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2014 Impact Report When Research Funding Is Threatened in Congress, We Don’T Lose Hope

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2014 Impact Report When Research Funding Is Threatened in Congress, We Don’T Lose Hope 2014 IMPACT REPORT WHEN RESEARCH FUNDING IS THREATENED IN CONGRESS, WE DON’T LOSE HOPE. WE WAGE HOPE. WHEN THE SURVIVAL RATE WON’T BUDGE FROM 6%, WE DON’T LOSE HOPE. WE WAGE HOPE. WHEN PATIENTS ARE DIAGNOSED AND DON’T KNOW WHERE TO TURN, WE DON’T LOSE HOPE. WE WAGE HOPE. WHEN OUR CAUSE CRIES OUT FOR ATTENTION, WE DON’T LOSE HOPE. WE WAGE HOPE. WHEN WE WAGE HOPE, WE MAKE PROGRESS. Ours is no passive hope. It is a relentless call to action. It is the expectation that change is coming. A rallying cry to change the course of history and rewrite the book on how we fight pancreatic cancer. For the past 15 years, we’ve attacked this disease on all fronts using a comprehensive strategy of funding private research, advocating for increased federal research funding, providing support to patients, and raising awareness nationally. We’ve created an unstoppable movement. Together with our volunteers and supporters, incredible things have been accomplished. But there is still a great deal of work to be done. We will Wage Hope to reach our goal of doubling survival by 2020. CONTENTS RESEARCH & SCIENTIFIC AFFAIRS 1 GOVERNMENT AFFAIRS & ADVOCACY 2 PATIENT AND LIAISON SERVICES 3 COMMUNITY OUTREACH 4 DONATIONS RECEIVED 6 CUMULATIVE LIFETIME GIVING 12 VOLUNTEER LEADERS 15 BOARD OF DIRECTORS 20 FINANCIAL RESULTS 21 RESEARCH & SCIENTIFIC AFFAIRS Fifteen years ago, there were only a handful of ADDITIONAL NUMBERS FROM OUR researchers focused in pancreatic cancer. Today, RESEARCH INVESTMENTS: hundreds are working to find an early-detection method and develop new treatments. 813 Our grant recipients have authored 813 published pancreatic cancer-related papers. 4m In 2013–2014, we awarded 16 research grants totaling more 3m than $5 million. 2m 6,285 1m Our grantees’ published papers have been cited 6,285 times in other publications. Since 2003, we have awarded 110 grants, totaling nearly $23 million. Our grantees leverage every dollar we invest in them into nearly $10 in additional pancreatic cancer research funding, demonstrating both the scientific merit of their work and their commitment to the field. Pancreatic Cancer Action Network 2014 Impact Report | 1 GOVERNMENT AFFAIRS & ADVOCACY Fifteen years ago, there was almost no federal ADDITIONAL NUMBERS FROM OUR funding for pancreatic cancer. Today, a new law ADVOCACY EFFORTS: enabled by our supporters has resulted in a scientific framework that outlines national priorities for making progress in the disease. $105 mil NCI funding for pancreatic cancer research has increased from just over $17 million in 1999 to nearly $105 million in 2012. Funding from the NCI has increased 501% since 1999. 6,241 6,241 advocates sent 16,684 email messages to their elected officials this year. We spearheaded the formation of Advocacy Day 2014 drew the Congressional Caucus on the 450 advocates from all 50 Deadliest Cancers. states to Capitol Hill. To support our in-person visits on Advocacy Day, 878 people placed 2,180 calls to their Congress members asking for increased federal funding for cancer research. Pancreatic Cancer Action Network 2014 Impact Report | 2 PATIENT AND LIAISON SERVICES Fifteen years ago, newly diagnosed patients and ADDITIONAL NUMBERS their families had no place to turn to get information FROM PALS: and support. Today, our Patient and Liaison Services (PALS) program serves more pancreatic cancer +20% We’ve seen a 20% increase in patients and their families annually than any single the number of clinical trials institution in the world. Since 2002, we have touched searches in 2013-14 vs. 2012-13 – the lives of 90,000 people. (2,613 vs. 2,185). 10 PALS served more than We hosted 10 in-person 11,000 patients and families educational events and six this year. educational webinars in 2013-14. 555 555 people attended our in- person educational events. The number of clinical trial searches we perform has 97% increased by 55% over the The average quality assurance past three years, due to our score for the services PALS outreach and education efforts. Associates delivered, the helpfulness of materials provided, and the timeliness of the receipt of materials was 97%. 98% 98% of respondents “feel more Clinical trial searches knowledgeable” after speaking with a PALS Associate. through PALS yield a 14% enrollment rate, in contrast to the national enrollment 87% average of 4.5%. 87% of respondents “feel better prepared to cope with the disease” after speaking with a PALS Associate. Pancreatic Cancer Action Network 2014 Impact Report | 3 COMMUNITY OUTREACH Fifteen years ago, awareness of pancreatic cancer ADDITIONAL COMMUNITY was dismally low. Today, tens of thousands of people OUTREACH NUMBERS: participate in our PurpleStride® and PurpleLight events to draw attention to our cause. Attendance has 363 We have 363 volunteer increased by 37% in just the last year. leaders in 89 communities around the country. 382 382 signature event sponsors In 2013-14, 112,271 people contributed $1,485,490 in participated in our events, sponsorship support. compared with 81,878 the previous year. 1,197 1,197 pancreatic cancer survivors participated in PurpleStride events. We held 139 Community Outreach signature events $9.3 mil Company and community this year. teams raised $9.3 million this year at our signature events. $1.3 mil Community Ambassadors raised nearly $1.3 million through third-party fundraising events. Our volunteer-led signature 850 mil events raised $11.3 million – Volunteers across the country an increase of $1.4 million shared their stories and over last year’s total. generated nearly 1,400 media hits with a reach in excess of 850 million impressions. Pancreatic Cancer Action Network 2014 Impact Report | 4 Now is a revolutionary time for the pancreatic cancer scientific community, with great expectations for significant progress in treating this daunting disease. We are extremely grateful for our passionate supporters who have given so much – time, energy and generous donations – to this cause. And we eagerly look forward to a brighter future as we all Wage Hope together. DONATIONS RECEIVED FROM JULY 1, 2013, TO JUNE 30, 2014 $1,000,000+ Clear Channel Media and DuPage County School District 45 Entertainment Anonymous Maria and David Earling Continental Development Corporation Celgene Corporation Educational Measures Eli Lilly and Company Fredman Family Foundation Edward J. Friedman Foundation Fineberg Foundation Emerson Process Management $250,000 – $999,999 GM Nameplate Epic Nicholas Kalikow Lindsay and Brian Morgan Epstein Family Foundation Adam J. Kasower Jai G. Essenmacher and Family $100,000 – $249,999 Kirkland & Ellis Foundation Falhaber Nissan KOSI 101 Blum-Kovler Foundation Faren Family Trust Laurie and Paul MacCaskill Estate of Beth Paulson Theodora L. Feldberg NewLink Genetics Genentech Firebird Restaurant Group OncoGenex Pharmaceuticals The George and June Block Family Florida Hospital Medical Center Foundation The Paul Mitchell School Honolulu Fox Chase Cancer Center Kathleen and Robert Hugin Jeanne W. Ruesch James H. Gallant Jones Day Union Pacific Railroad Heather and Paul Haaga Ambassador Cynthia Stroum Z Gallerie Hackers for Hope Theodore W. Batterman Family Brian S. Halasinski Foundation $10,000 – $24,999 John Haller The William & Sue Gross Family ABC5 Foundation Halozyme Therapeutics Abramson Cancer Center at The Jeffrey Hammes University of Pennsylvania Harding Academy $50,000 – $99,999 American Association for Cancer Alex and Ani Research Sherry Harrell Biogen Idec Foundation Astellas Pharma Have A Skate With Bob Foundation Cancer Treatment Centers of America The Avoca Group HM Insurance Group Janet R. Star Memorial Fund Bank of America Inkminded.com Madison Charitable Foundation Barrett Cancer Center William H. Isacoff The Mancheski Foundation Berryman Family Charitable Fund Jessie Barker McKellar Foundation Mattress Firm Brannin Charitable Trust Dr. John K. McCormick Foundation Merrimack Pharmaceuticals Susan Brown Karlis Kalejs Ocean State Job Lot Charitable CBS Radio Charlotte KMOV Foundation Cedars-Sinai Health System Karl Knab Melinda and Norm Payson Cherry Creek Mortage Hilarie Koplow-McAdams and Steve McAdams Chris Moorhead Memorial Douglas A. Kotte $25,000 – $49,999 Comcast KPNT 105.7 The Point 830 WCCO Catherine and Dennis Crawford MacDonald Family Charitable Trust AbbVie Kathy and Dennis Cronin Frank C. Marshall Bell Nunnally & Martin Curtis Media Group Anne. T. McGonigle and Greg M. Witter Fred Berger The David Geffen Foundation Mary Ann and Dee McGonigle Ed Cantwell Disciplined Growth Investors Trish McGonigle and Bill Tokheim Pancreatic Cancer Action Network 2014 Impact Report | 6 DONATIONS RECEIVED FROM JULY 1, 2013, TO JUNE 30, 2014 Microsoft Matching Gifts and Giving Wells Fargo Clear Channel Media Campaign WFAN & WCBS Clear Channel Outdoor Minnesota Gastroenterology, P.A. Wisconsin Professional Dance/ Cleary Gottlieb Steen & Hamilton Janet R. Mordecai Diamond Dancers Lauren and Bret Cuthbertson Kathryn and Peter Morgan WNCN Christine and Richard DePosit Mugford Family Fund Yelp Laurel A. Dewald National Hockey League Foundation/ Downtown Design Services Hockey Fights Cancer $5,000 – $9,999 Drexel Cancer Program Dawn and Kenneth Newell Adelante Capital Management Dyncorp Nightwire Magazine ADP Stephanie and William Easom Novartis Pharmaceuticals American Life Fund Ed Haggar Family Foundation Orbison Productions Anita and Christopher Anderson Joan Edwards Pan-Cure Fund Antonella P. Arnone Maija and Alvin Eerkes Pancreatic Cancer Alliance of Polk Avendra County Joan Egrie The Balz Trust Party With A Purpose Jane A. Ehrenstrom Elizabeth and Douglas Batchelder Patty’s Pals The Elsie & Marvin Dekelboum Susan R. Bennett Foundation Leslie S. Pellien Bertha Johnson Memorial For Pan Can EMD Serono Mary and Gary Poland Tom Bickersteth Sally and Tim Ennis Nancy and Stuart Rickerson The Bill Bass Foundation Entercom Communications The Robert and Marion Schamann Brozowski Foundation Bluestone Farms Envision Rx Options The Rosewood Foundation Stephen Blyth Eric and Jill Meyerhofer Charitable Fund Rudi Schulte Family Foundation BMC Software Estate of Daniel J. Tearpock Thomas F. Ruzicka Lynn A. Booth Sylvia Evans Amanda Seyfried Robert M.
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