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Trustees’ report and annual accounts For the year ended 31 March 2016 Alzheimer’s Society Trustees’ report and annual accounts 2015/16 1 Contents We are the UK’s leading support and research charity Trustees’ report for people with dementia, their families and carers. Chair and Chief Executive’s introduction 2 Enabling our strategy 5 Meeting needs: 6 Demonstrate the way in dementia care and support Sharing information: 8 Be the foremost point of contact for anyone dealing with dementia Advancing research: 10 Lead partnerships and investments in research to improve care, advance prevention and move closer to a cure Inspiring change: 12 Campaign for people affected by dementia to be able to live the lives they want Fundraising: 14 Our achievements and practice Our ambitions 16 What we’ll do in 2016/17 Society money 18 Structure and management 20 Statement of Trustees’ responsibilities 26 Financial statements 27 Independent auditor’s report to the members 50 of Alzheimer’s Society A big thank you 52 Society people 54 2 Alzheimer’s Society Trustees’ report and annual accounts 2015/16 Alzheimer’s Society Trustees’ report and annual accounts 2015/16 3 Strategic report 2015/16 Chair and Chief Executive’s introduction The last year has shown Alzheimer’s Society changing lives in a way Having evidence as the basis for everything we This year’s Memory Walk was the biggest yet with do is a continuous theme of our work. Our ‘Making 50,000 walkers raising close to £4 million for the few would have thought possible five years ago. The ambitions of Evaluation Count’ programme has now been Society, an increase of 41 per cent in comparison our strategy launched in 2012 are being met or exceeded. We also fully rolled out and has gathered, analysed and to 2014/15. Across the board the generosity of disseminated feedback from almost 6,000 people our supporters demonstrated increasing public respond quickly and effectively to new opportunities. In direct affected by dementia. We also have nine new determination to tackle dementia. Thank you for support, support across the health and care services, wider public pathfinder services, two of which are in hospitals, investing in our work. understanding and in research, we are leading the way. People focusing on under-represented groups. At a time of increased public scrutiny of charities, New activity has increased access to information. our expertise on engaging appropriately with affected by dementia inform every step we take and our wonderful Dementia Connect, which allows people to search vulnerable people has helped influence charities volunteers, staff, donors and campaigners make it all possible. online for dementia services, was fully launched and generally to improve fundraising practices. Together they ensure that 89p of every £1 we receive benefits during 2015/16 was searched more than 100,000 Having a first class Board of Trustees and times. Our live online advice service, so beneficial people with dementia and their carers. This report records many Strategic Leadership Team are key to the Society’s to carers who want to speak privately to an adviser, performance. We were pleased to welcome new achievements we are proud of, but we also know that we are only was extended. A survey of 700 users of our advice members to both. We also would like to thank our in the early stages of tackling what is the disease older people are found our information to be high quality, valued former honorary treasurer, John Grosvenor who and have a positive impact. retired at our AGM in 2015 for his dedication to most afraid of and that is costing the UK more than £26bn a year. Bringing about change is not only through our the Society and his continued support for people own direct actions. Alzheimer’s Society ensured affected by dementia as a board member of that all political parties made commitments in Alzheimer’s Disease International. The Society continued to deliver support to people Our influence helped secure a government their manifestoes for the May general election Alzheimer’s Society continues to be the leader in with dementia and their carers in local communities commitment to invest £150m to establish a UK and we have worked closely with Whitehall on the across three nations. Some of this support is Dementia Research Institute. The Institute will be bringing about lasting change for people affected development of the implementation plan for the by dementia. We were delighted to see recognition through local services, directly helping over 100,000 operational by 2018, and on top of the government’s Prime Minister’s 2020 Challenge on Dementia. people, whilst many more are reached through investment we have committed an additional £50m of this in being voted ‘Britain’s Most Admired We have also worked with the Welsh and Northern Charity’ and in the CBE awarded to Jeremy our national advice and information, for example of research funding to become a founding partner. Ireland governments, local authorities and the with more than 35 million page views of our This is the Alzheimer’s Society’s largest single Hughes in HM The Queen’s Birthday Honours. NHS to improve their service provision, ending the This was alongside many other employees and website. The year also saw the expansion of commitment ever made and has helped broaden year with a critical review of hospital care. our Dementia Friendly Communities initiatives, the focus of the Institute to support research into volunteers that have been celebrated in a number including the number of Dementia Friends reaching finding the cure as well as research into improving We ran our first major brand advertising campaign of national and regional awards over the past year. 1.5m – an increase of 50% from the previous year. care, developing new technologies and investigating during Dementia Awareness Week in May 2015 To name just some of our award-winning people: We transform lives by enabling people to be ways to prevent dementia developing in the first and re-ran it over the Christmas and New Year Donna-Louise Cobban who won Best Dementia supported, not shunned by those around them. place. This world-leading Institute will help establish period, supported by high profile media coverage. Care Manager in the National Care Awards 2015, the UK as the leading nation for dementia research. It resulted in increased awareness of Alzheimer’s and Liz Cunningham won Exceptional Contribution Our research portfolio has grown to 122 projects Society among the general public and appeared by a Person Living with Dementia at the 6th at a total investment of £25m – the largest it has Working with partners we will enable the Institute to deliver a step change in dementia research, play in the ‘highest recall in a single week’ category of National Dementia Care Awards. Alzheimer’s ever been and an increase of 19% over last year. Adwatch of the Year’s chart – the only charity to Society volunteer Margaret Gurney was also One pioneering example was the launch of the a significant role in scaling up the research effort and ensure that high quality research is not only do so. awarded the British Empire Medal for her services brain training study that we undertook with to the community in Ballymena and Antrim. King’s College London which demonstrated that delivered but that the findings are implemented brain training could improve cognitive function into practice to make a real difference to the lives of in people over 50. We have also continued with people affected by dementia in the short, medium our commitment to our Dementia Research and long term. Leaders programme, funding over 30 new Leaders in dementia research in the last year from undergraduate bursaries to PhDs and Research Fellowships. 4 Alzheimer’s Society Trustees’ report and annual accounts 2015/16 Alzheimer’s Society Trustees’ report and annual accounts 2015/16 5 Yet with many not receiving a timely diagnosis of dementia, nor the care and support they and their carers deserve, much still needs to be done. Enabling our strategy Equally, more research is needed not only to offer new hope for tomorrow but also better support Alzheimer's Society is the only major national 2020 and highlighted by our ‘Fix Dementia for today. This year we laid the foundations for Ann Beasley CBE charity that represents people affected by Care’ and ‘Right to Know’ campaigns. our next five year strategy which will continue to Chair dementia in England, Wales and Northern Ireland build on Alzheimer’s Society’s remarkable record Delivering on these ambitions requires all our of achievement. By increasing awareness of We provide services that deliver support and people being empowered to play their part. dementia and the work we do, we will be able to advice to people with dementia and their carers. During 2015/16 we set the Society on the road help even more people in the years ahead. We campaign for the rights of people with to digital transformation, forming a directorate dementia to be recognised so that they can to take responsibility for this. We also continued live the life they want and we drive and fund the roll out of our Adapting to Deliver change research into the cause, cure, treatment and programme to ensure we have the right people Jeremy Hughes CBE prevention of dementia. in the right roles to deliver our strategy into Chief Executive the future. Our vision is a world without dementia. We deliver this through our four strategic ambitions: Many thousands of volunteers give their time and talent alongside 2,300 dedicated and skilled meeting the needs of people with dementia staff.