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KENNEY JONES Calculating Your Risk Can We Tell Who’S Going to Prostate Get Prostate Cancer? Cancer and Me

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KENNEY JONES Calculating Your Risk Can We Tell Who’S Going to Prostate Get Prostate Cancer? Cancer and Me Prostate cancer news and views ProIssue 4 | Summer 2014 gress Staying active How physical activity can help you get back on track KENNEY JONES Calculating your risk Can we tell who’s going to Prostate get prostate cancer? cancer and me Progress | Summer 2014 1 INBOX The Manual Get in touch and have Getting active – your Editor’s 3 your say 14 questions answered note A warm welcome to Prostate cancer news Focus on… Issue 4. Since the last Latest research The latest on new issue our Men United 4 developments 16 treatments movement has grown massively with over 184,000 people taking the online awareness ONTENTS Calculating your risk Prostate cancer test and thousands How do we spot men and me joining the fight. C 6 most at risk? 17 More inspiring stories In this issue we’re asking you, Men United, to get Opening a window Get involved barbecuing in MAN v BBQ into your prostate See how you can (page 20) and help raise MRI and diagnosing become part of money to fund research 8 prostate cancer 20 Men United into a risk calculator that will help us find out who’s most at risk (page 6). Defining the future Events calendar We also take a look at of research Your diary from now how magnetic resonance 10 Our Research Forum 21 until January imaging (MRI) might help men get a more accurate diagnosis (page 8). News from us Our support and And our cover star, rock Live chat is go and news services legend Kenney Jones, 11 from The Football League 22 How we can help you talks openly about his experience of prostate cancer and why he thinks we should all be Prostate cancer and talking more (page 12). me: Kenney Jones 12 Read Kenney’s story Finally, there are lots more stories from you (page 17) so thanks to everyone Cover photo by Stephen Daniels /DANPICS who sent something in. Best wishes, Photo by Stephen Daniels /DANPICS Editorial team Nick Wright Dr Sophie Lutter Sarah Lines Sonia Barbate Jocelyne James (Editor) 2 Progress | Summer 2014 INBOX I love receiving Tell us what you think about the magazine. these All feedback is welcome: We want to hear what you’ve got to say. magazines. Every time I get them I Dear Progress Dear Progress Dear Progress learn more Men United is an excellent Please can you let me I had regular PSA tests and about prostate idea to raise awareness know how I can share was diagnosed three years in football. But what is my experience of prostate ago but suffered badly cancer and being done to bring in cancer with other men? from septicaemia after I learn more Rugby Union and Rugby I think it really does help had a biopsy. I think we League, given all the men to speak to someone need more research into a about what my involved and the number who has gone through less dangerous method of family goes of supporters? it – to speak about both establishing the type and the physical and emotional aggressiveness of through day David, Cheshire stress and worry of the prostate cancer. by day. before, during and after Dear David effects of prostate cancer. Anon, Surrey Thanks for supporting Men Peter, Lancashire Dear Sir United. We’re really excited about our partnership with Dear Peter We’re so sorry to hear The Football League and you had a bad biopsy the number of men we’re It’s great you want to experience. Although reaching. But Men United support other men. There septicaemia isn’t common, isn’t just about football – it’s are lots of ways you can there are risks involved for all men. We’re always share you story. You could with biopsies. Research I think it is looking for ways to get join a local support group is going on at the moment important involved in sport as it’s a or our online community into better tests for great way to get in touch – see page 22 for more prostate cancer. that my sons with all you men out there details. We also train one- Researchers are looking and my brother, and raise awareness of to-one support volunteers, at how things like magnetic prostate cancer. We’ve who can then support resonance imaging (MRI) and his sons, already done a lot of work people who want to talk and blood tests for genetic know as much with Rugby League teams to someone who’s been or protein markers can and are hoping to do more there. If you’re interested play a part in this. You can as possible with Rugby Union. So visit prostatecanceruk.org/ read more about MRI on about prostate watch this space! get-involved page 8. cancer before Write to us: Correction eight weeks, before they need to. Prostate Cancer UK In the last issue we said men feel up to going Fourth floor that some men may be back. It depends on the Thanks The Counting House able to go back to work type of surgery, what for this 53 Tooley Street two weeks after surgery. side effects you are London SE1 2QN This is occasionally experiencing and the magazine. possible, but it’s more type of work you do. common for it to take Your specialist can give longer, about four to you advice. Like us on Facebook: Follow us on Twitter: Email the Progress team: Prostate Cancer UK @ProstateUK [email protected] Progress | Summer 2014 3 PROSTATE CANCER NEWS Researchers in Scotland get £500,000 to help improve diagnosis Prostate Cancer UK, resonance imaging (MRI) “Small studies suggest at one of Scotland’s top The Movember Foundation and ultrasound scans that using a special type universities. We can, and and the Scottish could be used to reduce of MRI before a biopsy will, beat prostate cancer – Government have the number of biopsies can help to achieve these and today’s announcement handed researchers that are needed to aims. This funding allows is another step towards this at Dundee University diagnose prostate cancer, me and my team to expand ultimate destination.” £500,0000 to investigate and to more easily spot these studies into a ways to improve the the difference between large trial, with better Dr Iain Frame, our diagnosis of aggressive aggressive prostate cancer comparison methods and Director of Research prostate cancer and and non-aggressive more rigorous protocols.” said, “Each year almost reduce the number of prostate cancer. as many men are unnecessary biopsies. Scotland’s Cabinet diagnosed with prostate Mr Nabi said, “The current Secretary for Health and cancer as women are Work on the five year process for diagnosing Wellbeing, Alex Neil MSP, diagnosed with breast research project will prostate cancer involves said, “I’m delighted that cancer. But research be led by Mr Ghulam several steps, each with the Scottish Government into prostate cancer has Nabi, from the University their own uncertainties. It and Prostate Cancer UK, suffered from a legacy of Dundee’s School of is my hope that the work through their partnership of neglect. By funding Medicine. Mr Nabi’s I am able to do with this with The Movember research projects like this project is to investigate funding will lead to a more Foundation, have been able we are determined to right whether magnetic streamlined diagnosis. to jointly fund the research this long-standing wrong.” Can having a vasectomy increase a man’s risk of aggressive prostate cancer? The papers recently developed prostate Although this sounds vasectomy and having reported that having a cancer, compared to quite a lot when you aggressive prostate vasectomy can increase 12.1 per cent of men talk in terms of relative cancer, it can’t and a man’s risk of developing who hadn’t. risk (comparing two doesn’t tell us that one aggressive prostate groups), when you turn causes the other, or why cancer. We take a look They found no link it into actual numbers, the link is there. We’d at the research behind between having a it’s really pretty small. need a different type the headline. vasectomy and developing It translates to 17 out of of research to non-aggressive, localised 1,000 men who didn’t understand that. This story was based on a prostate cancer. have a vasectomy 24 year follow-up study of developing aggressive Deciding whether or not to 49,405 men in the United But they did find that prostate cancer, have a vasectomy is highly States. Of these, 12,321 there was a 22 per cent compared to 19 out of personal, and should be (25 per cent) men had increased relative risk of 1,000 men who did. discussed with a GP. a vasectomy. developing aggressive prostate cancer for men The other important thing We don’t think men need In total 12.4 per cent who’d had a vasectomy about this research is to be too concerned of men in the study compared to men that although it shows us about these results at who’d had a vasectomy who hadn’t. a link between having a this stage. 4 Progress | Summer 2014 UK sees first ever centres of excellence in prostate cancer research The Movember Foundation They are part of a The aim is to speed aggressive prostate in partnership with coordinated attack up our understanding cancer, identifying men Prostate Cancer UK have on prostate cancer in of the disease through at high risk of aggressive launched the UK’s first the lab and in the clinic innovation, making sure disease, and finding ever centres of excellence and represent a big lab breakthroughs turn better treatments for programme in prostate move forward for the into actual benefits men with advanced cancer research.
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