Service to Humanity Foundation

Towards Ensuring the Sustainability of Katsina SCD Project

By Service to Humanity Foundation

Service to Humanity Foundation (SHF) office complex

SHF Profile……….  Humanitarian NGO, Established, August 2006 Headquarters in Katsina, Nigeria. Founder and President; Dr Fatima Ibrahim Shema

the environment,  From available statistics, 100,000 infants die from sickle-cell disease in Nigeria annually, making it the number one sickle-cell endemic country in Africa. Also based on World Health Organization [WHO] indices, Nigeria accounts for 75 percent of infant sickle-cell cases in Africa and almost 80 percent of infant deaths from the disease in the continent.

A common sight in our clinics Service to Humanity Foundation (SHF) Sickle Cell Service Provision Programme...Objectives:

 To deliver counselling services to affected individuals, other members of their families and sickle cell trait carriers.  To sensitize the public on the preventable nature of the disorder and promote health seeking behaviour.  To serve as reference service centres for reliable diagnosis of the sickle cell disorder  The provision drugs and treatment to affected individuals

Service to Humanity Foundation (STHF) Sickle Cell Service Provision Programme.....Cont’d The Foundation commenced Sickle Cell service provision in July 2008 with 40 registered patients. 6 clinics were established in the three senatorial zones of Katsina state, by June 2016:Number of Registered Patients by Site • Katsina & Dutsinma; 7,449 • Daura & Ingawa; 3,999 • Funtua; & Malumfashi; 6797

• Total;- 18,245

Routine Clinic days

Teeming patients Teeming patients Teeming patients SERVICE PROVISION COVERAGE The three senatorial clinics provide services twice a month.  Counselling Services  SCD Health Education  Management and Referral to specialist centres  Community Outreach Activities  Advocacy  New Born Screening

The Geographical Coverage,  The geographical coverage of 6 states in north western state of Nigeria; Katsina, Zamfara, Sokoto, Kaduna, Kano, Jigawa

The states of Maradi and Zinder in Niger Republic

The IMPACT

 Over 18,000 Registered Pateints  Restored the schooling of thousands of children  Parents, school managements at all levels and govt officials sensitized

 New born screening introduced and being carried out from some health facilities

 Pre-marital genotype testing and counseling being carried out in some tertiary institutions

Acknowledgement

The Annual visit of medical students from the UK The Annual visit of medical students from the UK Visit by US experts Award for SCD services being rendered in Nigeria Award by SCORE Sickle Cell Cohort Research in Nigeria

Appreciation by Local Communities

Appreciation

Sustainability Challenges

 The numbers;- the increasing numbers from 40 patients in 2008 to 18,245 by June this year over stretches existing provisions and available human and material resources.

 SCORE SC Cohort Research has assisted with skills capacity development and laboratory.. The inadequacy and low capacity of the medical and non medical personnel is still a major challenge

 The major challenge is, despite the 3 additional clinics commissioned last year, congestion. There are usually over five hundred patients per site on clinic days.

What is at stake



The existing structures;- the 6 clinics, the HPLC Machine, and well established system

Over 18,000 registered patients from 6 states that include Katsina, Zamfara, Sokoto, Kaduna, Kano, Jigawa in Nigeria and Maradin and Zinder states in Niger Republic

The capacity in terms of skilled and experienced manpower

The existing synergy in form of our established partnerships

Government commitment and political will.

International recognition, linkages and partnerships.

The needed support

 The support of SCORE Sickle Cell Cohort Research is well appreciated. The Foundation will continue to count on them and any other willing patner for human resources capacity development.  The Foundation has acquired a government allocated land for the sole purpose of constructing a clinic and diagnostic laboratory in Katsina township to further address the congestion and ensure the sustainability of the programme. Financial and material support for the construction work and equipping of the proposed additional clinic

Thank you