Person Centered Healthcare and Clinical Research: the Necessity of an Evolutionary Hierarchy of Knowing and Doing

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Person Centered Healthcare and Clinical Research: the Necessity of an Evolutionary Hierarchy of Knowing and Doing European Journal for Person Centered Healthcare 2020 Vol 8 Issue 2 pp 235-250 ARTICLE Person Centered Healthcare and Clinical Research: The Necessity of an Evolutionary Hierarchy of Knowing and Doing Peter Wyer MDa & Michael Loughlin PhDb a Associate Professor of Medicine, Columbia University Medical Center, NYC, USA b Professor of Applied Philosophy & Co-Director, European Institute for Person Centred Health & Social Care, University of West London, London, UK Abstract Effective person-centred care requires recognition of the personhood not only of patients but of practitioners. This chapter explores the consequences of this recognition for major debates in medical epistemology, regarding clinical reasoning and the relationship between research and practice. For too long these debates have been dominated by false dichotomies - subjectivity versus objectivity, judgement versus evidence, reason versus emotion. Based on flawed understandings of such core concepts as “objectivity” and “engagement”, this distorted dissection of the subject-object relationship has served to depersonalise practice. The costs of this depersonalisation include over-regulation and micromanagement of healthcare processes by administrators and payers at the same time that information from clinical research remains under-utilized and the personhood of patients’ risks being ignored. Science is a human practice, founded in a broader conception of human reasoning, ontologically dependent on human beings living and engaging with the world in social, emotional and ethical contexts. After looking at different conceptions of epistemic hierarchies and their uses in the analysis and evaluation of reasoning in a range of practice contexts, we propose a “nested hierarchy” that effectively turns upside-down the flawed evidence hierarchies that have helped to depersonalise care. T.S. Eliot’s “wisdom, knowledge, information” scheme (to which we add “data” below “information”) provides a model for a person-centred epistemic hierarchy. This crucial, person-centred inversion represents levels of awareness that characterize more or less developed thinking and judgment on the part of the particular practitioner. Keywords Engagement, epistemic hierarchies, evidence, evidence-based medicine, judgement, knowledge, person-centered care, personhood, reasoning, science, wisdom Correspondence address Dr. Peter Wyer. E-mail: [email protected] Accepted for publication: 17 November 2019 Introduction and clinical decision-making. If we predicate the term “objective” primarily of a person (rather than an impersonal method) and if, by an “objective” person we “The clinical encounter is an interaction between mean someone who puts aside prejudice, thinks critically, persons.” Stephen Henry [1]. questions her own assumptions and searches for the truth, Who is “the person” in person-centered healthcare (PCH)? then it is of course palpably absurd to deny the importance While many authors explain PCH and its importance by of objectivity in all rational thought, including clinical focusing on what it means to treat “the patient” as a reasoning. But the term has a long history, and its current person, [2-4] others note the significance of recognizing usage – in particular its status as an antonym of the term the personhood of practitioners [1,5,6]. This chapter “subjective” - is shaped by assumptions that are so explores the consequences of this recognition for major fundamental in nature that they typically escape critical debates in medical epistemology, regarding clinical attention. And yet, these assumptions have framed the reasoning and the relationship between research and discussion of medical epistemology in this century [7-9]. practice. The conceptual framework shaping our thinking about For many years, medical epistemology has been objectivity has led us to focus on a hierarchy of knowledge dominated by an epistemic hierarchy thought to be designed to delimit the role of “subjective” or “personal” “objective” - but what does this term mean? There are judgment. Attempts to “de-emphasise” intuition, the numerous senses of the term “objective” that render practitioner’s personal experience, tacit and context- objectivity an indispensable aspect of responsible research specific knowledge [11-15], and to elevate such skills as 235 Wyer & Loughlin Person Centred Healthcare and Clinical Research “efficient literature searching and the application of formal of the medical professional as a (usually) male, dedicated, rules of evidence evaluating the clinical literature”, are ethically bound but ultimately paternalistic shepherd motivated by a concern to see reasoning and practice based overseeing the health needs of his patients. Era 2, increasingly on “methodologically sound research” and characterized by the flowering of clinical and health “scientific principles” [11] whose vindication is, precisely, services research, saw the emergence of the need for that they are untainted by the personal and subjective systems development, standardization of services, factors that we rely on in our everyday interactions with regulation of practice and outcome measurements, all in other people [9]. response to the increasing complexity of the healthcare Given that practitioners are, in fact, persons, and rely environment and the emergence of third party payers as on such “subjective” factors as tacit awareness, essential stakeholders in the system. Berwick [19] engagement and empathy [1,6] to understand the real perceives that the processes of standardization, regulation people with whom they must interact and who they aim to and measurement have reached and surpassed a point at assist, discussions have focused on how to “integrate” the which they cease to become assets and begin to become subjective, cultural and personal factors of human major burdens to the efficiency and effectiveness of the knowledge into models of clinical practice that nonetheless system. He proposes the necessity for an “Era 3”, in which place objective evidence at the top of a presumed epistemic regulation and measurement are relaxed in favor of a shift hierarchy [16-18]. in incentives and, among other changes, an emphasis on The problems with this integration project (or rather, patient empowerment and autonomy [20]. re-integration project, since it only becomes necessary to The call for a more user-friendly, consumer-oriented “integrate” these features once a theoretical separation has and humanistic healthcare environment takes place amidst been performed) have led some authors to reject the idea of a proliferation of buzz phrases that correspond to a hierarchy altogether, and to call for a “horizontal sometimes very different outlooks and perspectives. These epistemology” for clinical practice, one which “collapses include ‘patient-centered care’, ‘relationship centered epistemic hierarchies into horizontally ordered libraries of care’, ‘person-centered care’ and ‘whole person care’. In clinical knowledge sources, from which ‘library’ the wise most cases, the corresponding constructs are, at best, clinician will need to draw when considering the unique loosely defined and furthermore tend to ignore the role of personal circumstances of the individual clinical case and the practitioner as a vital partner in healthcare decision- making decisions with him/her” [10]. Here, we argue that making. When an appealing new conceptual framework is the notion of an epistemic hierarchy is indeed advanced and defined only in the most generic, rhetorically indispensable, but it needs to be one that reflects the appealing terms, the resulting buzz phrase is prone to concerns of these critics by considering how individual multiple interpretations and applications whose underlying practitioners can develop their understanding so as to content and motivations may differ widely [21-23]. This practice more wisely. T.S. Eliot’s “wisdom, knowledge, liability is particularly manifest when the concept in information” scheme, to which we would add “data” below question is widely taken up and disseminated. Tanenbaum “information”, represents a model for a person-centered demonstrated that the label ‘patient centered care’ has epistemic hierarchy. This is not a hierarchy of come to refer to at least four different dimensions of “impersonal” knowledge, but rather a representation of healthcare [24]. Indeed, when the uptake of a popular label levels of awareness that characterize more or less is sufficiently broad and the corresponding descriptors developed thinking and judgment on the part of the sufficiently vague, distinctions may break down altogether particular practitioner. and a semantic ‘unity of opposites’ may emerge. Hence Far from ‘de-emphasizing’ personal judgment, or EBM, a movement focused on the importance of research relegating it to a lower form of evidence than supposedly literacy in medical education [25], has been portrayed by ‘impersonal’ sources, we need “an approach to medical some of its advocates as the preferred label to be used in epistemology that places the concept of judgment at the connection with humanistic, patient empowered healthcare centre, and treats the (primarily moral) project of how to [26]. cultivate good judgement as its central concern” [8]. The jumble of terms, slogans and labels pertaining to care of the person that populates the recent healthcare literature reflects a confusion on a much deeper level, one that calls for attention to the underlying epistemological Research, paradigms and practice and
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