MARCH 2014 NY.Pmd
Total Page:16
File Type:pdf, Size:1020Kb
Load more
Recommended publications
-
Caring for People with Multiple Disabilities : an Interdisciplinary Guide for Caregivers Pdf, Epub, Ebook
CARING FOR PEOPLE WITH MULTIPLE DISABILITIES : AN INTERDISCIPLINARY GUIDE FOR CAREGIVERS PDF, EPUB, EBOOK Cindy French | 145 pages | 29 Mar 1995 | Elsevier Health Sciences | 9780761647058 | English | San Antonio, United States Caring for People with Multiple Disabilities : An Interdisciplinary Guide for Caregivers PDF Book She earned her Ph. Companionship is key to a trusted relationship with our caregivers. Now we get to reconnect a few times a month. Depending on the covered benefits and reimbursement policies of State Medicaid programs, including those provided through waivers, other services may be available to some patients. She later joined the Office of the Center Director as a senior advisor leading and supporting various strategic initiatives such as Clinical Trials Innovation, Real World Evidence, and efforts to improve diversity and inclusion in medical product development. Caregivers in the focus groups consistently reported they did not have time to take care of their own health. We constructed a composite measure of self-care or mobility disability that reflects whether the older adult received help in the prior month with 1 or more self-care eg, eating, dressing, bathing, and toileting or mobility eg, getting outside, getting around inside, and getting out of bed activities. Parents and caregivers should aim to have children be as independent as possible. Care Services. Facilitator Feedback Facilitators agreed that the pilot program went smoothly overall. Training and Education in Professional Psychology , 1 2 , — doi Additionally, the program provides advocacy for residents transitioning from nursing homes back to the community through Money Follows the Person. Compensation for the extra effort involved in caring for patients with complex needs is clearly important. -
Nothing About Us Without Us Exhibition Large Print Text 18Pt
Nothing About Us Without Us Exhibition Large Print Text 18pt 1 Contents Introduction…………………………………………….4 Timeline………………………………………………...5 Banners……………………………………………….22 Photographs and Posters………………………......24 Placards by Jo Ann Taylor.........…………………...27 T-shirt and Other Campaign Materials Case……...28 Leaflets, Badges and Campaign Materials Case…29 Cased T-Shirts………………………………………. 35 Protest Placards…………………………………….. 36 The Autistic Rights Movement…………………….. 37 No Excuses…………………………………………. 46 Pure Art Studio……………………………………… 48 One Voice…………………………………………… 50 Quiet Riot……………………………………………. 51 Music………………………………………………… 66 2 Nothing About Us Without Us Playlist……………. 67 Interviews……………………………………………. 68 3 Introduction panel This exhibition is the second stage in a long-term project that looks at the representation of disabled people. The museum is working with groups, campaigners and individuals to capture their stories and re-examine how the history of disabled people’s activism is presented. We encourage you to let us know if you have any comments, objects or stories you would like to share to help to continue to tell this story. If you are interested in sharing your object or story as part of this project, please speak to a member of staff or contact [email protected] 4 Timeline The timeline on the wall is split into five sections: Early Days, 1980s, 1990s, 2000s and 2010s. Each section has an introductory label followed by photographs and labels with further information. Beneath the timeline is a shelf with pencils and pieces of card on it that visitors can use to write their own additions to the timeline and leave them on the shelf for other visitors to see. The introduction to the timeline is as follows: Is anything missing? Add to the timeline using the cards and shelf. -
Legislative Advocacy Priorities Guide
Legislative & Advocacy Priorities Guide Summer 2018 A Message from the Executive Director I am pleased to announce the release of the summer edition of the National Council on Independent Living’s 2018 Policy Priorities. This publication will introduce you to a sample of the many legislative issues NCIL is currently pursuing in order to secure full inclusion and equality for people with disabilities in our great nation. I would like to draw particular attention to issues surrounding Independent Living funding. CILs and their statewide counterparts are the only organizations directly working to address the issues outlined in this publication. They use shoe-string budgets to successfully advocate for individuals with disabilities facing discrimination while fighting to win an even playing field and ensure the civil and human rights of all Americans. I am very proud of our community’s hard work to bring these issues to Congress. Together we will see the passage of our legislative priorities, the restoration of our civil rights, and a world in which people with disabilities are truly valued equally and participate fully. Kelly Buckland Table of Contents The Independent Living Program → Pages 4 - 6 Healthcare and Long-Term Services and Supports → Pages 6 - 11 Disability Integration Act Reform Medicaid, Don’t Gut It! Independent Living and Medicaid Healthcare Money Follows the Person Durable Medical Equipment (DME) and Complex Rehabilitation Technology (CRT) Prohibiting Discrimination Based on Disability in Healthcare Opioids and Chronic Pain Electronic Visit Verification (EVV) Assisted Suicide → Pages 11 - 14 House Concurrent Resolution 80 Against Assisted Suicide Laws Civil Rights and the Americans with Disabilities Act → Pages 14 - 15 ADA Education and Reform Act of 2017: H.R. -
BARRIERS and OPPORTUNITIES for DOCTORS with DISABILITIES Alicia Ouellette*
\\jciprod01\productn\N\NVJ\13-3\NVJ302.txt unknown Seq: 1 12-JUN-13 12:56 PATIENTS TO PEERS: BARRIERS AND OPPORTUNITIES FOR DOCTORS WITH DISABILITIES Alicia Ouellette* In May 2012, the National Disability Rights Network issued a report enti- tled Devaluing People with Disabilities: Medical Procedures That Violate Civil Rights.1 The report is an indictment of a health care system that fails to recog- nize the value of life with disability, despite the importance of the health care system in the lives of people with disabilities. The report describes conversa- tions between doctors and persons with disabilities and their families in which people with disabilities are “viewed as having little value as they are. They are considered not as fully human, endowed with inalienable rights of liberty, pri- vacy and the right to be left alone—solely because they were born with a disa- bility.”2 The National Disability Rights Network is hardly the first group or individual to criticize American medicine for its treatment of persons with disa- bilities.3 Disability scholars have documented a long history of medical mis- treatment of and insensitivity toward people with disabilities at the hands of the medical establishment,4 and individuals with disabilities have authored compel- * Professor of Law and Associate Dean, Albany Law School. Many thanks to Philip Zazove, Christopher Moreland, Demetrius Moutsiakis, and the members of the Drexel Law Faculty workshop for their thoughtful feedback on this paper. Thanks also to Sevil Nuredinoski for her research assistance. 1 DAVID CARLSON, CINDY SMITH & NACHAMA WILKER, DEVALUING PEOPLE WITH DISABILI- TIES: MEDICAL PROCEDURES THAT VIOLATE CIVIL RIGHTS (2012), available at http://www. -
National Disability Policy: a Progress Report, November 1, 1997-October 31, 1998
DOCUMENT RESUME ED 428 496 EC 307 100 TITLE National Disability Policy: A Progress Report, November 1, 1997-October 31, 1998. INSTITUTION National Council on Disability, Washington, DC. PUB DATE 1999-02-16 NOTE 66p. AVAILABLE FROM National Council on Disability, 1331 F Street, NW, Suite 1050, Washington, DC 20004-1107; Tel: 202-272-2004; TTY: 202-272-2074; Fax: 202-272-2022; Web site: http://www.ncd.gov PUB TYPE Reports - Descriptive (141) EDRS PRICE MF01/PC03 Plus Postage. DESCRIPTORS Adults; Assistive Devices (for Disabled); Children; Civil Rights Legislation; *Disabilities; Educational Legislation; Educational Policy; Elementary Secondary Education; Employment; *Federal Legislation; *Government Role; Health Services; Housing; Program Effectiveness; Research Needs; *Social Integration; Transportation IDENTIFIERS *Americans with Disabilities Act 1990; Individuals with Disabilities Education Act ABSTRACT This progress report reviews federal policy activities toward the inclusion, empowerment, and independence of people with disabilities consistent with the vision of the Americans with Disabilities Act of 1990 (ADA). The report covers the period of November 1, 1997, through October 31, 1998. It notes progress where it has occurred and makes further recommendations in the following areas:(1) disability research;(2) civil rights;(3) education;(4) health care;(5) long-term services and supports; (6) immigrants, and racial and ethnic minorities with disabilities;(7) Social Security work incentives and Social Security solvency;(8) employment; -
Disease Is Not a Metaphor 1X
Disease Is Not A Metaphor by Cyree Jarelle Johnson Disease is not a metaphor for some crude and unnamed other. Disease is not capitalism, nor is it communism. Disease is not anarchy, nor is it the threat of anarchy. Except for when the body is chaotic and unknowable. Disease is not a virus in the system. Disease is not the body, not the whole, but a part. Disease is not a test from god. Disease is not a fiery furnace, a wall to climb over, a home to be lifted out of by rope. Disease is not a battle to be won or lost in death. Disease is not a metaphor. Disease is not hyperbole. Disease is neither metonym nor synonym. Disease is a condition of the body. Disease is a visitor. Disease is a backseat driver who climbs up front and takes the wheel. Illness is not a filigreed way to speak about things unpleasant and undesired, no matter how comfortable you may be with thinking of it in that way. You were not “crippled” by debts, nor “paralyzed” by fear, nor was your Thursday evening movie “lame”. You are not “blind” to the reality of the situation, nor “deaf” to the concerns of a close friend. You were re-entrenching able-bodied supremacy in language though, is there a specialized insult for that, taken from the lexicon of sorrow heaped upon people who are not yourself? No, there are not more important things to think about than words, because the things that you say are the substance of your thoughts, which become the things that you do and the biases you keep close to your chest. -
Physician-Assisted Suicide: Why Physicians Should Oppose It
Physician-Assisted Suicide: Why Physicians Should Oppose It Joseph E. Marine, MD, MBA Division of Cardiology Johns Hopkins University School of Medicine February 2, 2018 Disclosures • No relevant financial disclosures • I am a member of the American College of Physicians, the American Medical Association, and the Baltimore City Medical Society • All of these organizations oppose legalization of physician-assisted suicide and all other forms of euthanasia • There are no drugs or devices that have been approved by the US FDA for physician-assisted suicide or euthanasia Some Definitions • Physician-Assisted Suicide: A form of euthanasia (“good death) where a physician provides the means (such as a lethal drug prescription) for a patient to end his/her own life • Synonyms/ Euphemisms: • Physician/doctor-assisted death • Death with Dignity • End-of-Life Option • (Medical) Aid-in-Dying • includes euthanasia by lethal injection in Canada • Usual drugs used: 90-100 x 100 mg secobarbital tabs dissolved in liquid and swallowed quickly • Antiemetic premed usually given to prevent vomiting PAS/Euthanasia: Background • Mid-1800s – increasing medical use of morphine and chloroform anesthesia leads to proposals to use to hasten death for patients with advanced illnesses • 1906: Euthanasia law proposed in Ohio state legislature, voted down 79-23 • 1920s-1930s: Public support for euthanasia increases in USA, though not legally adopted • 1939-1945: WWII, Nuremberg trials Euthanasia in post-war era • 1945-1980: Little activity • 1980: Derek Humphry, a British journalist, founds Hemlock Society to promote euthanasia and assisted suicide for patients with advanced illness • 1992: Publication of Final Exit • 2003-4: Hemlock Society becomes Compassion and Choices Dr. -
The Consequences of Legalized Assisted Suicide and Euthanasia
S. HRG. 109–1028 THE CONSEQUENCES OF LEGALIZED ASSISTED SUICIDE AND EUTHANASIA HEARING BEFORE THE SUBCOMMITTEE ON THE CONSTITUTION, CIVIL RIGHTS AND PROPERTY RIGHTS OF THE COMMITTEE ON THE JUDICIARY UNITED STATES SENATE ONE HUNDRED NINTH CONGRESS SECOND SESSION MAY 25, 2006 Serial No. J–109–80 Printed for the use of the Committee on the Judiciary ( U.S. GOVERNMENT PRINTING OFFICE 45–836 PDF WASHINGTON : 2008 For sale by the Superintendent of Documents, U.S. Government Printing Office Internet: bookstore.gpo.gov Phone: toll free (866) 512–1800; DC area (202) 512–1800 Fax: (202) 512–2104 Mail: Stop IDCC, Washington, DC 20402–0001 VerDate Aug 31 2005 12:00 Dec 17, 2008 Jkt 045836 PO 00000 Frm 00001 Fmt 5011 Sfmt 5011 S:\GPO\HEARINGS\45836.TXT SJUD1 PsN: CMORC COMMITTEE ON THE JUDICIARY ARLEN SPECTER, Pennsylvania, Chairman ORRIN G. HATCH, Utah PATRICK J. LEAHY, Vermont CHARLES E. GRASSLEY, Iowa EDWARD M. KENNEDY, Massachusetts JON KYL, Arizona JOSEPH R. BIDEN, JR., Delaware MIKE DEWINE, Ohio HERBERT KOHL, Wisconsin JEFF SESSIONS, Alabama DIANNE FEINSTEIN, California LINDSEY O. GRAHAM, South Carolina RUSSELL D. FEINGOLD, Wisconsin JOHN CORNYN, Texas CHARLES E. SCHUMER, New York SAM BROWNBACK, Kansas RICHARD J. DURBIN, Illinois TOM COBURN, Oklahoma MICHAEL O’NEILL, Chief Counsel and Staff Director BRUCE A. COHEN, Democratic Chief Counsel and Staff Director SUBCOMMITTEE ON THE CONSTITUTION, CIVIL RIGHTS AND PROPERTY RIGHTS SAM BROWNBACK, Kansas, Chairman ARLEN SPECTER, Pennsylvania RUSSELL D. FEINGOLD, Wisconsin LINDSEY O. GRAHAM, South Carolina EDWARD M. KENNEDY, Massachusetts JOHN CORNYN, Texas DIANNE FEINSTEIN, California TOM COBURN, Oklahoma RICHARD J. -
Instructor's Edge Fall 2012
+ Fall 2012 VOLUME 35 NUMBER 1 Theo Meiner, right, Teacher. Coach. and his son, Aidan, and daughter, Guide. Alexandra. Theo died Remembering Theo Meiners in an accident September 20 while By Emma Franzeim attending the International Snow On September 20, we lost an excep- Science Workshop in Anchorage, Alaska. tional man and member of our commu- His presence will be nity when Theo Meiners fell to his death missed. in an accident in Anchorage, Alaska. Although Theo’s career as a ski In the short time since his death, easily describe him as someone whose instructor began in Colorado, we have there have been many articles pub- expectations of the people around him claimed him as one of our own in Jack- lished about the remarkable legacy that were only exceeded by his expectations son Hole since 1978. In Jackson, Theo Theo Meiners leaves behind. When you of himself. But it was more than that – it worked as an instructor, backcountry read of him in Powder Magazine, Outer was sincere belief. When Theo looked guide, and DECL. However, although Local, and JH Underground, you will you in the eye and said “You’ve got he was an integral member of our com- learn of a man of many accomplish- this.” whether you were looking into munity, it was understood by all of us ments who filled his life with excep- Corbet’s, or listening to the pulse of that Theo’s heart belonged to Alaska. tional people and experiences. helicopter pull away behind you - He had spent time in Alaska as a Although these articles do a tremen- whatever it was that you faced – when child, but it wasn’t until the World dous job of detailing Theo’s biography, he looked you in the eye and said those Extreme Skiing Competitions, when there is something they cannot fully con- words, you knew not only that he Doug Coombs made tracks on the land- vey about the hole he leaves behind. -
The Montana Disability and Health Program: Highlights (April 1, 2010 to November 30, 2011) P.I
The Montana Disability and Health Program: Highlights (April 1, 2010 to November 30, 2011) P.I. Todd Harwell, Bureau Chief, MDPHHS Co-P.I. Tom Seekins, Asst. Director, UM Rural Institute Montana Health Communications/ Dissemination (April 1, 2010 to November 30, 2011) • MTDH website http://mtdh.ruralinstitute.umt.edu • 226 pages and 4,612 external links. • 26,392 visits (4/1/09 to 11/24/09) Right To Know (April 1, 2010 to November 30, 2011) • 4 regional Right to Know (RTK) steering committees • Campaign activities involved: – over 50 community partnerships – leveraged $20,000 of contributed or in-kind funds • Distributed RTK media kits to all Montana FDA-approved mammography centers • Exposed over 600 women with physical disabilities to RTK campaign messages. Great Falls History Museum, Montana Two Installations 1) Every Woman Matters: Portraits of Montana Women Living With Disabilities 2) Tom Olin’s Photographs from Disability Advocacy Actions Connected to the Passage of the ADA November 1, 2009 to January 5, 2010 This photo was taken March 12, 1990 at the steps of the Nation’s Capitol during the Wheels of Justice Demonstrations. The woman holding the man’s hand in a triumphant gesture is Barbara Knowlen, author of How to Kick Ass and Win (first published in 1990)—a how-to book based on her expert knowledge as a consumer of State Vocational Rehabilitation services and the Social Security PASS Program (Plan for Achieving Self Support). In the same year, Barbara, with her husband, Michael, started a business, Barrier Breakers, to help people with disabilities develop PASS plans. -
Norwegian Barneblad: Flowers That Bloom in Spring American Story on Page 23
the Inside this issue: NORWEGIAN Barneblad: Flowers that bloom in Spring american story on page 23 Volume 129, #7 • April 6, 2018 Est. May 17, 1889 • Formerly Norwegian American Weekly, Western Viking & Nordisk Tidende $4 USD A student’s take on Halden Prison Drexel University students travel to Norway to compare its prisons to those in America WHAT’S INSIDE? MICHAEL KLEINER « Blir vi rørt over våren fordi Nyheter / News 2-3 den minner oss om vår egen Business 4-5 The Norwegian American engstelige og karrige, men tross Opinion 6-7 Our ideas of prisons mostly come through TV and years they discussed how to collaborate. alt naive og rørende ungdom? » Sports 8-9 movies. After moving to Drexel in 2014, Hyatt applied – Sigurd Hoel Research & Science 10 The loud clang of the iron bar doors closing. The for an Intensive Course Abroad (ICA) program to take Arts & Entertainment 11 rows of cells on each side. Guards with rings of keys students to Norway to compare American and Norwe- and billy clubs walking menacingly down the hall. gian prisons and attitudes about criminal justice. He Taste of Norway 12-13 Watching eyes during work routines. A dark cell with took five students in December 2016 and 12 in 2017. Norway near you 14-15 a dim light bulb, hard bed, sink, and toilet. A warden “There are two general goals,” said Dr. Hyatt. “The Travel 16-17 charged with keeping prisoners in line. first is practical: understanding the nuts and bolts of Norwegian Heritage 18-19 Does this work to rehabilitate inmates? Do inmates different corrections. -
Sochi 2014: Breaking Down Barriers
THE PARALYMPIAN 02|2014 1 OFFICIAL MAGAZINE OF THE PARALYMPIC MOVEMENT ISSUE NO. 2 | 2014 Celebrating 25 years of the International Paralympic Committee • 1989-2014 www.paralympic.org Sochi 2014: Breaking down barriers RZ_Paralympian_02_2014_title_final_neu.indd 1 13.06.14 10:27 PRESIDENT’S MESSAGE THE PARALYMPIAN 02|2014 3 “The Games exceeded all our expectations in every single thing that area and certainly raised the bar for PyeongChang in 2018.” matters: always face forward. The Sochi 2014 Paralympic Games were a The key now is to capitalise on this success, not record-breaking success with the performances of just for future Games, but in terms of getting more athletes once again inspiring and exciting the world. people into para-sports and improving the stand- ard and reach of the major events in between the Para-snowboard made a spectacular Games debut, Paralympics – both summer and winter. spectators turned out in huge numbers and more people around the world watched the event on As mentioned in the last edition, the IPC will television than any other Winter Paralympics. celebrate its 25th anniversary later this year, a signifi cant landmark for the whole Paralympic The Games exceeded all our expectations in every Movement. single area and certainly raised the bar for Pyeo- ngChang in 2018. This issue includes a very special “Silver Jubilee” feature, detailing how the IPC was formed in Many highlights from the Games are included in this Dusseldorf, Germany, on 22 September 1989, issue and I am sure they will bring back many great and in the years since has been transformed memories for you all.