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Caring for People with Multiple Disabilities : an Interdisciplinary Guide for Caregivers Pdf, Epub, Ebook
CARING FOR PEOPLE WITH MULTIPLE DISABILITIES : AN INTERDISCIPLINARY GUIDE FOR CAREGIVERS PDF, EPUB, EBOOK Cindy French | 145 pages | 29 Mar 1995 | Elsevier Health Sciences | 9780761647058 | English | San Antonio, United States Caring for People with Multiple Disabilities : An Interdisciplinary Guide for Caregivers PDF Book She earned her Ph. Companionship is key to a trusted relationship with our caregivers. Now we get to reconnect a few times a month. Depending on the covered benefits and reimbursement policies of State Medicaid programs, including those provided through waivers, other services may be available to some patients. She later joined the Office of the Center Director as a senior advisor leading and supporting various strategic initiatives such as Clinical Trials Innovation, Real World Evidence, and efforts to improve diversity and inclusion in medical product development. Caregivers in the focus groups consistently reported they did not have time to take care of their own health. We constructed a composite measure of self-care or mobility disability that reflects whether the older adult received help in the prior month with 1 or more self-care eg, eating, dressing, bathing, and toileting or mobility eg, getting outside, getting around inside, and getting out of bed activities. Parents and caregivers should aim to have children be as independent as possible. Care Services. Facilitator Feedback Facilitators agreed that the pilot program went smoothly overall. Training and Education in Professional Psychology , 1 2 , — doi Additionally, the program provides advocacy for residents transitioning from nursing homes back to the community through Money Follows the Person. Compensation for the extra effort involved in caring for patients with complex needs is clearly important. -
Citizenship, Self-Determination and Political Action: the Forging of a Political Movement
Citizenship, self-determination and political action: the forging of a political movement Jenny Morris (Talk at Conference in Sydney, Australia on Citizenship and Disability: February 1998) I want to talk about all the three things mentioned in the title of this Conference - citizenship, self-determination and political action. In order to talk about citizenship, I have to explain why I use the term 'disabled people' rather than 'people with disabilities'. The British disabled people's movement has campaigned for people to adopt a social model, rather than a medical model, of disability. The social model of disability says that: • the quality of our lives, our life chances, are not inevitably determined by what our bodies can't do or look like or how our minds function. Like the women's movement, we say - biology is not destiny. If I could not get a job that would be because of discrimination, not because I can't walk or because I'm a woman • we therefore need to separate out 'impairment' - the characteristics of our bodies and minds - from the way other people and society generally react to impairment • prejudice, discrimination, services which disempower and segregate us, a failure to use resources to create accessible environments and technology to aid communication - these are the disabling barriers that we experience • people with physical, sensory, intellectual impairments, people with mental health difficulties are therefore disabled by the society in 1 which we live • and we use the term 'disabled people' to describe what is done to us This language politicises our experiences and it takes the focus away from our impairments being the problem and puts the responsibility onto the society in which we live This is why we don't use the term disability to mean impairment. -
JAN 2019 NY.Indd
VOLUME 24 NUMBER 7 JANUARY 2019 ININ THISTHIS ISSUEISSUE ADAPT IS 40 ABLE Accounts DiNapoli Urges Advocacy Org. Celebrates 4 Decades Age Expansion PAGE 2 Feds May Limit PWD Proposal Could Make Immigration Harder PAGE 3 Court Refuses Lawsuit Against Lyft Still On-going PAGE 3 N.Y. Health Act City Council Listens to Testimony PAGE 6 Financial Aid Resources Available To Students With Disabilities PAGE 8 ADAPT members hear speakers at one of several Sports events throughout the day at the organization’s Race, WC Basketball, recent 40th anniversary celebration in Denver, Skiing, Golf & Paralympics Colo. PAGES 12 & 17 Chapter members from across the country also attended a rally at Civic Center Park in Colorado, where they listened to speeches from several orig- inal ADAPT founders, members, Colorado Lt. Gov.- a bus through the night to demand accessible pub- Elect Dianne Primavera (D) and State Sen. Jessie lic transportation in Denver, Colo. Since then, the Danielson (D-Dist. 20). advocacy group has continued to grow throughout Afterwards, a memorial dinner was held honor- the country, with members organizing demonstra- ing Babs Johnson, a beloved ADAPT leader who tions, sit ins, rallies and civil disobedience, incud- died this year which was followed by a screening ing occupying senators offices in Washington, D.C. of “Piss on Pity: The Story of ADAPT” a new film on In inset photo, ADAPT organizers enjoy the ral- VISIT the history of the organization. ly. Seen left to right, are Robbie Roppolo and Dawn ABLE’S ADAPT began four decades ago when 19 activists Russell of Colorado; Mike Oxford of Kansas and WEBSITE with disabilities, known as the Gang of 19, blocked Stephanie Thomas of Texas. -
UC Berkeley UC Berkeley Electronic Theses and Dissertations
UC Berkeley UC Berkeley Electronic Theses and Dissertations Title The Disability Drive Permalink https://escholarship.org/uc/item/0bb4c3bv Author Mollow, Anna Publication Date 2015 Peer reviewed|Thesis/dissertation eScholarship.org Powered by the California Digital Library University of California The Disability Drive by Anna Mollow A dissertation submitted in partial satisfaction of the requirements for the degree of Doctor of Philosophy in English in the Graduate Division of the University of California, Berkeley Committee in charge: Professor Kent Puckett, Chair Professor Celeste G. Langan Professor Melinda Y. Chen Spring 2015 The Disability Drive © Anna Mollow, 2015. 1 Abstract The Disability Drive by Anna Mollow Doctor of Philosophy in English University of California Berkeley Professor Kent Puckett, Chair This dissertation argues that the psychic force that Freud named “the death drive” would more precisely be termed “the disability drive.” Freud‟s concept of the death drive emerged from his efforts to account for feelings, desires, and actions that seemed not to accord with rational self- interest or the desire for pleasure. Positing that human subjectivity was intrinsically divided against itself, Freud suggested that the ego‟s instincts for pleasure and survival were undermined by a competing component of mental life, which he called the death drive. But the death drive does not primarily refer to biological death, and the term has consequently provoked confusion. By distancing Freud‟s theory from physical death and highlighting its imbrication with disability, I revise this important psychoanalytic concept and reveal its utility to disability studies. While Freud envisaged a human subject that is drawn, despite itself, toward something like death, I propose that this “something” can productively be understood as disability. -
Legislative Advocacy Priorities Guide
Legislative & Advocacy Priorities Guide Summer 2018 A Message from the Executive Director I am pleased to announce the release of the summer edition of the National Council on Independent Living’s 2018 Policy Priorities. This publication will introduce you to a sample of the many legislative issues NCIL is currently pursuing in order to secure full inclusion and equality for people with disabilities in our great nation. I would like to draw particular attention to issues surrounding Independent Living funding. CILs and their statewide counterparts are the only organizations directly working to address the issues outlined in this publication. They use shoe-string budgets to successfully advocate for individuals with disabilities facing discrimination while fighting to win an even playing field and ensure the civil and human rights of all Americans. I am very proud of our community’s hard work to bring these issues to Congress. Together we will see the passage of our legislative priorities, the restoration of our civil rights, and a world in which people with disabilities are truly valued equally and participate fully. Kelly Buckland Table of Contents The Independent Living Program → Pages 4 - 6 Healthcare and Long-Term Services and Supports → Pages 6 - 11 Disability Integration Act Reform Medicaid, Don’t Gut It! Independent Living and Medicaid Healthcare Money Follows the Person Durable Medical Equipment (DME) and Complex Rehabilitation Technology (CRT) Prohibiting Discrimination Based on Disability in Healthcare Opioids and Chronic Pain Electronic Visit Verification (EVV) Assisted Suicide → Pages 11 - 14 House Concurrent Resolution 80 Against Assisted Suicide Laws Civil Rights and the Americans with Disabilities Act → Pages 14 - 15 ADA Education and Reform Act of 2017: H.R. -
BARRIERS and OPPORTUNITIES for DOCTORS with DISABILITIES Alicia Ouellette*
\\jciprod01\productn\N\NVJ\13-3\NVJ302.txt unknown Seq: 1 12-JUN-13 12:56 PATIENTS TO PEERS: BARRIERS AND OPPORTUNITIES FOR DOCTORS WITH DISABILITIES Alicia Ouellette* In May 2012, the National Disability Rights Network issued a report enti- tled Devaluing People with Disabilities: Medical Procedures That Violate Civil Rights.1 The report is an indictment of a health care system that fails to recog- nize the value of life with disability, despite the importance of the health care system in the lives of people with disabilities. The report describes conversa- tions between doctors and persons with disabilities and their families in which people with disabilities are “viewed as having little value as they are. They are considered not as fully human, endowed with inalienable rights of liberty, pri- vacy and the right to be left alone—solely because they were born with a disa- bility.”2 The National Disability Rights Network is hardly the first group or individual to criticize American medicine for its treatment of persons with disa- bilities.3 Disability scholars have documented a long history of medical mis- treatment of and insensitivity toward people with disabilities at the hands of the medical establishment,4 and individuals with disabilities have authored compel- * Professor of Law and Associate Dean, Albany Law School. Many thanks to Philip Zazove, Christopher Moreland, Demetrius Moutsiakis, and the members of the Drexel Law Faculty workshop for their thoughtful feedback on this paper. Thanks also to Sevil Nuredinoski for her research assistance. 1 DAVID CARLSON, CINDY SMITH & NACHAMA WILKER, DEVALUING PEOPLE WITH DISABILI- TIES: MEDICAL PROCEDURES THAT VIOLATE CIVIL RIGHTS (2012), available at http://www. -
Thesis Submitted in Partial Fulfilment of the Requirements for the Degree of Doctor of Philosophy
A thesis submitted in partial fulfilment of the requirements for the degree of Doctor of Philosophy Cameron, C. 2010. Does anybody like being disabled? A critical exploration of impairment, identity, media and everyday experience in a disabling society. PhD thesis. Queen Margaret University. Accessed from: http://etheses.qmu.ac.uk/258/ Repository Use Policy The full-text may be used and/or reproduced, and given to third parties for personal research or study, educational or not-for-profit purposes providing that: The full-text is not changed in any way A full bibliographic reference is made A hyperlink is given to the original metadata page in eResearch eResearch policies on access and re-use can be viewed on our Policies page: http://eresearch.qmu.ac.uk/policies.html http://etheses.qmu.ac.uk DOES ANYBODY LIKE BEING DISABLED? A CRITICAL EXPLORATION OF IMPAIRMENT, IDENTITY, MEDIA AND EVERYDAY EXPERIENCE IN A DISABLING SOCIETY COLIN CAMERON A thesis submitted in partial fulfillment of the requirements for the degree of Doctor of Philosophy QUEEN MARGARET UNIVERSITY 2010 Abstract I offer a critical exploration of tensions experienced by disabled people in the construction of positive identities in everyday contexts in which self-understanding is shaped both by social structural relations of inequality and unique individual experience. The empirical evidence I use to develop and support my thesis involves data I have generated using a variety of data collection tools, through a series of interviews, conversations and observations carried out with sixteen disabled people across Scotland and England. I argue that while certain barriers to participation in ordinary community life may be being removed, perceptions of impairment as something „wrong‟ with the bodies of disabled people remain embedded in dominant disability discourse. -
National Disability Policy: a Progress Report, November 1, 1997-October 31, 1998
DOCUMENT RESUME ED 428 496 EC 307 100 TITLE National Disability Policy: A Progress Report, November 1, 1997-October 31, 1998. INSTITUTION National Council on Disability, Washington, DC. PUB DATE 1999-02-16 NOTE 66p. AVAILABLE FROM National Council on Disability, 1331 F Street, NW, Suite 1050, Washington, DC 20004-1107; Tel: 202-272-2004; TTY: 202-272-2074; Fax: 202-272-2022; Web site: http://www.ncd.gov PUB TYPE Reports - Descriptive (141) EDRS PRICE MF01/PC03 Plus Postage. DESCRIPTORS Adults; Assistive Devices (for Disabled); Children; Civil Rights Legislation; *Disabilities; Educational Legislation; Educational Policy; Elementary Secondary Education; Employment; *Federal Legislation; *Government Role; Health Services; Housing; Program Effectiveness; Research Needs; *Social Integration; Transportation IDENTIFIERS *Americans with Disabilities Act 1990; Individuals with Disabilities Education Act ABSTRACT This progress report reviews federal policy activities toward the inclusion, empowerment, and independence of people with disabilities consistent with the vision of the Americans with Disabilities Act of 1990 (ADA). The report covers the period of November 1, 1997, through October 31, 1998. It notes progress where it has occurred and makes further recommendations in the following areas:(1) disability research;(2) civil rights;(3) education;(4) health care;(5) long-term services and supports; (6) immigrants, and racial and ethnic minorities with disabilities;(7) Social Security work incentives and Social Security solvency;(8) employment; -
MARCH 2014 NY.Pmd
PAGE 1 MARCH 2014-NEWABLE NEWSPAPER YORK PAGE VOLUME 19 NUMBER 10 MARCH 2014 AWARD-WINNING New York THE NEWSPAPER POSITIVELY FOR, BY & ABOUT THE DISABLED READY IN THE BRONX IN THIS ISSUE Education, Kids Play and Improve Skills Schools, Camps And Recreation PAGES 7, 8, 9 CRPD 141 Countries Ratify But No U.S. Movement PAGE 2 Obama Includes PWD Minimum Wage Raised By Executive Order PAGE 3 EEOC Releases Data 2013 Highest $$ Recovery In Agency History PAGE 5 Snow, Rain, Slush Who Is Responsible For Clean-Up? PAGE 5 MTA Cuts Ribbon Dyckman #1 Station Accessible At Last PAGE 10 Sports Paralympics, Skiing And Snowboarding PAGE 11 About 100 preschoolers in the Readiness Program hockey, winter bowling, luge, ice-skating. They also VISIT at New York Institute for Special Education (NYISE), had snowball fights with crumbled paper. ABLE'S in the Bronx, recently participated in their annual Win- All activities were designed to improve gross mo- WEBSITE ter Olympics. Developmentally-delayed three- to five- tor skills such as coordination, balance, strength year-olds played Olympics-inspired games such as and agility. WWW. ABLENEWS.COM N.Y. ABLE NEWSPAPER P.O. BOX 395, OLD BETHPAGE, NY 11804 TO THE 516 939-2253 LETTERS EDITOR FAX 516 939-0540 www.ablenews.com Hi Everyone, ing home) and might have noth- siblings. Any questions please Thanks to all who have signed ing better to do, could you all contact me. our petition to save home care please mass-mail our petition Thank you. workers and the people with dis- with old-fashioned email and Philip Bennett abilities we assist. -
Disease Is Not a Metaphor 1X
Disease Is Not A Metaphor by Cyree Jarelle Johnson Disease is not a metaphor for some crude and unnamed other. Disease is not capitalism, nor is it communism. Disease is not anarchy, nor is it the threat of anarchy. Except for when the body is chaotic and unknowable. Disease is not a virus in the system. Disease is not the body, not the whole, but a part. Disease is not a test from god. Disease is not a fiery furnace, a wall to climb over, a home to be lifted out of by rope. Disease is not a battle to be won or lost in death. Disease is not a metaphor. Disease is not hyperbole. Disease is neither metonym nor synonym. Disease is a condition of the body. Disease is a visitor. Disease is a backseat driver who climbs up front and takes the wheel. Illness is not a filigreed way to speak about things unpleasant and undesired, no matter how comfortable you may be with thinking of it in that way. You were not “crippled” by debts, nor “paralyzed” by fear, nor was your Thursday evening movie “lame”. You are not “blind” to the reality of the situation, nor “deaf” to the concerns of a close friend. You were re-entrenching able-bodied supremacy in language though, is there a specialized insult for that, taken from the lexicon of sorrow heaped upon people who are not yourself? No, there are not more important things to think about than words, because the things that you say are the substance of your thoughts, which become the things that you do and the biases you keep close to your chest. -
Physician-Assisted Suicide: Why Physicians Should Oppose It
Physician-Assisted Suicide: Why Physicians Should Oppose It Joseph E. Marine, MD, MBA Division of Cardiology Johns Hopkins University School of Medicine February 2, 2018 Disclosures • No relevant financial disclosures • I am a member of the American College of Physicians, the American Medical Association, and the Baltimore City Medical Society • All of these organizations oppose legalization of physician-assisted suicide and all other forms of euthanasia • There are no drugs or devices that have been approved by the US FDA for physician-assisted suicide or euthanasia Some Definitions • Physician-Assisted Suicide: A form of euthanasia (“good death) where a physician provides the means (such as a lethal drug prescription) for a patient to end his/her own life • Synonyms/ Euphemisms: • Physician/doctor-assisted death • Death with Dignity • End-of-Life Option • (Medical) Aid-in-Dying • includes euthanasia by lethal injection in Canada • Usual drugs used: 90-100 x 100 mg secobarbital tabs dissolved in liquid and swallowed quickly • Antiemetic premed usually given to prevent vomiting PAS/Euthanasia: Background • Mid-1800s – increasing medical use of morphine and chloroform anesthesia leads to proposals to use to hasten death for patients with advanced illnesses • 1906: Euthanasia law proposed in Ohio state legislature, voted down 79-23 • 1920s-1930s: Public support for euthanasia increases in USA, though not legally adopted • 1939-1945: WWII, Nuremberg trials Euthanasia in post-war era • 1945-1980: Little activity • 1980: Derek Humphry, a British journalist, founds Hemlock Society to promote euthanasia and assisted suicide for patients with advanced illness • 1992: Publication of Final Exit • 2003-4: Hemlock Society becomes Compassion and Choices Dr. -
The Consequences of Legalized Assisted Suicide and Euthanasia
S. HRG. 109–1028 THE CONSEQUENCES OF LEGALIZED ASSISTED SUICIDE AND EUTHANASIA HEARING BEFORE THE SUBCOMMITTEE ON THE CONSTITUTION, CIVIL RIGHTS AND PROPERTY RIGHTS OF THE COMMITTEE ON THE JUDICIARY UNITED STATES SENATE ONE HUNDRED NINTH CONGRESS SECOND SESSION MAY 25, 2006 Serial No. J–109–80 Printed for the use of the Committee on the Judiciary ( U.S. GOVERNMENT PRINTING OFFICE 45–836 PDF WASHINGTON : 2008 For sale by the Superintendent of Documents, U.S. Government Printing Office Internet: bookstore.gpo.gov Phone: toll free (866) 512–1800; DC area (202) 512–1800 Fax: (202) 512–2104 Mail: Stop IDCC, Washington, DC 20402–0001 VerDate Aug 31 2005 12:00 Dec 17, 2008 Jkt 045836 PO 00000 Frm 00001 Fmt 5011 Sfmt 5011 S:\GPO\HEARINGS\45836.TXT SJUD1 PsN: CMORC COMMITTEE ON THE JUDICIARY ARLEN SPECTER, Pennsylvania, Chairman ORRIN G. HATCH, Utah PATRICK J. LEAHY, Vermont CHARLES E. GRASSLEY, Iowa EDWARD M. KENNEDY, Massachusetts JON KYL, Arizona JOSEPH R. BIDEN, JR., Delaware MIKE DEWINE, Ohio HERBERT KOHL, Wisconsin JEFF SESSIONS, Alabama DIANNE FEINSTEIN, California LINDSEY O. GRAHAM, South Carolina RUSSELL D. FEINGOLD, Wisconsin JOHN CORNYN, Texas CHARLES E. SCHUMER, New York SAM BROWNBACK, Kansas RICHARD J. DURBIN, Illinois TOM COBURN, Oklahoma MICHAEL O’NEILL, Chief Counsel and Staff Director BRUCE A. COHEN, Democratic Chief Counsel and Staff Director SUBCOMMITTEE ON THE CONSTITUTION, CIVIL RIGHTS AND PROPERTY RIGHTS SAM BROWNBACK, Kansas, Chairman ARLEN SPECTER, Pennsylvania RUSSELL D. FEINGOLD, Wisconsin LINDSEY O. GRAHAM, South Carolina EDWARD M. KENNEDY, Massachusetts JOHN CORNYN, Texas DIANNE FEINSTEIN, California TOM COBURN, Oklahoma RICHARD J.