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Written Public Comments IACC Full Committee Meeting January 12, 2016

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Written Public Comments IACC Full Committee Meeting January 12, 2016 Written Public Comments IACC Full Committee Meeting January 12, 2016 1 List of Written Public Comments Eileen Nicole Simon ....................................................................................................................................................... 4 Jeffrey Brown ............................................................................................................................................................... 14 John Best...................................................................................................................................................................... 15 Eileen Nicole Simon ..................................................................................................................................................... 16 Yadira Calderon ........................................................................................................................................................... 20 Eileen Miller ................................................................................................................................................................. 22 Christine Matovina ...................................................................................................................................................... 24 Gizelle Tolbert .............................................................................................................................................................. 25 Donna Jo Kazee ............................................................................................................................................................ 27 Kathy Blanco ................................................................................................................................................................ 28 Holly H. Masclans......................................................................................................................................................... 32 Michael Kazee .............................................................................................................................................................. 33 Donna Knepple ............................................................................................................................................................ 34 Bill and Karen Fuller ..................................................................................................................................................... 36 Kristen Festa ................................................................................................................................................................ 37 Heather Price ............................................................................................................................................................... 38 Joseph Jackson ............................................................................................................................................................. 40 Jill Rubolino .................................................................................................................................................................. 41 Chanda Jackson............................................................................................................................................................ 44 Shannon Primer ........................................................................................................................................................... 45 Mary Bornstein ............................................................................................................................................................ 46 Eileen Nicole Simon ..................................................................................................................................................... 47 Nicole Cassidy .............................................................................................................................................................. 52 Dwight Zahringer ......................................................................................................................................................... 53 Lea Googe .................................................................................................................................................................... 55 Lisa Ackerman .............................................................................................................................................................. 56 Heather O’Neill ............................................................................................................................................................ 58 Deanna L Mulvihill R.N., Ph.D. ..................................................................................................................................... 59 Kerry Lane .................................................................................................................................................................... 61 Julie Clymer .................................................................................................................................................................. 63 Gail Elbek ..................................................................................................................................................................... 64 Simran Mangat-Garcia ................................................................................................................................................. 86 Carol Fruscella ............................................................................................................................................................. 88 Anne Jakus ................................................................................................................................................................... 90 Brian Hooker ................................................................................................................................................................ 91 Megan Davenhall ......................................................................................................................................................... 92 2 Michelle Del Rosario .................................................................................................................................................... 94 Joanna Ashline ............................................................................................................................................................. 96 Melissa Schneider ........................................................................................................................................................ 98 Lori McIlwain ............................................................................................................................................................. 100 Jackie Martin-Sebell ................................................................................................................................................... 102 Deborah Haney .......................................................................................................................................................... 103 Rosemarie Dubrowsky ............................................................................................................................................... 104 Asha Kumar ................................................................................................................................................................ 106 Matt Carey ................................................................................................................................................................. 107 Ethel ........................................................................................................................................................................... 109 3 Note: Personally Identifiable Information (PII) has been redacted in this document Eileen Nicole Simon November 12, 2015 I don't have that much to say, but will continue to try to say it in ways that might lead to meaningful discussion. I will continue to ask especially for discussion of vulnerable brain systems, and how these may be injured by all known causes of autism. Sincerely, Eileen Nicole Simon, PhD, RN [PII redacted] ---- #1 THANK YOU Thank you, John Elder Robison and Alison Singer, for reading and responding to the Public Comments many of us submitted during the past year while we awaited resumption of meetings by the IACC. Alison Singer, thank you for acknowledging the focus on the severe affliction most parents are requesting of the IACC, especially the lifelong problems that result from minimal language competency. John Elder Robison, thank you for discussing all of the comments submitted. However, I would like to have engaged in a back-and-forth conversation with you, and other members of the committee. You did misinterpret my use of the word acceptance. No one except for me is accepting of my son. He is 53 years old, and we face the abyss. I am consumed with stress and anxiety over his future. What I cannot accept is the attitude of the present day acknowledged research experts. I would have liked to submit an abstract or two or more for IMFAR in Baltimore next spring. But the instructions
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