Gloria Hartwick Sandra Nogosek Craig Wordsworth Davol Tedder Audrey Brucker Stephen & Joyce Haydock Nancy & Ronald Nurnberg Vincent & Joyce Wyles Marilyn & Louis* Tedesco Carol & Fred Brusseau Norman & Patricia Herms Norman Nye William Wynn Richard Thomason Joyce Brykman Paul Hersch Susan O’Briant James Yadlon Anne Travalia Gloria Burke Loretta Higgins Rosa Ochoa Rowland Yeo Paul & Janet Votze Ellen Burr Anna May High Cynthia & Eugene Oliver Lois York Lisa & Tom Butler Robert Hintz Milton & Arlene Orenstein Helen Zasadny Barbara Butler James & Irene R Hoffman Carolyn & Henry Palmer Marcelle Callens Michael Hofmann Ronald & Helen Pawasarat

*Member is deceased Annual Report 2018.2019 13 Report of Donors 2018-2019

Charlotte Anderson Susan Baker Rose Becker Judy Anderson Baker Jr. Susan Beckerdite Legacy Circle Donors Richard Anderson Arthur Baldadian Allan Beckett Richard Anderson Karen Baldauf Kenneth Beckett The Legacy Circle January 1, 2018– Teresa Anderson Mary Jo Baldauff Sandra Beckett Teresa W. Anderson Emmanuel Balderas Jennifer Beckman recognizes individuals August 1, 2019 Thomas Anderson Michaela Balderas Joanne Beckman who have named Jenny Anderson Cynthia Baldino Paul Beech the Foundation as a Bob Anderson John Balint Joel Beeghly Mary Andrejko Ronald Ball Thomas Beeler beneficiary in their Ron Abbe Greg Andreski Larry Ballard Lisa Beggs Phyllis Abbott Estate plans and have Terri Andrew Andrius Balukas James Beh Weldon Abbott named the Foundation Michele Andriaccio Donna Bankston Sue Behnke Martin Abbrecht Fred Angelilli Christopher Bannon Nancy Behr as a beneficiary in David Abel Brian Ankele October Bansil Kirsten Beijer their will, charitable Carl Abend Kristen Ankiewicz Munzer Barakat Richard Belcher Seymour Abrahams gift annuity, charitable William Ansley Lorraine R. Baralo Michele Belic Catherine Abrams trust, or similar vehicle. Steven E. Antesberger William L. & Barbara J. Barbee Harris Bell Acevedo Perez Jeffrey Antman Alexis Barber James Bell All individuals who Achtenberg-Brummer Kathleen Antonucci Judy Barden Jeremy Bell Leland Ackerley have included the Shelly Antonucci Nancy Bardini Jessica Bell Charles Ackerson, Ph.D. Foundation in their Aj Aquino Kelly Barefoot Terry Bell Paula Acquaviva Jose Aquino Barry Barnes Furnia Bellas estate plans, and have Thomas Aczel Fred Araki Roy Barnes Edward Bellew made their intentions James Adair Arcay-Brod Steven Barnes Sophia & Evelyn Bellicot Blake & Barbara Adams known are invited John Arena Delores Barnes Judith Beltz Dolores Adams into membership in Gregory Argust Ken Baroff Erika Benbow Geraldine Adams Christy Armstrong Marianne Barr John Benedetto the Legacy Circle. Louis Adams David Armstrong Patricia Barraclough Lol benedict Carol Adcock Richard Arndt David & Marion Barran Peter Benevides Claudia & Mac Addison Susan Arndt Marissa Barrera Leslie Beninga Jane Addison Joann Arny Mary Kathleen Barrett Bruce Benko Louis Adams Joseph Addison Schaletha Arocho Kelly Barrett Kellie Beno Estelle Benson Shirlyn Adkins Roland K. Aronson Thomas Barrett Jenny Benoit Diana Buhrfeind Claudia Adoremos Amalia Arredondo Barrett-Dubrosky Julie Benroth Ellen Burr Karyl Affeldt Martha Arreola Bob Barriskill Alisa Benson R. Kenneth Doehrman Catherine Affrunti Jorge Arroyave Catherine Robinson Barron Betty Benson Ruth Elster Anthony Agee Brenda Ary Heide Barrowman Estelle Benson Carolyn Fairman Alicia Aguilar Arthur Asbury Amy Barry Howard Benson Jeffrey Fihn Nancy Ahern JoAnn Ashcroft Regina M. Barry Kenneth & Lorna Benson Brian Ahrens Gladys Fortune Lisa Ashcroft Lauren Bartel Mitchell Benson David Ahrens Ernest Hayden Evan Ashe Erin Bartholomew Jacob Bentley Mark Ahrens Jeanne Huber Allan Ashman William Bartlett Billy Benton Joe Albano Susan Huebscham Howard Askelson Tom Bartlett Albert Berchtold Stephen Albano Douglas Johnston Aspen Creek Landscaping Inc. Glorianna Bartolo Berens Miller Dolores Alcaraz Joy Poirot Steven Asplin Serena Bartolucci Catherine Berg Nikki Alcaraz Ronald Root Dennis Asti Geri & Ron Bartsch Jackie Berg Bill Aldrich Crystal Sada Cindy Athey Daniel Basalyga Stephani Berger Gabrielle Aldrich Anne Travalia Joan Athey Dayna Bates Garrett Bergman William Aldrich Kassandra Ulrich Ken Auernik Shannon Bates Phyllis Bergman Barbara Alessio Chris Zaal Susanne Auten Tyler Bates Lisa Bergner Brendan Alexander Bill Avakian David Batista Erica Bergsland Fotini Alfieris Leslie Avansino Barbara Anne Bauer Elvira Berishev Aida Alfonso Elisa Avik Charles Bauer Rachell Berkowitz David Allard Arlene Avila Barbara Baum Berkshire Hathaway Home Services Shannon Allegretto Victor Avis Brian & Eve Bauman Linda Berkson Renata Allelujka Beth & Milton Awa Tara Baus Nina Berlin Carrie Allen Andrew Aydlett Danielle Bautista Gene Berman Corey Allen Art Ayers Stephanie Bayard Scott I. Berman, M. D. Judith Allen Brian & Michele Aylaian Charnele Bazemore Kimberly Bernards Lynne Allen Bernadette Babcock Ronald Beabout Desiree Bernat Mary Allewalt Mary A. Bacas Carter Beach Carla Bernay Jon Almeras Susan Bachner Dot Beach Robert Bernhardy Teresa Almodovar John & Mary Ann Bacorn LaTasha Beal Bruce Bernhjelm Joanna Almond Karen Badia Christine Beall Charlene Bernsen Alpha Rho Alpha Delta Kappa Alyssa Baer Clarence & Elizabeth Beall Allan Bernstein Susan Alrutz Jessica Baer Tina Beam Eric Bernstein Amy Alumbaugh Joshua Baer Christa Bean Cassandra E. Berrum Raymond Alvarado Mary Baer David Bean Jay Berry Greg Alvarez James Baez Donald Bean Antonella Berthin Pablo Alvarez Elizabeth Baffone Lillian Bearese Kelly Bertolazzi Cassandra Alvelo Peggy Bagley Brian Bearor Jim Bertrand Erica Alvelo Suzanne Bailey Lisa Beason Shamila Beslow Maria Alvira Bailey Family Foundation Ann Bebensee Elizabeth Best Fenner Ambrose Maurice Baillargeon John Beccia Mark Betch Gabe Amey Adam Bair Jill Bechtold Shirley Betchman Shan Amin Lisa Bair June Beck Joseph Betlej Linda Amit Melissa Bair Sara Beck Mischa Beumer Matthew Amore Heide Baird Susan Beck David Beymer Johannah Anacreonte Edmond Baisley Alice Becker Dolores Bezenah Dominic Andella Karen Baker Charles Becker Mary Bezirjian Ellen Anders Owen Baker Harold Becker Dante J. Bianchi Bridget Anderson Peggy Baker Keith & Anne Becker Leo Bickham Bridget, Jason & Robyn Baker Robert Becker Jennifer Bickhardt Harrison Anderson

14 GSB|CIDP Foundation International Report of Donors 2018-2019

Margaret Bickhardt Linda Bossart David Brooks Robin Busch Raymond Bickhardt Brook Boswell Natalie Brooks Cynthie Bush William Biele David Botelho Nikki Brooks Kenneth L. Bush Rachel Biggs Clifford & Linda Botwin Robin Brooksbank Kevin Bush Brian Bill Lindal Botwin Algie Broome Michael Bustell Ada Bill Becky Botzet Robert Bross Charles & Florence Butkus Kristin Billich Tracy Boucher Brothers Jr. Kenneth J. Butkus Dorothy Bindus John Bouda Chris Brough Barbara Butler Glenn Bingham Gary Boughan John Broughton Dorothy Butler Steve Bishop Ronald Bouman Stacy Broussard James Butler Bitwise Industries Inc. Jon Bourne Barbara Brown John Butler Hannah Black Kathy Bova Bryan Brown Lisa & Tom Butler Marcelia Black Patricia Bower Catherine Brown Allison Butscher Paul Black Linda Bowers Destiny Brown Clement Butt Roger Blackwell Susan Bowers Donald & Margaret Brown Dustie Butteiger Kimberly Blaine Linda M. Bowles Emily Brown Frank Butwin Sheila Blaine Harold Bowman Eugene Brown Donna Byers Elizabeth Blake Linda Bowman Gary Brown Darrell Byrne Boyd Blake Suzanne Bowman Geanean Brown C&O Furniture Inc. BARB E. Gerald & Carolyn Blake Kathleen Bowser Lionel Brown Joseph Cabral Sinclair Blake Courtney Box Meredith Brown Jeff Cain Florida Charley Blakely Carrie Boyd Nancy Brown Ashley Calabrese Michael Blanchard Sissy Boyd Virginia Brown Jon Caldwell I started with numbness in my big Marissa Blank Doris Mills, Leslie & Veronica Brown Dave & Shirley Calhoun Rolf Blank Justin Boyd Jean & Ryan Brown Holly Calhoun toes in 2005. I went through all Danny Blank Jennifer Boyda Theresa Browne Jed Calhoun the neurological testing, and my Barbara Blankenship Charles & Carolyn Boyer Lynn Broxton Olivia Calhoun Neurologist thought it was MS. I Mary Anne Blarcom Michael Boyer Donna Brozowski Julie Califano Katherine Blaszkow Shaun Boykin Evelyn Brubaker Lorry Callaghan sought several different opinions, and Frank Blatter Ted Boykin Joyce Bruce Louis Camara finally in 2012, after not able to lift my Nolan Blau George Boyle Audrey Brucker Nancy Camargo leg to brake and stop my car. I ran a Elise Blegen Lisa Boyle Jon Brundage Ronald Cambio Walter Blick Lydia Boyle Brunelle Jr. Cary Cameron red light and crossed Hwy 1 (over 6 Jennifer Bliss Maureen Bozicevich Clayton Bruner Larry & Sheila Camp lanes of traffic) in St. Augustine FL. By Sue Blockberger-Miller Danny Bradford Judy Brunton Vanessa Campagna the grace of God, I almost got hit but Ernst Bloemker, MD Lena Bradford Carol A. Brusseau Alice Campbell Patricia Blomkwist-Markens Pelita Bradford Derek & Cindy Bryant Casey & Debi Campbell didn’t, and I didn’t hit anyone. Mayo in Oren Bloom Ann Bradley Elizabeth Bryant Frances Campbell FL diagnosed me with CIDP. Kala Bloomer Louise Bradner Janie Bryant Jean Campbell Joyce Blosberg Catherine Bradshaw Joy Bryson Jebediah Campbell Stephen Blowers Jennifer Bradshaw Bari Bucci Jody Campbell I tried a 5 day load dose of IVIG, but Helene Blumenau Rachael Bradshaw Kylee Bucci Joy Campbell due to my out of pocket cost , I chose Tony Bluske Stacy Bradshaw Wendy Buchanan Mary Campbell to hold off on more treatments. Finally Eric & Blane Bly Carole Brady Martin Buchnoff Mary Jo Campbell George Blythe Katherine Braithwaite George A. & Diane L. Buck Patricia Campbell in 2015, I was almost completely Leah Blythe Karen Bramblett Nita Buck Tim Campbell numb from the pelvis down, and my Virginia Blywise Peter Brandeis Roy Buck Kirk Campbell face and hands. I knew it was only a Vicki & Matt Bobo Dorothy Brandstatter Penny & Stephan Buck Cynthia Campise Casimir Bobowski Ann Brandt Gail Buckingham Edward Canaday matter of time before I would be in a Nancy Boddie Becky Brandt Tifanie Buckley Michael Canar wheelchair. I started home infusions Tom Bode Adam Branson Leonard Budd Steedley Candler of IVIG. They helped immensely. Jodie Boedigheimer Susan Branson Valerie Budzik Robert Canepa Kenneth Boehm Susan Branson Diana Buhrfeind Phyllis Canon Unfortunately, when I turned 65 and Leroy E. & Lisa V. Boenzle Barbara Braswell Buick GMC Fresno Audrey Canterino went on Medicare, I could no longer Eric Boesch Gail Brauer Mark & Connie Buller June Cantor Martin & Sabra Bohlen Linda Braun Paula Burcham Ryan Cantrell have home infusions, and I drive to Judi Boissicat Priscilla Braun Bridgett A. Burchett Marcus Ray Cantu Fl Cancer Specialists to receive my Leah Boitano Cindy Bray William Burge Emmett H. Cantwell IVIG. It cost 35% more than home Peggy Bolchoz Shelly Brazelle Carla Burgess Caplan & Wong CPAs, LLP Jennifer Bold Kenneth Brazerol Diane Burgess Anthony Caporrino infusions. I had a 20/80 co-pay, which Donald & Sallie Bolich Colleen Brennan Casey Burke Jade Carbone was very expensive for one year. Also, Kenneth J. Bolich Martin & Brenda Brenner Francis Burke Juan Cardenas it is so much more convenient to be in Michelle Bolig Caitlin R. Brentzel Gary Burke Rosario Cardenas Lowell Bolken Janet Brentzel John Burke Sara Cardinale our own homes. Debbie Bolton William Bressette Lauren Burke Jennie Carlin Janette Bolton Dana Bressette Phyllis Burke Chelsey Carlson (This letter is in response to our newly launched Edd R. Bomar Jessica Brewer Larry Burkhalter Margaret Carlson advocacy action center. Letters like these William Boncosky Duane Brezinski David Burkhart Nicole Carlson support the Foundation’s advocacy agenda). Evelyn Bond Katherine Brick Eric Burkhart Ann Carmichael Find out more: www.gbs-cidp.org/advocacy Jodie Bongiorno Jacob Brickey Michael Burkitt Charles & Victoria Carnevale Lori Bongiorno Elaine Brief Carolyn Burlin Jodi Carney Beverly Bonitatibus James & Taryn Briggs Grayson Burlingame Carolina Orthotics Pat Bonner Brights Funds Foundation Jennifer Burnett & Prosthetics Katherine Carroll Robert Caspary Ryan Book Katie Brisson Joe Burnett Mary Carpenter Tom Carroll Stephanie Casper Robert Bookbinder Kathleen Brock Jeff & Laura Burnham Rachel Carpenter Robert Carstens William Cassady Evelyn Bookout Betty Brockman Rodney Burnsed Timothy Carpenter Barbara Carter Jules M. Cassel Martin Boone Alice Broderdorf Jodi Burnstein Asia Carraby Mary Carter Renee Castelluzzo Edward Bopp James M. Broderick Ellen Burr JT Carraway Michael Carter Georgia Castillo Marikay Boraca Debora Brodkorb Kirk Burris Carrillos Mexican Food Michael Cartwright Maria Cathcart Kirstin Bork Jeanne Brody Katherine Burroughs Suzanne Carrington Staci Caruso Daniel Cavallo Russell Borogove Zach Brody Laura Burrows Mauricio Carrion Joanne Casale Cecere Hunter Kathy Borrello Geraldine Brogan Thurmon Burson Reina Carrizales Patrick Casey Janice Cechony Anthony Borzillo Tess Brogan Daniel Burtman Greg Carroll Shari Casey Carol Ceci Eudy Bosley Dawn Brommer Dale Busacker James Carroll Brian Cash Heriberto Cerda

Annual Report 2018.2019 15 Report of Donors 2018-2019

Arturo Cervantes Connor Clinkscale Marc Costa Allison Dadouris Robin Depaul Michael Duears Samantha Cervantes Luey Clough Mary Costa Mary Daghir Jessica Derr Glenn Duerr Paula Cervoni Eric Clouser Nicholas Costa Carol Dagney Peggy A. Dervitz Jimmy Dulay Lisa Cestare Frank Club Terry Costa Donald Dahlin John Derwart Deanna Dunaway Glen & Karen Cestaro Coccetti McHale John Costello Charles Dahmer Andrew Desmann Amanda Duncan John & Delores Chagolla Arthur & Bernice Coccodrilli Jared & Meghan Cottom Pepper Daigler Christina Desmond Chris Duncan Bruce Chamberlin Jean Cochran Andrea Coulter Brian Dailey Linda Desmond Brittany Duncan Amanda Champion Kimberly Cody Elizabeth Coulter Stephanie Dale Detsky-Weil Nancy Duncan Charles Champion Gregory Coe Sara Coulter Michelle Daley Peggy Dettwiler Tallulah Dundas Michael Chan Kathy & Greg Coe Dean Coupe Marie Dallam Melissa Deusebio Dalene Dunkerley Carl & Carolyn Chandler Clara Coen Steven Covington Rebecca Dallam Marlene Deutsch Emalee Dunkle Stuart Chaney Janet Coen Chelsea Cowan John Dallam Frank Devito Brad Dunlap William Chaney Terry & Peggy Cogar David Cowan Bob Dalrymple Heidi Devlin Gabe Dunlap Yi-Mei Chang David Cohen Charlene Cowell Sarah Daly Brittany Dewberry Linda Dunlap Carol Chaplin Ethan Cohen Irene Cowell Sharon Daly Di Maio Becky Dunlop Connor Chapman Jonathan Cohen Susan & Charles Cowell Joe Damore Angeline Diamant Ralph Dunn Elizabeth Chappell Stefanie Cohen Bonnie Cowen Irvin M. Dana Joanne Diamond Randy & Marcia Dunn Robert & Barbara Chappell Christie Colaianni Donald Cox Moe Danaie Susan Diamond Susan Dunning Maryse Charbonneau Jack Colantonio James Cox Agatha Dancy Gerald Diaz Kari & Daniel Dupont Carrie Charest Rich & Michelle Colden Laura Cox Brad Daniel Lilo & Helen Diaz Frances Durbin Autumn Charleston Richard Colden Teresa Cox Gerald Daniel Anthony Dickerson Lea ann Duree Tonya Charleston Jacqueline Cole Richard Coyne Kelly Daniel George Dickey Mark Durham Gregory Chatfield Janelle & Patrick Cole Brenda Crafton Robert Dare DiCorleto Gibson Corrine Durisko Harsh Chaudhry Mark Cole Dennis Craig Danielle Darle Lisa Didun Barbara Dziuba John Cheatham Sara Cole Linda Crandall Brian Darrow Marilyn Dielmann Warren Eachus Sharon Cheatham Doreen Colella Jeff Crane Matthew Daugs Patricia Dieterle Eileen Eagan Jesse Cheatle Suzanne Coleman Mary Crawford Louise Davidson Kathleen Dillin Lynn Eagleson Carol Checkett Claire Colflesh Julianne Crawley Cathy Davies Thomas Dillingham Judy Earman Shan Chen Alysa Collins Donna & Randy Crawley Matthew Davies Beverly Dillman Kathleen Eastin Chen Pan Alyssa Collins Donald L. & Deborah Amy Davis Beverly Dillon Paul Easton Byron & Kristen Cheney Jennifer Collins L.P. Cress Bryan Davis Kathryn Dinneen Barbara Eastwood Brian Cheng Kimberly Collins Edwin Cridland Ethan Davis Margaret Mary Dinneen Jerry Eberlyn Susan Chew Tara Collins Linda Crocker Larry & Janet Davis Tamara Dinsmore Christopher & Anne Ebner Marjorie Chiavacci Karen J. Colton Janice Croff Patricia Davis Charles Dobis Amy Echeverri Shirley Chickering Angeline Comperda Karen Crofford Rhoda Davis Pam Dobos Eugenia Echeverri Rebecca Chidester Kay Condon Evelyn Crompton Richard M. Davis Mary Lou Dobrydnia Kimberly Echeverri Ramesh Chigurupati Amy Cong Kenneth Crompton Toby Davis Sharon Dodd Abbie Eckland Kendell Chin Beth Congelosi Charles Crone Katie Davis Michelle Doepke David & Lesly Eckstein Kathleen Chiolo Melissa Conger James Crone Martha Daws Daryl Doeschner Julie Economus Kris Chisholm Jason Conley Vicki Crone Robert & Joy Dawson Marsha Doggettte Diane Edgar Lindsey Chisholm Linda Conley Richard Cronk Jennifer Day Lisa Dolan Rhonda Edgell Lisa Chisholm Mara Connell Robert & Lori Crossley Tammira Day Mary Dolan Michele & Dave Edling Karen Chisnell Katie Connelly John Crotts Briana Daymont Valerie Dole Jeanie Edmonds Phyllis Chisolm Connelly, Jr. Martha Crotts Chris Daymont Barbara Dolnik Suzanne Edmonds Jean Chittenden Kathleen Connolly Kaleb Crouch Tom Daymont Tony Domenico Amanda Edmonson Michelle Chombok Sharon Connolly Khanh Mary Crouse Ruth De La Roz Jennifer Dominguez Dan Edwards James Chongling Timothy Connolly Ralph Croushore Richelle Deacon Donna Donaldson Delores Edwards Jerry Chorba Jacqueline Connor Peter Crowe David Dean Michael Donato Rosalind Edwards Catherine Christensen Gretchen Connors Kat Crowner Franklin & Peggy Dean Betty Donelson Susan Edwards Corkey Christensen Natalie Conover Christina Croxton Judith Dean Alison Donnally EFTrans Sheila Christensen Natalie Conovet Bob & Barbara Crozier Raymon Dean Beverly Donofrio Thomas Egan Diana Christian Sharon Conrad Robin Crum Deans Schaub Deborah Donofrio Erica Eggers Dane Christiansen Jim Consolo Billie Crumbaker Louis Dearden Dennis Dool Barb Ehrgott Mark Christianson Joanne Contratti Deborah Crumbley Betsy Dearing Patricia Dooley Carol Eiden Thomas Christo Contreras Jr La’Verne Crumpton Paul Debraccio Joseph Doran Lynn Eikenberry Allen Chu Chris Cook María Cruz Joan Decker Sonya Dore Kelly Eiker Deborah Ciani Joyce Cook Mark Cruz Lisa Decker Paul Dorn Marilynn Eiklor Anthony Cicali June Cook Pamela Cruz Dwayne Decuir Vernon Dorr Christie Ekman Christine & Carl Cieplinski Marjorie Cook Jonathan Cryer Craig Deeds Moira Dorst Linda Elam Maxin Cieri Edwin Cook Kenneth Cuculich Jay Deeds Donald Douglas Marcia Elkins Richard Cieri Diana Cooksey Brian Cuddy Stacy Deeds Merriel D. Douglas Sarah Ellerman Tom Cieslinski Margaret Cooley Joy Cuervo Ruth Deeg Miriam Douthit John Elligers Michael Cilfone Samual Cooper Jeremy Cugle Susan Deering Jen Dowe Paul Ellingwood Sue Clair Jeffrey Cooper Angie Culbertson Frank Deese Wayne Downer Annie Elliott Susan Clair Maria Cooper Angela Culbertson Lana Degelia Richard Downs Mary Elliott Sally Clair Paul Cooper Lawrence Culleton Lisbeth Degen William & Barbara Downs Heather Ellis John Clancy William Cooper Kim Culley Karl Dehmel Lesley Doyle Michael Ellis Renee Clanton Christopher Copeland Dorinda Culp Kim Deibel David A. Drachsler Thana Ellis Joanne Clapp Nelson Copeland Erin Culpepper Thomas Deierlein Eric Dreier Yael Ellis Frances Clark Norma Copes Brian Cummings Kathryn Deiss Kathleen Drew Stephan & Gail Ellspermann Karen Clark George Copp Paul Cummings Del Elorza James Drewes Stephen Ellspermann Robert Clark Margaret Copp Sara Cummings Jane Delaney Dianne Driever Sommer Elsenpeter Ronald Clark Joseph & Rhonda Corbin Ernest Cummins Janet Delaney Don Driscoll Ruth Elster Shirley Clark Elizabeth Corey Kevin Cunningham Judith Delaney John Driscoll Elizabeth Emerson Corinne Clarke Linda Corkery Stephan Curet Jutty Delaney Crystal Driver Cheri Emmons Clarke Tankersley Erik Corkery Donald Curran Chandon DeLaTorre Paul Drobbin Empire District Electric Co. Diana Clayton Robert Correia Donna Curran Marty Delehanty Brian Drouin William Emrick Eric Claytor Sean Correll Eleanor Curry Mary Delehanty Robert Drouin Alexandra Emsley Mark Cleary Holly Corrigan Richard Curry Dawnielle Delp Robert Drozd Barbara Emsley Kenneth Cleaver Julian Cortez William Curry Harvey Demanouske Larry Drummond Jeanne Eng Lindsey Clem Jeanne Corwin Angelena Cuteri John Dembeck Kim & Lawrence Dubiel David Engel Engel Nicole Clem Christopher Cosma Howard Cutler Marian Dennis Steven Dubinsky Eric & Amy England Emily E. Clements Casey Costa Marina Cutts Karin Dent Diana Dubler Bradley Englert Charles & Raye Clendening Christopher Costa D’Albini Sandhya Deo Donna Dublo Tracey Englert

16 GSB|CIDP Foundation International Report of Donors 2018-2019

Shane English Kevin Fernandez Bonnie Fowkes Michael Gambale Carolyn Goldfarb Vanessa Grieser Robert Engstrom Norys Fernandez Andrew Fox Kevin Gammons Joan Goldman Linda Griffin Maria Enrique Edward & Cynthia Fernando Ariana Fox Sujit Gangadharan R. Jane Goldman Mark Griffin Enrique-Smith Samuel Ferrar Joseph Fraim Elizabeth Gannon Goldman Gerot William Griffith Marsha L. Ensminger Fabio Ferrari Eric Fraint Russell Garber Leonard Goldstein Steven Griffiths Enterprise Freight Audrey Ferris Daniel & Joanne Fraley Sheryl Garber Russell Goldstein Frank Grim Systems Inc. Danielle Ferris Carolyn Francis Alice Garcia Steven Goldstein Caroline Grimes Sarah, Ryan & Caroline Marie Ferro Dulcy Francis Fracisco Garcia Sue Goldstein Mary Grindrod Eppehimer Robert Festa Max Francis Liliana Garcia George & Jackie Goldstone Joe Gritton Margaret Epplett Stachia Fey Nicholas Francis Timothy Garcia John Goldwood Eunice Gronseth Deborah Erchick Tom & Amy Fields Samantha Francis Gardner Jr. Golz-Rauser Kristin Groth ErcIn hick Mary Lou Fillippo Linda Francischetti Sonya Garfinkle Judith Gomez Jennifer Groves Heidi Erickson Laurie Findeisen Mati Franco Karin Gargiulo Lynn Gomez Fred Gruber Clete Ernster Kathleen Findlay Carolyn Frank Amy Garner Paula Gomez Guaranteed Rate Adele Erskine Melissa Fink Spencer Frank Archie Garnett Kevin Gonsoulin Alicia Guarnaccio Nicole Ertel Nancy Fink Kathy Frank Toni Garnhart Gonzales-Crespin Karen Guerrero Virginia Ertz Nancy Finley Pamela Franks Michele Garofalo Beatriz Gonzalez Kelly Guhr Benjamin Ervin Joan Fiorillo Joseph Franzoni Don Garrison Danielle Gonzalez Maureen Guilbault Kevin Ervin Kelly Firriolo Christi Frateschi Lori & Jeff Gartner Haritt Gonzalez Ludwin Guillen Sharon Eshelman Saul Fischer Fraudin Advanced Vivian Garza Nicole Gonzalez Sandra Guillermo Berdjouhi Esmerian Nancy Fish Chiropractic & Rehab Scott Gassett Jeffrey Goodman Natalie Guio Mary Espinosa Barbara Fisher Debra Frederick Bradley Gast Jerry Goodrich Retired Cheryl Gulish Tarina Esser Edward Fisher Jaci Frederick Jane Gast Cl., USMC Stephanie Gunderson Ellis & Susan Essig Martin Fisher Sheryl Frederick Gabriela Gastelum Lee Ann Gooseman Elizabeth Gunty Patricia Estep Wendy Fisher Charles Freed Gates Ventures Chester Gordon Eric Gustafson Antonia Estrada Marianne & Eric Fisher Sarina Freeman Barbara Gatti John Gordon Maureen Guth Marcello Estrada Arline Fishter Kathleen C. Freer Roland Gaudet Lynda Gordon Arturo Gutierrez Raymond Estrada Malcolm Fitzgerald Rae Frenette Mary L. Gaumer Marilyn Gordon Muriel Guttenplan Toni Estrada Michael Fitzpatrick Janice Frey Arthur Gause Stephan Gordy Melissa Gutzler Veronica Estrada Flagro USA Miles. S. Frey Arthur & Dee Gause Elizabeth Gorelik Elizabeth Guzman Richard & Constance Flash Merch LLC Kristen Fricke Celine Gavach Alan Goren Doreen Guzzone Etherton Andrew Flaster Bridget Friday Linda Gawthrop Christine Gorman Herman Haase Lex Evan Tiffany Flaten Friday Properties George Geister Ken Gorson, MD Gabriella Habel Carole Evangelist Ada & Rich Fleisher Management Gen. LLC Nancy Gosche Linda Habelt Elena Evangelista Elliot & Lori Fleishhacker John Friedfeld James Georges Ashley Gose Amanda Haberer Jane Evans Ginger Fleming Dirk Friedkin Caroline Gephart Sharon Gosney Tracy Hacker Madonna Evans Timothy Fleming Mary Ellen Friedlander Mark Gerber Irene Gosselin Steve Hackett Ross & Bonnie Evans Archibald Fletcher Jack Friedman George Gereg Joe & Glenda Gotshall Blake Hadfield Todd & Jaclyn Everts Chris Fletcher JoAnn Friedman Kim Gerner Karen Gottschall Katie Hagen Anousone Evonuk Melanie Fletcher Kenneth & Janet Friedman Tamara Geronaga Jonathan Gould Marj & Rog Hagen Reginald Exton Sara Fletcher Laura Friedman Nancy Gershman Gould Jr. Scott Hagen Kelly & Cory Eyink Jennifer Fling Marvin & Roberta Friedman Fred Gervasoni Justin Gourley Rachael Hagenberg Gustavo Ezcurra Timothy Flint Merrill Friedman Kathy Gerylo Karen Gowen Miriam Haggerty Patricia Fabel Antonio Flores Terryl Frieidrichs Geschickter Jr William & Ruth Grace Jim Hagihara Raymond Fabian Ilyssa Florio Newton Friese Julie Ghrist Graczak, Jr. Maisie Hahn Betty Fahey Susan Flowers Aaron Friesenborg Joseph Giamanco Dawn Grady Lynn Haid Albert Fair Christine Floyd Mark Fritz Opi Giandomenico David Graetzer Gretchen Haight John Fair James Floyd Janice Frizzell Virginia Gibbs Daniel Graf Amy Hain Fairchild Equipment Tammy Flusche Justin & Michaela Froseth Brian Gibson John Graham Warren Haislar Lisa Falcon Brendan & Rita Flynn Tina Frost Lorelei Gibson Linda Graham Marvin Halbert Ila Falvey Dawn Flynn Karen Frowein Matthew Gibu Shannon Graham David & Lisa Hale Cindy Fama Jennifer Flynn Karen Fruge Kyle Gier Clifford Graham David Haley Family Matters Paul Flynn Bob Fruit Jennie Gift Graham-Smith Afton Hall In-Home Care Nancy Fodero Robert Fuerstenau Jodie Gigliello Sharon Gramzow Carmen Hall Burton Farbstein Keith T. & Sheila A. Fogel Full Steam Ahead Geraldine Giglio Anita Grant Mae Anderson Hall Jennifer Angel Farley Paula M. Foley Leora Fuller Lois Gilbert John Gratton Michelle Hall DeAnn Farr Jack Foltz Patricia Fullerton Tracy Gilbert Joshua Graul Nancy J. Hall Liam Farrell Andrea Ford Oliver Funes David & Joan Gildehaus Jennifer L. Gravish Pauline Hall Nicholas Farrell Clarence Ford Ellen Funk Funk Janet Gilkeson Andrea Gray Steven Hall Patricia Farrell Jeanie Ford June Funkhouser Sarah Gill Carl Gray Lisa Hallier Joseph Faucette Tammie Ford Shirley Furino Cherish Gilliam Charles Gray Debra Hallock Debra Faulk Leslie Foren Karen Furler Michael Gillis Heather Gray Barb Halverson Peter & Susan Fazio Mindi Forgash Bob Furniss Richard Gingell Linda Gray Marion Halverson Alan Fazzari Ruthann Forgione Lauren Fusfeld Robert & Linda Gingras Melissa Gray Sara Halverson Jennifer Fazzone Dennis Forke Frances Gabay Lisa Ginn Mitzi Graybeal Rick Halvorson Vincent Feehan Becky Forkner Gabay-Laughnan Sidney Ginsberg Brian Graybow Miles Hamada Kristina Fehr Janet Forlini Patricia Gabel Jessica Girouard Pamela Grazio Mark Hamel Kathleen Feil John & Sherry Forney Nadia Gabriel Cindy & Candy Girth Marilyn Grech Naomi Hamer William Feldman Rick Forney Peter & Carla Gaewski Scott Gitlin Linda Greco Doris Hamill Doug Feller Christopher Fornino Sarah Gaff Michael Giuggio Carolyn Green Joanne Hamill Elaine Fellows Jessica Forrester Sylvia Gagnon Dale Glanzman Kevin Green Bridget Hamilton James Fels Kristi Fort Kathleen Gaillard Robert Glaser Robert & Gerry Green Diane Hamilton Shannon & Rob Feltwell Theresa Forte Kimberly A. Gajrajsingh Darlene Glaus Roger Green John Hammans Jo Ann Fenlon Caleb Fortwangler Diane Gala Scott Glieberman Wendy Green Susanne Hammes Peggy Ferenchak Amanda Foss Joe Galan Adele Glinke William Green Gretchen Hammond David L. Ferguson Cynthia Foss Bob Galanko Jennifer Glusman David Greenberg Jeffrey Hammond James & Rebekah Ferguson Kathy Fosse Brian Galbraith Stephan Gobel Stacey Greenway Margaret Hammond Penny Ferguson Carol Foster Ricardo Galinato Stephanie Godin Kerry Greenwood Marilyn Hammond Rebekah Ferguson Katherine Foster Drew Galinis Erin Goglia David Greer Willis Hammond Susan & Ward Ferguson Richard Foster Eleanor M. Gallagher Jeremy Gogos Lawrence Greer Elizabeth Hamner Linda Ferm Sandy Foukarakis Joanne Gallagher Carlota Golay Kay Gregg Paris & Tony Hancock Joseph Fernandes Foundation Source Timothy Gallegos James Goldberg Jan Greiff Anne Hancock Dan Fernandez Mary Ann Foures Tracy Galyan Kathy Goldberg Erica Greulich Helen Hancock Julie Fernandez Barbara Anne Fowkes Lindsey Gambaccini Jane S. Golden Rita Grider Talia Handler

Annual Report 2018.2019 17 Report of Donors 2018-2019

Kally Handlon Lauren Heilbrunn Tara Hoffmayer Rachel Hulse Anthony Haney Ann Heilman Ed & Carol Hogan David Humphrey David & Joan Hanisco Barbara Heimlich Laura Hogan Tammy Humphries Richard Hann Krista Hein Susan Hogan Joseph Humsey Harvey Hanna Stanley Heinroth Joy Hojnacki Amy Hunt Helen Hanna Janet Heinzen Christopher Holbrook Barb & Tom Hunt Hannaford Supermarket Taylor Helber D. Alexander Holiday Donald Hunt & Pharmacy #8353 Leonard Helbig Diane Holland Justin Hunt Eileen Hannigan Bryna Helfer Martin J. Holland Paul Hunt Gillian Hannon Melanie Helfrich Michael Hollandsworth Susan Hunt Amy & Patrick Hanrahan Marilyn Heller Rebecca Hollar Hamilton Hunter Judy Hansen Rebecca Heller Mark Hollern Tina Hunter Becky Hanson Patti Helling Jenell Hollett Russell Huntington Jennifer Hanson Frank Helm Corrie Holliday Richard A. Huppert Kim Hanson Helen Helms Paul Hollinger Linda Hurd Paul Hanson Essam Helmy Hollywood Wax Museum Helen Hurst Arthur Hanvey Fred Hembree Joshua Holm James Hurt Megan Harbach Brian Hennen Anna Holmes Rebeca Hurtado Elizabeth Harding Kathleen Henner Robert Holmes Thomas Huse JAMES K. Elivia Hardison Michael Hennessey Concordia Holscher Tim Huskey Donna Hardy Wes Henrikson Phyllis Holst Walter Hussey Maryland Ryan Hargraves Ashley Henry Barbara Holton Jeremiah Hust Lena Harhaj Camille Henry Billy Hood Donald Huston I was diagnosed with CIDP in 2015 Joyce Harmeyer Edmund Henry Charlene Hood Irene Huston Ted Harmeyer Ashley Hensley Marci Hopkins Adam Hutchison at the age of 70, a time of my life Ed & Nancy Harold Geoffrey Henson Patricia Hora George Hyde when I was still working full time as a Devin Harris William Henstock Mary A. Horan Carol Hymes pediatrician. Gradually, I had marked Melondie Harris Barbara Herbein Christian Horn Kimberley Hyndman Nelson Harris Colton Hergert Francis Horn Heladio Ibarguen difficult ambulating, became fatigued Brenda Harrison Melissa Hermanson Kathryn Horn Norman Iglarsh and had to give up my private practice Kathleen Harron Norman & Patricia Herms Matthew Horn Courtney Iler long before I planned. Jennifer Hart Jesse Hernandez Nicholas Horn Mary Immenhausen Dave Hartenbenger Kathleen Hernandez Mildred Horne Independent Order Pamela Hartmann Lucas Hernandez Mary Horney of Odd Fellows Originally, I received IVIG treatments Michael Hartshorn Misty Hernandez Kathleen Horochak Joyce Infante at home. A trained RN came to my Andrew Hartung Nellie Hernandez Dave Horstman Donna Infurchia Dean Hartwick Sara Hernández Teresa Horstman Kirsten & Jacky Insinga condo 2 days per month and provided CJ Hartwigsen Ketha Heron James Horstmann Susan Irby the necessary infusions. After a few Priscilla Hartzell Edward Hershberg Karen Horton Brian Isaacson months, Medicare informed me that Debra Harvey Nora Hertsted Ann Marie Hosey Marilyn Isacksen Linda Harvie Linda Herweck Carolann Hosey Rebecca Isch they would not cover the treatments Chris & Mark Harwell Melinda B. Hester Curtis Hoskins Sunny Israni and I would be responsible for the Birgitte Haselgrove Emily & Pam Heuman Grace Hougey Krista Isselmann entire cost of 400,000 dollars annually, Susan Haske Susanne Hibbert Mary Hougey Mary Iverson Paul Hassett Linda Hickethier Marlene Houle Annette Iwamoto so I had to stop infusions. About 6 Tere Hassett Judith Hicks Gordon Houser Christopher Izzo months after appeals, I was approved Amy Hastings Hieida-Hoehne Pam Houser Terrance & Rebecca to go to downtown Baltimore to Hop- Dawn Hatfield Eileen M. Hierdahl Tiffany Houser Jablonski Hatz’s Chris Hiester Neil & Jo Ann Hoven Tom & Christie Jablonski kins infusion center on 2 days every Sharyl Haugen Linda Higbee Carol Howard Jeffery Jabs 3 weeks and sit in a so called infusion Kelin Haulsee Lisa Higgs Craig Howard Patricia Jack chair for about 5 hours Including William Haun Nora Highlander Debbie Howard Claudia Jackson Suzanne Hauswald Gillian Higman Diana Howard Heather Jackson driving from the suburbs plus parking Julie Hawkins Bridget Hilal Dianna Howard Heather Jackson and walking about a mile to the center, Larry Hawkins Hilbert-Hess Joanne Howard Lorren Jackson this is about an 8 hour endeavor. Wesley Hawkins Delores Hildebrand John Howard Rena Jackson Jennifer Hawley Thomas Hildebrand Lois Howard William Jackson Joan Hawley Steve Hildebrand Annemarie Howe Louise Jackson My story is unique, but there are Cheryl Hawn Kristin Hilgart Christine Hoyer Jackson-Ridgeway thousands of other people with similar Ernest Hayden Charles Hilger Ramiro Hoyos Mary Jacob Stephan Haydock Ashley Hill Delina Hratchian Carolyn Jacobs stories and struggles, so I hope that Diane L. Hayes Getaldine Hill Kelly Hruby Judith Jacobs you will seriously consider becoming a James & Kimberly Hayes jason Hill Melissa Hubbard Susan Jacobson cosponsor of H.R. 2905. Timothy Hayes Amy Hill Jeanne Huber Cecelia Jacques Nancy Hazelbaker Mindy Hill Jeanne Huber Franklin Jaeger Hazelbaker III Christopher Hillmann Jim Huber Andrea Jahnle (This letter is in response to our newly launched Janice Hazelcorn Barbara Hillmer Megan M. Huberty Edward J. Janicki advocacy action center. Letters like these Head of Meadow Teresa Hiltner Judy Huck Mary Beth Jannotta support the Foundation’s advocacy agenda). Sunshine Fund Marina Himmelberger Douglas Hudson Brad Jans Find out more: www.gbs-cidp.org/advocacy Marypat Healey Shanda Hines Michael Huebschman Stephan & Cynthia Janssen Vern Hearn Robert Hintz Susan Huebschman Sandra Januzelli Tina Heath Hirschbach Jessica Huff Sharon Jarrell Erin Heaven Jay Hirschi Donna Huffman West, MD Sally Jarve Linda Jensen Mary Johnson Jarrod Heavner Tonja Hitzfield Paul Huggins Christine Jasonis Kenneth Jester Molly Johnson Kim Heavner Mark Ho Cheryl Hughes Susan Jasper Sue Jester Muriel Johnson Alisa Hecht Jolie Hockert Kirby Hughes Georgina Javor Michele Jobe Nancy Johnson Tamara Hedeen Ruth Hockum Melissa Hughes Andrew Jaz Amy Johnson Rebecca Johnson Christy Hedstrom Andrew Hodgdon Nancy Hughes Jean-Louis Ann Johnson Richard & Joyce Johnson Dean Heffelfinger Carin Hodge Rachel Hughes Dennis Jen Bart Johnson Rose Johnson Barbara Heft Fletcher Hodges Robert & Jean Hughes Ronald Jenkins Greg Johnson Shawana Johnson Lisa Hegarty Allison Hoffbauer Angela Hui Tamara Jenkins Jolene Johnson Sheilagh Johnson Mary Hegeman Beth Ellen Hoffman Alan Huie Heather Jennings Kathryn Johnson Sue-Ellen Johnson Veronica Heidler Deborah Hoffman Catherine Hulitt Karen Jennings Lisa Johnson Bryan Johnson Henry Heilbrunn Karen Hoffman Anthony Hulse Rita Jennings Mark Johnson Jane Johnson

18 GSB|CIDP Foundation International Report of Donors 2018-2019

Douglas Johnston Maura Kelly William Knight Pam Kurtz Lisa Lehberger Joseph Lofshult Jane Johnston Melissa Kelly D L Knisley Richard Kutzscher David Lehman Jennifer Logue Kelley Johnston Michael Kelly Marion Knisley Theodore Kvasnik Marlene Lehman Tom Lombardi Lucinda Johnston Pam Kelly William Knobloch Rikante Kveraga Paige Lehman Samuel Lombardo Marianne Johnston Kelly III Lynn knoepfler Riki & Kestas Kveraga Tim Lehman Rita Lomonaco Chandra Jones Joyce Kelm Susan Knopik Peter Kyriacou Joy Leistritz Diane London Jerry Jones Han Kem Craig L. Knuckles L’Insalata Megan Leitch Myra Long Joan Jones Adam Kempenaar Eldred Knutson Joan Labbe Barry Leitman Sherry Long John Jones Katherine Kendal Gayle Knutson Lymarie Laboy Michael Lemoncelli Jean Longin Karen Jones Stephan Kendall Donna Koch John Lacy David Lengvarsky Jean Longo Marcus Jones Delbert Kennedy Frank Koch Jerry & Barbara Ladd Mark Lengvarsky Dale Lonsford Nicole Jones Stephanie Kennedy John & Nichole Koch Jerry Ladd Melissa Lenhart Steven Lopatin Roger & Donna Jones Gregory T Kennedy Maryann Koch Charles Ladner Gerry Lentsch Diana Lopez Shirley Jones Catherine A. Kennedy Susan Kocik Ida Ladner Rita Lentz Raymond Lopez Takeisha Jones Joseph Kennedy Lori Koehler Alexander Laetsch George Leon Irene Loria Tammy Jones Matthew Kennedy Lisa Koelewyn Lafferty Pugh Laura Leseberg Lisa Lorta Theresa A. Jones Tracey Kennedy Elizabeth Koelker Dianna Laffey Sheryl Lesmeister Betty Lorusso Kara Joniec William Kennedy Russell Koeman Kathleen Laffin Kevin Lettau Barbara Lotman Maria Jordan Benjamin Kenney Katie Koenig John Lai Cheree & Jerry Leugers Margaret Loughlin David Jourden Miranda Kenney Lindsey Koepke Terrence Lai James Leugers Faye Loughridge Anita Joy Robert & Kathleen Kenney Jerome H. Koering Chrissy Lake Jerome Leugers Selina Lovato Leslie Jucovics Carol Kenny Laurel Koerner John Lake John & Shelly Leugers Elizabeth Love Carolyn Jukich Daniel Kenny David Kofoed Mimi Lakind Justin Leung Howard & Sharon Love Romas Juodvalkis Ronda Kent Malinda Kogerma Catherine Lamb Leung-Fogderude Linda Loveridge K & P Precast Inc. David Kercheval Audrey Kohn Gail Lamb Krista Leuzzi Christine Lowery Kevin Kabell Kea Kercheval Lisa Kohn Ken Lambe Sara Leuzzi Paul Lowman Diane Kaczmarek Joseph Kerlegon Aurelia Kolar Charles L. Lambert Christine Levesque John Lowry Robert Kadar Cindy Kerschner Gerree Kolar Rose Lambros Barry Levit Peter Lowry Emily Kadue Candace Ketelsleger Joseph M. Kolar Shaune Lameier Ruth Levtov Raymond Lozanes Wayne Kafka Follin Key George Kollinzas Jill Lamer David Levy Kevin Lu Esther Kahan KeyPoint Construction LLC Jen Kompelien Heather Lancor Bernice Lewis Patricia Lubeach Shirley Kahn Ruth Khan Linda Kondek Cindy Landers Harry Lewis Dawn Luce Kaiser Permanente Sal Khan Kerry Konefal Joseph & Audrey Landi Heidi Lewis Sherry Luce Leah Kaminski Minou Khazan Andreas Konstantinou Lavonne Landsverk Megan Lewis Dan Lucey Phoebe Kang Heema Khedr Elizabeth Kopec Earle Lane Richard Lewis Heather Luciani Maria Kannankutty Patricia Kidwell Caryn Kopp Jarvis Lane Shannon Lewis James Luciano Albert Kanosky Brad Kieley Seth Kornfeld Claire Lang Stephanie Lewis Cindy Luckner Dorothy Kanosky Mel Kienemamn Greta Kortemeier Miriam Lappen Tina Lewis Kathleen Ludwigson John Kantzer Nancy Kilbane Carol Lee Koski, MD PhD Patricia Lappert Donna Leyland Bradley Luetkenhaus Craig Kapisak Marian Kile Justin Kosloff Michaelann Large Christina Liberatore Mckenzie Lund Karen Kaplan Patti Kile Frank Kosman David Larlick Andrew Lichtman John Lundmark Susan & Mitchell Kaplan Penny Kiliany Madhu & Vijendra Kothari Matthew LaRocco Kim Lieberman Bibi Lundquist Sharon & Joel Karam Mary Kimball Julia Koths Nathan Larose David Liebhauser Julie Lupo Sonia Karam Beth Kimberly Kay Kotzelnick Alan Larsen Danielle Liebl Wendell Lupton Agnes Karas Anastasia N. Kimbler Madeline Kowal Derek Larsen Terri Lien Georgine Lusk Karen Toffler Heath Kimmel Karen Koza James Larsen Dionne Liff Susan Luttrell Charitable Trust Chuck Kimple Susan Kozdon Heather Larson Rebecca Liftman Anne Lycan Karen Kasel Janet Kincheloe Hersh Kozlov Jaimie Larson Claudia Lilley James Lynch Rita Kashner Stephanie Kind Carolyn Kraft Lauren Larson Katherine Lilley John Lynch Ronald Kass David King Jennifer Kraft Michael Larson Dorothy Lillie Kiera Lynch Marie Kassai Kelley King Brian Kraiss Nikki Larson John Limpert Teresa Lynd Stephan & Cynthia Kates Kirsten King Karen Kramer Robert & Heidi Larson Bonnie Lind Anne Lynde Marty Katz Patrick King Tamie kranis Kim Lasio Jay Lindauer John Lynes Mary Katz Ronald & Linda King Roy Krasik Appolos Laurore Joan B. Lindell Elizabeth Lynn Stacy Katz Shirley King Denise Kraus Cara Lavrinc Philip Lindenberger Lyon Jr. Jeffery Katz Stacey King Amy Krause Margie Law Theresa Lindley Dale Lyons Nan & Joshua Kaufman King-Sauer Robert Kravetz LaVerne Lawler Nicole Lindsay Wanda Lyons Sheree Kaufman Margaret Kinnare Anthony & Margaret Marian Lawless Norman Lindsay Mary E. Maben Paul Kaump Heather Kinnee Krawczyk Diane L. Lawman Stephen Lineman Andrea Macheel James Kaump Philip Kinnicutt George Krayenhagen Claire Lawrence Teresa Link Robert Machi Megan Kaump Margaret Kirch Nick Krebs Lu Lawrence Stephen Linker Macias Alatorre Paul Kaump Kara Kirk Valerie Kreger Donna Lawrimore Stephanie Linnane Patricia Mackenzie Linda Kayata Kelsay Kirk Thomas Kreider Lawrimore Construction Inc. Brian & Kathleen Linnell Jennifer Mackey Benjamin Kazas Lawrence & Ann Kirk Maryanna & Perry kreidman Charlotte Lawson Camille Linsalata Marie Mackrell Matthew Keane Susan Kirk Michael Kreidman Celia Lawson Kathy Linthicum Merrilyn Macurak Lori Kearns Jackson Kirkendall Tracy & Scott Krein Jessica Lazarus Thomas Linzell Richard Macurak Paula & Tom Kearns Kim Kirkevold Tracy Krein George Leach Marc Lion Shirley Madden Tom Kearns Michael Kirn Kreinik Family Fund James Leach Michelle Lipinski Michael Maddox Ryan Keefer Sarah Kirtcheff Alan Kreisbuch Sandy Leach Valerie Lipowski Steve Madigan Thomas & Beverly Keel Dolores Klaesner Ronald Kremnitzer Leach Jr. Morton Lippman Eileen Madison Kenneth Keeney Joshua Klaetsch John Krieger Rhonda Leahy Benjamin Lipson Ramiro Madrigal Dave Keeton Brittney Klaffky Ken Kromroy Benilde Leal Kenneth Lit Krista Magdy Frederick Keith Jason Klaskin Karen Kronick Leticia Leal Kenneth Little Marilyn Maggioncalda James Kelleher James Kleeman Mark Kruppa Lori Leblanc Roger Litwiller John Magner Mike Kelleher Gail Klein Myron Kuchark Robin Leckie Charlotte Litwin Janet Magnus Regina Keller Keller Lana & Robert Klein Jen Kudrick Derek Lee Gwendolyn Liu James Mahon Vincent & Michele Kelley Paul Klein David Kuhlman Elizabeth Lee Scott Llewellyn Lorraine Mahoney Adrienne Kelley Robert Kleinknecht Joelina Kuhn Frank Lee Lloyd Jr. Nancy Mahoney Barbara & Bill Kelley Gary Kleist Maria Kuhns Hannah Lee Bernice Lock Ruhamah Mail Robert Kelley Gayle Kmetovicz Virginia Kuhns Jane Lee Kenneth & Renee Lock Michele Makhlouf Colleen Kelley Wanda Knapik Kelsey Kujawa Lisa Lee Pamela Lock Dale & Monica Maki Beatrice Kelly Kari Knapp Lorrine Kuriger Scott Lee Deanna Lock Paul Maki Doreen Kelly Kay Knapp Jane Kuriki Thomas J. & Nora P. Lee Nicole Lockhart Evi Makovsky Elaine Kelly Susan M. Knapp Sarah Kurpel Valerie Lee Lois Loevner Audrey Malaer Jack S. Kelly Earl W. & Ellen P. Knight John Kurtz Lee-Thorp Joseph Loffredo Lauren Malazita

Annual Report 2018.2019 19 Report of Donors 2018-2019

Irene Maleckyj Walter & Lorraine Matechak Jessica Meyer Kathi Monteith Brian Mykietka Susan Nye Sheila Maleson Ronald & Darletta Mathias Meredith Meyer Pamela Montellano Lindsay Mykietka O’Keefe Linda L. Maletta Kathleen Matonich Paul Meyer Veronica Montemayor Myles Reinecke Greta Obereiner Nancy Mallard Kirsti Mattaini Todd Meyer Kristy Montgomery LaDonna Nadir Jenna Oberlander Robert Maller Joe Mattena Diane Meyers Ron & Barbara Montgomery Kristen Nafziger Jeffrey Oberlies Nicole Malley Brian Matteo Sherry Meyers Allen Monti Rose Nagao O’Brien Jr. Vincent & Janet Mallon Karen Matteuzzi Patricia A. Michael Joanne Montie Marsha Nagorsky Marjorie J. Obrist Deborah Malone Keith Matthews Mary-Elizabeth Michaels Charlotte Moody Jeannann Nagy Rosa Ochoa Mona Malone Lisa Matthews Chad Michaelson Larry Moody Ryle Naidu Todd J. Ochsner John Maloney Macy Matthews Gina Michaud Ashley Moore Jeffrey Nanstad Timothy OConnell Shannon Maloney Michael Mattia Mattia Helen Mickelson Dorothy Moore Vanessa P. Napoleon Steve Odom Thomas Maloney Mary Matzkin Mary Midghall Edward Moore Darlene Nasky Mike ODonnell Jacalyn S. Maly Lois Mauermann Lorens Midtgaard Gail Moore Donald Nathan Donn Ogilvie Rosemary Mancinelli Ernesto Mautner John Migdhall Megan Moore Ruth Nathanson Katherine M. Ogletree Anku Mancini Willy Mautner Jane Mighton Phyllis moore Diane Nather Kariane OKeefe Kerry Manfredi Maverick Poker Tournament Randy & Marian Miksch Leonard & Terry Moore National Estate Services LLP Susan Olaharski Patrick & Mary Lauren Maxam John Mikulich Thomas Moore National Grid Beth Oliva Anne Mangan Mike Maxon Tim Milbeck Moran Olsen Susan Nativi Ralph Oliva Barbara Mangrum Ruth Maxson Dana Mildebrath Barbara Moreadith Deborah Navarro Vincent Oliva Lisa Mann Leone Maxwell Shimika Miles Tony Moreira Craig Naylor Antoinette Oliver Peter Mann James May Deborah Milesky Victor Moreira Kristi Neal Cynthia Oliver Ellen Manney Charles Mayberry Michael Milkovich Shelly Morell Turner Neal Lucy Oliver Cindy Manning David Mayer Beverly Millar Ivy Moresco Pearl Nealis John Olivera Roxanne Manning J. R. Mayer Millar II Adam Morgan Laverne Nealy Larry Olmsted Philip Manning Management, Inc. Alissa Miller David Morgan Joelie Nebel Joseph Olney Jaclyn Manthe Lydia Mayernik Anne Miller Mark Morgan Ramsen Neesan Kimberly Olsen Mary Manthey MaryLou Mayernik Carol Miller Stephanie Morgan Paul & Judity Neeve Vanessa Olsen Megan Mapes Matthew Mayhew Janet Miller Morgan-Holmes Rhoda Neft MaryLynn Olshewsky Robery Marcy William & Margaret Maynard Jeff Miller Frank Morgano Amy Nelson Grace Olson Barbara Marder Adina Mayo Joseph Miller John Morley Andrew Nelson Jennifer Olson Kathleen Marian James Mayo Joshua Miller Anthony Morrell Dawn Nelson Tim Olson Anthony Mariello Kathryn Mcilveen Karen Miller Ben & Mary Morris Jill Nelson Nancy Olszewski Linda Mariello Karen Mcilwain Kristin Miller Caroline Morris Jessica Nemec Stuart Olszewski Mariello-Baiada Patrick Mcintyre Madeline Miller Jerri Morris Frank Nenna David Olvera Cobe Marine McKey-Reese Phillip Miller JoEllen Morris Melissa Nenna Sharon OMalley Patricia Marino McLaughlin Pedler Barbara Miller John Morris David Nesbit Daniel ONeill Claire Marione Liz McNamer Miller Phelps Caroline Morrison Janet Nesbitt Sarh Opel Nathan Mark LaRue Mead Lisa Milligan Dennis Morrison Daniel Nestel Teresa Orandello Bettina Marks Tammy Meagher Ruth Mills Kristen Morrison Robert Netsch Milton Orenstein Irving Marks Fred Means Mariaelena Millsaps Cara Morrow Beverly Neuenfeld Stephanie Orfanidis Claire Marlin Medicine Shoppe Pharmacy Julie Minerva Jen Morton James W. Neumeister Kristina Orlandi Cindy Marra Belen Medina Diane Mini David Moscow Michael Neville Nick Orofino Mary Marrow Ron Medrano Minneapolis Foundation Pamela Moses Neville Jr Terri Oropeza Chris Mars Evie Meeker Deanne Minor Sue Moshier Megan New William Orosco Nancy Marschel Joan Meginniss Kevin Minor Cheryl Moshiri New Visions for Public Patricia Orsini Ashley Marshall Emily Meier Allen Minton Howard Mosley Schools Inc. Michael Ortega Frieda Marshall Kristin Meikle Nancy Minton Edward Moss Matthew Newcomb Rebecca Ortego Heather Marshall Nanine Meiklejohn Richard Minton Carol Mott William Newman Michael Ortinau Kenneth Marshall Roberta Mejias Howard Mirchin Megan Mouas Hinal Neygandhi Louie Ortiz Brenda Martensen Jo-Ann Melchert Jo Ellen Misakian Betty Mousel Lucille Ng Danielle Osborne Kristy Marthedal Anthony Melisi David Mitchell Tricia Moye Ai Loan Nguyen Kathy Osborne Lois Martillo Dana Melisi Emily Mitchell Michele Moynihan Allan Nguyen David Oser Bill & Lydia Martin Maria Melisi Gary Mitchell Pamela Mroz Brian Nguyen Diane Osgerchian Burla B. Martin Barbara Melkus Gregg Mitchell Suada Muarem Emily Nguyen Olga Osgerchian Charles Martin Joe Mellet Karen Mitchell Helga Mueller Jaime Nicasio Sarah Osgerchian John & Linda Martin Emily Mello Mary Mitchell Karen Mueller Jeff Nicholas Ryan Osgood Joseph Martin Linda Mello Ruby Mitchum Tom Mueller Joseph Nichols Judy OSHEA Mary Martin Diane Mellow Victor Mitcov Virginia Mueller Beth Nicholson Elizabeth Osmun Michael Martin Kathryn Melniczuk Angie Mizeur Ruth Mueller Kathryn Nicholson Silke Osterhus Phil Martin Valentia Menard Carol Mizeur Maria Mullane Brian Nido Ryan Osugi Abril Martinez Cory Mendes Kelsey Mizeur Jennifer Mullen George Niederehe Christine Oswald Hernan Martinez Madeline Mendoza Linda Mizeur Kathleen Mullen John Nielson Michele Ouellette Lawrence Martinez Richard Mendoza Tom Mizeur Eric Muller Jeffrey Nigh Nicholas Ouellette Maria Martinez Candace Meneely Carroll Mobley Patrick Mulligan Gail Niglio Patricia Ouellette Miriam Martinez Catherine Menichini Patricia D. Mobley Eileen Mulloy Sharon Nilles Mark Overholtzer Segundo Martinez Kim Menke Michael Mocek Alexander Mundel Beatrice Nilsen Linda Overman Harold Marting Carol Mensching Elizabeth Mockapetris Laura Mundy Suzanne & Selwyn Nimaroff Russell Owen Victoria Martini Janet Mercer Elizabeth Moede Maria Munoz Frank Ninivaggi S.K. Owen Audrey Martorana Abigail Merchant G. Moeller Margarita Muratore Jaime Nivala Robert Owens Bridget Marturano Lynn Merel Gary Moeykens Juan Luis Murillo Jonathan Nixon William Owens Joseph Marturano David Merkel Jane Moffet Andrea Murphy Peter Nizwantowski Charles Pace Paul Marturano Brendan Merrell Lisa Moffett Gina Murphy Sheila Noake Melissa Pace Peter Marturano Annie Merritt Shannon Moffett Mentor Murphy Sandra L. Nogosek Pace Family Foundation Thomas Marturano Danielle Merritt Dennis Mohler Patrick Murphy Jan Nolan Susan Pacilio Kyle Marvin Bernard Merten Suzanne Molczan Shawn Murphy Joyce Norgard Joel Packer Zachary Marvin James Mertz Felix Molina Timothy Murphy Rachel Northcutt Geraldine Padgett Eric Marx Thomas Mesich Ellen Momeyer Walter Murphy Northwell Health Joe Paez Rob Mascaro Christopher Mesnooh Patti & Mark Monaco Helen E. Murray Jibriel Noun Dennis & Barb Pageler Colleen Maschal Jeff Messenbrink Kathryn Monahan Kaitlyn Murray RIchard Novak Virginia Paige Sue Masengale Piriya Metcalfe Kara Monahon Patricia Musto Susan Novotney Sterling Painton John Masi Rita Metro Mario Monasterio Anna Muti Huy Nquyen Donna Palaganas Patricia Mason Sue Mettee Scott Moncino Katrina Muti Skylar Nunes Jim Palazzo Andrea Massari Tom Metzler Diana Mondo Gerald Mutuski Roberta Nunn Alexandra Palermo Karlene Masters Denise Mewman Robert W. Mongillo Barbara Myers Gerald Nyari Carolyn Palmer Joy S. Masterson Benjamin Meyer Janet Montasterio Kerryl Myers Norman Nye Emilee Palmer

20 GSB|CIDP Foundation International Report of Donors 2018-2019

Larry Pasker Linda L. Phillips Matthew Pregmon Sarah Rearick Angele Passe Vicky Phillips John Prell Reason2Race LLC Ben Pastcan Beth Phipps James Preskill Cheryl Reaves Martha & Richard Pastcan Anthony Pica Richard Preskill Nick Rebholz Alpita Patel Rachel Pickar Barry Press Kathleen Rebisz Karan Patel Todd Pickering Doris Y Preziosi Darwin Recentes Shannon Patelczyk Megan Pickett Mary Jane Preziosi Jeremy Rechtshaid Nancy Patella Shannon & Michelle Pieper Billy Price Natalie Redelsperger Frank Patille Dorothy Pierce David Price Paul Redemann Lisa Patriarca Anne Piervincenzi Molly Price Diane Redmond Chase Patterson Ronnie Pigg Shedrick Price Peter Redshaw Eileen Patterson Thomas Pike Price Abstract Company Amber Reed Kirk Paul Jillayne Pinchuk Virginia Priest Elizabeth Reed Carol Paulsen Marcia Pincus John Prim Judith Reed Karen Pavlakis Robert Pinkel Donna Prince Alexis Reeder Ronald Pawasarat Carole Pinto Thomas & Barbara Prindiville Thomas Rees William Pawlak Matthew Pinto Donald Priour, M.D. Betsy Reese Todd Pawlowicz Robert Piorkowski Teresa Procida Phyllis Reese PATRICIA M. Linda Payne Barbara Piquet Ann Proctor Nancy Reeves Benjamin Payne Brenda Pisani Karla Proksch Elizabeth Register Massachusetts Eric Paz Ragga Pischieri Janice Propert Paul Rehder Sue Paz Nancy Pitcherella Jill Prosdocimo Anne Reich I was diagnosed with CIDP in 2013 PDK Wood Designs Mary A. Pittarelli Drita Protopapa Jasmine Reicherz Margaret Peake Elizabeth Pitts Carl Provenzale Jillian Reicherz at the age of 59, a time of my life Margaret Pearce Pittsburgh Pirates Mark Prull Kim Reichgott when I was one year into my new Sharon Pearce Alumni Assoc Cynthia Przybycien David Reidinger profession managing my vacation Lorraine Pearlman Steve Pitula Marlene Przybycien Thomas Reiland Barbara Peckinpaugh Michelle Piwonski Harold Ptacek Delana Reilly rental property. I was misdiagnosed Adria Pecora Jane Plass Anthony Pucci Janet Reilly for 2 years when symptoms became Maureen Pecoraro PlatformQ Health Daniella Puccini Michael Reilly more acute leading to a 7-month Melissa Pecoraro Pledgeling Jane Puchir Michelle Reilly Kathleen Pedano Shari Plevinsky Carrie Pulley James Reinarz process to a confirmed diagnosis of Tiffany Pedersen Elizabeth Plewes Linda Pulver Helen Reineking CIDP. I turned 65 in February and Julia Peeler Richard Plimmer Edie Purcell Nancy Reiner now have infusions at a hospital where Alexa Pelescak Janet M. Plonka Kiran Purohit Debbie Reiser Pelleschi-Levy Lars Pluss Madhukar Purohit David Reisig there are 10 different nurses who know Paul Pelletier Darline Pluto Shari Pursell Sandra Reitan nothing about me, my disease or Jackson Pemberton Austin Poe Kelly Pustizzi Cindie J. Reiter even my particular medication. Prior Krysta Pemberton Ronald Poedtke Robert Putman Paul Reitman Angelica Pena Debra Poggio Paul & Miriam Quale Zen Remondelli to February I was home infused for 5 Vicki Pendergast Melvin & Deb Pohlman Kenneth Quaranto Colleen Rennie years by the same nurse who was one Barbara Penn Monice Poirot Ryan Quarles Elizabeth L. Repinski of my advocates and critical member John Pennucci Ann Pokel Jeff Quick Anthony Restaino Michelle Pepe Roberta Polanco Steve Quick Sandra Restino of my Team. Mary Pepper Scott Polifka Beth Quigley Margaret Rettke Jessica Perazzelli Jonathan Poling Alice Quince Patricia Revellese When the IVIG wears off (2 1/2 Chew Sian Pereira Bob & Jenny Polis Kristen Quindlen William Revels Elva Pereschica Richard Polster Quinn Company Virginia Reyer weeks) I am at risk for falling (I’ve had Jesus Perez Brenda Pommerenke Rosemary Rabbitt Raymond Reyes 2 bad falls in 6 months) yet this is the Terese Perez Kathleen Popchak Esther Rabenstein Eun Rhee exact time I am now required to leave Sarah Periard John Pope Anjie Raber Brent Rhines Gina Perino Maxim Porges Peggy Raber Linda Rhude my home, have someone take me to George Perkins Rose Porges Barbara Rabinowitz Cynthia Rial the hospital, infuse for 5 hours then Kayrin Perkins Sacha Porges Omer Racine Walter Ricciardi have someone take me home. This Nancy Perlow Vince Porpora Linda Radaker Charles Rice Brendan Perreault Sara Porras John Radcliff Kristina Rice is the time I should be in my home Tammy Perri Port Freeport Iris Radom Lindsay Rice getting infusions just like I did for 5 Jill & Christopher Perrigo Ana Lucia Porter Judy Radtke Shari Rice years prior to turning 65! David Perrotti Jody Porter Ivy Raffe Mr. & Mrs. Roy Richards Dallas Perry Jud Porter Juliette Raffensperger Darlene & Donnie Roberta Perry Nancy Porter Rhonda & Lawrence Ragent Richardson (This letter is in response to our newly launched Roy D Perry Ted Portillos Cynthia Rahman Rebecca Richardson advocacy action center. Letters like these Weslee Perry Lauren Posey Michael Raichelson Bernard & Mary Ridgell support the Foundation’s advocacy agenda). Peter Perugini Mary Postler Margaret Raiche’s Tiffany Ridgeway Find out more: www.gbs-cidp.org/advocacy Karen Pestritto Kathleen Posus Diana Rainsberry Riedman-Dangler Jefferson Pestronk Norlyn Poto Jay Rajaratnam Carla Ries Lori Peters Margo Potrzeba Maryann Rakowski Cynthia Rietscha Malena Petersen Jeanette Potter Jana Ralsten Carolyn Rifkin Thomas Petersen Joann M. Potter Sharon Ramberg Susan Rigby Newton Palmer Steven Pappas Edward Peterson Joann Potter Elizabeth Ramirez Ava Riggan Jim Palmere Cherie Paquin Sabel Peterson John Potter Frances Ramos Ruth Riggan Nancy Palmere Dorothy Paquin Tyler Peterson Ruth Potter Laura Ramos Hazel Riggs Palmetto Infusion Mary Ellen Paravalos Kurt Peterson Jo Powell Luciano & Rebecca Ramos Nancy Riker William Palmisciano Nancy Parella Andrew Peterson Lisa Powell Isabella Rampello Ruth B Rimmer Kristen Palombi Anup Parikh Michael Petite Michael Powell Betty Rampey Sirena Rincon Cristina & John Palumbo Elizabeth Parker Suzanne Petrina Nancy Powell Rodney Randall Robert Rintz Chandni Panchal Karen Parker Harold W. & Jane Petry David Power Kenneth Ransby Richard Rinzler Rich Pancoast Kristine Parker Shawn Peyton Erin Power Chitharanjan Rao Ruth Rios Angie Paniagua Niki Parker Jim Pfaendtner Leif Powers Lydia Ratcliffe Nancy Ripka Mary Paniagua Jeanette Parsons Jacob Pfeiffer PPTA Edwina Rauser Elizabeth Risk Bill Pannier Brenna Partain Thomas Pfenning Jennifer Pratt Daniel Ravinski Alex Risser Heather Papini Charlene Parungao Wendy Phelps Louis Pratt Barbara Rawlings Sharon Ritchie Matthew Pappas David Pascucci Carly Philbin Lynn Pratt Lynette Raymo Riteway Properties Inc. Paula Pappas Jeffrey Paskar Elizabeth Phillips Sharon Pratt Page Rayner Gerald Ritter Kellie Phillips Leia Prause RDO Equipment Co. Michele Rittwage

Annual Report 2018.2019 21 Report of Donors 2018-2019

Dr. Ilia Rivera Susan Ross Bill Schrage Ailsa Shepherd Gladys Rivera Timothy Ross Stephen Schram Lois Shepherd Jasmine Rivera Markus Rossmeisl Dawn Schramel Jennifer Shephew Julio Rivera John Rosso Marc Schrier Alan A. & Joy L. Sherman Robert Rivera Laura Rotelli Lori Schroeder DanaWyn Sherman Jessie Rivers Charles Roth Joyce Schueller Theresa Sherman Kim Rizzardi Dara Roth David Schuerholz Victor Sheronas Lauren Rizzo Mark Roth Samantha Schuh Julie Shervey Patricia Rizzo Roland Roth Susan Schuler Melissa Sherwood Peggy Rizzo Vivian Rothschild Scott & Jennifer Schulman Larry Shields Richard Roadarmel Maryln Rothstein Dale Schultz David Shinder Maria Roaldi Kali Rowe Elizabeth Schultz Dennis & Mary Lynn Shinko Joya Robb Janice Rowley Jean Schultz Tracy N. Shinko Bill Robbins Samantha Royal L. E. Schultz Nicole Shinski Allison Roberman Jody Rubel Linda J. & Harry D III Schultz Donna Shirley Wendy Roberman Aaron Rubin Jeff Schumaker Basil Shorb Sharyn Robert Phillip Rubin Rachel Schupack Cassondra Showels Robert L. & Betsy B. Daniel Rude William Schuping Shauna Shows Sorbonne Charitable Janice Ruder NANCY Henry Schussler Marc & Nancy Shrier Remainder Unitrust Janice Ruder Norma Schussler Marci Sibonga Constance Roberts Denise Rudolph Di SALVO Michael Schuster Edna Sickler Donald & Karma Roberts Heyward Ruff Susan Schutz Joseph Sicuro Kimberley Roberts Judy Ruffino Please join us in welcoming Nancy LynnMarie Schwann Peter Siegel Susan Roberts Clifford Ruland JoJo Schwartz Phyllis Siegel Barbara Robertson Helen Rummelsburg Di Salvo to the GBS|CIDP Foundation Sara Schwartz Sy Siegel Mark Robichek Lorraine Rumore International Board of Directors! A Schweikert Schnjupp Carol Sieger Adele Robinson Jerrry Rundell tireless international volunteer for the Liz Schweizer Sharon Sielaff Bonnie Robinson Drew Runestrand Donna Schwendiman Ron Sieling George Robinson Steven & Vicki Runnion GBS|CIDP community since 2013, Christina Schwengel Sienicki-Jackson Susan Robinson Jayden Runyon Nancy has educated and supported Julie Scialdone Scott Sievers Colleen Robson Jo Rupp numerous patients worldwide. Most Bill Scorah Kimberly Sigley Robert Rocheleau Constance A. & Albert Alicia Scott Sik Kim Carol Rochelle Rupprecht recently Nancy held the very first David Scott Patricia Sikora Judith Rock Connie Rupprecht chapter meeting in Italy, with over 50 Edward Scott Christie Silbajoris Caro Rock Kaye Rush attendees. Nancy brings a keen sense Mark Scott Robert Silver Edward Rockey Brandon Rushing Randy Scott Bonnie & Michael Silverberg Cameron Rodas Corinne Russ of cultural differences, combined with a Robert Scott Jeffrey Silverman Johnny Rodriguez Richard Russ friendly, hospitable and compassionate Joseph Scrocca Michael Silverman Rodrigo Rodriguez Charles Russell nature. We look forward to working Edward Scull Robert Silverman Rosa Rodriguez Erik Russell Katherine Seamans Shoshana Silverman Carmen Roeder Glenn Russell with Nancy on continuing the mission Samuel & Helen Sebastianelli Susan Simmons Sharon Roesler Gretchen Russell of the Foundation and serving the John & Mary Jo Secretan Susan Simonette Dian Rogers Janice Russell Patricia Seebergh Elaine Simonson Donald Rogers Jessica Russell GBS|CIDP community. Jacqueline Seeloff Janet Sims Evelyn C. Rogers Ruth Ann Russell Harvey Segal Kristina Singh Evelyn Rogers Russell-Belz Kathryn Selden Eileen Singleton Heather Rogers Joseph Russo Blair Sell William Sions Kathryn Rogers Alison Ruth James Sellers Aaron Sira Lynn Rogers Susan Ruth San Joaquin Valley Phaon Schappell Diane Seltzer Molly Sira Mary Ann Rogers Doris Ryan Rehab Hospital Patricia Schardt Paul Sembrat Sira Jr. Brandon Rogers Kelly Ryan Carlos Sanchez Joachim Scharf Tulay Sencar Amy Sirota Roberta Rogowski Peggy Ryan Joe Sanchez Susan Schatten Carl Sereda Sitko-Ancell David Rohrback Stephanie Ryan Robert Sanchez Loretta Schaudel Henry Sergent Janie A. Sitton Dale Roland Thomas Ryan Sanchez-Dallam Nancy Schauer Jacob Sergent Janice Skalski Amy Rollason Tom & Andrea Ryan Patricia Sand Linda Schelke Tahnee Serrano James Skarzynski Rony Rolnizky Tom Ryan Larry Sanders Frederick Schenk Ronald Sessler Drew & Melissa Skillman Alexandra Romanias Val Ryan Derek Sandland Roger Scheurig Seth Senestraro DDS PC Kelly Skoloda Helen Romanias Lorrie Rybaczyk Jonathan Sandler Sharon P. Schier Erik Setterholm Randall Skoretz James Romano Rich & Bonnie Ryberg Stephanie Sandor Schier-Happell Mary Ellen Seuch Barbara Skorija Allison Rometo Deb Ryder Lillian Sandoval Cory Schifter William Sewell Joan Skydel Judith Ron Kathy S Debra Sandt John Schilke, MD Sewell Jr Cheryl Sladek Virginia Rone S & T Bank Sandra Sanduk Robert & Mary Schlag Marcia Sexton Beth Slagle Margaret Rood Phyllis Saathoff Gretchen Santamour Janet E. Schleimer Rosemary Sexton Amelia Slane Michael Rood Jan Saber Andora Santellano Fred Schlobohm Gary & Susan Shaffer Mary Slater Angela Rosacker Charles Sable Jenny Santellano Mary Schlobohm Colleen Shannon Michael Slattery Joseph Rosales Marilyn Sable Suzy Santellano Charles Schmidt Juanita Shannon Teresa Slattery Taylor Rosamond Sable Stauning Yvonne Santellano Mary Schmidt Kristen Shapiro Meredith Slesinger Ahulluki Rosas Stephanie Sabra Jose M. Santiago Nancy Schmidt Stuart Shapiro Vicki Sloan Cindy L. Rosch Kelly Sacchetti Frances Santore Paula Schmidt Suzanne Sharr Danielle Slusarski Chris Rose Mary A. Sacharov Barbara Saper Hannah Schmitz Anna Sharts Kyle Slusarski Joanne Rose Leslie Sack Susan Saric Jessica Schneider Frances Shashoua Jerry Smallwood Rebecca Rose Julie Sacuta Louis Sarok Karen Schneider Audrey & Katie Shaw Richard Smallwood Elliot Roseman Crystal Sada Robert & Greta Sarvela Schneider Downs Wealth Glen Shaw Stephen Smeal Jamie Rosen Mary Saenz Jeanne Sasser Management Advisors, LP Gail Shaw Adam Smith Marla Rosen Andrew & Cathy Sage Shubha Sastry Linda Schoene Catherine Shea Carrie Smith Anne Rosensky Colleen Sager Italo G. Savella Allen & Pat Schoeneberger Eleanor Shea Christopher Smith Adam & Anisa Rosenwald Cheryl Saggese Jeanne Sawtelle K Schoeneberger Kim Shea Christy Smith Bonita Rosner Archana Saharya William & Sandra Sawyer Janice Schoeneberger Linda Shealy Connie Smith David Rosner Beth Salcedo George Saxe Lindsay Schoeneberger Ellen Sheehan Dennis Smith Mark Rosolowsky Salzberg-Smith Family Fund Jonathan Sazdanoff Judith Schoettle Michael & Debbie Sheehan Jacqueline Smith David Ross Gretel Salzmann Joyce Sbarbaro Jeffrey Scholl Christopher Sheils Julie Smith Dazjon Ross Matthew & Lorena Salzmann Joseph Scanlan Terry Schooley Julie Shelley Kevin Smith Marie Ross Susan Salzmann Amy Schaefbauer Ronald Schorn Ethan Shelton Leslie Smith Stewart Ross William Salzmann Sharon Schanzer Harald Schoubye Milo Shepard Meredyth Smith

22 GSB|CIDP Foundation International Report of Donors 2018-2019

Nancy Smith Steele Gaylord David Sullivan The WaWa Foundation Inc Taylor Tso Brad Voeller Philip & Jennifer Smith Bryan Steere Dorothy Sullivan Sally Theiler Fred Tucker Brenda Voeller Portia Smith Carla Stefaniak Kaitlin Sullivan Konstantinos Theodorou Karen Tucker Cloyce Voeller Susan H. Smith Rodney Steiger Kevin Sullivan Elizabeth Thirtyacre Thomas Tudor James Voeller Teresa Smith Gary Steigh Lawrence & Josephine Sarah Thom Carl Tufts Mackenzie Voeller Tracy Smith Pamela Stein Sullivan Amanda Thomas Luke Tullberg Barbera Vogentanz William Smith Sherie Stein Lisa Sullivan Christine Thomas Betrice Tunstall Jessica Vogland Carol Smith Joel Steinberg Melanie Sullivan Gavyn Thomas Lisa Turner Jennifer Vollebregt Alicia Smith Robert Steingut Patricia Sullivan Kathryn R. Thomas Mervyn Turner David Volpe Michele Smith Avital Steltzer Robert Sullivan Megan Thomas Monae Turner Von Fecht Smith D’Auria Debra Stemper Stephanie Sullivan Melissa Thomas Andrea Tursi Vork-Howell Carri Smithey Stephanie Damian Carol Sulouff Pamela Thomas Barbara Turton Glenda Vossler Kristina Smitten Mariann Stephans Greg Sumii Sarah Thomas James Tuttle Sreenath Vuske Courtney Smothers Daniel Stepp Arielle Sumits Susan Thomas Christine Ulbricht Sharmaine Waas Judith Smoyer Richard Stern Shane Sumlin Wallce Thomas Steve & Debra Ulmer Waccamaw Community Amy Snader Tom Stern Jan Summers Susan Thomas Kassandra D. Ulrich Foundation John Snarr Alyssa M. Stevens Lawrence Sutter Corey Thompson Aiko Umehara Debbie Wade Sneakpeak Prints Brittany Stevens Heidi Svenson Gary Thompson UNUM Group Robert Wagenmann Howard & Donna Snedeker Pandala Stevens Rebekah Svensson Johanna Thompson Edward F. Upton DJ Wagner Nancy Snedeker Donna Stevens Anne T. Svigel Suzanne Thompson Diane Urbanek Fred Wagner Alma Snell Catherine Stevenson Sandra Svoboda Tammy Thompson Stephanie Urena Nancy & John Wagner Shawna Sniezek Jamie Stewart Jonay Swanson Tina Thompson Kent Usher Betsy Wahl Kenneth Snodgrass Jeffrey Stewart Conrad Swartz Catherine Thompson Steven Ushioda Jessica Waite Sherry Snyder Nancy Stewart Beverly Sweeney Connie Thompson UT Health Ronald Waite Christine Sobchik Steven Stewart Swendsen Jaeger Anastasia Thomson Mike Vaccaro Wendy, Zack & Joannis Betty Sobelman Susanne Stewart Erica Swenson Barbara Thomson Catherine Valentino Waldman Ronald Dias & Carol Dani Sticka Michelle Swenson Thor Jr. Jill Valentino Vicki Wales Sokolow Betsy Stillman Swenson-Mickish Thornton-Gloyeske Norma Valley Ronald Waliczek Jennie Soler Dana Stilwell Jeannine & Robert Swickard Mandie Thorson Van Dreser Barbara Walker Benjamin & Kathleen Justin Stockbridge Eileen Swift Thull-Freedman Van Grinsven Debi Walker Solkofske Robert Stockdale Kathryn Switzer Rose Thunder Van Moppes Jack Walker Vivian Solodkin Susan Stockton Marshall Switzer Michael Thurman Van Patten Nancy Walker Candace Somers Brad Stoddard Carolyn Sykora Ruby Thurston Van Sciver Patricia Walker Yang Son Michele & Donovan JoAnn Symons Matt Tiano Van Sickle Susan Walker Dewey Sonnier Stohlberg Barbara Szitta Nancy Tibbetts Vana Stern Adam C. Wall Giuliana Sophy Lowell Stoltzfus Erik Szpilka Maria Tiedens John & Barbara Jennifer Wall Theresa Sorrentino Andrew Stone Loretta Tague Casey Tierney Vandermuellen Benjamin Wallace Claire Sotell Christine Stone George & Catherine Talarico Tom Tierney James Vandeveer Helen Wallace Magdalena Soto Elizabeth Stone Greta Talbot Glenn Tillema James Vandeventer Linda Wallace Soukup-Raymo Garrett Stone Lou Tallarico Ronald Tilley Teng Vang Daria Wallach Vern Southard Andrea Stone Donald Tallerico Sean Timonen Marion & Bruce Vanorden Boni Wallen Colleen Sowers Krishna Stone Clifford Tamm Nancy Tivol Paul Vanvalkenburgh Steven Wallerstein John Sowersby Erika Stong Joseph Tannuzzo Christin Toby Ari Vared Matthew Wallinger Sparrow-Hood Jacqueline Stork Erin Tanverdi Steven Tock Lorraine & Hector Varela Wendy Wallis Kallie Spaulding Rachelle Storm Kathleen & Will Tarrant Denise Todd Marion Vargas Barbara Walsh Michelle Spayder Eric Strait Adrea Tasselmyer Frank Tolbert Suellyn Vargo Brittany Walsh Dorothea Speaks Carmesia Straite William Tate Lynn Tomko Felicia Varlese Charles Walsh Jennifer Speck Roger Strang Kirk Tatnall Maurice Tomlinson Alberto Vasallo Russell Walter Charlie Spencer Michele Stranghoener Arthur Taub Renee Toplansky Siddharth Vasisht Barbara Walterick E.H. Spillers Timothy Strattner Elizabeth Tausz Griffin Torrance Angela Vasquez James Walters Cathy Spinelli Fiend Strauch Frankie Tayar Alice Torres Cheryl Vasquez Walters Tronnes Greg Spinelli Ada Strausberg Amy Taylor Andrew Torres Dora Vasquez Elizabeth Wang Emily Spinks Charles Strickland Joyce Taylor Eva Torres Jacob Vasquez Roman & LaVon Wankum Joel Spitzkoff Katie Strickland Kay Taylor Gabriel Torres Janice Vasquez Colleen Ward Nancy Sponpinato Stephanie Strickland Kizzy Taylor Isaac Torres Monty Vasquez Dianne Ward Heidi Sporka Leah Strittmatter Merlaine Taylor Juan Torres Renee Vasquez Elizabeth Ward Eunice Spurgat Christian Strohmenger Reva Taylor Raquel Torres Samantha Vasquez Ellis Ward Patti Spurlin Genelle Strong Shalonda Taylor Torres-Krzeminski Stella Vasquez Reid & Paula Ward Jennifer Squires Stephanie Strong Suzanna Taylor Susan Torzilli Judy Vaughan Shelley Ward Elizabeth Stacey Wulf J. & Cheryl L. Stronzik Taylor Mudge Cristina Toscano Elizabeth Vaughn Ward Black Law Charlene A. Stacy Catherine Strouse Amonrat Teemsma Jon Toumey Kathy Vaughn Eileen Wardle Richard Stahl James Strouse Charlene Teeter Mary Townley Kristin Vaughn Barbel Ware Robin Stahl Shawni Strzelecki Elena Tejeda Judith Towns Richard Vaughn Carla Ware Brian Stahl, Ph.D. Mary Stubbe Barbara Telchin Thomas Townsley Gina Vaul Dolores Warner John Staley Teresa Stubbs Carolyn K. Temperine Lisa Tozer Yan Vaysman Jerry Warren Dottie Stamm Christopher Stuchell Sherri S. Tennerino Carol Tracey Jose Velasquez Cynthia Wasco Joann Stamm Domonique Stuck Jan Teply Lori Trail Daniel Venegas Kim Waterman Kari Stampfli Kelly Stumpf Tepper Evola Joanne Traina Dominic Venticinque David Watkins Kala Stanek Peter & Julie Stumpf Lawrence Terkel Clark Transfer Frank Ventura Keisha Watkins Danielle Stanislawczyk Mary Sturgill Shelley Territ Anne Travalia Susan Ventura Kevin Watkins Maryann Stankiewicz Athena Stuto Bradley Terry Beth Traveria Richard & Christine Verburg Bernadette Watson Elizabeth Stanko Jeff Stuto Sarah Terry Clifford Traverse Jennifer Vernaci Victoria Watson Robert Stanley Mary Styfhoorn Salom Teshale Susan Traversi Amie Vetser Barbara A. Watts June Stant Theresa Stylianou Stephan Thaman Mary Trax Marce Viehman Ron Watts Brenda Stanton William Subers The Allen and Nancy Ann Trenda Caitlin Vierra Thomas Watts Jean Stanton Karthik Subramanian Minton Fund Virginia Trent Anthony Vigilante Ann T. Weaver Roberto Stanton September Sucher The Boston Foundation Dennis Tressler Luis & Alice Villavicencio Jody Weaver Max Staples Sam Suchkov The Dale Reese Foundation Andres Trevino Curtis Vincent Martha Webb Diana Starace Sonia Suckno The Merck Foundation John Tribe Edward Vine Lisa Weber Jennifer Starlin Amy Sugg The Pittsburgh Foundation Katherine Trinkle Frank Viola Robert Weber Don Starrett Christine Suhadolnik The Saint Paul Foundation Aria Trombley Patricia Viola Sylvia Weber Jennifer Starrett John & Rosemary Suhre The University of Carol Trombley Kristen Visalli Barbara C. Weeks Karen Starrett Betty Sullivan Texas Health Science Schneiders Troop 1277 / 1205 Laura Vitale Hans Wehl Roger Steck Brian Sullivan Center at Houston Samantha Trulove Kevin Vivian Elizabeth Wehunt Robert Steele Danielle Sullivan The V & L Marx Foundation Michael Trunk William Vladuchick Leslie Wehunt

Annual Report 2018.2019 23 Report of Donors 2018-2019

Lucinda Wickersham Betty Wraspir Louie Wickstrom Sheila Wray Elizabeth Widdifield Rodney Wray Ambassadors Raymond Wieczorek Cathy Wright Stanley Wiencko Cosima V. Wright These Special donors give the gift of Kenneth & Lois Erika C. Wright Wigglesworth Jodi Wright time and leadership. Ambassadors Karen Wight Linda L. Wright are individuals who have engaged Kris Wihlm Lori Wright the community in the name of the Lionel Wilcox Melissa Wright Foundation. This includes, but is not Rebecca Wilcoxon Reggie & Mary Wright Dayna Wild Casey Wrobel limited to the following: facilitating Bob Wiley Peter Wuest a chapter meeting chairing a Walk Edna Wilken Donald Wuori & Roll, Chairing a specific fundraiser Kathleen Wilkinson Joanne Wuori and conducting an Advocacy event Harriet Will Lawrence Wyant William Willever Jane Wyatt by making a Congressional visit. In William Brock Jeanette Wyhe recognition of their dedication to the JOSH Anna Williams Vincent Wyles Foundation, Ambassadors will receive Chris & Melissa Williams James Yadlon special recognition for their leadership. BAER Colleen Williams Rachel Yadlon Donna Williams Samantha Yadlon Please join us in welcoming Josh Elizabeth Williams Susan Yadlon LeeAnn Williams William & Christine Yadlon Bill Ansley Megan Kaump Baer to the GBS|CIDP Foundation Lillie Williams Janet Yamron Susan Banchansky Valerie Keller International Board of Directors! Logan Williams Helen Yandrasits Robert Bard Matt LaRocco Julie Bell Ray Lopez Josh Baer is Vice President of Equity Malika Williams Bin & Suzanne Yang Maureen Williams Everyl Yankee Estelle Benson Merrilyn Macurak Research at Morgan Stanley covering Michael Williams Jack Yantis Garrett Bergman Dave Mayer the Software industry, since 2014. Prior Rose Williams Marjorie Yaspan Yvonne Bishop Megan McCulloch to that Josh held roles in investment Veronica Williams Amir Yeganeh Sheila Blaine Glenn Miller Zachary Williams Beth Yen Betsy Blake Kris Orlandi banking, consulting, and trading at Glenda Williams Carlina Yepez Dennis Bosch Brenda Perales various financial institutions. Josh holds Margaret Williamson Farida Yesmin Wayne Bowyer Michael Perales the Chartered Financial Analyst (CFA) Sherrie Williamson Cherly Yetz Bruce Breneman Michael Ring Bob G. Willis Galya Yordanova Charles Bryant Bill Robbins designation, an MBA from NYU Stern Elizabeth Wills Lois York Gail Buckingham Fabian Robitaille School of Business, and a BSBA from Daniel Wilson Helen Young Bob Burton Dave Rosner Washington University in St. Louis. Debbie Wilson Jane Young Robert Burton Gary Ruppel Emily Wilson Laura Young Tonya Charleston Glenn Russell Josh had Guillain Barre Syndrome in James Wilson Robert Young Diana Christian Lizz Russell Judy Wilson Wallace Young 1996. After serving as the International Alison Clifford Crystal Sada Nina Wilson Frank & Randie Young Luey Clough Sue Salzmann Teenage Penpal for many years, Josh Rick Wilson Jodi Yount Patrick Collins Jon Schandler joined the Foundation’s Finance Ricky & Letty Wilson Michael Yudin Jim Crone Pat Schardt Committee in 2015 and has served on Valerie Wilson Mildred Yuhas Jeanette Wiltbank Ryan, Becky, & Chris Davis Jessica Schexnayder the Board of Directors since 2018. Charlene Wiltshire Brendan Yuhas Sibylle DeRosa Jack Sena Ken Wimer Tim, Kristy, & Greta Yurczyk Rodney Dickson Danawyn Sherman Adeyinka Windapo Susan Zachman Nancy Di Salvo Bruce Simpson Wyatt Winkenwerder Linda Zaimis Janice Dunkerton Oli Smith Miranda Winkle Gena Zajac Rebecca Ferguson Kristen Spaunhorst Kathleen & George Weiand Rachel West David Winowiecki Betty Zaninovich Rick Forney Roger Steck Matthew Weight Chrstina Westbrook James & Teresa Winter Diane Zapach Bob Fuerstenau Dani Sticka William Weinberger William Westerhof Eugene Winters Michelle Zaragoza Robert Fuerstenau Elizabeth Thirtyacre Lori Weinstein West-Krankowski Nancy wintturi Dawn Zarlingo Arthur Gause Bruce Throckmorton Ronald Weinstein Elizabeth Wetschka Thomas R. Wirth Zarnett-Letscher Dee Gause Kelly Torian Ronald Weinstein Elizabeth Whalen James Wisdom Carol Zaun Chris Gill Jon Toumey Susan Weintraub Robert Whaley Johanna Wiseman Vonne Zdenek Lee Ann Gooseman Kassandra Ulrich Allison Weis Susan Wheatley Raymond & Pamela Wiss Sara Zebrak Jonathan Gould Rob Vasquez Linda Weisbrod Clayton Wheeler Robert Witt Terese Zeccardi Julia Grant Kristy Vaughn Adam Weiss Linda Wheeler Susan Witt Kathleen Zeiss Caroline Grimes Angela Whittington Leslie & Rebecca Wittenborn Jen Zepczyk Jennifer Weiss Walt Whelan Steve & Joe Hackett Corbin Whittington Kristen Woelfel Angel Zheng John Weiss Jerry Whetstone Wes Henrikson Pam Wrobel Joshua Wojnilower Jamie Ziegler Margaret Weiss Beth Whipple Misty Hernandez Jim Yadlon Charlyn Weitkunat Pamela & Bradford Whitaker Peggy Wojtowicz James W. Ziegler Mindy Hester Russ Walter Bethanie Weitz Bernadette White Deborah Wolf Lisa Zimmerli Anita Joy Kristen Weaver Fracesca Wellard Christopher White Roasalie Wolf Herb Zimmerman Melissa Wellman Earl White Adam Wolfe John Zinger Kenneth Wells Gloria White Barbara A. Wolff Alexandra Zirngibl Margaret Wells Janis White Carolyn Wolff PR Zitelman Mark & Becky Wells Kerry White Sandra Woncheck John Zitko Mary Welsh Larry White Carol Wood Jennifer Zivoin Stacie Welsh Linda White Laura Wood Christine Zoeller Barbara Wence Sandra White Melanie Wood Jane Zolot Edward Wentz White-Spunner Paul Woodard Joe Zuraw Pam Wenzel Valerie Whitfield Lori Woodbury Janine Zweig Bill (W.H.) Werling Carol Whitley Annette Woods Casey Zweigle Stacy Wermager Gladys Whittenberg Mary Ann Woods James Werpehowski Corbin Whittington Zorina Woodward Donald Wertheimer Whitton – Spector Bernadette Wooten Craig Wordsworth Werth-Rusch Foundation Please note list may not be conclusive and we Gary West Robert Wichert Rowe Worthington apologize if we have omitted a name.

24 GSB|CIDP Foundation International WALKS FROM FEBRUARY 2018 TO AUGUST 2019

33 WALKS 20 243 CITIES TEAMS

AVERAGE PEOPLE 9 PER TEAM 3,281 3,813 $300,000 WALK & ROLL ATTENDEES RAISED FOR RESEARCH FUNDRAISING & COUNTING AND COUNTING PAGES CREATED

“I recently participated in Ohio’s Walk and Roll on 9/23/18, and was blessed by witnessing a beautiful group of people weaving their stories, challenges, determination, love, optimism together to provide a place where people arrived feeling alone — and left with a hearts filled with validity, understanding, community & family.”

Joanne Howard ‘‘ Annual Report 2018.2019 25 CONNECT WITH US! @GBSCIDP

12,587 1,485 619 FOLLOWERS FOLLOWERS FOLLOWERS 12,641 Likes

#GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp Do you know we have an Online Support Group? • #gbscidpfoundationJoin the discussion with • 2,500 #gbscidpADVOCATE other members today! forum.gbs-cidp.org/forums/ • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday • MotivationMonday • #rarediseaseday • #gbscidpresearch • #ChronicDiseaseDay • #GBS • #CIDP • #gbscidp • #gbscidpfoundation • #gbscidpADVOCATE • #walkwednesday • #FoundationFriday

26 GSB|CIDP Foundation International WHY I VOLUNTEER

“A lot of what the Foundation offers is this patient to patient contact. It’s really a wonderful thing that I get to share my experience with other patients and it’s truly bonding because they really do need someone else that knows what they are going through. It changes everything.” ‘‘ —JESSICA SCHEXNAYDER “The Foundation events are all a matter of camaraderie GBS CIDP Foundation and being able to talk about what’s going on their lives International Earns what’s worked for them. Teaching and learning from each other as patients is extremely important with a rare Coveted 4-Star condition. I volunteer for the Foundation because I care Rating from Charity about the patients and caregivers, that’s why I’m in it and Navigator ‘‘ I’ll be in it until I can no longer do it” —RICK FORNEY For the 7th consecutive time, the GBS|CIDP Foundation “There is nothing compared to connecting with a real-life International has earned a person who’s been through it at the moment you are going 4- Star Rating from Charity Navigator. The Foundation’s through it.” strong financial health and —PATRICIA BLOMKWIST-MARKENS commitment to accountability and transparency have earned it a 4-star rating from Charity Navigator, America’s largest ‘‘ “After hearing the GBS or CIDP diagnosis, the patient- independent charity evaluator. to-patient contact is so wonderful, so life changing, because in the outside world we are kind of alone. In the Foundation community we are not alone.” —NANCY Di SALVO WELCOME TO OUR NEW INTERNATIONAL ‘‘ CHAPTERS!

Annual Report 2018.2019 27 GBS CIDP Foundation International International Office 375 East Elm Street Suite 101 Conshohocken, PA 19428

SUPPORT EDUCATION RESEARCH ADVOCACY SUPPORT EDUCATION RESEARCH ADVOCACY

OUR SPONSORS Please join us in thanking our industry partners for their continued commitment to the Patient Community.

AIC – Advanced Infusion Care™ • Airtable • Argenx • Berens Miller P.A. Corporate Litigation • Biocure Rx • BioTek Remedys • Carolina Orthotics & Prosthetics • Conttrill’s • EFS • Emkat • Express Scripts • Fairchild Equipment • Flagro™ USA Inc. • GMC • Guaranteed Rates • Hirschbach • Kaiser Permante® • Ordo Equipment Co. • Palmetto Infusion • PDK Wood Designs • Prompt Care Specialty Pharmacy • Reell • Varisty Painters • Ward Black Law