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NHSCR Data Collection Manual 2011

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NHSCR Data Collection Manual 2011 FORDS Facility Oncology Registry Data Standards Revised for 2011 (Incorporates all updates since FORDS was originally published in July 2002) Includes updates to January 1, 2011 See Appendix C for a summary of changes. © 2002 AMERICAN COLLEGE OF SURGEONS All Rights Reserved ii Table of Contents Preface 2010.......................................................................................................................... xi SECTION ONE: Case Eligibility and Overview of Coding Principles........................... 1–31 Case Eligibility ............................................................................................................... 3 Tumors Required by the CoC to be Accessioned, Abstracted, and Followed........... 3 Reportable-by-Agreement Cases............................................................................... 3 Ambiguous Terms at Diagnosis................................................................................. 3 Class of Case.............................................................................................................. 5 Date of First Contact.................................................................................................. 5 Overview of Coding Principles ..................................................................................... 7 Unique Patient Identifier Codes................................................................................. 7 National Provider Identifier....................................................................................... 7 Coding Dates.............................................................................................................. 7 Cancer Identification.................................................................................................. 8 Patient Address and Residency Rules........................................................................ 13 In Utero Diagnosis and Treatment............................................................................. 14 Comorbidities and Complications ............................................................................. 14 Stage of Disease at Initial Diagnosis ......................................................................... 15 AJCC TNM Staging................................................................................................... 15 Collaborative Staging................................................................................................ 17 First Course of Treatment .......................................................................................... 19 Treatment, Palliative, and Prophylactic Care ............................................................ 27 Embolization.............................................................................................................. 28 Outcomes ................................................................................................................... 28 Case Administration .................................................................................................. 29 SECTION TWO: Coding Instructions ..............................................................................33–356 Patient Identification ..................................................................................................... 35-88 Accession Number..................................................................................................... 37 Sequence Number ...................................................................................................... 38 Medical Record Number............................................................................................ 40 Social Security Number ............................................................................................. 41 Last Name .................................................................................................................. 42 First Name.................................................................................................................. 43 Middle Name (Middle Initial).................................................................................... 44 Patient Address (Number and Street) at Diagnosis ................................................... 45 Patient Address at Diagnosis–Supplemental ............................................................. 46 City/Town at Diagnosis (City or Town).................................................................... 47 State at Diagnosis (State)........................................................................................... 48 Postal Code at Diagnosis (ZIP Code) ........................................................................ 50 County at Diagnosis................................................................................................... 51 iii Patient Identification (continued) Patient Address (Number and Street)–Current .......................................................... 52 Patient Address–Current–Supplemental.................................................................... 53 City/Town–Current.................................................................................................... 54 State–Current ............................................................................................................. 55 Postal Code–Current (ZIP Code)............................................................................... 57 Telephone................................................................................................................... 58 Place of Birth............................................................................................................. 59 Date of Birth.............................................................................................................. 60 Date of Birth Flag ...................................................................................................... 61 Age at Diagnosis........................................................................................................ 62 Race 1......................................................................................................................... 63 Race 2......................................................................................................................... 65 Race 3......................................................................................................................... 66 Race 4......................................................................................................................... 67 Race 5......................................................................................................................... 68 Spanish Origin–All Sources (Spanish/Hispanic Origin) ........................................... 69 Sex.............................................................................................................................. 70 Primary Payer at Diagnosis........................................................................................ 71 Comorbidities and Complications #1 ........................................................................ 73 Comorbidities and Complications #2 ........................................................................ 75 Comorbidities and Complications #3 ........................................................................ 76 Comorbidities and Complications #4 ........................................................................ 77 Comorbidities and Complications #5 ........................................................................ 78 Comorbidities and Complications #6 ........................................................................ 79 Comorbidities and Complications #7 ........................................................................ 80 Comorbidities and Complications #8 ........................................................................ 81 Comorbidities and Complications #9 ........................................................................ 82 Comorbidities and Complications #10 ...................................................................... 83 NPI–Managing Physician.......................................................................................... 84 NPI–Following Physician.......................................................................................... 85 NPI–Primary Surgeon................................................................................................ 86 NPI–Physician #3 (Radiation Oncologist–CoC Preferred) ....................................... 87 NPI–Physician #4 (Medical Oncologist–CoC Preferred).......................................... 88 Cancer Identification.....................................................................................................89-119 Class of Case.............................................................................................................. 91 NPI–Institution Referred From.................................................................................. 93 NPI–Institution Referred To...................................................................................... 94 Date of First Contact.................................................................................................. 95 Date of First Contact Flag.......................................................................................... 96 Date of Initial Diagnosis...........................................................................................
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