------Issue 12 / February 2019

welcome! Louise Robertson RD Louise works at the Queen Elizabeth Welcome to the first The Oatly Way of 2019! Hospital Birmingham as a Dietitian Specialising in Inherited Metabolic In this issue you will find our Disorders (adults) including Galactosaemia feature interview with Louise and is a member of the Galactosaemia Robertson RD. Louise specialises Support Group UK Medical Advisory Panel. in metabolic disorders and discusses galactosaemia with us. She also runs a blog and social media We don’t hear much about pages called Dietitian’s Life. galactosaemia, so this is a www.dietitianslife.com great opportunity to get yourself up-to-speed on this lesser known disorder. Also in this issue you will find our usual ‘bits and pieces’, with details of where you can find us at upcoming GALACTOSAEMIA events, as well as our super easy, vegan-friendly Sunshine What is Galactosaemia? What is the recommended Vegetable Curry recipe - perfect Galactosaemia is a rare genetic diet and is it similar to for all of us trying to eat a inborn error of galactose that for lactose more plant-based diet in 2019! metabolism. It is caused by the We welcome your feedback, so deficiency of the enzyme galactose- intolerance? please do contact me with any 1-phosphate-uridyltransferase (GALT) Treatment for classical comments, including suggestions which is needed in the biochemical galactosaemia is a lifelong for future e-newsletter topics pathway to break down galactose galactose-restricted diet. Lactose - perhaps you would like to into glucose. The deficiency of GALT is the main source of galactose in feature in a future interview leads to the accumulation of various the diet (a disaccharide made up of article? metabolites. In the UK it affects glucose and galactose). Therefore one in 44,000 and it is usually all animal milk and dairy products Lastly, if you would like to followed up in specialist metabolic and foods containing them need to find out more about Oatly please centres. be avoided. A total restriction is visit the Healthcare Professional important and must be adhered to, area of our website here. unlike lactose intolerance where I wish you a happy and healthy How is Galactosaemia small amounts may be tolerated. 2019, diagnosed? Galactose is also found in fruit, Galactosaemia is usually diagnosed vegetables and legumes. In the UK we within the first few weeks of life do not restrict these as the amount when the infant develops a life- of galactose in them is negligible threatening illness. This includes and there is no evidence to suggest Kate Twine feeding difficulties, liver failure that consumption of these foods Registered Dietitian and and bilateral cataracts. Once it has causes any long-term problems. Nutrition Consultant been diagnosed and galactose has A number of hard mature cheeses [email protected] been removed from the diet, then have been analysed for galactose symptoms quickly resolve. Infants content by the Galactosaemia are swapped onto lactose-free feeds, Support Group and they have found usually a soya-based feed. several kinds of cheese to be very low or negligible in galactose. restriction of calcium-containing These include extra mature or foods. Good calcium dietary vintage mature Cheddar cheese, sources include plant-based milk Gruyere, mature Parmesan, Jarlsberg alternatives fortified with calcium, bits & pieces and Emmental cheese. calcium-fortified dairy-free Products aimed at people with puddings and suitable low lactose lactose intolerance (low lactose hard cheese (see above). If calcium products) are often not suitable as requirements are not met then a the product still contains large calcium and vitamin D supplement Supply Problems? amounts of galactose even though will be required. the lactose has been hydrolysed. There is an ongoing debate about We are really sorry if you (or relaxing the diet with increasing your patients) have struggled Are there problems despite age, but due to limited evidence, no to find Oatly in your local recommendations can be given. supermarket lately. Recently we DIETARY treatment and can have had some unforeseen issues the treatment be relaxed? that have limited our production capacity. We’re working hard to Once the galactose-restricted diet References and Further information bring everything back to normal, is started then the acute problems Galactosaemia Support Group so thank you for your patience. resolve. Unfortunately, despite a – Patient support group in the UK Find out which stores we’re in strict galactose restriction some https://galactosaemia.org/ here. people develop long-term problems. International clinical guideline These include speech and language for the management of classical and/or learning difficulties. There galactosemia: diagnosis, treatment, and follow-up. (2016) Welling et al J is no clear association between Inherit Metab Dis (2017) 40:171–176. when it is diagnosed and these New Galactosaemia Guidelines: What neurological disabilities. Women do they mean for Dietitians? (2017) also suffer from primary ovarian Pat Portnoi and Anita MacDonald. NHD insuffi ciency. Magazine Aug / Sept 2017, Issue 127. People with Galactosaemia are also at risk of impaired bone health due to changes in hormones and a

Events: speakers in the next The Oatly Way. VegMed is being brought to the UK by ProVeg UK in partnership with Plant-Based Health Professionals New Resources UK. ProVeg International’s Amy Odene and Publications: Vegmed, The Power of Plants: said: “… we’re hosting VegMed to provide Oatly Tear-Off Pads Bringing Plant-based Nutrition a much-needed platform for the - these popular pads contain into Mainstream Medicine latest research and information information on Oatly and a in plant-based nutrition, which voucher for your patients. Saturday 12th & Sunday 13th October can play a major and still largely Place your order here. 2019, King’s College London underestimated role in preventing Europe’s biggest scientific and reversing disease, improving Climate Change Food conference on plant-based nutrition overall health and reducing the Calculator - This calculator is coming to the UK for the very strain on our increasingly under- from the BBC can be used to first time and Oatly are delighted pressure NHS.” check the carbon footprint to be sponsors! of different food and drink The first day is for health Tickets are available here: options, with oat drink professions: physicians, scientists, proveguk.eventbrite.co.uk being one of the 34 options medical students, dietitians and available! Have a try here. nutritionists and those in related Portion Size Guide - The BNF fields; and will be CPD accredited. has launched a new practical The second day is open to the guide to portion sizes. View general public. the resources here. There is an incredible line up of international speakers, many of BDA Yorkshire, Plant-based Food in the Anthropocene: them pioneers in the field of plant- diets and sustainability the EAT–Lancet Commission based nutrition, including Professor on healthy diets from Tim Key, who will present findings - for hospital and home sustainable food systems, from the European Prospective Saturday March 30th 2019, brought together 37 world- Investigation into Cancer and Leeds Beckett University leading scientists to reach Nutrition (EPIC) as the principal If you are attending this event, a scientific consensus investigator for the University please come and visit the Oatly that defines a healthy and of Oxford. More details on other stand. More details here. sustainable diet. If you haven’t read it yet, use the link here. Sunshine Vegetable Curry

A warming curry that is simple and quick to make, as well as being easy to vary depending on which vegetables are in season. Delicious served with your favourite grains or naan bread and pickles or a dip made with Oatly oat fraiche, chopped coriander and garlic.

Servings: Approximately 6-8

INGREDIENTS:

1 large onion 3 garlic cloves 300 g sweet potatoes 300 g cauliflower 150 g of kale 2 cans of chickpeas (500 g drained weight) Rapeseed oil to fry METHOD: 1.5 tbsp (yellow) curry powder/garam masala 1. Start by preparing the vegetables. Finely chop 2 tablespoons tomato puree the onions and garlic. Peel the sweet potatoes Salt and pepper to season and cut both the sweet potatoes and cauliflower 300 ml vegetable stock into bite-sized pieces. Wash and roughly chop 500 ml Oatly Creamy Oat the kale. Rinse and drain the chickpeas.

2 tablespoons mango chutney 2. Heat a little of the oil in a large saucepan and fry the onions gently for 5 minutes along with curry powder/garam masala.

3. Add the garlic, sweet potato and cauliflower, chickpeas and tomato puree and fry for another 5-8 minutes. Season with salt and pepper.

4. Add the vegetable stock and Oatly Creamy Oat and simmer until the vegetables are just soft, about 10-15 minutes. Remove from the heat, stir in the kale and mango chutney and leave it to stand for a couple of minutes (allowing the kale to warm through and wilt slightly) and then serve.

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