Regional Variation in Neurology Patient Experience

REGIONAL VARIATION IN NEUROLOGY PATIENT EXPERIENCE

The findings of The National Neurology Patient Experience Survey present a comprehensive picture of people’s experiences of living with a neurological condition in England in 2018/19. The survey, run by 10,339 The Neurological Alliance, covers a wide range of Number of people topics including diagnosis and information, hospital who responded care, support for mental wellbeing, and access to to our survey social care, welfare and employment. A full analysis of the survey data is published in the Neuro Patience report, and accompanying technical report.

Regional data

For the first time, in 2018/19, we present the compared to the average scores for England. data broken down regionally to Sustainability It also shows the response count for each and Transformation Partnership (STP) level. STP. The Neuro Patience survey report Our online interactive map shows the patient and interactive map can be found experience survey scores for each STP footprint, on our website.

To download the full report visit www.neural.org.uk/patient-experience-survey Regional variation in neurology patient experience

Key findings The findings of the survey can be grouped into The survey results show regional variation across three themes. Care and support for people all three themes, highlighting a postcode lottery in with neurological conditions must be: relation to the experience of people with neurological conditions. The Neuro Patience survey report and ●● Accessible: the speed of access to interactive map can be found on our website. specialists must improve overall and should not vary depending on where you live This information is intended to support Sustainability ●● Personalised and tailored to the needs of and Transformation Partnerships (STPs) and each individual Integrated Care Systems (ISCs) in developing ●● Holistic, addressing people’s mental health, their priorities, highlighting where neurological social care needs, and their financial security. patient experience needs to be improved.

Accessible

Do respondents see a specialist nurse

80%

70%

60%

50%

40%

30%

20%

10%

Devon Dorset Somerset Derbyshire Lincolnshire Staffordshire Gloucestershire West Yorkshire Frimley Health Nottinghamshire Kent and Medway The BlackSurrey Country Heartlands North East London Northamptonshire North West London South East London South West London Mid and South Essex Greater Manchester North Central London Norfolk and Waveney Sussex and East Surrey BirminghamHumber, and Coast Solihull and Vale Cheshire and Merseyside Cumbria and North East Coventry Bath,and Warwickshire Swindon and Wiltshire Lancashire and South Cumbria Hertfordshire and West Essex Cornwall and the Isles of Scilly Suffolk and North East Essex Hampshire and the Isle of Wight South Yorkshire and Bassetlaw CambridgeshireShropshire andand PeterboroughTelfordHerefordshire and Wrekin and Worcestershire Leicester, Leicestershire and Rutland Milton Keynes, Bedfordshire and Luton

Bristol, North Somerset and South Gloucestershire Buckinghamshire, Oxfordshire and Berkshire West

A score of 100% would indicate all respondents who wanted to see a specialist nurse for their neurological condition had access to this. A score of 0% would would indicate no respondents who wanted to see a specialist nurse for their neurological condition had access to this.

Survey methodology The full survey roll-out took place in select neurology clinics and online, from July 2018 to March 2019. It received 10,339 responses. The full survey findings and methodology, along with the stories behind the data, can be read at www.neural.org.uk/patient-experience-survey www.neural.org.uk/patient-experience-survey Regional variation in neurology patient experience

Personalised

Were respondents given written information at the time of diagnosis

60%

50%

40%

30%

20%

10%

Devon Dorset Somerset Derbyshire Lincolnshire Staffordshire Gloucestershire West Yorkshire Frimley Health Surrey Heartlands Kent and Medway Nottinghamshire The Black Country Northamptonshire North West LondonSouth East London North East London South West London Mid and South EssexGreaterNorth Manchester Central London Norfolk and Waveney Sussex and East Surrey Humber, Coast and Vale BirminghamCheshire and and Solihull Merseyside Cumbria and North East Coventry and WarwickshireBath, Swindon and Wiltshire Lancashire and South Cumbria Hertfordshire and West Essex Cornwall and the Isles of Scilly Suffolk and North East Essex Hampshire and the Isle of Wight South Yorkshire and Bassetlaw Shropshire and Telford and Wrekin Cambridgeshire and Peterborough Herefordshire and Worcestershire Leicester, Leicestershire and Rutland Milton Keynes, Bedfordshire and Luton

Bristol, NorthBuckinghamshire, Somerset and South Oxfordshire Gloucestershire and Berkshire West

A score of 100% would indicate all respondents were given written information about their condition at the time of diagnosis. A score of 0% would indicate no respondents were given written information about their condition at the time of diagnosis.

Holistic

Extent to which social care meets people’s needs

50%

40%

30%

20%

10%

Devon Dorset Somerset Derbyshire Lincolnshire Staffordshire Gloucestershire West Yorkshire Frimley Health Nottinghamshire Kent and Medway Surrey TheHeartlands Black Country Northamptonshire South East LondonNorth East London North West London South West London Mid and South Essex Greater Manchester North Central London Norfolk and Waveney Sussex and East Surrey CheshireHumber, and Merseyside Coast and ValeBirmingham and Solihull Cumbria and North East Bath, SwindonCoventry and Wiltshire and Warwickshire Lancashire and South Cumbria HertfordshireCornwall and and West the IslesEssex of ScillySuffolk and North East Essex South Yorkshire and Bassetlaw Hampshire and the Isle of Wight Shropshire and Telford and Wrekin Cambridgeshire and Peterborough Herefordshire and Worcestershire Leicester, Leicestershire and Rutland Milton Keynes, Bedfordshire and Luton

Bristol, North Somerset and South Gloucestershire Buckinghamshire, Oxfordshire and Berkshire West

A score of 100% would indicate all respondents agreed their social care needs are being met. A score of 0% would indicate all respondents disagreed their social care needs are being met.

www.neural.org.uk/patient-experience-survey The Neurological Alliance

The Neurological Alliance is a coalition of 80 organisations working together to transform outcomes for the millions of people in England with a neurological condition. We campaign for high quality care and support to meet the individual needs of every person with a neurological condition, at every stage of their life.

For more information about the survey or for a discussion about the findings in your region please get in touch [email protected] or 01923 882 590.

The Neurological Alliance c.o. The British Polio Fellowship The Xchange Building Wilmington Close Watford Hertfordshire WD18 0FQ

Email: [email protected] Phone: 01923 882 590

The Neurological Alliance is a charity registered by the Charity Commission for England and Wales (registration number 1039034) and a company limited by guarantee registered in England (registration number 2939840).