Prostate cancer news and views ProIssue 4 | Summer 2014 gress Staying active How physical activity can help you get back on track

KENNEY JONES Calculating your risk Can we tell who’s going to Prostate get prostate cancer? cancer and me

Progress | Summer 2014 1 INBOX The Manual Get in touch and have Getting active – your Editor’s 3 your say 14 questions answered note A warm welcome to Prostate cancer news Focus on… Issue 4. Since the last Latest research The latest on new issue our Men United 4 developments 16 treatments movement has grown massively with over 184,000 people taking the online awareness Calculating your risk Prostate cancer test and thousands How do we spot men and me joining the fight. C ONTENTS 6 most at risk? 17 More inspiring stories In this issue we’re asking you, Men United, to get Opening a window Get involved barbecuing in MAN v BBQ into your prostate See how you can (page 20) and help raise MRI and diagnosing become part of money to fund research 8 prostate cancer 20 Men United into a risk calculator that will help us find out who’s most at risk (page 6).

Defining the future Events calendar We also take a look at of research Your diary from now how magnetic resonance 10 Our Research Forum 21 until January imaging (MRI) might help men get a more accurate diagnosis (page 8).

News from us Our support and And our cover star, rock Live chat is go and news services legend Kenney Jones, 11 from The Football League 22 How we can help you talks openly about his experience of prostate cancer and why he thinks we should all be Prostate cancer and talking more (page 12). me: Kenney Jones 12 Read Kenney’s story Finally, there are lots more stories from you (page 17) so thanks to everyone Cover photo by Stephen Daniels /DANPICS who sent something in.

Best wishes,

Photo by Stephen Daniels /DANPICS

Editorial team Nick Wright Dr Sophie Lutter Sarah Lines Sonia Barbate Jocelyne James (Editor)

2 Progress | Summer 2014 Inbox I love receiving Tell us what you think about the magazine. these All feedback is welcome: We want to hear what you’ve got to say. magazines. Every time I get them I Dear Progress Dear Progress Dear Progress learn more Men United is an excellent Please can you let me I had regular PSA tests and about prostate idea to raise awareness know how I can share was diagnosed three years in football. But what is my experience of prostate ago but suffered badly cancer and being done to bring in cancer with other men? from septicaemia after I learn more Rugby Union and Rugby I think it really does help had a biopsy. I think we League, given all the men to speak to someone need more research into a about what my involved and the number who has gone through less dangerous method of family goes of supporters? it – to speak about both establishing the type and the physical and emotional aggressiveness of through day David, Cheshire stress and worry of the prostate cancer. by day. before, during and after Dear David effects of prostate cancer. Anon, Surrey

Thanks for supporting Men Peter, Lancashire Dear Sir United. We’re really excited about our partnership with Dear Peter We’re so sorry to hear The Football League and you had a bad biopsy the number of men we’re It’s great you want to experience. Although reaching. But Men United support other men. There septicaemia isn’t common, isn’t just about football – it’s are lots of ways you can there are risks involved for all men. We’re always share you story. You could with biopsies. Research I think it is looking for ways to get join a local support group is going on at the moment important involved in sport as it’s a or our online community into better tests for great way to get in touch – see page 22 for more prostate cancer. that my sons with all you men out there details. We also train one- Researchers are looking and my brother, and raise awareness of to-one support volunteers, at how things like magnetic prostate cancer. We’ve who can then support resonance imaging (MRI) and his sons, already done a lot of work people who want to talk and blood tests for genetic know as much with Rugby League teams to someone who’s been or protein markers can and are hoping to do more there. If you’re interested play a part in this. You can as possible with Rugby Union. So visit prostatecanceruk.org/ read more about MRI on about prostate watch this space! get-involved page 8. cancer before Write to us: Correction eight weeks, before they need to. Prostate Cancer UK In the last issue we said men feel up to going Fourth floor that some men may be back. It depends on the Thanks The Counting House able to go back to work type of surgery, what for this 53 Tooley Street two weeks after surgery. side effects you are London SE1 2QN This is occasionally experiencing and the magazine. possible, but it’s more type of work you do. common for it to take Your specialist can give longer, about four to you advice.

Like us on Facebook: Follow us on Twitter: Email the Progress team: Prostate Cancer UK @ProstateUK [email protected]

Progress | Summer 2014 3 PROSTATE CANCER NEWS Researchers in Scotland get £500,000 to help improve diagnosis Prostate Cancer UK, resonance imaging (MRI) “Small studies suggest at one of Scotland’s top The Movember Foundation and ultrasound scans that using a special type universities. We can, and and the Scottish could be used to reduce of MRI before a biopsy will, beat prostate cancer – Government have the number of biopsies can help to achieve these and today’s announcement handed researchers that are needed to aims. This funding allows is another step towards this at Dundee University diagnose prostate cancer, me and my team to expand ultimate destination.” £500,0000 to investigate and to more easily spot these studies into a ways to improve the the difference between large trial, with better Dr Iain Frame, our diagnosis of aggressive aggressive prostate cancer comparison methods and Director of Research prostate cancer and and non-aggressive more rigorous protocols.” said, “Each year almost reduce the number of prostate cancer. as many men are unnecessary biopsies. Scotland’s Cabinet diagnosed with prostate Mr Nabi said, “The current Secretary for Health and cancer as women are Work on the five year process for diagnosing Wellbeing, Alex Neil MSP, diagnosed with breast research project will prostate cancer involves said, “I’m delighted that cancer. But research be led by Mr Ghulam several steps, each with the Scottish Government into prostate cancer has Nabi, from the University their own uncertainties. It and Prostate Cancer UK, suffered from a legacy of Dundee’s School of is my hope that the work through their partnership of neglect. By funding Medicine. Mr Nabi’s I am able to do with this with The Movember research projects like this project is to investigate funding will lead to a more Foundation, have been able we are determined to right whether magnetic streamlined diagnosis. to jointly fund the research this long-standing wrong.”

Can having a vasectomy increase a man’s risk of aggressive prostate cancer? The papers recently developed prostate Although this sounds vasectomy and having reported that having a cancer, compared to quite a lot when you aggressive prostate vasectomy can increase 12.1 per cent of men talk in terms of relative cancer, it can’t and a man’s risk of developing who hadn’t. risk (comparing two doesn’t tell us that one aggressive prostate groups), when you turn causes the other, or why cancer. We take a look They found no link it into actual numbers, the link is there. We’d at the research behind between having a it’s really pretty small. need a different type the headline. vasectomy and developing It translates to 17 out of of research to non-aggressive, localised 1,000 men who didn’t understand that. This story was based on a prostate cancer. have a vasectomy 24 year follow-up study of developing aggressive Deciding whether or not to 49,405 men in the United But they did find that prostate cancer, have a vasectomy is highly States. Of these, 12,321 there was a 22 per cent compared to 19 out of personal, and should be (25 per cent) men had increased relative risk of 1,000 men who did. discussed with a GP. a vasectomy. developing aggressive prostate cancer for men The other important thing We don’t think men need In total 12.4 per cent who’d had a vasectomy about this research is to be too concerned of men in the study compared to men that although it shows us about these results at who’d had a vasectomy who hadn’t. a link between having a this stage.

4 Progress | Summer 2014 UK sees first ever centres of excellence in prostate cancer research The Movember Foundation They are part of a The aim is to speed aggressive prostate in partnership with coordinated attack up our understanding cancer, identifying men Prostate Cancer UK have on prostate cancer in of the disease through at high risk of aggressive launched the UK’s first the lab and in the clinic innovation, making sure disease, and finding ever centres of excellence and represent a big lab breakthroughs turn better treatments for programme in prostate move forward for the into actual benefits men with advanced cancer research. future of prostate for men as quickly prostate cancer. cancer research in as possible. The two centres, one the UK. The centres are about split between Belfast The two new centres long term impact. They and Manchester and The Movember Centres will work together for will support the careers of the other in London, of Excellence will the next five years on future leaders in prostate will bring together 22 see an injection of programmes that will cancer research through leading researchers £10 million over a five tackle three crucial a strong emphasis on across different scientific year period – the largest areas of prostate cancer training, so that men disciplines to tackle single investment into research – telling the will benefit from this important unanswered the disease by the difference between investment for years questions. partnership to date. aggressive and non- to come.

Progress reports on the FROM THE LAB research we are funding Can we improve radiotherapy to reduce because sometimes healthy organs near the prostate, side effects? particularly the rectum, can get the higher dose too.

We’ve just awarded Ashley D’Aquino at the Royal At the moment, radiographers try to limit the amount of Marsden Hospital a Prostate Cancer UK/College of radiotherapy to healthy organs by scanning the prostate Radiographers Clinical Training Fellowship, funded by and surrounding area, and mapping everything before The Movember Foundation. treatment starts.

Ashley will be looking at whether taking pictures But Ashley D’Aquino thinks that because the rectum (imaging) of the prostate and surrounding organs, before can change size or position during the course of each radiotherapy treatment, can help the radiographer treatment, which usually lasts seven to eight weeks, lower the dose of radiotherapy men receive. This would just taking images before the first radiotherapy dose reduce the impact of the treatment on healthy tissue might not be the best way to limit side effects. and therefore potentially reduce side effects. Instead, during the course of her research, she will take Giving higher doses images of the prostate and rectum before every dose. of radiotherapy to the She’ll then measure the radiotherapy that builds up in prostate can improve the rectum each time, and compare this with what the how well treatment works planned dose was. – especially if you can target the cancerous Ashley thinks this project will demonstrate that taking parts of the prostate to pictures of the surrounding organs before each get the higher dose. But radiotherapy dose can help reduce damage to healthy increasing the dose also tissues, like the rectum, and so reduce side effects, risks increasing some side which can have a big impact of men’s lives. If so, this effects of treatment, like could change the way radiotherapy is given within the bowel problems. This is next three years.

If you’d like to comment on this or other news stories, go to prostatecanceruk.org/news and join the conversation.

Progress | Summer 2014 5 leaving them to deal with life-altering side effects like incontinence and sexual problems.

We need to be able to identify those men at risk of developing aggressive prostate cancer before Calculating it develops. In order to do this, we want to create something called a risk calculator. This would be a way of putting together everything we know about prostate your risk cancer risk to then tell an individual man his chances of developing the disease. Can we tell who’s going to At the moment we don’t know exactly what this get prostate cancer? risk calculator might look like, because it doesn’t exist yet. But we’re currently raising money to fund research into developing it.

What we’re looking for is something practical that Results from a recent public survey a GP can use. So that, when a man visits his GP, showed us that we need to do more they can use the risk calculator to pull together to help men understand their risk of information about that man’s age, family history, prostate cancer. But while we’re working ethnicity and prostate specific antigen (PSA) levels to get everyone talking about the disease and any genetic changes in his DNA. through our Men United campaign, how much can your doctor even tell you about your We hope that the risk calculator will turn all this personal risk of prostate cancer, especially information into a simple score for each man’s risk the aggressive kind? of developing prostate cancer. The GP would then be able to give each man, as an individual, a much We take a look at the critical research that we clearer picture of what he should do next. need to fund to help stop one man from dying every hour from prostate cancer. The good news is that we don’t need to start completely from scratch. A lot of research has Men are at increased risk of developing prostate already been done into different areas of risk that cancer if they are over 50, if they are Black or if researchers can draw on. And successful ways to their father or brother have been diagnosed with calculate risk already exist in other countries and prostate cancer. A recent survey we commissioned populations. We just need to find one that works from YouGov has shown us that 4 out of 5 men at here in the UK. increased risk of developing prostate cancer are unaware of their risk. If researchers are successful, such a tool could be ready to roll out across GP surgeries throughout the Without this knowledge, and with most early prostate UK within the next five years and could revolutionise cancer causing no symptoms, what is there to how we diagnose and treat prostate cancer. prompt a man at greater risk to go and visit his GP?

And even if a man is dignosed, can doctors tell him which type of prostate cancer he has – the aggressive cancer that might threaten his life or the non-aggressive type?

At the moment, there’s no reliable way of doing this. And while catching aggressive prostate cancer early can help save lives, detecting non-aggressive cancer may lead to men having unnecessary treatment –

To find out more about the risk of developing prosatate cancer visitprostatecanceruk.org/risk

6 Progress | Summer 2014 Leaving no gene or protein unturned

We still don’t have all the certain proteins, called treatment, and those increased risk of prostate answers about risk and chemokines that can men who don’t. cancer. At the moment prostate cancer – but affect how cancer grows she’s investigating we’re working hard to and spreads. Funded by Prostate whether mutations in find them. Here are three Cancer UK and the any of 193 genes that more research projects Funded by The Masonic Samaritan Trust repair DNA damage, we’re funding into risk. Movember Foundation increase a man’s risk of Professor Ros Eeles at developing aggressive Dr Christine Galustian Dr Hayley Whitaker the Institute of Cancer prostate cancer. from King’s College is researching a protein Research in London, is London is looking called NAALADL2. using prostate cancer Funded by Prostate at whether a protein This protein is found genetics to understand Cancer UK and The called DARC, which at higher levels in which men are at risk of Movember Foundation is missing in over aggressive than non- aggressive disease. Her 60% of the African aggressive prostate lab has identified many Caribbean population, cancers and may one of the genetic changes can help protect against day help to tell the we currently know about, developing aggressive difference between including those in the prostate cancer. DARC those men whose BRCA1 and BRCA2 works by removing cancers need immediate genes, which give an

What do you know about risk?

If you’re a regular Progress reader, you may know more than the average man on the street. But when we surveyed almost 3,000 members of the public*, we found a big knowledge gap, especially in men’s awareness of their own risk.

Only 2 in 5 people (40%)know that Only 1 in 20 people being aged 50 or (5%) know that being over increases Black increases a a man’s risk of man’s risk of 50 prostate cancer prostate cancer

Only half of the UK population (47%) know that having a family history of prostate cancer increases your 4 in 5 men (83%) at increased risk of prostate risk of getting cancer don’t know they’re at greater risk the disease

*Figures from YouGov Plc. Total sample size was 2,864 adults. Fieldwork was undertaken between 13 January and 4 February 2014. The survey was carried out online. The figures have been weighted and are representative of all UK adults (aged 18+). 2014.

Progress | Summer 2014 7 Opening a window into your prostate

It’s not quite like looking for a needle in a haystack, but the random nature of taking samples means that at the moment up to 30 per cent of tumours are missed.

Professor Mark Emberton, who is currently looking at using MRI before a TRUS biopsy to pin point where and if there is cancer, explains it like this:

“Our current approach – a PSA test followed by TRUS biopsy – misses significant cancer far too often. It also misclassifies prostate cancer in about a third of men who are diagnosed. This misclassification is almost always in the direction of telling men they have low risk disease when they have not.

“The other problem is that random biopsy identifies With most things in life, if you’re aiming for a a lot of disease that is insignificant. What we mean target, you know where that target is. Whether by this is that men are told they have prostate cancer you’re shooting for goal or swinging for a hole-in- when actually that cancer is so small it cannot be felt one. But when doctors are trying to find cancer in by the finger, nor seen on any form of imaging.” your prostate, they’re effectively going in blind. A prostate biopsy is also an invasive procedure that Can a new form of imaging, called multi- carries risks for men. One third of men experience parametric (mp) MRI, help doctors make sure pain, fever, bleeding, infection, problems urinating they don’t miss life-threatening prostate cancer or other issues after biopsy. And up to 3 in 50 men and help men avoid unnecessary biopsies? We (6 per cent) may get a more serious infection. If there investigate and speak to the experts. was a way for men to avoid having a biopsy unless they really needed one, then they would also avoid One of the biggest problems we need to solve with these risks. prostate cancer is how to get better at diagnosing it. Multi-parametric MRI – a revolution? At the moment, if a man has higher than normal levels of prostate specific antigen (PSA) in his blood, this A new more accurate way of using MRI, called multi- could suggest that he has something unusual going parametric (mp) MRI, may be able to help doctors find on with his prostate. But it takes a biopsy, where cancer before biopsy and help to guide the biopsy doctors use thin needles to take small pieces of tissue needles to where they know the cancer is. from the prostate, to actually find out whether there is any prostate cancer. An mpMRI is made up of up to three different types of MRI scan which radiologists look at together And even a biopsy isn’t fool proof. The most common to give a clearer picture of what’s going on in the procedure uses a trans-rectal ultrasound (TRUS) prostate – such as if and where there might be which can help guide the specialist to the prostate but a tumour. can’t tell them where to find the cancer, if there is any. So the samples are taken randomly. This means that The potential benefits of using this type of MRI areas of aggressive cancer could get missed or tiny include being able to spot, and more accurately areas of non-aggressive cancer could get picked up, investigate, cancers that need treating – as well as which could lead to unnecessary treatment. ruling out the need for some men to have a biopsy

8 Progress | Summer 2014 Opening a window into your prostate

in the first place. And Professor Emberton is biopsy. The future of pre-biopsy MRI rests to a large positive about its future. extent on the results of this vitally important ongoing trial.” “I believe mpMRI will revolutionise diagnosing prostate cancer,” he told us. “This is a big moment – for the Is the future bright for mpMRI? first time in history we can actually see the cancer we’re treating. On the other hand, we can also see In an update to its guidance earlier this year, NICE – and show our patients – when there’s no cancer, has in fact recommended that doctors consider using which is reassuring.” multi-parametric MRI for men who’ve already had a biopsy that hasn’t found cancer. This is a great step Professor Emberton is currently running a large scale and could help men avoid more unnecessary biopsies trial, the PROMIS trial, looking at multi-parametric by confirming that there is no significant cancer in MRI. It is has been running since 2012, and is also their prostate. looking at the cost-effectiveness of using mpMRI before biopsy – vital information if it is to become part of standard practice in the UK.

But is this revolution realistic? This is a big moment – for Although mpMRI may seem like an obvious next step in improving how men are diagnosed with the first time we can see the prostate cancer, there are reasons why it isn’t standard practice. cancer we’re treating.

Firstly it takes a good deal of skill and expertise to And experts are also starting to talk about how it effectively produce and interpret mpMRI images and could be used in helping to better target and treat learning this takes time. some types of prostate cancer.

Secondly, The National Institute for Health and Care But it will take evidence of effectiveness and importantly Excellence (NICE) will need strong evidence that cost-effectiveness, as well as significant investment it works for it to be able to recommend using it in in training, before multi-parametric MRI can truly practice before biopsy. So, if mpMRI is really as make a difference to men being diagnosed with effective as it is claimed, we hope that the data from prostate cancer. Professor Emberton’s trial, which finishes in 2015, will provide this evidence. At our recent Research Forum (see page 10) we asked prostate cancer experts from around the world their “The results of the PROMIS study will be key,” says thoughts on the future of mpMRI. The feeling was Dr Chris Parker, Consultant Clinical Oncologist at generally positive but also realistic. the Royal Marsden, who, like Professor Emberton, is optimistic about the difference that MRI could Professor Ken Muir, Professor of Epidemiology at make to men being diagnosed with prostate cancer. the University of Manchester, summed it up like this, “PROMIS is currently recruiting over 700 men who “Using imaging in prostate cancer is a really exciting are about to undergo their first prostate biopsy. development, but it’s still relatively new. Will it be able to In the study, men have a state-of-the-art multi- do everything we hope? We’ll just have to wait parametric MRI scan prior to a comprehensive and see.”

If you’d like to comment on this or other news stories, go to prostatecanceruk.org/news and join the conversation.

Progress | Summer 2014 9 Defining the future of research When great minds get together

And perhaps the most useful part of the discussion came from the scientists acknowledging that they’ll need to work together to get these new molecules to a point where they won’t be one-off discoveries in a lab, but can actually be used in the doctor’s surgery.

For Professor Christopher Woodhouse, who has organised the forum for the last 22 years, hammering out ideas in this way is exactly what the forum is designed for. He told us, “The forum provides a platform for researchers to hear about challenges faced by clinicians (eg doctors), so they can target their work From food scientists to geneticists, molecular to maximise clinical benefit for men. Equally, clinicians biologists to surgeons, the Prostate Cancer UK learn about the latest research developments and can Research Forum brings together experts from transfer that knowledge into their everyday clinical every area of prostate cancer research across the practice. It’s a win-win for everyone involved, especially globe. With all these amazing brains in one room, men with prostate cancer.” we had one thing in mind – to get them talking. Dr Sophie Lutter reports from this year’s We also spoke to some of the researchers we already conference in Baltimore. fund, to find out what they thought.

The Prostate Cancer UK Research Forum happens Caroline Moore, from University College London every two years and is three days of intense (UCL), told us how pleased she was to meet molecular discussion between prostate cancer experts – all biologists and food scientists, because they’re not with different ideas and approaches to research. people she would usually come across, and she was The beauty of this meeting is that it gives these hoping that they could work together on a project she’s experts time to think up ways to weave their different currently planning. approaches together and then make them happen. Dr Gerhardt Attard from the Institute of Cancer Research This year we saw hours of really interesting told us how useful it was to talk to other scientists who discussion into new prostate cancer biomarkers. were working on similar questions, but tackling them from A biomarker is something – usually a gene or a a completely different angle. protein – that can be measured to identify a particular medical condition. And finally, Professor Mark Emberton (pictured above left), also from UCL, told us that within the three days There was discussion about the number of prostate of the conference he’d come up with ideas for five new cancer biomarkers that are being investigated at research proposals that he’d never have thought the moment – biomarkers that can be used when up otherwise. diagnosing prostate cancer, to distinguish between aggressive and non-aggressive disease, and We hope that all of these conversations will lead to new biomarkers that can predict if cancer will come back research projects that we can fund to bring clear benefits after treatment or how well treatment will work. to men with prostate cancer.

Watch our researchers talk about their work in our new online films prostatecanceruk.org/research

10 Progress | Summer 2014 NEWS It’s time Challenging to chat inequality

This month we are We’ve just published a Specialist Nurse Meg launching two new online report highlighting some services for men with of the inequalities faced prostate cancer – live chat by men with prostate and relationship chat. cancer across the UK. The numbers Fancy a pint? Live chat is a way for you The report, ‘Five game We’ve just teamed up with to instantly message one inequalities, five some new retail partners of our Specialist Nurses solutions’ picks out the This coming season you to try and reach more men when you’re on our key challenges that need will see our logo on all at their watering holes. website. If you’re looking to be addressed by all players’ shirts in The for information, need a UK healthcare agencies, Football League. Leading sports bar quick answer or need help around awareness, company Rileys has finding your way around, ethnicity, age, differences As their official charity pledged to raise look for the prompt at the in care and access partner, our Man of Men £100,000, as well as bottom of the screen to to treatment. symbol will be included raising awareness, instantly chat to one of on players’ kits on the through sports-related our nurses. We launched it in June number on the back events for staff and their at Westminster where of each player’s shirt loyal customers, 90 per Relationship chat is a new our team of 31 supporter from the start of the cent of whom are men. partnership with well- campaigners did a 2014/15 campaign. established counselling fantastic job of getting Hot on its heels is the service Relate. We know our mesages out there It’s the first time a charity’s Spirit Pub Company, that having prostate and persuading MPs logo has been included who will be hoping to cancer can often have to get behind our fight by a domestic league raise £70,000 through a big impact on men’s for better care for men on every single player’s football-related activities relationships. If you, or with prostate cancer. It strip. Supporters of all 72 at 750 of its pubs across your partner, want to was a great example of clubs will also be able to the UK. chat online to a trained Men United in action. purchase the branded relationship counsellor numbers to accompany But if you fancy a drink you can now access one The next General the replica shirts. at home instead of away, through our website. Election is now less Two Fingers Brewing than a year away in May Our pioneering partnership Company, has produced prostatecanceruk.org/ 2015. To help us make with The Football League a new craft beer called we-can-help sure these inequalities aims to reach over Aurelio Beer, a British- are addressed by all 16 million fans up and brewed golden ale, the the political parties, down the country. See sale of which gives all join our campaign at: how you can support the profits to us. Aurelio Beer prostatecanceruk.org/ partnership by taking part is available at Tesco and inequalities in #shirt2work (page 20). Ocado.com

Progress | Summer 2014 11 PROSTATE CANCER AND ME Kenney Jones

Rock legend Kenney “In fact my biggest worry what’s happening. I’d say Jones drummed his was about if the cancer read up, and re-read. I way through the ’60s, had spread. I remember wanted to know everything ’70s and ’80s in iconic having the MRI scan – all the options, how the bands, The Small Faces, and thinking ‘what else treatment worked, the The Faces and The Who. will they find?’ So it was possible side effects. Now in his 60s, Kenney a huge relief when they has been living with didn’t find anything. “At hospital I was given an prostate cancer since information pack so when 2013. We talked to him I got home, if there was about his experience. something I wanted to check, I just looked it up. Having had thyroid cancer back in 1984, Kenney I can remember “I nearly drove the family wasn’t a stranger to being mad! I kept reading bits told he had cancer. having the out to them all the time. I watched the information “I have always had MRI scan and DVDs with my family – my regular prostate thinking ‘what wife Jayne and my children check ups with – it meant that everything my doctor, finger else will was out in the open and up the bum, we could all discuss the whatever you they find? options. I think they saw call it, and I was I was dealing with it okay always okay, or “Because my cancer so that put their minds at at least thought was contained in my rest. They were worried, of I was. prostate I decided to course, but we could talk have brachytherapy. The everything through, which “But looking team at the Royal Surrey helped me a great deal.” back I kind Hospital were amazing. I of reckon I had all my treatment on the Choosing brachytherapy, knew I had NHS and that was the best which is a type of it. So when thing that happened to me. radiotherapy to the I got the I can’t fault it in any way, prostate, meant that diagnosis, from start to finish. I know I Kenney had to deal with it was much was lucky in having a really some not so nice easier for me good hospital experience. side effects. to handle. I’d And the nurses – they already had a were absolutely brilliant.” “The worst side effect of thyroid tumour, treatment was not sleeping so I went through Kenney found that getting because I just couldn’t pee. all that cancer as much information as I would go to bed and just shock earlier. And I possible really helped. lie there. It was a constant think a part of me feeling of wanting to wee felt I was living on “I can’t stress how and nothing happening. I borrowed time. important it is to know can’t describe it.

Photo by Stephen Daniels 12 /DANPICS Progress | Summer 2014 “It felt like it was never symptoms (of a prostate Having prostate cancer getting better. I ended up problem), weak flow, hasn’t slowed Kenney sleeping in another room getting up to go in the down. When we met him where I could watch the TV night, but I just put it all he was busy organising – anything to try to take my to one side, like lots of a fundraising event – a mind off it. men do. mixture of polo, classic cars and rock, “A few weeks after my “I think the best thing I ‘Rock n Horsepower’. op I started getting out ever did was talking it all and about but wherever through with my family, “I don’t want people I drove I would work out being completely honest Kenney (centre) with thinking I’m putting on a where the service stations about it, with them and The Faces in the ‘70s fundraiser just because were, in case I needed to everyone else. I think all I’ve got prostate cancer. stop. I even bought this men need to talk about It’s been planned for two special wee container, this. It’s going to affect a “Men of my age still years – long before I was like a bottle, that you can lot of them and we need to remember horror stories diagnosed. A friend of use if you get caught get rid of the taboos. around prostate cancer mine suggested it because out. I never needed it from years ago – how he knew someone with but knowing it was there “I talked to everybody, the treatment leaves you prostate cancer. helped me. I wanted to be but I did notice that other impotent. But men need prepared for the worst. people find it hard to talk to know things have “Now it seems odd that, as about. When I first got changed a lot. Yes, some I sat there all that time ago, “Now, around four months my diagnosis and was people do have problems, talking about this event, I down the line and I’m out and about, I’d say I but there’s a lot that can had prostate cancer inside starting to see a difference. had prostate cancer and be done to help that now. me, I just didn’t know. And It’s gradual – but I always people would sometimes For me everything works, it’s not just fundraising, it’s knew it would take a while try to change the subject. if you want to put it like a chance for me to raise to recover. I just can’t that. I think men need to awareness and get people wait for the side effects to be less inhibited about talking about it. wear off. But I’d say – it’s this – talk about their nothing you can’t worries. There is so “I’ve had terrific support deal with.” much help now. from friends in the music I’ve had terrific industry, everyone’s rallied Getting people to talk “And younger men round. That’s been great.” about the disease is support from need to be aware, too. something Kenney is They need to know what “I think you do have to be passionate about. friends in the the risks are. I have four positive with any cancer. sons and it’s important I believe in a ‘heal thy “Most men are like me music industry, that they understand they self’ attitude. I talked to and will live in denial. everyone’s have an extra risk now my body and I said to the There were probably 15 that their dad has cancer, ‘I don’t want you years when I had all the rallied round. prostate cancer.” here – get out’.

For more information about living with prostate cancer visit prostatecanceruk.org/living

Progress | Summer 2014 13 THE MANUAL Your questions answered about Physical activity and prostate cancer

Physical activity has many health benefits for men with prostate cancer, but staying active during cancer treatment can be a challenge. Here, our Specialist Nurse Naomi answers your questions about keeping fit with prostate cancer.

Why do I need to stay physically active? bladder

Staying active is good for your general health and wellbeing. It helps improve your circulation which means the blood flows around your body and delivers the oxygen and nutrients that your tissues need to work well. prostate gland Physical activity helps to use up any spare calories, urethra which makes it easier for you to stay a healthy weight. It can improve your energy levels, lift your mood and penis help with some of the side effects of treatment, such as fatigue. Being a healthy weight can also help erection problems and bowel problems, like constipation. It can testicle also reduce your risk of heart disease and diabetes.

Some research also suggests that physical activity and being a healthy weight can slow down the growth of prostate cancer.

How can physical activity help with the side effects I’m experiencing?

There are many side effects of treatment which regular physical activity can help you manage. For example, extreme tiredness (fatigue) can be a side effect of most cancer treatments. Regular physical activity can help boost your energy levels and help you feel less tired.

To find out more about living with prostate cancer visit prostatecanceruk.org/living

14 Progress | Summer 2014 If you’re on hormone therapy staying active is even more important. Hormone therapy, apart from causing How much physical activity should I do? fatigue and tiredness, can also cause weight gain, mood swings, muscle loss and thinning of the bones. This will depend on the stage of your cancer and Staying active helps keep the weight in check and lifts what treatment you’re having, as well as your the ‘blues’. Resistance exercises such as swimming fitness levels. Even if you don’t feel able to do a lot of and lifting light weights can help to reduce muscle loss physical activity, regular small amounts will help. and keep you stronger. Start with an activity that fits around your day, like Staying physically active can also help with side walking to the local shop instead of driving. Gradually effects such as anxiety and depression. increase the amount you do as you become fitter. If you can, build up to 30 minutes of physical activity three Talk to your doctor or nurse before starting any to five days a week. Half an hour of activity may seem exercise. They may be able to refer you to a daunting, but remember you can reach this amount by physiotherapist who can suggest a specific doing 10 minutes of activity three times a day. exercise programme for your needs. Speak to your doctor before you start any kind of They may also be able to put you in touch with exercise plan. This is particularly important if you have a local exercise programme run by qualified any other health problems, such as heart disease or trainers, which, depending on your circumstances problems with your joints or muscles. Your doctor can and what’s available, may be offered free or at a give you advice and help you get started. reduced cost. Is it safe for me to exercise when I’m How can I stay active when I feel exhausted having treatment? all the time? Gentle exercise is usually safe for men with Tiredness (or fatigue) is one of the most common prostate cancer and those having treatment. But effects of cancer. It can be the result of the it’s a good idea to talk to your doctor or nurse about cancer itself, or its treatment. Just the experience of the activities you want to do. Your doctor may suggest a cancer diagnosis or going through treatment can you avoid certain activities. For example, radiotherapy be stressful and worrying, and this can leave you can cause skin irritation so if you enjoy swimming you feeling exhausted. may need to stop doing this during your treatment as the chlorine can make any skin problems worse. It’s good to have some periods of rest, but not doing anything all day can make you feel more tired and If you’ve had surgery, your doctor may suggest you less motivated. Try and stay active with some gentle avoid swimming, long walks and heavy lifting for a exercise – even if it’s just a stroll around the block. period of time. Ask your doctor when you can begin It can help lift your mood and make you feel more normal activities again. energised and awake. I’m finding it hard to get motivated, what If you’re feeling too tired to walk outdoors, simply can help? move around your home. You can even exercise from your chair or bed. Try lifting and and stretching your Staying active can be fun and doesn’t have to be arms and legs, which can help improve your a chore. Find an activity you enjoy, take things at muscle strength. your own pace and keep your exercise goals realistic. Ask friends or family to be involved and choose an activity which fits in with your life. For example, meeting What sort of physical activity should I do? up with friends to go for a walk together.

Physical activity can be any activity that makes Joining a local walking, gardening or dance and drama your heart beat faster so that you’re slightly group is another great way to stay active. Contact your breathless – but still able to talk. Walking, swimming, local library or community centre to find out what’s cycling, pottering around the garden, mowing the happening near you. lawn, dancing or even doing some household chores are all good ways of keeping yourself active. Don’t be Following an exercise programme, such as 10,000 afraid to try something new. If you find something you steps a day can also help you stay motivated. You can like, and that fits around your everyday life, you might get more information about walking 10,000 steps a day be more likely to stick with it. from the NHS Choices website.

Progress | Summer 2014 15 New treatments for advanced prostate cancer FOCUS ON You’ve probably read stories in the news over the past year about new drugs for advanced prostate cancer (cancer that’s spread to other parts of the body) – particularly about life-extending drugs and whether or not they’re going to be made available to the men who need them.

It can sometimes be hard to get hold of information about these drugs or find out if you can get them. Ask your doctor or nurse about what’s suitable for you or call our Specialist Nurses on 0800 074 8383.

Enzalutamide (Xtandi®) Abiraterone (Zytiga®)

What is it? A type of hormone therapy, taken What is it? Like enzalutamide, it’s a type of as a tablet, that works by stopping the hormone hormone therapy taken as a tablet. It works by testosterone from reaching the prostate cancer cells. stopping the production of testosterone, so cancer Without testosterone, the cancer cells are not able cells can’t grow. It may help some men to to grow, wherever they are in the body. In a recent live longer. It can also help control symptoms. clinical trial, men who took enzalutamide lived for about four months longer than those who were given Who can have it? It’s for men whose prostate a placebo (dummy treatment). cancer has spread to other parts of the body and has stopped responding to other hormone therapy Who can have it? It’s for men with advanced and chemotherapy. It also works well before prostate cancer that’s no longer responding to chemotherapy. You may be able to get it before hormone therapy or chemotherapy. It’s available in chemotherapy through the Cancer Drugs Fund or England, Scotland and Wales but you may not be if your doctor puts in a treatment request for you to able to have it if you’ve already had abiraterone. your local health board.

Cabazitaxel (Jevtana®) Radium-223 (Xofigo®)

What is it? A type of chemotherapy that uses anti- What is it? A type of radiotherapy, injected into a vein, cancer drugs to kill cancer cells. In a clinical trial, which treats prostate cancer cells that have spread to men who were given cabazitaxel lived about two and the bone. It travels around the body and is taken up a half months longer than men who were given a by the bones where it kills cancerous cells. It improves different type of chemotherapy. symptoms such as pain and may also help men live longer. In a recent clinical trial, men on radium-223 lived Who can have it? It’s for men whose prostate on average four months longer than men on placebo. cancer has spread to other parts of the body and has stopped responding to hormone therapy Who can have it? It’s for men with cancer that has and the chemotherapy docetaxel (Taxotere®). It’s spread to the bones and has stopped responding not widely available on the NHS but you may be able to hormone therapy. It is available in England to get it through the Cancer Drugs Fund in England through the Cancer Drugs Fund and in Scotland, and in the rest of the UK, if your doctor requests it Wales or Northern Ireland if your doctor requests it from your local health board. from your local health board.

Read more about getting hold of new treatments prostatecanceruk.org/getting-new-treatments and the latest on abiraterone and enzalutamide prostatecanceruk.org/challengenice

16 Progress | Summer 2014 PROSTATE CANCER AND ME Errol Mckellar

56 year old Errol Mckellar anything in your life, so Now Errol is determined is one of the stars of what are you going to do to overcome the disease the recent BBC Lifeline now?’ And that’s when I and has pledged to raise Appeal and a champion made this decision to turn awareness amongst men of our Men United You imagine this negative thing into a of his age. He encourages movement. He is a car positive thing. I told myself, men who come into his mechanic who owns going into a I’m going beat this.” garage to go and speak to a garage in Hackney, their GP about their risk. London and was room with no In February 2011 Errol had diagnosed with prostate an operation to remove “I say to my customers, cancer in 2010 after his light. That’s his prostate and went on ‘when was the last time wife prompted him to go what it felt to have three months of you had your prostate and see his GP. radiotherapy and has now checked? You brought like. It felt as if been given the all clear, your car in here for me to “My wife was complaining although he is dealing with check because there’s a about my snoring so I someone had some side effects from problem. Do you know said to her if she made an his treatment. what’s going on in your appointment with the GP pulled the plug. own inside?’ Men need to for me, then I’d go. “Since having treatment, talk about it – even if they “When I got my results the I do have a numbness, don’t want to. “So I went along to the doctor said to me, ‘look, down there, in the lower doctors and while I was your prostate is covered in part of my body. I’m a “I talk to men of all ages. sitting in the waiting room, cancer, you could be dead young person, I’m an I talk to women too – I was bit bored, and in six months.’ I broke active person and when because they get the something made me go down. I literally just broke certain ‘tools of your trade’ message across to their and pick up this leaflet down, I was distraught, are taken away from you – men. I try and spread the about prostate cancer. I I was in tears. You know, it’s difficult to deal message every single asked them, ‘how long will I’m not ashamed to admit, with. But for me, day. I want to reach it take to do this prostate I really cried. You imagine I’m alive, and men before it’s too test?’ and they said, ‘10 going into a room with no that’s what’s late. As Men United, I minutes - and we can do light. That’s what it felt like. important really believe we can it now.’ That 10 minutes It felt as if someone had to me.” beat this.” changed my life.” pulled the plug on me. It was a very difficult period Errol’s PSA level came and took me a long time back a bit high and further to get positive again. tests revealed he had prostate cancer. “And my wife, she let me cry and then she turned At first he found it around and said to incredibly difficult to come me, ‘right, you’ve to terms with. never quit at

Watch our films about being diagnosed with prostate cancer prostatecanceruk.org

17 Progress | Summer 2014 17 PROSTATE CANCER AND ME The book that helped me through from Chris, Stephen, Andy and David Yet for some, it wasn’t reading which provided the Books are sometimes an escape from reality but when greatest inspiration but writing instead. Brothers Andy we asked you what books helped you deal with having and David Barnham were diagnosed with prostate prostate cancer, you favoured fact over fiction. cancer within nine months of each other. “My brother had radiotherapy and hormone treatment and I went Chris Bell told us about ‘Prostate Cancer – Understand, down the surgery route,” Andy told us. Prevent and Overcome’ by Professor Jane Plant. “I thought my cancer was beyond my control. But this They decided to put their stories to paper and their rally book helped me understand the influence of my diet against cancer, ‘You can stick that up your arse’, gave and made me realise that I do have some control them a unique way of dealing with their situation. after all.” As Andy said, “It helped us both enormously to detail our journeys and allowed family and friends to Stephen Hyett chose, ‘Betrayed by Nature’ by better understand and empathise.” Dr Robin Hesketh. “I felt much more optimistic about the future. I learnt about the great strides So what book has inspired you? Join the being made by scientists and how these will conversation on our online community at help in the development of new treatments.” prostatecanceuk.org/forum My motivation: My dad by Susan Childs reason I started volunteering. It’s a cliché but if I can Susan Childs (pictured below with Liam Fox MP) just help one man, I would be delighted. started volunteering for us in 2012 after losing her father to prostate cancer. “Dad was always the first person to help others or to raise money for charities, I feel that this is his legacy, “My dad was diagnosed in 2004. It came as a massive he is still helping others even after his death. shock to both him and us, his family. We didn’t know anything about prostate cancer. “Volunteering for Prostate Cancer UK gave me the chance to turn something so devastating into “Sadly my dad passed away in 2012. He had a poor something more positive and kept me focused during experience due to lack of communication between his my darkest days. I am not normally the type of person health professionals and I am absolutely determined to who speaks out publicly but I want to empower men try and stop this happening to anyone else. This is the to know their rights regarding treatment and support.

“After a nervous start I have been to Parliament, the Conservative conference, cheered on runners and handed out medals for Movember. I also ran an information stand at the Royal British pigeon show in Blackpool, along with a fellow volunteer. We spoke and gave information to hundreds of men. I felt fantastic afterwards, it was so rewarding. I have now decided that I am ready for Prostate Cancer UK speaker training, which I will be doing next month.

“Volunteering has given me so much confidence, a sense of well being and fun experiences that I never dreamt I would have. When I look back over the last 18 months, I can’t believe what I have achieved and it is all down to volunteering for Prostate Cancer UK.”

18 Progress | Summer 2014 In the SPOTLIGHT THANK Stephen Crozier however fit and healthy a raffle, live music and from Motherwell, you think you are.” awareness leaflets. YOU Lanarkshire. Stephen was diagnosed Stephen decided to “I was overwhelmed with with prostate cancer in channel his energy the support I got from

2013 aged 51. Although into raising funds and family and friends. People CYCLISTS it came as a big shock, awareness for us. First up who I hadn’t heard from in 151To the 151 cyclists who Stephen’s cancer was was a sponsored bungee 30 odd years got in touch. caught early and at the jump - the Highland Fling The night was a great rode 150 miles from moment he’s having his Bungee in Perthshire. success and a lot of fun. London to Amsterdam cancer monitored. After that Stephen I even managed to talk raising over £150,000. organised a charity night to a few friends who had “Being ex-services, I’m in at his local pub, with questions about prostate reasonably good shape – cancer and gave them and I don’t smoke or drink leaflets to take away.” really. So I was shocked to find out I had cancer. And “I’m up for anything and it’s taken me a long, long enjoy a challenge – so time to come to terms maybe I’ll do something with the fact that this more exciting than a can happen to anyone, bungee jump next time!” £6,000 To Mike Willgoss who has “My father is one of the prostate cancer in 2011, raised over £6,000 from gentlest, best men I know. I felt so powerless. He’s two months’ worth of His kind wisdom, sense faced all his treatment with supermarket collections. of humour, and child-like patience, courage, and His grand total is now over TOP curiosity about the world good humour. £30,000. have filled my life with love and fun. He always taught “When we found out me to seek the truth with recently that he is nearing DAD an open mind, to climb the end, I realised there trees, to love books and was one small thing I could

heroes, and to try to leave do. I launched a Twitter CAKES the world a better place campaign for dad to get a 1250To Stacey Marshall who than I found it. copy of Captain America: baked her socks off, held The Winter Soldier, before 20 bakes sales and raised “When he was its general release. over £5,550. diagnosed with “It was a huge Sophie’s dad Stratford advanced success. And has advanced prostate the flood of cancer. A huge fan of goodwill from Marvel Comics, when the campaign he was too ill to see the and latest Captain America celebrities is 160 G OLFERS film at the cinema, helping raise To David Hadley Smith, Sophie took action. awareness Rob Saunders and about Cameron Clarke for Here Sophie tells us prostate swinging into action and about the campaign and cancer too. organising a golf day that her top dad. raised £5,535.

Read more Prostate cancer and me stories on our website prostatecanceruk.org/news

Progress | Summer 2014 19 GET INVOLVED Join Men United, our army of volunteers and supporters, by getting involved in our work or events – in any way that you want – and become part of our growing movement for men against prostate cancer.

Get your and prostate cancer is Show off your something that every grill on bloke my age needs true colours This summer, dust off to bear in mind. MAN As the Official Charity your tongs, fire up the v BBQ is great way Partner of The Football grill and get involved in of having fun whilst League, we‘re celebrating MAN v BBQ. doing something very the opening fixtures of important. Invite your the 2014/15 season with Your challenge, if you mates and do something a splash of colour and choose to accept it, is to help each other be we want you to do the to host a barbecue for there in 20 years’ time.” same by taking part in a family, friends or your #shirt2work day. How? local community and So be it sausage or steak, It’s simple. Ask your help raise funds towards beef burger or bean burger, colleagues to wear their research which could whack something on the favourite club’s shirt or help us revolutionise the grill and stand up for Men colours to work on your way we detect and treat United in the fight against chosen day. And then prostate cancer in the UK prostate cancer. charge them £2. You (see page 6). don’t even have to be a Read about MAN v BBQ, football fan – any colours Gregg Wallace, who stars watch Gregg’s film When? of any sporting team in our spoof promo film or get fundraising tips will do. Find out more at for MAN v BBQ says, and celebrity recipes at Donate £2 andprostatecanceruk.org/ kick off the season in your club colours #“I turnShirt 50 this year 2prostatecanceruk.org/bbqWork shirt2work The ’taches Can you take are back on our 10,000 Men, have you been challenge? feeling a sense of loss 10,000 men die from since last November? prostate cancer every Are you chilled by the year. We need to change cold wind that blows this and need your help to across your upper lip? do it. Create a challenge involving the number Fear not, this year 10,000 and raise money to Movember will be back fight prostate cancer. and as hairy as ever. Are you ready? Collect 10,000 pennies (like William, left), run Keep an eye out 10,000 metres, play for updates here 10,000 yards of golf, do prostatecanceruk.org/ a 10,000 second silence Movember – or dream up your own 10,000 challenge. Need some inspiration? Visit our website to watch our 10,000 challenge film.

20 Progress | Summer 2014 Men United v Prostate Cancer We can win this OFFICIAL CHARITY 2014/15 prostatecanceruk.org/shirt2work

2865 Prostate Cancer UK is a registered charity in England and Wales (1005541) and in Scotland (SC039332). Registered company number 2653887.

2865 Wall of colour poster A4.indd 1 25/07/2014 00:31 13-14 September More events Thames Path 2-3 August Challenge EVENTS Total Warrior 14 September 10 August Zip Slide the Clyde Prudential CALENDAR RideLondon 100 28 September Aug 2014 - Feb 2015 Berlin Marathon 17 August Jurassic Classic 5 October Great Scottish Run Speaker training: 30-31 August We are running speaker Ride 24 London 12 October training for volunteers on to Newcastle Royal Parks Half the following dates: 5 Marathon 5-7 September Oct 20 Aug and 17 Sept Ben Nevis Until October Aberdeen Challenge 3 Peaks Challenge

5 Aug and 2 Sept Great Scottish Run 6-8 September Hadrian’s Wall Swansea Take on a 10km Ride 24 London Highlights or a half marathon to Paris running challenge 1-30 November for a fantastic day 7 September Movember out taking in some Bupa Great of Glasgow’s most North Run Until December iconic landmarks Wiggle Super and buildings. London to Series Brighton

Join over 1,000 riders in the Devon countryside for stunning scenery, 17 homemade cakes and Aug challenging climbs.

This great event was Jurassic Classic recently chosen as one of There’s still time the ‘top 10 events in the 5-7 to sign up for the UK and Europe’ by The Sept Jurassic Classic. Guardian newspaper.

Conquer Britain’s We’ll prepare you for highest peak the challenge with our Join us to tackle Ben fundraising and training Nevis. At 4,406 feet it’s guides, support you a great challenge. throughout the weekend, and be on hand to This exciting group celebrate with you as adventure takes you you complete this tough to the summit of Great hike. We’ll also send you Britain – a memory that a Prostate Cancer UK will last a lifetime. walking top.

Find out more about how you can get involved and become part of Men United at prostatecanceruk.org/get-involved

Progress | Summer 2014 21 Our services

Specialist Nurses Information on Regional services The blue men on this map 0800 074 8383 prostate cancer To find out what local represent the locations of support and services are support groups who have (Mon to Fri 9am-6pm, 0800 074 8383 available in your area visit asked to be listed on our Wed 9am-8pm) We provide free information prostatecanceruk.org/ website. Find a group near Our Specialist Nurses on prostate cancer and in-your-area you prostatecanceruk. have the time to listen and prostate disease. Order org/supportgroups answer your questions or download copies from on anything to do with the information section Live chat Our Specialist Nurses are Please note that some prostate cancer and of our website or call our available online to answer groups run meetings in prostate disease. Specialist Nurses for help your questions and help more locations than the choosing the publications you find the information one listed. One-to-one you need. telephone you need. support 0800 074 8383 Talk things over with someone who’s been there. We match callers with The more I trained volunteers who’ve learned and had a similar experience. understood Online community about prostate Join the community online and talk to others cancer, the who know what you’re safer I felt. going through. You can ask questions, post information and share Prostate cancer your ups and downs. support groups Get back on track Meet and talk to other people affected by 0800 074 8383 prostate cancer who If you have prostate cancer understand what you’re and you’re struggling with going through. We run a fatigue, our Get back on number of support track team can help you groups in Scotland manage your tiredness to and there are over 70 help you do the things you independent groups want to do. across the UK.

Find out more about our services at prostatecanceruk.org/we-can-help

22 Progress | Summer 2014 Other useful organisations Expert sessions

British Association financial and emotional on living with for Counselling and support for people with Psychotherapy cancer, their family prostate cancer www.itsgoodtotalk.org.uk and friends. 01455 883 300 We know that men don’t “I went along to refresh and Provides information about Maggie’s Cancer always get the support improve my knowledge of counselling and details of Caring Centres they need when they’re prostate cancer to help me therapists in your area. www.maggiescentres.org diagnosed with prostate in my role as a one-to-one 0300 123 1801 cancer and can often be support volunteer. Cancer Black Care Provide information and left not knowing what www.cancerblackcare. support to anyone affected support is available. “The speakers were org.uk by cancer. Their website excellent. In particular the 020 8961 4151 holds a list of centres We’ve started to run presentation on the sexual Provides information and across the UK and has conferences for men who consequences of prostate support to people from an online support group. are going through or have cancer was the most black and minority ethnic finished treatment. comprehensive treatment communities who are NHS Choices They’re a place for men of the subject I have affected by cancer. www.nhs.uk to go and find out what heard – giving rise to much Provides information to support is out there and introspection. CancerHelp UK support you in making get information on how to www.cancerresearchuk decisions about your own manage their life with or “The presentation of org/cancer-help health, including an A-Z of after prostate cancer. developments in treatments 0808 800 4040 treatments and conditions, gave me a good insight (Mon-Fri, 9am-5pm) and information on NHS The conferences offer into the benefits of the CancerHelp is the patient health services in your men and their families the latest chemo drugs, and information website of local area. opportunity to listen to an overall review of the Cancer Research UK experts in prostate cancer, treatments available. and provides information Penny Brohn talk about topics including, about living with cancer. Cancer Care relationships and sex, diet “Overall this was a day well www.pennybrohn and exercise, signs of spent, leaving me refreshed College of Sexual and cancercare.org recurrence and living with and thoughtful.” Relationship Therapists 0845 123 2310 incurable prostate cancer. www.cosrt.org.uk Offers support using We’ll be holding these 020 8543 2707 complementary therapies Peter Robinson, who events throughout the For information on sexual and self-help techniques recently went to one of our country. Visit our website and relationship therapy, to people affected by conferences in Edinburgh, to find out if there’s a including a list of therapists. cancer. Their approach said this: conference near you. is designed to work Health with Pride hand-in-hand with To find out what’s happening in your area visit www.healthwithpride. medical treatment. prostatecanceruk.org/in-your-area nhs.uk An online health resource Relate for lesbian, gay and www.relate.org.uk bisexual patients. Their 0300 100 1234 website has information Relationship counselling You can help on cancer issues and and sex therapy for We’re really proud of the services we provide for erectile dysfunction for individuals and couples. men. However, every year in the UK 40,000 more gay men. men are diagnosed with prostate cancer. Sexual Advice We need to reach a lot more of them. Macmillan Association Cancer Support www.sda.uk.net If you want to join the fight and help more men like www.macmillan.org.uk 020 7486 7262 Peter to put prostate cancer behind them, please 0808 808 0000 Provides a helpline service fill out the enclosed form or visit the Get involved (Mon-Fri, 9am-8pm) for advice and information section of our website to find out more or make a Provides practical, about erectile dysfunction. donation. Thank you.

Progress | Summer 2014 23 MAN V BBQ This summer, dust off the tongs, fire up the grill and WIN pit your wits against the BBQ beast. Hold the ultimate great MAN v BBQ and help us fight prostate cancer. prizes!

Sign up now at prostatecanceruk.org/bbq

2714 Prostate Cancer UK is a registered charity in England and Wales (1005541) and in Scotland (SC039332). Registered company number 2653887.