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Email 1 Lynne Kelly Email 1 From: [email protected] <[email protected]> Sent: 20 July 2018 09:54 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Subject: Core Participants Hi Redacted – s40 (2) Thomas Powell was the Inquiry solicitor who came to Cardiff with Catherine Nallty. I think he will lead for Wales, he's Australian (I think) and has connections with Abergavenny. The Inquiry are asking for expressions of interest to be made by today, 20th July for both witnesses and core participants His email address Redacted – s40 (2) @infectedbloodinquiry.org.uk Regards Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 Email 2 From: [email protected] <[email protected]> Sent: 26 February 2018 09:11 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Subject: Public Inquiry Contaminated Blood Hi Redacted – s40 (2) I hope you are well. I have had a call from the Deputy Secretary to the Inquiry Catherine McNulty. They are planning some consultation meetings with Justice Brian Langstaff, Chair of the Inquiry and the various groups. Would it be possible for myself and Michael Imperato to meet with you to discuss further? Many Thanks Lynne Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 Email 3 From: [email protected] <[email protected]> Sent: 03 March 2018 10:56 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales>; Redacted – s40 (2) (HSS- DPH-Population Healthcare) <@gov.wales> Subject: FYI Consultation on Terms of Reference Dear Redacted – s40 (2) and Redacted – s40 (2) I wanted to let you know that Haemophilia Wales and Michael Imperato our legal representative will be meeting Justice Langstaff on 14th March to discuss Terms of Reference for the Inquiry. The Consultation onTerms of Reference for the Infected Blood Inquiry has just gone live is and closes on 26th April 2018 https://www.infectedbloodinquiry.org.uk/ Regards Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 Email 4 From: [email protected] <[email protected]> Sent: 22 March 2018 21:00 To: Redacted – s40 (2) <@wales.nhs.uk>; Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Cc: Julie Morgan <[email protected]>; Redacted – s40 (2) (NWSSP - Finance) <@wales.nhs.uk> Subject: RE 2018/19 payments Thanks Redacted – s40 (2). The attached paper is a breakdown of the cost of implementing the Scottish scheme for living Haemophilia and whole blood patients with HIV and Hep C and Hep C stage 2 in Wales. We estimate there will be an additional annual cost of £878,500 I hope Welsh Government will consider this proposal for April 2018 onwards. Yours sincerely Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 Email 4 attachment Annual Cost of implementing Scottish Proposal in Wales for Haemophiliac & Whole Blood Patients No of Annual Annual Patients Payment Cost HCV Mono Infected Stage 1 (Skipton/Caxton) Including46 a separate - figure for - the current number of widows in this group HCV Mono Infected Stage 2 (Skipton/Caxton) Including30 a separate 27,000 figure 810,000 for the current number of widows in this group HIV Mono Infected* (MFT/MFET) 1 27,000 27,000 Co Infected HIV Stage 1 (Skipton/MFT/MFET) Including16 a separate 27,000 figure 432,000 for the current number of widows in this group Co Infected HIV Stage 2 (Skipton/MFT/MFET) Including1 a separate 37,000 figure 37,000 for the current number of widows in this group Widows (63 deceased, assume 30 widows) Assume 15 mono-infected 23 20,250 465,750 Assume 15 co-infected 23 27,750 638,250 Annual Cost of implementing Scottish Proposal £2,410,000 One Off payment of an additional £30,000 to all those 144 30,000 £4,320,000 who will not receive on-going support Email 5 From: [email protected] <[email protected]> Sent: 08 April 2018 18:43 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Subject: RE: Northern Ireland payments for Infected Blood Support 2018/19 Hi Redacted – s40 (2) I think the meeting with Justice Langstaff went well, he appeared to be open and sympathetic and we had plenty of time to cover everything. We met the Inquiry team and the solicitor to the Inquiry Brian Stanton and they too were very welcoming. I look forward to hearing from you as soon as possible regarding the payments for 2018/19. Kind Regards Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 -------- Original Message -------- Subject: RE: Northern Ireland payments for Infected Blood Support 2018/19 From: < Redacted – s40 (2) @gov.wales> Date: Fri, April 06, 2018 2:10 pm To: <[email protected]> Dear Lynne Thank you for your emails and attachments re the payments in England/Scotland and NI. I’ve been on leave for the past couple of weeks so am catching up on my mails. We are currently looking at the ex-gratia payment schemes for this financial year and hope to be able to provide advice to the Cab Sec shortly. As soon as we are in this position I will contact you again. How did the meeting go with the Inquiry Chair? I met some of the admin tem before I went on leave, they stressed that they wanted to work with us here in Wales to get the information needed to make the Inquiry meaningful. Kind regards Redacted – s40 (2) From: [email protected] [mailto:[email protected]] Sent: 21 March 2018 19:05 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare); Redacted – s40 (2) Cc: Julie Morgan Subject: Northern Ireland payments for Infected Blood Support 2018/19 Dear Redacted – s40 (2) Northern Ireland have now announced an up lift in payments for Infected Blood Support 2018-19 in line with England, see attached. The £500 winter fuel payment is in addition to these payments so the annual payment in Northern Ireland and England from April is £18,500 Hep C stage 2, £22,500 HIV, £36,500 HIV and Hep C. Payments in Scotland are more straightforward Hep C stage 2 = £27,000, HIV and Hep C =£37,000 Wales now stands to fall behind on payments compared with the rest of the UK. Please can Welsh Government consider introducing the Scottish scheme to simplify the payment scheme with a simple medical review panel instead of a complex Special Category Mechanism, for those who have Hep C stage 1 but their quality of life is significantly impacted by the virus. Please contact me if you need further information on the above Yours sincerely Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 Email 6 From: [email protected] <[email protected]> Sent: 08 May 2018 11:18 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Subject: RE: The Honeycomb Fund Thank you Redacted – s40 (2), is it ok to raise this at the APPG tomorrow? as Redacted – s40 (2) will be there and we know that the Macfarlane Trust are means testing before agreeing to make a grant from the Honeycomb fund. Regards Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 -------- Original Message -------- Subject: The Honeycomb Fund From: <@gov.wales> Date: Fri, May 04, 2018 11:07 am To: <[email protected]> Cc: <Redacted – s40 (2) @wales.nhs.uk> Dear Lynne As discussed I’ve got in contact with my colleague at the Department of Health who oversees this area of work for England. The following information has been provided: “As the Honeycomb Fund is money that was gifted to Macfarlane – this is not money that we (Department of Health) can ask for accountability on. It is for the Chair and the board to make decisions about what to do with the money. This also applies to the Wilson Fund. “ It would appear therefore that we are unable to query the use of the funding or the guidelines they put in place for applications. Happy to discuss Redacted – s40 (2) Redacted – s40 (2) Healthcare Quality/Ansawdd Iechyd Population Healthcare Division/ Yr Is-Adran Gofal Iechyd Poblogaethau Health & Social Services Group/Yr Grwp Iechyd a Gwasanaethau Cymdeithasol Welsh Government/Llywodraeth Cymru Tel/Fon: Redacted – s40 (2) E-mail/E-bost: Redacted – s40 (2) @gov.wales Email 7 From: [email protected] <[email protected]> Sent: 12 June 2018 20:10 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Subject: Inquiry meeting in Wales Dear Redacted – s40 (2) I hope you are well. Redacted – s40 (2) from Inquiry team has been in touch as they are proposing to have an open meeting in Wales. She was asking for suggestions on suitable venues and contacts in Welsh Govt. I have given her your name, email and telephone number. I have also given Julie Morgan's contact details. I have said that we have held meetings in the Pierhead Building and also at the All Nations Centre. I will be meeting her with the Inquiry team in London on the 19th June for an update about the Inquiry. Hope that's ok with you Best Wishes Lynne This is the contact: Redacted – s40 (2) Deputy Secretary, Infected Blood Inquiry Mobile: Redacted – s40 (2) Address: Fleetbank House, 1st Floor, 2-6 Salisbury Square, London, EC4Y 8AE Email: Redacted – s40 (2) @infectedbloodinquiry.org.uk Lynne Kelly Chair of Haemophilia Wales www.haemophiliawales.org [email protected] Registered Charity No: 1158941 Email 8 From: [email protected] <[email protected]> Sent: 21 June 2018 08:35 To: Redacted – s40 (2) (HSS-DPH-Population Healthcare) <@gov.wales> Subject: Meeting with the Inquiry Team Hi Redacted – s40 (2) We met with Justice Langstaff and the Inquiry team on Tuesday.
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