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A Friend in Me Driving the Research Agenda All in A OutreachFALL 2008 CONNECTING OUR COMMUNITY & RAISING AWARENESS ABOUT AUTISM A FRIEND IN ME New group helps children with autism build friendships Page 34 DRIVING THE RESEARCH AGENDA SARRC’s leadership at the national level Page 36 ALL IN A DAY’S WORK CommunityWorks helps teens learn about the real world Page 42 s p r e a d i n g the SARRC is helping raise awareness and fi ght autism in the Hispanic community Page 22 word SARRC esta ayudando a crear conciencia y Corriendo la Voz a luchar contra el autismo en la comunidad Hispana Página 28 AutismWalk_FullPgAd_OL.ai 8/8/08 10:30:56 AM C M Y CM MY CY CMY K Contents 22 Guiding Force With the help of supporters, SARRC is reaching out to empower the Hispanic community and form a united front against autism. 28 Fuerza y Orientación SARRC se extiende hacia la Features comunidad hispana para formar un frente unido en contra del autismo. 34 A Friend Indeed The FRIEND Playground Club, which has been implemented in the Scottsdale Unified School District with SARRC’s help, earns high marks from parents and peers. 36 Driving Research SARRC leaders help build the national autism research agenda led by the NIH Interagency Autism Coordinating Committee. 38 Teamwork Gear up for the Arizona Walk Now for Autism on Nov. 2 at Tempe Beach Park. 40 Tuned In KTAR’s inaugural Action for Autism on-air fundraiser made a big impact on SARRC and the community. 42 Building Community SARRC’s Vocational & Life Skills Academy provides job opportunities and coaching for teens and adults on the autism spectrum. 46 A Lasting Legacy SARRC launches a program for charitable bequests in order to reach its goal of building a $10 million endowment by 2012. 47 Investing in Success The Helios Education Foundation grants $1 million to SARRC for its endowment and a new early childhood education program. Top: Enrollment in SARRC’s Hispanic JumpStart program, presented in Spanish, has increased dramatically over the past few years. 4 Letters 20 Comunicación Bottom: The FRIEND Playground Club at Copper Ridge 5 Letter from the Editor (en Español) School in Scottsdale has successfully completed 6 Vision 48 Connections a pilot program involving children with autism and their typical peers. 7 In Brief 49 Conexiones 12 Giving Back (en Español) 14 FAQs 50 Happenings Departments 15 Preguntas Frecuentas 52 Programs On the Cover: 16 Breakthroughs 54 Impact LEO esperiqueta 18 Communication Photo © 2008 STEPHEN G. dreisesZUN/VIEWPOINT photographers STEPHEN G. DreisesZUN/VIEWPOINT Photographers; LYndseY Waugh Fall 2008 | 3 | OUTREACH Your Thoughts Letters FALL 2008, VoluME 4, Issue 3 Elogios para el Programa JumpStart Queremos manifestar nuestro más profundo agradecimiento por Editor-IN-CHIEF la ayuda que nos dieron para nuestro hijo, Adrián Noreña, a través del Denise D. Resnik programa JumpStart. El haber asistido a las sesiones del programa EXecutive Editor Lisa Glow nos dio la oportunidad de entender y aceptar su condición. Con la MANAGING Editors capacitación que nos brindaron tenemos, como padres, un nuevo Stephanie Conner camino para darle a nuestro hijo la oportunidad de que, en el futuro, Stephanie Jarnagan tenga una mejor y mayor capacidad de vida y que pueda integrarse assistant MANAGING Editor Lyndsey Waugh a la vida productiva del país sin ningún contratiempo o rechazo. Nuestro más profundo agradecimiento por su ayuda. Art Director Tamara Kopper Enrique y Danitza Noreña PREP SPECIALIST Sonia Washington Phoenix, Ariz. Contributors Beth Cochran Praise for JumpStart Diana Diaz Ginger S. Eiden We want to express our most profound gratitude for the help Amy Foley you gave us for our son, Adrian Noreña, through the JumpStart Joseph Gentry, Ph.D. Janet Kirwan program. Participating in the program gave us the opportunity to Linda Kraynak understand his disorder. With this knowledge, we have, as parents, Rachel McIntosh, BCBA Doreen Muir discovered a new path to give our son the opportunity to have a Sharman Ober-Reynolds, RN, C-FNP better future and a more fulfilling life. We believe he will be able Rachel Southard to be a contributing member of society and will face far fewer SARRC Board OF Directors challenges and rejections throughout his life now that we know Howard Sobelman, Snell & Wilmer, Chair Leo Valdez, Hutchinson, Shockey, Erley & Co., Vice Chair how to best support him. Our most sincere thanks for your help. Cheryl Walsh, WalshCOMM, Secretary Herbert L. McCoy, Orbital Sciences, Treasurer Enrique and Danitza Noreña Rose Arck, ACS Realty Services Joe Blackbourn, Everest Holdings Phoenix, Ariz. Joseph Cooper, Medicis Pharmaceutical Corp. Danielle Feroleto, Small Giants Lisa Frace, Arizona State University Action for Autism Inspires Listeners Kathy Hancock, Fennemore Craig Toby Keller, Desert Surf Co. to Learn and Give Back Tom Kelly, Schaller Anderson Inc. Every once in a great while, a person will be going about every- Mary Martuscelli, JPMorgan Chase Matt McMahon, Arizona Outback Steakhouse Group day life and something will catch their attention. That person may John Napolitan, retired, Morrison Homes not understand what got their attention, but they can’t seem to turn John Ogden, retired, SunCor Development Co. Sergio Penaloza, Cox Communications away. After watching and listening, they realize that they are in the Joe Ray, Estudio Ray midst of watching the greatness of the human heart at work. Larry Reese, Blood Systems Inc. Mike Reina, Southern Wine & Spirits This is exactly how I felt listening to Action for Autism. I have Denise D. Resnik, Denise Resnik & Associates never known anybody directly affected by this disorder, but I couldn’t Julia Rosen, Arizona State University Kay Snell, Autism Society of America ignore it either. After listening for about 10 minutes, I was hooked Christine K. Wilkinson, Arizona State University on wanting to know, understand and help. SARRC and KTAR’s SARRC LEADERSHIP Action for Autism affected me in a way that I didn’t know was pos- Lisa Glow, J.D., President & CEO sible. After listening to all of the donations coming in, I reflected Raun Melmed, M.D., Medical Director & Co-Founder Michelle Reagor, Chief Financial Officer on what it means to be a hero and felt inspired. Daniel Openden, Ph.D., Clinical Services Director A hero is someone who stands up and fights for the cause that Christopher Smith, Ph.D., Research Director Alisa Wheeler, Development Director is greater than any one person. They fight for those who can’t fight Jeri Kendle, Vocational & Life Skills Academy Director for themselves. It is one fighting for the greater good of the many, Outreach is published three times annually by the never asking and never wanting reward or recognition, just success. Southwest Autism Research & Resource Center (SARRC) In my eyes and to so many others, you are all heroes. If there is 300 N. 18th St., Phoenix, AZ 85006. anything more that I can do to help, please let me know. Contact INFO (602) 340-8717 [email protected] Rick Franklin Special thanks to the writers, editors, El Mirage, Ariz. photographers and designers who contribute their time and service in-kind to SARRC. OUTREACH | 4 | Fall 2008 Opening Words Opening Letter from the Editor Thinking ahead, moving forward ll parents worry about their children. It’s and life-skills program is designed to help young adults part of our job. When they’re little, we and adults with ASDs express interest in potential worry about bruised heads and skinned careers while learning necessary life skills that will knees. As they age, we worry about cur- maximize their ability to live and work independently fews and peer pressure. And it doesn’t to the greatest degree possible. stop when they become adults. Our teens work at the Phoenix Zoo, the Burton AFor parents of children with autism, those worries Barr Central Library, the Arizona Science Center and are magnified exponentially. A lack of social and the Desert Botanical Garden. The programs that communication skills plus the repetitive obsessive- comprise CommunityWorks — ZooWorks, LibraryWorks, compulsive behaviors indicative of the disorder ScienceWorks and GardenWorks — give our teenagers combined with insufficient vocational training puts and young adults the opportunity to gain valuable those with autism at a disadvantage. We know that life skills and job experiences, make new friends and many adults with autism excel in their chosen fields, earn a paycheck. (Learn more on page 42.) but the harsh reality is that current unemployment It is only through the support of our community rates for adults with autism hover around 90 percent. that we are able to serve our families. Earlier this year, By comparison, 67 percent of adults with disabilities KTAR, with Sanderson Volvo’s sponsorship, produced are unemployed. the 26-hour Action for Autism radio event. This fund- We must provide people with autism and their fam- raising drive raised much-needed awareness of autism ilies with a vision for the future — one they do not in addition to greatly appreciated funds. Through fear, but look forward to. One that means living in generous corporate sponsors, individual donors, local a place that feels like home because it’s theirs and partners who employ our adolescents and adults, and working in a job that puts their talents and skills to communities that respect, value and support them, I use, builds their confidence and helps them be produc- truly believe we can empower individuals with autism tive members of our society. And one that involves to embark on the promising futures they deserve. friends and a community that support them. At the Southwest Autism Research & Resource Many thanks, Center (SARRC), we’re working to engage our young people now in hopes that as adults, they will be con- tributing members of our community who are valued and appreciated.
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