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Independent Living and Political Participation

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Independent Living and Political Participation Focus: Independent Living and Political Participation International study on the implementation of the UN Convention on the Rights of Persons with Disabilities Content ACRONYMS ............................................................. 4 FOREWORD Martin Essl, Founder, Essl Foundation ................................... 5 EXECUTIVE SUMMARY ........................................... 6 Authors: Silvia Balmas WORLDMAP Michael Fembek Innovative Practices and Policies ........................................ 18 Vincent Hauquier Ingrid Heindorf SOCIAL INDICATORS ............................................ 20 Wilfried Kainz Clara Pitzinger INNOVATIVE PRACTICES 2015 Amelie Saupe Key findings ................................................................ 34 Jessica Vilela Factsheets of all Innovative Practices, listed by country A–Z ....... 37 Innovative Practices of former Zero Project Reports, Updates ..... 76 Zero Project Director: Michael Fembek INNOVATIVE POLICIES 2015 Key findings ................................................................ 80 This publication was developed with contributions from Ingrid Heindorf (Policy Factsheets of all Innovative Policies, listed by country A–Z......... 82 research), Silvia Balmas and Jesica Vilela (Indicators research), Doris Neuwirth Innovative Policies of former Zero Project Reports, Updates ..... 104 (coordination), Christoph Almasy & Paul Leichtfried (design), and John Tessitore (editing). ANNEX Questionnaire of Social Indicators..................................... 107 ISBN 978-3-200-03988-9 Table: Main results of Social Indicators by question ................. 110 Table: All results of Social Indicators by country ...................... 111 © Essl Foundation, January 2015. All rights reserved. Acknowledgements ....................................................... 115 First published 2015. Printed in Austria. Table: Overview of Innovative Practices ............................... 116 Table: Overview of Innovative Policies. 117 Published in the Zero Project Report series: Zero Project Research Network 2015.................................. 118 Zero Project Report 2014: Accessibility Zero Project Report 2013: Employment Disclaimers The views expressed in this publication do not necessarily reflect the views of the Essl Foundation or the Zero Project. The designations employed and the presentation of the material do not imply the expression of any opinion whatso­ ever on the part of the Essl Foundation concerning the legal status of any country, territory, city, or area, or of its authorities, or concerning the delineation of its frontiers or boundaries. For more information on the report, to download versions, and for further analysis of the Zero Project, visit www.zeroproject.org For information or copies, contact: [email protected] Essl Foundation, Aufeldgasse 17-23, 3400 Klosterneuburg, Austria “For a World without Barriers” FOREWORD BY MARTIN ESSL Founder, Essl Foundation I can hardly believe that it has been eight years since my wife, Gerda, and I started the Essl Foundation. It seems both a lifetime ago and yet only yesterday. And so much has happened in just the year since I wrote the Foreword to the Zero Project Report 2014. The Zero Project itself has grown by leaps and bounds. The Zero Project Confer­ ence is just one example. In February last year we held our first ever conference at the headquarters of the United Nations here in Vienna. At the three-day event, focusing on accessibility, we were honoured to welcome 360 delegates from 50 countries around the world. This year, again at the UN, over 400 experts and other concerned individuals joined us from 60 countries to focus on “Independent Living and Political Participation,” and to discuss the newest set of Innovative Policies and Innovative Practices for persons with disabilities. This is a special year for the Zero Project for another reason: co-funding by the PROGRESS program of the European Union enables us for the first to carry the Zero Project to local decision-makers in Austria, the project’s home country. Over the coming months we will organize nine Zero Project Austria conferences through­ out the country, will produce a separate report that is targeted towards the Austrian situation, and will create a website dedicated exclusively to the Austrian context. Next year we will complete our first circle of research: After researching Employ­ ment (2013), Accessibility (2014) and Independent Living and Political Participation (2015), in 2016 the focus of our research will be Education. After that, we will re-visit Employment, giving us also the opportunity to analyse change and change processes for the first time. With the Social Indicators that we have been re­ List of Acronyms searching since the beginning of the Zero Project, we have the right tools at hand. AAT .........Applied Assistive Technologies ILO ..........International Labour Organization ADAP ........ Accomodating Diversity for Active Participation ISL ..........Individual Supported Living None of the work we do would be possible without our global network of experts. ANED ........ Academic Network of European Disability Experts ITU .......... International Telecommunication Union Whereas last year these numbered in excess of 2,000 men and women around the API .......... Association for Promoting Inclusion Ltd. ..........Limited (registered company) world, we are now in a position to benefit from the expertise and knowledge freely DCYP ........ Disabled Children and Young People MIUSA ....... Mobility International USA DMH ......... Department of Mental Health MP ..........Member of Parliament shared with us by more than 3,000 disability experts in over 150 countries. To all DPI .......... Disabled Peoples`International NGO ......... Non-governmental organization of them I convey, as always, my heartfelt thanks. DPO ......... Disabled Peoples Organizations NOUSPR ..... National Organization of Users and Survivors of Psychiatry DRPI ......... Disability Rights Promotion International OHCHR ......Office of the High Commissioner for Human Rights We continue to see our mission as promoting change – change that will both EASPD ...... European Association of Service Providers PA ...........Personal Assistance EBU ......... European Blind Union PAB .........Personal Assistance Budget improve the lives of person with disabilities and, by helping advance the implemen­ ECS .........Environmental Control Systems PAS .........Personal Assistance Services tation of the UN Convention on the Rights of Persons with Disabilities, enable them EDF ......... European Disability Forum PO ..........Personal Ombudsman to take their rightful place in the world. EEG .........European Expert Group on the Transition from Institutional RIADIS ....... Latin American Network of Non-governmental Organizations . .to Community Based Care . .of Persons with Disabilities and their Families ENAT ........ European Network of Accessible Tourism SAVE ........Sexual Abuse Victim Empowerment Our aim remains and will always be for a world without barriers. ENIL ......... European Network for Independent Living ULO .........User-led organization e.V. ..........eingetragener Verein (registered Association) UN ...........United Nations FRA ......... Federal Rights Agency (of the European Union) UN CRPD .... United Nations Convention on the Rights of Persons GAATES .....Global Alliance on Accessible Technologies and Environments . .with Disabilities GmbH ....... Gesellschaft mit beschränkter Haftung (registered company) UN DESA ....United Nations Department of Economic and Social Affairs ID ...........Intellectual Disability UNHCHR ....United Nations Office of the High Commissioner for IDA ..........International Disability Alliance . .Human Rights IE ............Inclusion Europe UNICEF ...... United Nations International Children’s Emergency Fund IFES ......... International Foundation for Electoral Systems WHO ........ World Health Organization Martin Essl IL ............Independent Living WHOCC ..... World Health Organization Collaborating Centre Founder, Essl Foundation | January 2015 4 5 Executive Summary The Zero Project Social Indicators The Zero Project, its organization and its vision of Measuring the implementation of the UN Convention on the a world without barriers. Rights of Persons with Disabilities in 150 countries Innovative Policies Innovative Practices 11 laws and regulations by governments that have 39 projects, programs or social enterprises that have an outstanding impact on Indepenent Living and Political an outstanding impact on Indepenent Living and Political Participation Participation 6 7 The Right to Independent Living About the Zero Project and Political Participation FACTS ABOUT THE ZERO PROJECT The Zero Project was initiated by the Essl Foundation in 2010, and has run in partnership with the The focus of the Zero Project research for 2014–2015 3,000 650 World Future Council (WFC) since 2011 and with the European Foundation Centre (EFC) since 2013. is Independent Living and Political Participation Experts contributing Experts contributing The mission of the Zero Project is to work for a world without barriers, according to the principles and since 2011 (appx.) 2014–2015 (appx.) Independent Living Articles of the UN Convention on the Rights of Persons with Disabilities (UN CRPD). Article 19 of the UN CPRD “sets out a right to live independently and be included in the community, 231 58 recognising that disability results from the interaction No. of nominated
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