Summer 2017

Thank You For All Your Support

Insi de: C iara J ane’s incred ibly mo ving story - Page 3

Meet some of the bravest little kids in the world: - Wonderful Molly who is thriving after major cranial surgery - The latest on little Alex who spent 122 days in ICU - And courageous Harvey - getting stronger every day! You helped raise €5million for our new Neurology & Renal Outpatients Unit.

Thanks to your incredible support, construction of our brand new Neurology & Renal Outpatients Unit is well underway. This state-of-the-art building is set to be completed later this year!

Thanks to the generosity of wonderful wiring and working on every supporters like you, we have raised the detail to bring this project €5million needed to make this new facility to completion as quickly as a reality for thousands of patients who possible. attend Temple Street every year. When the new Neurology & As you can see from the latest picture, Renal Outpatients Unit opens behind the big green curtain the later this year it will transform construction site is a hive of activity our patients’ experience and with a team of builders and engineers treatment. It will increase capacity, pouring concrete floors, installing lifts, reduce waiting lists and provide additional clinical rooms, waiting rooms and patient play areas.

Bernard Óg is a very well-known face in Temple Street. This amazing little boy had to undergo Bernard is just regular dialysis three days a week before finally one of the 6,000 children who will receiving a donor kidney just before Christmas be treated and cared last year. Since Bernard’s operation, his health has for in our brand new significantly improved and his donated kidney has Neurology & given him a brand new lease of life. Having been Renal Unit. freed from the restrictions of dialysis and a strictly- controlled diet, Bernard can now enjoy simply being a child – and most importantly – spending time with his beloved pony Speedy! Ciara Jane – a smile that lights up the world

Just moments after Ciara Jane was born her mum learned that she had Down Syndrome and doctors also realised that she had dangerously low blood sugar levels. She was immediately rushed by ambulance from Cork to Temple Street.

It was a hugely traumatic time for Ciara Jane’s mum Susan. A few short months before Ciara Jane was born, Susan’s husband Ger suffered a massive heart attack and passed away in her arms. Susan was still trying to cope with the grief of losing the love of her life when she was told that her beautiful baby daughter’s life was at risk.

When she was just two days old, tiny Ciara Jane under- went an operation for a bowel blockage and was taken to Intensive Care where our doctors and nurses kept an eye on her, twenty-four hours a day. “All I wanted to do was hold my baby - I broke down crying. All I could think was, please God, please Ger, don’t take her away from me.” - Susan

In the days and weeks that followed, Ciara Jane moved from ICU to St. Michael’s B Ward until finally, after seven long weeks, Susan was told she could take her little baby girl home to Cork “I didn’t know that Ciara Jane had to meet her excited family for the very first time. Down Syndrome until she was put in my arms five minutes after she The fantastic news is that Ciara Jane has gone on to make a was born, but all that mattered was great recovery and is thriving. Thanks to the amazing support of people like you, Ciara Jane’s wonderful smile will continue to that she was mine - my last gift from light up the world and fill her mother’s heart with joy every day. my husband and a little sister to Aoife.” - Susan.

Your kindness cared for Ciara Jane - every minute of every day.

While little Ciara Jane was in ICU, you played a vital role in her care. Thanks to the generous support of people just like you, we were able to buy nine specialised patient monitors - the same machines that kept careful watch of Ciara Jane’s vital signs for every minute of every day. Thanks to you our ICU is able to care for over 500 children each year. Thank you so much. Let’s get ready to crumble

We were thrilled when the And if you’d like to get involved, there lovely Amy Huberman put on is still time to ‘whisk up’ your own treat-filled event this summer. an apron to help us launch this year’s Great Irish Bake. So gather your friends, neighbours, loved ones or work colleagues and Now in its ninth year, this scrumptious bake your favourite pastry, cake, campaign has been such a fantastic savoury treat, pie, cupcake or dessert. and fun-filled success with families, Bakers are free to organise whatever schools and businesses. All over the kind of bake sale they like – small country people have been hosting or ambitious, there’s ‘muffin’ to it! tasty fundraising cake sales and raising Register online today at vital funds to buy new equipment for www.templestreet.ie/greatirishbake our theatres, wards and the Intensive Care Unit.

Fyffes go bananas for Temple Street! Tesco staff show their love for our patients Big-hearted staff in Tesco stores all over Ireland have been hard at work holding dozens of special events to raise important funds to buy vital life-saving equipment for our little patients.

And over the past two-and-a-half years, we have been overwhelmed by their hard work, dedication and kindness, which has brought in a phenomenal €2.5million to buy specialist medical equipment. To celebrate ‘National Banana Day’ From superhero days and fancy dress parties to marathons, cycles on 19th April, a very special ‘Fyffes and dancing competitions – Tesco staff have been organising fun and Kitchen’ was set up to give Dubliners creative fundraising events the length and breadth of the country. a chance to try out an array of quirky, banana-infused dishes. All proceeds And if that’s not enough, Tesco has been raising the spirits of our from the pop-up takeaway went to patients and their families by dropping into the hospital with toys, support Temple Street. goodie bags and bouquets of beautiful Mother’s Day flowers. Even if you missed out on ‘Fyffes The money that has been raised over the course of the charity Kitchen’ you can still support this partnership has been put to work to buy great initiative by texting the word patient monitors, respiratory equipment, BANANA to 50300 to make a €4 trolleys and much more besides. Thank you donation. to each and every one of our friends in Tesco – you are our heroes! Texts costs €4. Temple Street Children’s Hospital will receive a minimum of €3.25. Service Provider: LIKECHARITY. Helpline: (076) 680 5278. The next steps for little Alex

Every day, Temple Street is filled with so many incredible stories of courage, bravery and sometimes, pure joy.

You may remember the story of Alex’s mum Saoirse has sent gorgeous little Alex Dickinson, who us this heart-warming spent his first 122 days in our ICU update to share with you. Alex spent Department. Well today we are so delighted to tell you that Alex is “Alex will be turning two 122 days healthy, happy and doing all the this year. It’s so hard to things any young toddler should be believe as it feels like in ICU doing. And this month he even took only yesterday when he his first few steps. was sick in ICU. Alex has taken a couple of steps this Alex has come such a long way. month – and considering we were When he was born, just before told his brain was so badly affected Christmas 2015, he was tiny - just 1lb that he would probably never walk, 4oz - and the signs pointed to him those couple of steps are definitely not surviving beyond a few days. in the right direction. Temple Street is where miracles happen.” But thanks to the wonderful surgeons in Temple Street – and the vital, And thanks to the amazing support life-saving equipment that you have of donors like you these miracles will helped to fund – Alex’s surgery and keep happening every single day. treatment were a resounding success.

Your support saves lives

Much of the vital, life-saving From dialysis machines that help equipment in Temple Street is paid keep our little patients alive to the for by amazing and loyal supporters ventilators that help them breathe, like you. And this year your support we simply couldn’t do it without has helped us tick many essential your unwavering support items off our life-saving wish list. – thank you.

Dublin’s largest urban treasure hunt is back on 7th July 2017.

This July, over 1000 techies will battle it out on the streets of Dublin, solving clues and completing challenges in a bid to be crowned ‘Ireland’s Smartest Techies’. There’s still time to enter your team if you think you’re smart enough visit techies4templestreet.ie Look who came to visit the kids

Aidan O’Brien with Warren Gatland and BOD ahead of the Lions fundraising dinner for our hospital!

Miriam gets spooky for Trick or Treat

Roz Purcell and little Joshua help launch Woodie’s Heroes fundraiser

The victorious Dubs pop in with Sam to visit Luke Norton

Brian Ormond and Emma- Kate sprinkle some Magical

Reindeer Food in Tesco Kodaline visit St. Joseph’s Top Flat Molly Regan was just ten months old when she was diagnosed with a serious skull condition called Saggital Craniosynostosis. If left untreated, it can have serious, even life-threatening, complications. Her loving family were heartbroken. Mum Rebecca remembers meeting the surgeons in Temple Street, who talked the family through what would be involved in the surgery Molly needed.

“Mr. Murray and Mr. Caird were possibly two of the nicest people we have ever met. But I really couldn’t comprehend doing this to her. I cried all the way home from Dublin to Mayo.” - Rebecca

Ultimately, the family decided to go ahead with the operation and that summer, Rebecca got the call that Molly was next on the list – she would have her surgery the team of doctors, nurses and everyone in following Wednesday. It was a long eight- Temple Street are just out of this world.” hour wait as Molly was wheeled into theatre Nearly a year on and Molly is doing so well. for the treatment she needed. She will continue to attend Temple Street “Once she was back in my arms and they for an annual check-up but is a healthy said it was all a success, I didn’t care about and bubbly two-year old, enjoying life and anything else. I was over the moon. The playing with big brother Patrick. relief was like a tonne weight lifted. The

Your part in Temple Street’s life-saving surgeries

Surgery is a scary prospect for parents and families, but thanks to our wonderful supporters we can ensure that we have the best possible equipment in our theatres, including a new specialised operating table for neurosurgery - a speciality in Temple Street. Thanks to your ongoing generosity, we can continue You helped to ensure that our hospital has the best equipment to offer hope and healing to thousands of patients each year. raise €34,500 for our new operating table Helping children cope with a trip to hospital – in our brand new animation Temple Street Children’s Hospital In this great new animation, called have teamed up with the fantastic ‘Ben and Tara’s visit to the hospital’, Temple Street’s mascot dolls, Ben Irish animation company Cartoon and Tara, are given a fun-filled, Saloon to create a unique new guided tour of the hospital as they animated film, narrated by Chris prepare to have an operation. O’Dowd, designed to help sick You can children prepare for their visit to This innovative animation watch ‘Ben & hospital. is a completely new and schedules to develop this one-of-a-kind Tara’s visit to really effective way of hospital’ on our helping young children resource for Temple understand and cope Street. It is a fantastic website! with a visit to hospital. tool for children to demystify the whole Senior Play Specialist, process of having an Caroline Flynn, says, operation and it will help allay “We’re hugely grateful their fears before surgery.” to the team at Cartoon Saloon for taking the Cartoon Saloon are the amazing team time out of their hectic behind Oscar-nominated films like ‘The Secret of Kells’ and ‘Song of the Sea’, and they kindly donated their time and expertise to develop this animation for Temple Street.

Come and visit the Fundraising Team

This spectacular motorcycle adventure takes 14 days and sees our team of bikers and pillion passengers travel through nine states and four different Temple Street time zones across America from Illinois to Sunset Boulevard in California. Foundation has moved - but not Last year, an incredible 97 big-hearted motorcyclists from all over Ireland too far! You can completed this iconic, 2,444 mile, twelve-day journey raising over €250,000 for now find the sick kids in Temple Street. fundraising office Since it began this popular fundraising challenge has raised over in our new home €3.5million for sick children in Ireland and helped to redevelop in the Temple critical wards and purchase vital life-saving equipment for all the Theatre directly kids here in Temple Street. beside the hospital. The office is open Visit www.templestreet.ie to learn how to begin Monday to Friday your own Route 66 adventure in 2018. so why not call in. We’d love to see you and answer any questions you have. And remember, even though we have moved office, our telephone numbers and mailing address are still the same.

Temple Street Foundation Temple Street Children’s University Hospital Temple Street Dublin 1

Phone: 01 878 4344 “Bobby puts a smile on our faces every day” Before Bobby Mooney was born he was diagnosed with a rare lung abnormality. A cyst had formed on his upper left lung that was so large it was pushing his heart to the right side of his chest.

When Bobby arrived by C-Section he Bobby underwent a three-hour Bobby still attends Temple Street’s was monitored for two days in ICU operation to remove not only the cyst, Respiratory Clinic once a year for check- before being brought to Temple Street’s but the entire left upper lobe of his ups and the doctors are very happy with respiratory clinic. After two CT scans in lung. His family waited anxiously beside his progress. his first year, it was decided that Bobby his bed. Bobby’s surgeon Mr. John needed surgery to remove the cyst. Gillick came to see them as soon as “He’s now a happy and healthy two- the operation was finished to tell them year-old boy and puts a smile on our Bobby’s mum Linda says he was just 21 everything had gone well. They were so faces every day. Although he’s been months old when he underwent surgery: relieved. through a lot in Temple Street, he still “Entering the doors of Temple Street enjoys walking through those doors!” with Bobby was a very daunting After five days recovering in St. Gabriel’s, experience for me, my husband and Bobby was well enough to go home. Bobby’s big brother Paddy. We were so upset leading up to that day, but “Although we were glad to get Bobby were made feel at home by all the home, we were sad to say goodbye to nurses on St. Gabriel’s Ward.” all the wonderful staff.”

A breath of fresh air for little patients

Vital respiratory equipment bought for our Neonatal Ward has been made possible thanks to generously donated funds. This equipment is hugely important to helping our tiniest patients breathe and includes three Bobby with ventilation machines, two big brother nebuliser kits and a cardio-respiratory Paddy monitor. Harvey - Ready for Battle

Harvey’s parents, Gillian and Stephen, old Harvey underwent surgery were just eleven weeks into the to close the lesion in his spine pregnancy when their worlds were and, today, he continues to face shaken by the news that their little every challenge with the same baby boy would be born with spina courage. Gillian says she has bifida (a neural tube defect of the learnt so much from her brave spine) and hydrocephalus (a build-up little boy. of fluid on the brain). “Harvey has shown me “We were devastated. We drove what true strength is and home in tears. We faced the news taught me how to stand up our child would never walk. It’s a and fight. He has shown different kind of grief, but it is grief me what it is to have all the same.” - Gillian. unconditional love. He’s my hero.” They named their new son Harvey And just last month – which means Harvey celebrated a major ‘ready for battle’ milestone when he sat up by Our Hero – and Harvey himself for the very first time. His has been bravely proud mum has no doubt that her fighting that beautiful boy will continue to battle battle ever since. and continue to get stronger with every passing day. When he was just four days Shona Wright, far right, was this Top of The Class. year’s 100minds top fundraiser, hosting a ladies luncheon raising Top of the Class €7,662! 100 great students make our new classroom a reality.

‘100minds’ is a unique student fundraising project that challenges 100 of the country’s best and brightest undergraduates to raise €1,000 each for Temple Street.

In just 100 days, over 100 third-level Street, many of whom are recovering Now, thanks to the wonderful efforts students sailed past their €100,000 from major surgery, to continue their of our 100minds college students, target to raise a phenomenal total schooling in a specialised classroom the children recovering in St. Gabriel’s of €140,522 for the creation of a right beside the ward. ward will have a dedicated, quiet bespoke classroom for St. Gabriel’s learning space, where lessons can be St. Gabriel’s Ward specialises in neurosurgery ward. tailored to each pupil’s unique post- neurosurgery and craniofacial surgery, surgery needs. This new classroom will allow some including brain tumours, spina bifida of the sickest children in Temple and other serious conditions. How your kindness is changing lives

Every day, sick children Everywhere you look in And behind the scenes, in Temple Street rely on Temple Street - in every these vital funds are also our doctors and nurses ward and every department being used where they to give them the medical – you can see our donors’ are needed most - in care they need. And every generosity hard at work. developing new treatments day, our medical teams From essential medical and cures for our patients, depend on our wonderful equipment to modern, and giving families the donors to provide the patient-centred facilities, support they badly need at essential supports that2016 the impact of these difficult times. enable them to carry out donations is felt throughout their life-saving work.€4,332,798 the hospital every day.

EQUIPMENT: €2,325,612 2016 PATIENT SERVICES: €278,340 €4,332,798 REDEVELOPMENT: €1,580,806

RESEARCH: €148,039

EQUIPMENT: €2,325,612

PATIENT SERVICES: €278,340

REDEVELOPMENT: €1,580,806

RESEARCH: €148,039 Anyone Can Help Temple Street

Individuals Companies Families Communities Schools Creches Ways to Help Fundraise

GET FIT! GET TRICK CHRISTMAS CREATE BAKING! OR TREAT! RAFFLE YOUR OWN EVENT There are Largest hundreds of Annual Fundraiser dierent ways you can raise money for For a full list Temple Street. of running, Bake a Get festive The trick cycling and dierence Host a party and raise funds is to do swimming and take part and help by selling something events see in our annual sick kids at raffle tickets that you will templestreet.ie Great Irish Bake Halloween at Christmas enjoy!

Donate Volunteer

Volunteers are at the heart of what we do. By Phone By Post Whether you help out at annual collections, oer office administration support or give your time at events; we are always looking for people throughout the Online In Person year to lend a hand!

For more information on how you can help visit www.templestreet.ie

Temple Street Children’s University Hospital, Temple Street, Dublin 1, www.templestreet.ie | [email protected] | CHY 13534.