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National Strategic Plan for Neurodevelopmental Disorders 2016

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National Strategic Plan for Neurodevelopmental Disorders 2016 National Strategic Plan for Neurodevelopmental Disorders 2016 – 2021 Prepared for the Government of Bangladesh at the request of its National Steering Committee for Autism & NDDs Institute for Community Inclusion – UMass Boston IN COLLABORATION WITH SHUCHONA FOUNDATION | MAY 15, 2016 Let the message from the international community be clear: Together, with persons with disabilities, we can achieve an inclusive, accessible and sustainable future for all. Ban Ki-Moon Secretary General of the United Nations 3rd of December, 2015 Acknowledgements The authors wish to thank the following for their contributions and/or support during the development of this document – Ministry of Health & Family Welfare Dr. Shirin Zaman Munir Ministry of Social Welfare Dr. Muzharul Mannan Ministry of Education Prof. Dr. Mohammad Golam Rabbani Ministry of Finance Dr. Helaluddin Ahmed Planning Commission Farhana Anwar Rahman Ministry of Women & Children Affairs Prof. Narayan Saha Ministry of Primary & Mass Education Prof. Shaheen Akhter Ministry of Labor & Employment Dr. Narsis Rahman Ministry of Youth & Sports Anjuman Ara Local Government Division Anima Das Nupur ICT Division Qazi Afroza Sultana Ministry of Information Sajida Rahman Danny Ministry of Cultural Affairs Muhammad Abdullah al-Zubayer NGO Affairs Bureau Ashfaque-ul-Kabir Prime Minister’s Office Dr. Sharif Chowdhury Autism Cell Nazneen Akhtar Directorate General of Health Services Syeda Munira Islam Department of Social Services Khadija Khondker Jatiyo Protibondhi Unnayan Foundation Dr. Rownak Hafiz NDD Protection Trust Michael Zube and finally, our dear friends Anila, Faisal, Farhat, Poshla, Prithi and Seeam Contents 1. Introduction ................................................................................................................................... 1 2. Recap of the 2016 Situation Assessment of Autism and NDDs in Bangladesh ........................ 3 3. The need for a strategic plan ........................................................................................................ 6 4. Methodology .................................................................................................................................. 8 5. National Strategic Plan for Neurodevelopmental Disorders 2016-2021 ..................................... 9 5.1. Vision, mission and objectives for NSCAND ..................................................................... 9 5.2. Life span needs of persons with NDDs ............................................................................. 10 5.3. International standards for the development and inclusion of persons with NDDs ...... 18 1. Research ............................................................................................................................... 18 2. Early education/early intervention .................................................................................... 21 3. Inclusive education ............................................................................................................. 23 4. Health supports and promotion ......................................................................................... 25 5. Transition ............................................................................................................................. 28 6. Employment ........................................................................................................................ 31 7. Community life and home .................................................................................................. 34 8. Technology .......................................................................................................................... 36 5.4. Logical framework for Government activities ................................................................... 38 5.5. Focused strategic sub-plans ............................................................................................... 79 5.5.1. Coordinated mass awareness-building plan .............................................................. 79 5.5.2. Healthcare plan ........................................................................................................... 84 5.5.3. Education plan............................................................................................................. 88 5.5.4. Employment plan ........................................................................................................ 93 5.5.5. Human resource development plan for Government personnel .............................. 96 5.5.6. Use of technology to augment Government activities ............................................ 105 5.5.7. Expansion of Integrated Disability Service Centers ............................................... 118 5.6. Collaboration plan ............................................................................................................. 122 5.6.1. Collaboration between Government branches ........................................................ 122 5.6.2. Collaboration with local and international partners ................................................ 132 5.6.3. Networking with various stakeholders of NDDs in Bangladesh ........................... 134 5.7. Financial management ...................................................................................................... 136 6. Reconciliation of the five-year action plans of NSCAND members ..................................... 139 6.1. Planned Government activities in harmony with the Strategic Plan ............................. 139 6.2. Planned Government activities not in line with the Strategic Plan................................ 141 7. Monitoring and evaluation plan ............................................................................................... 144 7.1. Accountability .................................................................................................................... 144 7.2. Process evaluation ............................................................................................................. 148 7.3. Data collection and reporting ........................................................................................... 149 8. Conclusion ................................................................................................................................. 179 9. References .................................................................................................................................. 180 10. Annexures .............................................................................................................................. 181 Appendix 1 – Feedback from Focus Group Sessions .................................................................. 181 Appendix 2 – Incorporation of international standards in the National Strategic Plan ........... 186 List of Figures Table 1 - Summary of the recommendations from the 2016 Situation Assessment of Autism & NDDs in Bangladesh ............................................................................................................................... 4 Table 2 - Lifespan needs of persons with NDDs during each of the eight stages of life .................... 14 Table 3 - Logical framework of Government activities pertaining to AWARENESS, ADVOCACY AND SENSITIZATION ..................................................................................................................................... 39 Table 4 - Logical framework of Government activities pertaining to HEALTHCARE FOR PARENTS AND SIBLINGS OF PwNDDs .................................................................................................................. 43 Table 5 - Logical framework of Government activities pertaining to IDENTIFICATION ..................... 47 Table 6 - Logical framework of Government activities pertaining to INTERVENTIONS ..................... 51 Table 7 - Logical framework of Government activities pertaining to TRAINING OF PARENTS AND SIBLINGS OF PwNDDs ........................................................................................................................... 56 Table 8 - Logical framework of Government activities pertaining to EDUCATION ............................ 60 Table 9 - Logical framework of Government activities pertaining to EMPLOYMENT ........................ 65 Table 10 - Logical framework of Government activities pertaining to PROTECTION OF PwNDDs .... 71 Table 11 - Logical framework of Government activities pertaining to COMMUNITY SUPPORT ....... 74 Table 12 - Coordinated mass awareness building plan ....................................................................... 80 Table 13 - Development of Government human resources ............................................................... 97 Table 14 - Suggested examples for the use of technology to augment Government activities ...... 112 Table 15 - Allocation of specific objectives to various Government branches ................................ 123 Table 16 - Planned Government activities in harmony with the National Strategic Plan 2016-2021 ............................................................................................................................................................ 139 Table 17 - List of proposed sub-committees for NSCAND and their constituent members ............ 145 Table 18 - Data collection and reporting plan ................................................................................... 152 Figure 1
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